Q&A Part 4 of 4: Pain Management, Mobility, Assistance & Pressure Sore
Thank you for watching my video!
61. Did you receive additional surgery to move your arm, or were you able to to always move it after your accident?
62. Can you explain what the doctor said about your hand? And how the accident contributed to it?
63. Do you have someone that moves/massages your legs etc so they don’t go stiff and maybe help with pain? Do you receive daily, full body exercise or at least a considerable amount of movement?
64. How long did it take for you to accept that you were paralyzed?
65. How much mobility(on your own) do you have? Has that been the same since your accident or changed over time?
66. Is it the local city government that’s making changes to your health care that is making it difficult to get what you need?
67. How much can your daily pain be controlled?
68. Do you mind sharing what your particular needs are at this time? Are you with family?
69. Project Walk: Do you think it was sweat or AD issues?
70. Have you had the opportunity to use an FES cycle ergometer? (Functional electric stimulation)
71. Do you have uncontrollable spasms in your legs?
72. Do your assistants have a log and write daily notes on your ADLS(activities of daily living) to keep track?
73. Why have you had to be in bed the last few months?
74. What degree of pressure sore do you have?
75. Why did they not pick up on pressure sore earlier?
76. How do you eat laying down?
77. Are you on blood thinners if bed bound at the moment?
78. Why have you not been in hospital to help heal pressure sore?
79. Have you heard of, or tried using honey for any pressure ulcers?
80. You know of corn cushions for the foot? Do they have those for pressure sores?
Пікірлер: 275
Hi beautiful souls! Thank you so much for being here and for your wonderful comments - I truly appreciate them ❤️ I try to read and answer as many as possible, and know that I’m just so thankful that you take from your valuable time to do so ❤️ Love & light!
@belindapaul9828
Жыл бұрын
Hey Erin ❤ - I’ve only just found your channel & I think it’s great even though I’m only a few streams in. The story of your accident💔 was the first vid I watched and I truly appreciated everything you shared. Sorry if you’ve already spoken to this - but I was wondering about your mum & how she went processing & adjusting to your trauma? I guess your grandparents too given that they were such a big part of your life. Your resilience & determination is incredible tbh & I’m thinking that perhaps your family has something to do with that? Or maybe not!!😬
You are proof that no matter what situation one may be in, there is always a way to contribute positively to the world. Thank you for sharing your light, it is very bright and beautiful.
@eirinceciliegjedrem
Жыл бұрын
Thank you and likewise! 💖✨
@maryellenblount6376
Жыл бұрын
I agree
@anti-ethniccleansing465
Жыл бұрын
@@eirinceciliegjedrem Something cool about you that I can’t do: You can eat and drink while laying down flat! I wish I could! 😁 I was born with a life-threatening birth defect that required tons of surgery - my plumbing was off. My esophagus ended in a little pit instead of hooking up to my stomach. So in the surgeries they had to stretch my tiny half of an esophagus out to hook it up to my stomach and create a sphincter there, and then I had to get my esophagus dilated all the time because it naturally wanted to close up. There’s no peristalsis muscles in my esophagus to push food or liquid down into my stomach, and I’m also unable to throw up. I have to sit upright and drink a ton of liquid with each bite of food in order to push my food down, with the help of gravity. I have to chew things up extra well. If I don’t do all that, the bite of food will just sit at the top of my throat, going nowhere, and that’s super uncomfortable. As you can imagine, it’s a very slow process for me to eat lol. I have always been the very last one still eating when eating with others throughout my life - the school bell would ring for lunch to be over and I was _STILL_ eating (luckily I had a dear best friend who always stayed with me 😊). One would think I’d be overweight seeing me eat so long, but it’s quite the opposite; I’ve always been underweight. Drinking so much of anything will make feel full faster, so I constantly have to give it some time for the liquid to digest a bit before I feel like I have more stomach room to pick up eating again. It was nothing more than an annoyance/inconvenience all my life (mostly because I could never eat while out and about unless I had access to a ton of water or other drink). But it’s a lot more than an annoyance now since my spine surgery that disabled me and made me mostly bedridden. I spend most of my time lying flat too, but eating forces me to have to constantly push my upper body up just to take every bite, chew, and swallow it. Well I often don’t feel good enough with my pain levels to do it, so either I just don’t eat and deal with a pissed off grumbling hungry stomach, or I’ll end up not finishing the food because I’m just not up to pushing myself up repetitively for so long. Anyways, I’m jealous/envious of that neato ability of yours. :) Peristalsis is so freaking cool and I wish I had it! How beyond geeky does that sound?? 😂
I am 75 always was active then after Covid lost all use of my legs I had a son that was paralyzed from waist down from birth he also had colostomy and urstomy it made life easier he lived to 24 and was very independent I really enjoy what you have to say
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing your story and your light 💖✨
I love your distinction between accepting and coming to terms with a hardship. I agree! Love from Austria to an awesome woman in Norway
@eirinceciliegjedrem
Жыл бұрын
Thank you! Sending some back ❤️
Hi Eirin! I’m happy to have found your lovely channel! I’ve been completely bedbound for the past 5 years due to a progressive neurological condition, so I relate to a lot of what you’re going through. From a young age I’ve gradually lost the ability to walk, stand, sit up, eat solid food and so on. I think instead of accepting, I try to make the best of the life I’ve been given and the circumstances I’m in, even though I don’t always succeed. I still wish things would be different and I still grieve for the life I’ve lost. I think that’s human and natural. It’s a difficult balance sometimes. Hugs from Finland! ❤️
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing your story and your beautiful, wonderful light 💖✨ You inspire me and I’m so happy you’re here ❤️🥰
@elizabethconroy7665
Жыл бұрын
Hello Folara, Please accept warm Hugs from Amman Jordan 🇯🇴 The Middle East I’ve visited Finland Stunningly beautiful
@folaraj6343
Жыл бұрын
@@elizabethconroy7665 thank you Elizabeth!❤ So kind of you! I live in Helsinki. Warm hugs back❤
Thank you for sharing your story and answering questions. You are such an inspiration! I have Stage IV ovarian cancer and have been battling with depression. Listening to your story has helped me. You are a sweet, lovely and kind person. I wish you the best. God bless.
@eirinceciliegjedrem
Жыл бұрын
Thank you for being here and for sharing your beautiful light 💖✨ My heart pours out to you, my wonderful sister in Christ 🤍✨🕊️🙏
Thank you Eirin. As a therapist I can see many of the questions asked over the last few video posts were emotionally difficult for you. I admire your courage and honesty and willingness to dig in and share the hard parts. Your channel has picked up so many new viewers in the last month! 🎉
@eirinceciliegjedrem
Жыл бұрын
Thank you so much, I truly appreciate it ❤️
Eirin, you’re so articulate ..your videos are so informative, thank you! ❤
@eirinceciliegjedrem
Жыл бұрын
Thank you too! 💖
@karenbailey9778
Жыл бұрын
💐
I love your energy and spirit. Thank you for sharing. Sending you lots of positive thoughts and hope you heal soon from the soar.
@eirinceciliegjedrem
Жыл бұрын
Thank you 💖✨
I am 70 now. And I started kind of living with you in my mind on everyday basis. This is a feeling of power, of a new thought " do what you still CAN do and do not struggle all the time regreting things which are no more possible". And the thought that I do not have to accept it, let me make a snall place in my mind where this unfullfield field may rest". Your presence, Eirin, is a gift for people. Thank you for being!❤🌹
@eirinceciliegjedrem
Жыл бұрын
That’s wonderful ❤️ Thank you too 🥰
@jadegonzalez7322
Жыл бұрын
I agree so completely
Wow. I agree...you do not have to accept your situation. Maybe the idea of not accepting does make one work harder to fight the situation. You are so strong i admire you
@eirinceciliegjedrem
Жыл бұрын
Thank you so much! ❤️
You are doing great things by sharing
@eirinceciliegjedrem
Жыл бұрын
That means a lot, thank you ❤️❤️
You are an inspiration and light in this world. Thank you for sharing your story and your journey.
There is really something special about you. I cannot express it by now, but I will think about it. I am listening to you not only every time when you put a new video but meny times the same video as well.
@eirinceciliegjedrem
Жыл бұрын
Thank you for being here! ❤️❤️
I’m in awe of you. You don’t sugarcoat what you’ve been through, you talk about the immense amount of struggles you face every day, medically and mentally… I hope your pressure sore heals up - I think you’ve had enough to deal with for many lives over ❤
Your American accent is so good that I thought you had American parents and were living in Norway for some reason.
@eirinceciliegjedrem
Жыл бұрын
❤️ I’ve enjoyed practicing English since the 3rd grade, so it came with time 😊
@aislingsibeallyons3416
Жыл бұрын
I thought she was American living in Norway
You truly do make my day. Your wonderful attitude and acceptance of your situation is a blessing to all of us complaining about much less serious aches and pain. You are a beacon of light to those with similar disabilities. You are a blessing to all who have had the honor to find you on You Tube. Thank you. God bless. ❤️🙏🙏🙏✝️❤️
@eirinceciliegjedrem
Жыл бұрын
Thank you, angel, and blessed be 🤍✨🕊️🙏
Hi Eirin, Good to see you again. 💐🌸🌷🌻🌺
@eirinceciliegjedrem
Жыл бұрын
Thank you for being here ❤️
We do pray that the treatment in march will help🙏🙏🙏🙏
@eirinceciliegjedrem
Жыл бұрын
Thank you 🙏✨💖
Good afternoon, Eirin, from sunny Florida…thanks for sharing your day…blessings to you!!❤
@eirinceciliegjedrem
Жыл бұрын
Thank you and likewise! 🤍✨🕊️🙏
Thank you for taking the time to answer these many questions. I think it’s very important to provide people this information I’m hoping it gives us all level of sensitivity when we see individuals with any handicap. I look forward to your next video.
@eirinceciliegjedrem
Жыл бұрын
Thank you for being you ❤️
Eirin, #64 is a very profound question but I do understand it, and your therapist answer about Excepting your citation, I gave birth to a very sick baby, everyone( family )said you HAVE to except this she will not live a year she will be a vegetable, she will never sit up, if she does don’t expect her to walk, etc etc. we did not except that and thank Jehovah God we did not. She is 39 years old, lives in a group home for handicapped adults and walks, talks,reads books, and is a very happy young woman,, yes she has challenges but if we had EXCEPTED their advice she would not be what she is today❤❤❤
@AC_144
Жыл бұрын
wow! such beautiful story!! thank you for sharing.. When we trust our own knowing and more than what we are told ... there is no limit to what doors can open and she is living proof :)
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing such a tough, but beautiful story - it made me smile with teary eyes 🥹❤️ Bless you and your wonderful family 🤍✨🕊️🙏
@bethcorey6022
Жыл бұрын
❤️🌹
Great to see you smiling. God bless Ya!!
Thank you for sharing your life with us. Your honesty is refreshing. I look forward to more Q & A videos.
Praying over you.❤
Thank you so much for sharing and answering questions. Praying that your pressure wound is healed soon! 🙏🙏🙏
Sending prayers of expedient Healing and comfort
@eirinceciliegjedrem
Жыл бұрын
Thank you 🤍✨🕊️🙏
Hello from So. Calif. I found your videos & so enjoyed listening to your stories, trials, accomplishments & outlook on your life. I would never guess you’re from Norway. Amazing that we are half a world away & can feel connected. Looking forward to following you.
Hi Erin new subscriber from uk your channel was recommended to me by KZread and I’m so happy to find you the way you explain and answer all the questions is amazing you have a lovely speaking voice and your English is impeccable I wish you all the best
I love your gentle, positive, and light spirit. I’m sure it’s not always easy to maintain. Your attitude is beautiful and inspiring. ❤
Thank you, and God Bless! ❤
@eirinceciliegjedrem
Жыл бұрын
Likesise! 🤍✨🕊️🙏
You are an amazing woman. X
I think everyones situation is different. I think you are feeling and doing what’s best for you.
Again this was great, thank you so much for sharing your life with us, the Q & A is a great way to get to know you better and your situation. Much love to you.
@eirinceciliegjedrem
Жыл бұрын
Thank you - and much love sent back your way ❤️
Eirin, thank you for sharing all of your information, feelings, hopes and fears. The raw emotion that you’re willing to share is inspirational to so many people.
@eirinceciliegjedrem
Жыл бұрын
Thank you ❤️❤️
You are amazing!
@eirinceciliegjedrem
Жыл бұрын
Likewise! 🥰
Acceptance comes in many forms, doesn't it. Sometimes, we don't understand why, but to be able to look forward and focus on the future can be healing to a degree, in my experience. Thank you again for sharing your life. I hope you're currently healing and feeling well. 🙂💟
I really appreciate and love your honesty, your positive attitude and your outlook on your situation. You inspire me. Thank you 😊
@eirinceciliegjedrem
Жыл бұрын
Thank you! ✨💖
Thank you for sharing your personal journey. You have such a gentle and sweet spirit.
@eirinceciliegjedrem
Жыл бұрын
Thank you too ❤️
praying that your wounds heal quickly and you find relief from all pain. Sending all my love
@eirinceciliegjedrem
Жыл бұрын
Thank you, angel 🤍✨🕊️🙏
You are such a lovely young woman ❤. I’m blown away by your “perfect” English! Can’t wait to hear about and/ or meet your husband.
You bring light 💡 and a sincerity with it . I just found your channel and have subscribed because you give so much light it radiates from you . ❤❤❤❤❤❤❤
@eirinceciliegjedrem
Жыл бұрын
💖✨🤍
I found your videos and what I want to say is that you are an INCREDIBLE HUMAN BEING!! Thank you for talking about yourself!
@eirinceciliegjedrem
Жыл бұрын
Thank you! ❤️
Amazing lady xxx
I think that's an incredible perspective to have. We don't always HAVE to say we accept things in order to move forward.
@eirinceciliegjedrem
Жыл бұрын
Exactly 🤍✨💖
I love your response to the question of whether you have accepted your paralysis. I can honestly relate to you, as I have a spinal cord defect that left me with some issues. I’m not paralyzed and am grateful for that because many people born with my condition are paralyzed to some degree. But I do go on with life the best I can, but deep down inside I wish I could just do the things most people take for granted. I hope you are doing well. You’re in my thoughts❤️🌻
@eirinceciliegjedrem
Жыл бұрын
And you in mine, sweetness ❤️ Thank you for being here 💖
Eirin...I watch your vids and I don't know how to react...except to say God Bless you...yur journey has been sooo challenging..I admire you
@eirinceciliegjedrem
Жыл бұрын
Thank you so much! Happy you’re here ❤️❤️
Hello my angel, happy I found your video. As far as regaining movement past the first year. All things are possible with God, so I will keep you in my prayers. Love from NC God Bless
@eirinceciliegjedrem
Жыл бұрын
Hi sweetness! Thank you so much 🤍✨🕊️🙏
Hello back to you, my beautiful friend!
@eirinceciliegjedrem
Жыл бұрын
❤️
Thank you so much for sharing your voice. I love your videos and can’t wait to see what the future holds for you. You’re absolutely beautiful, inside and out.
@eirinceciliegjedrem
Жыл бұрын
Likewise ❤️❤️
I hope it is not cruel for me to say that I can’t wait to see you upright. I am sure it feels better for you. Thank you for sharing. You are a light in the darkness.
@eirinceciliegjedrem
Жыл бұрын
Not at all, and me too! 🤩 Thank you ❤️❤️
I am really enjoying your videos. You have such a thoughtful way of answering each question - which feels so reassuring. Here's my answer; here's why; and here's how i feel about it. Makes even what seems to be impossibly difficult - possible. Your determination and attitude is an incredibly valuable lesson for us all. Hugs from British Columbia Canada 🇨🇦
@eirinceciliegjedrem
Жыл бұрын
Thank you so much ❤️❤️
My husband and I prayed for the healing of your pressure sore 🙏💕
@eirinceciliegjedrem
Жыл бұрын
Bless you both 🤍✨🕊️🙏
Thank you so much for sharing everything you do. I have struggled with acceptance Your words have helped me so much ...coming to terms, ...dealing with the new life. Your power is now a big part of my power. Thank you beyond words for taking the time to open your heart, so vulnerably, and for help those that so need your wisdom You are a life changer Eirin, i am forever grateful to you.
@eirinceciliegjedrem
Жыл бұрын
I appreciate your wonderful messages, Jade, and the more light we all share; the brighter we all will shine 💖✨🥰
Thank you for sharing your light. You are beautiful.
@eirinceciliegjedrem
Жыл бұрын
Thank you so incredibly much! 🥹🥰 I truly appreciate your kind-hearted generosity! 💖
It's really wonderful listening to you with such clarity on how you explain everything in detail 👏 😊 ❤️
@eirinceciliegjedrem
Жыл бұрын
Thank you ❤️❤️
@catherineross1613
Жыл бұрын
Hi I saw a previous video where you said that you told your friend on the night of the accident that you had a feeling that something bad was going to happen she looked at you surprised that you said that. My question is with that feeling you didn't decide to go home but continued enjoying your outing. Do you think kind of higher being was sending you a warning? I kind of don't believe in this stuff but just coincidence that the accident happened? I guess what are your thoughts on this? 😊
I think you are my hero❣️ You are beautiful first of all, completely covered in our LORD’s grace. You have accepted your lot in life & are dealing with it so incredibly humble. GOD bless you everyday I will be praying for you every night when I say the rosary. I will be watching you as long as you are making videos. Much love from Texas 🌵❤️🙏
@eirinceciliegjedrem
Жыл бұрын
Thank you so very much and bless you 🤍✨🕊️🙏
Your achievements inspire, but your wounds will comfort others who will go through the same as you. Today's struggle will be tomorrow's testimony.
@eirinceciliegjedrem
Жыл бұрын
❤️❤️
I look forward to your next vid sweetheart 💖
@eirinceciliegjedrem
Жыл бұрын
🥰
My past client said that nothing but ketamine had helped him. I’m sorry to hear your pressure injury went to that level, that’s serious business! I’m cheering you on to recover and get back into sitting tolerance and ability. My goal is to work in spinal rehab when I graduate. It’s so interesting to hear your experiences and perspectives.
@eirinceciliegjedrem
Жыл бұрын
Thank you and good luck with your education! 😃❤️
Hi Eirin, I hope you’re day was good. You touched my heart so much. I so much would want a friend like you. I live in Ketchikan Alaska. Stay positive. Your friend Kathy
@eirinceciliegjedrem
Жыл бұрын
Thank you and likewise! 💖
@kathymorris4553
Жыл бұрын
@@eirinceciliegjedrem Hi Eirin, I know I’m much older than you. I’m 66. There is something that I don’t share with many people as they are close minded. I’m a healer, spiritual teacher. My Lifepath is 33, if you know anything about numerology. It is the Holy Spirit that does the healing, the spirit works through me. I know your injuries are severe. Can can work with you from a distance. All I need you to do from your end is to repeat this everyday. Thy name is my healing, O My God, and remembrance of the is my Remedy. I do this in the evening before bed. I’ll start tonite. I’m not trying to give you false hopes, I just want to help you, and this is what I do. Please have faith. Your friend Kathy
Hoping the vacuum wound dressing works, I know a few people that speak highly of them. I would ask your Dr about blood thinners but I'm sure you have. Sending prayers and love to you 🙏💛 Eirin, keep smiling your beautiful smile xxx. You're doing so well, Stay positive ✨
@eirinceciliegjedrem
Жыл бұрын
Thank you so much! ❤️
Hi there Eirin I think the most profound thing you spoke about tonight in this very very interesting video was the entire topic of acceptance. I am basically bed-bound I do get out, I have an aid that helps me. I have no paralysis of any kind but I have chronic illness and I also have complex PTSD so I have some issues psychiatrically that make it difficult for me and that's from having a lot of trauma in my life. But I now have an amazing psychologist and I asked her, well I want to learn to be able to accept what is going on with me and I don't really know how to do that. And she said the most profound thing. It's in the lines of what you were talking about tonight and what you understood about acceptance. She said to me, Why would you accept something that is awful? That would be ludicrous and it wouldn't be realistic at all. to accept the pain you're in the difficulty you're in to accept that which is awful that does not make sense at all. And then she talked to me about what you were told that it's more important to learn to adjust to these bad things or awful situations were in and how can we cope better with this trauma and pain and sadness etc. So I wanted to thank you so much for bringing that up because like you, it was becoming a bad thing that people kept telling me, have you accepted where you're at and I would say I don't know I mean what does that even mean. So now I never even try to do acceptance or anything like that. Thank you so much for a great video. You are dealing with so so much I don't know how you do it. You are a strong survivor and I'm glad that you are trying to do your best at coping with what's going on, living with what's going on and making the most of it. Thank you for sharing everything you did it's a pleasure to listen to you it's not a pleasure to see you in the situation you're in but I learned a lot. bless you
@eirinceciliegjedrem
Жыл бұрын
Thank you so much for sharing your story and your light ✨💖 I’m happy that you’re here and I appreciate you inspiring me 🥰 We take it one moment at a time, challenge by challenge, day by day, fellow survivor ❤️❤️
My situation isn’t nearly as serious as your very serious and difficult trial, but I just wanted to share something that has happened to me. I’ve had 8 major back surgeries and 2 lung surgeries and I’m on full-time oxygen ❤and I constantly get comments from people that tell me that “I need to accept my NEW normal!” My situation isn’t Normal For Me at all!! There’s no way I will ever accept my situation, it’s not normal for me so I keep doing my part to help my body get strong……never accepting what I go through! I can see that you are doing all you can do and I understand that and praise you for that…..because it can be hard and cause extra pain. I get it!
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing and my heart goes out to you ❤️❤️
I admire you; your strength faith and attitude. I hope you get better each day.i have stage 4 cancer and I know how difficult it is to cope with issues of health in this life. Thank god you have a husband to be with you.
@eirinceciliegjedrem
Жыл бұрын
I’m truly blessed in so many aspects, also by you being here ❤️ Thank you for sharing your light - my heart pours out to you ✨💖
@mariteremartin8691
Жыл бұрын
no my dear my heart pours out to you. yesterday someone told me that when we receive a misfortune in this life it is because God liberated us from another worse misfortune. You might think well my cross is really heavy and I tell you my dear that we all have heavy crosses if we fallow Christ. Your accident was a great cross who knows what awaits you in heaven. This life is very short, it’s just a pre requirement to see if we deserve or not paradise. and look , i am no preacher i am just a retired lawyer with cancer that is trying to make sense of all of these. i sent you an embrace from very far .
Hi Eirin sending loads of love and hope you can soon get up into your wheelchair again ❤❤❤
@eirinceciliegjedrem
Жыл бұрын
Thank you so much! ❤️
I appreciate your pain meds fear and understanding. I have been resistant but need medicine for my own pain and have addiction issues in my family so it’s hard. I also agree that there’s a fine line between depending and utilizing for maximum health in the ability to help rest and relax and sleep to side in daily enjoyment and quality of life as well as preventing damage from things like blood pressure being raised and anxiety from pain. On the flip side depending has its own risk and is so scary when you have seen opiates destroy people firsthand. Only you know what is the best and you can ask for external monitoring by your doctors but especially those closest to you. I feel that this is such a difficult decision when having family history of addiction. I can also appreciate declining brutal surgery after having been through so much. There’s a point where you can mentally work through a surgery when you are ready and if you are up to the challenge and currently you are fighting the pressure wound and working so hard on your role in the family and working on caregiver support, how and what you will need help with and who and what you will need personality wise. Having caregivers is a hard thing in and of itself and people don’t understand what it’s like depending on someone and trying to explain and direct to have help from another person who may believe things and do things differently than you might. You seem to have a good perspective on things and you are working hard daily on all the things you need to deal with and do. The pain alone tends to make decision making hard. I find it super cool that you are explaining so articulately what this process is for you and what the challenges that aren’t really visible are for you. I think you look amazing and are doing so well with managing and navigating the medical and mental health hurdles and also then doing the many plans and vlogging to provide some knowledge and info for people who may find themselves in a similar situation. Your own personal experience is a big story and very interesting to hear about. I am sending healing wishes for the pressure wound and recovery from that surgery as well as all the daily fulfillment you can handle that makes you feel content and comfortable and intellectually stimulated. I’m super impressed with you! I also love the part about accepting vs not accepting and just coming to terms with the accident impact. It’s a huge difference in perspective and more realistic to “come to terms with” over “accept”. Cheering for you over here!
@eirinceciliegjedrem
Жыл бұрын
Thank you so much for your insight, I really appreciate it ❤️ Thank you for being here and for sharing your light 💖✨
@conniesanderson2916
Жыл бұрын
am afraid to take narcotic medication for pain too. I was addicted to cigarettes for over 40 years before I was able to put them down but I replace the cigarettes with food so I just traded 1 addiction for another I tell the doctors do not prescribed narcotic painkillers because I don't need another addiction. I just get by with over the counter medications
Hello Eirin, thank you for sharing your life journey! May I recommend homemade or plain yogart when your on antibiotics. Fermented foods are good for the gut and the body! Love and hugs from Chicago ;)...
@eirinceciliegjedrem
Жыл бұрын
Thank you for the tips! ❤️
Erin, i can say to you that you are fortunate to have the ability to breathe and speak . I cared for many, many quadriplegic clients on vents. Those were complete spinal assaults. Praise God for every tiny thing that you can do !!! God bless abundantly !! Wld like to add that your caregivers should have seen that your pressure sore was tunneling !!! All they needed was a qtip to measure. And a short log is good so incoming caregivers can know if there is anything different that they should know about. What about a skin flap ????
@eirinceciliegjedrem
Жыл бұрын
The wound was cared for by nurses who came 3x a week to check and change the dressing from the start; but it wasn’t deep visually. There was unfortunately a lot of fibrin which was surgically removed, and clearing out that tissue caused the depth it had - but it’s better now 😃 I learn something new with every sore 😅 Thank you and likewise! 🤍✨🕊️🙏
Have you ever tried a topical horse linimint on your sore painful areas? People who own horses are well aware of how important it is to relax their horses muscles and joints and relieve them of pain. It has helped me greatly. I suffer from severe head and back pain chronically. The linimint is clear, odorless and like a watery gel, rubs right in and I feel pain relief within about 30 minutes. You can also apply as much as you need to! People who use horse linimint also say they use it on themselves when they are sore. Their horses love it and so do the owners. Good luck to you, Eirin. You are a very strong woman.
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing! ❤️ I will look into it 🥰
I just had a thought, especially when you said you had a bone infection. Have your doctor's ever mentioned hyperbaric therapy, which is hyper oxygenation for your body. It helps the body heal. Your bed inflates and deflates, right? I think that helps move fluids in your body so there is some movement, which would help mitigate risk of blood clots? Thank you so much, Eirin for sharing yourself. I truly enjoy hearing that you are doing well, hearing details and extent of your issues, progress, life. You're truly amazing! Prayers
@eirinceciliegjedrem
Жыл бұрын
No, they haven’t, but someone else also mentioned it, so I’ve made a note for a future reference if needed 👍❤️
I've just recently found your channel & I think you're absolutely incredible ❤️ I am legally blind & find you so inspiring.! I love how you are educating people like myself. This may be a really dumb question but do you still get the feeling of being hungry & feeling full after eating.?
@eirinceciliegjedrem
Жыл бұрын
Thank you for being here! 💖 Yes, I feel both hunger and fullness 🙂
One thing that they used both for my husband and for my mom when she had to be in bed a lot was an alternating pressure air mattress topper I know it really made a difference, especially since my husband had to lie on his back most of the time. The doctors did emphasize certain nutrients also, Vitamins A and C, Protein, Zinc and Iron, and said that complete healing would come much faster if you had a diet that was rich in those. They also used a wound vac on a couple of his pressure sores and he had to go to the hospital every couple of weeks to have the wound debrided.
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing! ✨
Stem cells maybe an option?? I admired your resolution!! Acceptance just come with time, baby steps!!!!
@eirinceciliegjedrem
Жыл бұрын
Thank you ❤️❤️
I hope you are doing well with your bed sore treatment. Xo
I have had spinal injuries and spinal fusion surgeries on my cervical spine. I was not paralyzed, but the injuries caused excruciating knots in my shoulders and trapezius muscles. My husband would use full force elbows to try to get deep enough into the knots to give me relief from unrelenting pain that frequently brought me to tears. I could only get relief for a few hours until my first spinal fusion surgery. I have had two fusions that have failed in at least one level and need a third fusion that I am not rushing to endure. In the meantime, my paint doctor injects BOTX into my extreme knots in my shoulders and the injections have changed my life in many ways. They only last for three months at a time and I get them for migraines as well. Botox is a game changer for me. You might want to ask your doctor about trying it in out for your shoulder knots.
@eirinceciliegjedrem
Жыл бұрын
Thank you for sharing your story - my heart goes out to you ❤️❤️ My knots are nothing compared to your extreme and painful ones; I’m so happy Botox gives you some relief 🥰 My knots will most likely become better once I can sleep on my back, but I will make a note to ask my doctor if they don’t - thank you ❤️
I’ll be praying for you, that the wound vacuum will be a success. I’ve put your name on our prayer roll ❤ Any chance your cat could make an appearance. I know they tend to have a mind of their own 😂💕
@eirinceciliegjedrem
Жыл бұрын
Thank you so much 🤍✨🕊️🙏 Oh, he will in the near future 😻🥰
Hi from a warm South Africa
@eirinceciliegjedrem
Жыл бұрын
Hi 🥰
Thank you another great informative video my Empath Sister. On the 20th, I am going to get my temporary spinal cord stimulator. I have severe back pain and pain medication hasn’t been working. I’m really hoping this works so I can have my hobbies and life back again. Have you considered this for your pain?
@eirinceciliegjedrem
Жыл бұрын
I am sure they have thought of everything, but I will make a note for my next stay at the spinal unit - thank you for mentioning it 🙏❤️ I wish you all the best and good luck..! I send you my light and my love; please let me know after how it went by Insta, FB or e-mail in description - a comment is easily missed, unfortunately. I’m sending hobby-and-life-vibes into the Universe for you ✨🤍
❤
Can you or do you have children? You have a wonderful outlook on life as you know it and your sharing is so heartfelt. I would imagine you would be a great mom.
@eirinceciliegjedrem
Жыл бұрын
Thank you for your kind words 💖 I don’t have children and it’s too much of a risk to try again. I have my furbaby Thor and love being a nurturer to and for those around me 🥰
Sending Pawsitvity ❤Hokey Pokey a Handicapable Bulldog 🥰
@eirinceciliegjedrem
Жыл бұрын
How wonderful! 🐶❤️ I’m pawsitively appreciative! 🥹 Sending head-scritches your way 🥰 Have a rebarkable day! 💖
You have probably addressed this before but I am so happy that you are married!
@eirinceciliegjedrem
Жыл бұрын
Thank you! 😃💖
@aislingsibeallyons3416
Жыл бұрын
Why? Marriage is not the most important thing in the world 🌎
❤❤❤
@eirinceciliegjedrem
Жыл бұрын
❤️❤️
Hi Eirin, thank you for your videos, they have been very informative and interesting. My question for you is - Are you on an air mattress at present? I am wondering whether you might get discomfort from the pressure points on your sides if not. I hope that the vacuum dressing works on your next try and that it speeds up your wound healing. Thank you again, I really have enjoyed your videos.
@eirinceciliegjedrem
Жыл бұрын
Thank you! ❤️ Yes, I have a Talley Quattro Acute 👍🙂
Erin , I have a friend who was in your situation. He tried stem cell replacement, rejuvenation. It allows him to stand n walk with assistance. Just putting it out there if u want to do research on it. We are here in the states , maybe just maybe they can help you 🙏🙏 god bless you sweetie.
@eirinceciliegjedrem
Жыл бұрын
Thank you so much for sharing and bless you too 🤍✨🕊️🙏
You are amazing. I had a thalamic stroke which damaged my internal temperature and nerves. Because the thalamus is the relay roadway for our body, my nerves are all messed up. The pain is horrid. I'm out a little over year with not much improvement from initial stroke and now the nerve damage is causing my body to arch off bed and jerk, my legs, my hands, my teeth chatter, very painful. I also don't feel anything from rib cage to my bottom. I only eat because I have too. This "traveling" nerve pain is scarry because you have no control over your body and shoots your pain to a level that no one understands. What did you call this A..something. I will pray for you.
@eirinceciliegjedrem
Жыл бұрын
Thank you, and so are you! My heart pours out to you and I’m sending you loving, but comfortable airhugs ❤️ You are a beautiful light, and I wish for as much good for you as possible ✨🤍
We also call it ergotherapy (a greek version of it) but i think that the equivalent in english is O.T. (occupational therapy). XX
@eirinceciliegjedrem
Жыл бұрын
Yes, we say «ergoterapi» in Norwegian 🙂
I agree with your friends outlook in regards to acceptance. I intuitively feel that your intuition doesn't accept it because although its your reality you live with in "disabled" state (I hate defining anything as disabled because in the very word its states ABLE although thats how the word is used to emphases an understanding in todays society. I feel that words carry energy and the word disabled is very limiting)I feel your soul knows it has far more in store for you and this situation is only a road bump but will not limit your purpose in this life time.(In no sense do I want disregard your situation not my intention..but I want emphasize your life mission can and will still be accomplished given such physical/emotional traumatizing situation you have lived) I personally feel like accepting becomes like limitation and acceptance of its limits of such condition. I feel your intuition is declining that state of mind. In your shoes I think I would be in the same mindset. I am sure it comes with a lot of questions. As you have shared and navigated and continue to navigate. Thank you for sharing your story and mindset with such balanced outlook. Sending you love always! I wanted to share if you have considered colloidal silver or CBD lotion applied to skin (we naturally have endocannabinoids in our human body) and its healing affects ( supplementing giving the body fire to make more of it). Not doctor but many have shared great natural medicinal benefits make sure you do your research and see if it can benefit you and does not contradict medications you maybe taking.
@eirinceciliegjedrem
Жыл бұрын
I loved reading this, and I really like your perspectice! 🤩 Don’t be surprised if you hear me sharing this in a future video ✨ Thank you for the tips and for being here! 💖
@AC_144
Жыл бұрын
I am so glad my post brought you joy. Thank you Eirin for sharing your bright light with us! Can't wait to hear your perspective on what my intuition felt it needed to share.( I am learning to release the fear of how others may receive my intuitive perspective and trust it as I do as my knowing (allowing spirit to flow and guide vs being in resistance because of how I will be perceived) ... as the message may be needed to be received by others) Thankfully you provide a space where it feels encouraging and safe to do so! Much love your way always!
Hello hello hello!!!!!! ❤🧡💛💚💙💜
@eirinceciliegjedrem
Жыл бұрын
Hello! 💖
Hi beautiful soul...earth angel my name is Bronwyn Cookson from Melbourne Australia 🇦🇺 ♥️ sending you much love sweetheart 😊🌈🕊🦋🌸🌞
@eirinceciliegjedrem
Жыл бұрын
Light and love back to you 💖✨
Thanks Eirin. Great video. Do you have advice for healthcare students learning about respecting the dignity of the person with a physical disability they may be supporting? Many thanks and God bless.
@eirinceciliegjedrem
Жыл бұрын
Thank you ❤️ First of all; know that with anger or lashing out - it has to do with the individual grieving and processing pain and trauma - you are not to blame ❤️ Second; people in general need to feel seen, heard and validated - so allowing them to explain their needs and preferences is a good way to try and create a mutual trust and respect. In a situation where the patient can’t communicate very well, explaining what you’re doing and why you are doing it while you are aiding them, can help them relax more - also acknowledging that you know it can be cold, warm, uncomfortable, painful etc. ❤️ You are wonderful for asking and good luck! 💖
@Hope20249
Жыл бұрын
@Eirin Cecilie Gjedrem thank you so much for taking the time to reply Eirin, much appreciated. You are wise beyond your years.
I just have 2 questions. Do you have a coccyx relief cushion to use to keep pressure off the tailbone and have any of your physical medicine doctors suggested using Botox treatment for muscle spasticity. God bless.
@eirinceciliegjedrem
Жыл бұрын
I have a ROHO cushion in my wheelchair and a dynamic air-mattress that both work well to prevent and relieve - so thankful for that 🙂 I don’t really have a lot of spasticity, I primarily struggle with cramps and clonus, for which the neurological doctors told me can’t be treated. It was hard getting that message. I have found that massage and passive physical therapy relieves some of it, thankfully 🙂
Don't let anyone tell you how you should feel. You are entitled to feel however you feel. I wondered if you've heard of royal jelly? Just a thought. Thank you for this video.
@eirinceciliegjedrem
Жыл бұрын
Thank you, too 💖
Hi Eirin. Why is your english so perfect?
@eirinceciliegjedrem
Жыл бұрын
❤️ Practice for many years 😊
Have they tried radio frequency therapy and PRP on your wound?
Can you practice laying on tummy or can you not do that due to neck injury? Could you practice been on all fours with a exercise ball to relieve hip pain? Can you try turning every 2 hours during the day and then alter that to 4 hourly at night to get more sleep ie 2am-6am ( sleep)and then 6am-10am ( longer sleep).
@slongv1547
Жыл бұрын
Vac pac are amazing machines and will definitely assist in healing. Can you stand in the bed on side to assist in blood pressure regulation as feel laying down all the time is not good. I understand cannot be on back cause of pressures sore.
@eirinceciliegjedrem
Жыл бұрын
I can only be on my tummy for about 10 minutes before I struggle with breathing, unfortunately. I can’t be on all four due to my paralysis and stomas, but it’s a nice thought. I’ve asked if I could do some changes, in many different ways, in order to sleep longer, but that increases the risk of developing new sores, so I have come to terms with having to do as they say. I just hope I’m more than halfway to a healed sore, but time will tell ✨
If the nerves and everything was severed does that mean your limbs are extremely tight? I imagine it’s very painful😔 you are so strong and thank you for teaching us. I wish all resources were available to all
@eirinceciliegjedrem
Жыл бұрын
Thank you! ❤️ If I keep up with physical therapy; it helps, but it eventually happens if not.
Hello! I was wondering if you’re able to use an electric wheelchair. Also, I would love to meet Thro, your fur baby. 🤗✨💕
@eirinceciliegjedrem
Жыл бұрын
I have an electric wheelchair that I look forward to getting back into 🤩👩🦼 He’ll probably make an appearance sometime soon 😻❤️
What massage gun did y'all buy? I have RSD and my bones and muscles are always hurting and throbbing.
@eirinceciliegjedrem
Жыл бұрын
I’m so sorry to hear that, must be exhausting 😓❤️ He bought a mini Therabody, I believe, but it was too intense for my nerves, so we’re looking for a better option for me. I hope you find something that relieves some of your pain ✨
@memmar1
Жыл бұрын
@Eirin Cecilie Gjedrem Erin there would be no way I could use it if it hurts you. My body is extremely fragile. I hate saying the word fragile but that's what my body is. My pain and suffering is 10 out of 10 most days and hours. I just try not to talk about it because I can't fix it and there's no sense in me crying today because tomorrow I'm going to need my strength to carry on. I'll just wait to hear from your next video if you found something gentle to massage your body.