Hi beautiful souls! Thank you so much for being here and for your wonderful comments - I truly appreciate them ❤️ I try to read and answer as many as possible, and know that I’m just so thankful that you take from your valuable time to do so ❤️ Love & light!

@thereseshine7506

Жыл бұрын

Love and prayers for comfort and continued peace.

@elizabethconroy7665

Жыл бұрын

Not sure if I would have the courage to live this way Speaking truthfully and with deep respect for you Hugs 🤗

@maryellenblount6376

Жыл бұрын

You truly are love and light!! Bless you and thank you for sharing your story. 🙏🏼🙏🏼

@dnastrand

Жыл бұрын

Thank you for the time you take to bring us along your personal journey.❤️

@dnastrand

Жыл бұрын

Do you see a mental health therapist? And I have a weird ? Lol! How long is your hair, and is it hard to care for?

I can't begin to imagine the secondary (and more) trauma, violation, indignity of being a 14 year old girl and suddenly having your full body on display, as you said. I'm sure you will have a big impact on other young people who find themselves in the same situation, if only just to validate their feelings, anger, etc. Good on you.

@eirinceciliegjedrem

Жыл бұрын

Thank you so much! So happy you’re here ❤️

Life indeed is fragile. When I watch you and listen to you, it teaches me that we must value the simple things in our life. We must not be too hard on ourselves and must appreciate our very existence. Your story will inspire others.

@eirinceciliegjedrem

Жыл бұрын

Thank you so much! ❤️

@anti-ethniccleansing465

Жыл бұрын

@@eirinceciliegjedrem Eirin, since you get a night-time care worker now, would it be possible for them to be able to flip your body over to different sides and stuff while you sleep without you needing to be awake for it, so that you can finally get good night’s sleep again? I’m talking about taking quality prescription medicine for nightly sleeping of course. Mine knocks me out real good, because if I don’t take the medicine, then my chronic lumbar pain simply won’t allow me to sleep. If I am lucky to doze off, my pain will wake me up by the time an hour is up, and then it’s incredibly difficult (if not impossible) to doze off again. It’s awful to live sleep deprived like that… Medicines were my saving grace. You deserve to have good night sleeps! It makes all the difference in the world! There _HAS_ to be a solution to this problem! 😢

Thank you for being so frank. So many of these questions were hard, but you display bravery and a positivity that is amazing despite the daily battles you still have.

@eirinceciliegjedrem

Жыл бұрын

❤️🥰

My sister in law was in a car accident when she was 25, she was then paralyzed from the neck down. She lived for 3 years before she passed during Covid. She was miserable and didn’t want to be here anymore she did not get proper care in the nursing home but no one knew because visits were not allowed during that time. I wish she had someone like you to watch to keep her hopeful. Thank you for sharing your story and life with us.

@kaleigh4081

Жыл бұрын

I'm so very, very sorry for your loss. This is so sad, words fail me. I wish you and your family much strength.

@eirinceciliegjedrem

Жыл бұрын

My heart goes out to you - so sorry for your loss ❤️

@CarolsDaughter85

Жыл бұрын

This is awful. Not allowing visitors was a heinous crime perpetrated on families. The number of vulnerable people who died alone and lonely is a travesty. And then many were denied a proper funeral due to the bullshit that was ‘social distancing’ 🤬 I will never forgive and never forget that disgusting tyranny

@anti-ethniccleansing465

Жыл бұрын

@@CarolsDaughter85 I’m right with you 100%. That is how you know that this was indeed about a culling.

@DoreenBurkey

Жыл бұрын

​@Anti - Ethnic Cleansing Wow! What a horrible thought that our government could use something like the Coronavirus to affect a modern-day culling in order to reduce the population of its sick and weak people. To what avail? To create more beds for the sick and weak in order to determine if they're strong enough to pull through? By withholding life-saving medication? To offer said medication to a select few who are what? Worthy enough in their minds to save some, but not others? Pure evil, imo. Just as evil as those who refused to put a sign up warning people of that very dangerous swimming hole until just before the statute of limitations ran out? Political BS! 《SMH》 Disgusting! Evil!!

Hello, first I want to thank you for sharing your story. You have helped shed some light on something we going through here at home. My son was a passenger in a car accident on 10/9/15. The girl driving walked away from accident, my son got a traumatic brain injury. He was 21 at the time. He can no longer walk or talk. He can say 3 words tho & does understand everything. Every single day we struggle with anger & i think by you saying how your no longer in charge of your body may have a lot to do with his feelings. He has been home since 2018. All of his friends walked away a long time ago. I struggle to find the good in what has happened. I hope in watching your videos I will find a shred of happiness. Thank you again for sharing the reality some of us live. I’m subscribing & I thank again. 💚#ride4eric.

@eirinceciliegjedrem

Жыл бұрын

My heart truly goes out to you both ❤️❤️ Such a painful circumstance 😔 I hope you have a supportsystem that can really be there for you both ❤️

@lykarabbit3

Жыл бұрын

I'm sorry your son was impacted so severely.. and your entire family too I'd imagine. The anger you feel is beyond understandable.. accepting what happened must be incredibly painful for you as your son's mom. From a boy mom to another boy mom, just want to send you some love💚 I hope you will find more and more healing and peace as time goes on.. Huge hugs to and your son from Ireland momma💚💚💚

@DoreenBurkey

Жыл бұрын

@Jeannie B mx477 - My deepest of sympathies for you and your son after his TBI. A thought came to mind as I was reading your post. Is your son able to control his arms and hands? I ask because I wondered if you'd ever considered learning ASL (American Sign Language) together? You mentioned that he understands everything. I wonder if he could be taught sign language. Doing it together could be an opening door for you both where he would be able to learn a new way to speak. It might very well be the entrance he needs to help reduce his frustration. Just a thought. May God Bless you all and show you how to achieve the goals that will bring you not only communication, but peace and comfort. 🙏❤️

@jadegonzalez7322

Жыл бұрын

I am sending you my love and appreciation for sharing here. I understand what you're sharing and my heart is with you. My 6'5 Miko was 21 when this happened to him and he left this earth You are going through so much and your heart must break everyday , sending you much love and support Mama ❤

It's been an honour knowing. You truly are the epitome of strength. Very proud of you even though I do not know you. Your depth is amazing.

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise ❤️

Hi Eirin! I want you to know how much I look forward to your vlogs! I'm so glad you jumped in to recording and sharing your experience, faith and journey. Being so down to earth about your life is not easy I'm sure. You're educating so many by this journey. I don't usually write or leave notes but you inspire me, you're someone I could sit and have coffee with and just chat! Blessings to you and you're family! Kris - Minnesota USA

@eirinceciliegjedrem

Жыл бұрын

Thank you, Kris, and the same to you! 🤍✨🕊️🙏

I have never left a comment or review of anything in my life. But you touch my heart and I am uplifted by you! Thank you for sharing and creating this channel! I am truly blessed by it.

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise ❤️🥰

Eirin I have heard of amazing technology coming soon.. I trust and I know better things are coming to all those who are disabled. I hope you are one of the first to be given such gift. I also hope with so many changes coming around our world that you hold the county accountable and their inaction and take your court case back up because their negligence to you and others is not political it's the correct thing to do and isn't the county their to represent those who live in it not to protect the system and their negligence! These unfair ideals "political" in our world truly anger me it's time the divine steps in and corrects the wrong in our world and I feel the time is now! You deserve for such county to acknowledge their negligence like your situation and anyone else injured. And to be compensated. Truth is that they failed to fulfill their duty to those living in such community. Sending you so much love always!

@eirinceciliegjedrem

Жыл бұрын

Thank you so much! ❤️

I know 3 people that have broke their necks! My brother fell from a tree branch into 3’ of water. A woman I know was in a car wreck. My brother in law was in a snow mobile accident. My brother in law was the worst with cracking the circle that your spine hooks onto. All were very lucky and recovered.

@eirinceciliegjedrem

Жыл бұрын

Despite the traumatic accidents, it’s wonderful that they have recovered ❤️

My husband was paralyzed back in 2015, not by an injury. He had a sore on his toe that wouldn't heal but he just thought that it was his shoe rubbing on it. He had also felt tired and cold a a little weak, but he put that down to all the overtime he was working. He worked an overnight shift that Friday. When I came home from my Saturday overnight shift on Sunday morning, he had texted me and said that he wasn't going to come out and help me bring in the groceries because he was feeling a bit unsteady on his feet. When we got ready for bed he said that he was going to nap in his chair because he couldn't get comfortable in bed. When I woke up to get ready for work he said that he couldn't move his left side so he would have to call off from work and asked me to bring him his phone. After he called off he said that he might have to go to the hospital, but insisted that I go to work, and once I was gone he would call the ambulance. When they came they took him straight to the hospital and it turned out that he had gotten a staph infection in that toe and it had traveled into his spinal column and as the doctor explained it, it was just like flipping switches and it progressively shut things down. They said that if he hadn't gone to the hospital that night I would have come home and found him dead in his chair because it was just short of paralyzing his diaphragm where he couldn't breathe. He also had an abscess at the base of his neck that was pushing on his spinal cord so he had to go into surgery. He had a really rough time, went into cardiac arrest several times, he had to be on a respirator for a few months, they ended up amputating his leg below the knee and he had a lot of issues with pressure sores. He was in at home care at his parents since they were set up for that and there would be someone with him 24/7. He was doing better for a while, he had gotten where he was able to feed himself and they were getting ready to start putting him in a wheelchair when he was put in a nursing home after one of his hospital stays. The woman who was supposed to do his physical therapy tried to pull him into a sitting position by pulling on his arms. He said it felt like she was pulling his arms out of their sockets and he was practically screaming at her to stop, but she kept on and he felt a pop and after that he lost all movement in his arms. He eventually got the speech to text software for his computer so he was able to get online and talk to people and he even wrote some poetry (something that he had done before his illness). They even did a feature story on him in the local paper and published a few of his poems. After Covid I was unable to go see him in person since his immune system wasn't good and I couldn't risk possibly exposing him to the virus.We did talk on the phone and emailed a lot. He passed away 2 years ago from respiratory failure. In a way this was a matter of a poor decision causing this. He should have gone to the doctor much sooner, but he told me a few months after he was taken to the hospital that he knew that he should have gone to the doctor, but he was hoping that he could wait a couple of weeks until his workplace shut down for a 2 week summer break so that he wouldn't miss any work. That would have been about 10 days after he was paralyzed, so waiting cost more than the amount of pay he would have lost by going to the doctor. I really am enjoying your videos.

@elizabethconroy7665

Жыл бұрын

Thank you for sharing your dear husband’s story Very sad Please accept warm Hugs 🤗

@eirinceciliegjedrem

Жыл бұрын

My heart broke for you reading this, so sorry it happened 😔 Thank you for sharing your story and your light ✨💖

@Prin_Cess_007

Жыл бұрын

Wow. I’m so sorry for your loss and what you both went through. That’s was just heartbreaking, omg. I’m so sorry. Virtual stranger you are on my mind and I am praying for you.

I appreciate your strength and that you are willing to share your journey. I’m sure there are other injured people who have experienced similar trauma who gain strength and courage from you ! My thoughts and prayers are with you Eirin ! 💖🙏🏼💖🙏🏼💖🙏🏼

@eirinceciliegjedrem

Жыл бұрын

Likewise 🤍✨🕊️🙏

I discovered you last week and love your strength and the ability to find your strength to ride through these traumatic tide. God bless you and continue to keep the light you have found. You are an inspiration. Love from Ghana. West Africa.

@eirinceciliegjedrem

Жыл бұрын

Thank you so much and likewise! ❤️

Pressure sores suck. My husband’s just healed now has one on his ankle.

@eirinceciliegjedrem

Жыл бұрын

They sure do - so happy his healed 🥰

I was born in 1970 and back then, doctors in the States were just starting to *not* put the mother under while the baby was being born. But what they did do, was give my mom a spinal (a lumbar block) when she was in labor. Makes zero sense. She remembered vividly after the block, they told her, Okay now push! And she was like, are you joking? I can't feel anything below my waist, you idiots. So those genius doctors pulled me out of her with forceps, placed at my jaw hinge. Mom said she and my dad were scared by how deep the dents in my face were, and how long it took for those dents to go away. I've had problems with my spine my whole life, and about 10 years ago, a doctor took x-rays and said I had nearly been internally decapitated by that idiot that used a pincer to pull me out of my mom after he incapacitated her. Unbelievable and infuriating. I guess I'm lucky to be alive, really.

@eirinceciliegjedrem

Жыл бұрын

That’s terrible and tragic! I’m so sorry you have had to struggle your entire life because of this ❤️

@joyful_tanya

Жыл бұрын

You are right. I was born in '67 and my mother was knocked out for delivery. Why?! I am so sorry that happened to you.

Erin I think u made a great decision on these stomas much cleaner as a nurse I think you were smart

@eirinceciliegjedrem

Жыл бұрын

Thank you - I feel better with them ❤️

Oh sweet Eirin. I cried with you today. I want to tell you about my daughter's near death experience before her demise. She was 57 days in the ICU. The first week we weren't told that they nearly lost her. I found out on the first day she was COVID free and I was able to visit her in the ICU. She was an artist as well as other things. When she was "dying" but recovered, she experienced "white lighters" escorting her to "another celestial place". They had no clothes, no features and everything was bright and pearly shiny. One had one of her arms and another had the other. They were "escorting" her. She saw other people being escorted. My daughter was purply and brown in her image and the colors above that she drew were like yellow and orange like a sunset. She drew what she saw. Then a month later she did pass away. I am so thankful to know that the white lighters was a peaceful experience and at that time of escort she said she wasn't ready. It blows my mind in a good way. When my husband and I took a lunch to the pavilion where her celebration of life would be just to check it out, there was an elderly couple relaxing there. We met and talked. It's their favorite spot. I mentioned my daughter's experience with the white lighters and she had read a book of a young boy who had a similar near death experience and also had white lighters. That sealed it for me that this may be how it is. How can two people experience the same identical situation if it wasn't true? I don't think every dying brain can "conjure" up the same exact thing. So, I believe that your experience and my daughter's and others have some sort of guidance to the other world, to crossover. Also another thing. When a coworkers son passed after a sudden amputation and weeks after he died, I was in my kitchen in a condo I lived at after visiting him at home and praying with him and for him, there was a sudden FLASH in my kitchen I didn't have any lights on and it was very quick. I FELT like it was him passing over. I told my friend about it and she agreed. Also, the day my daughter passed, and while she was passing, I was at a client's house writing my daily caregiving notes. I suddenly felt a very exhausted feeling and then I was ok. I believe that God allowed me to feel her. There's no other explanation for how sudden it came on and left without me rectifying in any way. Life is so tender. It is a miracle that you are still here on earth. What you are doing now in your videos, I believe is not only healing you but teaching and helping others to heal. I was also wondering how they classified you as a quadriplegic when you are able to move your arms. I pray that your bed sore heals quickly so you can get back to a more sense of mobility and freedom. Oh, sometimes when I can't sleep vibrations help. Do you have any experience with that? It may also help blood flow. I use a percussion machine but my bed also has a motor to vibrate. Unfortunately I miss placed the remote. LOL I think it's under the bed but so are wood slats being stored there, so I haven't crawled to find it. LOL But, vibration helps me when nothing else does. Kind of like rocking a baby helps to pascify them and help them sleep. I was a massage therapist and touch and movement helps so much. Thank you for sharing yourself. You are an intelligent, sweet young woman. Hugs.

@eirinceciliegjedrem

Жыл бұрын

Thank you so much for sharing your story - it was beautiful to read about the white lighters 🤍✨ It just means all four limbs are affected, you can still have some use 🙂

@thereseshine7506

Жыл бұрын

@@eirinceciliegjedrem you're welcome. Well, I'm so glad that you are able to move and use your arms. I hope that your hand joints aren't painful. Have you ever used hot wax treatment to soothe them? Not sure if your doctor would allow it. XO

I had a baclofen pump implanted for spasticity and that has helped some. I wish it would help you as well. I often feel the spasticity build before the clonus starts. I can only describe the feeling as a sneeze that builds but with no relief, such as what you experience when you finally sneeze. It's a very unpleasant sensation.

@eirinceciliegjedrem

Жыл бұрын

It is - I’m sorry you experience this pain 😓

@liisarasula8777

Жыл бұрын

I worked with a woman who had a backdown pump and it helped hers.

@liisarasula8777

Жыл бұрын

baclofen

Lovely to see your video again today. I am so looking forward to the day that you are able to be up in your chair again. It will feel wonderful to have the independence that offers. Sending you love.

@eirinceciliegjedrem

Жыл бұрын

💖✨

I'm blown away by your steadiness. I keep comparing your mindset to my own as I watch you speak about such difficult things. It took decades for me to be able to even mention some of my feelings to others. Everyone will tell you that you have to process it all in a healthy way, and you may know that intellectually, but achieving it is so very difficult when you feel singled out by a horrible seeming fate. I was older when disabled, a sole provider for my family. I simply couldn't forgive myself for letting the people down who depended upon me. Truthfully, it's an issue I still struggle with more than I should, even though I've long since driven away the people I was so concerned about. I know you have moments when it is all too much, but that is not what I am talking about. I'm talking about the clarity you have concerning the difficulty. I detect no negative emotions when you speak of such difficult things to think about. Just a healthy sadness and regret. To me, I see that as a huge accomplishment. I couldn't figure out how to stop being self centered about my disability. I treated people badly. When I finally had to admit life was different forever, I was a hollow shell with no identity. After being so unkind to people, I was numb to the damage I had done to those around me. It gave me a sense of satisfaction to see people walk away from me one at a time. My thoughts were so broken, I felt relieved to see people give up on what I considered a lost cause. I was born into a large family, and was considered the bright one, who was always in a good mood and smiling. I was generous and helpful. I was solicitous of the happiness of those around me. That changed 180 degrees, and lasted for years. I listen to you talk, and honestly, I am flabbergasted. You have given me a new goal to shoot for. I like your manner. I would seek to imitate it. I will fake it till I make it... :)

@eirinceciliegjedrem

Жыл бұрын

You are truly bright and you have a beautiful light ✨💖 I hurt with you and I send you my light and my love ❤️ I hope for you that you’ll create changes where you try to and want to, in a way that lifts you upwards and forward - towards good moments and new memories 🤍✨💖 Thank you for sharing such a raw and painful story in such an honest way ❤️

I recently found your channel and i'm SO happy I did because you're genuinely one of the most bright, kind, strong, and sweet people i've ever come across ❤️ I don't have any disabilities but i've dealt with mental health issues for over half of my entire life due to trauma I experienced (I grew up in an abusive home, was in an abusive relationship on and off for 8 years, got pregnant by my abusive ex but sadly suffered a miscarriage, was raped, a few days after that someone I thought was my friend sexually took advantage of me and the bad state I was in, one toxic relationship and friendship after the other, etc), struggled with substance abuse for 10 years just to numb the emotional pain I was in, and so while I have absolutely no idea what having your condition feels like I can for sure relate to the mental health aspect. And I also really love how honest you are about everything especially when it comes to your relationship because every time I hear about someone who's with someone who has a disability they make their relationship out to be all rainbows and unicorns when in reality there's NO relationship on planet earth that's great all the time. But thank you for being you 😊

@eirinceciliegjedrem

Жыл бұрын

Thank you for sharing your story and your light 💖✨ I appreciate that you’re here ❤️🥰

@joyful_tanya

Жыл бұрын

I can very much relate to your comment. I suffer with mental health issues from abusive childhood, first marriage and subsequent relationships. Plus I was a nurse, so I was always taking care of everyone and not taking care of myself. Thank you for sharing. Love and light to you.

Hi Dear Soul, thanks for this part 3. I want to honour the strength and dignity within you. You have shared some very difficult things with us, all in the name of compassion and education. Not everyone can do this, I understand. To be so young when this happened, and to feel so very exposed, must have been horribly sad and caused you anger too. I know I would feel this way. To have one's own autonomy is so important, and you have fought for this so very well, yet used all that you could to build your own personal strength and spirituality. Dare I say that you are here, because you have the ability and gift to speak openly as you do. I am sure there are days you weep and wonder. You are only human. You are so well spoken and intelligent. You have set about educating yourself in your own body and how it works now. You are truly someone I admire and also someone I think I would love to just speak to and maybe have some laughs with too. After all, you are first and foremost, a Beautiful Soul. Many thanks again and may the rest of your evening or day (I live in England now) be a good one. XOXO💚🌜☀

@eirinceciliegjedrem

Жыл бұрын

Thank you so very much and likewise! ❤️🥰

Thank you so much for continuing to share your story and answer these questions for us so we can better understand your journey. I appreciate you! ❤

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise! ❤️

Thank you for your honesty and openness . I feel privileged to hear your story. As a nurse, your experiences help me to be a better, more understanding, empathic care giver. I think you are an angel, a really beautiful soul. Your beauty shines from within. Thank you, with love from Australia 🇦🇺 ❤️

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise ❤️

The limit is called THE STATUTE OF LIMITATIONS here in America and it is so short that even finding a lawyer to handle a case is difficult.

@eirinceciliegjedrem

Жыл бұрын

That’s terrible 😔

Hello my angel good to see you. It is amazing how you explain your situation I am sure you are helping many people with injuries such as yours. As for me you make me very appreciative of all I can do. You are definitely in my prayers. God Bless you Love from N.C. USA

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise 🤍✨🕊️🙏

Thrilled to see your subscriber number increasing! So many people can benefit from your thoughtful and articulate content-not just those who have quadriplegia. Everyone experiences trials and can apply what you share to what they are experiencing.

@eirinceciliegjedrem

Жыл бұрын

Thank you so much, love! 🥰❤️

Eirin, you are one of the bravest people I’ve heard. When I was 13, I got hit by a car. I had a fractured skull and possibly a fractured pelvis. By the grace of God, I am fine. Many blessings.

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise 🤍✨🕊️🙏

I know you already know this but there is no reason to be ashamed...you are a survivor! You speak for millions! 🙏

@eirinceciliegjedrem

Жыл бұрын

❤️

Thank you for sharing I have so many things I want to say but I also have no words. Just processing. I greatly appreciate your willingness to be so open and your vulnerability. Thank you

@eirinceciliegjedrem

Жыл бұрын

❤️❤️

Hello my friend, as much as I can I understand the shame, you speak of. Your a gentle soul with alot of living to do. Love and light from CT ❤

@eirinceciliegjedrem

Жыл бұрын

💖✨

I had a premonition before a tragic event. I had dreamed of something horrific happening to me for weeks before it did, and after it happened, I had deja vu multiple times a day for days afterwards.

@eirinceciliegjedrem

Жыл бұрын

Sending you warm hugs ❤️

You are a beautiful person inside and out. I so admire you. Thank you for an eye opening video. Hugs

@eirinceciliegjedrem

Жыл бұрын

Likewise ❤️

Thank you so much Erin. I have a hundred questions for you but I'm sure you will answer them all over time. I'm so interested in your mental health but only when and if you are ready to share with us. In sending you so much love, respect and a great big gentle cuddle from England. 🇬🇧

@eirinceciliegjedrem

Жыл бұрын

Thanks for the lovely cuddle ❤️ It’s on my video-plan, so I will definitely talk about my mental health in a future video 🥰

Thank you Eirin for your eloquent descriptions, your candor and patience with us, your curious audience. I have been reminded of some life lessons from your talk today -I find your demeanor and the occasional search for translation to English quite charming. You exhibit a fine example of a highly evolved human! Good health and happiness to you friend.

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise! 🥰

Thank you for sharing such a raw and real video. I have no doubt in my mind that your videos/words and spirit will help others. You are truly an angel here on this side of the veil ❤

@eirinceciliegjedrem

Жыл бұрын

❤️❤️

I live alone & basically have all my life. I am 67yo, very, very Independent. You mentioned before your accident, you loved being active and had many outdoor activities you loved to do. For me, it's brisk walking. I started when I was about 25yo. Exercise, I found to be uplifting and elevated my moods. I wouldn't know how to replace it. As I listen to this video of your life today, I put myself in the same situation & I get really upset that your privacy, your choices in life, your ability to do as you please is completely taken away from you. Being at all Independent as you were, I really understand these emotions, privacy most of all. 🌻

@eirinceciliegjedrem

Жыл бұрын

Thank you for sharing ❤️❤️

Thank you for sharing with us. I appreciate you.

@eirinceciliegjedrem

Жыл бұрын

❤️

Thank you very much for answering these questions. I struggle with mental health issues from different abuse situations in my life. I'm also a retired nurse and I would love it if your videos could educate healthcare professionals from the patients perspective. I was an ostomy nurse and also a wound care nurse, at different times. You are a bright light! ❤️

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise! ❤️

YOU are the one with the beautiful soul. I admire your strength and gentleness. Beautiful videos to watch and learn from. I look forward to what you will upload next.

@eirinceciliegjedrem

Жыл бұрын

Thank you so much ❤️❤️

I admire you so much for sharing so much of your personal journey...Good decision about colostomy..I have been a caregiver for 45 yrs...Took care of a young man who broke his neck in a rugby accident..He did not have a colostomy so you know how that was...Well anyway I'm so glad I found you.... ❤️

@eirinceciliegjedrem

Жыл бұрын

Thank you ❤️

Thank you Beautiful Lady for your honesty, your heart and sharing with all of us your story. I feel like I’ve come to know you personally through finding you a couple of weeks ago. I’m honored that you are so real with all of us. And I’m reminded how precious each day is. Hugs to you, Eirin ❤

@eirinceciliegjedrem

Жыл бұрын

Thank you, and hugs right back ❤️❤️

I think it's cruel to suggest you have control if you think about it hard enough. You handle yourself with dignity and grace and have NOTHING to be ashamed of.

Prayers for you! I enjoy very much your vlog. I can’t imagine how proud all of your family are of you! I know it’s hard to be in bed but you will have a great result soon with healing. All the very best to you!

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise! ❤️

Gosh I am so glad I found your channel. I love listening to you and learning from you - you are so insightful, gracious and resilient. I appreciate that you share with us not just your wisdom, but the journey that it took to get there. You don't hide that there have been tough times and that is so relatable and inspiring. I would love to find out more about the technologies and resources that you use and have helped you, if you wouldn't mind sharing. My grandpa has Parkinson's disease and has lost most of his fine motor skills. Everything from cutting his nails to answering phones and even playing music on a stereo or computer are basically impossible now. I would love to share with him if you have any things that might help, as like you, he struggles with the loss of independence and would like to be able to do more things without having to rely on another person for help. Sending you love & light from Australia!

@eirinceciliegjedrem

Жыл бұрын

Love and light back 💖✨ I’ve made a note and will think it through to see if I can make some suggestions ❤️❤️

It’s a success in that you can breathe on your own also. Such and important function to be able to do on your own!! Congratulations on the new additions to your family!! Wishing you all the best!!

Hi Erin, I’m sure it has taken you many years to gain your amazing strength. Have you ever met the people who pulled you from the water? I hope you pressure sore is healing so you can sit up soon. Gods blessings always! 💗💐💗💐💗💐💗💐💗💐

@eirinceciliegjedrem

Жыл бұрын

Thank you so much! ❤️🥰 Unfortunately, I have not - I don’t even know their names, which is sad.

You are an incredibly strong person ✌️ I'm 55 and I still cannot talk about the traumas and the shame and the fears publicly. Kudos to you 👍🫡

@eirinceciliegjedrem

Жыл бұрын

Thank you for being here 🥰❤️

I am deep awe for your spirit❤❤❤ you are such a sweet brave soul ❤

@eirinceciliegjedrem

Жыл бұрын

🥰❤️😍

Oh Eirin, I can only imagine how difficult it has been for you to open up to us about your accident, your life now and your feelings. You are incredibly brave to do this and I for one feel so privileged to be able to hear your story. You have such a gentle soul and I wish you so much love and peace. 💜xx

@eirinceciliegjedrem

Жыл бұрын

Thank you so much ❤️❤️

Thank you again so much for sharing your life with us. 🙏❤

@eirinceciliegjedrem

Жыл бұрын

❤️

Your videos of going to be such an inspiration for so many. Sending respect love and prayers. God bless you Hun x 👋💜👍🙏🤗♿

@eirinceciliegjedrem

Жыл бұрын

Thank you 🤍✨🕊️🙏

You seem like such a lovely person. The way you are so open and honest about your life and experiences is really a gift. I am thankful that you were saved and are still here!💞

@eirinceciliegjedrem

Жыл бұрын

❤️

As a former rehab nurse who loved taking care of quads I really appreciate your journey!! So much is taken away!! All that we take for granted is suddenly gone. I appreciate your frankness. And thank u for covering bowel and bladder issues. You are a brave young women. I know this is hard but you are giving other quads hope for the journey!

Eirin thank you for your honesty and pray you have more good days. I meant to say I chuckled over your husband brushing your hair in your last video.

@eirinceciliegjedrem

Жыл бұрын

❤️ He did too 😁

Thank you for being so honest and open. ❤️

Thank you for sharing your experience. Your resilience is inspiring ❤

@eirinceciliegjedrem

Жыл бұрын

❤️

❤Love to you and thank you for answering questions and also not holding back saying you will talk about the mental health involved. Much love to you as I will always tell you!❤

@eirinceciliegjedrem

Жыл бұрын

❤️🥰

I admire you so much! Your honesty in some of these questions is so appreciated. It’s wonderful that you have created a platform for people to ask questions that they may not have even considered before.

@eirinceciliegjedrem

Жыл бұрын

Thank you! Happy to share 🥰

You are so well-spoken, elaborate and honest in your videos. Very inspiring, thank you.

Your videos are absolutely incredible!! I can't even imagine. Your honesty and the detail is magnificent. Thank you so much for allowing us a glimpse into your life and journey. I can't begin to tell you incredibly valuable this is.

@eirinceciliegjedrem

Жыл бұрын

Thank you too! 🥰

You are so brave in being very open with us. You are making a difference in this world. BTW... I would buy your book!!

@eirinceciliegjedrem

Жыл бұрын

❤️🥰❤️

@sybildarcy9166

Жыл бұрын

Me too!!!!!!!!

Eirin, have you ever tried eating a spoonful of yellow mustard for cramping? It works within 20 seconds. Sometimes a second teaspoon is required. You are wonderful.

@eirinceciliegjedrem

Жыл бұрын

Thank you ❤️

Erin, you are incredible!!! I mean, I Do Not even find words to express what your Videos mean to me! I really found them in the right moment when I was in deep despair because of my illness. And you have so much wisdom to share it is unbelievable! Thank you so much!❤❤❤❤❤

I love how open you are! I also love how no matter what you say it’s respectful and honest. Thank you for making this channel and educating those of us who are ignorant to your condition. You are quite amazing! I have been reading up on if paralysis is reversible by spinal transplant and it looks like, there has been some success. Now with everything, I’m sure so many criteria’s need to be met in order to get that done. I know if this happened to me, I would def be very angry. I have moments now where I get super angry due to me having chronic back pain. It stops me from doing a lot and I’ve done everything medical personal tell me to. All of my feelings and your feelings are super valid. We are humans and life is supposed to look a certain way, so when it doesn’t, it sucks.

I appreciate your videos and your willingness to share so that others may learn and find support. I hope your pressure sore heals soon ❤

@eirinceciliegjedrem

Жыл бұрын

Thank you ❤️

Your videos came up under recommended watches and Im so very glad it did. Its hard for me to know what to say. I stuggle with a lot of mental health issues and I will say you are a inspiration to me and I look forward to your future videos because the ones I have watched so far are so inspiring. Thankyou for being willing to share your self in this way as I know it will help so many others including myself. ❤

@eirinceciliegjedrem

Жыл бұрын

Thank you for being here and for sharing your light 💖✨

I send you so much love from Spain. I just found your videos and I think you’re an unbelievably brave woman!! Just hearing you speak so clearly and sincerely about your experience is admirable. My respects!!❤️❤️❤️❤️

@eirinceciliegjedrem

Жыл бұрын

❤️❤️

Thank you. You are a blessing to many.

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise ❤️

It is great to listen to your videos Eirin. Wishing you and family the very best today and always.

@eirinceciliegjedrem

Жыл бұрын

Likewise ❤️

Hi, Eirin. You are such a brave, beautiful soul. I’m so glad I found you and I look forward to your future content. Thank you so much for opening up your world to us. Sending you so much love ❤

@eirinceciliegjedrem

Жыл бұрын

🥰❤️

Eirin, Your story has touched me deeply. The strength you have to share so openly, sincerely and honestly is truly remarkable. I am so interested in learning more about your journey. You are amazing and I wish you all the love and peace in your life ❤❤

Your always in my thoughts and prayers , your a lovely lady 🙏🏻❤️

@eirinceciliegjedrem

Жыл бұрын

🤍✨🕊️🙏

Erin, you are such an inspiration. Just keep sharing your story. I know that for me, it's hard to imagine what you are going thru, but then again, you have such a beautiful personality. You are so thankful and grateful for the little things in your life. It makes me ashamed as I am just like anyone who takes all the things I'm able to do for granted. What a beautiful soul you have. God bless you honey. I'm so thankful that I came across your channel. You are so inspiring. I'm not sure what country you live in, but be thankful for all the health benefits. You are an amazing testimony to us all. ❤️

Thank you so much for sharing your life, and such sensitive issues with everything you've gone through! You are truly an inspiration! God bless!!

@eirinceciliegjedrem

Жыл бұрын

❤️🥰

Eirin, listening to you go through the process of what happened.. 🥺you should be SO incredibly proud of yourself.. Such self awareness, openness and honesty, my heart feels like it knows yours just hearing you speak. I had a spinal cord injury 3 yrs ago, incomplete, so I gained much function back.. I'm aware of how fortunate I am, and I'm grateful for what I learned in the process.. When I get frustrated with my limitations, and I do, I have little selfpity partys🥳🙈.. They're not helpful so I'm going to work on that.. Thank you for the sharing.. You're a truly special lady💚💚💚

@eirinceciliegjedrem

Жыл бұрын

Thank you for sharing your light and for being here 💖✨

You’re such a beautiful soul inside and out and such an inspiration! Wishing you all the love and light for every step of your journey through life ♥️✨

Thank you for sharing your life story. You are an inspiration!

Just found your channel and wanted to say how wonderful you are! And what a true inspiration you are...... You are such a beautiful person, inside and out. Stay strong xxx

@eirinceciliegjedrem

Жыл бұрын

Thank you ❤️❤️

It seems that one of the hardest things was giving up your sense of privacy. Have you learned to cope more with this over time and with more consistent caregivers rather than a bunch of strangers? I know I had several very personal body part surgeries, one was for endometrial cancer and one was perirectal abscess from sitting too much with no appropriate cushions or recommended position change or appropriate chair (sat so much due to spine pain and related depression.) I was online a lot to cope and sitting in a desk chair. I ended up having two surgeries for the abscesses and horribly humiliating exams and wound packing changes. One surgery was at a teaching hospital and I was asked if the class doing rounds could come in to witness the exam of the day. I said yes out of a social pressure to do so and then felt like I can’t believe I’m doing this as they raised up the bed and turned on the bright exam lights over my bed and examined my inner butt cheeks. What a trip. I had to literally just go on mental vacation and detach from the humiliation. My partner at the time changed my dressings mostly and then I had a random home health nurse doing it which was another personal blow to humility. The cancer surgery was less humiliating actually than that was bc I had most of the personal aspects done while under general anesthesia and recovery in the hospital at first so nurses made me feel comfy. I didn’t have exams of that area thankfully until later but did have a urinary catheter at first but I was so drugged I didn’t even care. Ironically the thing that bothered me the most was a central line sewn into my neck which no one told me was going to happen and I was irritated and kind of panicked by bc it hurt so much to turn my head due to stitches pulling the skin. It was so minor compared to the surgery and pain related and recovery. The humiliation is in dealing with new people, having to accept help, having to see, smell, feel and not feel but have happen things from the body that we weren’t taught as kids. We were taught to keep our bodies so private and things like differences, smells, extra movements and things hidden. We were taught especially as girls this body shame and it’s sad bc we all have these intricate and varied wonderful and horrifying and smelly and floppy and flappy bodies. It’s something I would love to do some art about sometime. Have you considered writing poetry or doing any computer visual art about and aspect of your experience and what was your education completion level? You seem very gifted verbally and would make an amazing writer or artist. Your organizing skills seem very gifted as well. I am very inspired by you. I wish I could come hang out with you while you have to lay down to heal and discuss art ideas. The idea of shame tho really got me bc I have felt that deep and painful feeling and feel for you. I hope it has calmed down or you have developed skills to cope with these peaks of the feeling or are able to let it pass and let it go so you can enjoy life and not feel that pain. I’m also amazed that you didn’t have a traumatic brain injury in the impact of the dive. That you are so clear mentally is probably a gift and a curse. I say it’s a gift for us but you may feel cursed some days. Sending some big love and happy thoughts to distract in those moments. Do you have a happy place you go in your head when things all just get overwhelming? Xoxo sorry for so many questions but you are truly fun to hear from and exchange ideas and hear your stories. Not fun to know your struggle but interesting to see your amazingly deep and growing perspective on each challenge. Waving healing fairy dust into the wound so you can sit up soon. Come on wound granulation!

@eirinceciliegjedrem

Жыл бұрын

Thank you for sharing such painful and personal experiences with reflection; you truly inspire me ❤️ Sending big love and happy thoughts back 💖✨

@fragilefleur

Жыл бұрын

@@eirinceciliegjedrem lol sorry if it was too much info but I feel like you of all people understand and I don’t care if others hear it. It’s just life being stuck less mobile or having surgeries. I hated it and still have trauma from all of my surgeries that mostly surfaces in ptsd nightmares. I have meds for that but they pop up randomly sometimes. I’m sure something triggers it but constantly monitoring and avoiding triggers gets too tiring mentally. I just try to live and do a semi normal (for me) day.

Thank you for this beautiful series

@eirinceciliegjedrem

Жыл бұрын

❤️

Thankyou for sharing this.....must have been difficult to both remember and say your situation out loud. You are a courageous and loving soul. Wish the very best for you. Your channel will help so many including myself xxx

@eirinceciliegjedrem

Жыл бұрын

Thank you ❤️

Thank you Erin for sharing your story and thoughts with us. Listening to you is really reassuring and help me a lot to understand some things and look at the world from different perspective... especially when you've said, that not every situation or thing in our life have to be accepted by us. And even so we can still keep going and try to do our best. Thank you, stay strong and keep inspiring people from the whole world❤‍🔥🌌 Wish you all the best from Poland🌺

You are one of the most couragous young lady i have ever seen ❤❤❤❤❤ My question is:. How do you see yourself in ten years? Love your videos ~ Elaine

@eirinceciliegjedrem

Жыл бұрын

Thank you so much ❤️

You are such a strong woman! Many of these questions were difficult, but you did answer them honestly and keeping calm. It is horrible to hear that the diving boards installed by the county were not safe for swimmers.

You continue to amaze and educate, Thank you so very much.

@eirinceciliegjedrem

Жыл бұрын

❤️❤️

I think you are an amazingly strong person. You are an inspiration to so many!

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise! ❤️

Such hard questions tonight honey!! Wow!! So brave for answering them all. Thanks for sharing your story. You just popped up in my feed and I’m just amazed at you and your life. I will pray for God to be with you. ❤

@eirinceciliegjedrem

Жыл бұрын

Thank you so much and likewise 🤍✨🕊️🙏

Thank you so much for these videos. I think is so important to share these stories and answers to questions, it helps us all be more knowledgeable and compassionate towards people with this kind of injury. ❤

@eirinceciliegjedrem

Жыл бұрын

❤️❤️

Thank you for sharing your story and responding so frankly to all questions. I admire you so much! Sending love to you from the city of Queretaro in Mexico.

@eirinceciliegjedrem

Жыл бұрын

Thank you! ❤️❤️

I’m so glad u r on today

@eirinceciliegjedrem

Жыл бұрын

❤️

Thank u for all Ur honesty and strength

@eirinceciliegjedrem

Жыл бұрын

❤️

Wow!!!! Thank you so so so so much for answering these questions. It's so very interesting. Thank you beautiful girl! It really helps us understand.

@eirinceciliegjedrem

Жыл бұрын

Thank you too! ❤️

You are so brave and fearless to share so much of yourself. You don't have to, but you choose to. I know it may be helpful to someone going though a similar situation. I have a completely different type of health issue, however I admire your strength to share so much of your self. You are beautiful, not just physically, but in so many ways. Always know that it is normal to struggle - we all have something going on, and that is the one thing my "invisible" disability gave me - much more empathy towards others - because we never know what someone is going through. Love and peace to all ❤❤

@eirinceciliegjedrem

Жыл бұрын

Thank you for sharing your beautiful light 💖✨ Love and peace to you as well ❤️

I can relate to you on many levels & my heart just kept expanding as you spoke - your rawness, your ability to explain everything so clearly, your honesty & your vulnerability.. You've captivated me, hrs 3:30am & I don't want to go to bed. You know you're an empath, right? I am also, I also attempted a career in psychology, way too much for my heart! Anyway.. March 7, full moon is one I'm looking forward to, let your creativity run wild! 💜🇦🇺

@eirinceciliegjedrem

Жыл бұрын

Thank you so much for your loving words and for sharing your beautiful light 💖✨❤️

Love your channel ❤ wishing you the best

@eirinceciliegjedrem

Жыл бұрын

Thank you and likewise 💖

I see a lot of parallels in our mindset. Probably due to the situations that our lives are in. Just wanted to let you know that what you thought you were doing… Sharing with the world and helping other people… I am a literal example that you are succeeding! You are helping me in my own journey. Thanks. Thanks for sharing. Maybe one day I will share too 🙂

You're so strong. Thank you for sharing 💞✨️💞

Thanks for these videos of Q&A. Waiting for live someday ❤