"The patients are the experts in their disease." Yes. Please scream this to ALL doctors from the rooftops!!!

@lajoszsommd1526

2 жыл бұрын

Good doctors are interested in you. Bad doctors are interested in your labs. I tried to publish widely to translate this into scientific (and very diplomatic) language.

@Jojoma449

2 жыл бұрын

@Terre Schill no that’s not true, I was able to advocate for myself and cure what was supposed to be chronic. After seeing 10 doctors I was the best expert .

@Jojoma449

2 жыл бұрын

@Terre Schill My dear I have a degree in bioengineering, so yes I have read anatomy and physiology, but thank you for your concern.

@chrispapad1021

2 жыл бұрын

@Terre Schill : I have worked as a PhD researcher for 20 years. I suffered from postviral syndrome 12 years ago for 2 years. Most doctors did not want to hear you because everything in healthcare nowadays is about financial efficiency. Medicine nowadays is not the medicine that was 30-40 years ago. Everything is by the book and procedures for legal issues. Not actually cognitive effort from the physicians. When it comes to your own health, you are the leader there.

@riverbound7471

2 жыл бұрын

Exactly. Yet, doctors THINK they are smarter than us, who are experiencing the illness. They insult me not believing me. We are the science behind the disease. We should be documented and able to study and note our affects daily through journal. No doctors in my area are trying to log data, but instead, insult the situation by not believing me. I'm blown away how uncaring, society is, government isn't helping us. It's as if they're down playing the illness like is was the common cold. I'm traumatized...I've lost everything. No one cares. I'm going to lose my home. Become homeless. Yet, its like people are waiting for me too fail, so they can accumulate my property out from under me. No one cares. My state government cheated me out of unemployment Federal PUA....leaving me without my emergency funds through pandemic. So, I thinking suicide will be my only choice left. Because no one cares or believes me. My car was repo'd last year. I have no way to care for myself. I'm in pain in my hands, feet, ears ache. Heart hurts.

Thank you. We are desperate for treatment. Some of us have been suffering for well over a year, and some even for over two years. Please help us🙏🏼

@jojogurl83021

2 жыл бұрын

2years!!! 🙏😢

@JacksonTaylorandTheSinners

2 жыл бұрын

I’m 14 months in. I thought it was all joke, until it hit me and hasn’t quit hitting. You just can’t comprehend it, until you experience it.

@hillaryr7042

2 жыл бұрын

@@JacksonTaylorandTheSinners I'm so sorry. I'm entering month 17. Wishing you well

@JacksonTaylorandTheSinners

2 жыл бұрын

@@hillaryr7042 hope you get back to 💯 soon. I’ve found that not fighting it, not trying to push through and tough through the fatigue, and just stopping what I’m doing and breathing through it and resting, helps me rebound much faster. Best of luck. 🙏🏼🙏🏼🙏🏼

@riverbound7471

2 жыл бұрын

I'm tramatized. No one believes me. Since I've had covid 2xs in 2021, the last time was Nov...I've has nerve damage in hands n left foot mostly. My heart hurts. Doctors make me feel like I'm stupid, not believing me, telling me to try harder. I'm in pain. I stopped going to the doctor giving up. Because doctors are not helpful. Not believing me angers me. I can't function correctly. Moving is limited. I'm lost. I'm scared. No means to support myself. I think about suicide being my only option left. I'm just so lost and feel as if society turned their backs on me. No help.

If they know what’s happening why are they not developing a treatment...? If scientists can get a vaccine in 6 months , why can’t they help those of us who are still having symptoms?

Thank you for this research -- it's desperately needed.

at last..im not going crazy after all..thankyou for posting this ive been suffering nearly a year with long covid and its awful x

@elmsanti574

2 жыл бұрын

What still suffer? Short breathing.. i have a cure of that.! But im not a doctor..

@elmsanti574

2 жыл бұрын

I wish i can show you the actual stuff.. and lot of my acquintance has been heals.. long covid.. my serum will keep you from that.. off course.. the God is the main factor.. coz God allow this covid to happen.. but i was also granted a cure.. so what can i say .. Praise God in christ JESUS name..

@safeeffective385

Жыл бұрын

Were you vaccinated?

One thing they don’t talk about is if there is a viral load that persists in the tissues , if it’s not eliminated we are at risk of developing long term chronic autoimmune and neuro diseases like MS Lupus Parkinsons and etc. we need #antivirals as soon as possible to clear the system of viral particles. It’s critical or there will be millions of chronic patients.

@bomcimtube

2 жыл бұрын

True

@bomcimtube

2 жыл бұрын

True

@jone-nc1di

Жыл бұрын

This is very true there is also alot of studies going on for the possibility of anti histamines and various supplements also being able to suppress this devastating debilitating thing mavirioc the most promising the anti viral for hiv seems to be 1 of the best answers

Thank you for posting! Thank you for your research!

Some of the best fundamental research I have seen on long Covid. I think it is going to take a really long time however to understand the mechanisms and then come up with a cure. I think a better approach is to continue the fundamental work, but in parallel take somewhat of a shot gun approach and start testing drugs along the lines of controlling the cytokine or immune response. Most discoveries are found by accident or trial and error over a calculated solution. Please keep up the good work, it is going on 17 months for me and a solution can't come fast enough.

@LR-px9ms

2 жыл бұрын

They should rely on prior research done for CFS/ME and combine efforts. It’s going on 5 years for me and for many a life time of suffering.

@kapaul1584

2 жыл бұрын

@@LR-px9ms There does not seem to be a sense of urgency and collaboration.

@sarafarid8952

2 жыл бұрын

Can one develop strange symptoms months later? Or is it supposed to be immediately after contracting?

@kapaul1584

2 жыл бұрын

@@sarafarid8952 It took a month or two for my LC symptoms to develop. Unfortunately they never went away. Everybody's symptoms seem to be a little different so anything goes.

@sarafarid8952

2 жыл бұрын

@@kapaul1584 my so called issue appeared good 10 months later. And funny thing, it came in episodes. It wasn't consistent. And now it's bad. So I can't really peg it as long COVID ... I'm so confused.

I got infected 4 weeks ago, I was healthy and athletic. Now I live prisoner inside of a body I no longer recognise. I sit all day waiting to die.

@karenwoyto5539

2 жыл бұрын

I hope and pray that the symptoms will diminish with time and that researchers can find solutions that can help you.

@elmsanti574

2 жыл бұрын

I have a cure.. i just load it into nubulizer.. short breathness cure..in 5 to 7 days..

@xtian384

2 жыл бұрын

@@elmsanti574 what cure?

@elmsanti574

2 жыл бұрын

@@xtian384 the last variant here was omicron. And all the poeple who had that serum.. didnt got omicron.. the last persom i know was a friend of husband

@xtian384

2 жыл бұрын

@@elmsanti574 you’re still not telling me what it is

They tell me it's anxiety and panic attacks!! 😢😢😢 2 years and counting, breathing problem fatigue burning

@elmsanti574

2 жыл бұрын

May be my ser can help you.. coz the people has been cure of it doesnt have such effect.. they were totally cured..

@sarafarid8952

2 жыл бұрын

@@elmsanti574 what can help in breathlessness

@elmsanti574

2 жыл бұрын

@@sarafarid8952 it csn't be buy from pharmacy.. its was a gift that has been bought from province trival people, its just like an herbs.. i didnt even know that i can cure covid, coz according to them its sore and insect bite medicine.. untill i discover that it's good for covid..

@donnazukadley7300

2 жыл бұрын

@Jojo Gurl the doctors don't want to admit they are stupid, so they make YOU look stupid. Look up mast cell activation and antihistamines. Turmeric, black seed oil for inflammation. Turmeric passes through the blood brain barrier so it might help with brain inflammation as well, which causes a lot of neuro problems

@jone-nc1di

Жыл бұрын

@@elmsanti574 what is the serum you talk of that helps this debilitating thing

My heart started acting up after I had a bout of mild covid. My symptoms were I had major headache, I was dizzy, blurry eyesight, fever, light body aches, No cough. Then about 2 weeks later I felt better and felt I beat Covid. And about 3rd week my heart started skipping beats and felt like fluttering with a pound or heartbeat. It felt like it fluttered and the beat catches up. Now today my heart rhythm is not the same. I currently have a new heart beat. I also feel dizzy. I sometimes feel POTS when I get up from lying down. The ekg showed PVCs and Nonspecific ST and T Wave abnormalities. Nobody can give me answers as to why or what is happening. My Dr says should go away with time. I was vaccinated and boosted and sadly still I got covid a little over a month after I was boosted. I’m not the same today. I feel awful. Drs still doing test on my heart and really have no answers except they’re explaining that their seeing many new patients with heart irregularities now. And should go away with time. Sadly I’m scared and don’t feel the same with my new heartbeat. My family, sisters, parents, nieces, friends, so many friends, All were also vaccinated and some had covid multiple times. They had mild cold symptoms or flu symptoms but no heart problems. I’m the only one.

@denalewis3473

2 жыл бұрын

Your not the only one I've had the same thing plus a ton of other symptoms! I've had endless test I wore a heart monitor 2 x once for 15 days then months later 30 days countless ekg's eco cardio gram all showed skipped beats slow and hight heart beats but no awnsers from cardiologist!! God bless all suffering with long covid I'm praying for you !! Please pray for me !! James

@Mari-rz5sh

Жыл бұрын

We are taking NAC, Neem, NvN, Rosemary, Restorvol. We’re taking it and feel better. RESEARCH it first.

thank you it is great

Is It the same disease as Myalgic Encéphalomyelitis ( ME ou ME/CFS ) ?

we need any useful medication to help

2 years later - I'm still suffering fatigue after some physical activity - hard to breathe - dizziness - mind fog - red eyes , difficulty in focusing

17 months here. I'm sick of being sick.

What’s the potential protocol to this?

Thank for share

Do you have the link for the e-study?

My GF has been taking enoxaparin since Dec 2021. Without she feels really bad. She has tried others like Apixaban but she feels no effect. What can she do? Continue taking enoxaparin?

My Hashimoto’s has been horrible since March 2020 I was one of the first ones that had covid in my area and I was in bed for three weeks and the brain fog and the fatigue in the muscle aches are 10 times worse than they’ve ever been and it still hasn’t eased up I’ve had to leave a very good job as an accountant and apply for disability and that’s not something I ever thought that would happen in my life I’ve always been a go-getter the person that people go to for answers work on my own house by myself a very creative person and this thing has kicked my butt and the doctors have no idea what to do but just to give you anxiety reducing types of medication’s I thing to just numb you up and make you sleep and that’s not who I am and it’s a very tough thing to get through my prayers for everyone that’s going through this

I had first covid infaction in may 2021. four months later second round, and month later followed by a round of dengue. i stoped whining about my random long haul of symptoms. this is such a relif for me. Brain fog , random pains, headache, and taking small infections to a severe level.

Can one develop strange symptoms like unable to take full proper breaths much after the vaccines? Not directly after but months later??

@donnazukadley7300

2 жыл бұрын

@Sarah Farid yes the jab does it

@sarafarid8952

2 жыл бұрын

@@donnazukadley7300 you said antihistamines work...would they? Which would be the best and safest to take?

Thank you. Im getting better but the chest and bsck pain. My daughter snd i get lightheaded in stores like its a dream. Also cold feet and blood puddling in hands. Im thinking its dysatonomia causevit hit my cns hard. 18 months ago lost vision and so on.

@sagapoetic8990

2 жыл бұрын

Try acupuncture or community acupuncture. I have long haul symptoms myself and also my immune system over-reacted to the vaccine. I developed bad vertigo right after the vaccine shot, exacerbating neuro-muscular and respiratory problems that arose after I got covid. I wasted /three months/ waiting on medical scheduling and got practitioners who did not understand. I went over to a community acupuncture place as I am fortunate to have this option in DC where I live, and, wow, what a huge difference and in a shorter span of time. My vertigo is almost resolved and the pain levels dramatically decreased, including the migraines. You have to see your doctor of course and get the /inflammation and swelling/ looked at -- and include chiropractor and physical therapy, too. But absolutely -- visit an acupuncture place. Insurance doesnt cover it but it is the BEST therapeutic treatment. Community acupuncture places charge reduced rates if you don't have insurance ($20-$40). Don't be put off regarding paying for the acupuncture or needles. Acupuncture doesn't really hurt -- it's alot less than the COVID aches, etc. I am so grateful at the difference acupuncture has bestowed. I plan to add massage soon. Also - one last thing -- look into a tens unit from Walmart or amazon. This small apparatus provides electrical stimulus to sore muscles and nerves and also provides pain relief. The price ranges but you can get a small and decent one for about $30. The type of meds neurology proposes are serious and have negative side effects in my view, so I am leery about these and turned down a prescription but you must do what is best for you. I wish the options offered less side effects

@sagapoetic8990

2 жыл бұрын

Good luck

@sagapoetic8990

2 жыл бұрын

One last thing: some chiropractors practice needle-less acupuncture. I have not tried this myself and can't vouch for it but if you have insurance and it covers chiropracty, see if you can find a chiropractor who practices this. If it offers no relief after a few sessions, then try the real acupuncture

@RazmiWellness

2 жыл бұрын

Check out a possible thiamine and niacin deficiency. I started taking them and it's helped me a lot! Turns out many long covid symptoms are indicative of vitamin deficiencies.

@elmsanti574

2 жыл бұрын

I wish i could send you my serum.. it can be spray.. but in lung it needs nebulizer..7 days short breat will be cured.. then strengh or vigor will attain..

I definitely have a post viral syndrome. DEFINITELY. Didn’t have Covid, but I had a terrible virus/illness a few years ago and I’ve never been the same.

I had covid before it was televised. My problem is/was having no choice for testing the day before surgery. Chemical on tip, rammed up my nose, after telling me to sit on my hands. I started burning immediately and two years later still burning along with other problems. I think we know that they don’t know how long this will last. My guess is from now on, since this was in the works for several years.

My brother has been diagnosed with long haul covid after receiving his booster (3rd dose). Can this be explained?

@donnazukadley7300

2 жыл бұрын

@Cheryl Sullivan. Yes it can. There is such a thing as long haul Co*vid VAC*CINE. I never had Cov*id but severe reactions from the jab for MONTHS. Many of us are silently suffering out here. We follow the Cov*id protocol to get better. Antihistamines for the cytokine storm, mast cell activation

@MariettaFarley

Жыл бұрын

My guess is that it is the SPIKE that is the disease causing part of the virus. Why I'm never taking another of these mRNA vaccines.

Is there any insight regarding those vaccinated with worsening and continued LC symptoms ?

Is what we see here with long covid, especially the magnitude of it (taking into account that we have had a covid pandemic) unusual as to the basic nature of viral diseases?

How do you take part in any of these studies? In the uk

After having LHC from the Pfizer vax (1st shot) I doubt getting another will help me. Wouldn't it just restart the syndrome that exposure to the virus had? Over 1 year Long COVID. Still numb lower legs and feet. Still PEF, still not fully me. But somewhat improved by dampening my immune reaction via citalopram, and now taking ivermectin which has changed my urine (darker) and feces (darker) making me think my problem is microclots.

@ark194

Жыл бұрын

honestly, my 2nd pfizer brought me back to health. About 30% of long haulers who got the 2nd vaccine got better-Yale studied this. I am so sorry that you have had such a hard time.

@MariettaFarley

Жыл бұрын

@@ark194 The neurologist offered it, but after having chest pains following the primary shot (I had original COVID in 12/2019, shots in 3/2021) for six months - till I got Delta, I have decided no more exposures to that evil thing. I had inflammed sinuses for 9 months following my first COVID and am still inflammed following Delta: neurologic, whole body, can't walk. It's awful. What helps the most is citalopram, an SSRI, which increases serotonin which is an immune modulator and therefore anti=inflammatory. Ortho says I need spine surgery due to stenosis in lower back. Gasp. Ivermectin gave me feeling back in my feet, at least sometimes. Anti-inflammatory. LDN is helping others, but it's clear I'll have to take meds for the rest of my life just to function.

@ark194

Жыл бұрын

@@MariettaFarley sorry to hear. I wholeheartedly believe that the vaccine has done a lot of harm to some people. I was lucky and grateful it worked but I know that the problems for some are real and debilitating. It would not re-start the virus though, because the virus was not in the vaccine. It was an RNA not the kind that contains Covid.

@ark194

Жыл бұрын

kzread.info/dash/bejne/lJ-quJqyg5exkpc.html talks about post vaccine long covid

@user-uo3ek2dk7s

10 ай бұрын

same here

Hard time sleeping is one of them. I hate it hate it.

@christophersalvucci6279

2 жыл бұрын

I had extreme insomnia for year from long covid viral myocarditis, viral asthma and brain/sinus issues. I would check into a post covid clinic to have your lungs, heart and head checked. I was given a Fluticasone steroid inhaler that really helped my lungs, chest and possibly my heart too. I improved a considerable amount after each Pfizer shot as well so I would get your shots if you have not already. My sleep is now 90% back to normal at month 14 and I am back into my routine.

@andreanittel2240

2 жыл бұрын

same here, but from covid rash- can not bear anything on my skin- including my bed or any clothing...............so not sleeping hardly at all and not at all without sleeping pills.......

@safeeffective385

Жыл бұрын

@@christophersalvucci6279 Headache/migraines, brain fog, depression/anxiety, nausea, vomiting, diarrhea, LOSS OF SMELL AND TASTE, coughing, tachycardia/POTs, chest pain, fatigue, seizures/tremors, vision disturbances, palsies, tinnitus, shortness of breath, muscle and joint aches, skin rash, immune cell activation, changes to bone marrow and white blood cells, changes in menstruation, lung scarring/coughing, atrophy of saliva glands leading to sore/dry throat, numbness, tingling, nerve pain, hair loss... = 5mm radiation exposure symptoms = “Long Covid” symptoms 5mm wave technology was widely activated across the telecom's existing 5G infrastructure throughout Western Civ in Dec 2019.

@safeeffective385

Жыл бұрын

@@andreanittel2240 Go pull up a bunch of photos of "radiation exposure rash" and compare them with yours.

@andreanittel2240

Жыл бұрын

@@safeeffective385 I have covid rash which is getting better...............

Thanks for your research but it looks like we don’t know much yet :(

@elmsanti574

2 жыл бұрын

Iĺl send you my serum.. it can help you.. im sorry im tired of convincing poeple to be cured.. by that serum..

Please help, the ccrt Antagonists and statens help? I am in so much pain in my head it's driving me mad.

Is there a way to get a copy of this? I'd love to share a few of these slides with my doctor

Thank you for the video. So the solution to long covid, based on this presentation, is to get fully vaccinated?

@elmsanti574

2 жыл бұрын

I have a serum that can cure.. in a matter of weeks the .short breathness..

@sarafarid8952

2 жыл бұрын

@@elmsanti574 please tell me the name

@donnazukadley7300

2 жыл бұрын

@@sarafarid8952 try antihistamines

@sarafarid8952

2 жыл бұрын

@@elmsanti574 ???

@andreanittel2240

2 жыл бұрын

@@donnazukadley7300 does not help with covid rash...............

18 months into long covid it got SLOWLY better now infected again with covid ... got it again from my high risk individual grandmother, she does "dialysis" every 2 days So goes very often to a high risk place...

@janmolekula3900

2 жыл бұрын

How are you doing after another covid? Have you been vaccinated before first covid, or before second one? Hope you will recover.

@safeeffective385

Жыл бұрын

@@janmolekula3900 The vast majority of those posting about the LC fail to mention their "vaccination" status.

@janmolekula3900

Жыл бұрын

@@safeeffective385 Yeah most of them don't mention it. But to me the ones that mention it are mostly unvaccinated. So either vaxxing helps, or the ones that are vaxxed don't want to spread a bad word about vaccines.

@safeeffective385

Жыл бұрын

@@janmolekula3900 I have never seen so much lying, deception and outright brainwashing surrounding any one particular topic before this one, in my life.

@ark194

Жыл бұрын

@@janmolekula3900 my 2nd pfizer gave me back my health after 1 year of long haul. Sick 3/2020 and got my 2nd pfizer 3/4/2021.

this is my third week of covid rash/pox after 2 weeks of covid........can barely contain it with calamine lotion and prescription antihisimines...................

Been a year already after this lecture. Still no therapeutics in sight. Guess we will get meds after a decade when long COVID is forgotten. It will be just labeled as CFS

@abstuli1490

Жыл бұрын

Long COVID and ME/CFS may be linked to Mast Cell Activation Syndrome (MCAS). There are medications that can help many but not all people with MCAS. Try medication for MCAS to see if it helps, if there is no improvement after three weeks try another medication. First try H1 and H2 Antihistamine such as Zyrtec 10mg twice daily and Famogast 40mg once daily or split the tablet in half for twice daily. There are several other medications that can be tried in collaboration with your doctor.

I think the mechanism for long covid is very similar to ME/CFS. However different viruses affect people in different ways. It's rare for ME patients to have the lung problems that covid has. What is common with ME is gut problems, perhaps because many got sick from a gastroenteritis virus. Even after recovery from the acute phase, virus hides in our cells to escape the immune system. A cure is very unlikely as the drug would need to break into cells, kill the virus, then break out again, all without doing any harm. Many many years before science advances that much!!! A drug might come along which stops the condition worsening but reversing it is nigh impossible.

@TheBushRanger.

2 жыл бұрын

Yeh which is unfortunate. The cure is within us. Our mind and body can do incredible things however in the mean time there will be mass disability from this pandemic and no cure. Suicide rates will sky rocket and and a Great Depression will ensue. I had a concussion which was improving but this virus has ruined my life at 28. I have no hope of a future and will be in chronic pain for the rest of my life, the only saving grace is that I know I’m not alone in this journey. Millions will be there by my side fighting the good fight.

Daughter has 13 months ldealing with ong covid horrid thing ruins a childs life

@juliad8303

2 жыл бұрын

Poor baby. That’s not right that children get it that’s just not effing right. Especially knowing this is a b I o w e a p o n. I hope she gets better.

The newest therapy from Germany: Vital Air 5+ device !

1997 coxacie virus Fibromialgia sinds then... For 30 jears allone in my Fhigt convincing dokters something is wrong.. NO answer Instead antidepressants It was hel on earth Little better now Rust, food, no stress and almost no friends left Lissing to your body and remerber it's not between the ears Love you all ❤🍀

Hives and itching with long Covid

I’m long Covid upper back among other things I’d killing me NO ONE is listening to me doctors don’t get it !!!

So what do you think it may be the treatment ?

Do amphetamines help with this disease ? Can you please,please,please try and help all us sufferers from this life taking illness it literally sucks the life force from you!!

Why don't you ask the people that created it how to fix it?

@anrgmku

2 жыл бұрын

Chi-nuh

@elmsanti574

2 жыл бұрын

I have a serum that help to fix short breathness.. and they never had much effect since they applied my serum..

@tonyforrester5072

2 жыл бұрын

@@elmsanti574 wanna share? As I'm still having breathing problems 5 months out

@elmsanti574

2 жыл бұрын

Look im in abudhabi.. this serum is limited.. when i came here last dec almost no cases in phil. But new variant arise.. omicron.. well only 3 person has been cured, but i believe lots has been protected by this serum.. coz never infect anyone, al long as applied in just 1 tiny spray.. actually lots of nurses bought me yhis serum. No history that they were infectef even thier family..

@felipejotz7054

2 жыл бұрын

@@elmsanti574 what’s your problem? People here needs help and you keep posting same BS comment everywhere and don’t reply to them. You are troll.