Ovarian Cancer Patient | Sara's Story: Getting Through Surgery, Chemo, PARP Inhibitor (Video 2/3)
Sara was diagnosed with stage 3A clear cell, high grade ovarian cancer at just 34 years old. In this in-depth conversation with www.ThePatientStory.com founder, Stephanie, she shares everything from diagnosis through navigating life after the diagnosis in these three videos (time codes to come). FULL STORY AND TRANSCRIPT (to be published 4/22):
www.thepatientstory.com/cance...
Video 1: First Symptoms & Tests/Appointments
Video 2: Treatment & Procedures (Surgery, Chemo, PARP Inhibitors)
Video 3: Navigating Life with Cancer (Self-advocacy, finding a cancer community, importance of caregivers, managing "scanxiety," dealing with loss of fertility, survivorship)
VIDEO 2 TIME CODES:
(00:36) Debulking surgery experience
(6:10) Surgery recovery
(9:18) Managing Foley catheter
(12:32) Wig shopping, preparing for possible hair loss
(16:30-22:10) Cold caps, delaying with chemo delays, when side effects kicked in
(22:37) Listing all chemo (carboplatin + paclitaxel/Taxol) side effects
(25:32) Clinical trial option
(32:15) Why Sara decided to participate in a clinical trial
(34:19) PARP inhibitors side effects
(36:45) Goal of the clinical trial
(38:02) Recurrent nature of ovarian cancer
Пікірлер: 15
How is Sara today? I am stage 4 braca + last August .. to Mayo I went. 9 weeks chemo, debulking in DEC , 9 weeks Chemo after... survived and thankfully all done with that 💟in April no visible signs 👍...now trying to adjust and titrate with doctors the Parp etc. VERY FRUSTRATING...to not be able to find out updates on people. How can we get an update?💟
why can’t we ever get information on how they are doing now
@user-nx6qr1mt6f
2 ай бұрын
Very good question… I think it’s because few have success with the chemo they mention in the vids, so that would be poor advertising, that’s why their cases are ghosted.
Thank you Sara, your information and experience it's going to be so helpful for many who are getting this diagnoses. The details of your entire experience is going to be so helpful.
She so strong inner and inspiring. Her energy and persistence is impressive
Thank you foe your honest and detailed description Let’s beat this!!
Get well.
Love and prayers ❤️💪🙏
This was stressful to listen to because she talked so fast throughout. I hope she’s doing well. 🙏🏻🙏🏻🙏🏻
How are you now? Thank-you for sharing your story.
My sister had stage 3 cancer had treatment lived for 5 year went into stage 4 when it came back. She didn't make it but a couple months she got bad.
@samanthaschultz6082
Жыл бұрын
Your stage never changes. I am OC stage 3C dx in 2016. No matter what cancer does stage doesn't change.. in some cases, unless it ends in a second diagnosis to another area but then they'll usually stage example lung cancer stage 4 metastatic from ovarian but developed into a secondary cancer
@fifilafleur5555
7 ай бұрын
😢😢😢 Stage 3a here. It later metastasized to other parts of my abdomen. I survived a fungated tumor through my upper abdomen. I’m now 2.5 years out since diagnosis. Trying to have hope! 🙏🏻🙏🏻🙏🏻
what is the name of the other trial drug?
I think follow-up’s aren’t done on these women because the chemo they mention using doesn’t turn out too well… It would be poor advertising for bigpharma