Oh man, the one the morning of August 31st brought tears to my eyes....poor guy looks so scared. Praying y'all get something figured out!!! Bless his heart!!

It almost seems like he is having trouble breathing but poor mom is alarming to how bad they are getting. Prayers said that they find out what is causing this. Poor Daniel he looks absolutely terrified

@taralynneethier-southard4735

8 жыл бұрын

My 1st thought as well with the breathing. And you can see it in his eyes that he is terrified. I hope an answer comes soon.

I just want to give you and Daniel a hug. My son also has seizures, so scary. I'm praying for you.

Bless his heart💙. What a great way to show the doctors what happens.

Julie, I am sorry that your getting negative response fom some viewers. This video is the best way to get him help to figure out whats going on. Its good footage for the Doctors and his healthcare team. From watching other videos you have posted thought maybe could be frustration or anger. But watching this one. Haven't a clue! Looks scary and hope you find the answers for both of you. Blessing to you each of you!

feel so sad for Daniel...I see in his eyes that he feels afraid but luckily he has his awesome family to help him feel safe...I hope his situation gets hammered out and he dont have anymore of these episodes! Julie you have such a sweet soothing voice and i hope it gives Daniel comfort. I think Daniel has the best smile ever!!! Sending hugs and good vibes to your entire family....im sure everyone gets worried for Daniel.

I feel so bad for Daniel and especially you. If he could communicate he might be able to tell you how he feels before one happens. I use to have seizures and I had a certain feeling but hard to describe just before a seizure occurred. I pray you get an answer soon. ~~~Sandy

He's such a sweet boy. It's so hard to watch a child and not be know what to do, how to help or make it stop. Prayers for Daniel and your whole family. You are a great mom and you and your team will figure this out. hugs

This breaks my heart, poor sweet boy.. I hope they can figure out whats going on and help him, prayers your way!

I'm so sorry Daniel :( I hope some meds adjustments can help . Praying all is well .

I hope you are doing ok too. It can't be easy to watch this kind of thing. We are here for you

Omg I feel you Julie poor Daniel I hope today is so much better for him.You and him are in my prayers .

Oh my gosh , this is awful. Your family is in my prayers. I wish I could help yo in some way. I'm so sorry for these struggles

sending you love and prayers!!

Poor Daniel. I hope the doctors find a way to make his seizures stop or whatever these episodes are stop. He is so sweet I can't believe anybody would dislike this.

Prayers sent for Your family.😇💯❤️😊💐

Yeah, that definitely looks like seizure activity. You definitely did a good job recording it for Daniel's neurology team. Hopefully they can get neurophysiology (I used to work in a neurophysiology department) to do an extended EEG to make sure they catch at least a couple of episodes. Poor Daniel! Hopefully they can get something sorted quickly for you all.

@SuperMissblueeyes

8 жыл бұрын

***** Sounds like a good plan. Yeah, Daniel is a trooper. He's awesome.

thoughts and prayers and huge hugs with Daniel and you.xx

Sending lots of love to you all!xx

I hope Daniel gets the help he needs for this Its scary to see him like this. and not be able to tell you how he feels or what's wrong

At times it looks like Daniel is having night terrors. Keeping your family in prayer.

Prayers and lots of love

so distressing for everyone! and then he's back to being calm and normal afterwards! hope you get answers soon, julie

hope u figure it out soon hugs to you guys

Bless your sweet heart Daniel. Sending love to you. From Jaime & Daniel

whetever it is, i hope it can get under control. its scary to have so many so often.

I pray they can help figure this out or Daniel

Sending you all, all my love and prayers. I hope that they can figure out what is going on.

@charlesdunwell8638

2 жыл бұрын

I feel so bad for Daniel

@rickdrouillard7570

Жыл бұрын

Juile hassel berger try pull his pants down and check his diaper he might be trying to tell you that hes wet

I pray they figure out what's going on with Daniel sweet boy breaks my heart!

Poor Daniel. He looks so upset and it must be so upsetting for you to see him this way .I hope the doctors can help him be more comfortable.My thoughts are with you.

Hey it’s just Krystle i’ve so missed you guys hey I was wondering did you guys ever figure out what the spastic spazzing out was????

Julie, this was very hard to see. The fear in his eyes , when he was in bed. I wanted to cry. It reminded me of one time one of my sons had fever cramps.

@Kebse5

8 жыл бұрын

I hope they can help him. It must be so hard for you.

Poor Daniel. I hope this gets figured put

I feel as if he's being scared by something. Has Daniel had like some form of severe epileptic seizures?

Love to you all

What types of seizures does he have?

bless your heart

praying for Daniel

poor guy. I feel so bad :(

Rest in Peace Daniel

I so hope that this video will help the doctors see the seizures that Daniels having and they can put a plan in action ... Hugs Julie ❤️

The poor thing. I feel for him and you guys.

Keeping Daniel in my thoughts

Daniel... 🙁💙

Hard to watch but it is the reality. I hope this gets better

it looks he has seizures on top of cerebral palsy . bless his heart .

Along with the seizures and panic attacks, I was noticing how his tongue was a dark color. Might not have been blue, however, being dark purple or such, thinking maybe he was panicking because he wasn't able to breath very well. So he acted out for help.

@Karin-nz4el

7 жыл бұрын

Julie, other than the side effects of baclofen, it does help (when I take it). I'm so phobic with medications. but I really need to be condistant with taking this pill! The doctors have been discussing pain pumps and the baclofen pump with me. Daniel is such a trooper he is an inspiration to me(you to)! If he can do it, then so can I.

I hope he's okay

That is shocking that Daniel had all this seizure. Get well soon and for the Family power ✌️😎❤️

Aww poor buddy 😢 lots of love ❤

@fw_ajaya

6 жыл бұрын

That's good. Love is with u :)

Janie had what I believe was a seizure 2 weeks ago, I believe it was a partial seizure. I called nuerology & they believe that it was just a nightmare, but I disagree. She woke up, walked to me & tried to dive underneath my legs. (She does walk, very unsteadily, but she walks.) I picked her up & she was acting scared, looking around like she was seeing stuff, putting her hands up to her ears like she was hearing stuff. She'd calm down & then start it again. I have seen night terrors from my oldest daughter & this was worse. Eventually she got calmed down, we decided she would sleep with us. Then she would fall asleep, look up shake her head like she was saying NO, then she'd wink her eyes. She'd look at me & say I am winking my eyes & I'd say Yes, you are & then I'd wink at her & she'd go back to sleep. Did this exact thing 2 more times. About an hour later I noticed that her rear would tighten & then release & she would move her legs around like she couldn't get comfortable. She did these exact same movements every 30 seconds for an hour. And then she settled down & slept fine the rest of the night, slept until 11am. The next morning her speech was slightly off, but came back to normal by the evening. I know how scary it is when you believe it is more than what it appears it could be. And even more so when the doctors disagree that it is more.

I love it when he smiles 😊

@fw_ajaya

6 жыл бұрын

Yeah, but luckily mom's there to help :)

Hopefully they will be able to find out what is going.

your welcome Daniel is a true angel.xx

How do you know when Daniel has a seizure? Just wondering.

@tiffanypence754

7 жыл бұрын

Julie Hasselberger ok. Thank you.

Pray to God they find out what's going on

poor Daniel

I have epilepsy, and I have about 8, to 10 Grand Mal seizures per year. I would not want to live like this. Going through a seizure is the worst thing I have ever gone through in life. It's really evil to see people just stand around and get entertainment out of this. Do you think this poor person wants to live like this? There's no point in living. I speak from experience.

Julie Would u mide if I call daniel "Dan" How is he doing

My poor boy I love you so much hang in there get Strong you got a good mama taken Care of you Love you buddy send in my loves and hugs all the way from Kamloops BC 🙏🏻🙏🏻😇😇😇💜💜💜💪💪💪👍🏻👍🏻❤️💜💚🖤🐾🤩

Do all you can for Daniel, but Let go and Let God gives you peace.

It does seem like a seizure, his breathing, stiffness etc. Hoping it has improved now, he looks tired and out of it after too 😢

That looks stressful for him, try carrying a cold cloth and put it near his neck so it helps him breath/calm down.. Not sure if it'll help but it's worth a try

Poor guy u do a great job with him

Is that a seizure or no

get better daniel

I recently started taking baclofen. I'm not crazy about it. It effects everyone in different ways. It gave me a scare one evening. It's totally a safe medication and has been out for a long while. Of course you already know that. Lol My friend and myself had similar experiences with taking it. Minor hallucinations.

I would not be surprised if these are focal seizures.

Poor kid...

I wish I was there to make him happy

Hey buddy whats going on

They should hook him up the the EEG machine and when he does those episodes they can see what's going on. If it's seizure or not probably is I'm no doctor I hope they find out what's wrong

damn hope you get to the bottom of it its deffinitly a concern. a ekg while its happening could be useful same as. mri scan

I wish I was rich to donate 1m dollars to you and Daniel

@remylexington4893

8 жыл бұрын

You and me both

Omg 😭😭😭😭 seeing that look of pure FEAR omg I’m scared 🙏🏻🙏🏻😇😇😇🙏🏻🙏🏻🙏🏻 I’m so sad They need to figure out what it is and fast poor sweet Daniel 💛💛💛💛❤️❤️❤️❤️love you Daniel 🙏🏻😭’

They seem like seizures because of the way he breathes and his puples seem big and he jerks all around and makes nosies.

made me cry. have you thought of cannabis oil at all? seems to be working for some and not others. one side effect that is not common is aggression.

we friends

Hi juile i don't like seeing Daniel like that I hope he will be okay are you going to call some of his Drs so they can look at him and see why he is doing this diffident behavior I am not trieing to be mean about this I just what Daniel to be okay i love all your videos about you guys and Daniel

@SuperMissblueeyes

8 жыл бұрын

I understand your concern. It's difficult seeing someone have a seizure, especially if you're not used to it. Julie put this video together so that Daniel's doctors can see what she's talking about. The team of doctors that Daniel sees will want to do tests & when they see this video, it will help them to know what to look for.

Don’t you worry Danielle your mom is going to get it fixed right out I know that 👍🏻👍🏻🙏🏻😇🙏🏻😇

:(

Hi, new sub here. have you tried CBD oil? it works wonders on many people.

@SkyValleyStuff

8 жыл бұрын

***** yes, for sure worth asking about. i dont know a lot, but i do know that ir repairs connections in the brain, like alzheimer's for instance. Maybe if the connections were "oiled" better, then there might be less malfunctions? Im not very good with words, i hope you know what i meant :P

You need but hime in 2 nappies because he has but is hands back of is bum ok

I dill with autism i now your soon cot spike if he dons that you need chake hime. Out of is cher and lien hime down on the full and restran him and do you need a adult baby chagrse