Thank you for sharing , I am struggling and have had two infusions . Fatigue and back pain has been bad and my quality of life has gone downhill . I have gone from working and walking in my lunch breaks to staying home and feeling exhausted 😢 it’s been tough. I don’t want to get another infusion as l felt so much better before the drug .

@dianebright2441

3 ай бұрын

Wow. Same

@mybachhertzbaud3074

Ай бұрын

I can certainly relate. I was given the DX of ppms ,shortly after doctors advised me to try some injections of something ,I found out later was NOT approved for use other than for rrms. I was at that time still working and the shots made me feel like I was close to death. I have since taken nothing but meds to help with pain for years now and unless I see some actual miracle drug appear, will continue to do so.🤔Hang in there and avoid having "The Farce be with you" 😜

Exactly what I want to hear, thank you

Keep working out. If u fall strength will protect u. I’ve fallen a few times over 16 years.

I also was diagnosed fairly recently, just over 6 months ago, on my second dose of Rituximab for now (given once every 6 months). I had new activity on my 6 month scan after 6 months on the treatment. I do notice that after the second treatment I rebounded much faster, not nearly as exhausted and my ms symptoms have died waaaaay down. Hoping your MS calms down as the Ocrevus kicks in, it is annoying how slow these DMT's take to work, but grateful to have something to do to fight the MS instead of nothing. Sending you healing thoughts! Thanks for sharing your experience, I find watching others go through this helps me have more grace to deal with MS.

@LiiBorossy

Жыл бұрын

Thank you Laura for taking the time to comment! I feel the same, I wish I had someone to follow that share their every day life with MS. Someone to relate to I guess. You gives give me that when you share your stories with me though. I appreciate it very much. So did you start treatment directly after getting your diagnosis? How hav you been dealing with everything emotionally? (If you don’t mind me asking). I’ve find my ways of coping but sometimes it’s hard to stay positive. But routine is super important for me.

Thank you for posting your experience. This is helpful.

@LiiBorossy

8 ай бұрын

Thank you for watching 🙂

Glad the side effects aren’t toooo bad.

@LiiBorossy

Жыл бұрын

Absolutely. 🤗🙏🏼not so bad. I’m very happy about that.

One month after part 2 of first dose I got shingles so bad I could barely walk. Tachy heart rate and 39.9 fever. I’ve never felt so awful and I was relatively stable before. I’m seriously considering stopping the treatment.

@LiiBorossy

Ай бұрын

I’m sorry this happened to you. Sending you strength ❤️

Do you have RRMS? I were diagnose with Primary Progressive MS first symptoms begin a year and a half ago at the age of 60 I'm in Ocrivus myself and is like another day to me, it doesn"t do anything but stop the progression o so is what dr"s say.

@LiiBorossy

3 ай бұрын

Yes I have according to my neurologist a “highly active and aggressive form of RRMS” before I started Ocrevus my attacks were about 5 months apart. Leaving me with active new lesions each time. But thank goodness for the fact that my last MRI was “clear” from any new lesions. 🙏🏼 So treatment is working so far🤞🏼

I want to give you a raw and honest update on how I’m doing after my first infusion with Ocrevus. If you want to share your story and experience I would love to hear from you. 🎗🧡

What’s wrong with hair?

Are you able to switch to Copaxione? I'm still waiting to see, this Ocravus, will help me. I think they need to Wait for your stem cells, to grow.

@LiiBorossy

Ай бұрын

I will try and get myself a second opinion. I met a doctor when I was admitted to hospital this week who told me where to turn.🙏🏼 Such an angel.

@Quietly-David

4 күн бұрын

Nevermind, never go back.

I'm worried my son started Ocrevus age 15 . He said he has been fine i will keep a close watch if that changes.

@LiiBorossy

Ай бұрын

Always keep an eye on him. But trust him if he say he feels fine. ❤️

@magz6763

Ай бұрын

@@LiiBorossy Thank you.

I fall asleep a lot.

@Quietly-David

Ай бұрын

Unfortunately, I always went to bed late, and got up early. Wish I could just sleep.This was a constant for year's. Had to go in early, on Monday, all the Time. Hated loosing an hour so the boss got the things DONE, so he didn't have to sorry as much. Still sucked having to go in early on Monday.

Que guapos sois !!!!!! Mi pobre churri y esta porquería de enfermedad....no sé cómo puedo ayudarte😢

@LiiBorossy

Жыл бұрын

Just be patient with me and help me rest when I need it.❤️

Thank you for sharing , I am struggling and have had two infusions . Fatigue and back pain has been bad and my quality of life has gone downhill . I have gone from working and walking in my lunch breaks to staying home and feeling exhausted 😢 it’s been tough. I don’t want to get another infusion as l felt so much better before the drug .

@LiiBorossy

3 ай бұрын

I know it’s hard. I find the recovery period after is longer each time but I have faith it’s helping some..🤞🏼 Keep trying to move your body. Exercise is the only thing that can help my symptoms somewhat. Sending you lots of love ❤️