My wife has stage 4 adrenal cancer

My wife was recently diagnosed with stage 4 adrenal cancer. Here's our story.
If you want to donate to the American Cancer Society through Bailey and my Disney Princess 5k team, here's the link: main.acsevents.org/goto/team_s...
Child's Play is another great charity to support: www.childsplaycharity.org/
Chapters
0:00 Intro
3:55 Us
18:54 Getting the Diagnosis
1:07:29 Treatment
1:29:09 Immunotherapy
1:41:24 Comments and Advice
1:51:21 Weird Emotional Stuff
2:17:58 Outro

Пікірлер: 33

  • @cheezyquackers3981
    @cheezyquackers398112 күн бұрын

    My husband was diagnosed with malignant melanoma in 2001. Two years treatment, lots of surgeries, heavy chemical treatments and lots of radiation and diet change he is still here very alive. We celebrate our 54th wedding anniversary in October. There is always hope. God bless.

  • @nmikloiche
    @nmikloiche7 күн бұрын

    I have no idea who you are, I have no idea why you appeared in my feed, especially since it appears that your typical content focuses on all things I detest; that being any media classified as fantasy/sci-fi, I refuse to read or watch anything featuring dragons, hobbits, trolls, sea monsters, time travel, light, lightsabers, magic spells, wizards, etc. However, I am obsessed with disasters and stories of how the struggle breaks you and builds you. It magnifies our complexities, how we are frail.and resilient; hopeful, and fatalistic; confident and ashamed; invigorated, and apathetic. Rarely does a story capture the authentic tension that is both ripping you apart and growing you. You are a marvelous storyteller. This took a lot of bravery and I thank you for going there and for sharing it with us all.

  • @marchendrickson3129
    @marchendrickson31296 ай бұрын

    Good luck with everything. Don’t know how the algorithm knew about this video, but my wife recently passed from Stage IV ACC two weeks ago. If Fred Hutch doesn’t have any other treatment options reach out to MD Anderson. Their adrenal team was amazing and gave us access to clinical trial drugs to try and fight until the last week. They team up between multiple oncologist departments to provide wonderful care. Good luck again. I hope you and Bailey beat this. Reach out if you need any help in the future. -from Missoula, MT

  • @thelukepillar

    @thelukepillar

    6 ай бұрын

    Like some others have said, it feels weird to "like" or "heart" this comment, but I really appreciate you sharing here. I'm so sorry to hear about your loss and I hope you're doing... as well as a person could, under the circumstances. I keep trying to think of what I'd want someone to say to me if I wind up in this position, but I really can't think of anything. I wish I could help somehow. We have nothing but good things to say about MD Anderson, they've done a fantastic job for us (Fred Hutch handles our day-to-day meds and facilitates infusions, but MD Anderson coordinates our plan.) I'm glad to hear that we're at the right place. Thanks again for sharing.

  • @jonathanoneal3915
    @jonathanoneal39156 ай бұрын

    Feels weird giving thumbs up on a video like this, but hope you are both doing as well as you can. Still about half way through the video.

  • @eksh6923
    @eksh69236 ай бұрын

    I just want to hug you. Wish you the best luck. I hope, this comment won't disappear again, as a few previous ones.

  • @Drikkerbadevand
    @Drikkerbadevand6 ай бұрын

    crazy you only have 231 subscribers, the quality is so good

  • @ATHLETE.X
    @ATHLETE.X6 ай бұрын

    Very heavy situation you’re dealing with. Arguably, the heaviest of situations. Stay strong, hopeful, and grateful for each other, as I’m sure you will.

  • @thelukepillar
    @thelukepillar6 ай бұрын

    I found that roll of medical tape! It's "Safe n Simple" silicone tape. Again, I'm not in the medical field, so don't take my opinion on this too seriously, but this is the only wound dressing tape we found that didn't irritate Bailey's skin at all. I have no idea where the best place to order it is; I just got it from a nurse.

  • @_.paprecum._8902
    @_.paprecum._89025 ай бұрын

    stay strong

  • @smokypies
    @smokypies6 ай бұрын

    Thanks for sharing your knowledge and experience and putting in all the effort to make this video happen, for talking about the unexplainable. You and Bailey have evidently created a magnificent partnership. Wishing you many more moons together.

  • @_Squiggle_
    @_Squiggle_6 ай бұрын

    I don't know what to say except I really hope everything gets better for Bailey and you. I am really moved by your loving dedication to your spouse. I wish to be as dedicated when I enter a long-term relationship I don't know if you're religious or if you would appreciate this but I am praying for you. I can't not

  • @thelukepillar

    @thelukepillar

    6 ай бұрын

    Under normal circumstances, I'm not all that religious, and I don't expect that this experience will (re)convert me... but I will admit that we had prayer chains going for us leading up to our good immunotherapy results, so, yeah, we'll definitely take all the prayers we can get! Thank you!

  • @_Squiggle_

    @_Squiggle_

    5 ай бұрын

    I recommend people try religion. You don't have to jump into the deep end, but maybe dip your toes into it a little bit. I just know religion has made my life so much better that I really just want to recommend people try it

  • @curbthepain
    @curbthepain6 ай бұрын

    Hey, stay strong, and know you aren't alone in this fight. My mom was diagnosed with stage 3. She's not really responding to chemo at all. But hopefully she pulls through. I hope the best for your wife and you. No one deserves to have their life or relationships cut short.

  • @thelukepillar

    @thelukepillar

    5 ай бұрын

    Best of luck for your mom. For us, the first course of treatment didn't seem to do much but the second medication has worked well so far, so don't give up hope until you're out of options.

  • @davidstrom722
    @davidstrom7225 ай бұрын

    Wonderful Documentary

  • @managerialelitetoaster3456
    @managerialelitetoaster34565 ай бұрын

    Also I'd look up a book called Cause Unknown by Edward Dowd.

  • @ThyMushroomMaster
    @ThyMushroomMaster5 ай бұрын

    FUCK CANCER ! I just stumbled into this video but I wish you all the best my man, what a strong soul you are even speaking of the topic. I dont even have a wife/girlfriend but I have felt love, and I cant even fadom being through that situation, didn't except to get emotional. You are incredible my dude! I send you all my best wishes to you and your Wife!! Keep being strong, keep the support, and ignore the stupid comments. Nobody feels the pain when they don't have to go through it, they don't understand, pure ignorance. Much Love ❤ 🇵🇹

  • @OriginMontage
    @OriginMontage6 ай бұрын

    This is a wonderfully candid piece of video. Thank you for sharing it with us and all the best to the both of you!

  • @managerialelitetoaster3456
    @managerialelitetoaster34565 ай бұрын

    Look up Dr Thomas Seyfried.

  • @Silks-
    @Silks-6 ай бұрын

    HappySad. I like your way of telling the story, a lot of people try and subconsciously make it about themselves, and have this sensationalised act of ultra sadness. You have a way of portraying such love, affection and honesty. Great video, take care

  • @pinnacleexpress420
    @pinnacleexpress4205 ай бұрын

    From one guy who thinks he knows a thing or two about love to another, you have my utmost respect. I watched 20 minutes. I cried. Your delivery of such incredibly heavy subjects in such a calm yet.... implicative manner is admirable. I dont know why this was recommended to me, but there are more dire mysteries. I pray that the good in humanity prevails and no greedy piece of shit pharma head stops our brightest minds from finding ways to save your wife and people like her. I dream of a world where love can flourish unhindered by disease. I think people, Americans anyways are waking up to the fact that the deepest possible connection is everything. You found it. To have to lose it, so early, before there was any sight of feeling encumbered by it all.... Man, I cant imagine. I dont want to. My last girlfriend absolutely ripped my heart out, and I barely knew her. But we went through some intense shit together, and formed a tight bond. And I know that if I had spent 10 years with her, it would be 10 times as bad. It's very rare to hear of relationships failing past 5 years or so. But to go that far and NEVER. GET TIRED OF TALKING. NEVER. STOP CRAVING THEIR INTERACTION....Man, it's my dream. I wanna see honest love flourish, and I want a piece of that pie too. Youre a legend man, and if you ever lose your way, just think back to that one episode of AoT where the bitch (Mikasa) decides that the world is too fucked, that fighting isnt worth the pain, and that she couldnt make a difference anyways, as she hung her head, admitting defeat in front of a monster. That is, until her body had other plans. The monster was ready to kill her. She couldnt fathom it, but for some reason, virtually against her will, one of her legs kicked down hard and threw her out of the way. Literally just putting one leg in front of the other for a single day is all it takes to give the old adage time to ring true, that time heals all wounds. It worked for Mikasa; that simple bodily action of putting one leg in front of the other gave her mind time to credit itself properly and realize that she was still strong. I've had some lows. But you know what, life was meant to be a rollercoaster. If you're at an all time low, then a statistics major smarter than me could tell you that the odds of sinking any further are negligible. And if you can just put forth the negative amount of effort that it takes to put one leg in front of the other, you will figure it out tomorrow. And if you dont figure it out tomorrow, then at least you will feel a little better, and you'll start putting one leg in front of the other a little faster, and pretty soon, you'll be running to new horizons. Look at how creative you are. The way you talk about the relationship you have with your wife defines creativity. And given that honest love is a two-way street, I already know for a fact and beyond any shadow of doubt that you are bright enough that you will figure out what to do, if you just give it time. *alt+3 except it's still ASCII*

  • @mariotaz
    @mariotaz5 ай бұрын

    Oh wow. Tough

  • @motherofallemails
    @motherofallemails6 ай бұрын

    In case she took the mRNA shot, maybe check the igg blood levels particularly igg4 and spike protein levels, if they are high, there are things that can be done to restore the immune system and hope it starts to fight back the cancer, in case that's what got compromised, rare cancers are known to rear up in immune system failures. I'm not a doctor or oncologist so please ask their advice, I just do my own reading and other research on this distressing stuff. Sorry the authorities are completely failing to do any studies as to whether the shots are related or not, it's baffling that they even suppress and discourage own research which might stand a chance of saving somebody somewhere.

  • @John-nb6ep
    @John-nb6ep6 ай бұрын

    Nice phantasy star poster.

  • @thelukepillar

    @thelukepillar

    5 ай бұрын

    It's a bit wrinkled now, from years of hanging on my wall without a frame. It's from the Versus Books guide!

  • @anonymouslyopinionated656
    @anonymouslyopinionated6566 ай бұрын

    man i wanted to check in but didn't wanna ask. :/

  • @UNTER_nedochelovek
    @UNTER_nedochelovek3 ай бұрын

    такое ощущение что смотрю документалку по SIGNALIS или silent hill 2

  • @hermanios2152
    @hermanios21525 ай бұрын

    genuinely what the fuck is that thumbnail!?!??!

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