My POTS Diagnosis. Story time!

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Here to share awareness on autoimmune disorders and medical gaslighting! Like and subscribe... Also Do not own any right to music didn't realize you could hear my daughters iPad faintly in the background. If this gets removed, I will edit the audio out and re-upload. #autoimmunedisease

Пікірлер: 8

  • @benrhodes534
    @benrhodes53416 күн бұрын

    Your story is very interesting. I have watch a few streams and now I'm intrigued to get to learn more. Imo women look better with no make-up.

  • @benrhodes534

    @benrhodes534

    16 күн бұрын

    For me music always helps check out "Pressure" by Rare of Breed. He is one of my fav

  • @benrhodes534

    @benrhodes534

    16 күн бұрын

    Sorry wrong song try "for me" by rare of breed

  • @lexybb2061

    @lexybb2061

    15 күн бұрын

    I appreciate your support 🥰

  • @christinawentzel9624
    @christinawentzel962414 күн бұрын

    Trying to get my daughter diagnosed with something right now. We’ve been on this journey for 6 years and they still haven’t found answers, but has a lot of the same symptoms including dizziness, fatigue, increase heart rate and blood pressure for long periods of time. She’s seen ENT, cardiologist, and psychologist so far and all say she is fine. Heart monitor was only over a weekend so they didn’t catch anything. The only thing that happened was she got dizzy during her exam while going from laying down to sitting.

  • @lexybb2061

    @lexybb2061

    14 күн бұрын

    It takes a long time! I’ve seen some people not find out they have an autoimmune disease for years! You can always try ordering her own test instead of relying on a doctor like I did! I also get tremors which was is a symptom I forgot to mention. Best of luck! 🥰

  • @mrsks5399

    @mrsks5399

    14 күн бұрын

    Does her heart rate increase by at least 30 points from sitting to standing? Does her blood pressure change from sitting/laying to standing? I've been to all of those doctors too and they gave me the run around. Found an awesome POTS/EDS Doctor and he knew exactly what to look for and what was going on. Salt and lots of water help somewhat but still not enough to where I don't need my propranolol. Good luck!

  • @christinawentzel9624

    @christinawentzel9624

    14 күн бұрын

    @@mrsks5399 This I don’t know. It’s information that is relayed from her school nurse when I have to pick her up from an episode. The last time the nurse had said that my daughter had been in her office a while probably 30-45 minutes and her heart rate was still 130’s while laying down.

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