Mary, my Dad used to always sing a song called Yellow Bird, so I bought your Yellow Birds and framed it and gave it to him as a Christmas gift last year. Then at the end of February my Dad was admitted to the hospital. He was having such a hard time. He was up all night and I left the room for a few minutes to talk to the nurses. It was about 5 in the morning and I came back into the room and the nurse and I were relieved to see he had fallen asleep. Not wanting to wake him I went and laid down by the window. The sun was coming up. I decided to watch your vlog to unwind. It was March 2nd. It happened to be the vlog where you were practicing singing Hallelujah for your friend who had passed. I listened to it over and over until I fell asleep. An hour later the nurses woke me and told me my Dad had passed. I now realize he was gone when I came back in the room and thought he was asleep. You were singing Hallelujah as he was on his journey into the arms of a loving and gracious God. As sad as I am and as much as I miss him you touched my life in a way you will never know. Thank you.

@crystalcroft8318

6 жыл бұрын

Cindy Lomax I'm SO sorry to hear that your daddy passed away. Mine passed last July 26th 2017

Just a cute thought but, you guys should put Oliver's foot print on some merchandise.

@jadeswrapsandbraids

7 жыл бұрын

Victoria Rachuj agreed

@NewlandChronicles

7 жыл бұрын

What a fun idea!

@SweetPea112

7 жыл бұрын

Oh, GREAT idea!

@hajarchamseddine7554

7 жыл бұрын

Victoria Rachuj i liiiike it !!

@victoriarachuj121

7 жыл бұрын

Hajar CHAMSEDDINE thanks I really think that would be great for all us Ollie fans.

I have a 1970's octagon end table next to my bed. There is an IKEA mini-dresser on top of it, with my test strip pill refills. My APAP machine, hose and mask are in the bottom of it. The APAP replacement supplies and extra syringes are in milk crates on the shelf in my closet. I have a bathroom/snack tote from the Dollar Tree that holds my combler, my inhaler, my blood pressure wrist meter, my glucometer, and a small cosmetic type container which holds my open insulin vials and enough syringes for one whole day. It also can hold a bottle of water... I have a "secondary" station, which is in my living room, where I have a container of loose syringes, a little less than a weeks' worth, to refill my little container. The tote has a spot there, too. When I need to go out for errands, I can just grab my meter, combler and syringes, and inhaler, and put them in my purse or pocket . I put them back in the tote when I get home. It works. Considering the small space you have in that room, if it were me I'd get some of the wall-mounted Lack shelves from IKEA to put things on. They don't take up floor space. Then I'd try the nebulizer and vest equipment on the rolling cart, if it will hold them...

You guys should make " do what you think you can't do" phone cases! Those would be awesome!

@l.tacchetti4180

7 жыл бұрын

Allie Child yess but for iPod too

@NJSMKMMS

7 жыл бұрын

or Ollie water colour or bumper stickers with The Frey Life on them.

@nicktheveganchick

7 жыл бұрын

Allie Child I think that would be good. Everyone can related to that!

I've seen people use spice racks to organize their meds. I have yet to find one that fits into our med and formula cabinet. My kiddo with a J tube is non-verbal. It's been interesting to hear your perspective, Mary, as she can't tell me when she's in pain or how it feels. Thank you. I have told people in the past I think she's hurting and I'm told oh it shouldn't hurt and here you are saying sometimes it does hurt.

I love "Ollie Eyes". He is so expressive with his eyes!

@sallytheseeker9358

7 жыл бұрын

Wendy So funny. Was thinking the exact same thing. 😁

I wish we could clone Peter so we could all have one❣ Love you guys always❣

@2listening1

7 жыл бұрын

And clone Ollie too, lol! :)< ^,,^

@juliemoody6208

7 жыл бұрын

2listening1 b

I bet that spinning on the bar in your Dad's truck may have pulled that muscle. I was yelling at the tv "No Mary No". I am happy it feels better now. I love all three of you and after having three strokes I am always thinking, do what you think you can't do. Thanks so much for all you do.

my husband put up floating shelves for all of my medications and hanging baskets underneath for the bigger supplies. That method had worked for years for me and keeps everything in line and organized and order but takes up no floor space! Just a thought 🐶

Ollie has got to be the coolest poodle dude on the planet. Just love him!!

For all our meds and medical supplies I use the concept of "a place for everything and everything in it's place", keeping them where they are most used (bedroom dresser) AND, I also made a habit of either putting everything in it's place immediately after use OR I have one day a week that is for putting things away. Looks like you have a place for things, stuff just piles up with use, so maybe setting aside one day a week that you put things back in place (but you were doing that on this day ;) )

A tub that slides under the bed might be a successful solution to organising all of your medications

The way Ollie was laying on the chair when you were exercising was just priceless 😭❤️

You guys should make Ollie stuffed animals

You can put some shelves there on the wall - then some organizer cubes to store and conceal

I use a shoe organizer that hangs on the back of the door for all of my son's medical supplies. It works amazingly!!!

I put l my meds on a shelf that hangs on the wall. You can make them easily with a couple of pieces of wood (if you have the measurements when you buy the wood, most home improvement stores will cut it to whatever size you need for free) some wood glue, screws, couple of brackets. You can paint them, leave them plain, whatever makes you happy. Then you can have a shelf with whatever length, depth or height you want/need. if you add an extra, smaller piece of wood to the front of the shelf to form a "lip" so the bottles won't fall off the shelf. One down side is you can see how many meds you take which can be stressful at times but it also helps sort the meds out and you can easily find whatever you need.

Mary I would like to make you a crocheted shawl,I understand why you have to be careful, but if I could mail it to your mom or someone that would wash it then send to you. I'll pay for the mailing on to you.

@TheStephandSteveShow

7 жыл бұрын

awe that's so sweet

@shelbijackson5829

7 жыл бұрын

I'm sick but not as much. No one says anything or makes anything. I made myself a card and was so happy. This comment gives me happiness

@rae1957tn

7 жыл бұрын

Shelbi Jackson well if you give me your address I'll make you something too.

@jaydamclaren7257

7 жыл бұрын

rae1957tn message their Facebook page with your offer! best way to get a hold of Mary and Peter 💜 you're so kind!

@katiehobbs5165

7 жыл бұрын

Send them an email, they would probably notice that more than the 200 + comments that are on just this video.

YES! An empty shelf always fills up full of medical stuff!!! My storage is-I do shelves (like book cases), bins (like the clear tote/storage bins), and “smaller” storage caddies (like 10 or 12x6 inches approx.-some smaller, some a little larger-like the storage caddies you can put 8-12 pill containers in, that sort of thing), and of course boxes of heavy and bulky stuff like catheter night bags, sterile procedure packs-(they go wherever I can fit them!)-which are SO bulky-and have to stay in the box until I need to use them! I work it similar to you!!

I like the medicine cart bedside. suggestion...maybe a daily am /meds separate boxes or baskets with dollar tree containers, maybe because I think it's dollar tree haul time again. Try Pinterest for ideas.

I have a "not a system" for my meds 😅 I always think I have the perfect one figured out, but then it explodes within a week. I have no clue how it happens so quickly 😂

Mary your such an inspiration to me. I'm 48 years old and I have been working out with a personal trainer for months but exercising for a year and a half trying to lose weight and be healthy and when I think that my body can't do something I repeat to myself "Do what you think you can't do" I know it may be weird to say but I love you both so much because your so positive and mature for your age. I love your Vlogs and I just continue to pray for your health and strength Ms. Mary and Peter I pray that God continues to give you wisdom and rest while caring for Mary. You are both so blessed to have each other. God Bless You today and every day.

I love how much you two love Ollie. It made me tear up today while watching your video. He's so special. Thank you for loving each other and Ollie so well. God bless TFL. ❤️❤️

My order?! I'm so excited to get it!!

I remember you first mentioned the sore muscle the day after you played on the bar in your dads truck.

thank you for being on KZread it's refreshing to get nice clean content and not have to worry about what you might hear so thank you so much for being on KZread

the coolest thing about you two is the way you can take a long boring trip and make it fun you dance sing and just enjoy being silly with each other you remind me of my mom and dad and they were married for 58 years they were like you two they were silly and just enjoyed life thank you to the both of you . my dad passed away last year and my mom has Dementia so all we have now is the great memories our parents left us with and you two just remind me so much of them keep up the good work and keep on laughing every day :)

To organize your meds, what about a tall, narrow shelf (like from Ikea or even a bookshelf?) Then you can put your vest in the bottom of it and get some of the bins to sort your meds and other items. Then label all the bins to help you remember what goes where. :-) As I was watching today's video, something else stood out to me, and I wanted to comment on it as well. Mary, I don't know how you stay so positive when you're in pain and not feeling well. I live with chronic pain, and I struggle with remaining positive. I try, because I know my attitude affects my family. But, it's still so hard when I hurt so badly so much of the day. I very much admire your ability to stay positive. And, I love the way Peter supports you. The two of you both exude the love of Christ by the way in which you genuinely care about other people. And that is such a beautiful thing to see!

Oh Ollie boy, yes you bring such joy :-) and Mary and Peter, you also bring such joy!! this looks like a very productive vlog, you should feel like you've accomplished a lot! love and hugs to the 3 of you, see you tomorrow!!

I've been feeling extra ill this week and haven't had much to smile about today, but when Peter and Ollie came on screen and Peter said he and Ollie looked alike I laughed! Thanks guys!

First of all, I want to say that I have tried to organize my medical supplies for years, but have yet to come up with a perfect solution. My meds are primarily in my bathroom, set up on several shelves to keep them organized. My braces (I have dozens for EDS) are organized in my closet, at eye level so I don't have to rummage or use a step stool. My nebulizer is set up on my nightstand with the supplies inside the nightstand. Annnnd my other supplies are just kind of tucked in random places, usually where I use them the most. It's hard to keep it all in one place! Second, I got my whale shirt, 8×10, stickers, and wall decals-- and I love them so much! I've gotten so many compliments on my shirt from complete strangers. Then I get to talk to them about where I got it and what CF is. Awareness win! Lastly, I am so glad I found your channel! Thank you for letting us in to your everyday lives. It isn't easy, but helps so many people for many different reasons. For me, I like to watch because I am inspired to thrive despite chronic illness, and to keep showing God's love to all. It's exhausting to spend your days feeling like you've been hit by a truck. But, after seeing how you guys live your lives with joy and purpose, I feel like I can do it too! I pray that I can someday find someone like Peter! For now, I am just trying to follow your example. I have been blessed beyond measure in my own life, and I focus on that rather than my hardships. I guess I like to think of my illnesses and struggles as something I can use to share God's grace. Anyway, thank you for your channel! You guys are awesome!

Today in the beginning, Mary, you said that you don't feel wonderful but not horrible and that you just go with it and call it a victory. Without thinking, I just blurted out, "Amen Sister, me too". :)

I think you two are so perfect together. Prayers for you both.

Mary - What about another cubed shelf next to your bed - or shelved book case .... then you could have it all on the shelves - even have containers that are labeled like the cubed storage drawers - a different colour for the different supplies - Just a thought - could also have the nebulizer on a lower shelf then too ...

I finally had to convert one of our guest rooms into a medical supply room. When I just had tube feeding, we supplied all of the supplies behind the couch near the kitchen, but when I was put on TPN and tube feeds my supplies like tripled. So there are some three shelf shelves in the guest room right next to me, so I decided to put everything in there in a nice organized manner. On the top of the shelf, I have a bucket of my medications and my daily pill organizer and my liquid med. Right next to I have a bucket with my sharps container, TPN mat, and hand sanitizer. On the first shelf of the unit I have all my boxed products like alcohol wipes, heparin and saline flushes, and gloves. The second shelf has in the first bucket my IV tubing, needles, and syringes, in Ziploc bags. The second bucket has dressing change kits, IV extensions, claves, bio discs, and PICC line sleeves. The last bucket has batteries, charger, a thermometer, and some other miscellaneous TPN items. The last shelf has 3 buckets as well. The first has formula all lined up and ready to grab, the second bucket has syringes, face tape, and skin prep, and the last bucket has 500 ml feeding bag. Then right beside this unit I have the extra 1000 ml bags and 500 ml bags in the boxes they came in and the extra formula in the boxes they came in all stacked up. I also have the extra backpacks I have right beside that.

I have an entire three drawer nightstand dedicated to medical stuff. Top drawer is my combler and sleep meds, middle drawer is all my supplements and PRN meds, bottom drawer is BP cuff and heating pads!

I'm thinking just a small bookcase beside your bed would help you clear that cart up. Just have more space to spread it all, it doesn't need to be organised. Would that be good enough? Another idea I had would be to find some sort of table that your vest machine can sit under and put a storage drawer/small shelf system on top of the table?

Maybe get a shoe organizer and hang it on the wall next to your bed. Fill the slots with what you can and labels. Then just keep a small table or even your cart for the things that won't fit in the organizer slots. :)

I love hanging one of the shoe organizers on my wall to help keep things in their place. The hold bottles and other items perfectly and you can fit a lot in them.

I have two plastic containers from Target. One sits on my dresser for daily or frequently used PRNs. The other sits on shelving in my room for stuff I don't need as often. I know I don't take as much medication as you but this is what I do which works for me!

Just a thought for organizing your meds and such beside your bed, maybe you could get a little cubby type shelf to hang on the wall. That way your cart can still got under it and all the extra stuff will still be close but out of the way. or maybe some cute crates anchored to the wall.

Yay new vlog!

I just need to come organize the meds for you. Lol. My O.C.D. went crazy seeing the cart. You are so sweet and strong , dealing with so much and keeping a smile and great attitude.

Hey guys hope you are doing well. Keep on keeping on.

Olly is soooooo CUTE!!!😍😍🐕🐶

Hey Mary and Peter! I'm glad those stickers are back in stock! I will have to get some along with a phone case:) Thanks for making me laugh a ton today, with those lyrics you made up with that Spanish song, and p.s you're not alone on not knowing any of the words haha:)

caught you on the upload!! good morning!!

Hi you guys! Wow, 60 'degrees, you are lucky! My husband and I are boiling alive! It was 106 ' degrees here in Virginia beach, VA.! 😨 Great video! ❤ thank God for Air conditioning!!! ❤❤ I bet petting little "Ollie" is SO cool, with his little fur! 😊 you guys are just so perfect for each other!! 💖💖💖💖💖

I have an IVIG bin, current med bin, and old med bin. I also have a PT equipment area. I made an LLBean day pack into my infusion bag and it also works as a hydration system.

IKIA SHELVE MIX AND MATCH UNITS - narrow type drawers plus Bin cubbies for larger equipments

I love the way you always work asa team thx for sharing your lives.

You guys are great! love you guys and Ollie !!

I would say put any pill in a pill case because that definitely saves space

I haven't commented in a while but I just love your vlogs. Your smile and love for life and others shines through amidst the struggles. Thanks for sharing your days with us! -Jessica

I currently take 9 meds daily (more if I have pain). I keep my bottles in a zip lock bag in a drawer and refill my daily meds container every Sunday. Only 1 bottle stays on my nightstand, and that is the med I take at bedtime so that I remember to take it. It stays right side up on my nightstand until I take it. Once I've taken it for the night, I turn the bottle upside down so that I know I've taken it. Maybe for your pill bottles, since they are so large, you could get a vacuum sealed bag to keep them in. I also have a separate box for my pain meds and antibiotics. I know what it's like to have to store medication! I bought pretty boxes at Michael's (I'm sure Hobby Lobby would have them, too) and that is where I store pain meds and antibiotics, and everyday pain relievers (Advil, etc.). Maybe something like that would be pretty in that corner. Love you, guys!

Those 3 cute little drawers that are made into the wall by the window would be great for meds. Also you could put child locks on them when your sweet nephew visits. We have what is suppose to be a closet system with wire shelves and wire bins we put up by my son's bed. It's filled with respiratory supplies, neb medicines, and all shelves all in the bedroom full of other medical supplies. Baskets in kitchen cabinets full of meds. I would love to figure out a perfect system!!!!

I keep all my medicine in my hall closet in organized cube squares. Idea! I would love to see like a stuff Ollie toy or even a neck scarf Like Ollie wears in your online store.

I use a two drawer file cabinet beside the bed for my CPAP equipment and oxygen supplies. It works great, except that I'm kind of a clutter person and so I end up with boxes full of stuff beside it too. LOL

You Guys are sooo inspirational and amazing!! Me and my Family LOVE you guys sooooooo much!!!!❤💙💚💛💜 P.S Mary where did you get your leggings I LOVE them!!!

@lauragadille3384

7 жыл бұрын

Ruth strovicke she gets most of them from Walmart

Ollie gives the HELP look 😆8:01

Why not have a smaller cube organizer with more shelves but smaller right next to your bed and then get your vest back on your cart. You could hang the shelves in that space to... Just a thought.

hi! love your metal baskets on the wall, so cute! Wishing you the best! Love from Hyrum, Utah

I put the bottles in a cube, and once a week I put them in 7 day pill boxes. The exception is one I take separately. Everything is set for 4 times a day and I don't have to fix everything every day. We used this method for my brother as well, and I think he had more than you.

I have several baskets with meds. One for the meds that are opened one for with all the closed ones, and one with metamucil. And a big one for the emergency kit

I just have one designated spot for everything, a corner in the kitchen. The below cupboard for all my boxes of bags/syringes and other bigger misc items. The drawer for all my feeding tube extensions, little syringes, gauze and tapes, small medicines like triple antibiotics, and other misc items. Then the top cupboard is just all food and a few bigger medicine bottles like my motrin and my allergy meds. Also travel insulated bags I use for packing up food for an outing or trip. And then I leave my inhalers for my asthma on my desk by my phone charger so right when i get up i check my phone and take my meds. And then my oxygen concentrator just sits in the living room with a long tube that reaches all around the house. CPAP just stays by my bed.

Meds solutions for me is the large plastic bins drawers. It does hold most of my stuff.

Ollie is perfectly blending in with the carpet :D

it's hard to pick a favorite part of Ollie but his eyes are so liquid beautiful and deep... that nose is so funny and cute... it makes me smile 😊

I do the comblers then keep all my meds in a tote inside of a cabinet! But I always have issues finding a good place to keep my nebulizer!

when my mom had cancer (she's in remission now) she had so many drugs! about as many as you do Mary but our system of organizing them was a giant bag. it was a big fabric produce bag that we called the "drug bag" probably won't work for you guys but it worked great for me when I was taking care of my mom ❤

You should do a video on all your medicines and how you organize them

What about incorporating a desk top from IKEA into your office desk system? They have them in white so it should fit in and give you more leg/work space.

daily love!💚

I have a cart system too that ends up looking like Mary's until I get tired of looking at it haha

Like I mention I keep my ostomy supplies in a medical drawer,with gloves,skin cleaner,special was cloths and hand towels.and disposable garbage bags.

I try to keep my meds organized, in different pill bags, cases, boxes, etc., but it usually devolves into chaos

Mary, can you update us on your feeding tube situation? It seems like you are taking more and more days off. Has your weight/appetite been good? You seem to have a lot of extra formula too! Wonder if you're not consuming it as much as I guess the home care company expects/pays for?

@yanickabarbara2482

7 жыл бұрын

At first I thought the people complaining that she had an eating disorder were kind of out there, but they caused me to pay attention and go back and watch some old vlogs. She really seems to have a problem. I hope someone helps her before it is too late. She scarcely uses the tube.

@helenj8963

7 жыл бұрын

shortysax she can't eat at times, people with cf have malabsorption issues so they struggle to gain weight so a lot of cf people have g/j tubes

@helenj8963

7 жыл бұрын

mark tackett what the?? Im stating I said nothing about her meds 😡

@shortysax

7 жыл бұрын

Whoaaaa...let's all chill here. We're all just here because we care about Mary and Peter!

@Glad2behere

6 жыл бұрын

A 15 minute video of their life doesn’t show is she used or didn’t use the feeding tube each day.

I have a love/hate organization......I organize but then somehow, it gets Unorganized within a few days!!!!! Ugh!

when are you guys going to do a house tour? I've been waiting intently!!

The new vests now don't hook into an airflow and run on a rechargeable battery pack, look at AffloVest. Thank you for sharing🙂💓👍

love the neon leggings. They look so cute on you. Peter and Ollie do resemble each other a bit too.I also love all the cool built ins in your hour house. It reminds me of the house that I grew up in.

I think everyone has their own perfect organization method for meds and medical equipment. I have a basket for all my meds on a shelf under my nightstand and keep my daily vitamin gummies on my nightstand (because otherwise I'd forget them) I also have random lidocaine patches in my guest room closet haha! I also have comblers but I always forget to refill them. I should do that after I finish this video. I think Ollie was tired haha 'my humans, go to sleeeeeep'.

Ugh my medicine stuff just everywhere. Oxygen tank tucked in a corner. I keep most of those supplies in my night table drawers. Meds I keep in med cabinet. Then weekly I fill a organizer for meds

I use a locker and then have a bunch of office drawers in there to sort things in aswell as little tubs and shelves ... plus it's lockable when children visit .... I use to use a trolley like you and it was always a disaster lol the locker is way better!

I keep all my medical stuff downstairs in the kitchen cupboards! I have a dedicated cupboard for my medicines and nebulisers and my drinks for my feeding tube are just scattered around in different cupboards cause there is so many 😂

Ollie is so stinkin' CUTE!

It's been 60 here in the Eastern Upper Peninsula of Michigan since Tuesday, 52 in the morning...

@aspynk1658

7 жыл бұрын

Hello from the Lower Peninsula! You're lucky to live/be there, I love it in the U.P.

You two are so beautiful! Oh and Olly too!

Also Oliver is like a fluffy teddybear

Mary Hester thank for that rebutted,no need for such nastiness,they take a great risk sharing all they do,love not hate, May ur day go well and fun😍❤️

Ollie boy is so very adorable! Do you ever just get tired of doing the vlog ? Sometimes your interactions seems a little forced. Just take a day off, we will all be here waiting for you ! Viewership won't plummet if you just take a day off once in a while to renew and refresh ! It's only 15-20 minutes, but it's every day ! I dare you to take a day off !

Hi, Is also would love to have an Ollie paws T-shirt too, good Idea!

awww you're welcome!!!

How is your garden doing after your trip?

I am watching this as I figure out my new system! Mine was going to go out of control if it wasn't already. Because the docs just gave me new meds and I am so confused!

I keep medical stuff for my family in one of those storage bin dresser things. i don't have quite as much as Mary does but i use one drawer for the multiple meds i take a day and a drawer for my son's allergy meds that also has tyelenol and cold meds and all of that kid of stuff and then a drawer for my daughter that has ADHD and all of her cold meds and stuff since she is in a different age bracket than my son. its really helped keep everything together and organized so i'm not searching for things

I'm glad you're so family friendly. We strive for that at our place.

I have a 9L storage tub that my weekly meds go into that and it gets stored in a cupboard (each week get it out, my med containers, do it all and tub goes away and evening meds is on my fridge as it is last place before bed I go and morn meds are in with me in my bedside draws so i can be in bed and take meds early) my as needed pain medications is also in top draw of my bedside draw and my inhalers are in draws in a little draw set on top of bedside draws. Nebuliser is in bottom bedside drawers draw

Love you guys it’s my dream to meet you and I always pray for both of you each and every night. I pray that you can continue to live you little happy lives.

Ug. I am a diabetic and it took me FOREVER to find out how to organize my supplies. I use a roly plastic drawer cart...