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My ME/ CFS Recovery Story - At a HIPPIE COMMUNE?! (Part 2)

Here I share more of my chronic fatigue syndrome recovery story including how a potentially false Lyme disease diagnosis might have saved my life, the results I saw from a $10 000 cleanse, plus more of what living with CFS ME has been like for me. My CFS recovery story continued!
Although it's possible that I was misdiagnoses with chronic Lyme disease, it's important to note that this is a legitimate and valid condition that many people face. The diagnosis should be treated seriously and treated accordingly. What I went through and this one potential misdiagnosis in no way invalidates the condition as a whole.

FURTHER RESOURCES
Check out my book! FINDING FREEDOM: ESCAPING FROM THE PRISON OF CHRONIC FATIGUE SYNDROME. View on Amazon -- amzn.to/2LtzBcl
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WHAT TO WATCH NEXT
My Chronic Fatigue Syndrome RECOVERY Story (Part 1) • My Chronic Fatigue Syn...
Coping with Chronic Fatigue Syndrome - how to still LIVE your life! • Coping with Chronic Fa...
Working out with Chronic Fatigue Syndrome • Working out with Chron...
Chronic Fatigue Syndrome diet - 5 TIPS for using food to RECOVER • Chronic Fatigue Syndro...
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Пікірлер: 46

  • @charlotteinez3160
    @charlotteinez31604 жыл бұрын

    Energy saving summary: - diagnosed with Lyme, took heavy antibiotics for months but it made her much worse so she stopped - carried on with the supplements and diet and detox things from video 1 and got slightly better by year 2 - went away on a months intensive detox retreat with juice fasting and meditation etc. She felt worse at first but then felt better. She feel a fasting doea help her - so she's had 2 years of detoxing her home and body and trying to be clean etc. - did counselling and meditation and journaling and working on her mind - she was 50% better by the end of 2 years - she got a divorce (they'd been drifting for a while and the illness was the final straw) - she moved back in with her Dad and had a lot of pressure to go back to work- tried 3 days a week but couldn't manage, gave up after 2 weeks as it made her a lot worse. So she quit completely - her mum passed away within this time - she got depressed Part 3 coming up....

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    👍

  • @HumbleWordsmith

    @HumbleWordsmith

    3 жыл бұрын

    Thankyou soo so much

  • @14MellyJo
    @14MellyJo4 жыл бұрын

    Thank you so much Raelan for telling your story. I can relate to so much of it. I was an Intensive Care Nurse before I got ill in 2016 and not being able to clinically understand what had happened to me, and what had taken the life that I knew, was one of the worst things. Like you, I hated the diagnosis of Chronic Fatigue Syndrome and felt totally ashamed of it. I heard myself trying to justify my illness to others, trying and failing to get them to understand what was happening to me. One thing that I am eternally grateful for is that I was always believed and supported by my Dr’s. My diagnosis came in 2017 after I had been given every test imaginable......plus counselling. I ended up being medically retired from my job after trying and failing to return to work, which was a very low point for me. It’s been over 4 years now and I would say that learning to accept the diagnosis, being kinder to myself, and concentrating on my physical and mental health is helping me cope. My family and friends are incredible and I am grateful every single day for their love and support. Finding your channel is exactly what I need to feel connected and not alone. I find your videos extremely helpful, you deliver them beautifully and I appreciate all that you do for this community 💕

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Hi MellyJo, I'm so sorry to hear about all that you've been facing these last few years. I definitely empathize. You seem to have come to a great place though with your mindset and approach to this, well done on that because I know it's not easy! I'm so happy to hear about all the support you have as well because you are right, this really can make a huge difference. Thanks for sharing a bit of your story here and for sending this kindness and support my way 💕 And I'm wishing you all the best with your recovery as well.

  • @RaelanAgle
    @RaelanAgle4 жыл бұрын

    I feel it's important to state that despite my potential misdiagnosis with chronic Lyme disease, this is a LEGITIMATE and VALID condition that many people suffer from. Even though it seems that this didn't end up being the primary culprit with my health issues, for others this diagnosis is accurate and valid and should be treated accordingly. We all have our own unique mix of things going on in our bodies and it's important to thoroughly assess and determine what treatments will work for us individually!

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    I'd love to hear about other's experiences with this also!

  • @mirandaandrea8215
    @mirandaandrea8215 Жыл бұрын

    I never stop feeling disgusted by doctors and how incompetent they are at treating CFS! It’s incredible what you’ve done, what a journey!

  • @briechilli4496
    @briechilli449611 ай бұрын

    You are so brave Raelan ❤

  • @chickerbeball
    @chickerbeball4 жыл бұрын

    Part 3! Thank you for sharing your story and giving hope.

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Thank YOU chickerball for the support!!

  • @katygettingwell
    @katygettingwell4 жыл бұрын

    I enjoy your videos so much, you have such a nice natural style. It's like sitting opposite you listening to your story. Looking forward to the next one. So insprirational, Raelan. Thank you :)

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Aw thanks Katy so much for all of the support you've thrown my way. You really are a truly wonderful human and I couldn't be happier to hear that you enjoyed the video 💛💜

  • @blondepaperdoll4847

    @blondepaperdoll4847

    4 жыл бұрын

    I agree! She’s doing a great job with her videos 🥰

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Amy Ray Thank you so much Amy!! I really appreciate the support 💗💗💗

  • @janielightly1644
    @janielightly16444 жыл бұрын

    Thank you Raelan 🙏🏻look forward to part 3. 💜

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Nice to hear from you Janie and thanks for the support! Part 3 will be up very soon! ☺️

  • @PersonalGrowthNow
    @PersonalGrowthNow4 жыл бұрын

    Hope you are doing well. You’re a beautiful soul, very intentional.

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    That is incredibly kind of you to take the time to say this - thank you so much! I hope you are managing well with your CFS journey as well.

  • @marion6015
    @marion60154 жыл бұрын

    I wasn't sure I had CFS for a long time. Recently I started watching your videos. You say that what you eat has a lot to do with it, that eating the wrong foods can set you back. So I tested that. I had my take-out club sandwich on white bread, with a side of fries yesterday. Sleeping last night was absolute hell. I don't know how many times I woke up, I slept worse than I usually do. You are right. I feel brain fog right now and nouns are coming to me particularly slowly. I'll recoup today but I think I'm bouncing back faster. The problem with this malady is what you do makes a big difference so if you keep doing something wrong over and over, you don't recognize that it's what you're doing that's causing it to flare up. Until you stop, then reindulge. Then you can see. Thank you for your work and for sharing with us. I love to read so your book is on my list. Oh yeah, I find getting e-books is easier because your computer can read them to you instead of your having to focus to read it yourself.

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    I'm so sorry you're struggling so much with this, but I love your attitude and approach to things. I think that looking at things as an experiment is so helpful. And you're so right - we often have no idea what habits of ours might be contributing to our symptoms. I was like that with coffee for a long time - I didn't realize that my afternoon crashes were strongly intensified by my morning caffeine consumption. Sending you my best with all of this - I hope you find all your puzzle pieces and get past this soon.

  • @amym3337
    @amym33372 жыл бұрын

    I’ve just started reading your book - it’s amazing!!

  • @RaelanAgle

    @RaelanAgle

    2 жыл бұрын

    Oh I'm so happy to hear you're enjoying it! Thanks for getting it, I appreciate the support 💫

  • @anthrax5655
    @anthrax56553 жыл бұрын

    I’m listening to every word Raelan. Annie💕

  • @RaelanAgle

    @RaelanAgle

    3 жыл бұрын

    Hey Annie! Nice to hear from you again and thanks for watching. It's great to feel a connection in whatever way we can, even online! Very nice to connect with you 💛

  • @linahogberg1483
    @linahogberg14834 жыл бұрын

    Cant wait for part 3!

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Thanks Lina!! 💜 Coming next week!

  • @majahorvat7294
    @majahorvat72942 жыл бұрын

    You are so lucky you healed!!!

  • @RaelanAgle

    @RaelanAgle

    2 жыл бұрын

    Sending love to you for your healing journey ❤️

  • @lancebloke
    @lancebloke3 жыл бұрын

    Just watching part 2 of your story. Both my doctors and I are convinced I caught Covid-19 in March and I am still struggling, although the virus is gone (5 tests all negative). I am kind of in the middle right now... I can work and do some limited things but if I try and do anything physical then it kicks my backside. Symptoms seem to come in cycles, pain in my chest or legs some weeks, super sore throat and headaches the next, then fatigue but not to the extremes you had or I know other have had. Still getting lots of tests, but so far all clean. Hopefully I can maintain being healthy enough to stay working and also get better. Did you sometimes just wish you could let someone else feel what you were feeling if even only for an hour? I struggle to explain it to people and symptoms keep changing week after week.

  • @RaelanAgle

    @RaelanAgle

    3 жыл бұрын

    Hey Lance, this sounds absolutely awful. I'm so sorry that you're facing this right now. But oh my goodness YES!!! A thousand times over yes - more times that I could possibly count I fantasized about being able to switch bodies with the people who were close to me for an hour or a day or a week just so they could get it. Thanks for taking a moment to share a bit of your story and I hope you find what you need to put this behind you soon.

  • @elainebezak7158
    @elainebezak71584 жыл бұрын

    Thx for sharing your story. I am much older but I still have all the struggles you did. Just about everything resonated with me. I have limited funds, so some of your approaches are financially out of my options. The question I have for you is about exercise and movement. Do you have any videos about movement and activity??

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Hi Elaine 💛 I am so sorry to hear that you have to face all of this - I know what a hell this illness can be and I really feel for you. And I appreciate that I have been fortunate in that financially I could afford to try a lot of things that unfortunately aren't options for a lot of people. (And to be honest I was quite financially irresponsible and went into a lot of debt.) But yes I do have some videos on movement and activity. On the home page of my channel there is a tab called "playlists" and under it you will find a playlist titled "chronic fatigue syndrome & movement" with a few available 😊

  • @elainebezak7158

    @elainebezak7158

    4 жыл бұрын

    Thank you Raelan. I just found your channel, and started with your recovery videos. . Headed to part 5. Very compelling story. I will check out your playlist for the movement videos. It’s very encouraging to see that you have moved passed your struggles and are back to living the life of your dreams. God Bless. 💕

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    @@elainebezak7158 thanks so much Elaine for taking the time to hear my story. I appreciate it and I hope something in these videos someplace is useful for you 💗

  • @EvolverWellness
    @EvolverWellness4 жыл бұрын

    Omg...I feel for you. This is why there are health coaches... 10K to go fast somewhere!

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Madness, right?! Yet still one of my more unique experiences in life and I did take some valuable things away from it so thankfully no regrets 😊

  • @amym3337
    @amym33372 жыл бұрын

    Wow I’m a social worker too! I wonder if that (giving to others) contributed to our illnesses… just thinking out loud

  • @RaelanAgle

    @RaelanAgle

    2 жыл бұрын

    I think that might be a solid theory, Amy! And nice to meet another social worker 💛

  • @raysubrata1337

    @raysubrata1337

    2 жыл бұрын

    Probably being an empath and unable to manage energy to oneself

  • @bobbiev7062
    @bobbiev70623 жыл бұрын

    👍

  • @Star5dg
    @Star5dg4 жыл бұрын

    Where did you move to?

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    Hey David! I ended up spending 8.5 years in Southeast Asia (mainly Cambodia, Thailand, Malaysia, and Indonesia). I currently live in San Francisco, California 😊

  • @Star5dg

    @Star5dg

    4 жыл бұрын

    @@RaelanAgle oh wow 8.5 years travelling that's amazing! Must have been so good to be carefree minimal stress, not justifying your illness to anyone, meeting new people etc

  • @RaelanAgle

    @RaelanAgle

    4 жыл бұрын

    David Graham Of course there were still hard times and stress and I was still sick, but yes, David, overall it was like living a dream life!! I'm so grateful for every day of my time spent in SE Asia ❤️