Thank you all so much for the really nice comments! I was very hesitant to post this video as it’s quite personal but I’m glad I’ve opened up and hope you all don’t see me differently 💙

@airbow27

2 ай бұрын

if anyone sees you differnntly then their not a fan of ours

@averyyerkey8015

Ай бұрын

I lost by brother to epilepsy at 2 years old, and it tried to take my dad a couple times. Thank you for shining a light on this terrible condition

We are all very proud of you for having the bravery to share this after what must have been a very traumatic event. Glad to see that you are recovering well, and just know that you can do whatever is best for your health and we will all be here and support your decisions

@DidoASMR

2 ай бұрын

Thank you 🙏

@Anthonys_S

2 ай бұрын

Beautifully said

Damn that must be rough to go through. I'm sorry you have to go through this. It also must be rough to open up to so many people. Keep the videos up and have a good day Dido!

@DidoASMR

2 ай бұрын

Thank you so much, I appreciate it a lot 💙

I also had an epilepsy episode whilst being home alone and I honestly thought my life was over, it is such a frightening diagnosis

@DidoASMR

2 ай бұрын

Hope you’re doing okay and know you’re not alone! 🫶🏼

@AdamWade-gx4xp

2 ай бұрын

​@@DidoASMRI have epilepsy too and have to take medication for it I've been hospitalised twice because of it

@piss-master32

2 ай бұрын

@@AdamWade-gx4xpme too honestly i’ve been in denial for a while it still feels so unreal

@harlan5339

2 ай бұрын

Does it hurt?

@thxnderinho

2 ай бұрын

@@harlan5339there are many types of epilepsy seizures different to each person caused by different reasons, in my situation I started losing consciousness to my right hand first and a few seconds later I lost it throughout my whole body, my right hand did hurt a lot because it started from there, aside from that you might feel pain when you have consciousness again if you fell on something as you were falling

take all the time you need to recover, it is very courageous of you to open up like this, I'm sending you all my support and love 💜

@DidoASMR

2 ай бұрын

Much love, thank you so much ❤️

I cannot imagine how scary it must be, Dido. Sharing your story really helps bring awareness to how shocking it can be for people who suffer from epilepsy. Thank you for making this video and I'm sending support your way ❤

@DidoASMR

2 ай бұрын

Thanks Abi! Appreciate your support and help over the years ❤

i‘ve once in my life witnessed a seizure of someone and remember how scary it was for me, whilst not even being the one having it! i‘m so glad you‘re still here, sharing your story and keeping up with youtube.

That sounds terrifying to experience! I'm so sorry to hear about that. I agree with everyone in saying that you should do simply anything and everything that would improve your health, and we will be here either way. Much love!

@DidoASMR

2 ай бұрын

Thanks Pan Guy, I appreciate all your love and support over the years 💙

Big Ws for u opening up to about 250k ppl about your condition, my moms ex-boyfriend had epilepsy so i know first hand what it can look like, that also explains why your not able to drive…hope you take time to recover and not rush back, we want you to be as happy and healthy as possible! Much love duncan! 🙏❤️🤘

@DidoASMR

2 ай бұрын

Thanks Jake 🥲

i have epilepsy too, although it’s temporal lobe epilepsy. it’s rough and sometimes i feel embarrassed about it but it helps when people like you open up about it x

@DidoASMR

2 ай бұрын

Never feel embarrassed. I hope you’re doing well and know that you’re not alone! 💙

@harlan5339

2 ай бұрын

Not embarrassing at all, people have to respect your life. Better for people to know about it.

Very proud of you! As some who had their first seizure in October, then was later diagnosed after multiple Brian scans and EEGs. I was given leveritacem . (Not sure how you spell i.) I had another in February, I am now on stronger medication. I am glad some is talking about it. Not being able to even drive or have many drinks it’s refreshing to have someone openly speak about it

So happy you’re okay! Wishing you a continuous recovery, thank you for everything you do for the ASMR community 🙌🏽

This touched me more than I thought.😢 I have epilepsy myself and I know how hard it can be. Got it also diagnosed back in 2016 and spend a lot of time in hospitals (mine is called juvenile myoclonic epilepsy). My hands, arms and legs are shaking up to 20 times a day and I'm losing my short term memory very often...had to finish school in 11th grade because of that. "Big" Seizure luckily just happen a few times a year. But I have a greatly increased risk of developing Parkinson's disease. I think it's really important to tell other people about epilepsy and the awareness. I wish you all the best and I'm so thankful you shared your story! ❤

@DidoASMR

2 ай бұрын

I’m really sorry to hear that. Hoping the best for you and know you’re so strong and amazing! 💙

Wow that sounds terrifying. Wishing you all the best Dido ❤

I have a friend who once had a seizure while sitting next to me and it's very scary to witness, it must be so much worse to experience it. Take the time you need and prioritise your health, wishing you all the best. 🙏💙

There is actually no way, i was diagnosed when i was like 5 and have been taking 3 pills a day for the past 9 years. We are decreasing the dosage now. It was a scary thing. But i am more lucky than others and i only got seizures at night while sleeping cuz i heard some get jt while awake i also got severe insomnia because of it, like i remember being an 8 year old who ran around all day and i refused to sleep because i was scared i would get seizures. Youre videos really helped and im glad im not the only one on this chaotic journey

I'm epileptic as well, on Keppra twice a day. I generally take it in stride, and I'm always more than happy to explain to anyone who asks, but one thing that's tough is the fear that comes with it. I've never been more afraid in my life than waking up in an ambulance not knowing where I am or what's going on, with a broken nose and cuts in my mouth. That fear that comes with keeping emergency medications in my bag and a medical bracelet to help explain to anyone to possibly help. It's terrifying. And I can absolutely relate to the fear of living alone, as I did for a couple years not knowing what I would do if one were to happen. I got it pretty lucky though, maybe a seizure once every few years or so, and the medications have kept it in check. But every so often, there's always that thought in the back of my head, perhaps walking alone in the city one day, what if one were to happen right now? It's scary stuff. I don't mean to be a downer, but I know what it's like Dido, so please take as much time as you need to recover both physically and emotionally. We aren't going anywhere. And on a much lighter note, although it's a bit late this year, I always love telling people that Valentine's Day is _my_ day. If you didn't already know, Saint Valentine, among many other things, was the patron saint of epilepsy! So next Valentine's Day, treat yourself to something extra special, and know that we've got someone looking over us.

The way I started crying half way through I don’t really know what it’s like to have epilepsy but my little sister has it and it’s been just like having a normal sibling fighting over and over but every time she has a seizure it makes me feel sad scared hopeful that she’s going to be okay but this video was posted the day before I have to preform in front of my school to tell them about epilepsy and it’s just nice to see these videos about a serious condition and I just Thank you Dido for sharing your journey about epilepsy 🙂

thank you for sharing! i cannot imagine how tough this is to deal with :( i'm glad you're feeling better after all of that... you're an amazing person. such an inspiration! thank you!💖

Dido man I feel sorry for you. It must be a horrible time but remember we always have your back stay strong like we know you are ❤

@DidoASMR

2 ай бұрын

Thank you ❤

I had a friend named Trynle who died of epilepsy, sad to see people go due to such a deadly disease.

Dido, you’re a brilliant asmrtist and you’ve helped lots of people with sleep disorders or people who struggle in their lives (including me). You deserve to have a break to make yourself feel better too. I hope you’re ok, I’m sure it must be tough. But you have all our support. Sleep well

Thank you for having the courage to share this. We support you! ❤

We’re all here for you Dido. Wishing you all the best ❤

Oh man that must have been scary last week , I feel for you . Your doing great man, I know it must be quite scary because you’ve no idea where it might hit, during exams and as a teen going through puberty and all that it must have been very tough . I suppose all you really can do is try and rest more and not take the things that make it worse but that’s not always easy. Make sure you rest up tho. Your health is way more important than anything.

As someone who had a friend in my previous school that had epilepsy, even having seen him get a seizer in class and get escorted to the hospital, I'm really sorry that you have this Dido and let's just hope it happens as least as possible. All the love man :)

@DidoASMR

2 ай бұрын

Much love, sorry you had to witness that too 🫶🏼

@lukathepr5490

2 ай бұрын

​@@DidoASMR🫶🏻

We still love and appreciate you so much! Take your time to recover we won't go anywhere til then. I'm so proud of you for sharing this personal information with us and just know that we will always support you no matter what🫶🏻🫶🏻

i was worried for this unexpected break, i’m happy to hear that you’re now feeling better, take care of yourself ❤

I'm sorry you have to go through that. My mom used to deal with that, but for whatever reason has subsided in her later years. Here's to hoping the same for you Dido. I really love your ASMR videos, and appreciate the effort you put into them. I'm glad you're doing better now too. Much love. ♥

We all love you dido! You have gotten us through so many nights, thank you for sharing your story.

Massive respect for opening up about this! It must be hard to deal with but I’m glad your recovering and I hope u stay healthy ❤

@DidoASMR

2 ай бұрын

Thank you so much for the comment, really means a lot ❤

I’m so sorry dido that seems really traumatizing and proud that you shared it because my brother has epilepsy too. We are here for you and stay strong ❤.

I have the exact same as u bro, it’s sucks when it comes to driving especially, can’t really enjoy yourself when going out, always scared of sometning happening, but we gotta stay strong, well done for sharing

Hope you get Well Dido, wish you all the best.

Thank you for opening up about such a personal topic. Don’t worry about posting or livestreaming, we’re not going anywhere and are here to support you no matter what. Your health should always take number one priority 💚

You are a legend dido. I check your account everyday, been my fav asmrtist for years now. Take your time though to recover please mate! All the years of helping us relax, make sure you get time for yourself too.

we are here for u dido. You are my favorite ASMRist. hope u get well soon

@DidoASMR

2 ай бұрын

Thank you so much, it means a lot 🥹

@shine-jf9lg

2 ай бұрын

wdym

@craze3365

2 ай бұрын

@@shine-jf9lg what?

I also was diagnosed with epilepsy about 2 years ago now, and it was an interesting experience for me, I was normally a laid back person and rolled with punches well but I was honestly scared. I share a lot of, if not all of your symptoms so I know how it can feel.

@DidoASMR

2 ай бұрын

Sorry to hear that, stay strong and take things easy ❤

my girlfriend’s little sister is epileptic. it’s nice to see someone with your platform spreading awareness about it, especially considering how underfunded epilepsy research is. i’m glad you’re doing better, and i’m sorry you have to live with this 💜

We are all with you Dido. Take the time you need. Health is one of the most important things. Appreciate you sharing 🙏

I’m sorry you are living with this condition. It is courageous of you to speak out about it and to help raise awareness. I had been hoping you were okay when I saw you hadn’t posted videos as often as usual. You have helped me so much with your videos. I am so grateful for that. Please take all the time you need to recover.

@DidoASMR

2 ай бұрын

Thanks so much for the kind words 😊

Take all the time you need man❤️

Very brave of you to share! I also have a seizure disorder. Doctors have not been able to specifically diagnose me with epilepsy. I’ve had maybe 30 seizures over the span of 25 years since I was little. They are scary. I appreciate your asmr because you don’t do many crazy flashing light videos. Not sure what kind of laws there are in your country, but in the US we get our license temporarily revoked for 3 months if we have a seizure or any kind of loss of consciousness. I have my neurologist sign off every year allowing me to have my license. It definitely impacts daily life whether it’s a daily occurrence or a rare occurrence. I wish you the best with your epilepsy journey and hope you continue to stay safe

Glad to see you back man, take all the time you need. Rest is more important that youtube

Dido, you are so strong for sharing this with us. My sister has the same type of epilepsy and moved out 2 years ago. It can be frightening at times ‘cause you never know when it hits. Me and my family always need a few days to cool down after a seizure happened. Thankyou for sharing and stay strong!❤

I am praying for you Dido. I am so glad that you are back to feeling at least a little better! Thank you for all you do for us!

I also had epilepsy as a child. It started off with just absence seizures meaning I would completely zone out for like 30 seconds unable to move or remember what had happened within the last 30 seconds. Then in 6th grade it got worse and I started having full-on grand mal seizures in school. The first grand mal seizure I had was during PE playing football with my friends. I had to go in an ambulance and the whole school knew about it. I started to have to take medication which would make me sick and didn't even help much. I also had to go on the keto diet meaning no carbs and other stuff. Then one day my seizures just stopped and I haven't had a seizure in about 4 years. I thank God every day for that.

Hope you’re okay Dido, it must be so difficult going through that and still creating content for all of us. Wishing you all the best for the future ❤

Major respect for making a video and consistently posting, as well as streaming. Got my support brother 👊

Wish you the best dido, I appreciate your work❤

I also have epilepsy and it is very frightening. The shaking got so bad for me I actually dislocated my shoulder and when I came around again the pain was unbearable. It takes a toll on your mental health as well which makes things worse. Luckily the medication I am taking has been working and haven’t had a seizure for over a year now. Good luck to you my man I wish nothing but the best for you and thank you for sharing this 👍

@DidoASMR

2 ай бұрын

Oh my gosh I can’t imagine how bad that must have been. Glad the medication is working well and it’s controlled better ❤

It must be very hard to deal with and to experience. Just keep doing what you doing and we are all here for you!

My mother has PTSD induced epileptic trips, and it is very stressful for all of us, as well as for her. I'm glad you're willing to make a bad thing into a good thing in supporting. I hope you feel better soon! ❤😊❤

hey! wish u all the best!!❤️ you are helping a lot of people with your vids!!😊 we are all with you and we appreciate you❤ thank you for sharing your story with us😇😇

Thanks for opening up man, my girlfriend has diagnosed epilepsy in addition with 'Non-Epileptic Seizures' and its really something that can be quite frightening. Hope you can get the right medication and can get well soon.

Thank you for sharing Dido - take all the time you need and don’t put any pressure on yourself ❤

@DidoASMR

2 ай бұрын

Thank you so much ❤

That really does sound terrifying 😰 You did nothing to deserve this, but sometimes life is just not fair 😭 Hope you can recover, take care of yourself.

Get all the rest you need Dido!! Wishing you health and safety💙

As someone on the other side of the pond, having what feels like perfect vision, no colour-blindness, or any other abnormalities; I find it hard to imagine what people with visionary complications battle with on a daily basis. I'm incredibly sympathetic for you Dido and I really do wish you everything positive for your future. Eye love everything you do! 🙊💙

I am glad your doing better. But I hope u take time to recover and relax. Thanks for being open about it. It's seriously no joke and I wish u a speedy recovery.

You always seem so happy and chill so I would’ve never known you were going something like this.😢 But anyways we got your back Dido.

That must be very rough and difficult to go through we all wish you the best and will support you among the way.

Sorry to hear that news Dido, hope you feel better and hopefully get back into video content soon. 💙

Take care bro glad you had the strength to share Epilepsy has been a huge part of my life too especially in school and life in general luckily on medication now that controls it.

Respect for sharing this Dido i hope you are well

I can imagine how difficult it must’ve been for you to make this video. I admire your courage and bravery. You must prioritise your health over everything else. If you need to take some time off to recover that is completely understandable. All the best. ❤

That must be extremely scary and I got really sad when I read the title but after watching the video you seem very fond of it and safe. Hope u stay well!! 😢😀😁😊

Amazing dido i had no clue but yiur very strong for posting this video much love

You’re a warrior brother! Be wishing you the best health and fortune man❤️.

I can't put in a sentence how bad I feel for you. I wish you all the best in the world, and that you recover without any problems! ❤

So sorry to hear this news Dido, you are so special and uniquely gifted❣️ Please know your health is more important than anything and it is important that you are educating us all about epilepsy 🥰 Glad you’re feeling better❣️

i am sorry bro you have to go through this we are here for you

Bro u are always going to be an amazing person. Plus no one will ridicule you for telling us something.

Hey, I have focal epilepsy a type of epilepsy that definitely isn’t as serious as in your case but I still want to send out my prayers and love , stay strong and keep going ✊❤️

Talking about a very serious but still giving us tingles. What a champ.

I never knew how dangerous seizures could actually be. Thank you for sharing your experiences. Take care of yourself.

Thank you so much for sharing your story, I’ve recently had my first episode a couple of months ago due to a medication withdrawal. I wish you the best in life mate 🧡🧡

Glad to see that you are okey and being that brave to tell us your story! Get well and i know that you’re going to be okey!❤️

You are so brave to get through this

i have epilepsy too, been having seizures for years. However it has been a year and a few months since my last one and i am just staying strong, taking meds and such. Glad to hear your story makes me feel better

Mate - very brave to chat through, wishing you all the best ❤❤❤

@DidoASMR

2 ай бұрын

Thanks man! Really means a lot 💙🫶🏼

hey bro, thanks for sharing. i had a seizure once, i know it's not the same as having epilepsy, but it was still terrifying. i couldn't image having to deal with that frequently. stay strong!

Hope you get well soon, Dido! 🙏🏻❤️‍🩹

Hey Dido. Just a reminder... You are not alone. I have juvenile myoclonic epilepsy (JME) and I often feel very very alone in my condition. Today, I had a seizure after many many months without having one, and the feelings are never describable, are they? I woke up (don't remember where in the house) but I, too, knew I had to phone. So I did, I phoned my girlfriend, explained it to her, and she then made her way home from work. In the meantime, I went to assess the damage (I hurt myself really bad, hit nearly every part of my body, had subconjunctival hemorrhage on one eye, those "blood freckles" you mentioned, and A LOT OF PAIN!). I had missed many many doses of my meds these past few weeks due to a change in routine. So that must've triggered it. But the point is, now I'm having these feelings of post-seizure trauma/sadness/melancholy and nobody really knows how it feels, how bad it is. I feel like a baby who needs their mummy, scared of everything, especially sleep... and I'm able to take sleeping meds to go to sleep but I have this terrible habit of waking up in the middle of the night because of night terrors. Sleep has always been an issue with me. So yeah, maybe reading this makes you feel less alone. If you ever want to talk after a seizure, we understand each other (and this goes for anyone reading this comment) - hit me up on instagram @ellastonemusic so we can create a safe network for these things only we fully understand. Wishing you all the best. We can do this, Dido. xx Ella

hey dido, i’ve been watching for years at this point but i don’t think i’ve ever commented. my thoughts are with you, epilepsy is no joke but i’m super glad to hear you’re doing better. take all the time you need and thanks for all that you do for us! :)

@DidoASMR

2 ай бұрын

Thanks so much for the comment, it really means a lot!

Hey man, I have epilepsy too, and have experienced physical injuries like you have. It really is a scary thing to experience. I’m wishing the best for you and your health.

Sorry to hear that dido glad to see your doing alright and are ready for the playoffs💙

I respect that u had the guts to speak about this massive probs ❤ keep going ur doing great

you’re not alone Dido ❤ there’s other people (also me) who has epilepsy, it’s not fun, thank you for sharing and i hope you the best

Love you Dido, keep safe!💙🫂

Its so good to see you recovering from this traumatic event.We are proud of you and we wish you luck ❤

Thank you for sharing this information. Your are very brave for this, take as much time as you need to recover 🙏🙏🙏

This really helped me. I have epilepsy too and it makes me felt seen. I am so sorry

Sorry to head about this Dido, take as much time as you need and don’t rush anything, mental and physical health is way more important than anything else.

Government should pay for yall living expenses. God bless, love yall!

sending some love dido. take all the rest you need 🤍

god bless brother, continue to inspire and be strong. amazing things are just over the horizon.

Massive respect for opening up, can only imagine how scary it must be to have to deal with. Take as long as you need, we'll be there when you're ready to stream again too :). Sending all the best wishes and support.

I'm very happy you decided to open up about this, since I suppose you were apprehensive it could come up randomly during a Livestream or that it could somehow affect your channel, well now you can put those fears to rest and instead you have gained hundreds of thousands of caring ears that will be there or you whenever you need :)) Glad to know you're already feeling better and take as much time as you need to fully recover, love from Argentina!

I have epilepsy too dido. I have to take medicine every day and night to stop it and it was very difficult to go through. I’ve had 3 seizures and I was conscious during all of them which was scary. We will always support you forever

@DidoASMR

2 ай бұрын

Hope you’re doing well. Very brave of you to comment this and know you’re not alone!