I found your video because I was just diagnosed as a type 1 after seven years of being misdiagnosed. I couldn't agree more with what you said about how people treat type 2 diabetes. That was also part of the reason why I was ashamed to check on my diabetes and that only hurt my health even more. I'm glad I found videos like yours because this diagnosis has rattled me. I feel lost, alone, scared, but most importantly hopeful. Thank you for being vulnerable and sharing your story!

@brewbolusrepeat1146

Күн бұрын

Thank you so much for sharing with me! I can relate to everything you said, and I'm glad that you have made it to the hopeful stage. Getting a type 1 diagnosis isn't fun, but it was so important for me to feel like I finally had some control over my health outcomes. Sending you so many good vibes as you adjust to your new reality

I was dx as T1 just after my 17th birthday. Initially went to the dr on monday (mid january of my junior year in high school). Back then the semesters ended in January, and this week was finals week for me. Monday & Friday were days off school, and finals Tue/Wed/Thur. So Monday went to the dr because my body was falling apart just like yours. He wanted to do a blood test....I never had one before and was terrified of it. I begged to let me come back Friday and do it because I had finals all week and needed to study. He reluctantly said "ok". I ended up failing all my finals (I was an "A" student). Went back Friday, also deep into DKA. Was in the hospital the next week getting my body back into a healthy place and learning all the T1-101 stuff. Fortunately all my teachers agreed to calculate my grades excluding the finals. This was in 1985. No such thing as fast acting insulin or pumps. Blood tests took 3-minutes. No meters to read blood results (the drop of blood changed the color of a test strip and you compared that to a colored band printed on the vial to get a reading). You were lucky if you could estimate blood sugars within 50-points. January 2025 will be my 40th diaversary.

@brewbolusrepeat1146

19 күн бұрын

Wow, you've been through a lot, Bill! Thanks for sharing your story here. Congratulations for living well with this beast of a disease for so many years 😄

C-peptide test is key to do. Simple blood test. Why aren’t drs doing this routinely!? I’m type 1 dx at 42. My bs was 980 and a1c was 12.8. Clearly. Almost zero c peptide. So glad you made it to the truth❤️

@brewbolusrepeat1146

Күн бұрын

Yes! It's so simple and so key to understanding what we're dealing with. I encourage everybody facing a diabetes diagnosis to ask for a c-peptide test :)

Wonderful video, thank you for sharing. I'm T2, but kinda in between T1 as I can still make some insulin. Recently started Toujeo (long acting insulin) since my numbers were very high and I see a huge improvement in my blood sugars. Going back to my endo in 3 months so discuss if meal time insulin is needed. I know the feelings you mentioned of guilt and failing all too well. I have a family history of diabetes and I'm so thankful for a wonderful Endo who spends the time and listens. Makes a huge difference!! Continued success to you.

@brewbolusrepeat1146

Жыл бұрын

So glad to hear that you have a great doctor and are continuing to get answers and make improvements! I've come to understand that I most likely have LADA (sometimes called type 1.5, but it's basically slow-onset T1). That may be something you're interested in researching as your insulin needs increase. It does make a huge difference just getting on the long-acting! I highly recommend checking out the Juicebox Podcast if you haven't ever listened to it. The private facebook group has several lists of episodes that will help you figure out where to start 💙

I was diagnosed as type 1 last year, I’m 42. Though my diagnosis was a lot more straight forward than your experience, I did have a doctor tell me that I could be type 2 because of my age and the fact that I am of African heritage, so I can totally relate. Thanks for sharing your experience. I’m so happy to learn how took control of your health after being misdiagnosed, your doing really well. Thank you also for providing such wonderful advice. Take good care of yourself.

@brewbolusrepeat1146

Ай бұрын

Thanks so much for your kind comment and encouragement. I'm glad your diagnosis was more straightforward! There are a lot of nuances to this disease, and it makes sense that doctors would want to consider factors like age, weight, and genetics. It's always helpful when they are open to unexpected answers, though! I hope you're doing well :)

You remind me so much of my oldest niece. I mean, you look like her Thanks for the story. I am in that stage now of finding all the T1 Diabetes stories I can. Most I find are from kids or adults who were diagnosed when kids. Hard to find stories of adults getting it at adults. Also had a lot of hunger. I noted it down to me being a food addict and that’s just how I was. Only now do I realize how slowly these symptoms started that they became a norm. I also lost a lot of weight. That part I realized was not normal but I was thinking cancer. Frequent urination? UTI. Yeast Infection? Had to get my first yeast infection sometime right? Eventually I started suspecting diabetes after I googled frequent urination. Had a annual physical soon after and my blood sugar was high. She made an emergency appointment for me to see an endocrinologist where I was put on long lasting insulin where they had me take another blood test and I was tested for Type. I was diagnosed T1 a couple of weeks ago. Started taking insulin and gained 11 pounds in 1 week! When it rains it pours I guess 🤷‍♀️

@brewbolusrepeat1146

Жыл бұрын

Mindy, I'm sorry it took me so long to see your comment! Thanks so much for sharing your story. When we have the slower onset of symptoms as adults, it's so easy to attribute them to other things. I'm glad that you finally found the cause, and it sounds like they got you the proper blood tests and answers pretty quickly! Hang in there. The first several months can be a bumpy road, but you'll find your stride soon. Check out the Juicebox Podcast if you haven't already!

You are AMAZING , to talk about your start with diabetes in such good way , it is hard thing to come to terms with keep going girl and I am trying to . I start with omnipod on the 4.2 .2021 so hears hopping it go,s OK .Takecare 👍❤️Linda X

@brewbolusrepeat1146

3 жыл бұрын

Thank you so much, Linda! I really appreciate your kindness 🙏🏻 Good luck to you as you keep moving forward! 💙💙💙

I have a few diabetic friends (Type 1) and you can go into DKA even if your blood sugar is not sky high.

@brewbolusrepeat1146

Ай бұрын

Yes, absolutely! It's really about the lack of insulin, not necessarily the blood sugar number.

Hi, I am a female of 14 years old and I got diagnosed with diabetes two weeks from Monday. I want to go get some blood work at the doctors office because I was having some problems with my hair loss on my head. I used to have really dick care now my hair is really thin. I was also having, some problems with frequent drinking and urination. And my emotions. But my mom just thought it was either thyroid problem or hormones. So we went to doctors and got some bloodwork and had a sample done. And we’re in the drive-through to get some food and apparently, turns out that I’m diabetic. The doctor called us while we were in the drive-through and she said that my A1c was 14+. They want to be around five I believe. It doesn’t read above 14. And the doctor told us that my mom need to rush me to the emergency room. The Lincolnton hospital in North Carolina, took my blood sugar and said that it was 472 and 80 to 120 mark. But apparently this hospital doesn’t take kids. My parents had to take me to hospital and Charlotte North Carolina. And we spend about four days there. We arrived at one in the morning Tuesday, May 7 thank you so much for telling us your story. This has been hard for me concerning. I’m also blind. I hope I can get pump. But I have to wait until I find out what type I am. I’ll find out when I would go back to endocrinology and Jen.I have an appointment with them on June 18 and if I’m type one I’ll get a pump. The thing is depends are not accessible for blind people, and I like to be independent and be able to things on my own.

@brewbolusrepeat1146

19 күн бұрын

Thank you so much for telling me your story! It's a really scary time when you're not feeling well and waiting on answers from the doctor. I hope your appointment on the 18th went well and you got the answers you needed. Pumps aren't totally accessible yet for the vision impaired, but with some of their mobile apps, you might be able to do more than you would think independently. I almost exclusively use my tslim mobile app for day-to-day use. You might just need some help adjusting settings on the pump itself. Hang in there as you settle into your diagnosis. I know you've got this 💙

A1c at 5.2 is excelent. More tpe 1s should at least aim for such optimal control! In fact all diabetics would benefit from that!

@sadmisterguna

4 ай бұрын

It’s not always that easy for everyone. It’s amazing for her that her A1c is so good, but portraying her as some kind of “example” for other people with T1 perpetuates the very harmful stereotype of good vs bad “diabetics”. All people with T1 want to have good control, but there are a lot of factors at play. If your A1c isn’t always optimal, it’s not because you are a “bad diabetic”, or “noncompliant”. Good care should not shame or patronise patients, but be empathetic and supportive.

@grumpyinbrooklyn6347

4 ай бұрын

@@sadmisterguna That's a bit absurd! Many of the "factor at play" are crappy advice and, (a bit tongue in cheek here), many official "resources" like the ADA recipes online, LOL! They are insane. Aiming at some goal does not mean that one should make moral judgements on those that can not achieve them. THAT is a problem, but not the goal of normal A1c itself. And of course it's hard. been there done that! That does not invalidate the benefit of an aspirational, optimal goal. Approaching it without a rigid, absolutist mentality is more emotionally balanced for sure.

@sadmisterguna

4 ай бұрын

@@grumpyinbrooklyn6347 I would not call the notion of compassion and supportiveness in patient care absurd…? It’s the way you phrased your initial comment that rubbed me the wrong way: saying that people with T1 diabetes “SHOULD aim for such optimal control” implies that you think they DON’t, due to lack of effort or “compliance”. That is simply not the case. The many factors that I mentioned go far beyond “crappy advice” and include depression, anxiety and other mental health issues which are common in people with chonic conditions, learning disabilities, diabetes burnout, brittle diabetes, lack of education, poverty, lack of access to healthcare, stress due to work or family pressures, etc etc. All of these can lead to less than optimal outcomes. The last thing a person that, on top of their diabetes, is already struggling with these problems needs is someone judging them and telling them they simply need to try harder.

@brewbolusrepeat1146

Ай бұрын

@@grumpyinbrooklyn6347 @sadmisterguna I truly agree with both of you here. I don't think there's such a thing as a "good diabetic" or "bad diabetic." Our outcomes are so dependent on the education we receive and resources available to us. There is absolutely no way I would have a

@grumpyinbrooklyn6347

Ай бұрын

@@brewbolusrepeat1146 Yes, sometimes people attribute intents that are just not there, maybe triggered by previous bad experiences. I think most of us have been shamelessly gaslighted or patronized by a provider, or friends and relatives, for example. And good luck trying to have "truly normal" BG/A1c while actively fighting a nasty infection or a course of steroids, both of which are 100% out of our control and not "our fault." Blame and shame are not the goal and are toxic. My issue is with an officially indoctrinated defeatist attitude and "institutionalized" low expectations as standard of care frequently FORCED on us! I had to fight tooth and nail to be "allowed" to pursue my diabetic goals. That should be malpractice but they get away with it because the system is rigged that way! We are not just "numbers" on a statistic!

Such a crazy story. Honestly your doctors failed you and it could have ended badly. I hope this story can help someone else get a diagnosis sooner.

@brewbolusrepeat1146

Ай бұрын

Yeah, it's really scary how poorly it was all handled. That's my hope for sharing the story too. I was in the dark when it happened to me, but maybe others experiencing symptoms like mine will see this video and be better informed going into their appointments than I was.

Currently going through all of this. I’ve dropped over 40 pounds in less than 3 weeks.

@brewbolusrepeat1146

Ай бұрын

I just came back to the comments on this video after MANY months away, and I really hope you were able to get answers and help. Let me know how you're doing if you feel like it!

You should have went back to that dumb doctor that was telling you that you were type 2 and show him the results of your new type 1 diagnosis type 1 doesn’t discriminate on rather you are a little chubby or on the small side I’m so glad that you didn’t accept your first diagnosis because us type 1’s can’t live without our insulin i have been type 1 since I was 8 years old and I have learned that if something isn’t sitting to well with me that the doctor has told me I’m going to keep pushing for them to listen if not I’m getting a new doctor that will listen to me be blessed my diabetic sister

@brewbolusrepeat1146

3 жыл бұрын

I've really struggled with how to respond to that doctor. I feel like I probably should contact him at some point just so he knows how dangerous his presumption was, but I also don't want to be too petty about it 😅I've learned so much about the importance of advocating for myself with doctors! Thanks for commenting, and I hope you are staying safe and well 💕

@Boricuagoddess0831

2 жыл бұрын

@@brewbolusrepeat1146 i understand but he put your life in danger if you were my sister or friend family i would definitely make sure he knows the importance of giving patients the right tests and diagnoses but I hope that you are doing well

@janeshipley6993

9 ай бұрын

@@brewbolusrepeat1146i’m glad that you’re doing well now. i think that your story (and mine and so many, many others, especially girls and women) illustrates that doctors or anyone who says get off google are off the mark. research, explore, fire any doctors who make judgements without knowledge, and stick with a doctor who’s willing to research and explore. doctors don’t have infinite knowledge, but you do of your own body. as for sending a note to the doctor who (i’m sorry, but…) screwed you, it would not at all be petty - it just may save someone’s life in the future.