I never knew this had a name. This is wild and interesting!

@Macbobob

9 ай бұрын

I prefer the term "crazy muscle twitching" 😂

@anathema2325

8 ай бұрын

Same , now I wonder if there's official names for "if you poke here,I get nerve pain two limbs over" and "I think I hear my name/the door bell , wait I'm alone/ I don't have a bell like that"

Sitting watching this with a twitch in my lower leg 😂

@warrenarnold

9 ай бұрын

I think your leg ia havin an involuntary orgasm, having time of its life all on its own while you just sit there watching it all jealous and bothered 😢😅😂😂😅pun intended

@Zea_gtag

8 ай бұрын

Its my triceps

@anjalichaudhary1362

8 ай бұрын

its my quads this is hell irritating

@nothxpnotic

7 ай бұрын

Bro I've been searching for it and it's my biceps triceps legs and chests like it's all over my body brooooo what am I supposed to do

@KasenConnor

4 ай бұрын

It’s both my feet for me and I always have it and it’s so annoying

Oh, I have that at least since my teens too, I always wondered what it was! My doctor only told me it was benign, without much more. I usually have it in my fingers, especially my thumb, occasionally in my legs and eyes. Mainly a bother, especially when the thumb just moves continuously. At least I am happy to hear I am not the only suffering from that haha.

@warrenarnold

9 ай бұрын

I used to think it was involuntary orgasm😅

@lukeditz94

5 ай бұрын

My dad and I get them. He's had it for years

@TheGayGuitarPlayer

5 ай бұрын

Dude omg I’m glad I’m not alone! My thumb was moving by itself too and sometimes my toes💀 it’s so annoying and freaks me out I hate it

@FerryPatrix93

4 ай бұрын

OMG i also have this since my teens. It appears randomly all over my body with random interval. Just small movement at specific spot, and then for minutes or hours it reappear at different spot. At first it felt weird but i'm kind getting used to it now.

Ive had this for a year now. When it first began, I googled... and got very VERY worried. MRIs, EMGs and blood tests later, all is well, and I am forever twitching still. Guess I just gotta accept it. Dehydration, stress, anger, low blood suagr/hunger and lack of sleep will trigger symptoms for me ++. In my case, I see them as gentle reminder to go easy ❤

@wamq29

9 ай бұрын

Do you get them everywhere and are any of them constant?

@jonathonhoggarth6473

9 ай бұрын

Where did you get them? Mine are in both legs - real pain in the butt

@user-hl1gm1rw3q

4 ай бұрын

Same

@FerryPatrix93

4 ай бұрын

i got this since my teens. i'm 30 years old now. yeah it felt weird at first, but i'm getting used to it now.

@ketannagpure3754

4 ай бұрын

I am experiencing the same for past 6 months, is there any cure for this condition? Some specific medicine to relief the muscles?

i used to get this for yeaaaars. moved around my face n body quite often. then vanished n now never ever happens

@MaraveniRamana

7 ай бұрын

How you treated with this sir .beacause I am also facing this I got sacred please reply me.

@Mogzrl

7 ай бұрын

@@MaraveniRamana as i said, it just went away on its own.. i dont know what caused it to start or stop. Dont be scared if they are just small random tremors. If its very noticable to other people, i would get it looked at.. but if its minor and nobody can see it, dont worry about it if it gets WORSE (more severe shaking) then get it checked out. Mine never got worse.. it just stayed minor n then moved around my body

@georgerauscher5620

6 ай бұрын

@@MaraveniRamanaI have this also. It’s very concerning at first. For me it seems to be triggered by extreme stress. Have exactly this in the legs, but also have it virtually all over my body. Also in my face and and eyelids a lot as well. It comes and goes. I’ve noticed the less I pay attention to it the more it goes away. Don’t be afraid. You don’t have ALS or any other major Neuro condition

@robertoguerrero4575

6 ай бұрын

@@georgerauscher5620I get them all over my body been like that since 14

@user-hl1gm1rw3q

4 ай бұрын

Did you change your diet? I am currently trying fasting

Ugh, I hate when this happens. It doesn't hurt (for me) but it is very annoying. I also get facial twitches from time to time around my mouth and eye. Bodies are weird

I have this in my eyes. Good to be able put a name to it now.

@OpticIlluzhion

9 ай бұрын

I'M NOT ALONE LET'S GOO!

@kevinf8439

9 ай бұрын

I think it can be caused by a lot of stress

I diagnose this as a neurologist and we are always thankful when it’s this benign condition as opposed to ALS which is devastating

@paullance1258

9 ай бұрын

Mine went away while recovering from surgery for 3 weeks. When I started to lift Weights and walk again it came back. Does anything help it go away other than rest?

@noxy0588

8 ай бұрын

how you can diagnose ALS?

@paullance1258

8 ай бұрын

@@noxy0588 neurologists have tests they perform in office

@GbawlZ

8 ай бұрын

What is the difference? Mine has no pain and isn't accompanied by muscle weakness. I run 50 miles per week and lift weights every day, and I also drink 2 cups of coffee a day. I just spooked myself while watching ALS videos following reading a news article about a guy with ALS, lmao.

@VictorBR45

6 ай бұрын

@@GbawlZ With ALS, you die in 5 years. Besides, ALS usually shows up late in life. If you've had muscle twitching since your teens, you either are the youngest longest-lived person with ALS in the world, or it's probably the benign condition.

Hey I have that too! Usually in my left biceps and brachialis, also in my eye. Fortunately I'm a lazy bum so I don't get much cramping 😎

@killianmccluff36

9 ай бұрын

Left bicep too

@brokenroni8390

7 ай бұрын

My all over body twich and my left eye twich after 2 month gone then start twich and then gone and then twich what waht cause pz suggest

OH MY GOD I HAAAATE THIS!!!!! It does that about anywhere in my skeletal muscles! I'm at a point after 32 years of this bs that I sometimes slap the fiber that does that while yelling "NO!" Sometimes it works, but it's always hilarious when that muscle twitches one last time out of protest 😂

I get this from time to time. I find it to be both bizarre and interesting. To be honest I kind of like the feeling.

I have this pretty severely mainly in my calf muscles. Ive found that breathwork and meditation helps calm the nervous system and in turn calms my spasms.

Thank you for posting this. I've had a benign fasiculation in my right arm for almost 3 months now. Harmless yes, but super annoying and a bit unsettling. It keeps me awake for awhile at night.

Good to know we aren’t going to burst from this involuntary twitching

This is very informative, I’ve had this for about two years now, I am in my teens currently, my first occurrence happened after I had coffee for the first time. I used to think that was why so I stopped drinking caffeine. It’s still occurring and is a lot more frequent when I’m cold. Very annoying 😭

@webg03

4 ай бұрын

don't worry you'll be fine, lot's of people that get this tend towards tension and anxiety so look after your mental health. Relaxation exercises, breathing techniques etc.

@ch-eo7nd

4 ай бұрын

Issacs-syndrome

Oh wow I feel so much better now. It’s been quite bad lately in my left leg, largely at night when trying to sleep after an active day. It has had me worried at times, especially when it just won’t stop and keeps me awake.

I've had twitches as long as I can remember, but for a year I had them in *big* muscles--biceps, abs, glutes, and that was unusual enough that I stopped by a neurologist just to make sure nothing was up. Needless to say, nothing was up.

And this is how I found out I have it too. I've never spoken to a doctor about it because I thought it happens to everyone. Happens very often to me, mostly to small muscles making up the quadriceps or gastrocnemius.

i have this.. and it also makes sound.. very creepy indeed.. if it starts.. nobody wonders ever.. they all seem to ignore the creepiness .. that it also makes sound.. but sometimes it seems to trigger some one.. that shouts.. shut up!.. and the sound fades away.. Yes, i had eyelid twitches.. for a time or muskle vibrations - or innerfoot cramps but the tinnitus is really no fun anymore..

That's super weird. After watching your video on cramps, it was the same thing, I was like, "Oh, I haven't gotten any of those in a while." Then bam. 3 mornings in the span of 2 weeks, and my right arm started twitching, too.

Try some electrolytes. Or lots of electrolytes, everyday. And some calming breathing exercises. Might reduce the spasms.

I have had this since I was 18 which was ten years ago. I get it all over my body face, neck, arms, hands, stomach, back, legs and feet. Even my butt muscles do it crazy right. I'm currently having what they call a "hotspot" right now where one particular muscle will twitch for days. The longest one I had was my eyebrow that twitched constantly for 3 weeks then it went away. It's currently going crazy on the side of my left foot. Sometimes if affects my sleep cause its that annoying I can't sleep. But most of the time now I never really notice because I am so use to it. I do however notice it flares up more when I'm stressed or anxious.

This used to happen to me all the time. Amazing to learn it has a name, and that it's harmless.

I've had that my whole life too. Interestingly when I'm more sedentary it goes away and comes back when I increase my activity level, especially if I'm lifting

@paullance1258

9 ай бұрын

Mine went away while recovering from surgery for 3 weeks. When I started to lift Weights and walk again it came back.

Anyone here get this along with mild spasticity and myoclonus?

I remember you said something about you getting severe cramps as well, to the point the muscles in your legs showed sign of damage on scans. If these two things are connected, I wouldn't say this twitching is "benign".

"Oh yeah, I get these fasciculations too every now and then. In my left ventricle," he thought as he watched the cardiologist's video short... ... ☝️🤨presenting to the emergency room

I have bfs… both calves for me all day everyday .. my left thigh twitches a lot I would say there my hotspots… also I get and have had them in my hand/thumb area.. lip eye lid shoulders biceps / triceps but they come and go whenever they want. But mainly it is my legs. And not going to lie these annoy the hell out of me as I’m typing my quad is going. Yes I’ve been down the rabbit hole I’ve seen a neuro he said no weakness or atrophy I’ve had them a year now. He diagnosed me benign cramp fasciculation syndrome. But I still find Myself on Google/ KZread. Worried it might be something else. To note I was fine before I had the jabs(covid) ever since not been the same

I had this as a teenager for a few years, then it went away. It returned in late 2015, around the time I developed symptoms of and was later diagnosed with a rheumatic disease. That disease is now very well managed and totally under control. Meanwhile, the fasciculations very quietly stopped one day and I can't remember the last time I noticed it. Of course people automatically assume this is MND.

I get this in eveeeeery part of my body since child. Every single finger and toe, tongue, eye, leg, elbow, shoulder, even on my nose. Can’t list them all. I know it’s nothing to worry about, but this amount of twitching, sometimes makes me worried. (Now my ear twitches)

I have this as well! Well, probably not this condition specifically, since it's only been happening for a couple of years, but I get incredibly irritating muscle twitching in my legs and eyelids. It looks exactly the same - super intense, visible twitching. It looks wild, and it's beyond annoying.

I get it in my legs sometimes, but basically every day in my right eye only. I just thought it was because I'm crazy.

I absolutely hate vertical videos but I'm gladly binge-watching yours! ❤❤❤

The artwork behind and the Tablas....fabulous.

sounds like a stress symptom, it's the closeness to your original family ;)

I've had this since I can remember!

Aw man the exact muscle is twitching for me too!! I’ve been exercising a lot, and it’s hot. Guess I’ll go drink a ton of water!

Yup. Got the same, doc. Had it my whole life. I actually suspect I also have the "alien gains" mutation that makes you dry, more easily prone to muscle cramps. With that said tho my mind muscle connection in the gym is better than everybody I know, I can tense any muscle I know of with my mind to steel.

I've had this all my life in my eyes, my left one usually and my quads mainly but it does tend to do its own thing pretty much where it wants to. I thought it was due to stress and I thought I was alone. Thank you.

I will get it in the eyes and calves if I'm deprived of sleep. Another possible cause is dehydration, I'm constantly struggling to stay hydrated.

I also have this in my calves - exercise makes it worse, hot weather makes it worse, standing around a lot (like I have today, at a wedding) also makes it worse. Hope yours gets better soon!

@paullance1258

9 ай бұрын

I have the EXACT same thing. When I workout or walk it aggravates it. Think it’s the heat too? It’s really hot right now here

@jonathonhoggarth6473

9 ай бұрын

How long have you had these?

@tyranneous

9 ай бұрын

@@jonathonhoggarth6473 Oh, at least 15 years or so for me, it started in my 20s.

@jonathonhoggarth6473

9 ай бұрын

@tyranneous mine only just started maybe a month ago, I have them in both legs and sporadically in the arm - it's worrying as he'll when you go down the asl road.

@tyranneous

9 ай бұрын

​@@jonathonhoggarth6473 Well, definitely worth getting checked out, I'd say - but it's probably nothing. Just one of those things of getting old perhaps!

This happens to me a lot. It lasts the longest in my eyes

Rohin you clearly did me and a bunch of other viewers a real solid with this short! Not only letting all of us who "suffer" from benign fasciculation syndrome know that we aren't alone, but you also gave it a name, so we know what to call it. Thank you! (seriously, I thought this was yet another aspect of my body that is uniquely broken in me, it's a tremendous relief to know that it's not only common, but it's benign. I never mentioned it to a doctor because it was never happing during a checkup, so I didn't want to claim what I thought was a totally bizarre and off-the-wall symptom if I couldn't show the doctor. This is truly a relief to know about)

Hey Rohin, Im a Neurologist and have bfs my self for about 9 years now. For me it started after a respiratory infection with twitching of my upper right lip and then after 2 weeks progressed on my hole body. I was in my second year of residency and i guess you can imagine what fears for other diseases that started for me ;) After about 2 years the fasciculations got less and it's about the same for me. I have them most of the time in my gastrocnemius. After the beginning of my symptoms my risk for muscle cramps went up as well now it's nearly back to normal in comparison to before. But i experience the same wake-up gastrocnemius cramps at times as well. Unfortunately due to the benign symptoms there isn't really a lot of research done in this disease but i would bet that there is an antibody associated with it (due to it starting after my respiratory infection)

@stevenmiles143

9 ай бұрын

You should test for CASPR 2, LG1, and VGKC antibodies. I've tested positive for VGKC. This is indeed an autoimmune disease, and nothing too benign about it. It gives me heart arrhythmias, dizzy spells, brain fog, disorientation, in addition to twitching for the past 3 years.

@TheLilalaunebar

9 ай бұрын

@@stevenmiles143 thanks for the feedback. I was tested for VGKC at the beginning of my symptoms and was negative so LGI1 and CASPR2 were not analysed. I have no autonomic symptoms either. So the diagnosis for my symptoms at least in Germany is called benign fasziculation syndrome. The symptoms that you are describing sound more like a Morvan syndrom which is often assoiciated with CASPR2 antibodies. Did you test positive for these? Did you have myotonic signs in the EMG? Did you get checked for a thymome? If you have sutch severe symptoms maybe a i.v. steroid pulse therapy or even plasmapheresis may be indicated.

@anniecrowther8423

8 ай бұрын

Mine started after catching Covid.

@CoraleComics

7 ай бұрын

​@@anniecrowther8423me too. After Covid I've been suffering from muscle twitching everywhere, every day.

@Danil-iy9yg

7 ай бұрын

@@stevenmiles143is it possible to fix it?

I had this twitching from my teens through my twenties, but sometime in my thirties it tapered off and eventually stopped. Looking back, the twitching decreased as the frequency of my migraines increased, though they may not be related. I certainly don't miss the twitching when it happened in my eyes, though even that was better than migraines.

@jo1103

Ай бұрын

Did u have only in ur eyes? I have in whole my body and hate it 😢

@Bacteriophagebs

Ай бұрын

@@jo1103 No, it was in a different place every day. The only time it really annoyed me was when it happened with my eye.

Woah, the way your leg muscles are really getting involved in that twitching! I get it a lot with my eyes, whether it’s an eyelid or somewhere nearby, and other places less commonly… also in my knees and thereabouts (strong technical term there), but not with quite the same ferocity as this! SUPER annoying though, so if you ever figure out a way to calm them down, I’m all ears. (I’ve been trying to make a conscious effort to flex my toes upwards after your cramps video, instead of doing anything that might be construed as pointing them, which has staved off at least two cramps, so thank you for that!)

It's not fun when you notice your body doing this over COVID times, and since in-person appointments are disallowed, the neurologist over the phone tells you to just wait and see: if you get weaker then you have ALS and you're dying, otherwise it's BFS in which case no concern.

I used to get that occasionally. Same places too!

Would be interesting to know if you checked your diagnosis with a neurologist. Looks like a lot of people have similar symptoms - but are unsure wheather one should check them out.

Interesting information thank you for the straight forward explanation.

I get this when I exercise, although my twitch is slower than yours.

Since you mentioned it in that video I've had it almost every day. I've always had it but I rarely notice it anymore

I have that too. It tends to flare up for me when I don’t sleep well consistently.

Oh my gosh!!!! I wondered what I had! Thank you.

Ohh god!! Thank you so much for this! I have been facing this since a year

I have had this since I was a child too but I get it only very rarely, then a stint of it and then it goes away again for a long time. I wish I knew what the trigger was, the one in the eye is super annoying.

finally have a name!! i’ve been dealing with this my whole life thank you sm 😭😭😭😭

Have had the same condition tho never knew the name, always just chalked it up to dehydration or potassium deficiency

@christopherellis2663

9 ай бұрын

Likely causes

@peiteetoh

3 ай бұрын

I’m worried of associating with ALS, I read that it is an early onset symptom 😢

Please do come to Nepal if you happen to visit the area again!

I also get this occasionally, but today was the first time I heard it's proper medical term. Learning is awesome.

ooh i get that sometimes. But other times I go for years without it. I always assumed that it was down to being stressed or not.

Yeah, it's pretty annoying. I hate it when my eye does it when youre in meetings or with people as not everyone would notice, because I wear glasses, but I can feel it and you have that pause at times...

Whenever I overdo bicep curls, my right bicep keeps twitching for couple of days. But then it goes away

Oh shit I’ve had that for most my life as well, I just never thought too much about it since it’s not exactly debilitating only just a little uncomfortable, but it tends to pass quickly. Thanks for putting a name to it and giving us some info about it

I used to get this a lot as a kid, recall eye twitches in maths lessons. Never painful just odd, haven’t had it since before menopause. Think it must be a sign of intelligence ! 😂

currently watching as my left deltoid twitches like a teenie on a rave.....

I get this often enough as well. I find it more amusing than anything.

Thank you doctor for information ❤

This has happened to me ever since I had the covid vaccine. Happens all over my body and inside organs too. Very annoying and scary but hoping it is benign like yours. Thanks for sharing the vid.

Good to know it's harmless. Have it sometimes too.

This has been happening to me from 2015 till this day😢

@hydrochloricacid6731

7 ай бұрын

Why the sad emoji, this has been happening to me since I can remember and it's literally never bothered me.

Oooooooooh that's what this is! I've never had it very extremely but I always wondered about it when it happened. Particularly annoying when I get it in one of my eyelids

Wow, I get these in my shoulders and biceps a lot. everyone has always said I was crazy

Oh my God!!! I get this in my left shoulder blade regularly! I have no medical background, but teach PE and Science so regularly and ignorantly assume I know way more about human anatomy than I actually do and decided it was obviously a sign a heart attack/aneurysm was on the way in the near future (because I lack knowledge of anything else involving veins and arteries), thanks for clearing this up. I should just probably drink more and take electrolytes after 20k runs? Slightly expecting “the only exception is your left shoulder, in that case you’re dying”

Thank you. I have had this, mainly on the sides of my neck ever since I took a ten day meditation retreat. If I concentrate in meditation, they will tighten and then release. My muscle knots would do this if I am meditating and concentrating enough and then they'd release. But the ones in neck constantly return, it's annoying sometimes.

Oh shit i get something like that every once in a while, though definitely far less pronounced. Always freaked me out because it reminds me of a TMNT episode

my father had similar twitching but to a much higher degree. Turns out it was Multifocal motor neuropathy (MMN). Luckily he lives in Canada where treatment is free as it is VERY expensive treatment otherwise.

well hot damn, now I have a name for it! good to know that it's benign; I always figured so since it's usually inconsistent and goes away on its own as you say, but having confirmation is a comfort!

Oh I thought that was just part of having a benign tic, sciatica, or my funny transient Bell’s palsy. Good to know!

I have the same thing. My quad aswell, but it's a muscle closer to the knee or something. I also have cramps though mostly in my calves. Almost fainted from one when i was a teenager. awful all around.

@TheNapalmFTW

9 ай бұрын

SAME

Neat! So this is what I have! I get those same leg and eye twitches in phases, but for the last week or so I’ve had it in my tensor tympani, which is quite annoying. It seems to show up out of nowhere and then the same muscle will randomly have twitching bursts dozens of times per day for a couple of weeks before going away just as abruptly.

I used to have this frequently in my legs and also eyelids... I did a lot of exercise back then. Cycling, basketball, tennis,... Now I do less, but never had it since 19+ years...

Can you do a brief explanation on the differences between BFS and ALS?

@hydrochloricacid6731

7 ай бұрын

If you don't get muscle weakness it's not ALS.

@jamesdean9957

7 ай бұрын

@@hydrochloricacid6731 clinical weakness or it feels weaker?

I have this on and off in my back (my lats specifically) and my quads. Recently below my eye too which was easily the most annoying one

I dont know if it occurreds in a specific spot but this occurs all over my body, usually the right side of my face, my biceps, and my foot

Will you be staying in Kolkata for the Durga Pujo ?

The feeling before it starts and after are starting to really suck for some reason 😅

I wonder if this has anything to do with fast twitch muslce fibres

Nahhh I get that too and it feels odd while grabbing something and I too get it on my eyelids and they sort of feel like their bubbling

I had the same thing. I did a bunch of tests and when I did a stool test I discovered i had a parasite called blastocystis, which is known to cause muscle twitching when it spreads in the body from the intestines. Over the year I had muscle twitching what helped the most to reduce it was 3 day dry fasting and probiotics and some cleansing herbs. But what really helped almost eliminate it was artemisinin. It’s a powerful herb that is used against malaria that also kills blastocystis. Hope this information helps.

I get it too, usually in my upper eye lid, but I've also had it in my leg, hand and back. I find that, for me, it is often associated with extended periods of stress or sleep deprivation.

I remember my father developed this about three years before the ALS diagnosed

I've always thought its a Salt balance problem. Like if I excercise and forgot electrolytes, it usually starts.

I used to get these a lot. Great to know they are harmless.

I thought I was just weird, and that it was maybe just a symptom of my anxiety? I never thought about it and never really considered it was an actual condition?

Over 6 months now this has been happening to me , and it is all over - from my face all the way to my legs ! Something is wrong with my body , been undergoing tests and have had failing health for 3 years now but a lifetime of chronic pain .

Current got it going on my right shoulder

When I hear fasciculation I think bad, bad things. Good to hear there's a benign version!

Ah yes, I had this regularly for a few years, mostly in my forearms but sometimes my legs as well. Didn't know what it was called until now though, thanks for that!

My coworker has an intensely twitchy muscle in his lower leg, but he says he doesn't even feel it happening. Super weird, looks like it's getting turnt at a rave.