Multiple Sclerosis - Walking/Stairs - I’m thankful for the challenge.

3/27/20 9:30 pm Nothing new. I’ve been in this condition in one form or another for a long time.

Пікірлер: 131

  • @jomamapalmer9223
    @jomamapalmer92232 жыл бұрын

    You’re amazing!! You don’t give up n won’t give in to MS! I’m right where you are in my gait. It’s crazy becuz what you do, I do; bend forward, shuffle, etc. But I too am not stopping…MS is said to make you weak n mess with your brain function. But I say, MS has made me strong 💪 n I am determined to move forward n never stop!! We are NOT our circumstance and by the Grace of God, He’ll see us through this. He’s the Great Physician n nothing is impossible with Him🙏 Thank you for sharing, you encourage me.

  • @summersuetholz7884
    @summersuetholz78843 жыл бұрын

    This is so amazing. What determination and mental strength... Just wow

  • @denisek292
    @denisek292 Жыл бұрын

    Wow, you’re very impressive! As someone with secondary progressive, and with major falling issues just getting out of bed, I’ll admit I was anxious watching your video. You’ve given me hope PT can restore my ability to walk. Thank you for sharing!😀

  • @lizmorgan5463
    @lizmorgan5463 Жыл бұрын

    Watching you today as given me so much inspiration ,I've got parkinson's, and I get angry ,and think why me ,,but i had a good life, I'm 74 ,,,and now I thank God,,,,,bless you and your family,,

  • @willpan6659
    @willpan66592 жыл бұрын

    Keep going man! This is amazing don’t quit!! Be mobile stay mobile keep moving! You got this!!! I miss being able to walk like this Don’t quit!

  • @stevecolvin1650
    @stevecolvin16502 жыл бұрын

    And yet every single time I walk into your business I'm greeted with that great smile of yours. You're a Beast.

  • @kathylopez1336
    @kathylopez13362 жыл бұрын

    Very good I too walk just like you and you are a source of encouragement to me sometimes I just want to give up It's unfortunate that my MS has caused my marriage to be in trouble Because my husband can't believe how much I have changed and he gets alarmed when he sees that it looks like I may be getting worse

  • @shawnmcanthony5724
    @shawnmcanthony57242 жыл бұрын

    Wow you have great determination.I have had ms since i was 21 i am now 48. Going to the gym helps. Now using a cane a month ago.My wife encouraged me to use one

  • @larryhayez
    @larryhayez2 жыл бұрын

    I'm just like you the neurologist told me to use them or lose them keep going man

  • @janehouska3605
    @janehouska3605 Жыл бұрын

    Keep moving man! Well done! I’m right there with you. Everyday is a new challenge. StY strong 💪💪💪

  • @joesiders7388
    @joesiders73883 жыл бұрын

    Thank You so much for sharing this. Should be proud of yourself!

  • @aletheia25
    @aletheia253 жыл бұрын

    Bravo Joe! Coraggio! Continua così. Saluti dall'Italia

  • @linnpennell6102
    @linnpennell61022 жыл бұрын

    You go buddy. I have MS as well and that's what it's like. I tell people that I'm not drunk. I have MS.

  • @brianschmitz2163
    @brianschmitz21632 жыл бұрын

    Thanks for posting this. 💜 I have similar movement issues and felt every awkward motion and understand why you do it. I too, often wonder how I appear to others. This video helped me understand that better.

  • @Ms.Tucker89
    @Ms.Tucker892 жыл бұрын

    I WAS DIAGNOSED WITH RRMS IN APRIL 2021 & I CAN RELATE TO THIS SO WELL... FEELING LIKE YOUR ABOUT TO FALL LOOKING FOR SOMETHING TO LEAN ON OR JUST TOUCH... FEELING LIKE MY WHOLE BODY WAS JUST COMPLETELY FOLDING OVER I WAS EXPERIENCING DROP FOOT AS WELL TRIPPING OVER MY OWN FEET... BUT THE HEAVY LEGS ONE DAY WEAK THE NEXT & BALANCE HAS TO BE THE WORST... I HAVE BEEN ON AMPYRA FOR 6 DAYS NOW & THE IMPROVEMENT I SEE THUS FAR IS AMAZING... I HAVENT BEEN ABLE TO MOVE AROUND OR STAND IN MONTH'S LIKE I AM AFTER TAKING AMPYRA! MY ENERGY IS UP, I WAS IN A DEEP DEPRESSION & I'M GLOWING RIGHT NOW! I LIVE ON A HILL & MY LOCAL STORE IS AT THE TOP NOT A LONG WALK BUT LONG WITH MS SHIT IMPOSSIBLE... BUT TODAY I WALKED UP & DOWN THE HILL WITH NO PROBLEM! PLEASE FOR ANYONE WHO READS THIS & HAVING WALKING ISSUES TRY AMPYRA!

  • @denisek292

    @denisek292

    Жыл бұрын

    Thank you for the suggestion. Surprisingly, I heard about it over 10 years-ago, but just started falling as soon as I get out of bed. Tired of being eye-level with my Westie, who looks at me like I’m nuts!😂

  • @Aim4God
    @Aim4God Жыл бұрын

    Watching this was inspiring and motivating. Thank you for sharing this! May healing come to you and everyone here!

  • @shawnmcanthony5724

    @shawnmcanthony5724

    8 ай бұрын

    I ❤ you

  • @aurelienmatthews6511
    @aurelienmatthews65113 жыл бұрын

    I am like this. I was diagnosed with multiple sclerosis

  • @sheridanrose9880
    @sheridanrose98803 жыл бұрын

    I have Primary Progressive and I can totally relate to your post! It’ll be easier to show to my doc! Thank you!

  • @NeilBradleyMS
    @NeilBradleyMS3 жыл бұрын

    I can totally relate to your mobility issues, so sorry. Hope things have improved since shooting this video.

  • @sushmasharma-jh1cl
    @sushmasharma-jh1cl2 жыл бұрын

    I was diagnosed year ago...I have started cycling ..and it has helped me a lot..grt...u keep us motivated ....

  • @drpixels4728
    @drpixels47283 жыл бұрын

    Keep moving... prayers and love

  • @billiemarie7078
    @billiemarie70783 жыл бұрын

    A few days ago i started walking very similar to this im waiting to get another MRI to see if i have MS.. stay encouraged❤💯

  • @idraculaa

    @idraculaa

    3 жыл бұрын

    Same for me, my first MRI showed nothing, waiting for more results. All the best for your journey ✨

  • @billiemarie7078

    @billiemarie7078

    3 жыл бұрын

    @@idraculaa thank you peace and blessings to you

  • @Garpot

    @Garpot

    3 жыл бұрын

    @@idraculaa how are your test results? I was diagnosed June last year...Stay strong!

  • @Garpot

    @Garpot

    3 жыл бұрын

    How thing with you? Any update? Stay strong!

  • @kathylopez1336

    @kathylopez1336

    2 жыл бұрын

    Pls try to walk on a regular basis, I believe that if I would hv kept my regular walking up I may hv not been so badly affected as I am now, but I'm not giving up

  • @davidjustdavid3955
    @davidjustdavid39552 жыл бұрын

    Hello from Melbourne Australia. I have GBS and recently had covid which had made the condition worse and can relate to this video . I hope your condition had improved and i look forward to your story of improvement. Staywrll and God Bless

  • @jg102xc

    @jg102xc

    Жыл бұрын

    God bless you, too.

  • @VerbalOnLife
    @VerbalOnLife2 жыл бұрын

    Wow amazing challenge. Good work and keep walking!!

  • @johnjkizer6399
    @johnjkizer6399 Жыл бұрын

    Your doing amazing, keep up the hard work, I know there are good and bad days because I am a quadriplegic and deal with the same issues, God bless you

  • @jg102xc

    @jg102xc

    Жыл бұрын

    God bless you, too.

  • @cristobalrodriguez8693
    @cristobalrodriguez86934 жыл бұрын

    Proud of you

  • @Themsmystorypodcast
    @Themsmystorypodcast3 жыл бұрын

    all love

  • @1rosabonita
    @1rosabonita3 жыл бұрын

    You did a great job you did all your effort think positive bring it to Jesus Christ to heal you and I believe and step in Faith Amen

  • @wendywebster5920
    @wendywebster59204 ай бұрын

    Tada! And you are the top of the stairs. Well done, sir. I know how this feels, though I am not as far as you. Though climbing stairs indeed feels and looks like one is going up the stairs on a moving ship (in a decent storm). Been there plenty of times. I am glad to see that my house is mostly ground level. The stairs to the attic is quite narrow, so it doesn't give me much room for the potential "falling over". Keep going!

  • @Garpot
    @Garpot3 жыл бұрын

    Joe - how are things with your MS? I feel ya...my MS very similar to your walk my friend...stay strong...you have a lovely family and friends for support!

  • @karenfuhr1
    @karenfuhr13 жыл бұрын

    all the love to you.

  • @daveolep7657
    @daveolep7657 Жыл бұрын

    It take about 1 to 3 months for the tumeric and black pepper , kale , bitter melon ,cilantro , parsley to work stay blessed God bless you .

  • @jg102xc

    @jg102xc

    Жыл бұрын

    God bless you, too.

  • @sweetmama6314
    @sweetmama63145 ай бұрын

    I use imagery where I see myself walking in my mind's eye. The stairs, you are brave running man. 🏃‍♂️

  • @Ms.Tucker89
    @Ms.Tucker892 жыл бұрын

    OH GOD THIS BREAKS MY HEART BECAUSE I KNOW ALL THAT HE IS FEELING PHYSICALLY & MENTALLY

  • @vanessapalacio8756
    @vanessapalacio8756 Жыл бұрын

    I saw myself in this video thank you for sharing.

  • @Tns85
    @Tns854 жыл бұрын

    You got this!

  • @Tns85
    @Tns854 жыл бұрын

    I was dx 5 years ago. Keep moving, it helps a tremendous amount

  • @jg102xc

    @jg102xc

    4 жыл бұрын

    Teresa Nigro this summer will be 21 years for me. Staying active is definitely good. Just don’t over do it. I have multiple times over the years and paid for it.

  • @Tns85

    @Tns85

    4 жыл бұрын

    @@jg102xc i know what you mean. I had a horrible relapse last year and was out of work for 10 months

  • @paullaw6988

    @paullaw6988

    3 жыл бұрын

    @@jg102xc Hi Joe Gagliano, how are you? Keep up your practising your walk and exercise everyday. Keep moving, it helps a tremendous amount. I will keep you in your prayers. You will get well and better soon. Kind regards, from, PaulLaw.

  • @usualobject0
    @usualobject04 жыл бұрын

    This was me 2 years ago...sending you prayers 🙏

  • @jg102xc

    @jg102xc

    4 жыл бұрын

    Thank you! I hope you are doing better.

  • @traceyl9959

    @traceyl9959

    3 жыл бұрын

    Are you better, if so what did you do to get better?

  • @paullaw6988

    @paullaw6988

    3 жыл бұрын

    @@jg102xc Hi Joe Gagliano, how are you? I will pray for you to get better soon. God bless you!!! Hope you doing well. Kind regards, from, PaulLaw.

  • @ObamAmerican48
    @ObamAmerican485 ай бұрын

    Way to power thru, man.

  • @user-xu1rt5qp7b
    @user-xu1rt5qp7b8 ай бұрын

    You're doing great

  • @IZZFC7
    @IZZFC78 ай бұрын

    Thank you for sharing.

  • @Sonyakparker
    @Sonyakparker3 жыл бұрын

    I haven’t been able to get a DX yet. But I have very similar symptoms walking too!!! I have had child service called on me saying I was drunk all the time and doing drugs. Thank goodness I keep a copy of most medical. Keep your head up I live in NM and we have some crappy drs. I am fixing to go back to UNM again and they want me to go to the mayo but insurance is having a difficult time agreeing. Thank you for ur share of your walking it helps to know your not the only one. Blessed be

  • @sewlovemydogs

    @sewlovemydogs

    3 жыл бұрын

    Ask for an MRI from your Dr or a referral to a neurologist as soon as you humanly can. The longer it takes for you to begin medication to top the progression of MS the more compromised you will be. You can’t get back the mobility you’ve lost, but the MS medication will stop it in its tracks. I wish they’d realised I had MS sooner. Please take my advice, I’m not an authority on anything, but I do know this. Take care. Act now.

  • @Sonyakparker

    @Sonyakparker

    3 жыл бұрын

    Heidi Newbery I have seen teams in major hospitals here in NM and Close to me in TX. In 6 years I can’t tell u how many MRI I have had for muscle weakness and optic neuritis. Have had more than 6 lumbar punctures muscle biopsy lab work and so so many hospital stays. Here they pretty much say idk what’s wrong it points to MS with out clinical findings. I have tremors so bad and walking problems I now threw my insurance I have a care giver cause it is difficult for me. Old what to do any more.

  • @sewlovemydogs

    @sewlovemydogs

    3 жыл бұрын

    Sonya Parker are you seeing a neurologist

  • @Sonyakparker

    @Sonyakparker

    3 жыл бұрын

    Heidi Newbery yes but he has stated the same thing and wants to send me to UNM here in NM. I don’t know what else to do.

  • @toddmilligan6603
    @toddmilligan66033 жыл бұрын

    I have to use a walker or cane unless there are walls or furniture close by. Good video.

  • @zeronim1
    @zeronim1 Жыл бұрын

    Exactly like I use to walk two years ago! Keep going bro!

  • @zeronim1

    @zeronim1

    Жыл бұрын

    Also if you want to talk I'm up for it

  • @jg102xc

    @jg102xc

    Жыл бұрын

    @@zeronim1 how are you doing now?

  • @zeronim1

    @zeronim1

    Жыл бұрын

    @@jg102xc doing much better after being in contact with an Irish doctor. High d3 and the right form and dose for you

  • @Ms.Tucker89
    @Ms.Tucker892 жыл бұрын

    THE DRUNK WALK UGH! BEFORE BEING DIAGNOSED WITH RRMS I WAS HAVING WHAT I KNOW NOW AS SYMPTOMS & I WOULD BE TRAVELING HOME FROM WORK ON PUBLIC TRANSPORTATION & PEOPLE WHO BE LOOKING AT ME BECAUSE I LOOKED CRAZY I LOOKED LIKE I WAS DRUNK & WAS SOBER COMING HOME FROM WORK! AS A FEMALE TRAVELING I STARTED TO FEEL LIKE A TARGET LIKE SOMEONE WOULD TRY TO TAKE ADVANTAGE OF ME THINKING I WAS UNDER THE INFLUENCE 😩🙏🏽 I HAD TO START TAKING UBERS SMH

  • @pennsyltuckyreb9800

    @pennsyltuckyreb9800

    Жыл бұрын

    I'm currently awaiting an official MS diagnosis. Still going through all the testing. I do have 3 lesions on my brain and 3 mysterious non-cancerous tumors (hemangiomas) that popped up out of nowhere. Past month my walking gait as been severely affected. I'm not as bad as the video above...more stiff style if that makes sense. Anyway, I always get looks now like I'm a crazy person, drunk, or get that "dafuq is wrong with you?" Stare. Sucks.

  • @theluckyman74
    @theluckyman742 жыл бұрын

    I, have been dealing with walking issues, for over 5 years now, and really, have no idea, what disease, I have, because, my overpaid doctors, refuse to send me to a Neurologist. My gut, is telling me I probably have MS, but can't say for certain. Today, I, had a horrible day, walking around just as bad as yourself. Keep in mind, I am also dealing with parathyroid disease for the past 6 years and, found a surgeon in California, that is going to operate free. I, also had, a heart transplant on Easter Sunday April 15 2001.

  • @ScareBearGirl
    @ScareBearGirl3 жыл бұрын

    im starting to walk in a similar way, its very jaring. Waiting on Getting a MRI rn

  • @hanskrieger8674
    @hanskrieger8674 Жыл бұрын

    Wonderful

  • @gabbyfranks78
    @gabbyfranks783 жыл бұрын

    Keep your head up. I've been curious about Ocravus. I heard its making MSer's walk again.

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    Gabby Franks I’ll be getting my second dose fairly soon. Hard to say yet but I’m better than I was, so far.

  • @gabbyfranks78

    @gabbyfranks78

    3 жыл бұрын

    That's great. I hope you see major improvement each round. Do you have side effects if so what are they? I wanna try this. I've heard nothing but good things from others. Good luck

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    Gabby Franks the first dose was split in half but it didn’t bother at all from what I remember.

  • @sewlovemydogs

    @sewlovemydogs

    3 жыл бұрын

    Please tell me what this is, does it help with fatigue? I’m in Australia and haven’t heard of this drug.

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    @@sewlovemydogs I’ve only had two doses so far. I’ll do a follow up video fairly soon.

  • @abee2685
    @abee26852 жыл бұрын

    It has helped me considerably to have a rail up either side of my stairs so on bad days I can almost pull myself up them. Could you attach more up your walls the whole way? Best wishes to all fellow sufferers.

  • @jg102xc

    @jg102xc

    2 жыл бұрын

    We sold that house last year. I don’t have to use any stairs in our new house unless I want to go downstairs..

  • @Ms.Tucker89
    @Ms.Tucker892 жыл бұрын

    JOE CAN WE GET A UPDATE !

  • @byron2521
    @byron25212 ай бұрын

    I have MS, his motions are like looking in a mirror. going up steps is one of the hardest things for me. Sometimes I have to get on all 4s if there is no rail.

  • @IamCurrentlyAscending
    @IamCurrentlyAscending3 жыл бұрын

    I spent my January like that. I've been there and I know how much it sucks. But I also know how much it takes to do all that, hats off to you my friend. MS can kiss my ass.

  • @indie5826
    @indie58262 жыл бұрын

    I get what you are going through, the only change I would say is , save some energy and go straight upstairs and hand on the banister first on youf right to be safe.

  • @theadventurekidz-scienceho843
    @theadventurekidz-scienceho843 Жыл бұрын

    I have flares on and off and walk like that but my balance can be worse. I feel like it’s something going on in my head when this happens. Worse with activity

  • @gwenniewennie8325
    @gwenniewennie83252 жыл бұрын

    Im walking like this now. Im having a relapse. I see my doctor on friday any way so i hope it doesnt get worse ny then.

  • @daveolep7657
    @daveolep7657 Жыл бұрын

    A lot of tumeric the fresh one an al lot of black pepper . Bitter melon , kale , olive oil .

  • @codycommentsonvideos5755
    @codycommentsonvideos57552 жыл бұрын

    Ive been having a lot of balance problems. I now hate walking because my legs always hurt a lot afterwards.

  • @kahdijahali8022
    @kahdijahali80222 жыл бұрын

    💪🏻

  • @chriswilliams7824
    @chriswilliams78243 жыл бұрын

    Great achievement warrior. With MS every action is a grand gift. Have you tried the Terry Wahls Protocol/diet? Her routine has proven effective. I've yet to try it. Her interviews are useful though. Stay💪 and🥗.

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    Yes I have. Not currently following it but my diet is very strict. It has helped me a lot.

  • @debbiramsey4603
    @debbiramsey46033 жыл бұрын

    The Sago Mine Disaster victim had lost his myelin sheath on the limbs in the disaster times, they gave him fish oil and he regret them hich I be never hard of and I'm 69" so you know what I'm thinking.. am I wrong but us multiple s some how relaTed.. ..I can't recall. Just a thought anyway. Prayers for you. I've had co workers with it. I'm nobody. I'm just thinking out loud, I'm probably way off.

  • @user-nn7gy1qy3f
    @user-nn7gy1qy3f3 жыл бұрын

    МОЛОДЕЦ! Привет из России!!!

  • @Ruth_T
    @Ruth_T3 жыл бұрын

    Does this come and go or is this constant?

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    I’ve basically been like this since the very beginning. It wasn’t this bad early on, it’s just progressively gotten heavier and more stiff over the years. Some days are worse than average and some are better but always a struggle/not being comfortable.

  • @joshuawinne
    @joshuawinne4 жыл бұрын

    Do you still feel like you are getting better or worse?

  • @jg102xc

    @jg102xc

    4 жыл бұрын

    Joshua Winne the last year has been a roller coaster. I get worse, I get better, worse then better.. I’ll be putting up more videos, soon.

  • @joshuawinne

    @joshuawinne

    4 жыл бұрын

    My mobility is about the same as yours but I am like that all the time. I just had to stop working and am currently applying for disability. Good thoughts your way my friend

  • @jg102xc

    @jg102xc

    4 жыл бұрын

    Joshua Winne sorry to hear about your struggles. My level of difficulty to move varies but this is what it is and has been for a long time. Wishing the best for you and yours, too. God Bless.

  • @kmg2497

    @kmg2497

    4 жыл бұрын

    Sometimes I feel like I’m the only one who struggles with these issues . Some days are easier than others. Stairs: Haven’t quite figured out a good way to do those yet! Thank you for being brave enough to share this video.

  • @paullaw6988

    @paullaw6988

    3 жыл бұрын

    @@jg102xc Hi Joe Gagliano, do you still feel like you are getting better of worse? Wishing you the best and your health. God bless you!!! Good thoughts are on the way. Kind regards, from, PaulLaw.

  • @1rosabonita
    @1rosabonita3 жыл бұрын

    he needs to use a walker So he does not lose his balance,and don't get hurt,there is nothing wrong using a walker

  • @joshuawinne
    @joshuawinne4 жыл бұрын

    Do you know Jeff Campbell?

  • @jg102xc

    @jg102xc

    4 жыл бұрын

    Joshua Winne yes.

  • @joshuawinne

    @joshuawinne

    4 жыл бұрын

    @@jg102xc I'm orginally from Auburn too. The Campbells were a family friend growing up. I was going through some of Jeff's texts back and forth were he wrote your name and said MS. Sad about Jeff, he was miserable though. I hope he found release.

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    @@joshuawinne poor Jeff. I’m sad he’s gone but happy that he is now free.

  • @joshuawinne

    @joshuawinne

    3 жыл бұрын

    @@jg102xc how you doing man?

  • @josephmalter670
    @josephmalter670 Жыл бұрын

    This guy looks like me and walks like me AND his name is Joe!

  • @davidalbro2009
    @davidalbro20093 жыл бұрын

  • @Ruth_T
    @Ruth_T3 жыл бұрын

    Is this painful for you?

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    Minus never being comfortable it’s more frustrating than anything..

  • @Ruth_T

    @Ruth_T

    3 жыл бұрын

    @@jg102xc are you taking anything for it? I get spasms in my legs but they are painful and they put me a muscle relaxer which helped a bit but I still get the tightness which to me is weird and uncomfortable.

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    @@Ruth_T I’m currently taking Ocrevus. I just had my 3rd dose a couple of weeks ago. Leg spasms drive me nuts, too..

  • @Ruth_T

    @Ruth_T

    3 жыл бұрын

    @@jg102xc I haven’t been diagnosed with MS I just get very bad spasms in my legs and I work on my feet and it disabilitates me to the point where I had to go to the dr. But they aren’t doing much. It came to the point where I had to cut down to work to 20 hours a week because I just can’t be on my legs that long. But for me it’s painful so idk I’m just curious I wish I knew what was going on

  • @jg102xc

    @jg102xc

    3 жыл бұрын

    @@Ruth_T I wish you the best. Keep in touch.

  • @markhetz1119
    @markhetz11193 ай бұрын

    Is it painful

  • @jg102xc

    @jg102xc

    3 ай бұрын

    I've been thinking about how to answer this for awhile. It's complicated. I think a video will be better. Talk soon..

  • @markhetz1119

    @markhetz1119

    3 ай бұрын

    @@jg102xc 👌🏻🙏🏻

  • @user-jg8yz8ji9r
    @user-jg8yz8ji9r4 ай бұрын

    Just like me l have ms to

  • @baronghede2365
    @baronghede23655 ай бұрын

    If you find my comment: speak to a chiropractor, try Herb's like turmeric, ginger, and Asian ginsing and try the Mediterranean diet, Blessed Be.

  • @sabtrsabtrov4067
    @sabtrsabtrov40673 жыл бұрын

    Молодец привет из Украины

  • @roshanijamodkar3082
    @roshanijamodkar30823 жыл бұрын

    Ayushprana Aayurved At Kerala for MS