Me too. I have gone from walking 2 miles just for exercise to wheelchair life in a year. Let’s stick together.

@shawnmcanthony5724

2 жыл бұрын

This disease is relentless i have it now for 20 years and started using a cane. I have a full time job but most of the time i'm tired. The neurotic pain under my feet never stops. I call the neurotic pain my best friend it is always their.

You are brave. Just diagnosed with ms. Still learning to accept it.

@ppmswiththewolfmant2818

3 жыл бұрын

Yeah it’s not easy to except but be strong there’s a site call MShealthline were people support and help on another I suggest checking it out if you need help or somewhere to vent. The people are very nice and helpful they’ve supported me and I even found my gf there. I wish you all the beast. Remember Never quiet Never back down Be the wolf 🐺.

@jkm661

14 күн бұрын

Life is doable with a lot of modifications. Keep/build your support system. And keep what others hav3 been doing in mind instead of turning to pills first go-around.

Keep your chin up bro we're all in this together!!!!!

Thomas, Ive been thinking of you, and hope you are doing as well as possible. Have a great holiday season!!!!

Hi there dude. Sorry to see your situation, it's quite similar to my own, so I can relate to the problems. I started using Apple Cider Vinegar & made a spray of boiled whole garlics & onions. Eating beetroot & brocoli + a load of other healthy natural foods & my situation has improved a heck of a lot. Exercising as much as possible to get the nutrients & minerals circulating around the body. Drink plenty of oxygenated water. All the best out there.

@ElieBlaxBlaze

2 жыл бұрын

Google pranayama. It's magical on oxygenating the body!

@demoskunk

10 ай бұрын

Do you have PPMS? So far, nothing reverses it.

@funkb0x

10 ай бұрын

Yes I have PPMS. I was diagnosed 10 years ago. Eating blueberries, garlic & oregano seem to ease symptoms. I take zero medications & heat destroys me.

Thank you. Your video helped me to show my son I wasn't about to drop dead, others are climbing up the same steep mountain. I use a walker in my apartment because of losing balance and falling. My son got a button for around my neck since I live alone. If I fall and can't get uuu

@ppmswiththewolfmant2818

5 жыл бұрын

I’m very glad I could help you to show your son that giving up and giving in is not the way. This disease will not stop use we can fight on and live a somewhat normal-ish life. I’m very happy he got you that button shows he cares for you I do hope you’re doing well. Remember never give up never give in always fight on. Best wishes stay strong.

Dude proud of your spirit man keep your head up and keep pushing I too share the same journey let’s do this MS Warriors 💪🏾

@ppmswiththewolfmant2818

2 жыл бұрын

Thank you for your comments and being one of the many MS Wolfpack Warriors

My 45 year old brother who had secondary progressive had some terrible falls from not using his cane or walker in the house. Save yourself injury and use your equipment to make your life easier. Take care!

@ppmswiththewolfmant2818

2 жыл бұрын

Thank you Barb and I do I have to use my cane 24 seven to get around. Otherwise I’ll end up tripping or stumbling and falling into something or on the floor or ground whether inside or outside.

Thank you for sharing.

@ppmswiththewolfmant2818

3 жыл бұрын

Thank you for commenting.

I’m really sorry to hear about you and your situation I also have PPMS was just recently diagnosed but I am finding success with major diet adjustments and hydration but again it’s only been three months I wish you well more importantly I think we can help ourselves by pushing ourselves supporting each other and looking into dietary changes I really am finding a lot of success but again I’m a newbie

@ppmswiththewolfmant2818

2 жыл бұрын

Thank you for Commenting on the video. I do know a few people have had luck with dietary changes I attempted that and it had no effect on my situation. I’m on several medication now and improve my walking dramatically. There is dalfamperdin personals as Ampyra for the walking drug for MS patients. I’m also on baclofen I think 3 4 X a day then there’s Amantadine for burning in my spine and scalp. I also get a infusion twice a year to sloe the progretion of the PPMS. Don’t push yourself too much you may send yourself into a flareup which will cause your symptoms to worsen. I hate saying it but there is no really getting better with this disease. There are things that will help you to slow it and keep a somewhat normal life for a while. Like canes , Walkers, wheelchairs and medication. Yes support is a big thing we all need to do we should always support one another. I guess some dietary changes can help they just haven’t helped me. I wish you good luck with your diagnosis. I hope yours does not progress like mine🤞. Remember NEVER QUITE! NEVER GIVE UP!! BE THE WOLF 🐺.

@ppmswiththewolfmant2818

2 жыл бұрын

Sorry for the late response Facebook just notified me of your comment. I do hope all is well with you.

I have the same thing. Getting my OCREVUS Infusion in two weeks. I drink protein shakes every morning. God Bless You All🙏🏻

I have back spams real bad but the yoga helped me a little. Take care

Similar walking situation here, same leg that gives me shit like not bending. Please start using your cane. I recently had to start using one, I hate it but I have fallen so much recently. Stay strong

I have ppms too! Apple cider? Taking Ocrevus. But, I’ll try apple cider.

Look into Mesenchymal stem cells i have primary progressive multiple sclerosis and that is some that caught my attention. Goodluck

@ppmswiththewolfmant2818

2 жыл бұрын

I’ve never heard of Mesenchymal stem cell what is it? Is it like an infusion of some kind a shot idk? Are you on it and if so what dose it do for MS and has it helped you at all?

@ppmswiththewolfmant2818

2 жыл бұрын

Btw thank you for subscribing and leaving a comment🤘👍 Welcome to the Wolfpack 🐺

Clinica Ruiz - Mexico - HSCT for Autoimmune Diseases

I have the swollen feet too, and it is the pits. I don't like to use my cane in the house either, but the feet are just such a pain. I have trouble finding shoes that I can get on and I used to have very small feet. :( Best to you.

@ppmswiththewolfmant2818

3 жыл бұрын

thank you for subscribing much appreciated. Finding shoes that fit is difficult I’ve found that skater shoes work best for me because they’re wide yet still comfortable.. and using a cane around the house is a pain but it’s saved me from a lot of pain from falls I could’ve had in the home. Never quit never back down be the wolf.

@cooksmary

3 жыл бұрын

@@ppmswiththewolfmant2818 Thanks so much Wolf Man. MS is not the worst thing in the world but it is no fun either. Thanks for putting yourself out there for the rest of us. I thought I might try Crocs, since they have some that are a bit more attractive out now. Have you tried them? I haven't a clue where to get skater's shoes and I am living overseas now so I dunno if this is an option for me. Who knew this would be a problem? I like the idea of being a she wolf, hhhh. I wish you good health and happiness always, and stay strong.

@ppmswiththewolfmant2818

3 жыл бұрын

@@cooksmary I always appreciate new members to the channel welcome to the Wolfpack Mary. I do hope my videos can help you in some way or at least entertain you with some of the silly videos I’ve been putting out. I have not tried crocs I am not a big fan of them if you can’t find skater shoes where you are there are plenty online if you ever thought about getting them that way. I know it’s strange to suggest but wish.com has a lot of shoes although cheaper versions and knock off’s. The shoes are still quite comfortable you just have to check the reviews and descriptions. I normally get DC shoes they seem to be some of the wider more comfortable versions of skater brand shoes. And which is a good place to find shoes very similar for a much cheaper price. Or you can find the actual brand of shoe there for a much lower price. Hope that helps you a little bit and remember never quit never back down by the wolf.

Iron overload can lead to a number of health conditions. We should tread with caution when it comes to supplements. Cod liver oil can send the ferritin levels (iron storage) sky high and this can lead to bacterial infections. Fat-soluble vitamins can lurk in the body for a long time just wreaking havoc.

@ppmswiththewolfmant2818

2 жыл бұрын

I thank you for your comments but I don’t have an issue with my iron levels. However somebody else that may read the comments of this video may have an iron issues so thank you for letting everybody know.

Living with ms is tough but ms yoga really helps with balance and walking. I didnt think it would but it helps. You tube ms yoga. You just sit in your chair and do the exercise. Please get a cane if you dont have one for balance. I fear you may fall.

@ppmswiththewolfmant2818

6 жыл бұрын

Teresa Nigro Thank you for the suggestion but do to my back cramps and spasms I can’t do to many stretches or some movements. But I will check it out and see if it’s possible for me to try them. I do have a cane already and it helps but not much anymore I have fallen a few times already btw. An I’m getting a wheelchair it will be here soon so I won’t have to worry about walking in public and falling over. Thanks for the tip and concern much appreciated. Hope all goes well for you best of luck.

I dont how i could sit for 6 hrs for an infusion, it kills me to sit for 1 hr and kills me to stand for 20 minutes. Idkwtf im supposed to do

Thanks for sharing. Are there any medications that help your situation now?

@ppmswiththewolfmant2818

2 жыл бұрын

I get a Ocrevus infusion twice a month it helps to slow down the progression. I also take amantadin for fatigue Close today baclofen 3 4x a day for clones or the bouncing and tremors from the spasticity In my legs and back. I also take Gabapentin for burning itching and scratching feelings that happened in my back Head and arms now.

They say you live long with ms. But with all that neurotic pain it really does not make one feel good , you just get DEPRESS🤔

@ppmswiththewolfmant2818

Жыл бұрын

Yes you can live a long life with MS and the neurotic pain never stops it only continues to worsen. But there are ways you can manage with it. I mean there’s not a lot of ways that really stop it it’s always kind of there. Either you find something that kind of works for you. Or over the years you can become numb to it kind of like me. Still hurts like a mother flipping son of a itch sometimes but I find ways to deal it’s all I can do. I tell my doctors but I don’t want to take more medication than I already am it’s messing with my weight my sleep my appetite and I just don’t want any more stress from taking more pills. I hope your neurotic pain doesn’t end up as bad as mine and or if it is already I’m sorry you have to deal with that it sucks.

do plenty of research on HSCT sir,... they do it in Mexico,.. it can drasticly improve MS, but doesn't cure it etc

I have PPMS VERY BAD BALANCE AND I WALK WITH A CANE

I pray you get a cane soon or walker. God keep you

search for HSCT stem cell treatment for MS

Hey, what is your attitude towards HSCT? Would you try it or rather wait for better treatment in the future?

@ppmswiththewolfmant2818

6 жыл бұрын

Mimi Winter Idk I’m willing to try anything that could help me get back somewhat of a normal life again.

@mimiwinter6615

6 жыл бұрын

My multiple sclerosis documentation I can totally understand you! Do you know if there are any promising studies PPMSler might be able to take part in?

@ppmswiththewolfmant2818

6 жыл бұрын

Mimi Winter ocrevas infusions if available.

@mimiwinter6615

6 жыл бұрын

My multiple sclerosis documentation Have you also heard about the stem cell trials from the Tisch centre MS in New York? They sound like kind of a hope

@ppmswiththewolfmant2818

6 жыл бұрын

Mimi Winter I haven’t really looked into stem cell research to be honest I’ve just been going by faith and my neurologist recommendations.

Hey sir,... have you heard about HSCT treatment?

@ppmswiththewolfmant2818

2 жыл бұрын

No I haven’t what might it be?

@COURTESAN_BAND_UK

2 жыл бұрын

Mexico HSCT for MS & Autoimmune Diseases

@COURTESAN_BAND_UK

2 жыл бұрын

HSCT Mexico - Treatment Timeline

I’m sorry babe 😢

Hi there wolf me ppms can you help me abot what you eat what you do sport ex please inform me i m waiting ocrevus and me getting thinner and thinner my muscles are getting thinner and thinner

@ppmswiththewolfmant2818

9 ай бұрын

I don’t play sports any more don’t have the balance to. But swimming is good for keeping up muscle tone as for fruits and vegetables I don’t do a lot of that 😂. I stick to a meat and potatoes diet.

Hlo bro I m 24 year old and I am also hereditary spastic paraparesis disease but I do not understand what can I do

@shawnmcanthony5724

Жыл бұрын

Try an exercise even on a stationary bike. GO FOR IT😎😎

Can anybody help me for food and sport activities me ppms.and waiting ocrevus plase help me

@ppmswiththewolfmant2818

9 ай бұрын

I don’t do sports anymore because I don’t have a balance for it sadly. I hear swimming is a good activity for muscle building and training. I do hope that helps. Maybe somebody else will have better tips..

@zeezedd-nq6ht

9 ай бұрын

@@ppmswiththewolfmant2818 thank u so much don't u try swim even a little activities