Thank you for this update. Being a Type 1 (autoimmune diabetes), I have been saying for years that if my glucose levels go up, my symptoms get worse. But it's also vice versa. I always took pride in how well I managed my T1d. And as I progress and get older (I'm in mid 50s), both diseases get harder to to manage. I've had T1d 42yrs & my 1st major MS symptom was 21yrs ago.

Thanks so much for all the hard work!

@babaipuspendu752

2 жыл бұрын

Where are you from brother?

thanks!

Great video. How close we are to myelin repair and where it may be done.

Thanks, I am curious why the flood gates into EBV research don't seem to be opening. If we have confirmed EBV as NECESSARY but not SUFFICIENT, I'd wish most MS research dollars to be digging into EBV and the viral component of MS. Thanks for sharing.

@Durace11Bunny

2 жыл бұрын

Look into Atara bio with there ATA-118 trials at the moment. That might be the game changer we need.

@barbaradascalos4411

2 жыл бұрын

@@Durace11Bunny it's called ATA 188..but it only worked in 40% of people so no cure there.

@Durace11Bunny

2 жыл бұрын

@@barbaradascalos4411 it's still early days yet and 40% is significant, if that translated to the bigger picture that would be 1 million out of the 2.5 million MS people world wide treated etc.

@barbaradascalos4411

2 жыл бұрын

@@Durace11Bunny Absolutely..that's why Fuji bought the lab/employees that made ATA 188 for 100 million..because they can use these t cells for many AI diseases and for cancers also.

@Durace11Bunny

2 жыл бұрын

@@barbaradascalos4411 I wonder why their share price took a nose dive recently it went from around $15 to around $9

I love hearing about new news but it’s depressing because my neurologist only wants to do brain MRIs “when something happens” but was absolutely unable to tell me how I’d know something was happening.

@babaipuspendu752

2 жыл бұрын

How are you now brother?

@dr.froghopper6711

2 жыл бұрын

@@babaipuspendu752 I’m getting a new neurologist. I’m not an expert but when I ask legitimate questions and get blown off, it’s time to shop around. But I’m in a Neurology desert in central New Mexico and there aren’t many to choose from.

@babaipuspendu752

2 жыл бұрын

@@dr.froghopper6711 that's sounds good, best of luck.. I need your opinion : In my research I have found that mainly pharmaceutical companies funded for researching on any kind of disease, but in MS resarch they don't fund that much that becomes of DMTs used for MS are one of the best earning source of this pharmaceutical companie's, Other hand HSCT can be a tool for MS but there are no research going for it.. What is your opinion please let me know it's very important.

@cloudy.w.no.chances

2 жыл бұрын

@@dr.froghopper6711 Good for you. I did the same. I didn't like the idea of getting MRIs only when something happened. That neurologist also gave me their email address for questions and he never replied so... i changed and I am very happy to have done the change. Good luck with your new neurologist !

@barbaradascalos4411

2 жыл бұрын

@@babaipuspendu752 check out "youtube 60 minutes Australia hsct ms" it's the best thing out there..ignore the propaganda against it.

When does remyelination occur?

@KinEllKokabel

2 жыл бұрын

It won’t.

@paul6150

2 жыл бұрын

Natural process after nerve damage. In MS reserve capacity might be exhausted or signaling pathways are blocked they don't know YET. Repaired nerves most of the time do not work as well as the original. You're body might find new ways to get some function back. Never give up on You're body!

@Durace11Bunny

2 жыл бұрын

@@KinEllKokabel it does occur, either fully, partially, not at all or thinner. It's impacted with age and disease duration.

@babaipuspendu752

2 жыл бұрын

Where are you from bro

Hi I would like to know why we don't see more research with foods and supplements, once we can find in Pubmed, basic research about MS, in animal models, etc. , still without scientific foundation, but that deserves trials in humans, once are foods and natural supplements, that can have side effects, but under medical supervision, in controlled trials. the doctors can do safe research, (and randomized double blind) i with ginger, genistein ( or even soy), curcumin, etc. (in the site of Pubmed or even in Google, when we do some search with the words multiple sclerosis and ginger, or genistein and multiple sclerosis, or curcumin and MS, or Boswellia Serrata and multiple sclerosis, we can find the research articles. But all these supplements can have antiplatelets mechanisms, and can causes coagulation disorders, between others side effects. Please, this is not a prescription and in no way a suggestion to use such things. It is only a question to the doctors of this channel. Do not takes none supplements, once all can cause side effects and have interactions with medicine drugs that the patient is taking , etc. No one never would try to treat so serious disease as multiple sclerosis with such foods or supplements without medical supervision and prescription. Only the doctor of the patient can gives the prescription of foods, supplements and drugs to patients with any disease, and mainly MS.