Joe, your little girl is precious, and you have a great attitude. Yes, what you describe happens to me frequently, except it’s almost like a seizure. Because you’re a compassionate person and my best friend, w/ MS died in April from cancer, I know no one who understands this disease. I’m SPMS, have had four flares in the last 6th months: they only last maybe 4 to 7 days unlike my RLRM days. Since January, I fall a lot, can barely walk, wear diapers can’t get in the shower by myself, had PT, but they discharged me telling me they can’t help me. My ex-husband upped his DV when I declined, so in an apartment. My daughter checks on me, brings me groceries and meds. I’ve prayed, but my prayers seem to fall on deaf ears. No DMD has worked. I’m crying as I type this. I’ve never been this scared and hopeless in my life.
@charisse40214 ай бұрын
Hay Joe You have no idea how helpful your videos are. I have relapsing remitting Ms haven't started treatment yet. I go back to the neurologist on Feb 26. This happens to me randomly I had no idea how I was gonna explain it. Mine is not in the knees but my hips. They just at random lose power. I haven't fallen yet but I've come so close. I literally have scared people and myself. I' m gonna keep you posted on what doc says and share info. Thanks again I know God certainly brought me to this channel. God bless and be well.
@ifonly20743 ай бұрын
Yes. It happens to me all the time. I was just diagnosed back in June but was told that I've probably had MS for the past 20 years. I had never put the symptoms together and hate going to doctors. I am never sick, so I didn't see a reason to visit a doctor. I ended up in the ER because my body went completely numb from the chest down. I was on vacation on the opposite side of the country. They wanted to admit me; however, I told them it was going to have to wait until I got back home. I had a weeklong appointment with Disneyworld. My husband and sons pushed me around in a wheelchair for the week and when we got back home, I went to the hospital. They had me diagnosed with secondary progressive within 3 days. I think there are things that are we all ignore but can possible be part of the disease.
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Joe, your little girl is precious, and you have a great attitude. Yes, what you describe happens to me frequently, except it’s almost like a seizure. Because you’re a compassionate person and my best friend, w/ MS died in April from cancer, I know no one who understands this disease. I’m SPMS, have had four flares in the last 6th months: they only last maybe 4 to 7 days unlike my RLRM days. Since January, I fall a lot, can barely walk, wear diapers can’t get in the shower by myself, had PT, but they discharged me telling me they can’t help me. My ex-husband upped his DV when I declined, so in an apartment. My daughter checks on me, brings me groceries and meds. I’ve prayed, but my prayers seem to fall on deaf ears. No DMD has worked. I’m crying as I type this. I’ve never been this scared and hopeless in my life.
Hay Joe You have no idea how helpful your videos are. I have relapsing remitting Ms haven't started treatment yet. I go back to the neurologist on Feb 26. This happens to me randomly I had no idea how I was gonna explain it. Mine is not in the knees but my hips. They just at random lose power. I haven't fallen yet but I've come so close. I literally have scared people and myself. I' m gonna keep you posted on what doc says and share info. Thanks again I know God certainly brought me to this channel. God bless and be well.
Yes. It happens to me all the time. I was just diagnosed back in June but was told that I've probably had MS for the past 20 years. I had never put the symptoms together and hate going to doctors. I am never sick, so I didn't see a reason to visit a doctor. I ended up in the ER because my body went completely numb from the chest down. I was on vacation on the opposite side of the country. They wanted to admit me; however, I told them it was going to have to wait until I got back home. I had a weeklong appointment with Disneyworld. My husband and sons pushed me around in a wheelchair for the week and when we got back home, I went to the hospital. They had me diagnosed with secondary progressive within 3 days. I think there are things that are we all ignore but can possible be part of the disease.