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I was diagnosed last year, 5/26/2023. I am 57, so late onset MS. It's been quite a year to say the least. Luckily I have Dr. Aaron Boster as my MS Specialist. I am still figuring out how to live with MS, who I am with the disease. Thanks for the videos.

@EvenSoItIsWell

Ай бұрын

Thanks for watching Lou! Dr. Boster is da bomb! Yes, the first year (or two) can be times of adjustment. Be gentle with yourself.

WOW! Reading these comments from other MS people is inspiring. I have PPMS and figured I would be looking forward to a life of pain and difficulty. But hearing this makes me feel like I can comfortably live to my 100s. Longevity is very strong in my family. Right now at 55, I’m doing good, however reading this make it all better! Thanks!

@EvenSoItIsWell

Ай бұрын

So glad you are finding inspiration here. My viewers are the best!

I was actually fairly relieved to get my MS diagnosis. I was in a psych ward beating myself up for having what I thought was depression. I had experienced some minor incidents of self harm because I was so humiliated and frustrated with the invisibility of what I was experiencing. (I have a loooong history of depression and anxiety. I am not judging the value of depression, just describing my disappointment.) I think knowing what you are dealing with is incredibly important, let alone the medical profession knowing what you are dealing with. All the same, MS is such an individual and often isolating condition to experience and having people like you sharing their knowledge and experiences is very, very helpful.

@EvenSoItIsWell

Ай бұрын

Thanks for watching. I am so glad you found relief in your diagnosis. Depression is so common with MS. Some studies show it is 50% or more of us have depression as a symptom of our MS.

Nice video. Glad you are doing well after 18 years with MS, and hopefully you will continue to thrive for years and decades going forward.

@EvenSoItIsWell

15 күн бұрын

@@DrBrandonBeaber thanks Dr. Beaber!

I fought in the Korengal Valley, of Afghanistan. The VA says I have TBI. I thought all of my symptoms were because TBI. One day I was skateboarding and fell the fall broke my femur and I had to go in for surgery. My doctor wondered how I was able to break my hip at such a young age. She scanned my brain to see if my pituitary gland was enlarged. She said she thinks she found what may be. Ms I went to a neurologist. He ordered another MRI and diagnosed me with Ms. He told me Cameron you have Ms. What do you want to do? I had never heard about Ms. I didn't know what to do. I left and sat in my car and I started crying. I cried so hard. I thought I was going to die. I thought it was terminal. I'm not even 40 years old yet. I'm trying my best to stay active and diet. I eat clean as clean as I can. Anyways, sometimes I slip and eat dirty but I try to eat clean. I don't drink alcohol. I don't smoke. I just want to live to be an old man and a grandfather. Thank you for your videos. You really do help me by sharing your wisdom. I can be better at dealing with this disease. Thank you

@EvenSoItIsWell

Ай бұрын

Thanks for watching Cameron and thank you for serving. My nephew was there a couple of times too. Being diagnosed is a huge thing. It can take a year or two (or more) to adjust to a new diagnosis. You may feel ALL the emotions and that is normal. Try to be gentle with yourself. As you heard we can live well with MS. There are now over 20 different treatments to help slow or stop progression and there is a lot of new and ongoing research showing how diet and lifestyle changes can help us to manage our symptoms and possibly slow progression too!

Congratulations to you, keep up the blogs inspiring all the MS Warriors out there. God bless you 🙏

@EvenSoItIsWell

Ай бұрын

Thanks Dan!

I had just turned 28 and my life aspirations were to a state of success. What more could I hope for. Then the doctor came in and said rrms, was the thing I had.

@EvenSoItIsWell

Ай бұрын

Thanks for watching Daniel. It is hard to hear those words isn't it? I can be life altering for sure.

So grateful for your sharing, your confidence, and clarity. I feel more courage to tackle better health and persevere. Thank you! Great advice! Congratulations on your diagnosaversary!

@EvenSoItIsWell

Ай бұрын

Thanks so much for watching! So glad you are encouraged to improve your health! Keep me posted on how it goes!

Thank you for your positive attitude. Diagnosed Feb 9 this year although I've had MS for at least 15 years and didn't know. Initial feeling was relief that I finally had a diagnosis. Still processing and it's been hard. PPMS so consistent decline with no breaks. Working super hard on health priorities with Naturopath, Chiropractic and PT.

@EvenSoItIsWell

Ай бұрын

Thanks for watching. Good on you for keeping your health as a priority! PPMS is not an easy road for sure but taking exquisite care of yourself will definitely help you manage your symptoms and live well with it.

My younger brother was diagnosed with MS when I was 35 years old. His neurologist prescribed DMT (Gilenya), but he didn’t take his illness seriously, thinking it was similar to a cold or flu that medication would cure. I conducted extensive research and found that having a sibling with MS increases the risk for the other siblings. Acting on a gut feeling, I immediately changed my diet and began exercising. Two years later, I visited a neurologist and requested an MRI. The results were shocking: I had more than 15 lesions in my spine and over 15 lesions in my brain. My neurologist believes I may have had MS since my early twenties or even earlier.

@EvenSoItIsWell

Ай бұрын

Wow! That is quite a load of lesions. How are you doing now?

Thank you Vickie for another informative and inspiring video! I love hearing your story. My milestone is that this morning I went back to work for the first time after my diagnosis in january. I only spent two hours there and mainly chatted with my beloved colleagues. But… it’s another step forwards! Keep up the great work with your video’s!

@EvenSoItIsWell

Ай бұрын

Congratulations on going back to work!! Whoop! Whoop! So proud of you. Keep going!

@laurarosanne

Ай бұрын

Thank you!!

Hi, Thank you for your video. Happy the Memorial day. ❤

@EvenSoItIsWell

Ай бұрын

Thank you. You too!

My mom has MS. My mom was 29 or 30 when she was diagnosed back in the early 1980's. I was only one or two. She's 72 now, and is in a wheelchair now because of it. I'm 44, and having a mom with MS was a normal part of my childhood. I thought every mom used a cane at some.

@EvenSoItIsWell

Ай бұрын

Thanks for watching. I love that you consider your childhood normal. Life can be amazing and wonderful with illness

@erinnicolefranco6807

Ай бұрын

Thanks so much for this! I have four young children and transitioned to being in a wheelchair and stopped driving about a year after the youngest was born. I feel so inadequate and like their deprive of so much. Your comment makes me feel better.

@EvenSoItIsWell

Ай бұрын

@erinnicolefranco6807 everyone has something. It could be any illness, including struggles with mental health. It can include physical disabilities or unseen disabilities. We all carry on the best we can and find joy in what we can do. Think of all the things you are able to participate in with your kids because you have a mobility aid! It aids you in being there and being part of the fun!

@evadedenbach1226

Ай бұрын

@@erinnicolefranco6807 You're welcome!

Hi Vickie , it’s Vickie here 😊. Thank you for this , your journey is very similar to mine , lm 54 and although l was only officially diagnosed in Feb 2023 l have had symptoms for years starting in 2008 with severely optic neuritis. I have a very positive attitude ( most of the time ) and exercise daily in the form of my two hour job in a school kitchen which sees me washing the floor , moving tables and walking are the kitchen whilst l do my job . Don’t get me wrong even though l only work for just two hours per day l still have to have a seated break of a few minutes due to my drop foot and pain which comes from it that slows me down . At the end of my shift lm totally wiped out and rest has to follow.Its very challenging and hard every day but lm determined to continue for as long as my body will allow me to . My diet is pretty good ( admittedly could be better ) and all l drink is water 💦 , l practice mindfulness daily and sleep well . I totally agree that exercise is SO very important to our health in general and more so when you have MS . I too follow neurologist Dr Aaron Boster and Dr Bieber vis KZread together with yourself and l really find all of the advice give as a collective to be invaluable. Thank you

@EvenSoItIsWell

Ай бұрын

Good morning Vickie! Thanks for watching. Good on you for doing what you can do and living with a positive attitude. We all can do better at times with our diet and lifestyle.😉 part of the reason I love milestones and markers in time is that it gives me time to reflect and look forward. I can make plans for the future. 😊

Love your videos Vickie! Always so inspiring! 🧡

@EvenSoItIsWell

Ай бұрын

Thanks Cassi!

❤ 2 yr Anniversary Is June. Diet on point. Sleep on point. Weight training still have to get more consistent. You look great.

@EvenSoItIsWell

Ай бұрын

Thanks for watching. Both of us will get more consistent this year!

Wonderful video Vickie! You must be such an inspiration and source of information for others dealing with MS!❤️

@EvenSoItIsWell

Ай бұрын

Thanks Jo-Ann! I hope I can provide hope on the journey!

Hi Vickie! I take brand Copaxone. I tried one of the generics but I did not do well with it. I do not think about the anniversary of my diagnosis but it was 2014. I believe I had MS years before my diagnosis but didn’t know it. I keep a medical diary only if I am having MS issues. I eat mainly plant based foods but I do eat small portions of chicken, pork, some beef and fish. I stay away from pastries, cakes and processed food but just about everything is processed which I try to stay away from. I feel 100% better when I exercise but I am not good about staying in a routine. I have to work on that. I’m constantly working on stress, but since retirement 6 years ago, I am doing a lot better. I would be interested on your take on healthy living. Thank you so much for your input on living with MS.

@EvenSoItIsWell

Ай бұрын

Hi Lorerinda. Sounds like you are doing great. Thanks for watching. Retirement is definitely a great way to reduce stress! Thanks for you interest. I will keep you posted.

I do as well it's 2 years and I was diagnosed on April 1. But I have PPMS and difficulty with walking. I also work on sleep, exercises, diet but unfortunately not helping too much. Stopped driving last November but have high hopes still. All the best. Your videos care great.

@EvenSoItIsWell

Ай бұрын

Thanks for watching. Sorry about the PPMS. Don't discount the good you are doing with diet and lifestyle changes. There is more and more research coming out that is showing it helps with managing symptoms and possibly slowing progression. 🙂

@sivanmahadevan2458

Ай бұрын

Thanks for the motivation

I was diagnosed 8 years ago. I love your videos ❤️ What medication do you take?

@EvenSoItIsWell

Ай бұрын

Hi Isabela! Thanks for watching. I am currently on the generic of Copaxone, but would consider changing if needed. How are you doing with your MS?

My diagnosis date was May 2, 2000--that makes it yeasy to say how many years it's been since diagnosis:24. My diagnosis was very different from yours: I went to hospitatl in the middle of the night with an excruciating headache. A doctor dianosed me that night. The next day, the hospital called and took the diagnosis back! A month later, a new symptom made it official. I've thought of making a video about my story. Why haven't I? Because everything takes longer when you have MS? Or maybe because MS isn't all my life is about, and I don't want to give it that prominent a role in my life. It's been there for more than half of my life, but I'm okay, too 😊 Avonex, Rebif, Tysabri, Gilenya, Mavenclad.

@EvenSoItIsWell

Ай бұрын

Thanks for watching! I am so glad you are doing ok!

You might want to look into stem cell therapy.

@EvenSoItIsWell

24 күн бұрын

Thanks for watching. I have looked into HSCT (haematopoietic stem cell transplantation). It is currently experimental only in the U.S. and is not FDA approved for MS yes. It also has a very high risk profile. I do continue to watch the research though.

@Watcherw1

24 күн бұрын

@@EvenSoItIsWell There is a clinic in mexico called dream body clinic. The ceo is joshua ketner, very knowledgeable. They do MSC treatment and inject into the spine and nose. also the iv. Take a look into it if you wish.

Check out Dr Micheal Levin and the findings he has for the future of MS!

@EvenSoItIsWell

Ай бұрын

Thanks Dan! I will definitely look into his research.

I’m curious what DMT that you are on?

@EvenSoItIsWell

Ай бұрын

Thanks for watching. I am currently on the generic of Copaxone, but would consider another one if needed.

is it going to be okay?

@EvenSoItIsWell

21 күн бұрын

Yes! We can live well chronic illness. There is so much we can do to help manage our symptoms and possibly prevent progression.