Leave your questions about Neurodivergence for Kiril here ⬇️

@taniamorken4566

Жыл бұрын

Wow, this has answered so many of my why questions. I have MCAs, Pots, histamine intolerance, asthma, after a bout with Covid is what triggered it. However, now I'm wondering if I could possibly have EDS? Is there different types of EDs? Like I'm not bendy like you are but I don't have muscle mass. I've often wondered why that is and if my muscles are lax it's made me think, can my inside organs also be? I've wondered if this is why I got Pots?

@chrissulzdorf456

Жыл бұрын

Great video hun. EDS is very much underrepresented especially in women. Great work listing the less recognized characteristics of the condition. I wasn't even behind the camera on this one. One woman army right here💪💥💥💥💥💖💖💖💖💖

@stelasulzdorf

Жыл бұрын

@@LittleonesmicrosanctuaryThank you for watching my videos and sticking with the channel! MCAS is soooooo difficult to diagnose. Most doctors diagnose on a symptom basis because of this, but honestly if you have EDS I’m almost certain you have MCAS too. Thank you for sharing this with me. I hope my channel can provide a bit of help for you. I can most definitely ask him this! Thank you for your question 💕

@stelasulzdorf

Жыл бұрын

@@taniamorken4566it’s highly likely you have EDS. Have you tried doing the Beighton test at home? It’s really easy to find online. If you pass the Beighton test, I would suggest going to your gp and requesting a referral to a rheumatologist 💕

@stelasulzdorf

Жыл бұрын

@@chrissulzdorf456Thank you always for your support!! 🥰

I've been diagnosed with hEDS/ and Autism within the past year (I'm 29 years old, been a rough couple of years lol). I've been watching a lot of your content and I love it so much! It's been really helpful just watching content and listening to other people's experiences with EDS and POTS. I can't wait to see you and your brother discuss neurodivergent things 🦋💗

@stelasulzdorf

Жыл бұрын

Thank you so much! That really means a lot to me ❤

I forget how to legs sometimes too. My poor hips are magnetized to door handles as well.

@analarson2920

Ай бұрын

Oh yes and cabinet knobs.

@LeTrashPanda

Ай бұрын

Check out the term "dyspraxia" to see if it fits.

So glad you mentioned the autism link!! Not many people know about that

@Truerealism747

9 ай бұрын

Highly comorbid nits the collegen.affects the subconscious mind am sure that's why we have fantastic memory

@13fyrefli

4 ай бұрын

I just commented that when I found out and looked into it, I found out I’m autistic and it’s actually a relief to know why I am the way I am. It’s easier to be kind to myself knowing.

HSD have the same variety of comorbidities. The only difference is that they don't meet the specific criteria on the diagnostic checklist. There are EDS & HSD can both be hereditary or spontaneous. They're working on updates to the 2017 criteria called the road to 2026. Thank you for sharing all of these. It's always amazing how many things can be affected and the different ways they can manifest.

This resonated so much for me! I have hEDS, MCAS, and was diagnosed with adult ADHD. My son (also has hEDS) has OCD and my other son has autism and had an IEP (individual education plan) throughout school. My shoulder and my toes dislocate a lot and my jaws hurt even if I smile too much. It's crazy and validating to see someone else like me. 😂❤

I RELATE TO ALL OF THESE! im 26 years old and autistic, adhd and dyspraxic myself and i have hEDS Im so glad im not alone in all this and im so so soooo glad it doesn't make me weird like others say. Its not all in our head Thank you are sharing this information with the world ❤❤❤

Growing up I thought everybody got lightheaded and dizzy when you would stand up. Gen X kids you just suck it up and move on. 2012 my systems really got bad and I got diagnosed with POTS/dysautonomia in 2016 CC. My youngest his hyper mobile joints won’t get diagnosed. My middle son started passing out when he was 19. I think we all have a variation of EDS.

Man finding this video is eye opening seems you living my life 😮

I have cEDS, Autism, POTS, CCI+ Epilepsy. Along with Migraines and they’re all spawned from my EDS, I was likely having seizures as a baby because my family would talk to me and I would just stare into space. I Thank you for sharing your journey with me. The Struggle is real but we’re all in this hot mess together!

You have such a calming presence and are so inspirational! I love Juliette has a gun not a perfume. It's exquisite. Looking forward to more content.

@stelasulzdorf

Жыл бұрын

Oh my goodness! Thank you so much 🥹

@melissamorrison7677

Жыл бұрын

@@stelasulzdorf 🥰😍

Thanks for the video! i'm in the process of probably being diagnosed with lupus and am trying to figure out if my hypermobility is JUST lupus or also EDS too because the doctor named it as a possibility since I have PoTs (also AUDHD but I didn't mention that lol). I also have dyspraxia & essential tremours so that like really adds pizazz to my life lol. The most annoying thing is my knees falling out of joint when walking or overeaching past my elbow when I go to grab something high up or far away.

I have to think about every single move I make as well! ❤ Thanks for coming forward with your experience. I always knew there was a reason why I never got into dancing or aerobics. 😊

I’ve heard about the ab and pelvic floor thing but I had no idea that it was related to EDS lol.

Thank you so much for sharing your story! I am going to share mine this week on my channel. Keep pushing forward, you got this!! By the way, the brain fog (for me) can be so embarrassing! And not being able to put on my shoes standing up! Oh, and walking into walls 😅 ! So many things to choose from 😂.

You made it so fun! This kettle of awful..🐱🌿💚

I have bursitis in both shoulders and both hips I have osteoarthritis, torn rotator cuff, I can't use my cane cuz it hurts my shoulder, elbow, and wrist, so no one believes I need my wheelchair cuz I forget I need it and take off without it same with cane I'm so forgetful I can't stay on task and I feel I'm bleeding internally in my hip joint from bone spurs and impingement syndrome femoracetabular kind fibromyalgia I feel I torn my it band....doctors look at me sideways when I say I'm in level 10 pain because my blood pressure is low 98/56 um blood work don't show I'm bleeding internally 😢idk what to do they send me home with instructions to return if I experience them and I came in and was leaving with same symptoms I'm just totally confused

Hi Stela, have diagnosis of autism, ADHD, SpLd, Fibromyalgia. Several times over the years, ive approached my GP/physiotherapist about EDS - but always get turned away. I dont think i have hypermobility, but, i certainly have joint/fatigue/temp issues/spacial issues - how on earth do i get the correct assessment?

@stelasulzdorf

Жыл бұрын

This is such a difficult question to answer, as I feel like sometimes it depends on how lucky you are to find the right doctor/ be referred to the right place. It took me over 20 years to get my diagnosis. Don’t give up and keep trying! One day you will get your answers xx

@Truerealism747

3 ай бұрын

Hypomobility centre ltd ndon I had to go private at 43

I'm hot and cold at the same time and have one leg under blanket one outside seems to work some of the time 😂

I sneeze I cough I sprain my back glute and down my leg causes calf to Charlie horse

Oh my gosh so true ribs are the worst vs any other joint 😩🦓🌻💖

@13fyrefli

4 ай бұрын

If I barely put any pressure on my upper ribs, I will dislocate them. So painful.

@emkphotography

4 ай бұрын

@@13fyrefli owch! I'm the same, you have my sympathies! Upper is most painful 😵‍💫 sometimes just breathing or exhaling does it lol it's weird how it flares at different times

I speak with my doctor this month about the possibility of having ehlers danlos. I am 99% sure I have heds.

@Lionessliving

5 ай бұрын

Don't waste time. Go private. Dr Brennan at inherited connective tissue disorder clinic in London. £350. Best money ever spent!!! Good luck on your journey.

This is very relatable as an autistic person. Im thinking I need to see my dr lol

@KorytEdits

3 ай бұрын

Just got to the where u brought asd up lmao

I had 2 hospital nurses laugh at me by the way I crawled onto and into the bed . “ Do you always get into bed that way ? Yessssss. I’m 68 same way still 5…. Laughing at me 🤬

Do you ever get confused as to which leg is in front when you are laying on your side? And end up kicking the cat you were trying to avoid? I mean how can a body forget which leg is which!?

@hmemichel

Ай бұрын

OMG I sneezed once and my little toe popped out of joint and back in. I mean honestly!

You sound like me I was allergic to everything soy was the major one