Matthew's LGS Journey: When Hugs Speak Louder Than Words

Matthew is a 23-year-old adult diagnosed with Lennox-Gastaut Syndrome (LGS).
Parents, Sue and Tony explain that although their LGS journey has not been an easy one, they are grateful for each and every day with their loving son.
Learn more about LGS @ www.lgsfoundation.org/
#LennoxGastautSyndrome #RareDisease #Epilepsy

Пікірлер: 8

  • @Shelsal5000
    @Shelsal5000 Жыл бұрын

    My son is 7 and has this. Thanks for sharing

  • @rissabiagi1570
    @rissabiagi15703 ай бұрын

    You guys are just lovely 🥰 I am a single mama with two kiddos, one with LGS, both disabled-doing it all on my own unfortunately. Thank you for your message 🤟🏼✊🏼🫶🏼

  • @bring.us.together
    @bring.us.together Жыл бұрын

    My son is also an LGS hero. Prayers to your son and to your whole family. I’m very thankful for you sharing.

  • @ritazsambok4609
    @ritazsambok46097 ай бұрын

    My son is also has LGS. He is 29 years old now.He was 2 years old when it is started . I wish you and your son the best❤From Hungary🇮🇳

  • @ToTravelers
    @ToTravelers2 жыл бұрын

    Thank you for sharing with us your family life story . For me is a great reminder of how strong we can be to give our children a life that’s worth. My daughter was recently diagnosed with lgs. We’ve been on this journey since she was 14 mo. Now she’s 5 yo.

  • @kalashelton9222
    @kalashelton92228 ай бұрын

    My son, Zachary had a massive stroke at birth, due to med malpractice. Zachary only has the right hemisphere of his brain except for 5 percent of the left frontal lobe. We were told he wouldn’t make it to be a few months old due to his sever CP, blindness and seizures. When Zach was 2 he was properly diagnosed with LGS and again were again told that it would only be a few years. I raised him and three daughters as a single mom for many years. Zachary will be celebrating his 22 birthday Jan 30th. You are not alone and now I feel less alone. ❤ from NC

  • @vanessasabucco927
    @vanessasabucco9273 жыл бұрын

    Thank you for sharing your story. You're such a strong and loving family- and Matthew is such a wonderful, happy guy! He's so blessed to have you as his parents.

  • @lgsfoundation

    @lgsfoundation

    3 жыл бұрын

    Thank you so much!