Long-term COVID-19 Symptoms: Cardiac Perspective, Palpitations (POTS)

Пікірлер: 355

  • @k.mcdonald1960
    @k.mcdonald19602 жыл бұрын

    I have POTS but before COVID existed. I just want to say this was very good information and have heard the same from my POTS neurologist. It’s good to hear the same reiterated from another source. I hope long Covid will inspire researchers to care about POTS. We have not been taken seriously, shunned and ignored by most in the medical community. This has to stop. It is doing harm when we with POTS are already struggling.

  • @vornamenachname1069

    @vornamenachname1069

    2 жыл бұрын

    Did you have considered Bartonellosis? Bartonella and Covid are the most common infectants causing POTS. Both are infectiong epithelial cells and Bartonella can even infect red blood cells. Both can also cause neurological as well as psychiatric problems. And this then can lead to problems with gut mortility which makes you more prone to stuff like Yersinia or Salmonella or simply to some normal microbiome components like candida, aspergillus, e.coli, fusobacterium, dialister and so on.

  • @k.mcdonald1960

    @k.mcdonald1960

    2 жыл бұрын

    @@vornamenachname1069 Thank you very much for the information.

  • @aliciahunneman3098
    @aliciahunneman30983 жыл бұрын

    I've been having symptoms of POTS since being diagnosed with Covid in January! I was otherwise healthy before covid and am a 36 year old female. 5'6 165lbs. I've had blood work, EKG, Holter Monitor and Echo all normal. Palpitations allll day and allll night (worse at night like a kick drum in my chest)!!! I've switched to a low carb lifestyle in hopes of helping improve my symptoms. (Went from 180 to 165 in the last 2 months with the switch in diet.) I'm physically and mentally exhausted, brain fog, fullness/heaviness in my chest with pain every so often in my shoulders or shoulder blades, and feels worse after I eat. Increased heart rate with activity, but my blood pressure keeps reading normal. I can't see my cardiologist until mid May and feel like I'm at my witts end with these palpitations. Feels like I'm stuck in fight or flight 24/7. This video has been so helpful! Thank you!!

  • @dolcekayy

    @dolcekayy

    3 жыл бұрын

    i’m having all of these symptoms but the difference is i didn’t grt covid, i got the vaccine and developed POTS from it. :(

  • @hasuchObe

    @hasuchObe

    3 жыл бұрын

    Same. Used to work out 4 days a week and now I haven't worked out since April.

  • @josephpweaver

    @josephpweaver

    3 жыл бұрын

    I think I'm in the same camp. You're not alone!

  • @Karola2222

    @Karola2222

    3 жыл бұрын

    Thank you for sharing this, it is helpful. I am feeling the same. I will see my cardiologist in a few days. I will come back and share.

  • @broskiman7131

    @broskiman7131

    3 жыл бұрын

    @@dolcekayy hello ,I didnt get covid too but got them 3 days after vaccination.im just 23 and was perfectly fine b4.Did your symptoms go away?Has anything worked for you?pleased revert back as this is so new for me and the chest pain makes it worse.

  • @RedRedux
    @RedRedux3 жыл бұрын

    Potsie Pro Tip: methyl folate you should also be checking for joint hypermobility common co-morbidity and contributing factor to heart arrhythmia are EDS and HSD and histamine release in the heart of the mcas flavour

  • @karenfedorock2398
    @karenfedorock2398 Жыл бұрын

    I just diagnosed with POTS after having COVID. I have never had any issues with heart and blood pressure. I’m also experiencing terrible pain in my shoulders. I’m so blessed to have this Dr. put this study out. It’s a true answer to prayer. Thank you.

  • @DeilaFlo

    @DeilaFlo

    Жыл бұрын

    how are you now? did pots go away?

  • @karenfedorock2398

    @karenfedorock2398

    Жыл бұрын

    @@DeilaFlo I have every test there is possible in the last 6 months. Last week I started feeling better and the bloating has gone away. Much less racing heart and dizziness. I’m praying it’s the beginning to the end of POTS. Thank you so much for asking.

  • @DeilaFlo

    @DeilaFlo

    Жыл бұрын

    @@karenfedorock2398 i hope it will go away forever! Thanks for reply 😊🍓

  • @saracaminiti7095
    @saracaminiti70953 жыл бұрын

    I was doing 60 min cycling classes right before I got Covid and now I can’t even do a 20 minute class without feeling like I am going to faint when I get off the bike. At least seeing this video and seeing other people’s comments, I know that I am not crazy & others are experiencing this as well.

  • @indianvineshouse8227

    @indianvineshouse8227

    2 жыл бұрын

    How are you now?

  • @saracaminiti7095

    @saracaminiti7095

    2 жыл бұрын

    @@indianvineshouse8227 thank you so much for asking, my POTS is doing better, but now I have a rash called Pityriasis Rosea which a lot of people are getting after receiving the covid vaccine & I never got the vaccine.

  • @Swansue

    @Swansue

    2 жыл бұрын

    Hey Sara… do you have an update? Taking a few meds to build up leg muscles helped me and studying mitochondrial repair. 💕

  • @PR4SAN

    @PR4SAN

    2 жыл бұрын

    @@Swansue hey can you explain bit more about mitochondrial repair please. also which meds for building leg muscles you took?

  • @xdinzax

    @xdinzax

    2 жыл бұрын

    Hi Sara, I’m glad to hear that you’re feeling better and so sorry about the rash. How long did it take until pots symptoms started to improve? What are the things that helped the most? I developed the symptoms right after covid and I used to work out 5 times a week. Now I can barely do a 10 mins on the bike. Its very frustrating

  • @carmenwheatley5376
    @carmenwheatley53763 жыл бұрын

    I highly recommend daily Qi Gong exercise for recovery from POTS/inappropriate sinus tachycardia/dysautonomia. It is particularly good because one uses long slow controlled breathing whilst in a standing, very slightly squatting pose, which also builds leg strength, essential for pumping blood back to the heart more efficiently. A major bonus is that the slow breathing whilst standing shifts the imbalanced autonomic nervous system away from the sympathetic overdrive. The effects are cumulative and progressive over time, and one can pace oneself comfortably. Graded rebounding and yoga are also helpful.

  • @DavidsZalansMuzika

    @DavidsZalansMuzika

    3 жыл бұрын

    Carmen, sounds promising. Have you recovered 100% through that?

  • @Karola2222

    @Karola2222

    3 жыл бұрын

    Thank you so much for sharing this. I have been so frustrated during my first attempts to jogging because HR goes quickly to the 120s. I had no idea about POTS.

  • @rodneyaker5111
    @rodneyaker51112 жыл бұрын

    wife has pots now a year after covid. its very severe and has been dangerous as heck for her.. thank you for this post

  • @itsme1and2
    @itsme1and23 жыл бұрын

    Is it safe to exercise if your oxygen saturation levels fall below 90 when you stand for less than a couple of minutes? And is that what happens to you when you have POTs?

  • @DaniDoll328
    @DaniDoll328 Жыл бұрын

    I can relate to the post-Covid hyperadrenergic sensations and fluctuations. It’s affected my life greatly since I am a registered nurse and work ling hours. I also never experienced a single heart palpitation prior to Covid. I can’t work out as I could before. The brain fog is also profound.. and subsequent depression due to life changes and decrease in hope as to alleviation of symptoms.

  • @RiDankulous

    @RiDankulous

    Жыл бұрын

    I hope you get proper support financially and medically. 🙏

  • @OdinistNordic
    @OdinistNordic2 жыл бұрын

    I’m glad y’all are talking about this now I was hospitalized over a year ago they couldn’t find nothing wrong and then about 3 months later was diagnosed with pots it’s horrible

  • @carmella88

    @carmella88

    Жыл бұрын

    Still symptoms?

  • @annettewilford9726
    @annettewilford97263 жыл бұрын

    I have M. E CFS Exercise makes it WORSE

  • @thechronicillnessdiaries2773
    @thechronicillnessdiaries27732 жыл бұрын

    Been living with POTS for the past 8 years. It amazes me how many drs blow us off. I had a cardiologist tell me that "POTS wasn't a thing". I guess this is the one good thing that has come of covid. More awareness about this debilitating condition is happening. Finally women in particular are being heard. I receive daily IV fluids at home for my POTS and it has been a game changer. Also please be aware that POTS CAN cause tachycardia induced cardiomyopathy. Thankfully my cardiomyopathy has improved as I have gotten my heart rates down. I also have Adrenal Cancer. If I could chose one illness over the other- I would choose cancer because it doesn't impact my life 24/7 like POTS does.

  • @k.mcdonald1960

    @k.mcdonald1960

    2 жыл бұрын

    I feel you so much. I also have POTS and have had terrible experiences with doctors even after finally being diagnosed. I hope you get well soon from cancer, jeez on top of everything. I’m so sorry, girl.

  • @kathymenasco2993

    @kathymenasco2993

    2 жыл бұрын

    Thank you for sharing , I’m writing for my brother he has what we think is long haul Covid , he has been through numerous blood panels , Cardiologis and all the tests that they do including stress test and a neurologist everything checks out okay. He gets light headed and shaking arms and legs along with the heart palpitations.. he had the delta and it hit him pretty hard …you shared you are taking a daily IV that is a game changer , could you share what that is ? Appreciate your insight as this is something we are all learning about together. God Bless

  • @annab13
    @annab13 Жыл бұрын

    My resting rate is 40 and under, but if I have a stressful thought, it can jump to over 140 instantly. I feel like I have cancer and am dying. So tired and in pain all the time. I've been investigated as an inpatient in hospital. They still don't know. I go downhill when I'm out of hospital. My chest is so painful and it's hard to take a full breath

  • @northernbelle715
    @northernbelle7152 жыл бұрын

    I’m having a stress test w echo today bc diagnosed w diabetes but meds haven’t improved symptoms. All of above symptoms. Had Covid in oct. oof I just want answers

  • @mrs.rosarioabc6651
    @mrs.rosarioabc66513 жыл бұрын

    I got really sick in February they said it was strep throat but every sense I have had all these symptoms, my blood pressure has actually been lower than what I have had before, but my pulse goes to the 140s just by getting ready in the morning. I have had all heart exams (ekg, echo, holter monitor, nuclear stress tests) all normal but my pulse goes up to 30 beats or more and then will cause My BP to decrease. I’m so thankful for your video because I’m currently on a SSRI because they keep thinking it’s just anxiety but I know it is not.

  • @danielrazulay

    @danielrazulay

    3 жыл бұрын

    I had a similar episode in March but recently started showing the same symptoms again and have been fatigued for months, and what 'd ya know? Covid positive. I suspect I had a milder case back then and this is my second infection or some kind of flare-up. Sucks.

  • @mrs.rosarioabc6651

    @mrs.rosarioabc6651

    3 жыл бұрын

    Beep Boop wow so Covid can really do this to you

  • @lTechandTick1863

    @lTechandTick1863

    3 жыл бұрын

    @@mrs.rosarioabc6651 how are your now? and how was your heart beat?

  • @kaisergod98

    @kaisergod98

    3 жыл бұрын

    Hi! Hope u doing well, how u case going? I also feel like anxiety, but o know it's not. It's so unconfortable to feel this all day.

  • @josephpweaver

    @josephpweaver

    3 жыл бұрын

    SAME. So frustrating but you're not alone.

  • @fedfin3869
    @fedfin38693 жыл бұрын

    Please let's clarify that when POTS is a comorbidity with ME/CFS, exercise is completely inappropriate and harmful. So if one has only POTS it's good to exercise, BUT if one has ME/CFS and POTS, exercise should be avoided. Personally, I believe post covid is too similar to the typical post-infection type of onset in ME/CFS to be ignored, and this is relatively easy to test by evaluating if a patient experiences post exertional malaise after exertion (phisical or cognitive), usually delayed by 24-48 hours

  • @boxerdogmum583

    @boxerdogmum583

    3 жыл бұрын

    Yeah, I’m worried about exercise as a treatment. It works well in some types of POTS but I can see that it is harmful in the post-viral type, which is likely to be associated with MCAS, even if you don’t know it initially.

  • @boxerdogmum583

    @boxerdogmum583

    3 жыл бұрын

    Maybe we’ll realise that CFS / ME is actually POTS and MCAS.

  • @boxerdogmum583

    @boxerdogmum583

    3 жыл бұрын

    I had to stop exercising because the post-exertions malaise made all my other symptoms worse. I’m now getting better with rest and lifestyle measures to reduce inflammation. I won’t be better for some time, but I’m heading in the right direction. I’m watching helpful videos on how to recover from ME / CFS. Don’t watch any negative stuff tho. Positivity is so important for recovery. X

  • @keepbreathing9120

    @keepbreathing9120

    3 жыл бұрын

    @@boxerdogmum583 would u plz explain ME ? Do u mean menegio-encephaltis ? & What's MCAS ?

  • @keepbreathing9120

    @keepbreathing9120

    3 жыл бұрын

    @@boxerdogmum583 also CFS ?u mean Chronic fatigue syndrom ??

  • @asante6010
    @asante60102 жыл бұрын

    Went to doctors but they never said anything was wrong with me

  • @brandielee7971
    @brandielee79713 жыл бұрын

    Got covid in June. Got IST in August. Its. The. Worst.

  • @neerarattan9775
    @neerarattan97753 жыл бұрын

    I have all POTS system caused by Covid in March. Went today for echo, ECG and stress tests all normal but heart rate goes up to 145 when standing or walking and 192 when doing excersise. So I am praying it resolves over time!

  • @nihalsrm5636

    @nihalsrm5636

    2 жыл бұрын

    Hlo did u take any medicine

  • @juzztv1150

    @juzztv1150

    2 жыл бұрын

    Is it safe for us to exercise like jogging? I am so healthy before covid but after covid i stop exercise because i was scared of my heart rate easily goes up. The dr said i have anxiety and gave me Librax for medication.

  • @charujoshi6219

    @charujoshi6219

    2 жыл бұрын

    @@juzztv1150 how are you now? Can you excercise how?

  • @PR4SAN

    @PR4SAN

    2 жыл бұрын

    @@juzztv1150 don't listen to such type of doctor change doctor. You don't have anxiety. Thousands of other people also suffering from same

  • @DoubtToFact

    @DoubtToFact

    Жыл бұрын

    @@PR4SAN Hi sir, I have POTS,Actually past 9 months my heartrate used to stay at 70-80 when lyindlg down But,now my heart rate stays at 90-100 even when lying down sir. Is it common in POTS?

  • @fredms5420
    @fredms54203 жыл бұрын

    I know this will sound crazy, but i have been suffering from the same thing describe (palpitations, ER visit for heart attack which was negative, etc.). However....all this began within minutes of being vaccinated for Corona. I haven't had Corona. Could the isolated Corona protein used in the vaccine be the cause?

  • @dolcekayy

    @dolcekayy

    3 жыл бұрын

    ME TOO! i just got diagnosed with pots yesterday and he said i got it from the vaccine!!!! he said the protein could be the cause. i’m only 21 too and it’s so debilitating.

  • @broskiman7131

    @broskiman7131

    3 жыл бұрын

    Hello Fred I have developed pots after taking the vaccine too .AZ shot .Did your symptoms go away ?How have you been doin?Did you take any medication for it ?

  • @stasamikec3725

    @stasamikec3725

    3 жыл бұрын

    Me too. For me it is lasting 5 months now, I am on beta blockers which helps a lot. I got Pfizer. Are you guys any better now?

  • @mojabaka

    @mojabaka

    2 жыл бұрын

    Same, just not minutes after the vaccine, but rather 2 weeks. I developed severe urticaria and insomnia for 3 months, after that POTS symptoms and Bier spots on my palms. I still don't have an official POTS diagnosis, because I can't see a cardiologist because everything is fully booked until mid November. My urticaria is thankfully gone, but I still have severe insomnia (can't sleep more than 4-5 hours per day) and I still have the Bier spots and headaches. I've tried a few iPhone apps for measuring heart rate, but every app gives a different result, so I'm not really sure which one is the most accurate. The insomnia is the biggest problem and I fear that I'll fail university and lose my job, because I have to skip a lot of days due to extreme fatigue. I'm scared that all these symptoms will be life long and I don't know how I'm supposed to live like this. If i knew all of this, I would've never gotten the vaccine.

  • @melooo912

    @melooo912

    2 жыл бұрын

    @@mojabaka talk to you doktor and Ask Him to give you one Propavan and 5 mg Melatonin and Also dunig day 20-40mg beta-blocker Propranolol. Nakon dva dana baka ozdravi :) al nastavi namanje 7 dana sa melatoninom (UZ hranu vitamine; zink i D)

  • @pavankatari9142
    @pavankatari91423 жыл бұрын

    I'm a dental surgeon from India. I'm 30 years (Male) usually very healthy with no preexisting medical conditions or complaints. But I got POTS as post covid sequelae. Really appreciate the data you put in there. Hopefully it resolves sooner. It's been a month now

  • @sandeepsunny1698

    @sandeepsunny1698

    3 жыл бұрын

    What symptoms do u have?

  • @bharathsunnyBlogger

    @bharathsunnyBlogger

    3 жыл бұрын

    How are you doing now ?

  • @hendryyyy1262

    @hendryyyy1262

    3 жыл бұрын

    Any updates?.. its been two months for me..

  • @shikhajain7327

    @shikhajain7327

    3 жыл бұрын

    Are you getting better now? I have the same symptoms

  • @nils1471

    @nils1471

    3 жыл бұрын

    It can persist a long time. For me it started after dealing with some sort of virus in 2011 and I'm still struggling with it daily.

  • @laurenebauman4283
    @laurenebauman42833 жыл бұрын

    The specialist who diagnosed me with Pots last summer, didn’t have time to explain it to me... he told me that I can look it up... and I had covid last November and have not been feeling well yet! So he put me on bystolic, because my bottom bp # number was over a 💯 it’s still not what it should be at... I feel bad about it but don’t know how to tell anyone who understand how I feel! So I’m closing up inside! I don’t know how to tell anyone else...

  • @healthygyrltea

    @healthygyrltea

    2 жыл бұрын

    Hi Laurene, don't close up. Talk to your family, your doctor or join a support group.

  • @monicadelrio8040

    @monicadelrio8040

    2 жыл бұрын

    Hi Laurene I wish you well -- I will say that bystolic made me feel absolutely horrible. Try getting a second opinion.

  • @laurenebauman6192

    @laurenebauman6192

    2 жыл бұрын

    Ok thanks for letting me know! I will see what I can do coz I’m just not feeling well so I took my blood pressure and my pulse was over a 100 💯 both times I had taken it today

  • @jeevhiramani5401
    @jeevhiramani54012 жыл бұрын

    I've been diagnosed with PVCS after my post covid😑

  • @pawsformercy1050
    @pawsformercy1050 Жыл бұрын

    Can't even walk across the room to the bathroom " in time" anymore because I can't walk my knees are filled with fluid despite no osteoarthritis or injury to knees I have severe carpool tunnel in both hands as well and severe muscle pain in upper and below shoulders and above knees in thighs . Some days I can't wiggle my toes without sever pain or even cover myself up with my blanket because I don't have strength in hands or legs . I have a serve dog I can't even walk anymore and no one has been able to diagnose why despite dozens of blood tests MRI contrast imaging cat scans x-rays ultrasounds and bone density tests. They think I'm FAKING and gave me antidepressants ( gabapentin and cymbalta that made my feet swell and knees swell even worse . Now I just take CBD and THC gummys to sleep and alieve that's it with no diagnosis I can't even get a wheelchair or compression socks out of my Drs let alone someone to lay hands on my knees again I'm beside myself not knowing where to turn they cnt find anything specific to explain the crushing fatigue nerve pain and limited painful mobility I am 63 and was in pretty good health before Covid . Active and working Now I live in my van and am lucky to pull myself up and out in mornings I have actually had to call firedeot to help me get up and out if I lie in back . I can't get any Drs to take me seriously. I don't do drugs or drink other than THC gummys at night to help me sleep and I'm not looking for drugs I need to know what's wrong with me

  • @lifebeforedeath2830
    @lifebeforedeath28302 жыл бұрын

    I got covid in April 2021. Process of symptoms- 1)Palpitations for no reason. 2) Palpitations in sleep for no reason. I meant no stress, no anxiety. 3)Pain in heart, at rest also sometimes n when I travel by bus or car or bike, due to vibration. But no pain while walking.sometimes no pain while climbing the stairs also. Did CT coronary angiography also, it is normal, there is zero calcium deposition.

  • @PR4SAN

    @PR4SAN

    2 жыл бұрын

    how are you now

  • @graciaalerte1537

    @graciaalerte1537

    Жыл бұрын

    Hey how are you doing now ?

  • @asante6010
    @asante60102 жыл бұрын

    i got sick in 2020 but i dont know if it was covid but ever since i have inflammation, high pulse and blood pressure

  • @amandafawley9519
    @amandafawley95192 жыл бұрын

    Do symptoms with pots happen daily? I had covid in dec 2020. I have random bouts of high heart rate. I feel vertigo when I am standing for a bit. I have brain fog and fatigue. I have nonstop palpitations. My cardiologist said my heart fluctuated from 64-167 but said pots is overly diagnosed. I have a lot of nerve issues now also, burning sensations, pain, Etc. The palpitations are exhausting!

  • @controlyourtemperjeez8220

    @controlyourtemperjeez8220

    2 жыл бұрын

    Same symptoms but all the doctors, ERs, cardiologists I’ve seen ALL shrug me off and don’t care. THEY JUST DONT CARE! I don’t know what to do!

  • @Vimala_34

    @Vimala_34

    Жыл бұрын

    Same symptoms I also have these.. Numbness sometimes making me scary.. My Nerves may be damaged

  • @Kat-bu6uv
    @Kat-bu6uv3 жыл бұрын

    Good book about POTS POTS: What It Really Is & Why It Happens By:Patrick Ussher

  • @JS-iu3ni
    @JS-iu3ni3 жыл бұрын

    POTS for over 1 year post covid-19. I have tried several meds as well as all of the lifestyle measures and it is still so debilitating.

  • @Drewbibski

    @Drewbibski

    3 жыл бұрын

    Same

  • @greenthumb8266

    @greenthumb8266

    3 жыл бұрын

    Me too , severe , been struggling with it for more than 8 months now. Just got diagnosed today with POTS by a cardiologist

  • @Karola2222

    @Karola2222

    3 жыл бұрын

    @@ansnfbsknanssshshbsnsndnd5438 how many ml do you take?

  • @indianvineshouse8227

    @indianvineshouse8227

    3 жыл бұрын

    How are you now

  • @indianvineshouse8227

    @indianvineshouse8227

    3 жыл бұрын

    @@greenthumb8266 how are you now.

  • @East_Texas_Gaming
    @East_Texas_Gaming Жыл бұрын

    Im a guy, 35, great shape, been in the gym 12 years straight. Great physique. But got covid last year in January. Wasn't too bad, but by july I was short of breath at all times. Like I was suffocating. The pulmonary doctor said my lungs were fine though ! I then started having severe palpitations whenever I eat carbs. Like debilitating palpitations in a row, non stop. The cardiologist said my heart is fine though. Yet I'm still in the ER all the time for palpitations. I've even had doctors tell me its anxiety 😂😂. Which it isn't. This is so frustrating. Since last July I've barely been able to go to work, the constant shortness of breath would cause PVCs. Now I'm always dehydrated despite always drinking tons of water. My doctor said my kidney function is high and that my kidneys are slightly bad. For the longest I thought I was turning diabetic, because eating ANY carbs IMMEDIATELY causes palpitations. I don't mean once they enter my blood stream, I mean minutes after swallowing the first bite. As soon as it hits my gut. This goes for carbs like bread, potatoes, pasta, rice, whatever, any sugars, etc....yet my A1c and Glucose levels are always normal. I was 193 lbs solid muscle, buff !! Now Im 153 lbs lean, im losing weight because I can't eat the amount of carbs I need to maintain muscle mass or build muscle. Now after researching, I'm pretty sure I have POTS syndrome.

  • @ghassenbohli4056

    @ghassenbohli4056

    7 ай бұрын

    Its vagus nerve dysfunction

  • @judytubman585
    @judytubman58510 ай бұрын

    Post covid. My heart rate goes into 140s when stand , and my blood pressure is undetectable while standing. I have all symptoms weakness, dizzy foggy head faint. Incredible nausea. Can no longer walk.

  • @ghassenbohli4056

    @ghassenbohli4056

    5 ай бұрын

    How was your health before Covid ?

  • @Herbmamasita
    @Herbmamasita2 жыл бұрын

    Well, that explains my chest pain and shortness of breath since having Covid over 6 months ago. Dr checked my heart and all was normal. Wish there was a cure, though.

  • @boxerdogmum583
    @boxerdogmum5833 жыл бұрын

    Thank you for this talk. I have some important points you may be interested in. I am 49. I had covid in March 2020, previously well and very fit. I now have POTS. I am waiting to see a cardiologist. My symptoms fit with hyperadrenergic POTS, as my BP doesn’t drop on standing and I have an internal tremor / vibration sensation, particularly at night. My POTS is definitely not due to deconditioning - the POTS came first. I am working with a physio on reclining exercises and this is helping, but I’m having to increase my activity very, very slowly as I also have MCAS (mast cell activation syndrome) post-covid, which is triggered by exercise and in turn causes more noradrenaline to be released. My family doctor started me on beta blockers at night for the tremors, but as I have MCAS (which we didn’t know at the time), the beta blockers made my symptoms worse (again by causing histamine release, followed by a surge in noradrenaline). So a combo of exercise and meds is a good idea, but just be careful if there’s a chance you might have MCAS.

  • @khushiyamulla8845

    @khushiyamulla8845

    3 жыл бұрын

    How was MCAS diagnosed?

  • @boxerdogmum583

    @boxerdogmum583

    3 жыл бұрын

    @@khushiyamulla8845 I had allergy symptoms such as flushing, itchy eyes, nose, mouth, sneezing, reflux, abdo pain, diarrhoea following various triggers (exercise, almonds etc). You can get a blood test (baseline tryptase) and then another one a few hours after an allergy attack.

  • @khushiyamulla8845

    @khushiyamulla8845

    3 жыл бұрын

    @@boxerdogmum583 i have symptoms like pots but no allergic symptoms. I had got covid in september. Now i still have palpitations with pulse of 130 and pulsatile headaches and also tremors or vibration feeling in head, neck regions. Taking beta blocker metoprolol 50 mg daily but still experience palpitations on and off. What other remedies do you suggest from your experience?

  • @boxerdogmum583

    @boxerdogmum583

    3 жыл бұрын

    @@khushiyamulla8845 There is a strong theory that the coronavirus has made everyone’s mast cells go crazy. Mast cells release histamine, leukotrienes and prostaglandins. Medication which counteracts these chemicals might help. Strong non-sedating antihistamines are helping me. Sedative antihistamines (like piriton) make me worse, as you get a rebound of symptoms when the drug wears off. I’m also trying to avoid triggers, so I’m not walking too fast or too far and I’m trying to rest a lot.

  • @khushiyamulla8845

    @khushiyamulla8845

    3 жыл бұрын

    @@boxerdogmum583 how are you coping up with pots? What is helping you and what to avoid?

  • @traiandanciu8139
    @traiandanciu8139 Жыл бұрын

    After SARS COV2 at some patients a dropp of fresh blood agglutinate before coagulate on a surface of a (cold) lamela. At microscope erytrocyte aggregation like coin rolls can be seen (at low temperature -room temperature) If this sludge occur at periferial circulation, where blood temperature can be lower, viscousity of blood increase and can ,theoreticaly, trigger even disautonomia symptoms.(?) This ,,low temperature agglutinine,,after SARS COV2 infection, may be are induced by immune reaction of some lypid component of cell wall, that virus catch ,when are released from infected(hyjaked)cells.

  • @shubham_sangeeta_rathore
    @shubham_sangeeta_rathore2 жыл бұрын

    Was perfectly healthy. Now standing bpm is 110 while sitting is 80-85. I feel drugged and foggy all the time and my vision is messed now after covid and initially my palpitations were very very very severe.

  • @PR4SAN

    @PR4SAN

    2 жыл бұрын

    when did you get covid?

  • @shubham_sangeeta_rathore

    @shubham_sangeeta_rathore

    2 жыл бұрын

    @@PR4SAN jan 15

  • @graciaalerte1537

    @graciaalerte1537

    Жыл бұрын

    How are you doing now ?

  • @DoubtToFact

    @DoubtToFact

    Жыл бұрын

    Dear sir, I have pots symptoms I also from india,andhrapradesh I am very scared of POTS I dont want to live anymore Pls help me out from this sir🙏 I am begging you🙏 Pls reply SIR🙏

  • @shubham_sangeeta_rathore

    @shubham_sangeeta_rathore

    Жыл бұрын

    @@DoubtToFact it gets better with time my pots is almost unnoticeable after 9 months, i still struggle with brain fog and anxiety

  • @deekoh3996
    @deekoh39963 жыл бұрын

    So this is only happening to women?

  • @raloufen4292

    @raloufen4292

    2 жыл бұрын

    No. 1 in 4 are men. So far.

  • @MissAmazanda
    @MissAmazanda Жыл бұрын

    It's so sad what they did to all these people by releasing Covid, it's almost unforgivable whoever did this...

  • @dolcekayy
    @dolcekayy3 жыл бұрын

    i just got diagnosed by a cardiologist with pots and he suspects i developed it from getting the covid vaccine.

  • @broskiman7131

    @broskiman7131

    3 жыл бұрын

    Same here .Any updates ?

  • @francol1378

    @francol1378

    2 жыл бұрын

    Same here

  • @raloufen4292
    @raloufen42922 жыл бұрын

    Anxiety from Drs

  • @uwograd4045
    @uwograd40452 жыл бұрын

    Most statements in this talk unfortunately are not backed by references !! Particularly when it comes to impact of these interventions on quality of life

  • @emarie107
    @emarie107 Жыл бұрын

    LONG STORY SHORT... IRON DEFICIENCY AS WELL AS A VITAMIN D DEFICIENCY AND A GENETIC PREDISPOSITION TO DEVELOPING POTS. IRON DEFICIENCY CAN CAUSE POTS!!! FERRITIN AND VIT D LEVELS SHOULD BOTH BE ABOVE 100.

  • @peteplayz-norskgaming5723
    @peteplayz-norskgaming57233 жыл бұрын

    What if hr increases ~60 beats per minute but reverts to normal after about 30 seconds

  • @shubhamsingh2634

    @shubhamsingh2634

    3 жыл бұрын

    The same thing is happening to me also for the past 21 days How are you doing now?

  • @peteplayz-norskgaming5723

    @peteplayz-norskgaming5723

    3 жыл бұрын

    shubham singh it hasn’t gotten better for the last 2-3 months. It gets worse when I run for more than 20 minutes. Tell me more about what’s happing with you (symptoms, hr etc). Being curious, try this quick test; lay down for 2 minutes and measure hr (feel pulse, smart watch etc.), then stand up and check hr after 15 seconds, after that lay down immediately and see if hr goes into bradycardia/slow palpitating state. Just wondering since this is occurring with me. As well, has exercise gotten harder for you? Another experiment you can do is measure hr during running/walking vs biking/rowing at the same intensity and see if hr is highly different. For me sitting/laying exercise induces a normal hr.

  • @shubhamsingh2634

    @shubhamsingh2634

    3 жыл бұрын

    @@peteplayz-norskgaming5723 my hr remains elevated btw the range of 85-105 during day time from 1 pm to 7-8 pm. It gets normal in the morning and in the night but behaves very abnormally while sleeping.I had 3 days holter monitoring test where my maximum heart beat went to 161 and I didn't do any exercise or heavy work in btw those 72 hours. But my heartbeat increases suddenly from 80-135 when I walk 100 paces. BUT this sudden increase doesn't always happen to me. This abnormal increase happens to me 3 out of 10 times. And yes when I stand up my heartbeat rises suddenly by 10-15 pulses in a minute but it then decreases when I sit again. My heart rate goes below 60 when I wake up in the night and keep laying down and it increases as I stand up or sit down but it doesn't go below 50 pules per minute. I don't do exercise now because I have been told by doctors that people like us have got our heart muscles a bit weakened. So, it's better to avoid heavy exercises. Fairy, we should have diet for our heart muscles and do meditation and yogas. Several studies have shown that it can be stress and anxiety which has created this abnormal sinus rhythm. From yesterday, I have been taking CIPLAR LA 40 mg once a day, although ,it has decreased my average heartbeat but the problem of heart palpitations is still can be felt while laying/sitting in silence .My 1 pulse gets skipped in 30 seconds and that gives an awkward feeling in my chest. I once walked down 2 km on 21st and I found something very strange. Even after 3 hours of medium pace walking, my heart beat remained elevated to 150 for 3-4 hours. I have mild fever ranging between 98.6-99.2 and that too during day time. And I can feel tremors when laying down. You also share some symptoms like me. And I got COVID-19 positive on 29th September and negative on 21st Oct.

  • @peteplayz-norskgaming5723

    @peteplayz-norskgaming5723

    3 жыл бұрын

    shubham singh Sounds very similar.Will be interesting to see what happens. Do you personally think it’s just a dysregulated autonomic system or heart issues may be present as well?

  • @shubhamsingh2634

    @shubhamsingh2634

    3 жыл бұрын

    @@peteplayz-norskgaming5723 I have got just basic tests like CT scan and holter monitor test, so it's difficult to comment upon it now. But I am sure we will get out of this one day

  • @giltgirl1
    @giltgirl12 жыл бұрын

    Nobody will help me. I’m telling them I have POTS.

  • @shumailaqamar223
    @shumailaqamar2232 жыл бұрын

    I have had covid in june and ever since then i had heart palpitations and extreme fatigue if anyone has recovered from it please let me know i am exhausted and i cry every day i am only 30 years old but i get these palpatations every day somedays 24/7

  • @niteshmaharaj4905

    @niteshmaharaj4905

    2 жыл бұрын

    same condition i m 20

  • @niteshmaharaj4905

    @niteshmaharaj4905

    2 жыл бұрын

    hope we get well soon

  • @healthygyrltea

    @healthygyrltea

    2 жыл бұрын

    I had Covid July 2020 and still dealing with these palpitations. I know we will recover; we just have to keep researching and sharing information on what is helping. I find after I do a 30-minute walk, I feel better and less palpitations. BTW I' am 58

  • @greenflock8091

    @greenflock8091

    2 жыл бұрын

    First thing is calm down..now listen! You are NOT alone. Okay I have the same thing but I'm calm just become okay with it and chill out..we will get through this together you and me okay..now you will stop worrying okay. Okay! ...good! Now your not worrying do some breathing exercises I.e deep breathing.! ...great! Your going to be fine...I know your going to be okay.

  • @greenflock8091

    @greenflock8091

    2 жыл бұрын

    If you want to tell me how your feeling please do..and I'll try to help you if you feel you need a little help..remember just be calm its going to be okay. ❤ I know its scary and that's okay because we are going through the same thing. Trust me just remember to relax and breathe...it might not stop your heart palpitations quickly but just relax.

  • @Maryellengray
    @Maryellengray2 жыл бұрын

    Jumping around too much. I can’t understand her

  • @terminatorx2448
    @terminatorx24482 жыл бұрын

    You people with POTS finally feel special? Don’t worry us with Lyme meningitis/Lyme disease or PTLDS finally feel special to…