Long Covid: Recovery & Advocacy | with Freya Sawbridge
Freya is a Long Covid advocate who fully recovered from the illness.
We talk about her advocacy work for Long COVID awareness and the importance of informing people about its potential long-term effects. We cover the need for more research and support and the dissonance between the scientific understanding of Long Covid and the public perception.
I really enjoyed this convo, you can check out the links below:
Website: longcovidsupport.co.nz/
Freya: / freyasawbridge
00:00 The Impact of Long COVID and Changing Perspectives on Health
03:18 The Journey of Recovery and the Importance of Rest and Support
11:20 Advocating for Long COVID Awareness and the Need for Information
29:41 Dissonance Between Scientific Understanding & Public Perception
30:45 Challenges in Defining and Diagnosing Long Covid
32:02 The Importance of Advocacy and Research in Long Covid
35:25 The Impact of Anti-Establishment Rhetoric on Long Covid Awareness
38:44 The Need for Clean Air in Preventing the Spread of Covid-19
45:50 Effective Fundraising and Advocacy in the Charity Sector
Пікірлер: 40
For me the most important research needed is finding out why some are so susceptible to LC and some not at all, including the spectrum of all who suffer between these extremes. I'm an immune system optimization advocate for everyone, including apparently healthy populations. I start with optimizing Vitamin D levels in our bodies. However even those of us who are 'Preventative Health Care' advocates rather than 'Symptomatic SickCare' practitioners must recognize the genetic and epigenetic components of susceptibility to diseases like LC, MCAS, MS, and the rest that need more understanding of action in order to reduce the terrible suffering these diseases wreak upon the populace. Peace, Love, Health, and Freedom, to all who are fortunate enough to strive for these goals. 🙏 ct
I'm still living with done lingering effects, but I feel lucky I was able to keep my job. The fog socks, and I'm still unable to do much exercises aside waking. It's a struggle to go to the doctor because he doesn't refer me to anyone because my tests are normal.
This disease is just like she said. I can relate to the same neurological symptoms! When she said straight up dementia, I totally get it! From being disassociated, to tremors, to disautonomia! Insidious! I had from Aug 21 to March 2022 ish. Fast forward to now, I’m 7 weeks in again. This is horrible. Just when you recover it can happen again. Lord Jesus help us all.
This was a great convo ! Have had long covid since march 2020 - was ultra healthy and fit before - I am excited to learn there are tests for the microclots now . Where can we get this done or what is it called exactly so I can ask for it . Thank you for this discussion.
The thing it's the same as m.e. It's a great opening description of m.e. Great words
Thanks so much, Freya, and the host, for this on-point discussion
@Lewisss89
Ай бұрын
She had LC? I am not good English speaker. Did she said how? Thank you 🙏
I like what Freya does. And also her change in empathy’s. All around I have to say I noticed a lot of fear regarding this illness (which is understandable) and also the point that you really are just unlocky and can’t do anything against it. Because it seems to be completly random. I think that’s quite a depressing thought for somebody suffering with long covid. For the viewers: the most important thing ist to get the power into your own hands !
Jeesh! This is spot on!
Enjoyed listening to this discussion. Thanks
@harryboby7563
Ай бұрын
Glad you enjoyed it!
@sneakypress
Ай бұрын
@@harryboby7563 There is no “ cure “ for “ long Covid “ . Long Covid is caused by medications --- pharmaceutical drug administration . Long Covid is chemical poisoning . Only , if you are lucky , does your body recover , in a reasonable amount of time .
@sneakypress
Ай бұрын
@@harryboby7563 Dear Harry , Do you not realise , that by deleting our message , YOU , are just perpetuating what these “ people “ continue to do to everyone ? Long Covid is chemical poisoning , the result of pharmaceutical drug prescriptions .
Exactly the same goes for the shot reactions.
I had a relatively short recovery of 7 months for my first long covid... went back to full life, full exercise and then I was hit again and now I'm 22 months into bout number 2. Getting better but far from recovered.
@treysavage9262
Ай бұрын
Hey getting better is great, I know you’re not nearly there but still. I’m happy for you. Keep pushing through. We will get better it’s just gonna take a LONG time. I’m 9 months in and dealing with some pretty shitty symptoms but doing better mentally. Some stuff is definitely better physically but not much.
@treysavage9262
Ай бұрын
@@user-mw9bd2ey6s do your research on long covid, you will know when you have it. You suddenly not healthy anymore and can’t do the things you used to do. There’s millions of people going through right now and it’s miserable. Many of them haven’t even recovered since 2020 when the first wave of the virus came out.
What is a microclot test ???
Did we know at what tissue temperature did SARS COV2 better replicate ? Why ? Because virologist Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature (34-35C)(at TWiV Nr 659 at min29)
VERMICULITE and ASBESTOS are two completely separate substances ( minerals ) . What she is referring to must have been vermiculite CONTAMINATED with ASBESTOS FIBRES . Pure vermiculite does not contain asbestos and is non-toxic.
Has she had spontaneous recovery?
@robinsierra1029
Ай бұрын
She said that she had fantastic support from her family and that she was just playing lucky
i desperately wish i had such luck. i am 3.5 years in and actually getting worse. also i don't have any support
@peabee4758
Ай бұрын
What have you done or tried so far ?
@robinsierra1029
Ай бұрын
@@peabee4758 very early in this “process “I went to a Covid Clinic which looked at my diet and did physical therapy, which didn’t help at all. I then worked with a Naturopath who did acupuncture and herbal remedies. Also no change. I have been pacing for years. I tried the antihistamine routine with no results. I take 20 different supplements. I went to a Doctor Who specializes in Covid who took some of my blood and put it into a microscope to show me what the problem is. It shows that my cells are all aggregated when they should be floating free. They are like caterpillar shaped strings that are too fat to get to my capillaries, which is causing my body to not get enough oxygen, which I believe is the main reason I have extreme fatigue, brain issues. He had me take a different kind of supplement from silk worms, which didn’t do anything either. I talked to a Doctor Who had me get my thyroid checked, can’t think of anything more in this moment but I’m sure there’s more. Also, I have been meditating for 50 years and do a lot of “work” processes.
@Wonderman62
26 күн бұрын
I am 4 years in and I support you!! Sometimes I feel like I am getting better but sometimes it feels like I am getting worse...changes daily.. Please know...I love you....Blessings, Eileen from Missouri.
I don't think 100% recovery exists. We are just getting patches to grow up to 90% if we get super lucky. But the scar will be there for ever. Who knows, we all might get cancer or Parkinson in a few years.
@0Tsutsumi0
Ай бұрын
We might as well not get any of that. The thing is that we don't know, and believing 100% recovery doesn't exist doesn't help.
@johnframe1117
Ай бұрын
100% recovery is inevitable. look at Raelan Agle, Miguel Bautista, and Alan Gordon's work. The nervous system is at the root causing all of these very REAL physical symptoms and sensations. I know it doesn't sound believable but I urge people to have an open mind. exercising in small manageable doses and triggering flare ups, responding well (somatic tracking, self soothing, etc), correcting the fight or flight response is part of the recovery process.
@northernflicker1111
Ай бұрын
Does this thought process help or hinder you?
@Markdmarque
Ай бұрын
You don't catch "Long Covid"
@Markdmarque
Ай бұрын
They don't mention if they had the Jabs