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@kimwarburton8490

3 жыл бұрын

in the case of Me/CFS A high ACEs score and/or CPTSD is a frequent predisposing factor for Me/CFS STRESS and an inability to process for 'x' reason/s means it gets stored within the nervous system. the biggest subgroup of ME/CFS are those who remember they had a virus or a series of virus before and or during their ME/CFS onset. EVERYONE has had at least one virus in their life, so we cannot count that. The most common is EBV followed by Lymes and bartonella. Theres the 'trauma-stress heads subgroup and the gut (dysbiosis/leaky/candida/low acid/bile etc) group making the most common factors for staying stuck in illhealth. Paleoketo diet was essential for stopping me being bedridden 2018 gave me the energy to walk an hour at the end of 3 months b4 i over-reached n gave myself a relapse -.- Still, i now know ive been ill so long that i need brain training. its not enough to suppress the symptoms with meds and lifestyle changes, iv got to do the internal mental health work which is providing me my own perfect labyrinth to solve

@ORood

3 жыл бұрын

kim warburton, I suspect that some cases of post viral malaise is a chronic metabolic disorder brought about by imbalances in the CNS and possibly triggered by virus. There are many aspects of cellular metabolism, but there are only a set amount that regulate reaction to food abundance, nutrient absorption.. and some are linked with other key functions related to cell repair. I suspect that an imbalance in key metabolites in the cell cytoplasm leads to a downward spiral which causes dysfunction, manifesting eventually in cell death and cognitive decline. Another example of preventing a condition with adequate nutrients is folic acid given to prevent birth, neural tube defects. In theory, post viral malaise should be treatable. But that will require finding the cause, or specific metabolites that have been impacted.

@kimwarburton8490

3 жыл бұрын

@@ORood and the chronic metabolic disorder has been reversed when people change their perspectives and stop internalising so much stress, develop tools to handle stressors, deal with their past issues, toxic people, environments, foods etc. When we get stuck in chronic stress states, constantly tense, teeth grinding flogging ourselves etc When that becomes the norm, all it takes is one teeny virus to trigger a bloody storm. The ANSdysfucntion that results is where the neurological, the psychological and the body physical systems all interact Including metabolites gut microbiome and mitochondral function i eat apaleo-keto diet as a cheat/medicine to suppress symptoms IF i reverse the ANSdysfunction, ill be able to eat foods i could previously eat without an issue My ANSdysfucntion is brought about by CPTSD, constant chronic stress and bullying and depression and selfhate/MH issues 30+years Its bloody hardwork, but guna be soo worth it to regain my life

@mazenosama541

3 жыл бұрын

@@ORood ض

@badfairy9554

3 жыл бұрын

The Oxford jab helps people with long covd.

I've had ME for 5 years and has torn my life apart. The hardest part has been the disbelief of the medical community and then Long COVID comes along and now it's a 'new illness'. I had to turn this off half way through as those who have suffered with ME for years were given no acknowledgment.

@paulthompson9668

Жыл бұрын

It's because it's not a medical condition that is profitable to treat.

Excellent discussion - especially on the impacts to financial hardships. The most frustrating thing with fatigue is people who haven't experienced it think it's "feeling tired".

With 25 years experience of being left to rot with ME/CFS, I can only hope that the long Covid generation get more help. Thank you for helping to raise its profile.

@soggymoggytravels

3 жыл бұрын

@Mr Burns There may be lots of info about coping and 'recovering' from CFS/ME, but there remains little research that has translated into practical measures that deliver reliable results or any hope of a real cure, and that is the real tragedy. I know OHC very well, and I'm aware that they approach things holistically, which is always a good way to approach many conditions, but their approach doesn't work for everyone. I do hope it makes a difference to you, though.

@pureenergy4578

3 жыл бұрын

Then you have 25 years of eating GMO foods. Watch the video GENETIC ROULETTE.

@galespressos

2 жыл бұрын

Ditto, same here. Being left to rot is a good way to put it. Well phrased Even family decided I wasn’t interested in them when I was too sick to jump or do tasks. It’s horrible. On good days we look okay so nobody believes it, except perhaps employers who then wouldn’t hire, leaving only the lesser paid more draining job options, further worsening family issues. Hopefully this Covid issue will get people to acknowledge these long term conditions involving fatigue.

@LYJManchesterUnited

5 ай бұрын

I got LC in sept 23/ yes I hope we all get out of this together

Thank you for doing this event, I’m a long term CFS/ME sufferer and whilst I am sorry for anyone suffering Long COVID I am delighted to see that finally investment is being made in research in this field and communication of progress in this format is most welcome, finally HOPE!

@jackiedoy6342

3 жыл бұрын

fatigue is a mitochondrial problem It is shared by everybody with MA Lyme disease MS and so on it can be treated do you have a constant infection from a pathogen you’ve picked upand it’s caused by the pathogen not the virus not the coronavirus, from what I understand the coronavirus just sets off some underlying infections that you’ve been carrying and you’ve been unaware of you can carry Lyme disease for 20 years and not know it. COVID what set it off. You need to start treating the pathogens like we do with Lyme disease get yourself in a Lyme disease group and you can get better from chronic fatigue

@soggymoggytravels

3 жыл бұрын

@@jackiedoy6342 I'm not undermining your point, as I'm a long-term sufferer, but at present that theory - although a possibility in some cases (certainly retroviral activation is very persuasive) - hasn't been proven.

@jackiedoy6342

3 жыл бұрын

@@soggymoggytravels That’s okay I’m not offended. I think really but the point I was trying to make is that whatever these people are suffering from they can get help from Lyme disease treatments because The fatigue element gets addressed as part of the treatment so anyone with those symptoms can get better from Lyme disease treatments or to put it another way treatments for worms parasites bacteria viruses and spirochetes pretty much what we used to do in the 50s but stops doing. No wonder we’ve had half a century of an increase in chronic illness not addressing the parasites. Oh and by the way the modern day parasites it’s not just a case of a quick job these things I’ve got clever over 40 years. Remember the job the job of the parasite is to survive so he has had 40 years To learn how to fight anything we throw at it

@christurnbullkungfuwushush336

3 жыл бұрын

Yeah, but why are they pretending nothing like this has ever existed before? I lost my childhood to CFS/ME, and am still suffering to this day as a 34-year-old man who lives in chronic pain - despite having a very active and healthy lifestyle. See my videos if you want clarification. Long Covid isn't a new syndrome, it's the same as CFS/ME. The establishment cannot bare to admit they were wrong to gaslight us all for so long. Best thing to come of Covid, it shows they were wrong all these years to dismiss us.

@christurnbullkungfuwushush336

3 жыл бұрын

@Mr Burns 20 years ago, I'm telling you how badly we were treated. Over time, there has been more acceptance, but it's still not where it needs to be. I've never had so much as an apology for how I was treated, and many others the same. The amount of damage done to me and many others by the medical establishment, I can't put it into words. To be constantly told you're crazy and making it all up by people who are their to help. These people should acknowledge that long Covid is not so distinct from anything else, it has clear similarities to the pre-existing post viral syndromes.

As an Ehlers Danlos Syndrome sufferer, I can say that our community comment that folk with Long Covid seem to share some conditions that we suffer with as well. They would be : fatigue, postural hypotension and mast cell activation syndrome. Another school of thought is that ME and Fibromyalgia may fall under the umbrella of collagen disorders. Feel so sorry for all the Long Covid sufferers as I know how devastating chronic illness can be. 😪

Having had chronic fatigue syndrome for 3 years after a virus, experiencing majority of the strange variety of symptoms affecting the body that people with long covid have as have others I have met with Cfs/ME, its clear this is not new! Doctors do not understand it and many think it's someone being a hypochondriac when symptoms are shared. Hopefully more research will go into this area finally to help those now and in the future.

@SvetlanaMinina

3 жыл бұрын

Yep, I've been called hypochondriac by several doctors. As if having this disease that ruins your life isn't bad enough.

@toni6053

3 жыл бұрын

Not just more research actually physical research would be amazing after the 30 year embargo on it in favour of the wesley school of psychological torture and exercise programming non peer reviewed nonsense I hope.

@rosesandthorns47

3 жыл бұрын

I had CFS after a virus also. This was years ago. Doctors were useless. I finally started going to alternate natural medicine and got well. I was sick for years until I figured it out. Then I enjoy good health and was then poisoned with mercury and lead when the corrupt government dug up some land next to me that was contaminated. Once against the doctors were useless. I went to alternative natural medicine. I learned a lot more. Then I got early covid and was very ill very 6 weeks. I lay there alone and sometimes thought of going to the hospital but knew the doctors would not help. It is hard to think when you are so ill and alone but finally I started to remember to treat myself with herbs and other natural ways and quickly started to get well. I was probably the first wave before it was famous. When the shut down came, several people moved into my house after years of living alone and I had to work really hard to rearrange the house and didn't get any help. Also did not get enough rest or self-care so now I am returning to treating myself naturally to treat the long-term syndrome. I have full confidence in my recovery because I am very experienced at this. I consult with alternative med professionals. It is not a new condition. I am really sorry people have to go through this and the resources to help are so poor. It is tragic that other ways of medicine are ignored and censored.

@NickMarshallMusic

3 жыл бұрын

The Virus helped you, they are there to clear out the toxicity that your body was carrying. CFS caused by excess toxicity in the body, and inability to get rid of it

@demolaj1

3 жыл бұрын

are you better now ?

I am fortunate that I work in IT and my job allows me to work remotely. If I had a job doing physical labor or if I had to go in to the office every day I would have lost my job by now. I can barely walk up one flight of stairs now. I also have doctors that have dismissed my symptoms and have even suggested I seek a mental health professional. And I have friends that don't believe this is anything to do with Covid 19. Getting help and people to believe my symptoms are real has been frustrating at best.

@pureenergy4578

3 жыл бұрын

Try watching the video GENETIC ROULETTE to see if you can find your cure there.

@beewinfield

3 жыл бұрын

Sorry to hear your struggle, frustrating for sure. PM me as I believe I can direct you to good info.

@Angiedisney14

3 жыл бұрын

I have problem with stairs now too I’m 29 and was healthy had covid nov 2020. My joints hurt and when I get to the top of the stairs I feel breathless and angry with my heart going mad I can’t think properly in these moments and feel smothered. I have since been diagnosed with hyperthyroidism if this helps please get your thyroid checked and I am soon to have a Graves’ disease check in a couple weeks which I really hope I don’t have

@Cork_UO

3 жыл бұрын

@@Angiedisney14 Just an update for you. After getting my second Pfizer vaccine dose I am feeling better each day. I was able to walk almost a mile today and I can do a couple flights of stairs easy now.

@Angiedisney14

3 жыл бұрын

@@Cork_UO yay that’s really good news I haven’t had my vaccine yet I’m from the uk but they have just offered to 30 so I should be soon. The stairs still get me only thing that’s helped is propranolol, but also did you ever find hot baths affected your heart

Unfortunately, I have personal experience of how the current and previous governments deal with disability. I wish you all the very best.

@soggymoggytravels

3 жыл бұрын

Yes, those who are in government making the decisions are the strong. There is sadly often little space for the sick and weak, especially those who have poorly understood diseases.

@matildamarmaduke1096

3 жыл бұрын

@Mr Burns I'm thinking both

@pureenergy4578

3 жыл бұрын

I am handicapped also, and get no help from medicaid or medicare. Research is your cure. Watch the video GENETIC ROULETTE. Also watch the video SCIENCE AND THE SWASTIKA. Read the book WAR AGAINST THE WEAK by Black.

@junglie

3 жыл бұрын

Yeah me too i was struck off during bliars govt , still crippled with back disc trouble now, saw those lot sell off most of the nhs & sign those rip off private hospital lease con schemes ,they are just two cheeks of the same arse they'll both crap on us given the chance everytime for backhanders from their rich mates

@robincousins1144

3 жыл бұрын

Maybe Bill Gates is the devils advocate...

Medicine has ignored M.E / Chronic Fatigue for decades. It has long been suggested its psycological Now, many health professionals are suffering post viral malaise, and now they are taking notice; BUT still ignoring M.E (yes, it was in the word cloud, however...)

@antheablackmore5838

3 жыл бұрын

Dr Myhill

@celiad6012

3 жыл бұрын

Have you ever spoken to women suffering from endometriosis who tried to get a diagnosis 20 years ago? Seems to me GPs are very good at telling people their problems are all in their minds

@darrenelkins5923

3 жыл бұрын

@@celiad6012 my wife, all the time. It’s scandalous what she’s been through.

@philipdutton9435

3 жыл бұрын

@@celiad6012 There are so many conditions ignored by medical science with a reluctance of public recognition. Psychosomatic disorders are NOT in the head. They are real physical symptoms influenced by psychological factors. I cannot get find appropriate researchers.

@celiad6012

3 жыл бұрын

@@philipdutton9435 It is hard to recover if you don’t have faith in the doctor

I would like to commend and congratulate the Royal Society for hosting this and sharing it for our benefit. Thank You!

I am utterly perplexed and well as angered as to why it’s taken a pandemic for medical staff to recognise that ME/CFS is a genuine medical condition. People with ME/CFS have been silenced,ignored and dismissed. All of these things have lead to a lack of funding for the condition and thus a lack of understanding. The new research for me/CFS is promising yet beyond infuriating. The funding just hasn’t been there for medical staff to fully grasp and understand ME/CFS. Patients gave therefore been denied help and been miss understood by medical staff for years and years. I hope that the pandemic funding will have a more positive outcome for those with l ME/CFS and a greater understanding from medical staff and others. I’m hoping this pandemic will allow medical staff to have more education about ME/CFS.

The story of long covid is ME maybe now the British medical profession will stop ignoring it.

@helenrowley1886

3 жыл бұрын

Also epstein bar virus causes problems, how different virus and health conditions impact on each other. What I feel missing from this discussion is whether it might help the research if they managed to isolate the SARS Covid 2 virus using Cox's postulate. Does anyone know if this has been done yet. Very tricky to do scientific research on purely anecdotal evidence. I am not a scientist but very strange ideas expressed in this video, such as a vaccine that makes you well post infection. The idea of what a vaccine is has been really stretched, mind boggling this science.

@gazmasonik2411

3 жыл бұрын

@@helenrowley1886 the coch postulates done in 7 California labs, revealed two influenza- A some B- no cov19. From 100s of autopsied allegedly covid deaths.. talked of last December..now? I can find no further info..

@Dancestar1981

3 жыл бұрын

@George money did you know gates has a patent on lots of the Covid shots

I have two friends with Long Covid...both 16 months so far. They share so many symptoms with M.E/CFS and Fibromyalgia...hoping that research in to LC provides answers and genuine treatments for those with the other post viral syndromes which have been destroying lives for decades with very little research and certainly no useful help, only dreadful destructive programmes to either tell people they are imagining it, or to exercise them in to relapses. We ALL need help, and to not be dismissed by medics.

I had a lung infection in January ‘20, went for GP checks, experienced heart related issues and exhaustion through into May with sleep disruption, while also experiencing smell/taste loss. Cognitive function was affected through June/July and insomnia and physical pain increased into August. A combination of all things remained through into December. The fatigue is ever present. The odd thing is that after speaking with various medical professionals nobody has received my consideration of LongCovid positively. I have tested negative on 3 occasions, but was already 6 months “in” when testing for the 1st time as not previously available on earliest symptom requirements (that I had earlier however).

@balnazzar123

3 жыл бұрын

are you ok now ? did symptoms go away after 1 year ?

@Blessedup69

3 жыл бұрын

Sounds like radiation poisoning

@pureenergy4578

3 жыл бұрын

TEST FOR GMOs in your body. Watch the video GENETIC ROULETTE.

Same symptoms as M.E also known as Chronic Fatigue Syndrome. Maybe now sufferers will believed, now that there's 'long covid.' I've had M.E/CFS for 15 years. Not fun. Completely changed my life.

Thank you for this scientific online event in a COVID period.

As a long-term M.E./CFS sufferer (more than 20 years), with all the symptoms mentioned in this talk (and others) as being part of the long covid picture, and, considering that I got M.E./CFS after a viral illness (so it’s also a post viral illness), I just find it incredibly frustrating to hear all these experts in this field just not seeming to know about the similarities between these two illnesses. I personally feel that these two are exactly the same illness. But even if not, they are basically incredibly similar, so why is M.E./CFS not mentioned when they are asked if there is anything similar or they talk about similarities with other illnesses that we already know about? It feels like we (people with M.E./CFS) who have been living with these incredibly debilitating symptoms for years are somehow just still totally invisible. It is incredible frustrating and demoralising to see that even experts in this field of research seem to have this blind spot with regards to M.E./CFS. How can I expect my GP and consultant to have any idea of this similarity if this is not present at the top? I can not help but feel extremely sad about this 😔

The ME/CFS community has been pressing for ages for more research in the UK. Viral infection is recognised as a trigger in many cases. In the US many researchers are suggesting multiple possible avenues of interest, but I don't see an awareness or reviews in the UK of this work. Clinics can help with pacing advice and suggest pain management but not much else.

@brad42948

3 жыл бұрын

Agreed. This sounds very like CFS / PVS and not something unique to Covid. I suffered with CFS for 20 yrs after a viral infection in my early twenties.

@soggymoggytravels

3 жыл бұрын

Completely agree. The most funding and best research to date on ME/CFS has come from the US. I hope we see more concerted effort for all types of immune-associated (fatigue) illnesses.

@jamestiberiuskirk3277

3 жыл бұрын

Absolutely spot on. Medicine does not remember its own history! ME/CFS used to be called "The Royal Free Disease" after an outbreak of a respiratory virus at the RF Hospital in London decades ago in 1955, left nursing and medical staff with long lasting symptoms well beyond the initial infection. That was forgotten until it became "Yuppie Flu" in the 80's. It is real. It is physiological. As a Community RN I contracted a respiratory infection whilst at work in 2002 and developed ME/CFS that took me out for six months, with enduring symptoms lasting several years. In March 2020 I contracted Covid 19 whilst working as an RN in hospital (so good I had to try occupationally acquired viral infections twice!). That was far, far worse than the previous infection in the acute and post acute inflammatory phase but was very similar in its chronic effect, with symptoms still being suffered a year later. Unfortunately the medics don't have the time to follow these cases up thoroughly or simply dismiss it out of hand..."it's all in your head and you need CBT"!

@soggymoggytravels

3 жыл бұрын

@@jamestiberiuskirk3277 Has the RF cluster case been definitively linked to a respiratory virus? When I first heard about that case, the belief was that a Hep B vaccine was the common denominator.

@jamestiberiuskirk3277

3 жыл бұрын

@@soggymoggytravels Hi there. The Hep B vaccine was developed a decade after in 1965 and wasn't rolled out to health staff in the UK until the 1980s. That's when I got my first Hep B jab. Respiratory virus remains no 1 suspect for RF Disease as far as I was informed by a retired medic who remembered the reports back in the day. Cheers.

Matches my long experience of CFS, still relapsing and remitting after 25 years. More research is so welcome as are these discussions by experts, thank you.

@bennym1326

2 жыл бұрын

@George I did a 32 hour fast and it helped immensely. Will be doing more fasting moving forward

So nice to see such a public and well respected figure taking long covid seriously, as so many ignore us. I'm 24 and only at the beginning of my long covid journey (4 months in) and it has changed my life completely. I'm terrified I'll never get back to "normal" again!

@sopdiedop

3 жыл бұрын

Me too Shannon, mine kicked in badly in August and I’m 29. I’ve suffered with fatigue before, but nothing like this. I’m just so tired of being tired!

@kiwipics

3 жыл бұрын

It's a shame that there is no support from the NHS and just the hollow words of these so called health professionals and celebs.

@jennybluedyson3855

3 жыл бұрын

Vitamin D3 from the best Health food shop you can find. You darling person .. its fear thats the killer. Get your self out in Nature regularly honey ... like twice a day.

@gurpchirp

3 жыл бұрын

it is baffling to me that we don't call this what it is: me/cfs. it has been 13 months for me. i was a baller in LA. beautiful girlfriend, great job, played hockey 3x a week, super healthy, etc. i am now a tremor-riddled neuromuscular mess. if there is no cure, i am definitely committing suicide in five years. i don't see any other option. this isn't life. it is a simulation of hell.

@chonkyvoid

3 жыл бұрын

I'm sorry to see so many of you suffering too. I wish I had something constructive to say but as so many of you have said there's no cure at the moment, so all I can do is say I completely empathise and sympathise with all of you, and hopefully the medical community can put their research from ME/MS/Fibro to use to help those of us with LC too and advance for all of our sakes

Thank you that was very reassuring. 13 months of long covid here. As a single mother it has been very challenging!

@dedetudor.

3 жыл бұрын

Are you familiar with Modern Homeopathy?

@beewinfield

3 жыл бұрын

@@pureenergy4578 you are onto it.

@Dancestar1981

3 жыл бұрын

Omg you poor thing hope you can find the help you need

@dedetudor.

3 жыл бұрын

There ARE therapies. That's all I can say. Dr. Peter McCullough has spoken. MANY have spoken. One athlete posted his regime for expanding his lungs capacity and what he is doing to boost his innate immune system. So if you're not getting the help you need, keep seeking answers.💪 🙏💓

@demolaj1

3 жыл бұрын

are you improving ?

I watched this great discussion in a rather tearful state, as they were describing EXACTLY the illness of my poor 26 year old son - bedridden for the past 3 years with severe ME. I hope long covid sufferers are studied and compared along with ME sufferers during long overdue research, as in my opinion, they seem to be the exact same thing.

@Swordsmith100

3 жыл бұрын

Yes. I could've screamed. My wife has been reduced to less than 50% of her previous life and spends most of it in bed. The symptoms are identical, but she has suffered for three years after a common cold. The medical profession just don't want to know, and there has been not a mention of M.E, which can obviously be 'longbadcold' or 'long flu'. The death rate is quite high, but from suicide, so it's conveniently swept under the carpet as being due to M.E. The hope now is that this will have such an impact on the economy (that holy word for the government) that at long last it will be taken seriously.

@DocHoliday596

3 жыл бұрын

We don't know that.Most doctors believe it is not the same.

@dawndawnadams5446

3 жыл бұрын

@@Swordsmith100 I'm so sorry to hear about your wife - ME is a truly devastating illness and is not taken seriously by anyone it seems. The symptoms they were describing are identical!! Their suffering is made worse by the fact that the illness is not considered a priority by the medical profession. Watching my son's relentless suffering 24/7 is truly the worst thing that has ever happened to me. I sincerely hope that the research into long covid will help ME sufferers.

@Swordsmith100

3 жыл бұрын

@@DocHoliday596 Three years ago, the number of people worldwide researching cancer was in the six figure magnitude. The number researching M.E was just six. I wonder with what qualification 'most doctors believe it is not the same' when they don't even acknowledge M.E in the first place.

@Swordsmith100

3 жыл бұрын

@@dawndawnadams5446 But first they'll have to acknowledge they're the same thing. As the comment on my post indicates, there's a lot of reluctance to do that, as it will mean admitting having so far swept the issue under the carpet. My wife has joined an M.E sufferers group which she finds infinitely more helpful than her GPs, who in fact gave her advice which proved to be the exact opposite of correct. And I've heard GPs now giving that same wrong advice to long covid sufferers.. When she first found she had M.E, she described a big range of symptos which I had difficulty in understanding, even if I believed them; but when I took her (M.E. means she can no longer drive) to her first meeting, it became immediately obvious everyone else had the same symptoms. As they said, the only GPs who acknowledge the existence of M.E. are those who have it themselves, and of course, they're no longer practicing.

I got the flu about 6years ago and it took 14 months to recover. I was carrying symptoms all that time. I was totally healthy before I caught that dose. My doctor said it was viral fatigue and was very common so this is nothing new

@FrancisMaxino

3 жыл бұрын

But do they call it 'long' influenza?

@dorothygilmour1435

3 жыл бұрын

I agree with these comments. I had ME/cfs after a viral infection which lasted for years and recurring urine infections. I was told by mainstream medicine that nothing can be done. Low dose antibiotics were prescribed but I refused. I repaired my gut which had been damaged due to overuse of antibiotics. I did this with dietary changes and supplements overseen by a good nutrionist and worked on the mind body connection as once you're I'll for a while and after you fix the biology its difficult to feel good again and a holistic approach is needed. Mainstream still works on the germ theory model which is old science! Terrain (your biology and that of the planet) is everything with regards to balanced health. There are doctors now who see this but they are not in mainstream. A relative had the same experience after flu, was off work for over a year and once the gut was repaired by working on the microbiome and a holistic approach was taken he is well. There is a saying that science changes one funeral at a time. Old science is not the answer. (It's not the answer to the pandemic either!).

@terrymoore565

3 жыл бұрын

You were not healthy, and doctors know zero about a virus.

@sean5409

3 жыл бұрын

@@FrancisMaxino 🤣 No they did not

@sean5409

3 жыл бұрын

@@dorothygilmour1435 glad you're feeling better

This was a wonderful discussion. Thank you so much for putting this panel together. I learned a great deal from your poignant insights and experiences with the virus and issues surrounding the long haul post Covid syndrome symptoms. I especially thought Dr. Alwan's perspective is critical to understanding the significance of impact of the long term symptoms and how important it is to monitor for them and find ways to quantify the morbidity.

It sounds exactly like the after effects when I had glandular fever.

@kippertrace5808

3 жыл бұрын

Cuz it was. Everything has been rediagnosed as covid. Check out how many flu deaths there's been since covid.

@FrancisMaxino

3 жыл бұрын

And my whooping cough.

@davidwrathall3776

3 жыл бұрын

My daughter had glandular fever aged 9 and developed chronic fatigue which lasted for over 6 years. I got covid in Nov and now have chronic fatigue. 😖

@dorothygilmour1435

3 жыл бұрын

@@davidwrathall3776 please see my other comment. I had chronic fatigue for years and my son, Gladular fever then chronic fatigue. The answer is to build back your immunity by fixing the gut lining and the mucous membrane which has been damaged. I can't stress enough to find a good nutrionist if you can afford to or research online as to how to heal the gut. Go gluten free and dairy free for at least a month but three if you can and eat lots of plant food including cruciferous vegetables, organic if possible. There's lots of info online. Dr Axe's website is a good resource for gut healing, Dr Zach Bush is fabulous and a beautiful human being. Dr Rangan Chatterge is also good. Louise Blanchford, The Food Physio (nutritionist) is excellent and does Skype consultations and she also has a book that you buy. Kirsty Cullen at the Optimum Health Clinic is also excellent but prices are high. Louise Blanchford's prices are more reasonable. I give you this advice as I know what you're going through and I know you can get better as I did and my son did. I resisted this advice for years though Once the biology is fixed you might need extra help with a holistic approach. After much searching I found that Lyn Whyte, Reverse Therapist helped me move to wellness. (I got her name from someone who posted on the Internet in the hope that she could help others). I now do the same. Best of luck.

@maxflight777

3 жыл бұрын

Well said Peter 100%

this is ME/CFS, guys. you are all starting from scratch. people get this hell after an infection from flu, lyme, echovirus, CMV, EBV, etc. it is unbelievably frustrating to watch smart people try to study this in a vacuum or have no existing knowledge of me/cfs.

@gurpchirp

3 жыл бұрын

@@calgontakemeawayanyway sure---those with organ damage can *see* their problems on the scans. i am talking about those of us with exact me/cfs symptoms with 'heathy blood and scans'. we are mysteriously debilitated with neuromuscular fatigue, brain fog, POTS, etc. it is such a bummer.

@BedboundME

3 жыл бұрын

I agree this starting from scratch mentality isn’t necessarily good because there’s context here and some of those who’ve taken senior roles in longcovid seem to have no knowledge let alone expertise of the context.

@masoudhashemi5792

3 жыл бұрын

I worked 2 jobs and went to gym 5 days a week now I don't have energy to even have a shower my girlfriend doesn't believe me and my family thinks I'm being crazy.every day I wake up sitting on the couch thinking about my past life that I enjoyed now I can't do anything I cry till the time I go to bed my life is changed so much after this virus

@gurpchirp

3 жыл бұрын

@@masoudhashemi5792 www.biorxiv.org/content/10.1101/2020.12.16.423122v1 get your blood tested. it will be proof you're not making it up.

@masoudhashemi5792

3 жыл бұрын

@@gurpchirp why would I make some up something like this?????

Thank you for this. I watched at 3.30 AM after some time of feeling fatigued, brain fog, mild depression and general unwellness! I hope that funding for awareness, research and community support is forthcoming! You have earned my two pennies. Power on and keep up the great work! -:0)~

@daniellubowa595

3 жыл бұрын

Is anyone thinking about Africa?

@dedetudor.

3 жыл бұрын

Is anyone familiar with Modern Homeopathy and ancient Chinese medicine?

@pureenergy4578

3 жыл бұрын

It will cost you nothing to watch the video GENETIC ROULETTE

@FrancisMaxino

3 жыл бұрын

@Cat Magic They are doing fine, the entire so-called crisis has been manufactured by sensationalist news stories, there have been no increases in excess deaths and COVID deaths only make up 3 per cent of total fatalities from illnesses in 2020.

I hope science can understand long COVID and more so how to treat patients . If Long COVID patients are diagnosed with CFS . I hope they finally consider researching CFS/ME a horrid condition many have struggled with for often decades . We have waited a very long time for a test and treatments .

The last place I would go for help is my GP after how we were treated last March

@ctwofirst6635

3 жыл бұрын

I moved and have not registered with a new GP. Hope to avoid being in their systems in future.

@Davewenham99

3 жыл бұрын

Shame you didn't tell us what happened

@celiad6012

3 жыл бұрын

@@Davewenham99 Were you asking me? The government said in March 2020 that the health services would be so overloaded that over 60s and those who were unlikely to have a good outcome would only be offered palliative care. Everyone was told to stay away from GPs, stay at home unless you were at the point you could not breathe.....

@catherine7770

3 жыл бұрын

@@celiad6012 it’s very sad. It has been more than a year now but whenever I think about how I nearly die and how they told me to stay at home and left me breathlessly in bed...I just want to cry.

@celiad6012

3 жыл бұрын

@@catherine7770 Exactly. We were too scared to go to hospital - where they made it sound as though there would be certain death for the over 60s. The government, that is...not the caring hospital staff who will have done all they could in spite of instructions.

My husband had Covid twice, in March last year, and again in November. Since the second infection, his long Covid symptomy eased greatly - less fatigued and a lot less breathless. He says he feels slightly better again sińce his first vaccine. He had heard something about the immune system needing to reset - he said it feels a bit like that.

@helenporter7584

3 жыл бұрын

Do you mind me asking what his Vitamin D levels are?

Thank you from the US. Very informative and honestly a big relief to hear some great minds taking this seriously.

@alisonaddicks1584

3 жыл бұрын

NIH (US) was just granted 1.5 billion to study long covid: www.niaid.nih.gov/clinical-trials/covid-19-recon-19-study

@tombusby2333

3 жыл бұрын

@Mr Burns not so much a country but I think talking about the delusion of a planned demic, oh I'm sorry, a damn panic... I can't get this right... That is exactly what is happening, a delusion and the sheeple or maskies are stopping the intelligent from being able to live normally. Just say No to the New Normal!

@pureenergy4578

3 жыл бұрын

@@tombusby2333 Do you call eating GMOs a delusion?

@davinagray700

3 жыл бұрын

@@tombusby2333 Tom, Tom, Tom, 😊 I agree w/u 💯%. Thank You So Much. WOW ! You took my EXACT words 👍 (The sheeple Maskies are stopping the intelligent people from being able to live normally). People -- just say no to The New normal. PERIOD....

Also people who had it bad but didn’t trust the hospitals - stayed at home and treated themselves.

Fatigue and brain fog prevented me from fully enjoying this video but WHAT A RELIEF! Yes, Long Covid is real and debilitating. I got covid end of August and though it was initially a mild to moderate illness I am far from fully recovered. But what I have learned in a lightbulb type moment by this 'long covid' is that my chronic fatigue for the last 40 odd years - that no doctor had ever took seriously must be post viral. Something I did always suspect actually. Hooray that now people like you are talking about it...hopefully us Chronic Fatigue sufferers will be exonerated from being labelled as 'all in the mind' or whatever. The symptoms and side effects of battling covid is profound. Losing taste and smell is truly awful. I have been trying to find a support group to talk about the impact of this virus. It causes a lot of psychological disturbance too. Anxiety...fear even. Having gotten through covid and long haul covid I would tell everyone who gets covid to take total rest from the onset. If you don't the virus will knock you back down even harder. I have dogs who needed walking but negotiating 5 flights of stairs to let them out hampered my recovery. I have watched a few personal stories now... I think the key is rest. Total rest. It seems to me that those who tried to soldier on and be active put themselves at even greater risk of this virus taking hold. It's like nothing I ever experienced before. You feel it literally invading your body- in my case it seemed that the battle was in my mouth. I was parched constantly- the virus sucked the fluid life out of me? I am more than happy to take part in any study...

Thank you panel for a very useful discussion. I didn't see the word 'depletion' on your word graph but your programme gave a really good perspective on what it is to live with long Covid as I have since July last year.

@kimwarburton8490

3 жыл бұрын

u mite b intrested in the mini essay i wrote here B4 too many other comments lose it ive the 'related' condition ME/CFS

@johnreed-music

3 жыл бұрын

@@kimwarburton8490 I know a great deal about ME/CFS because people I know are long term sufferers, and there are similarities. Trouble is long Covid symptoms are so variable that a real connection between the two may take some time...not least because ME/CFS sufferers have been ignored for decades!

@kimwarburton8490

3 жыл бұрын

@@johnreed-music its that same myriad collection o symptoms that gives me hope theyre related Far as i can tell, the difference is only with the lung symptoms When my peers have gotten long covid, theyve nrly always had a big severe relapse with their mecfs with the extras on top a double-burden, so looks like same mechanisms maybe at play

@johnreed-music

3 жыл бұрын

@@kimwarburton8490 I think they very probably are, but I've witnessed so many false dawns with ME/CFS that I almost dare not hope. it has wrecked people's lives but it has taken campaigns like #MillionsMissing, the Unrest film, and pressure from international research organisations such as the Open Medicine Foundation in the last ten years to get the skeptics in the UK medical profession to take it more seriously. Thankfully, I just have long Covid...I think...which makes me feel lucky. Like you, I really hope this leads to a wider solution for anyone with ME/CFS, fibromyalgia etc. Take care 💙

@kimwarburton8490

3 жыл бұрын

@@johnreed-music the best thing WE can do is to spread this info. Its a 'joy' to bump into others who are getting so well informed so quickly. it took me 5ish years to put it all together n then 2 months after, i stumbled across sarah myhill and ANSrewire XD haha! stay safe, nice to meet ya, spread the info

I think everyone who is suffering long Covid should be given extensive testing without question so any complications can be picked up early

I've had it since Jan 2020 - & it progressed to MCAS > Systemic Mastocytosis > MCAS (after Moderna vaccine the symptoms eased considerably) & it happened very fast. I was in Anaphylaxis WHEN I had my vaccine, I took a chance and am glad I did. My immune system seems to be perhaps 75% tricked into rebooting (that's what it felt like when some "systems" came back online normally) after vaccine but I still have lingering Cardiac & GI issues every day. I'm an Integrative Health provider in the USA & I see an epic healthcare crisis on the horizon in our country due to Privatized Medicine, political tribalism - misinformation, etc. I hope I'm wrong. Thanks for this wonderful gathering.

Shame I missed the live talk but just watched now Thank you for your support into Long Covid. Its been a lonely journey but now Ive found support groups and your channel Im feeling more positive mentally just need the physical side to get better and hopefully GPs are now understanding our journey, Thank you again Professor Brian Cox. (UK Berkshire)

@jackiedoy6342

3 жыл бұрын

The science is coming out now it’s not Covid virus that’s killing people because viruses just aren’t designed to kill their house they never have. These people with underlying conditions and those that died without underlying conditions probably had some underlying undiagnosed diseases like lime disease you get a lot of diseases with lime disease and they all have the same end result as long Covid. If you join the Lyme disease groups you can work out how to get better from long Covid. They’ve been doing it for years because the NHS doesn’t understand pathogens that’s why the NHS doesn’t understand long Covid There’s tons of science on it you just need to go onto sites like mewe Bitch Ute or Reddit. All the good stuff about the science is coming out on those sites but it seems to be censored on Facebook and Twitter. I think they’re calling the science fake science because I think it’s catching up with then the stories coming out and people are going to find out it was a Plandemic

@pureenergy4578

3 жыл бұрын

Watch the video GENETIC ROULETTE.

Extremely useful, will be watching it again, and also referring to it in my discussions. Particularly interesting was the shaming of sufferers, I have come across press articles on this.

@pureenergy4578

3 жыл бұрын

Watch the video GENETIC ROULETTE.

Thank you so much for this video! It's fantastic to see Long Covid finally getting some attention. I got sick in March 2020, but was denied testing. I went from happy, healthy 30-year old to being bed-bound for over half a year now, but zero help available and doctors belittle and insult me. My hopes and dreams have been crushed, yet nobody here in my country gives a damn about Long Covid yet.

@sallyhrichardson

3 жыл бұрын

I'm sorry to hear this. The NHS is great for acute illness but not so good for those with chronic conditions. You could join some long-Covid support groups or an ME group to get some support on how to manage symptoms.

@kreek22

3 жыл бұрын

There are many programs for long Covid in America. Doctors here, however, have motivation to respond to patient demand: money.

@Annielee825

3 жыл бұрын

@@sallyhrichardson These groups are honestly the only things that keep me sane. I'm an expat in Belgium and despite the high case numbers out there, Long Covid is neither recognised nor known, even in the bigger hospitals. They all just diagnose anxiety and mental disorders. I'd be fully okay with doctors acknowledging their lack of knowledge, but willingness to do their best instead of trying to tell me I'm lazy (not true), fat (not true), anxious (not true) or afraid of sports (definitely not true)...

@helenporter7584

3 жыл бұрын

Do you mind me me asking what your Vitamin D levels are?

@Annielee825

3 жыл бұрын

@@helenporter7584 Slightly on the lower side, but still within the normal range. I did supplement last year, but it didn't make any difference.

With a medical background- I haven’t heard anyone talking about mitochondrial damage The other element in long term viral damage is clearing cellular damage from cells damaged by the virus From a wholistic perspective and using experience from recovering ME sufferers a diet VERY HIGH in dark green leafy vegetables as well as good quality protein and very low processed carbohydrates

How can we advocate for ourselves if we were first wave, couldn’t get testing and don’t have antibodies. It’s exhausting for GP’s to dismiss us as “anxious”

@stan8926

3 жыл бұрын

I suspect getting it in middle of march 2020. Then it was near impossible to get tested. I was tested for AB in November , in January and in March 2021 after 1st dose AZ vaccination and was negative every time. But I still have chest pain and palpitations (especially after eating but only after an hour ). But it can also be me going vegan in April 2020 because of high blood pressure appearing in the middle of 2019.

@kreek22

3 жыл бұрын

There is a ~100% accurate test for prior Covid infection in those who have not been vaccinated.

@lindadimichele4440

3 жыл бұрын

I had it Dec 2019 but persisted until I got referred to covid team as I had cytokine and long haul

@Beatenthusiast20

3 жыл бұрын

@@lindadimichele4440 what did they recommend that finally helped you?

@jordanzothegreat8696

3 жыл бұрын

@@lindadimichele4440 how did they help you?

Goodness...why wasn't myalgic encephalomyelitis M.E. not mentioned when the question of is there any other syndrome like this was asked!

@BedboundME

3 жыл бұрын

The MRC researcher who wouldn’t name mecfs but asserted similarities with other syndromes was disappointing. This reveals to me the extent of the stigma or medically generated controversy of Chronic fatigue syndrome in the U.K. Even the trivialising name, chosen to leave open to psychological theories, WTF, imposed on the ME community, is offensive. Saying that the difference was that longcovid produced more symptoms, To me that didn’t cut it because it’s perfectly possible to have organ damage plus mecfs to explain the extra symptoms of breathlessness or chest pain. Also not everyone with long covid has the full symptom range or the odd symptoms like skin complaints or purple toes by ny means but there seem people in the uk medical profession deeply reluctant to draw much comparison with longcovid nd the complex, debilitating syndromes prevalent in the U.K. thst they chose to ignore prior to this pandemic. the Medical research council hve appalling record on mecfs which hopefully soon they will be held ccountable for. The mecfs all party parliamentary group in 2006 Were calling for wide ranging research, with that including investigating why and how people stay sick after infection, which the MRC refused to do. This is partly why we are in the longcovid mess we currently are

@argosz8046

3 жыл бұрын

@@BedboundME shades of the days when the medical profession believed specific illnesses were caused by the "humors" in the body, and women were diagnosed as "hysterical" because they had a uterus. Ignorance is a major contributor to stigma. Such ignorance is dispelled by the acquisition of factual knowledge. Such knowledge requires a commitment to search for answers rather than judgement by assumption, and funding. As a reasonably intelligent female with multiple, chronic physical health conditions and a mental health condition, I find it appalling that in this day and age, highly trained GPs AND Hospital Staff still make unfounded negative assumptions about me. Due to this, I frequently do not receive best-practice care, adding trauma to poor and at-times negligent care. Thank goodness I have a great GP but I worry if he becomes unavailable in the future.

@thepaintedlady4637

3 жыл бұрын

I am wondering this same. How can they have missed the connection, its so damn obvious!. Everyone on here with ME/CFS knows exactly what this is!

@pureenergy4578

3 жыл бұрын

@@BedboundME Watch the video GENETIC ROULETTE to see if any of these symptoms fit what this video says is the cause.

@pureenergy4578

3 жыл бұрын

@@thepaintedlady4637 Have you seen the lady doctor on youtube that says she cured her MS by changing her diet?

When you are doing your next recording can you add the link to the poll and questions, please as I could not find it? Thank you

Nothing new here. Aged 19 I had flu, I was so ill I couldn’t move, was already very skinny but lost even more weight. I felt dreadful for months afterwards. So by this very definition can I say I had ‘long flu’ 😂

@moragmckay3779

3 жыл бұрын

That is a medically recognised after-effect of some Flu cases, though it took decades for patients to be taken seriously. The after-effects of Covid can be much more severe, even life-threatening, though and can be due to organ damage or neurological conditions, blood disorders etc.

@eveoakley6270

3 жыл бұрын

@@moragmckay3779 my great grandmother died from flu, she was 29 years old and left 4 orphaned children as she had already lost her husband. I sent and paid for her death certificate, that’s how I found out.

@beewinfield

3 жыл бұрын

@@eveoakley6270 hi there, sorry you were so badly affected by a flu and that your great grannie succumbed to an infection.Would you be willing to tell me what your diet is like? What would you eat in a typical day? I would normally pm you but that isnt available here, sorry .

@eveoakley6270

3 жыл бұрын

@@beewinfield aww that’s very kind if you, but I’m now 59, eat a fairly good diet, and run most days so I’m now very fit and healthy x

@beewinfield

3 жыл бұрын

@@eveoakley6270 gosh, great! Not many people can claim to be fit and healthy . So glad for you !

It’s a shame that M.E. was ignored until the very last minute and the questions which mentioned M.E, especially the one about PACE which was upvoted, were not answered

@DocHoliday596

3 жыл бұрын

It is a talk about long covid not M.E so...

@sallyhrichardson

3 жыл бұрын

There are reports that long Covid is a form of ME and many people who have post viral fatigue and other issues post-Covid have been diagnosed with ME. Other discussions on long-Covid have tended to look at the similarities to ME and advice on how to manage the conditions are often the same.

@DocHoliday596

3 жыл бұрын

@@sallyhrichardson The only people forcing a link between the two are M.E sufferers or doctors.It's understandable because of the neglect you have suffered but there is no proof the pathophysiology is the same and the aetiological agent is different.Lumping the two together will only create more confusion.Also it is highly unlikely the mechanisms are the same considering vaccines have helped many long haulers.You screaming for attention isn't really gonna change a thing for M.E sufferers or long covid sufferers.Long covid may shed light on M.E but it is a huge if.

@sallyhrichardson

3 жыл бұрын

In the talk they spoke about 'similar syndromes'. Fauci said about long -Covid “It’s extraordinary how many people have a postviral syndrome that’s very strikingly similar to myalgic encephalomyelitis/chronic fatigue syndrome“. Some people with Post/Long-Covid have an illness and symptoms that are almost certainly the same as the Post-Viral Fatigue Syndromes (PVFS) that often precede a diagnosis of ME/CFS where an infection is believed to be the trigger. Some people with Post/Long-Covid are being diagnosed with ME/CFS as their symptoms persist for more than 3-4 months and because they meet the ME/CFS diagnostic criteria. So some people with long-Covid do have ME caused by this. I know people with long Covid who have joined ME support groups to access support. As for the agent being different, ME is not really an illness but a set of symptoms usually brought on by a viral infection. You can get ME from Glandular Fever or Herpesvirus or Cocksackie infections but they are lumped together as ME. You may have heard of Royal Free Hospital disease or the outbreak at Lake Tahoe. They are separate outbreaks with different triggers but the symptoms are similar. Many people with long-Covid have got little or poor advice as to managing their symptoms and that is where the matter of ME comes in - how to manage symptoms. The question that I mentioned that wasn't answered was upvoted and thus should have been answered, or at least quickly mentioned and the relevant parts covered.

@ORood

3 жыл бұрын

Sally Richardson, you are correct. M.E. is a form of post-viral malaise and the same process could be involved in asymptomatic long-Covid patients. 👍 The brain is not homeostatic: It's well documented that exposure to certain chemicals or even minor trauma can cause lifelong changes to the brain. Narcotics, for example, or blunt force trauma to the head. The cytokine storm that affects the lungs causing massive inflammation and hypoxia.. those same cytokines also attack the blood-brain-barrier. I also suspect many previously asymptomatic 'long-Covid' patients are suffering from a form of post-viral malaise. Asymptomatic patients should be separated from those who suffered observable lung or brain damage for clarity (as treatment options can differ.) Hypoxia can cause a person to feel fatigued and induce 'brain fog'. None of these conditions are mutually exclusive. A person suffering from brain damage caused by cerebral hemorrhaging could still suffer from a stroke or M.E., just as a person suffering from lung damage can still suffer from brain damage.

no useful information

I am 49 yr old female, I had covid in March last yr and was unwell for two months at home.I slowly got better until I got flu jab in October which I had first time ever in life. I started having symptoms of lethargy, shortness of breath within two wks of taking it and gradually got better with on and off symptoms. I was feeling happy when I got my first dose of covid vaccine ( AstraZeneca) on 26th of March but I was hit with chillness, shortness of breath, severe palpitations and lethargy one week later. I am off sick from work for more than a week now. All my hopes about starting my body fitness ,having good time with family and starting a new career were shattered now. I have been taking supplements like Vit D, Vit C, B , Zn, iron, magnesium, omega 3, Quercetin etc since last April

@chinookvalley

2 жыл бұрын

If the injection wasn't aspirated, this could also cause your symptoms.

There you are Brian, I missed your programs & charisma!!!

Probably a forlorn hope but I don’t suppose any of you will consider the role of ivermectin which medics in Peru are finding very helpful in stopping long Covid. At present there is a wall of silence from health leaders although actual clinicians across the world now are pushing for its use. If you would look into it subject you could start with the US group of researchers and clinicians FLCCC and the meta analysis done by Dr Andrew Hill (Liverpool University or Dr Tess Lawrie.. Janet Kelly

Had Covid in October still today I’ve no taste or smell, suffer with breathing problem, literally drained of energy all the time too. My worst problem is the development of violent migraines I’ve suffered with these since 3 weeks after getting Covid in October and there everyday all day I don’t get a break at all from them the pains horrendous.Covid has really changed my life

@movement2contact

3 жыл бұрын

Stay strong, man ✌️😷👍

@masoudhashemi5792

3 жыл бұрын

I'm 100% like u

Thankyou for helping us long haul sufferers with research

@dedetudor.

3 жыл бұрын

How did they help? Are you familiar with Modern Homeopathy? And nutrients mandatory for full recovery? All I heard from them was they didn't know. Then they started talking about the VACCINE. And wow. Are they ever WRONG! MANY HIGH up Drs are saying NO to them saying sick people should get the shot.😱 Look at the adverse events REPORTS!

Wow, I only started watching this, and the first guest with long covid - I can't relate more. I walk my dog 2-3 times a day but still with extreme difficulty at times, and absolutely cannot get up a hill. There's something in my chest, and I still cough badly, and have joints pains - this is after more than a year after covid. As for fatigue, I tend to get extremely drowsy as someone has just drained the energy of me in the instant. I send my regards to anyone suffering from any illness, not just covid.

@basilistsakalos9643

2 жыл бұрын

Just entered the 4th week, I realate totally...

@69birdboy

2 жыл бұрын

I'm sure n my 30 th year of m.e. I'm glad covid may shine a light on us

A talk with Prof. Brian Cox... anytime! 👍👍

Very informative, thank you.

I love to listen to Prof Fox he's got a relaxing way of explaining things

@JamesTrue

3 жыл бұрын

That’s because he was a former boat show model.

I'm an early first-waver as well and Long Covid is ongoing. Thank you for this highlighting of the issue and to all the panel for their considered answers - very useful indeed. I'll keep my eye on all the various channels and hope I'm able to contribute to any ongoing research etc. The sooner we get to the point where the research is pointing to any underlying mechanisms and thus treatments, the better I think all sufferers will feel.

@pureenergy4578

3 жыл бұрын

Try watching the video GENETIC ROULETTE.

No discussion of potential treatments!!

"Experts" best laugh i have had all day lol

@FrancisMaxino

3 жыл бұрын

We can't define 'long covid', pretty much why they can't define long flu, long whooping cough or a long story about long things.

@amyallen1043

3 жыл бұрын

I couldn't agree more

@amirasmith5133

3 жыл бұрын

@Steven Howard - Yes, more like AGENTS ...for the new world order.

@pureenergy4578

3 жыл бұрын

@@FrancisMaxino Watch the l o n g video called GENETIC ROULETTE

I have had long covid for 8 months still get chest pains and really bad fatigue and i was a healthy 25 year old into sports now i cannot go gym or even jogging for more than 20 seconds without feeling like I'm going to have heart attack its also mentally draining.

Hyperbaric oxygem therapy has really helped my long covid. I would highly recomend it

@mmedeuxchevaux

3 жыл бұрын

it also helps those with me/cfs. if only it were more affordable.

@albertneville8918

3 жыл бұрын

Nebulising hydrogen peroxide will have a similar effect - a lot cheaper too :)

@string22

3 жыл бұрын

@@albertneville8918 thanks. Do you have any links or anything explaining how it has similar effect to hyperbaric therapy? And where i can get it in the uk (london)? It says do not nebulize yourself at home.

@stephenverchinski409

3 жыл бұрын

The reason for many not using HBOT is because it was never prioritized from the start once the Covid-19 public health response was set by Fauci and his handlers. I questioned why it was not being used and found our Gates supported public health school had a chamber for teaching use only and had no facility active at the hospital. Another major provider got rid of it's chambers in 2016 and the local VA hospital never had one. Hypoxia and pulmonary edemas have been treated for year successfully yet FDA denyed its emergency use authorization for COVID-19 and that was it. 90% of symptomatic COVID-19 patients in Winthrop hospital clinical trial left alive from the hospital only two intubated. Compare that with normal treatment, intubated mechanical ventilators, where over 70% left the hospital only one way, through the morgue.

@string22

3 жыл бұрын

@Dermot Fitzpatrick thanks for the reply. Is this to simulate similar effects as hyperbaric oxygen therapy or something else? Do you have any further links or evidence explaining the impact of your revomendation? Thanks again for taking the time! Much appreciated :)

I'm like Adam here. Breathlessness- stairs are brutal, also dizziness when I bend over and stand up again. off and on periods of irregular heatbeat in clusters daily..

@daniellamcgee4251

3 жыл бұрын

Ah, the joys! Me and some of my other family members can relate with P.O.T.S.! We follow doctors advice and find going slowly, keeping fluids and salt levels up for dropping blood pressure, helps. Obviously follow your doctor's advice and not mine though! 💜

@robincousins1144

3 жыл бұрын

Your not a bad-looking lady though... ❤

@neverseenblue11

3 жыл бұрын

Hi, I have pots from covid. Vertigo physical therapy for two months helped my dizziness and vertigo. I now can say I'm no longer dizzy, two months after physical therapy. The therapy was horrific at first, but if you can get through the first two weeks, there is light at the end of a tunnel.

@daniellamcgee4251

3 жыл бұрын

@@neverseenblue11 That's wonderful that you found something that is beneficial for you, that you can do to improve your health! It sounds like a lot of self discipline was required, but has ultimately been empowering for you! It depends on the underlying cause of P.O.T.S., though, as to whether physical therapy is ultimately helpful or detrimental to the underlying condition. It's great news if it works for Covid!

@neverseenblue11

3 жыл бұрын

@@daniellamcgee4251 I'm lucky that my physical therapist specializes in vestibular disorders. He even gave me eye exercises on the last day of physical therapy that I do everyday. Those exercises have improved my sleep and my resting heart rate.

Very interesting and thank you.

Follow up .... Huh, I was a hospitalised / ICU with COVID19 in April 2020, and the has been absolutely no follow up since leaving ICU, and I'm still struggling with breathing, cardiac memory, cognitive and fatigue issues. I work for the NHS, and I'm at a loss to describe how I feel.

After 12 months of long COVID I was hesitating about whether or not to get the vaccine but I decided to give it a try. I had the vaccine last month and I was ill with all the symptoms stronger for about a week but after that I felt much better. My lung felt less heavy and I could breath better. All the systems seem to be subsided. Hope the second dose will help me get back to normal or much closer.

Just finished watching the video, thanks so much for the input and the interest. Myself and my partner contracted Covid last year, I had two bouts in February and again April. We are both still suffering health problems a year on.

@kimwarburton8490

3 жыл бұрын

u mite b intrested in the mini essay i wrote under this vid ME/CFS is considered related n some have found relief with this advice

During the beginning of the pandemic I was hospitalized with sepsis caused by diabetic complications. The symptoms of Long Covid and the Post Sepsis Syndrome that I have been experiencing seem very similar. Perhaps because both are blood diseases.

@Dancestar1981

3 жыл бұрын

That sounds feasible

Ivermectin defenately helps me. But if it cures remains the question for me. It releaves a lot of problems from fatigue to shortnes of breath. Big chance this post gets removed and to me that feels like a crime...

@ruthwhall3020

3 жыл бұрын

They'll never allow that to be mentioned on a elitist group like this 🤣they may be removed from ty.

@nathanohm3053

3 жыл бұрын

@@ruthwhall3020 yep, so sad...

@Taneehl

3 жыл бұрын

Oh look! Your comment is still here....

@ruthwhall3020

3 жыл бұрын

@@Taneehl oh so it is

@nathanohm3053

3 жыл бұрын

@@Taneehl let's hope it's a good sign😀👍

Long covid purely in terms of chronic fatigue, pain, brain fog, malaise, etc... (Not lung damage etc)...which for many long covid patients are the worst, main symptoms (fatigue was the main one mentioned in this video)...is nothing new. Tons and tons of otherwise previously healthy and successful people have had viral or other infections and then gotten these symptoms and had their their lives ruined by them (me/cfs is the main diagnosis of these people before "long covid" was a thing). All this stuff about stigma, dismissal etc... I feel bad for the long covid people...but this is what me/cfs patients (and all these people who have got these symptoms post viral infection before long covid existed) have had to deal with from doctors for the last 50 years. Why, after i got all these same symptoms after having a different virus (and it eventually being diagnosed as me/cfs)... am i not worthy of the same help and respect from doctors as 'long covid' folks? I hope covid will cause medicine to fund and study this long covid. And i suspect if they crack it.. it will be a general post infectious disease that has exisited for who knows how long and has being utterly ignored due to dismissal and incorrectly and ignorantly psychologizing of it.

@brendakaye2385

3 жыл бұрын

.

Is long influenza a thing?

@soggymoggytravels

3 жыл бұрын

Yes, it’s possible. It’s not so common after the flu virus compared to some other virus groups, though.

Our covid crisis started 17th January 2020. My special needs daughter contracted the original Chinese variant. She was tested a to identify bacterial or viral... she was viral. She suffered severely .I fought European variant mid march just before lockdown. At the same time my daughter took ill again showing all the symptoms of a cytokine storm. We both suffered long covid, and still to this day have lingering problems. She was a micro preemie, born 23+ weeks , 1lb 9oz . Now Blind, autistic and other global and learning difficulties . I have nursed her at home since the primary infection .I'm willing to share our situation .

I want to add my support to Adam's point about resourcing the NHS. Billions had to be thrown at the immediate threats of the pandemic. Had a fraction of this money been invested in the NHS before the course if the pandemic would have been different. Without health and education there can be no real economic growth.

Just like British Standard 7671, now into it’s 19th edition, with revisions, it’s just a hypothesis theory, but thank you Brian, you’ve cured my insomnia.

Could there be a relationship between covid and long term anxiety from having had covid and anxiety induced symptoms? This is in addition to actual long covid symptoms?

@soggymoggytravels

3 жыл бұрын

I’m not entirely sure of your question, but it is known in ME/CFS (and also adrenal fatigue syndrome) that because the hormone messengers get screwed up from being constantly over-activated that the body has less capacity to moderate even mild stress, and cortisol and adrenaline can go through the roof. So anxiety and the flight/fight type of response can unfortunately develop as additional symptoms of the condition.

@PF-gi9vv

3 жыл бұрын

Thats what doctors try to say it is, but they are wrong.

@morrislarsson7524

3 жыл бұрын

Search for mcas and dr Afrin for some interesting reading. Scientists are starting to connect the dots now. Mcas is a multi-system disease, which most definitely can cause anxiety etc. Read an article from Harvard University the other day, which also mentioned that CFS/ME in connection with long covid.

One way of preventing covid illness and possible death, is by laughing, especially hysterical laughter. Laughing boosts immunity. No idea why this wasn't encouraged at start of pandemic. F Hooton. A biochemist.

I'm suffering from the Long Haul right now. I went through the horrid bouts of coughing,nausea,not being able to taste my steak or even smell it.My head feels like it's full of thick cotton balls. I've been going thru this for over 5 months now,and I pray it stops soon. I cant even hold a converstion due to not being able to think,or reply to people talking to me. I seriously cannot stay awake. It isnt my series of meds either. I've been taking the same medication for 7 years and they dont knock me out. I sometimes sleep for 12 hours,and upon waking feel so heavy I can barely get up. I eat,though it just tastes like cardboard,and try to stay up for a few hours,then wind up just going back to sleep. My doctor had me go in to check my lungs and found fluid in the bottom parts of my lungs,scars from coughing,and something else I didnt catch. I keep having to clear my lungs by trying to cough up whatever is stuck in my lungs and throat. The only thing that helps me clear it out is Honey/Lemon Ginger crystals,with Lemon/Ginger tea. With lemon juice added. It helps me so much,but it doesnt cure it. And,.there's no way out of the Long Haul.

I had pneumonia about twenty years ago, and could not get rid of the tightness in my lungs for months, although the pneumonia had passed. One day I just happened to buy a Liter of Evian water, which I believe has a good amount of silica in it. About 15 minutes later, I was fine, back to normal! Just to throw it out there. The only other time I had any lung problems was five years ago, and I changed products I use - especially the shampoos with Argan and other oils, which I perhaps aspirated some in the shower. I stopped all these products, no matter how good they make you look and have been fine. I put two and two together when I read something about Johnsons's baby oil and how dangerous it is if it gets accidentally aspirated into baby's lungs. That's what gave me the key to search out products. Check out your environment and products you use. Another example, I used a cleaner in the house that was supposed to be natural (during the Pandemic it was only product available.). I began to have nosebleeds out of one side, and I thought I had blood pressure issues. I ran out of the product and a few days later I had no nosebleeds, and it has been months now with no problem. Check out things you use!!!! Good luck. Odd how some people become rich off these products.

I have to wait until I wake up to see if it's going to be a 70% energy day or a 15% energy day and I'm bed ridden. 😭

@daniellamcgee4251

3 жыл бұрын

I know how it is. It truly sucks. But there is always something to be grateful for. There are always silver linings in the clouds, if you look for them. That's where the quality of life is. The gift of such limitations is that we can focus on the smaller joys that most others rush past, or take for granted. Do you appreciate your bed? My bed has been upstairs for some years now, while I have been stuck downstairs - sofa-bound. I have been working on trying to get me and a bed together for sometime! When I finally succeed, I am going to appreciate every minuscule aspect about that bed imaginable! And that's something to look forward to. I would never imagine appreciating it like that if I hadn't lived on a 2.5 seater sofa for nearly 4 years. I enjoy the anticipation. Always having things to look forward to helps, also. Whether it's something to watch, or listen to, eat or drink, or social contact, or night time when there is less stimuli, etc. Or being able to scratch your nose, or move your leg into a more comfortable position, etc., etc. I certainly feel resentful and intensely frustrated at times, and grief the loss of how I imagined my life would be. But I have a different life now. It is no less, just different. I have found mental freedoms I wouldn't have found for decades, if at all. I have learned things that are of help to others and made a difference to their quality of life, which also gives meaning and quality to my life. If I get to go for a walk again, and other basic life skills I haven't been able to do for a while, that would be a bonus. In the meantime, I have adapted to my down-sized life. To use another metaphor, it took a while for my eyes to adjust, but now in the darkness I can see the stars and they are wonderous. I hope you can find the gains that the losses bring. 💜

@alaindubois1505

3 жыл бұрын

@@daniellamcgee4251, Having life-threatening illnesses, I too appreciate what I can still do, but I know most of us can do much better - if we are considered at all by our politicians. In Australia, no major political party has any empathy for others. Australia is supposed to without class consciousness, but 52% in our state, New South Wales regard themselves as 'middle class'! I go to human rights meetings, but it is wealthier 'bare-foot' lawyers running these meetings, but they live near the coast, and have no personal experience of ill health, and the many other problems people have here, as many of our able youth have left the region. Since our local small city of Lismore's Workers Club has sold off its gym equipment because of covid, I know that I must have a 'gym' at home. Our young roofer/plumber was supposed to have fixed up the roof last winter [June here] for building in an area for my many activities, that have been held back for many years now. He simply didn't say he prefers to get business from the wealthier 'covid-changers', who have moved into rural areas to escape the crowds and covid. We moved [west] 14 years ago to a smaller town for cheaper housing. My carer and I are not well enough to move again. The most disadvantaged folk are the ones stuck in areas without public transport - taken away stealthily from 1990 onwards. UK did this around fifty years ago, with the Beeching Railway Axe. I went through the removal of trams and trains in southern Queensland in the sixties. We are in a social experiment, repeating history over the state border. Australia is a backward going place.

@Gymnastics-er3kx

3 жыл бұрын

@@alaindubois1505, I’m pleased to see more disabled representation lately on the ABC panels of discussion, you are correct, disabled people have had lip service paid to their needs for years with no enthusiasm to see any ideas through to fruition mostly. The latest accomodation debacle is just so typical, sadly. We can and should be doing so much better at addressing disabled folks basic needs however the more recent NDIS changes in secret don’t bode well I’m afraid. Perhaps if we could have all of these Royal Commission funds used to investigate the same wrong doings repetitively this sector could be so much better funded and some of the most basic needs meet, we a wealthy country need a jolly good kick in the back side.

@davinagray700

3 жыл бұрын

@@daniellamcgee4251 Excellent. YES, Always having things ( you like & want to look forward to) Really helps a great deal.

I have felt I'll since last March, I wish I knew what was wrong with me but I have had terrible fatigue high temperatures night sweats chest pain and shortness of breath and every few days I might have felt like I was getting better but then had a high temperature coming back. I have been getting a lot of inflammation in my joints too.

NHS Staff SACKED> Why is no one in main media talking about the front line staff that walked into the fire of covid and are being finished on capabilities as they became ill with covid some died some suffer long covid and are now unable to work due to ill health. NHS mangers/government stance to these staff "They the NHS staff could have got virus anywhere". We were in lock down traveling to work in our own cars treating wards of covid infected patients many of us getting food delivered home. These staff like me are being let down and their families. The NHS has treated its own hero's badly clap clap! septemberc 2022

Is it a really a new condition? As it’s similar to the symptoms of M.E/CFS...

@monstastc

3 жыл бұрын

No it isnt really - I have both.

@AJansenNL

3 жыл бұрын

I'd say it depends. It seems longterm effects of Covid19 vary, show different disease patterns. There is an certain group of patients whose symptoms are eerily similar to those seen in ME/cfs. PEM (post-exertional malaise) is the key symptom in that case. But only part of Longhaulers have that.

@cooliodee9033

3 жыл бұрын

@@monstastc firstly I am so sorry that this effects you! I know how it feels with the M.E side.. was wondering what is the differential symptoms for long covid patients and M.E ? There are so many illnesses out there that causes M.E including glandular fever, shingles, Epstein Barr, flu and Lyme disease! I’m just being curious why isn’t any of these diseases ever called long flu or long glandular fever? Surely it’s gotta be related somehow? As the sysmptoms I looked at this show is exactly the symptoms of M.E?

@theunicornbookings3791

3 жыл бұрын

@@cooliodee9033 Thanks. Specifically fatigue (with ME / CFS) it is continual but with LC it comes and goes regardless of exertion. "Brain fog " with Covid for me was haziness, lack of concentration and memory loss wheras with the firmer its literally like a cloud in the skull (not affecting memory or concentration) along with hot flushes. In Feb 2020 I passed a Pulmonary Rehabilitation test with flying colours, got Covid the month after and despite all tests and scans my lungs are running on 75% capacity half the time.

@BedboundME

3 жыл бұрын

I would say a subset of it - we can’t talk about longcovid as one thing - certainly isn’t new in its presentation , it’s just that the medical profession until covid were largely dismissive..one example is its recognised longcovid in one person can present in many symptoms, however with #ME , patients were told if they had many symptoms it indicated that they had psychological or psychiatric illness. I found it regrettable to see the MRC researcher here omitting to name #ME when talking about similar “syndromes” because that sustains the discrimination and neglect. Of course longcovid deserves a research effort and all aspects explored, but keeping mecfs , terribly mistreated , from getting the recognition and reparations it should be getting now as a consequence of longcovid finally dispelling PVS all in the mind myths, is imo unjust. I was pleased to see recognition at the very end , but tbh do still feel a second class citizen despite being so ill I’m bedridden.

Over a year in, first wave. Would love to contribute to the study. Thank you so much for the great talk.

@zena5159

3 жыл бұрын

13 months for me too, it’s been horrific...solidarity!x

I had me c f s fybromyalgia amongst other health conditions before I caught Covid twice I now feel like I’ve been hit by a train my other illnesses are ten fold my chest feels like I’ve been punched and my asthma is off the scale it’s been three months since last infection just typing this is difficult my hands are weak, my symptoms come back exactly as we’re with the Covid including fever, how can we distinguish what’s from long Covid and your current health conditions?

Thank-you. Research may be seen as important, YET Health is more important than sickness.

@jakalamanewtown6814

3 жыл бұрын

@@pureenergy4578 I like Gabor Mate, Jason Donovan, Max Storm,. and Christian Science

I would be interested to know how prevalent Vitamin D deficiency is among those who went on to develop long COVID. We know that 25% of people who were hospitalised with covid have pulmonary fibrosis on HRCT. Adam might fall into that category if he was nearly hospitalised. I would expect longer covid is a collection of subgroups of different responses to covid and not one group. Assessing how many with long covid had a cytokine storm during the acute phase will be interesting know. If patients received corticosteroids does this reduce their risk of long covid? I wouldn’t be surprised to see an increase in Guillain-Barré syndrome in the decade following the COVID19 pandemic. The UK has been slow to advocate Vitamin D even though it plays a key role in the immune system and fight against respiratory infections. Yesterday Ireland issued a comprehensive report on the prevalence of Vitamin D deficiency and the benefits of taking Vit D. They are advocating removing VAT from Vitamin D as well as providing vitamin D supplements to frontline healthcare waiters. Well worth a real. The link to the report can be found here..... data.oireachtas.ie/ie/oireachtas/committee/dail/33/joint_committee_on_health/reports/2021/2021-04-07_report-on-addressing-vitamin-d-deficiency-as-a-public-health-measure-in-ireland_en.pdf The bottom line is that everyone in Ireland should be taking Vitamin D except during the summer months. It is likely that these measures and recommendations could be extended to the UK.

@ruthbotha7173

3 жыл бұрын

I have long Covid and my Vit D levels were checked. They came back normal.

@higreentj

3 жыл бұрын

@@ruthbotha7173 Have you had the vaccine and if so did it help?

@Healingpoppy

3 жыл бұрын

(Covid Feb 2020) I had my bloods done, all fine, Vitamin D was normal (I take a multivitamin) Had my first (OxfordAZ) jab four weeks ago, had no improvement on energy levels. My hair is growing back at last, which has been comforting.

@ruthbotha7173

3 жыл бұрын

@@higreentj No I haven’t had it as I caught Covid end of Jan. I was tested for antibodies which I have still. They tested me again last week. The Dr said I have to wait 4 months before I can have the vaccine.

@heronsdoor4658

3 жыл бұрын

There appears to be a diffence of opinion on what normal levels of Vit D should be, as with Vit B12. In any case, I would say that the body is stripped of nutrients at the deepest level by the virus. Sunlight has a large positive impact. Sugar (cane) has a large negative impact. In my case, I have found that ox liver once a week has helped a great deal. I prefer this to taking high dose supplements. I'm trying to incorporate fish, but it's hard to eat fatty fish 3 times a week, so I supplement with Vit D3. Yoga also seems to be helping. It's hard though. The symptoms come and go in phases (symptoms like fibromyalgia) with nerve pain, aches and exhaustion. Time has shown noticeable improvement, and that I can't wear a mask as it puts a strain on my chest (I developed Costacondritis during the virus last March 2020). My biggest recommendation to anyone with the virus, or the continuing symptoms, would be fresh air, warmth, sunlight, gentle regular exercise. And, try to avoid sugar cane. Vitamins would be; Vitamin D3, Zinc, Vitamin C, and also very importantly Vitamin B12 (to heal nerve damage and oxygenate the blood). Try to find good levels of these in food before resorting to supplements.

I had a phone appointment with a doctor and mentioned my long covid and heard him mutter (under his breath) it's not long covid. Like he didn't believe me.

@TheKbeast63

3 жыл бұрын

@Cat Magic Thank you

@soggymoggytravels

3 жыл бұрын

Seriously, you need to switch to another doctor straight away. The existing one doesn't sound like he/she is going to support your best interests in the long term. You have to get access to the best people possible.

@albertneville8918

3 жыл бұрын

@@calgontakemeawayanyway Yes I said to my doctor he should be more open to proven treatments HCQ and Ivermectin and the look of total ignorance on his dim witted arrogant face was priceless

@audience2

3 жыл бұрын

@@albertneville8918 Those aren't proven in well regulated experiments. GPs usually wait for results that have been proven to a high level of confidence.

@paddydiddles4415

3 жыл бұрын

You were perhaps too brazen with your self diagnosis, which would have been very irritating. More tactful to just describe the symptoms and let them arrive at their conclusions. That’s if you wish to collaborate with your doctor rather than dictate

Thank you So much. I am a patient of the first wave. It took me a long time to get rit of the stigma of mental condition, more because I could not be tested at the time. I am under control and medicins of a cardiologist. And he is treating me as a cardiological patient because he don’t know about Covid-19

@alikababi9409

2 жыл бұрын

And now how are you?

I think this is a very interesting topic. Just from the point of view how this virus can impact so many people with such varieties of severities and symptoms.

Now then our Bri-Bri ! Long time no see ! ...... by hell you're looking 10 years younger now !! 🤩🧡

I'm an early covid patient and pins and needles have been a major issue. Also I have had covid toes long after the virus ran its course. The worst thing has been I used to have good circulation and never had cold hands but now I do. I can't sleep well and wake up sore

@PF-gi9vv

3 жыл бұрын

Could you have Guillain-Barré syndrome, I was the same. Chronic fatigue came afterwards, I struggled to get of the settee, doctors thought I had mental problems till a lumbar puncture in the hospital confirmed Guillain-Barré syndrome.

@PF-gi9vv

3 жыл бұрын

@@pureenergy4578 Is it to do with GMO foods, as I've wondered if my BGS was caused by the poor foods I ate in the past.

@PF-gi9vv

3 жыл бұрын

@@pureenergy4578 Are you high?

@PF-gi9vv

3 жыл бұрын

​@@pureenergy4578 So I thought, you are high. And for your info, I reckon I know about physics, voltage, amps & resonance frequency etc better than you, as energy does vibrate differently everywhere, at any depth or height. Keep off the smoke & stop thinking you are a know it all, its killing the few brain cells you have left.

@jordanzothegreat8696

3 жыл бұрын

@@PF-gi9vv are you talking with someone else. I'm seeing a one sided back and forth you are having, but don't think you were talking to me? Anyway, mild GBS could be the thing, generally any weakness I've had has been a fleeting occurrence, but thanks for that suggestion

Had this kind of flue in the fall of 2018. Was with high fever for a full 10 days and with all the usual symptoms flat in bed for a full month. In the first 4 days I could barly drink 1 glass of water and was not hungy, for the full 4 weeks. All I eat was a little fruit, mostly oranges and I drank lots of lemon, ginger and honey tea. 6 month later I checked nyself on my quarum analizer and still showed that I did not recoup from the lung infection, that took over 1 year. Never went to the doctor, I never do for colds and flues as this is the way a health body cleans und detoxes itself. Any treatment to stop these symptoms are insane!

@sengtang8576

2 жыл бұрын

so basically just let it heal itself like if you have Covid Pneumonia?

@mayam6678

2 жыл бұрын

@@sengtang8576 thats what I did.

Wonderful discussion.

Christ, if this panel represents some of the best in big science then it's no wonder that we're up The Swanee.

@ruthwhall3020

3 жыл бұрын

That's what's leading this prestige government "follow the science " .may be one day Johnson and Hancock will be held to account for not taking notice of Dr Tessa Lowrie scientific study on Ivermectin

@SamHarrisonMusic

3 жыл бұрын

Well, that was rude and unnecessary...

@bentleycharles779

3 жыл бұрын

@@SamHarrisonMusic "Rude and unnecessary"? What or who are you referring to?

@bentleycharles779

3 жыл бұрын

Well?

Can you put the link to the survey here also?

Feb 2023. An informative lecture but it needs bringing up to date.

There is no such thing as long covid. There is post viral fatigue syndrome... there always has been. Let’s remember, it could tackle as long as 12 months to recover from the flu.

I spoke to my covid doctor and have been diagnosed with covid mast cell activation. On reading more research I can see that I have probably MCA and not fybromylagia due to exposure to a toxic metal in the past This next stage of MCA is clearly much worse. I am doing an antihistamine diet .and so far which work the most is vit C and glutathione.it stopped the fatigue and pain.. The bit i struggle with Is throat inflamation.. I also looked into Mercury and cytokine storm. my only obvious risk factor ..as this has always affected my health previously .the research is interesting

@lindadimichele4440

3 жыл бұрын

www.sciencedirect.com/science/article/pii/S1201971220307323#:~:text=Much%20of%20Covid%2D19%20hyperinflammation,mast%2Dcell%2Ddriven%20inflammation.&text=Prevalence%20of%20severe%20Covid%2D19,cell%20activation%20syndrome%20(MCAS).&text=Drugs%20inhibiting%20mast%20cells%20(MCs,show%20promise%20in%20Covid%2D19

@lindadimichele4440

3 жыл бұрын

Possibly I have been diagnosed because of research into mast cell but I'm interested why this is not being discussed in this video .?

@lindadimichele4440

3 жыл бұрын

I have evidenced past mercury damage to my doctor.which is why I want to look at the research into Mercury and covid cytokine and Mercury and MCA before covid emerged .is anyone in UK looking into this www.ncbi.nlm.nih.gov/pmc/articles/PMC7563920/#!po=3.49462

@lindadimichele4440

3 жыл бұрын

My other concern is I have EMF sensitivity, food sensitivities, chemical sensitivity and react to many other things including air pollution. If we have MCA then it won't just be the past virus causing the histamine reaction it must be many factors possibly driving this reactive response. .? .if we forget MCA was here before covid crucial research already out there may be ignored

@lindadimichele4440

3 жыл бұрын

This might seem irrelevant but I can only but follow what makes the most sense to my body reactions past and present

This really sounds like some kind of post viral fatigue, caused by the body reacting to cytokine overload. Not a new condition, also to be expected considering the large, and significantly potent viral pandemic that just happened. Of course it needs to be taken seriously, but this really does have the ring of "Gib more funding!!!" about it... not what we need right now, Cox.

I sooo wish to get more help at times I feel so defeated 😞 my doctor has done all she could I have symptoms like Parkinson’s it’s crazy I was very healthy & full of energy a very good work ethic & now I’m living like a 98 year old.

I’m 47 was fit.. ex sportsman. Not overweight etc. I have exactly the same issues as Adam described. I believe I had it last March lung issues and fatigue a year later. It ebbs and flows now.. some days I’m ok others just shattered.

@pureenergy4578

3 жыл бұрын

Stop eating GMOs. Watch the video GENETIC ROULETTE.

@Summer-rb2ol

3 жыл бұрын

@@pureenergy4578 stop making assumptions about what people eat etc.

@demolaj1

3 жыл бұрын

how are you doing now ?