We are trying to decide how often to share an update with you all? Once a month? A few times a year? Comment below to let us know how often you would like to see how Jason is doing. Thank you!

@adam77848

4 жыл бұрын

Once a month, if it's not too much. :)

@kimcarter6214

4 жыл бұрын

Once a month, would be great.

@debleigh458

4 жыл бұрын

Once a month would be awesome. I've got early onset dementia and I'm going through a lot of the same things!

@amaliavega5686

4 жыл бұрын

A Charming Abode Dear Leslie And Jason, I am so proud of both of you! Share all that is going on to each other. You are in for quite a experience! I will keep you in my prayers !! I love you both so much!

@michelewagner3079

3 жыл бұрын

ONCE A MONTH IF YOU CAN

When she got teared up and he completed her sentence. Ughh.. how beautiful. You can see the love between you two. I see a normal, gorgeous, fun couple who are fighting this trial together.

You rock as a couple. He has the best sense of humor and smile.

I would hope that he would be 100% disabled veteran and have things covered by the VA. If this hasn't happened, I would definitely fight for this and don't take no for an answer!!! Thinking of you ❤️

@wendymurray9962

3 жыл бұрын

My husband was 55 when he was diagnosed with Parkinson’s Disease. (That was 2-1/2 years ago.). I am SO grateful that we had him signed up at the Phoenix VA for healthcare a year before that! Our costs, compared to those who don’t get care (and prescriptions) through the VA - are mind blowing! Also, there are grants for RX’s for different “diagnoses” as well - is The Assistance Fund. Blessings to you for sharing your journey.🙏🏻🌵

@Redbrick44

3 жыл бұрын

Consider getting help from your Congressperson. Also, Medical personnel should be able to pin this down to his untreated brain injury, in order to get veterans full benefits.

@cindyzapf4819

3 жыл бұрын

Absolutely,, find a lawyer and keep applying for disability and get his doctors to send in his assessment and documentation supporting Lewy Body Dementia. You may get turned down but don't give up. Eventually, Jason will get approved.

@conniestone6121

3 жыл бұрын

Two words about insurance claims. LAWYER UP! That's all you need to do.

One very important thing he hasn't lost is an amazing sense of humor. Sending best wishes on this difficult journey. Stay strong and always hold tight to the love you share.

Jason this is important, you are helping others. You are still you but your contributing to life. Just do what you do Jason & thanks

@cindyzapf4819

3 жыл бұрын

They're great videos. You'd never know that he has any dementia@all. I would appreciate it if you'd explain what Lewy Body Dementia is. Jason looks completely normal even though we know that he's not.

@donnascully4165

3 жыл бұрын

Well said

It is absolutely Not silly that the lack of communication bothers you. You have a right to grieve what you are losing.

@n.a.garciafamily

3 жыл бұрын

Yes ♥️

I am in tears. If I had not taken care of my mom I would not have got to share the best time in our relationship. Before she passed, she still knew me, my voice, my touch. I even got a kiss on the nose and an I love you. I personally found that Mom's basic personality was still there....it was just very exaggerated. Love is a precious thing.

Jason has such a fantastic sense of humour!!! So funny!

@j-mt.175

3 жыл бұрын

I agree with you 🤗 🌻. That's the 1 thing I get told, but I tell people you have to laugh about an with it cuz otherwise ur sad an wanna cry 🙄🤷‍♀️. Personally with my Dementia I feel like I don't have time to cry 😁😄

"We don't have time to waste" you are so right. My father is going through this. Its hard. But your right. You don't stop because of this.

First and foremost, I forgot to thank your husband for all his years of Service. I also forgot to mention that what your daughter wrote in your first video was so Beautiful. I just Love your husband’s sense of humor. You both are an adorable couple. I guess I’m now giving my age away. Best Wishes- Harriet ❤️🙏🏻

I hate that you guys are going through this at such a young age, but I LOVE LOVE LOVE the way your husband is trying to keep his sense of humor. I also deal with difficult things with humor, and it is refreshing for me to see him still enjoy laughing at himself and just trying to make the best of a crappy hand that you've both been dealt. Kudos to both of you.

He's more talkative and he's so cuteeeee!👍😊

@ACharmingAbode

3 жыл бұрын

He is such a cutie! I try to plan filming around times when he's talkative! Otherwise, we aren't going to get much out of him! It can seriously vary hour by hour! Thank you so much for watching!

My father in-law passed away from it! Document as much as you need. You will have something to reflect on!

When I wrote you the first time, I mentioned I was a nurse. When I worked in rehab for a while, we had to learn that instead of being the helpful nurse we had to encourage our patients to do as much as they could for themselves. I feel like that is exactly the philosophy I kept in all of my experiences, nursing. I say that to encourage you Jason, to live your life to the fullest . I hate to hear about the insurance problems. I wonder since this brain injury was during active duty why he doesn’t get VA benefits?

@joancominos2980

3 жыл бұрын

I. wondered the same thing. My husband was a WW2 survivor and towards the end of his life suffered from this same disease...He received excellent care at the VA .

Love his sense of humor! He’s quite the funny guy!

Y’all are a cute couple and laughter is the best medicine

Every week? You may find some release just talking about it and sharing things. You know you’re helping so many people. Please ignore any negativity that people may write. You are both so kind, we are so lucky that you’re willing to share. 💫

@butterfly-girl6867

3 жыл бұрын

I totally agree & it may- no it will help someone else! God Bless you & Jason🙌🏽

I’ve just discovered your channel & I’m so impressed with both of you. I’m a behavioural clinician & I have seen so many dysfunctional relationships when life gets hard; the love shines out of both of you💕

@ACharmingAbode

3 жыл бұрын

Thank you! 😊💜

He's so awesome. How has he been coping? I feel he's so loving and aware of how hard it is for you. Sending your family a ton of gratitude & love.

Praying for your family on this difficult journey! Enjoy life when you can.

Jason is a beast and a road warrior. He’s the man! I’m so impressed with him. You both are so dear. Insurance companies are part of the corrupt corporate world. So sad they are so predatory. They love taking your money then turn all their energies into not paying out. I’m not surprised he’s funny. It’s obvious he’s always been funny. It would be nice if no one second guessed you. It’s not helpful. Personal friends or family that take offense that you didn’t tell them directly need to understand it’s not about them. You are doing the best you can in a difficult situation. You should get nothing but encouragement and support from everyone. They don’t walk in your shoes and cannot possibly know what everyday life is like. It’s hard to talk about the changes in your relationship that are painful. It’s grief you are living in the moment. Sending compassion and warm hugs 🤗

@MLeibs

3 жыл бұрын

Indeed! 👍🏽

My mother would forget how to get into her bathroom. Everyday I would have to instruct her how to move into the space and shut the door. I grew very tired of the repetition. Bless you in your journey. It helps to have a sense of humor...

I love his personality. Your are such an awesome couple.

@ACharmingAbode

4 жыл бұрын

Isn't he hilarious! He's just the best! Thank you so much for watching!! 💜

@valdamarielegault1907

3 жыл бұрын

So agreed!

You have an eager audience! We all want updates whenever you can manage them!❤️

Jason is the best - kind of adorable I would say. He still has a great sense of humour and intelligence. I hope he can do more of what he loves to do. ❤️🇨🇦

Check with the Disabled Vets of America for help getting coverage from the VA and to act as an advocate.

@deb9784

3 жыл бұрын

Great advice! Jason needs to be supported by the military! That's where he was disabled! Avoids so much insurance craziness! The VA is great! My dad served in the Army, and I had to have his papers sent to me in order to register him, because he didn't have them! But the support/respect was so refreshing! When my dad came to live with me he had full blown dementia and was so combative! We adjusted his medications and worked through the trauma/ fear of losing his memories! It was such a sad but sweet time! God bless you both on this journey!

Don't feel judged just accept the love. You are both so great.

He has a wonderful smile!

As a retired nurse, because of your videos, I have a new understanding of Lewy Body Dementia. And the general public now has a glimpse of your lifestyle from both of your perspectives. You are both awesome people together with each other and filming is a great communicator. Keep it up as long as it’s helpful for you!

I use cameras in the house while I'm gone so I can actually talk to him in the moment if Joe needs me. I also capture activities without him realizing. There is also a cool spy camera so you can enjoy your activities but the camera records without anyone knowing. You get more realistic footage. It's so hard to "lose" a brilliant, witty person. Keep laughing and find support from others. That's what keeps me moving forward and feeling hopeful in dispair.

Your random clips are so enlightening! Jason, thank you for your honesty and transparency. Hugs.

Would be great if time permits a monthly update. Thank you for being honest and forthright. It is going to help us get though this.

You two are such a amazing couple! You can really see the great love you have for each other. God bless you both!

Love Jason! He’s humorous and I appreciate the energy he uses to help make these videos interesting and informative! You’re both amazing!

You do you and don’t let anyone’s judgement play any part on your lives. They aren’t living through it.

Hi, I just found your videos and it is now end of November 2020. I lost my husband two years ago in September 2018 to Lewy Body Dementia and had never heard of it prior to his diagnosis. He was in the Army in Viet Nam in the 60's. We live in CT and through the VA and testing he became 100% (can't remember the term) eligible for VA care and his care was 100% paid for. Please, please push for this care. It is bitter sweet to watch your journey. Know that you are not alone because there are many times you will feel that way. A support group could be very helpful. Please feel free to reach out to me if you would like. In the mean time I will be following your journey. God Bless you both.

I can see why you two have been together for 30 years - so much love, tenderness, and kindred banter between you. Wishing you all the best; keep that wonderful sense of humor intact!

I love his sense of humor! You guys seem like such an adorable couple. Hang in there, and keep on keeping on 😊

I am a retired nurse from Canada,today it is the last day of 2020. Have just finished this 2nd video, I feel very humbled and appreciative that I was able to meet both of you. Leslie you have a beautiful laugh and Jason you have a great smile. Will be following your channel into the start of 2021 and beyond. It is what it is. Hugs Cathy E

Having my dad with LBD he would snap & saycruel things that I would cry. I called Alzheimer society for support when needed. They don't mean what they say or even realize what they say at times, was advised not to internalize it as hard as it is. You are an awesome couple sharing your journey, there isn't much out there on this disease. Keep your wit & humor up you are inspiring!

If you film it, they will come. I'd say share as often as you and Jason feel the need. Look at your views...they are awesome! You said if, by doing this, you guys help one person....well, you are helping hundreds, if not thousands, feel so not alone! Keep it up..and Jason, you are so funny! I love your smile ...and your kind eyes! The two of you are such a cute couple! Just keep having fun, fulfilling those goals and enjoy life! Though things are sometimes sad and often challenging, you smile through it and that makes all of us watching you smile large!

You two are such a power couple.

I am so proud of both of you for sharing your journey. You tug at my heart strings!

One thing about posting on social media is that people's responses will come from the entire range of people. You will hear some incredibly unaware and unformed people right along with the very caring and loving comments you will also receive. I wish I could spare you but that's the reality of social media. Thank you for posting, it's so helpful to the people who want to learn. We are grateful for the posts. Insurance is the biggest stressor for everyone dealing with any disability. It's a completely broken system.

Thank you guys for your courage to post that. I'm a student physical therapist assistant and i just learned about different types of dementia this semester and this is really helpful to understand it from a dementia person and a caregiver perspective. Keep posting and challenging the stereotype and say hi to Jason for me.

What a beautiful couple. Jason you are amazing! Healthcare in our country is a nightmare. The insurance companies try to break your spirit so you’ll give up. Stay strong, keep sharing your story. You are helping so many other people who may be going through similar situations. God bless you both and may he hold you both in his hands. 🙏🏻❤️

@ACharmingAbode

4 жыл бұрын

Thank you Mary!! ❤

I love you guys and remember..God has his hands on you both...i believe in miracles cause I have had them happen to me....dont ever stop praying...God works in his own time..just keep hoping and watch God work.. I wish you guys the best I will pray for you and ask God to open doors

I totally get what you said about having a dementia diagnosis doesn't mean there are no longer any emotions or feelings. My late SIL had Alzheimer's. Her sister was a caregiver so my BIL could work. When her sister developed cancer she was so sad that she would not be able to take care of my SIL as she had planned. By this time my SIL was nonverbal and just walked or sat most of the time. Her sister said "I was sitting near her feeling so sad! I looked up and M stood up, walked over to me, leaned down and kissed me on the head then went back and sat down." I realized at that point that M may not be able to communicate, but she still was the empathetic woman she had always been! Blessings on the two of you for sharing this journey with us.

I completely understand that talking thing. "Leave me alone!" I don't like to interact with people anymore. Not at all. This is a help to me, and my wife. Thank you

Thank u for sharing, I am now for last 4 1/2 years, with , bipolar, schizophrenia, and dementia. Lewd body. 2 years younger then me and now my elderly mom, I have been fighting to get life ins since beginning. For burial but when they hear dementia they denied . whew crazy, it truly has been a roller coaster ride , and even more now worried about COVID and would he be able to tell me how he is feeling , after I hear a cough etc. Thank u so much for being real . I hear your cries because when u go down that rode and think on it it hits , I’m losing someone I love. I hear u . Keep the camera rolling. It will only help others and also make many memories , and something for them to watch too for memories.

People might be commenting on Jason being funny not because they don't expect it due to the dx, but just because funny people are such a delight. I imagine people have always enjoyed his company for his humor; now we get to meet him thanks to your videos. Encouragement and love to you both.

I have Lewy body dementia. I also commented on your first video. All the changes I go through are so hard on my husband and daughter, it makes me sad. I can't do anything about it though. I have always been a very talkative person, and now most of the time, it just exhausts me, so I can relate to that. I feel like my eyes look weird in photos also. Most everything you all are discussing, I can relate to. My husband does not like to talk about these things at all, so I find it very helpful to watch these videos. I hope you will continue to make them.

@ACharmingAbode

4 жыл бұрын

We do plan on continuing to make them. I enjoy finding others who are going through the same thing! It helps to not feel so alone! I"m so glad you find these videos helpful! That was our goal. Sending you good vibes for easy days ahead. 💜

@tracyflint7376

3 жыл бұрын

Michelle pagans , my Husband also was diagnosed with LDB . We are all in this fight together. Please if you ever need to talk hit me up. My husband watched these videos and could relate to Jason on all levels. It was good for him to see and listen not just to read about LBD. Thank you.

@Secular-Serenity

3 жыл бұрын

Thank you for sharing. I thought Jason didn’t want to talk but he’s probably too tired. Interesting.

@glow308

3 жыл бұрын

I watched the first video that you did with Jason and I am so glad that you are choosing to share this part of your lives with others. I had never heard of LBD, but as in-home caregiver for elderly and disabled people, it is helping me to better relate to what some of them are going through and feeling. Even if it’s just age related dementia many of the symptoms are the same. Hearing Jason explain the way he is feeling and having him share from his perspective is really helpful. Thank you Jason!The love you share for each other is so evident and I love your sense of humor! I will pray that God will bless you as you continue to be a blessing to others.

New sub here and it’s Jason’s illness that caught my eye. I’m a retired nurse...so I wanted to learn more about LBD. I subscribed bc you both are so sweet and amazing. First, Jason, ty for your service🇺🇸 I’m an army vet myself. I wanted to make a suggestion and that is, perhaps get Jason signed up in the VA system. I’ve been using them for the last 15 years, and things are so much better starting around 2-3 years ago. I’m currently being treated for breast cancer and had a world renowned surgeon and was able to take radiation at Duke in Raleigh which is closer than the Durham VA to our home. I have a choice of where I want to go. My husband was able to keep the same Drs he had when he had BCBS while working. When he retired he got into the VA system. We have been very pleased. Jason is entitled to VA care. They also accept insurance if you want to keep yours. The other thing that I want to very gently offer is some advice. I spent around 10 years of my 30 years of nursing with pts with dementia. For safety reasons, it might be a good idea to have a friend, neighbor, church or family member spend the night with Jason when you are working. His short term memory loss and the blanks in his memory and lack of judgement are kind of scary to hear. I apologize if you are already doing this. You both are amazing and I’m sorry you are going through this...you obviously have a great love story ❤️

@ACharmingAbode

2 жыл бұрын

Hi thank you so much! This was filmed quite a while ago! Since then, I no longer work nights and I’m home with Jason all the time. Being a nurse myself, I know where my priorities are, and being home with Jason was number one! ❤️

Omgoodness...this is so refreshing. Recently, my elder sister developed Alzheimer’s as well as cancer...I moved into her home to provide hospice care for her. She was not like Jason...Donna was pretty contrary, her entire 76 years on earth. She was quite a bit older than me...she raised me so I couldn’t allow her to be mistreated in a rehab center because she was mine to are for...anyway, dementia is a disorder that afflicts people who don’t deserve it. They rarely understand what’s happening and my hope is to just treat them like the people we love. If their condition is out in the open, how great is that! With my sis, people knew because of her age and appearance but Jason is young and looks like a vital man...treat him that way. Thank you for this. I just lost my sister and I miss her. I got so tired of the way people acted around her dementia so just be normal people. If things happen, laugh them off if they’re even a tad funny, or just be a kind person and don’t let it get weird. Oh, Donna would get so angry if I “kept using words”...now, I get it. Thank you for everything.

I became disabled 17 years ago l too was high energy let's get er done person. At 50 I was in lots of pain and tired all the time. Diagnosis....fibromyalgia. As if that wasn't enough I had an accident at work that basicly caused injuries from my right side neck to my foot. It took five years for me to accept I'm unable to do 2/3 if not more of what I did well. I'm now 67 and have been learning to do things on my upside of my pain depression anxiety etc cycle. God bless you for showing the Real way it affects you. I've done well because no one knows until I tell them, because I only go out and socialize at church. I sleep extra the day before I go Prayers for continuing on your informative site

You are so good for Jason, he needs you in his life. You are an awesome couple!

I think your both great. He is so lucky to have a true friend and devoted wife. One in a million you are . My dad was the most important person in my life . I wish i had learned about dementia.

Jason's eyes look much better in this episode.

@beebee7963

2 жыл бұрын

Yes, they look MUCH better!!!

It really frustrates me, to see someone struggling trying to get their insurance taken care of when Jason fought for not only me, but for this country!!! Where's cousin Eddie when ya need him?! HAHA So glad Jason had a great experience with his BIG GO- CART!! That's what I thought it was!!! 🤦‍♀️ glad Jason is checking things off his list!! YOLO much love 💕

@ACharmingAbode

4 жыл бұрын

Oh cousin Eddie haha Yolo 😂

I wish I had you two 6 yrs ago when my husband and I moved in with my parents to become full time care givers to my mom who had dementia and dad who had Lewy Body Dementia. You are an inspiration! I love your little laugh. My Mom laughed at everything and I inherited the same trait. I’ve told our sons “as long as I’m laughing I’m ok. If I stop laughing it’s time to worry”. My husband has had 3 surgeries to remove a brain tumor over the past 30 years, the latest in Oct 2019. I see a lot of the same characteristics of Lewy Body in him but he’s never been tested or diagnosed with it. I thank you for being so open and honest in your journey through this horrible disease. Hang in there. You will always have critics but there will also be more supporters and prayer warriors than you will ever know.

Jason's smile lights up my life! Much love from Newfoundland and Labrador Canada ❤❤❤❤❤❤

You two are a darling couple‼️. Thank you so much for sharing your story.

Thank you so much both of you!!!

Thank you for sharing your life and educating us!

I am a nurse as well. One of our yearly training videos is a series of 5 videos on Dementia. One of them is the journey of a parent with dementia from the start of the symptoms to her death. It really tells the story so we understand the journey. This is a great learning and teaching video and saving memories for you kids

By sharing your story, the misconceptions get blown apart. More people will begin to understand your experience and the experience of other patients & their family members.

From one soldier to another I gotta say you are very strong for having to go thru all you do and esp as a couple she is very strong as well. Kudos to you both 💖

Thank you Jason for all your dedication & service. ♥️♥️♥️♥️

What a dear, sweet couple you are. Jason, I love your comebacks! You are now in my daily prayers. Enjoy each other!

Thank you so much for this! Prayers for you!

Thank you so much for sharing such a personal experience. Wishing your family so many blessings xxx

While this isn’t my experience we have a disabled daughter who has required 24/7 care her entire life. My best advice for you is to never take the first no as the only no. Insurance companies always deny first hoping you will go away. My heart goes out to both of you. God bless you!

Your videos are so NEEDED. Please keep them coming and thank you!!!!

Proud of you both for sharing! Proud of his service to our country!

I appreciate you doing this update. I will keep you both in my prayers. I have no doubt that these updates will help someone going thru the same thing❤️❤️❤️

You are both awesome people. I want to thank you for your service, Jason.

Good for you! I’m so happy y’all are checking things off your bucket list. So worth it

You are an amazing couple , so blessed to have each other !! Thank you for the update. Hang in there and love you guys!!!❤️🙏❤️

Thank you so much for continuing to share your journey. You are both so helpful! God bless you 💜🙏💜

Thank you both for being so transparent. Y’all are an amazing couple. May God be with you daily. 💙

Thank you so much! I love you both. You both are awesome!!! Jason you are adorable !!!❤️❤️

You two are awesome together. Jason does have such a great sense of humor. Gee, I better take note of that time I sneezed, and coughed when I was 14. I have moderate hearing loss so I know I drive my husband crazy. I would love a monthly update. I will be keeping you both in my prayers. Hugs, Diana.

You guys are great, especially working together through this process. And who would have known any of this without someone like yourselves sharing your experience with us. Thank you. I pray for your strength and rest. Blessings.

I love that you share your intimate happenings. You are so brave, the both of you! Keeping you in my prayers.

Just remember you will find out that you’ll need to decide who’s in your inner circle and who will need to be on the outside. Those on the inner will support you always and those on the outside you choose to share or you don’t! It’s easier said then done. Stay strong and be blessed!

You two are so sweet while traveling this road you are on. Take care of yourselves and live your best life.

Your monthly updates are so helpful.

My mom has Alzheimer’s and we treat her like we have if she had her memory. It keeps everything normal .

Thank you for documenting I’m walking this journey also. Many people save me bless your heart really tell me how they feel sorry for me and I make it very clear that I am very blessed to be able to take care of my person my beloved husband my best friend and tell Everybody that today is the best it’s going to be in my motto is I am blessed not stressed

You are a great couple! Thank you for sharing your journey.

Way to go.. two incredible people.💕

No diagnosis can change the care,humor and love you two have. Thank you for your videos, it describes me 💕 I'm not alone.

You guys are AMAZING and are so blessed to have each other!!!!

Jason is such an awesome man keep your head up and keep going you have such an awesome wife she has your back no matter what

So happy to see another video. I love how Jason is still moving on with his life, a lot of people would just stop living You 2 are so strong I'm glad your his wife,, so dedicated. Please keep up sharing as much as you two feel, I'll be watching. God bless

I’ve just put this on a Veterans page here in Australia as I strongly suspect this may be happening in Australia but not recognised. Thanks heaps Jason, love your work. XXXX

This showed up in my feed. My neighbor has been diagnosed with this but he's over 70. I know you don't want sympathy but 40's is just too young to struggle with it. You are my oldest son's age .My heart hurts for you. I'm also a nurse, Leslie. Best of luck to you guys xo

@realascanb222

3 жыл бұрын

Did they say they were in their 40s? Im just curious how old he is. Definitely too young but hopefully the progression will slow or stop.

@suebabe100

3 жыл бұрын

@@realascanb222 Yes, not sure the exact age but I think she said 45 or 46.

You are a marvellous TEAM, loving,caring. Continue your good work together . You have a contagious smile!

I am absolutely crying my dad is going through the process of some type of dementia. I am not responsible for his care as he is married. But I feel like these are my dad's symptoms. It's been heartbreaking as I am disabled and can't help my dad more. But I wish we could diagnose him so we can move forward with his care. Ugh dementia is so heartbreaking.... thank you so much for your videos!!!! I mean.. THANK YOU!!! I'm learning through your eyes!