I appreciate your and Jason's decision to keep private those times that Jason is not in top form. Your love is what shines through and that's enough. God bless you both.

@janetpogue4970

Жыл бұрын

I am greatful for you keeping Jason's difficult times private

@charhunt39

Жыл бұрын

He also had my logic jersey..terrible. would raise him right out of the bed. Gabapentin helped with that. Have they tried that for him?

Leslie you are gifted at caring for your husband and respecting him. That is an art.

@rozfield3043

Жыл бұрын

❤❤❤❤❤❤❤

If anyone is unkind to Leslie I’m going to hunt you down. How dare you be critical of her. Leslie block those people who choose not to take your word for how things are. When a man with dementia has to ask folks to be kind, it’s a very sad day. ❤

@shannonsheed977

Жыл бұрын

Hunt you down? Choose your scolding words more carefully! Set an example of kindness!

@glendaw5221

Жыл бұрын

@@shannonsheed977 oh good grief. That’s a very slang expression used among my family and friends. I did not mean it literally. If I offended anyone I’m sorry. I for one would be delighted if anyone used that expression to those who posted critical remarks for me as a loving caregiver.

@lizbetjohn8493

Жыл бұрын

A lot of us will help you. The negative people need to go away. What asshats!

@sandysouthward3635

Жыл бұрын

I'm right there beside you!!!! I feel so protective of these two! The raw and truthful videos must be so hard to share yet so important for all of us who tune in to hear!!!

@deborahash6255

Жыл бұрын

Good grief indeed!

I know that "show boating" is a coping mechanism, but he's hilarious and he watches for your reaction. It's cute. Thank you for sharing your journey with us. Prayers for you both and big hugs. (PS: He's losing a lot of "things". Bank card. Freedom of travel. And more. And he knows it's not going to get better. I'm a retired RN too Leslie. But I'm sure you realize that since you have a support group.) More prayes and more hugs! ❤🙏🏻❤️🙏🏻

@LIVINGWITHDEMENTIAPODCAST

Жыл бұрын

Thank you so much! I hope even those that don’t have a support group realize that. Life is definitely not about “us” anymore. It definitely shifts the focus. My goal is to make Jason as happy as safely possible 🥰💙 And I’m 100% ok with focusing on his needs. That’s my best friend and the love of my life.

@joyful_tanya

Жыл бұрын

@@LIVINGWITHDEMENTIAPODCAST I have worked with families who sadly can't quite wrap their head around it. It's usually the children of an elderly person who doesn't live with them and see everything that goes on. ("What's the big deal? We drive him wherever he needs to go?" 🤷🏻‍♀️ For example). Thank you, again for showing your lives to us. It's very educational. No 2 people are alike and even though I have taken care of a lot of elderly dementia patients, it doesn't make me feel any better equipped to deal with my husband's undiagnosed, unnamed, dementia. He had an MRI which didn't indicate dementia changes, but as you so eloquently said in a car video, you can't know for sure until in autopsy. 🙏🏻🙏🏻🙏🏻

@michele21auntiem

Жыл бұрын

​@@LIVINGWITHDEMENTIAPODCAST i feel for you because i am in same place. I love caring for my hubby but i am worn out. There are no breaks when they need someone full time. Prayers and positivity to you.

@harper_anne2089

Жыл бұрын

The first thing I thought about after Jason did his little show timing number at the beginning of this video, was, he may get to a point where he is no longer able to, and I will miss it 😌 It makes me sad that it wears him down, because I can tell he really enjoys performing for us ❤

@joyful_tanya

Жыл бұрын

@@harper_anne2089 yes, I agree with you. He enjoys making people smile. Dementia really is cruel. 🥺

Showtiming is real. So much so, that many people with dementia are able to “fool” their family members, friends, and even their doctors into thinking that everything is OK for a very long time. I truly believe that this is why it is sometimes so difficult to get diagnosis. My mother was able to hide her symptoms for a long time, and my father covered up for her too, because he didn’t want their lives to change. I noticed the changes because I was around more often, but others refused to believe at first because my mother was so good at putting on a show during family visits, outings, etc. Only a full time caregiver knows the true score. Sending love and support to you both.

Jason’s intelligence and ability to articulate is amazing. As his caregiver you are doing an amazing job. Showboating is a great coping default and may the show go on🥳. Dementia is not a cookie cutter diagnosis!

No one knows about my husband’s dementia. I am able to navigate situations and keep him calm and jump in when he needs me. He appears normal to everyone. He went to bed at 5 tonight after a 2 hour nap this afternoon. Mood swings are quick and volatile. But everyone else sees him as normal. I feel your frustration

The anger is what I'm having the worst time with. A man who never raised his voice at me nor ever talked down to me has made a complete flip. I have to go to what I've discovered as my safe place and cry. Far, far removed from the man I married but for better or worse and we promised each other to be there forever. As bad as it hurts there are still good times. And as long as he still calls me "SWEETIE", I know we'll be ok. Such a horrible thing to watch and deal with and what's to come.

I'm glad the aircraft loader thing happened and that the item purchased is so obvious to both of you to see that finances should be managed by her. I'm so proud of him for realizing it and accepting it. God bless you both.

@stacieboucher1570

Жыл бұрын

Yes, I’m glad too! . My husband spent so much with scams before I figured out it was dementia. He’s mad I took away his cards.Thank God she didn’t get stuck with it! Was funny to hear his logic for needing it! Good he was ok with no more money on line!

Having a very different kind of chronic illness, I find myself trying to mask/hide how I’m really feeling. It’s exhausting. I suspected Jason might do the same. I really appreciate the two of you sharing your story. I wish you both well.

@janetpogue4970

Жыл бұрын

Yes, you express this well!

I’m glad you don’t show Jason’s worse times . Protecting him is important. Equally expressing the real life of dealing and living with this horrible disease is surely helping others.

I wish I had known about your channel when my sister and I were taking care of our Mom( who passed away in January 2022, 8 years post her Alzheimer's diagnosis) we were fortunate to have the help of CNA's towards the end of her illness, however, all of her services came to a screeching halt once the pandemic hit. And while we were lucky enough to work remotely, we became our Mom's full time, 24/7 caregiver. As her illness progressed, she became highly agitated, and was awake all night, and slept very little during the day. It was not an easy task, we had some really rough days and sleepless nights, however we took comfort in the fact that we did all that we could for her to make her comfortable and feel loved. Thank you for validating the feelings of caregivers.❤

I sincerely appreciate the both of you sharing your journey. My Daddy lived almost 10 years with dementia. It is definitely a difficult disease. He passed away at 65 years young. I love how you both use humor to deal with many of the difficult moments. I use to say, “if I am not laughing, I would be crying all the time”! Please don’t ever let anyone still your joy. Or for one minute doubt your decisions and care giving skills for Jason. Jason keep dreaming big! Love your enthusiasm for life.

@BabyCake8891

Жыл бұрын

*steal

Leslie you were kinda sassy in this video, I loved it! And omg I have to admit I laughed when you revealed the purchase was an airplane loader! I did not see that one coming 😆

No one knows until you have gone thru it, I did. God bless both of you🙏🏻❤️

As a retired RN myself, I worked with dementia patients. The general public has no idea what goes on, and truthfully some don't want to know. YOU are doing what's best for Jason. THAT is what is important! I know you know, you can't do it all. Please rely on your support system a little bit more.

Thank you so much for this very special video on frustration. My ex-wife has the beginning stages of dementia and our two daughters are in denial. I will have them watch this for sure . thank you so much. I really appreciate both of you for sharing your journey.

You two truly are amazing! It must be so very difficult going through this journey together…yet you both still maintain your sense of humor. You both are in my prayers and I wish you the very best. Happy Father’s Day to Jason. Thank you for sharing your lives so openly. I enjoy listening to the two of you!💜

Even with the struggles Jason is having his intelligence and sense of humor still shines through so much. It is so wonderful that Jason is willing to share the good and bad. Thank you to you both and I'm always sending prayers your way❤

Please talk more about the spontaneous anger. It’s helpful to hear another perspective.

My heart goes out to you both. People who don’t understand dementia, or live with someone who has this terrible disease can be very cruel. I’m happy that you both do these videos, and Leslie, I’m sooo glad that you have a group to find some comfort in. Blessings to you both 💞 ☮️💖🙏

Keep shining your light! You 2 are doing important work!

Dear Leslie and Jason, your videos aRe such a help to me. My husband has the short term memory dementia. He is 87 YO I know there is no arguing with him. He doesn’t remember people, he doesn’t know where he is or directions. Last week he took off by himself and drove 100 miles. Being frantic, I called the police. Luckily he found his way back before the police found him. So many things you talk about are so familiar. I pray for patience, love and kindness. Don’t stop laughing, Leslie because then you cry. Bless you.

You’re courageous to share your journey with us. Good bless you and your family.

People on the "outside" really don't know what caregivers experience on a full time basis. All you can do is follow your own path of educating and let it be there for people who will relate now. and those who will have loved ones in this situation in the future and will be more able to relate at that time. I appreciate your effort in sharing your story.

Jason has a wonderful sense of humor. I can't imagine how hard it is for you Leslie, to see the man you've loved for so long disappear before your eyes.

Thank you for doing these videos....and personally, I am soooo very glad that you laugh a lot! You have joy inside of you.

That aircraft loader by is such a hilarious thing. I chuckle every time I think about it

I feel this so deeply. I believe I am about a 5. I feel like everywhere I go people are watching my every move to see what I act like. I also do showtime. I don't even mean to do it. I feel like you have an expectation of how you present yourself to people, and we try our best to be who we have always been. It happens without a thought. I have gotten where I stay home or in the car more as my symptoms make me unable to be the Beth I have always known. I am hiding away, and you are on KZread. It's an intensely personal journey and the bravery to put this out here for everyone to see is huge. And it is real and raw. Thank you both for sharing this with me. I feel like we are going through it together.

I can’t believe what people comment to you. We only see a little bit of your life. My heart goes out to you Leslie and Jason.

You are both wonderful people. I have stage 4/5 Parkinson’s and my husband of 50 yrs is my primary caregiver. You both inspire us that we are not alone. Hang in there. You both are helping so many people.

Leave your lights ON! And flash em when you feel like it and bugger the naysayers…. Keep on doing the things you need to keep your fella safe and happy. Jason, enjoy your Grandbabies as much as you can take, you’re leaving them with Precious Poppy memories.

We have had, 2 close family members, pass from dementia, totally get you 2, its so difficult an you never know, what day to day brings!!! Prayers

You both are such a grounded couple. Don't let these idiots, who think they know it all, get into your head. Keep your energy for more positive things. You are both going very well. A friend from Albera Canada.

Very proud of you both for sharing the hard things and trying to help others. Love and prayers being sent to you. ❤

I can relate to the frustration of people not seeing the bad stuff and thinking all is ok. That's hard! My hubby is losing more and more ability and needing me more yet there are so many things different than what I've seen others go through with their loved ones. We are blessed in that he is always cheerful and can laugh at himself, never gets angry, is very thoughtful and considerate of me and what i have to go through in taking over everything he used to do and to be having to help him with all his activities of daily living now. He still is able to understand that he needs the help, that he makes mistakes and can even joke about it and laugh. But it's true... he puts on his best around others and they have no idea how needy he is and why it is hard for us to go places.

Jason is so very fortunate to have you by his side Lesley. I don't know that i could do it - i have NO patience. Have learnt so much from your vids - thank you.😊.

I appreciate you both. After caring for my mom and loosing her to ALS, I'm now caring for my moms sister, my aunt. My aunt started showing signs of dementia 2 years ago. Little things. Like a 4 hour grocery trip that should have been 30 mins. Things have ramped up considerably this year. I love her and want to be supportive. It is a challenge. Thankfully my aunt lives with me now and I've been able to go from a full time job to a 30hr and now 20hrs a week. Your channels are my support group. Thank you both.

I have been following your channel for quite awhile now. I appreciate your willingness to be so candid about your current life and it’s ups and (increasingly) downs. Someone who has not lived with a person with dementia cannot know the sadness and frustrations you are experiencing. Although Jason jokes about going into his “showtime” mode during taping, and struggles with short-term memory, it is evident that he is an exceptionally smart man. That makes what you are dealing with so much harder-for you to live through, and for inexperienced viewers to grasp your new reality. A very good friend passed away 18 months ago after about five years of apparent dementia, although in retrospect, I’m sure it was longer. While her situation, onset of disease and diagnosis were different than Jason’s, it was still hard to watch and accept. Like Jason, she was an exceptionally intelligent and articulate executive, a well-respected natural planner and leader. It was very sad to watch the smartest person I have known, one of my best friends, caught in the world of dementia. Don’t let the comments from the uninformed use up what energy you both have at the end of the day. It isn’t worth it. You are doing the best you can with what you have. Take heart from the positive, useful responses you receive. Thoughts and prayers to you.

Leslie, sending you the biggest hug possible. The weight of this journey, especially for that of a spouse, is enormous-an outsider will never understand fully. I recognize the pain and I recognize your strength. Thank you for sharing. ❤ 🙏

I know its not funny but the aircraft loader 😂 I LOL when you showed the picture. Thank you for sharing your story. You both are just awesome!

So appreciate your honesty. God's blessings on you and your loved ones.

It must be very hard to be critiqued by a public audience but I want to commend you both. Jason being as open and honest as he could be, Leslie trying her best to over compensate and being sensitive as possible. I can imagine the whole situation is gonna be tense from time to time.

Hi my dad has vascular dementia and I've been trying to work out when he first started showing odd symptoms and I've now realised from watching this that he had started buying odd things online at least a year before any memory problems surfaced. Although my dad is 90 so has been very lucky we thought his dementia had escalated really quickly but now I realise he has probably had it for a lot longer than we realised.

Please continue posting videos as they are very very informative and you are so brave to share your journey

Thank you for being so real, so candid, so willing to be truthful. The show timing is so hard because it fools those who are not around for the rough spots, the anger, the frustrations. I so appreciate you both and urge you to be kind and thoughtful in your comments.

Admire you both for documenting your journey. I would think that isn't very easy. God is using you to help many people. ❤🙏🙏

I love that you show him doing things and upbeat...as we can see there is quit the disconnect between the actual diagnosis and stigma....you are showing that during great change and decline ..activities are still importnat and we should respect the patient , family member etc . For those that comment nasty feedback ...they just truly dont understand , no matter what their aunt or whoever is experiencing . Stay strong, you two , sending love to you on the front lines of this horrible illness

Hello Jason & Leslie, Thank you Jason for being real with where you are with your disease. You are both very special people. Love you guys ❤

This has been a blessing to us! I feel like you two are speaking about our journey 😳 it has changed both of our perceptions of this disease. Thank you! ❤💜

We DO understand the SHOWTIME and the reality. No need to stress over people's interterpretation. It's those who deal with it that get what you are talking about. Love you guys Prayers too xo

My mom was one that would say “He doesn’t look like he has LBD”….and I told her that obviously you’re not going to record the bad. My father had rapid onset and progressing LBD. His whole journey was only 9 months, he didn’t know who we were, he constantly accused us of trying to kill him, police were called to the house over violence multiple time and that’s when he would showtime the most. It was hard to tell the cops that my dad just tried to choke me when he’s over here joking with them. Everyone’s battle is different, and I pray everyone stays safe. Thank you for sharing your story ❤

Thank you both for all you do! The man of my dreams was diagnosed with Early onset Alzheimers 3/2021. I am a retired RN, and his primary caregiver. Your videos help us so much. Thank you!

Don't let anyone put you down, you know him better than anyone. I pray God gives you strength to go through this ❤

Praying 🙏 for you kids. Time and love are now. Tell each other every minute. I love you. Make memories this is your time together ❤️ 💛 ❤️ Spend time in Love, Hugs, I can not stress enough Now is your time together. Good , bad , happy, mad even sad. Remember both of you when you fell in love. That feeling couldn't wait to see each other be together. Do it again. Now is the time. This is from a 70 year old lady that just lost the love of my life. From LBD. I would love to see him again and kiss him. Hug him. You know what I am saying. Now is you kids time. Love and Hugs and Prayers for you kids. Patti Smith

I totally understand not getting the camera out . My mother had dementia and oh my if I got out my cell phone for something else she would get mad. My heart goes out to both of you. Living with someone with dementia is a big challenge, we had to cut my mother off also. I look back and we laugh at the events with my mother. So I’m laughing with you. God bless you 💙

I'm grateful for your information. My grandma had alzheimers which now I know is different than Lewy Body. I didn't realize that there were different types of dementia. I appreciate that. And comparing is something I try not to do. Even people with the same diagnosis will have varying symptoms. I wish people would actually listen and take in the information and just support. It's quite simple.

I love you guys. I was a caregiver to my mother with dementia and then became a caregiver for the elderly and its not easy. Leslie keep your chin up and jason you are wonderful.

Because of my health, I can't go out to flea markets, thrift stores and antique stores, to look for treasures. So I watch others do it on KZread! It scratches that itch, and saves me so much money!!😁

“T. V land”😂 oh my gosh I love his sense of humor 😂

Thank you for teaching me about this as you go through the stages. This is more informative then any book. What are you doing is so very helpful and educational.

Jason is a stand up comic. Very talented.please don’t stop him when he is doing comedy.

Happy Father's Day Jason...I love this family and pray you enjoy this day together! 🙏💕

Lesley, I love your laugh. You both are dear to my heart, and I'm keeping you in my thoughts and prayers. May God be your strength and comfort. 💕🙏🏼

Leslie I’m so proud of you and Jason!!! I’m praying for you both ❤🙏❤️

I feel like we’ve seen this video before. This video also comes after the one posted a couple of days ago when Jason did not want to film, so we get it’s not all rainbows 🌈 and unicorns 🦄 in your dementia journey. Are these being reposted/moved from the charming abode channel? Dementia sucks. Whatever version. I’m 5 years into caring for my 86 y/o mom with Alzheimer’s and now she’s been diagnosed with heart failure. She’s also at stage 5, but as anyone who cares for someone with dementia knows, it all fluctuates and there’s never a solid stage. It’s amazing y’all are doing these videos - it’s helpful to see both sides of this disease. And with deepest appreciation, thank you for sharing your vulnerability. ❤

I truely appreciate the important task You both are committed to in sharing You journey with us. You are handling it with courage and open communication. It speaks volumes about Your relationship. ❤️🇧🇻

😂 Fred body dementia... Had to pause there to say I do appreciate the way the both of you express yourselves through humour 💗

I prayed for you both after watching this video. I will keep praying for strength for you as you care for Jason. It's a lot and I thank God Jason has you. You are doing a great job.

I’m retired AF. I’m 100% service connected disabled. A portion of that is sleep apnea and anxiety/depression. Take your records from the civilian dr and the records of the mortar attack from medical to a DAV or the base VA person that assists with filing claims. They should be able to help get the TBI service connected and then VA will take care of medical bills as a service connection. I hope you get this sorted out!

I just found your channel I’m in the process of losing my mom to dementia. She’s in the final stages. Thank you for sharing your journey. It’s very hard to find support groups for this condition which is surprising so I’m thinking about starting one here in the Houston area I’ll stay tuned to your channel. God bless y’all!❤

I thank You Two for Your candidness & transparency.

I so understand…sending love hugs prayers and kindness with positive thoughts.❤❤❤

Love all your videos. It's fascinating to be watching you Leslie as his wife and an RN as you've learned about his dementia, the stages and how you're dealing with it all. Intellectually I can see you working hard to learn it all, try to help him understand, us watching and of course first and foremost be his main caregiver. Jason, if I could, I would give you a hug. You're a great man and you've both raised a beautiful family. Continued support and I'm very appreciative of your videos.

Don’t ever let anyone put your light out.. ever!

i just had my assistant/helper watch your programs (w the cc: Spanish) so she can be aware of the situation in our home life. You both are helping to make the world a more understanding place. יוי

Thank you for sharing! God bless you both. ❤

I truly love you two! Keep that light shining ✨️

I am so sorry. All of this is difficult. Just keep taking it one day at a time and Lesley(am I spelling your name correctly?} please remember to be kind to yourself. Having assumed a lot of the care for my husband I know how much it takes out of you. I think discussing where you are in your updates helps clarify the progress of the illness. I have no idea why people say unkind things. You two are going through very difficult times. Most of us cannot imagine your reality. Sending 🤗 to you both.

Thank you for sharing your journey, Jason n Leslie. 🙏 I'm thinking of you both ⚘️ #Sydney Australia

My newborn grandson’s name is also Hudson. I was responsible for rolling out the Innovative Pool - dementia community packages program across south east Queensland Australia. I am a clinical psychologist & part of the admission process was conducting a functional assessment, depression scale, adaptive behaviour assessment & carer strain index. Every person is affected differently & at different stages in their dementia journey. Research shows that people who are highly educated cognition deteriorates less than a person who has less education. One of the participants in the innovative pool program, had a PHD in Fine Arts, she could still talk at length about topics that she taught & yet she couldn’t use the toilet or shower herself. The youngest person that we had on our program was 37. I thoroughly enjoy your videos ❤❤❤❤

Leslie, laughter is the best medicine!! It is healing for the soul! Thank you both for the willingness to be vulnerable for the sake of others. Blessings ❤️❤️

I know that hard road you are on. NO ONE has the right to criticize, much less act like they know more than your doctors. That is appalling!

May God bless you both and give you the peace only He can give..,..prayers.....love.....and hugs

Leslie I think you are doing an amazing job of everything.Jadon still had a sense of humor which is good except just not on camera when you are trying to be serious and informative! I imagine you are helping alot of people out there.God bless both of you on this journey.😊🌹🦋🌼❤

Thank you for sharing your journey. I and my daughter cared for my husband , with dementia , for 8years. I don’t think I could’ve done this during our journey. You are so strong and brave . Jason is amazing. You two are so good together. Thank you for what you’re doing. God bless!

sending you all the love from West Virginia. I just hope you never leave us or that you quit sharing with us. you and he are family.

I’m new to your channel and I’m happy to be watching your videos. Your love for each other shines through to us. My mother had Alzheimer’s so I know a little bit about the dementia journey. It’s ups and downs, a real roller coaster ride. You are both very brave to make these vlogs for us who want to learn more about the journey you’re on. Thank you for your courage. Leslie, I love your smile and Jason, I love your sense of humour. Blessings on this journey and you’ll both be in my prayers. ❤️🇨🇦

So with you every step of the way! ❤️

Something also that people need to understand is most people (I can only speak from LB Dementia perspective) don't get a diagnosis of dementia until they're stage 3-4+. Even then, it can take a year or more to get a definitive and/or specific diagnosis to dementia. Most people have had symptoms for roughly 8-10 years before they seek medical care to find out what's going on. Symptoms in very early stage dementia are mild, more vague, and can be explained by other things. That might help give better perspective as to how people with dementia "behave". Also I have found with my mom, LBD, that it is an up and down process. You can have weeks of bad days followed by weeks of good days. The pattern gradually continues progressing downward however. And different dementias affect different aspects of cognition (memory, executive functioning, neurological coordination, reasoning, etc).

So wonderful of you both to share the journey, warts and all,?that is real life.

My husband has mild cognitive impairment which I see worsening every day. We are on the beginning of this journey and I so appreciate you sharing yours. THANKYOU!!! ♥️

I am watching my sweet mama care for my dad as he walks this path of dementia. I am so proud of both of them and the love and respect they continue to share. It is hard to watch and live day in and day out but I would rather live with my current dad than without! God is always good better than chocolate cake!!!

Jason! Your sense of humor remains! Still fun to watch.

Thank you for your videos. Although there"s a gap in our ages, we are experiencing the same thing.

I continue to pray for both of you and for your family as you walk this dementia journey together, trusting in the love, mercy and, faithfulness of the Lord. We thank God for His love for Jason and for you, Leslie. We pray for His perfect will to be done in your lives. Sending love and holding you close in my heart as I and all your online friends continue to lift you up in prayer. Blessings, Mona

It’s not fair to judge by the 10-15 minutes you see on video. A lot of people only see what Jason wants them to see. Leslie catches a lot of flack for her positivity. I’m sure it’s a combination of her personality, her years in nursing and her drive to keep Jason as secure and comfortable as possible. Everyone should have an advocate like Leslie. 💗

Thank you for sharing your journey with us, Blessings to you both.

When people share those comments it’s because they are ignorant on the topic and the true impact. It’s also a reflection of how society has gotten so used to judging others they don’t know, not showing grace or class, especially the things they really know nothing about. You are sharing your life and what you are experiencing so others can learn and maybe not feel alone. I started watching for your decorating and now I keep watching to support you as you go through this journey and learn a bit about it along the way. Blessings to you. Never change.

Be strong. No one knows what you go through. Others should not judge, but it seems to be what some people do.