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@greatestever8976

2 жыл бұрын

The epidemic is that they aren't treating people with pain like they desperately need. My step brother had terrible back pain from abuse he suffered as a child & couldn't get his pills so he killed himself. My roommate has chronic pain after a botched surgery but they refuse to raise his pain meds a measly 5 mg. They are making him go thru all sorts of invasive procedures and putting him on other meds with bad side effects. It appears the drs just want him dead. I have fibromyalgia and became destitute looking for help with my pain. Now I spend most of my days in bed. It's a wicked world we're living in, that's for sure. No matter what, I wont let it take away my joy, laughter, or love.

@MT-bc1we

Жыл бұрын

it's a pain epidemic and a war on plants.

The healthy world can never understand what we, chronic every single hour/day pain sufferers, go through. I wish everyone all the strength in the world.

@dev_khatri5197

3 жыл бұрын

You should definitely pursue spirituality, I hope that will heal you

@dev_khatri5197

3 жыл бұрын

Can I ask, how is your pain like?

@pallavisreetambraparni6995

2 жыл бұрын

very true

@LojaMeeMo

2 жыл бұрын

I with the same to you

@brynn_02405

2 жыл бұрын

@@dev_khatri5197 well I deal with this to, but each person with chronic pain deals with different pain so it’s hard to explain but with my it’s very excruciating and painful to the touch

Videos like this make me feel less alone, as most known when its a bad day you will think you are. I been having chronic pain for 17 years and im 26. i get the "youre too young to be complaing about pain" " you look fine" and more.. to my fellow warriors lets make a change in the health system and bring more awareness like this video will or already has

I hate the stupid definitions they have for the pain 1-10. My pain level was at at least 20 for a long time so I fully understand your perspective.

@worldview730

2 жыл бұрын

Pain wasn't created on a scale, just infinity

@elizabethferrari1346

Жыл бұрын

I'm in chronic pain every moment. I agree with the pain chart. I'm a level 8 and a 9. I feel like I could pass out quite often. I carry a cool cloth with me to dab my face. I cry a lot too. 😢

@beatnrg

Жыл бұрын

@@elizabethferrari1346 At every level of pain one always thinks there’s no way I could hurt more until you do.

@elizabethferrari1346

Жыл бұрын

@@beatnrg I definitely agree with you. I'm sorry for your pain.

@beatnrg

Жыл бұрын

@@elizabethferrari1346 I am sorry for your pain as well. No one deserves chronic pain. Things that have greatly help me: a pain psychologist, acupuncture and cupping, trigger point injections, epidurals, PRP platelet rich plasma injection, swimming, water physical therapy, weekly massages alternating between three different massage therapists, positive mental attitude, finding different ways to get better, my two dogs and walking with them, watching funny things like movies or silly videos, working on increasing my happiness, eating healthier, losing the weight that I gained, having a deeper appreciation for what I have. I hope this helps and gives you ideas.

Yes. When you live with chronic pain everyday you don’t realize how wonderful it is when the pain goes away. If only momentarily. I had endometriosis for year and had three surgeries one ovary removal. Ten years of infertility and $30,000 in debt due to the stupidity of drs that are supposed to help. I almost feel they get paid more to keep people sick and in pain. I was diagnosed with Fibromyalgia later in 2005 but I’ve struggled with the pain for about 15-20 years. When I have good days I make sure they are really good because I don’t often get that luxury. I’m so sorry about your diagnosis and your inconsiderate drs.

@rickhartley5306

2 жыл бұрын

That is actually on point people who are well do not need the medical system at all. There is money to be made and sick people and if you make them well well what good are you you don't you want them to come back what time and time again complaining but still paying you for the visit. So if you fix the problem then you don't see him again but if you just prolong it well you got a customer for Life yeah I get it I understand how what's going on the world sucks it really does I can't wait to the world is over because I don't see any good in the damn world anymore there's nothing good here. Just a bunch of assholes trying to get rich why the other ones suffering pain but there's one thing we all got in common when the grim reaper comes I don't care who you are you're leaving

@Jean-ni6of

2 жыл бұрын

stupidity of drs YES

@yougotaluvme

Жыл бұрын

Any relief lol

@frankieboyseje

Жыл бұрын

doesn't matter pain is our identity after 10 years we dont know what life is without it anymore

@KellyBell1

Жыл бұрын

I totally agree on the good days…..when I finally get what I call a ‘good pain day’ meaning I was able to get my pain DOWN to a tolerable level….I tell my husband that by the time I finally get a good pain day, there’s so much chores piled up from all of the bad pain days that I don’t want to use that PRECIOUS time doing chores….I need to do something ENJOYABLE. This is the hardest life I would NEVER have imagined that I would end up in. Living in a horrible nightmare of nonstop relentless PAINFUL PAIN FOR LIFE. 24/7. It has been 28 years now. I feel like a bad science experiment. My pain is from bad injuries from labor and delivery gone terribly wrong with a breach delivery. Numerous injuries to lower vertebrae, sacrum, SI Joints, all muscle tissue, ligaments, nerves all received damage. I thought that as I healed,..the pain would subside too….but that NEVER EVER happened and this heavy horrible bone crushing aching/throbbing/burning never ceases. My life is a living Hell ….I am a trainwreck of pain from lower vertebrae all the way to both my ankles and feet. What I am doing is not LIVING…..it’s dying a slow grueling PAINFILLED death…..it’s trying to SURVIVE it one day at a time, right now it’s one hour at a time. It’s like waking up from a major surgery….you’re pain is through the roof,…you can’t even TALK to anyone because you are completely overwhelmed with the heavy pain hurting you so terribly. You just want someone to FIX IT….STOP THIS PAIN….but instead they tell you they are not going to give you anything for the pain and you’ll just have to live with it. It is completely and utterly detrimental to every crack, crevice and pinhole of your life. No more life as it was because the PAIN is so heavy and deep and it RULES YOUR BODY, YOUR MIND AND EVERYTHING IN IT. You LOSE the life you had. You are now STUCK trying to survive this nonstop sea of PAIN. I absolutely HATE MY LIFE. This is my 28th year of this NIGHTMARE. We are not born to live in constant nonstop pain. I don’t get a choice….it doesn’t take days off or vacations. It’s there in my sleep. It’s there when I wake up. It’s there FOREVER and my only way out of this physical horrendous painful pain…..is to die. That is my diagnosis. Pathetic. My life is SO DIFFERENT from everyone else. They are getting ready to enjoy their retirement years and have PLANS…..I’m in this life sentence of PAIN and my days are a big battle with the pain. Trying to get it down from an 8/9 to a 4 atleast. It’s a struggle. Most days it takes 10-12 hrs to get to a “tolerable level that I can cope with and wash dishes or do laundry “. By that time, I am a tired, worn down frazzled wreck and don’t feel like doing anything. I don’t know WHY some freak delivery “accident “ (they call it) had to happen……I have NO LIFE but THE LIFE WITH THE PAIN HURTING ME EVERY MINUTE OF EVERY DAY. just trying to eek through somehow. There’s no putting on makeup or fixing my hair and face. My clothes never match, my hair is ugly and grey but I don’t have the strength to even fuss with how I look because I hurt too much to worry with things like that. No shaving legs….I can’t waste time on the frivolous stuff of life. I’m too overwhelmed with just trying to COPE with my body HURTING ME. I lay here staring at the ceiling….there’s no watching tv when the pain is beyond a certain level…you can’t focus on anything but the bone crushing pain killing you. I really hate my life and no matter how much talk or positive mental attitude,..it doesn’t work because the relentless pitiful pain IS STILL HERE CRUSHING ME

The doctors must take the patient seriously!!!

@Jean-ni6of

2 жыл бұрын

All they take is our insurance.

@Its.nice2b_nice

8 ай бұрын

Rarely happens!!

People don’t understand until they do,

Why doctors do not believe people ? Why would we pay for doctors if we weren't in pain ?

@designer_AishaAli

2 жыл бұрын

Not people, mostly women

@michaelweaver9716

2 жыл бұрын

Drugs.

@longlakeshore

2 жыл бұрын

They don't believe us because 1) they aren't trained to treat pain 2) they cannot quantify (measure) pain objectively 3) there's no money in pain medicine and 4) they are taught in medical school--nurses in nursing school--that tissue heals and pain goes away.

@lenabillare4443

2 жыл бұрын

@@longlakeshore 👍

@claudiaaguiar8440

11 ай бұрын

it's the same story for everyone with chronic pain (especially young people) they don't believe you because you look good on the outside or you can walk and breathe like it's so frustrating ;-;

I’m 21 years old and have now had 3 surgeries in the past 4 months because of my L5S1 disc being on my nerve. The pain I experience everyday has completely ruined my life. I now have to get another surgery hoping that my sciatic nerve can heal. No one I know understands the pain I deal with daily. I don’t know where to turn or who to talk to. Everything I love has been stripped from me, and I am bedridden at 21. I can’t maintain a job, and im trying to graduate college but it seems impossible. If anyone reads this, thank you for listening. Im losing hope more and more everyday.

@marissakr

9 ай бұрын

You are not alone. I am right there with you. I’ve had severe chronic pain for 20 years now. It has robbed me of so much joy in my life and It’s incredibly hard to feel seen and heard from those around you who do not suffer. But know that you are not alone. Do not lose hope. You’ve got this! ❤️

@matt.orsini

6 ай бұрын

I had a fusion done on l5s1 5 years ago, it's bothering me most of the time but I'm living a normal life, how are you now? Did it get a little better?

@PavanKumar-prime

4 ай бұрын

When iam 22 I have disc herniation at l5-s1 and arthritis .but the only way to live is managing your pain , realizing what your body wants

@MorroMagnum

2 ай бұрын

What can I say bro. I completely understand I've been living with the same exact pain. I've been living with the same exact nerve pain for 10 years now. I wanted to get the surgery but was told it would take multiple surgeries if it didn't work. And the only thing I can tell you man is that it is an uphill battle. Now I have to 10 years I'm considering surgery. But I understand what you're going through. The doctors don't listen after a while they think all you're doing is chasing oxy. You're irritable all the damn time well at least me I don't want to be I want to be happy and chill but can't because of the pain. After 10 years of being in pain and no one listening. I think I need to see a psychiatrist on how to figure out how not to choke a motherfuker when they tell me I am not in pain. Only difference between me and you is that you had your injury younger than me I had my injury at 26.

@aalyraza

2 ай бұрын

You are not alone Garret one day we will have a body with no pain in heaven Amen.

Not dieing with it but wish every day I would.

@Its.nice2b_nice

8 ай бұрын

I felt that😢I know what you mean too. Hugs 🫂 from Florida.

I describe it as "remember when you had surgery or an injury, how much it hurt when the anesthetic wore off. That's how I feel every day. The difference is that your body healed so the pain went away. My body will never heal."

It's always nice to know you're not alone

@Its.nice2b_nice

8 ай бұрын

Definitely 😢

Thank you so much for this,it is the most frustrating thing on earth trying to make healthy people understand what we are going through,we live in two separate worlds and there is no confluence whatsoever,they just cannot relate unless they experience it.

I deal with chronic pain all the time. I've been dealing with it now for 16 years. It sucks dealing with chronic pain.

Can relate so much. I gave up on doctors years ago as a result. Its an insult to hear pain is a learned response which seems to now be their answer, rather than feeling inadequate. There is no real help available and a talking therapy is utter BS.

I suffer from chronic pain with my back now I suffer from stomach problems I keep loseing weight. I pop pain meds like sweet to get through day to work as I don’t help due to fact they can’t see my pain.

@erickafernandez4911

2 жыл бұрын

I’m going through it too! They just give me the run around and none of the test that’s needed

@Deee1672

2 жыл бұрын

I have chronic back pain from a spinal fusion too. I’m 19 and I’m sick of it, I can’t do anything without pain increasing. Everything is so hard. Even 100 mg of trams doll isn’t enough.

@johnnylego807

Жыл бұрын

Atleast u can get pain medication……. many of us struggle just to get prescribed the right dose or amount. Count each blessing

@iskra7602

Жыл бұрын

I had the same issues but they found out I had ankyolising spondylitis

Pain is more than intensity which is why the pain scale is useless for chronic pain A better description is chronic pain = intensity x time. So even a lower level pain all the time is worse than intense pain for a short period. I’d rather have a kidney stone once a year which is almost unbearable than lower level chronic pain for 12 months.

I needed this video. I just needed to know I wasn’t alone. I’m sorry that she and all of you have to feel pain like that all the time, cause I honestly wouldnt wish my pain on my enemy. I told my the physical therapist the same thing about the 1-10 scale. Literally the same exact thing. It’s crazy to know others feel the same too.

I dont even know how to get diagnosed with this. Everywhere i go they say i’m healthy and every check up is fine… but i feel like trash some days. I have chronic pain/fatigue and no one believes me it’s real.

@AverageJoe1006

Жыл бұрын

They say just go for walks go workout. Yeah m0rons i would do that if i dont have incruciating pain 24/7 . Ow you tired? Yeah no shit ,tired of dealing with constant pain. Doctors are waste of time, rather go and eat a burger and pop some illegal percs

When she more or less said the 1-10 pain scale was bs, I about lost my drink through my nose. So true and I wish doctors would rethink that question or scrap asking it entirely.

Thank you for sharing… You all just told my story. I came online because I am currently alienated from some of my family. Chronic pain sucks, a lot of damage trying to stay ‘not crazy’… I was looking for others who were suffering. The wreckage because ‘you shouldn’t have that much pain’ crap. Actually, thinking, realIy do you think I want to be like this… I paid thousands of dollars to alternative pain relief. I have been in chronic pain for 14 yr and got out of it 85%. Actually found something that helped. Found a physiatrist in Boston, Dr. Martinez, just awesome. Started me on an exercise program to stabilize my hips. Was almost pain free when I had a bad accident and broke 8 bones in 13 pieces(lol, plus). I found ‘Block Therapy’, (no pills, but gentle work). The surgeon can’t believe I walk without a limp…(broke my femur in 3 pieces). I take acetaminophen at night(a little cannabis too, had CA and definitely helps) and get 6-8 hrs of sleep after 13 Yrs of 3-4 hrs, secondary to chronic pain. Today my pain is a 2-3 from recent injuries)Forever grateful.. Don’t give up hope. I really found relief after 14 Yrs of chronic pain

@micaelaflax9745

Жыл бұрын

I'm so glad for u ♥ 15 years here; searching for new stuff cuz the will is leaving. Thanks ^^

@lburke6613

Жыл бұрын

@@micaelaflax9745 I honestly never thought I would see these days… I was loosing hope and then my accident. Not pushing anything though there is a video of my recovery on You Tube, Block Therapy. I don’t do any therapies, advice from a great PT I know, I literally lay on a block of wood. I was desperate and ordered the block but took me a couple more months before trying (I cried every day hoping my suffering would end, one way or another!!!). I think everyone, with chronic pain, knows that feeling. I was sold by the 3rd time I tried it for 20 min. It was the only thing that brought me relief, with so little effort, in 13 1/2 yrs,,,I just kept doing it. When they thought I would maybe never walk again, I got on my block. When they thought I would never be able to use my left elbow or wrist, I got on the block. I am functioning again with minimal pain because I lay on a block of wood. Don’t give up hope. Just google it…

My conditiom.began recently. Literally had a nurse tell me I shouldn't be there when I got hospitalized the firs time.

I understand, believe me.

I am in the same boat as this girl. I am on disability with chronic daily back pain. I have my good days and my really bad days. Pain controls so much of who we are. I have had to go on major depression medication because of the constant pain and no real answers or diagnosis. I have heard all the same things from doctors including it’s in your head here’s a program that helps you not think about the pain. Chronic pain is not a joke and like me and so many others a young guy 6’2” tall 220 lbs parks in a handicap spot you get looks.

@mikenfcnorth

2 жыл бұрын

research tension myosotis syndrome

Keep fighting for yourself 💪

I had lived with a cervical spinal cord injury for God knows how long and doctors dismissed and misdiagnosed me, I got an anterior cervical discectomy fusion with metal plate to try and stop my myelomalacia from progressing and I severe pain 24/7 and this lady described everything I feel and have him through. I have many other health issues, large hiatial hernia, 9 surgeries since I was a 4 month old baby and I have gotten dismissed as fat and depressed despite having all these issues. Later to find out I have high inflammatory markers and autoimmune issues. In 2018 I told one of my surgeons I was sure I had dual torn ligaments and he said it was impossible to have him tell me later I had dual tears. If doctors listened and left no stone unturned I’m sure a lot of lives would be saved and we would have healthier humans. This is out of control. And being to pained and weak to do anything about it doesn’t help any.

For 13 years I have been searching for an answer as to why the left side of my body snaps in and out of place, and my agonising, constant foot pain, after I had 4 different joint operations. You can literally feel that something is snapping in and out of place in my ribcage and still the doctors say well you walk, you dance, you go to the gym so you're fine. Sometimes I scream in their face. People are so unbelievably cruel if your disability and pain appears to be invisible.

@chizobauchay2024

9 ай бұрын

Yes they are, they cannot get it.

@salzburg18

8 ай бұрын

Are you hyper flexible?

I’m kind of happy that I’m not alone. Thank you for the video Have exactly the same problem with stomach - the pain is every day. No one understands how invisible painful can be terrible all day. All doctors think that you are crazy. You lost friends, you can’t go to any actions, any party, you lost your job, you don’t wanna eat, no-one will love such unhealthy woman, you can’t have babies, just looking on posts of people who are happy on holiday, how they have kids, have love of their life. The worst part is that any pills don’t work. So you start thinking about suicide is the only possible way.

@chizobauchay2024

9 ай бұрын

Absolutely, you totally get it, at this point i honestly feel that will be my only release if only i can muster the courage. Im so happy to meet people who are just like me in every way because finally i get to talk to people who understand.Thankyou for your comment dear, it made my day.

@Its.nice2b_nice

8 ай бұрын

😢ohhh my goodness, I know what you mean.

@artgallery_pavi

23 күн бұрын

I feel exactly what u said.. More hugs to us..

@maleficiarum

22 күн бұрын

@@artgallery_pavi exactly :( more hugs...

@maleficiarum

15 күн бұрын

@@chizobauchay2024 I’m glad that I’m not alone in this world and someone could understand me 🩵

Totally agree with what she says about the 1-10 thing.

@AverageJoe1006

Жыл бұрын

Stupid question , there is no difference between 7-10 4-7 is medium pain 1-4 is low. Choosing between low medium or high is way better then those stupid numbers

I was a 5 for yrs now it’s 100 plus and no one can help me or care too ! Not even my kids father believe me I’m raising 3 kids and I have osteoporosis! Some days my legs don’t want to work

@chizobauchay2024

9 ай бұрын

That must be so hard at least i don't have kids, im so sorry dear, what can i say, take it one day at a time? and try to fit in a lit of hobbies that don't involve having to move.

I'm a chronic pain patient too. Its awful. Makes for a very long life... it started at 19 yrs old and by 27 yrs old I'd had 3 major back surgeries. I tried to fix it. It's not fixable. Every updated MRI/CT scan shows more progression of DD/SS... its an invisible disability. If only people could see it/feel it... they wouldn't want to be me for more than 1 hour. They'd want an escape.

Thank you for sharing your experience with chronic pain and how wearing, energy depleting can be chronic pain.

I know how she feels, docs don't understand. I've had so many tell me it's all in your head & deal with it l!

@Jean-ni6of

2 жыл бұрын

stupidity of drs

I live with it :( It's hard for others to understand and also hard to keep going but we have to.

Why don't doctors have more compassion? I will never understand how a person who chose so take care of people doesn't even like people. 😕

Chronic pain is awful I don't wish it on anyone. So sad people are ignorant and don't believe us. It's just horrific. Pain sucks! You only get it if you are living with it. Believe me before I got chronic pain it was not anything I could have ever imagined. I feel sad that I even didn't understand until I got it. ❤hugs and love and light to all living with chronic pain❤

The ignorant things people and doctors say sometimes is beyond comprehension 🙄🤦🏽‍♀️ They will never understand until it’s their Turn 💁🏽‍♀️🤷🏽‍♀️

@Its.nice2b_nice

8 ай бұрын

Their turn indeed!!!

I was told ‘well, you can still go shopping’, after a devastating diagnosis of permanent nerve damage and disability. I gained weight from the nerve pain meds so all I heard about was how I need to lose weight, how I’m fat and ugly, etc. one doctor told me that I’m worthless and nobody will ever care about me again so I should get some cats, presumably so I can become a freaky, fat, ugly, cat lady. I no longer go to doctors.

i can relate to u so much .living with inflammatory disease ,back pain only they can understand.

Ive been battling with chronic pain for 4 years now and it seems to have no end. Ive been to the ER 7 times and all my EKG's came back normal. Sometimes it feels like I'm having a heart attack, other times it feels like I have a arthritis in my joints. Im not even 20 and life is so hard for me.

@chizobauchay2024

9 ай бұрын

Im so sorry, same here.

@ojichukwuanyaogu5028

6 ай бұрын

Same here. 4 years of chest pain. After EKGs & echo came out normal, the doctors said it could be costochondritis. But none of the pain medications relieve my pain.

In 2016 I had discomfort in my chest, and the doctor who did the angiogram said I will have to undergo a CABG. The doctor who did the CABG botched up the procedure, and I am in constant pain. The doctors tell that it will not kill me, but I have been crippled for life.

People refuse to accept or acknowledge because it makes them unable to help you. Most doctors realize that they are only practicing medicine and will never master it. Always learning something that's always challenging and changing

I totally understand what you are saying and how you feel

@peterichard3925

2 жыл бұрын

Visit Doctor Ani John on KZread channel his herbal medication is the best and permanent solution to all kinds of virus disease and STDs contact him now for help he cured mine..

Thanks a lot for this

Very good explained about the score they want you to give to the amount of pain. Because of habituation you definitely score your pain lower than you would have done at the onset of the pain years ago. Assessment of chronic pain still needs a lot of improvement. Thanks for sharing! (English is not my first language so i hope it is understandable what i am trying to say...)

Yup. Same experiences with doctors saying I'm perfectly healthy meanwhile I have so many symptoms. And I can relate to the 1 to 10 thing with my back issues.

So true.

So sorry for you. My pain didn't begin until I was in my seventies. I think the right doctor will help you. I know we have to be patient.

@cadena141

Жыл бұрын

The problem is the insane number of doctors you have to go to before finding the "right" one. I haven't found that person yet.

Your description of the 1-10 pain scale is so accurate… it’s relative to what you live with. I have psoriatic arthritis, have had 3 spinal surgeries, and I live in constant pain despite taking serious pain meds (et.al.) It’s as if the pain shares my thoughts, laughter, most things. (Incidentally, lived in Quincy House and was quite athletic once…)

If I wasn't sick, I wouldn't waste my time and money to go to the doctor. The Doctors problem If he couldn't solve the problem, he said it's in your head

Can you imagine being homeless and in severe pain? I can.

The amount of women who got misdiagnosed because doctors don't take women's pain seriously or just think it's imaginary, just tells how much women struggle with their lives

@JunkyardCactus

2 жыл бұрын

The fact that your takeaway out of this is “because women” is really sad. Maybe try listening to what the woman on the screen is saying before weaponizing a non-gendered issue.

@shahilagh

2 жыл бұрын

@@JunkyardCactus I know you get hurt because of no name comment. but please dont be because the core message isnt this. of course s/he knows alot of men are in such pains too. though s/he talks about misdiagnosis. this is quite far more common for women as they have significantly more autoimmune issues that relate to misdiagnosis. also doctors dismiss especially young women more. none of these statistics though minimise any of your experience! everyone matters. I wanted to explain this from the perspective of the person who wrote. the core problem and message is being ignored and dismissed and gaslighted and misdiagnosed until something more series show up in clear lab results

@JunkyardCactus

2 жыл бұрын

@@shahilagh and the source for this claim? You might very well be correct, but simply saying “it happens more to one group” brings nothing to the discussion as the claim in itself is baseless. Without sources all we can operate on are anecdotal evidence, and mine suggests that the situation is starkly different from what you say it is. At the very least in my country and social group.

@shahilagh

2 жыл бұрын

@@JunkyardCactus yes there are alot of empirical evidence speaking about this. you can look into for example Gabor Mate speaking how society 's challenges pushes women emotions down and those translate into autoimmune issues explaining why AI is huge issue more for women .. but as I said my main concern isnt gender rather how people is used by systems. everyone matters. and you shouldn't also think others are minimizing your experience. I m sure your experience is valid too.

100%, I have numerous chronic health issues including chronic pain and I am always told I don’t look it 🙄 I just hate that ! I have 6 chronic diagnosis

@claudiaaguiar8440

11 ай бұрын

I know, it’s so frustrating 😢

@Its.nice2b_nice

8 ай бұрын

And cuz you don't LOOK IT, means you're faking it🥹 Really?? Wait until it happens to them, then they'll feel it know it +understand it!!.

Same here

Dont have a back fusion whatever you do.

@Deee1672

2 жыл бұрын

I got a spinal fusion almost two years ago. I’m 19 and I’ve been in pain ever since for every second. Away from the severe scoliosis pain.

@tetricko

2 жыл бұрын

I have herniated discs in my neck and im scared of doing surgery but the pain is too much

@Deee1672

2 жыл бұрын

@@tetricko Do what’s best for you! Watch KZread videos of people’s experiences. I’d suggest you do it if doctors have told you it’s necessary.

@Deee1672

2 жыл бұрын

@@tetricko I had no choice but to do the spinal fusion because my curve was at 75° and it could’ve caused me far more worse issues, but I miss it before. I’m one of the unlucky ones with chronic pain. It’s exhausting.

@tetricko

2 жыл бұрын

@@Deee1672 one dr opted for surgery but other opinions told me to wait and the pain will subside

Instead of using 1 my main constant level is 6.5 and then I go from there. That seems to help them understand.

She has a point about the scale used to read pain, "0-10" pain scale. Deceptive and not a good indicator of pain for those in chronic pain.

true

i have this too its horrible

I have so much shoulder and head pain , it's been 12 months now and my doctors are yet to actually diagnose me. I'm struggling to keep going it's too much , I very quickly became an alcoholic {yes it's not the solution} but I feel so let down by my healthcare system.

I HATE the 1 to 10 question! It's asinine. Beautifully, eloquently sateted why. Doctors take note, please. Thank you.

This is 100 percent me .so where's part two .what do we do .I'm ready to give up trying .

@chizobauchay2024

9 ай бұрын

Same here,is suicide all we have, i am confused.

I guess the world is more conscious of it today as opposed to when I was young during the 50's, 60's & 70's, if you didn't know anybody personally with it, then you didn't think it was so pervasive, as health issues are today with the advent that the social media giant is today

i’m 21 got a back injury and my life is essentially ruined

I'm praying for you.

@jasondean88888

2 жыл бұрын

I'm sure yours will be the difference. God is letting her suffer for years but along comes a prayer from Spirit Arca and god says "Hold every thing, did anyone else know about this woman in pain? Why wasnt I told about this sooner? I've got to do something right away."

@Vasily_dont_be_silly

2 жыл бұрын

@@jasondean88888 Don't be so sarcastic, I know a prayer is not gonna do any real help, but people acknowledging existence of chronic pain and feeling sorry for people with it is better than vice versa

@jasondean88888

2 жыл бұрын

@Vasilii Che As someone who has been in chronic pain since puberty and the following +30 years, I don't want people feeling sorry for me or trying to offer sympathies with platitudes that amount to nothing. People you know may think prayers dont do anything, in my neck of the woods when someone says they are praying for you they actually believe that creating some compressions in air with their vocal cords will lead to a miracle that alleviates suffering through magic. The source of that magic is up for debate depending on who you talk to, but I have never met someone who uses 'I'm praying for you ' and is not religious. It's harmful for society to allow adults like this to be taken seriously. 44% of Americans believe jesus will desend from heaven in a 2nd coming and bring them directly up to heaven WITHIN THEIR LIFE TIME. How do these 44% vote on matters that are generational problems? Safe to wager they lean a bit more towards "why try, the world is gunna end before we fix it anyway". So, no. Just no. I call this bull shit out at every instance. False hope is still false. I would rather be unhappy and be able to act on correct information, than live in a blissful ignorance while I harm others through a misunderstanding of reality, and I want a world where other people are not making societal choices based on scary fairie tales. Take the X number of minutes people spend in prayer and direct it towards actual actions in the real world. Take the money donated to churches and do the same thing. Last I heard the mormon church alone is sitting on 100 billion dollars or so.

@Vasily_dont_be_silly

2 жыл бұрын

@@jasondean88888 @jasondean88888 Well I'm neither American nor religious, so I can't argue really. But I'm saying attitude is important. Maybe you don't have hope, but you should have dignity to grit your teeth and go through this life at your best despite the hardship you're experiencing. That's what I'm trying to do as well with my constant back pain. It's just, negativity only creates negativity. You know, get busy living or get busy dying. There's millions of people who suffer from similar health issues but keep pushing on, that's somewhat encouraging. We're not alone in this

@jasondean88888

2 жыл бұрын

@Vasilii Che Growing up in America as a child who heard about religion and instantly thought it was another of my mom's ways of teasing me...and then finding out that she WASN'T kidding...and then finding out that roughly 90% of my fellow citizens cosigned on this idea to some degree...it has felt like growing up in an insane asylum where the inmates have the keys. We have multiple states where they pass laws forcing creationism be given equal time in education with evolution. School boards that put stickers on biology books with a "disclaimer" the evolution is just a theory and not to be taken seriously. And that's just the tip of the iceberg. If you were to run a poll asking people: "Will god protect us from a russian nuclear strike?" well over 50% of my citizens would say "Yes". We have preachers with millions of followers who tell their believers things like "Hurrican Katrina was punishment from god for the sinful lifestyle of New Orleans." and these preachers are CHEERED for "telling it like it is". Personally, I actually do enjoy life. I built a home business that only requires 2 hours a day of my time, I garden, I go to college classes for fun (and credit) and the way I have choosen to try and make the world a little better than I found it is to demand a higher bar for public discourse. I appreciate that you are very likely a good person and don't see the harm in someone trying to show sympathy with another person through statements like 'I'll pray for you'...but that is kind of exactly my point. If I regularly and sincerely went around telling people who were suffering something like: "I will include you in my letter to Santa this year. I'm sure he will bring you the things you need to help alleviate your suffering. I'll specifically ask for chemotherapy products and a dialysis machine so that there's no mistake." if I did this as a regular part of my personality society at large would punish me in a variety of ways. For example, I would like get passed over for promotions at work due to people questioning my critical thinking skills. Friends and family would likely spend less time with me and want less to be associated with me and any of my ideas perhaps. But if someone says essentially the same idea but frames it around Islam, Jewish, or Christian ideas it is totally acceptable, maybe even looked at as a virtue, and almost certainly most people would say "whats the harm, they are just trying to show sympathy". I dont particularly care what a person believes in the privacy of their home. I would really prefer that they use some kind of basic logic to decide if their beliefs are worth holding but only because I want them to have that frame work of logic to work with when they need to vote in the people workong on addressing other larger problems that require cooperation of the community to solve. With the way our national government is set up it literally only takes about 12% of the population to road block any legislation. Of our 100 senators 35 of them represent states that combine for less than 25% of the nations population. You can win those 35 seats with 12.5% of the nations population and it takes 67 senators (a super majority) to over ride a fillabuster. Most of these small states are EXTRMELY religious, and they have been road blocking legislation on climate change, hate crimes, education and more for my entire life. They are easy for the politicians to manipulate because they have sub par critical thinking skills (they aren't "stupid" they just literally don't know how to question authority). So....when I see a statement that has roots in what I consider to be faulty thinking, and this statement is made in a public venue, I'm going to point it out. Normally I'm a bit more polite than I was here...you're absolutely correct on that. But normally there isn't a way to ask in a way that is seen as friendly something like "And why do you think your prayer is going to have any impact. How do you think the mechanism for this process works? Who taught you that this is a real thing, and why do you think they are any authority to be making that claim?" Especially in America, being critical of someone's religious beliefs, in any way, has been considered extremely rude....which is why they have gotten away with things like disclaimers on science text books. How many children decided not to go into biology because of actions like that? How many great scientists and potential discoveries have we lost because of their fear of having their faith and beliefs questioned? How many kids would have become astrophysicist if they hadn't heard that god made the entire universe and science was just a bunch of made up shit that no one can prove. During covid there were many churches that refused to stop services. People being interviewed as they left services were asked "Aren't you worried about getting a loved one sick after being in a closed room with hundreds of people who are singing and hugging?" Their answer? "Not at all, I'm bathed in the blood of jesus and he will protect me. If you get sick from covid then your faith isnt strong enough." It's fucking insanity and it harms the community. I won't put up with a bit of it.

People who do not suffer in pain are so unrealistic about pain. Take a hammer and smash your foot,….then take that hammer and smash that foot repeatedly. Does that HURT you??? Now imagine that same terrible frickin hurting pain just NOT STOPPING….EVER !!! Multiply that to a much larger area than just the smashed foot and feel that same hammer smashing in your back, your rear end and hips, your legs, ankles and feet…same hammer smashing PAIN never ever stopping….it’s permanently going to keep on hurting so badly that all you can do is hold your foot and cry out….. Think you could live with that same hurting FOREVER…and EVER??? How about working? Can you do anything with your foot just killing you every minute of every hour both day and night??? How in the world are you going to LIVE with that pain never ever going away? Can’t drive a car with your foot hurting so badly from the hammer smashing it…how will you get groceries or take care of a family if your always holding your foot because it is hurting so badly…. How can people not understand PAIN..?? We all hate pain. We all want whatever is HURTING US TO STOP IMMEDIATELY and be gone……BUT,..for some of us with different injuries and illnesses that are PAIN related…..it does not stop. It doesn’t go away. It’s here to STAY……who wouldn’t cry out for HELP to stop the constant HURTING….. I mean,…how can people NOT UNDERSTAND “physical HURTING” at every level…? What if someone told you that the terrible skull cracking toothache you have was never ever going away and you’re just going to have to live with it…..how are you going to do that? Just one or two days of it killing you,..and you’re ready to have it yanked OUT to get RID OF THE PAIN….. if it isn’t going away,….how are you going to manage living with that pain every minute of every day….? It would change your life….you suddenly can’t DO anything but hold your crushing pain in your jaw …. 365 days a year….never ceasing. We aren’t meant to LIVE this way….but due to others misusing medications that can knock this kind of pain DOWN so you can get on with living…..we are now treated like criminals because we want our pain to STOP?? This world has become a cruel place.

@shysoulx3

Жыл бұрын

and sadly I couldnt find any way to stop it yet, i hate these people who are trying to keeping me alive with all that chronic diseases

When a person does not go out and do anything that last very long , then they have pain. It’s the ones that go out and party , you can not believe!

None of us ask for this. Remember that.

Pain is "pressure" produced by excess of heat. HEAT causes dilatation of cells and consequent pressure. The head is a solid block that cannot expand much, so the pain implodes and becomes unbearable.

@tanisha1804

Жыл бұрын

Can you elaborate plz?

I need help in the absolute worst way with severe neck and head pain and I cant get help.

It is irresponsible of doctors to say you don't look sick. They should be struck off the register to practice medicine. At least run some test to ascertain the patient's claim.

Totally the 1-10 scale doesnt always apply

Persistent pain worsens with time. Howd they go from a 8 to a 5 ?

@renatabuzzarello6135

Жыл бұрын

maybe because with time she adapted to the pain a little bit, she is learning to deal with it in a better way now

@chizobauchay2024

9 ай бұрын

My thoughts exactly.

they should teach doctors to not look at you like youre crazy when you tell them youre in pain, this lady is repeating my thoughts word for word. its so infuriating to have a doctor not believe you because you cant show them physical proof you are in pain.

@chizobauchay2024

9 ай бұрын

So true, we feel so hopeless and helpless don't we,it sucks

Testosterone is HEAT. Heat produces pain. Acidic testosterone produces 3x more heat

@jasondean88888

2 жыл бұрын

What the hell are you on about? Coming from a physics backround, I can assure you that testosterone is not heat.

@tiagociriaco7380

2 жыл бұрын

@@jasondean88888 my background is chemistry. Do more research, please....