I feel like it's such a hard spoonie lesson to learn that doing what you can do is better than waiting for the magical day we feel good enough to do it perfectly! Take all the time you need - I can't imagine managing everything you! I'm also not a shorts/TikTok fan 😵

@Aimee_Esther

Жыл бұрын

So true!

So glad you posted again! 1. I can sense the exhaustion and I totally get it. I only have one child and I’m spent! 2. You don’t talk too much and I’m sorry someone made you feel bad for just being yourself! Expressive and communicative are great things to be. 3. I’m surprised you hate Tik Tok! It’s so addicting.

Your videos are amazing and also your podcasts! Being relaxed shows how your like is with chronic pain, so I think it will be brilliant, you shouldn’t be made to feel like that, you don’t talk to much! I repeat myself and brain fog is really bad, this is our life! Your doing amazing ❤️

@Aimee_Esther

Жыл бұрын

Oh thank you! :D

brain foggy is good, it shows what it's actually like to be you, to be like me... edit/addition: I agree with you that it can be very lonely being ill and a mom.. with such limited spoons there are rarely any left for socializing or doing anything that is just for us (above and beyond surviving!) Love, light and spoons to you and anyone out there who needs them!

Love the chatty vibe! I am like that too, "blabby" as my family says😂. Listening to this episode felt like having a cozy visit with someone who really understands what it's like to live with chronic illness, and it's super supportive to know we're not alone! Brain fog and all!! 😍. I've been struggling with concentrating and with brain fog the last while, probably because of added stress with my Oma (grandma) in the hospital. Her cancer came back (Lymphoma) and there isn't anything they can do for her, so it's really sad for the whole family. Hard to see her suffer and to have to say goodbye. 😢. On a more positive note, after a rough February, my health is really quite good lately!! I'm so grateful to be able to do more😊.

Continued prayers for you and your family.

@Aimee_Esther

Жыл бұрын

Thank yoouuuu

I loved this - felt like hanging out with a friend who *gets it* !

I tore my hamstring last week Monday slipping into the splits while cleaning my bathroom. I go to the Orthopedic Dr next Tuesday. Could use prayers too. TIA

@Aimee_Esther

Жыл бұрын

Oh no! Sending prayers

So odd this is the first video you tube has recommended to me since “flare day”…. 2 months ago. 🧐

@Aimee_Esther

Жыл бұрын

So weird! ... maybe try turning on notifications??

Hi Aimee, I noticed that your hat says “Flare Day”. You recorded this video 1 day before the full moon. I don’t know if you ever covered the topic, some people with chronic ill heath have worse symptoms fatigue, brain fog, insomnia/hypersomnia, inflammation, etc the day before or after a full moon and sometimes also the new moon. The Sun-Earth-Moon system of magnetospheres stretches at the long axis and compresses around the Earth in a collar shape which creates a magnetic bottle and traps ions emitted from the Sun causing a concentration of them around the Earth. Positive ions seem to have a bad effect on the health of people. People seem to like being near waterfalls, water fountains, river rapids, and ocean waves; all of those generate negative ions and contribute to feeling relaxed, at ease, etc. Cheers.

@Aimee_Esther

Жыл бұрын

Hmmm... i have never noticed... But I'll start paying attention. thanks for the tip!

@decodr-ring

Жыл бұрын

@@Aimee_Esther FYI, There is an eclipse of the Sun by the New Moon happening at 9:36pm EDT on 4/19/2023, which is the same time of this post. You might ask yourself, how have you felt today compared to the weekend?

I don't think being sick is cool at all all. It has stolen so much, not to mention from hubs and kids , but I will say I have made the very most of it plus some. I am 47-symptoms started showing themselves 14 years ago but drastically changed my life 7 years ago. I've adjusted, I pace, I reinvented, found tools, a great doc.... I have quality of life, but not one day will I ever think this is cool. It's just not, but that doesn't mean I won't be the best version of me this way.... irregardless chronic SICK stinks. Fact. But I still love you whatever you name this, but as you and your kids age... as an older mom here, I think your perspective may change.

Not everyone wants kids. Every bad thing that'll ever happen to them is your fault. Think of that the next time you look at your baby

@Kadin73

Жыл бұрын

What is wrong with you?

@Melnokina.-.

Жыл бұрын

@@Kadin73 I'm not the one who's kids gonna die lmao

@Kadin73

Жыл бұрын

@@Melnokina.-. her kids won't die. If anything, you should fear for her safety, not berate her. Who raised you?!