Thank you for this video! More people need to be aware of this birth defect. My son is now 9 years old and thriving. However, he was misdiagnosed until he was 16 months old. He was finally correctly diagnosed with moderate/severe Laryngomalacia and a Laryngeal Cleft. After a swallow study, it was very obvious that my son was aspirating. He also suffered with severe GERD from birth. He was unable to breastfeed well and I had to switch to formula after a week of desperately trying to breastfeed my son. He vomited ALL the time but wasn't ever in the 'failure to thrive' world. He was 7lbs 5oz at birth and 18lbs at his 3 month checkup. Lol! At 23 months, my sweet boy had a Supraglottoplasty and gel foam injections at Children's Mercy Hospital in Kansas City, Missouri. I'm so grateful to those who listened to me and saved my sons life!

I'm now in pediatric laryngology team, dealing with lots of children with laryngomalacia. Cutting the aryepiglottic folds, the surgical management you mentioned, is actually not a good way to deal with it. Usually it heals back and symptoms recurred. We now preferred CO2 laser, so called laser laryngoplasty, to remove redundant soft tissue around larynx or to make epiglottis harder.

@mohammadashkanmoslehi410

7 жыл бұрын

鄭乃銘 his when the AE fold is tight it cutting can be effective

@DrDaniloTeranENT

6 жыл бұрын

Where do you work? Can I visit your ENT service/Department?

@meganlynn83

5 жыл бұрын

My son is now 9 years old and thriving. However, he was misdiagnosed until he was 16 months old. He was finally correctly diagnosed with moderate/severe Laryngomalacia and a Laryngeal Cleft. After a swallow study, it was very obvious that my son was aspirating. He also suffered with severe GERD from birth. He was unable to breastfeed well and I had to switch to formula after a week of desperately trying to breastfeed my son. He vomited ALL the time but wasn't ever in the 'failure to thrive' world. He was 7lbs 5oz at birth and 18lbs at his 3 month checkup. Lol! At 23 months, my sweet boy had a Supraglottoplasty and gel foam injections at Children's Mercy Hospital in Kansas City, Missouri. I'm so grateful to those who listened to me and in the process, they saved my sons life!

@Myluxury1stHair

5 жыл бұрын

My son just got the Supraglottoplasty yesterday; I had to suggest it to the ENT. The ENT did not suggest it or even say anything about the CO2 laser.

@alexismontgomery364

2 жыл бұрын

@@meganlynn83 omg my daughter was diagnosed with a Laryngeal cleft type 1 last month and she had the surgery 2 weeks ago for it. She also has Laryngomalacia mild as well as long with dysphagia and moderate persistent asthma it’s been a tough ride . They never diagnosed her because she was always a chunky little she is 2 and 40lbs and so they differ think That was the issue. We had a swallow test study and it showed she was aspirating as well we are 2 weeks post opp from her cleft repair and currently waiting to see if the surgery corrected the issue but won’t know till another swallow test study.

That's very helpful 🔝

very nicely explained thanks

Thank you for this thorough breakdown. This has been hard to find. Grazzi

I believe my son has Laryngomalacia. He hasn't been diagnosed as of now but he presented with a failure to thrive due to slow feeding, large epiglottis, floppy airway, omega shaped epiglottis, and a rattling sound after feedings. Also breathe holding spells. Just got Supraglottoplasty. Going to see how that helps after he heals. Currently intubated for 8 weeks He is 4 months old.

@vijayanthikalyannampally883

2 жыл бұрын

How is he now

excellent

thanks

My son was born with this. And we were told that it would go away at age 4. He is almost 13 now and you can still hear the purring, for lack of better term, when he breaths hard. Curious if we should have this looked at again. No one says anything at his regular checkups so never questioned it.

Any treatment?

My nice have it what can I do for her because she is only 3 months old and father family has it

My 1 month old baby boy has a mild laryngnomalacia .. Doctor said it will go automatically by 6 month.. Is it really true.. Or it can take more time to recover... Is it really to worry?

@mahmudasharmin7748

2 жыл бұрын

Is ur baby's problem gone?my baby's also same problem.

@Brr195

2 жыл бұрын

How is baby now same with my baby is it cured by its own please reply we r worrying alot😭

@mahmudasharmin7748

2 жыл бұрын

@@Brr195 my baby still suffer by laryngomalacia

@Brr195

2 жыл бұрын

@@mahmudasharmin7748 what's the age of ur baby, and what are the symptoms baby is having please reply

@soniyakjose1244

2 жыл бұрын

@@Brr195 my baby 5 mnth, he also has

Please hepl my Daughter Angel Aniban 9 years old . She have Laryngomalacia. I' m from Philippines. She suffer of hard breathing since birth please help us. I have Video how she hard breathing.

@mohammadashkanmoslehi410

7 жыл бұрын

shasha cordova it's very rare that malachi come to 9 year old so your child must be underwent of larygoscopy to have a clear diagnosis and the spacial treatment

@adrienneaquino6965

6 жыл бұрын

shasha cordova meeting dinner ganito baby ko:( delikado po ba ito

@adrienneaquino6965

6 жыл бұрын

Mohammad Ashkan Moslehi my 3yo son have this please help :( what i need to do :( im so worried about him

@adrienneaquino6965

6 жыл бұрын

shasha cordova sis parehas tau ng case pwede malaman contact # mo para makapag usap tau :(

@cristybelle

Жыл бұрын

@@adrienneaquino6965 hello sis ok naba baby mo?