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Journey to Diagnosis - Episode 5: Susan's Journey to a Diagnosis of Hashimoto's Encephalopathy
Susan Foley, HESA co-founder/Executive Director and HE patient, and Maddy Boehme, HESA Vice President, sit down to talk about the challenges that surround the diagnosis of Hashimoto's Encephalopathy, a form of Autoimmune Encephalitis.
This is Episode 5 in the Journey to Diagnosis Series: Diagnostic Stories and Struggles From Autoimmune Encephalitis Patients.
Listen to this episode as a podcast: www.buzzsprout...
To learn more about Hashimoto's Encephalopathy, Autoimmune Encephalitis, and HESA visit www.hesaonline.info
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I have just been diagnosed with HE Hashimodos Encephalopathy, I was misdiagnosed with fibromyalgia , I was referred to neurology clinic at hospital and had loads of tests and was diagnosed in about 3 months and I am going into hospital for a week for treatment by a drip , I deteriorated fast where I couldn't walk or even wash my own hair , so many really bad symptoms, I have really bad tremors and seizures and like stroke symptoms, wetting myself and not being able to think or remember things , breathing problems and terrible headaches wuth blured vision . It's been a terrible experience and very frightening at times
Forgot to put this is on my husbands email and that I'm 52 years old and I'm here in the UK