Journey to Diagnosis - Episode 4: Nicola's Journey to a Diagnosis of Hashimoto's Encephalopathy

Susan Foley, HESA Executive Director, and Nicola Nelson, HE patient and co-founder of HESA, sit down to talk about the challenges that surround the diagnosis of Hashimoto's Encephalopathy, a form of Autoimmune Encephalitis.
This is Episode 4 in the Journey to Diagnosis Series: Diagnostic Stories and Struggles From Autoimmune Encephalitis Patients.
Listen to this episode as a podcast: www.buzzsprout.com/1923931
To learn more about Hashimoto's Encephalopathy, Autoimmune Encephalitis, and HESA visit www.hesaonline.info

Пікірлер: 8

  • @notsogreen
    @notsogreen Жыл бұрын

    Very descriptive and informative with the appropriate questions asked. Thanks to both of you. Awareness is so important.

  • @garyking5265
    @garyking52658 ай бұрын

    I am bernadette King, I live in the UK, I came across your video, thank you so much both of you , I have been diagnosed with Hashimodos Encephalopathy last week. I can relate to your symptoms and I felt so alone, I too was trying to pray but got so distracted and could not focus and forgot what I had read in my bible, I started reading the chapter from the end to the start and not really understanding why I am doing it .your video has helped me so much because my symptoms that I had years ago are starting to make sense now , I too had stroke like symptoms on 3 separate occasions and went to the hospital, the doctors did tests and said that I did not have a stroke and just sent me home . I am feeling a loss of the person that I used to be , I keep going back to my childhood maybe too much .my husband was listening to your video and he said the things you shared he saw in me . This has helped me , knowing others are going through this as well and I don't feel alone thank you so much for what you are doing and for sharing this video God bless you both Bernie and Gary from the UK

  • @garyking5265
    @garyking52657 ай бұрын

    Im so greatful for you both because i thought i was loosing my mind and felt so alone but i know im not alone and i know i am poorly and do have HE and its not all in my mind like some doctors think .thank you for sharing ❤️

  • @garyking5265
    @garyking52658 ай бұрын

    I also have really bad tremors and jerking movements, memory problems, can't walk or lift my legs up , have trouble washing my hair and getting in and out of the shower, struggling on stairs , wet myself regularly, headaches, stroke like symptoms, troubles eating and talking etc the list is so long , I can't sleep, terrible nightmares but now I know I'm not alone in this and I'm going into hospital for a week soon for treatment on a drip

  • @garyking5265
    @garyking52657 ай бұрын

    So encouraging to know that we will get better in time .i have trouble reading,i read my bible too but i cant tell you what i have read , have done that reading from back of the book to the front and the doctor said that it was really strange and he asked me why i did that , and i said i have no idea and he just said very strange, so the doctor has no idea either 😂 i also cant follow tv programs , ones i have watched all my life like the little house on the prairie, i have watched them a hundred times but still cant remember what happened and what is going to happen when it comes to the same episode. From Bernie in the uk

  • @garyking5265
    @garyking52657 ай бұрын

    I also had to ask the nurse several times to repeat what sandwiches they had for tea and other things but the doctors think its just all psychological and i have to try harder and stop buzzing for the nurse because i can do things for myself, but at times i really couldn't, this just really made me upset 😢

  • @garyking5265
    @garyking52657 ай бұрын

    Hi ive been having stroke like episodes in hospital it was awful and could not feed myself, could not talk , dripping out of my mouth , i made noises and i couldn't remember either short memory, i couldnt poor a jug of water and kept missing my cup and pouring water everywhere and couldn't think and had terrible terromors and couldn't move my legs and arms on my right side and numb etc , some nurses were nit very nice , they refused to help me to feed myself and get me to the toilet and shower room , i couldn't even was my own hair and shower myself and get dressed, i still cant without help .

  • @donnahague8983
    @donnahague89832 жыл бұрын

    How does one get tested for this??? I need to be tested for this…