I am grateful to Dr. Olin for the honesty and integrity of this presentation about these unusual vascular neurological phenomena.

I'm so glad my doctor finally put a name to this medical issue. It has helped me do more research in hopes of a cure or reduction in symptoms

Thank you, Dr olin and fmdsa!

I just had two ct scans with contrast after going in to the ER with fears of a stroke. They said I didn't have one (I am 48) but to go to a neurologist. I had to wait a bit to get the ct scans and he called me back a few hours later to say that it looks like I may have this. I have an MRI scheduled but I couldn't get in until September so I suppose I may be waiting a bit longer to know anything for sure.

Recently diagnosed and getting mixed information on if I can swim.. Is cold water 79 degrees a no? I understand I shouldn’t do free stye