Your video caught my eye because I too have gone through 4 years of testing and was diagnosed with BFS. I was convinced I have MS but could not get a doctor to take me serious. I am going to be 60 this year and am a barber of 32 years. My main twitching happens in both calves and right forearm with both lead to severe cramping in legs, feet and hands. A cramp in my forearm leads to locked fingers usually when I am holding something in my hands. It is so excruciating and interferes with my job profoundly. I too get in a very dark place when my symptoms overrule my life. Thank you for your video and I hope you will keep posting.

The likelihood of getting als in one's lifetime is a one in three hundred chance. Cases are also rising. I was diagnosed two months ago at the age of fourty. My first symptoms were body wide twitching. I would also like to add that I'm glad you've been given the all clear. I wish you a long and happy life

@DanielleXox-jw1xo

Ай бұрын

How did you find out and how long did you have twitching please

@rajkumarroderick7477

Ай бұрын

Was your twitching 24/7

@DanielleXox-jw1xo

Ай бұрын

@@rajkumarroderick7477 no

@DanielleXox-jw1xo

Ай бұрын

@@rajkumarroderick7477 on and off

Thank you for sharing this. My hypochondria creeps up about once a year. It’s crippling. I think lockdowns and all that crap really jacked people up more than we consciously know…God Bless you and all the other one’s struggling with anxiety. Don’t let tomorrow’s worries rob you of the blessings of today🙏🏼

Thanks so much for this! Going through something very similar now. Anxiety is a crazy thing isn’t it!

I’m 27 and my story is so similar to you. The way my twitching started right above my knee, to the calf’s to starting to think my speech was going bad, going to doctors telling me everything is fine. Been going on for 5 months no muscle weakness or atrophy I’m starting to calm down because almost half a year with no other symptoms other than the occasional/ lingering twitch I would most likely be showing other symptoms by now. I drove myself insane, my wife was amazing through this. I would pace around at night scared I was going to die in the next 2 years and if I even wanted to go through the hardships of the illness. I didn’t sleep for 2-3 months. I would be lying if not some part of my day, ALS doesn’t creep in my mind when a twitch or pop happens, especially when I have the tip of my tongue twitch after I eat or a twitch in my calf that lingers for more than just 10-15 second. I went to a horrible dark place that really scared me and my loved ones. Thank you for sharing your story. Stay strong

@redpillrevolution6066

2 жыл бұрын

Im glad you are relaxing. The anxiety can be overwhelming. Funny, but I used to just get up and walk at all hours of the night since I couldnt sleep. The whole experience taught me to be more understanding because people really do get ALS and it is a horrible disease. Your twitching all over is a typical of BFS sufferers and it usually starts in the calves. Youre good friend. Stay strong as well...

@johnyoung9699

2 жыл бұрын

@@redpillrevolution6066 yeah it was crazy I would see I walked 30/40 thousand steps in a day/night that only made the twitching worse it was a bad cycle. I still get that lingering twitch in my calves or thigh at night and it’s hard to ignore and get sleep but most night are good.

@johnyoung9699

Жыл бұрын

@Ansh Bawa been almost a year and still doing well, still twitching here and there but still riding my bike, playing softball, and working out. Just taking life one step at a time. Thanks for asking man

@jayg-lg2ot

7 ай бұрын

It blows my mind people worry about als don't have the number one thing that involves ALS .....weakness !!!!!! I actually have als so I see people worry about nothing and I wish to God I didint have it. Weakness is the only thing to worry about .nothing else . No weakness then you DONT HAVE ALS

thanks so much for this, I am an older man so right in ALS territory as were you being in the army and being physically fit. I too had the same experience with constant twitching in my calves, that then moved everywhere. Still no weakness but muscle pain, cramps etc etc. Still going through testing etc.

@redpillrevolution6066

2 жыл бұрын

I hear you. I also had patches of numbness in my arms and legs. Like a small area would just go numb. ALS is non- sensory. There is no pain. All your symptoms point to BFS. Pain associated with ALS happens after weakness and muscle atrophy due to cramping. I hope you can relax cuz anxiety will destroy you. Its gonna be Ok my friend...

Wow, this video pretty much sums up my life recently. I've just been diagnosed with BFS after having twitches in my calves for the last 18 months. I lost one of my best mates due to ALS 6 years ago, so when my twitching got worse a month or so or go I was terrified to see a doctor in case they confirmed my worst fears. The last 2 weeks have been been the worst of my life, waiting for test results, seeing a neurologist, etc. Of course the anxiety made the twitches explode in intensity, not to mention my inability to avoid searching Google about muscle twitches non stop. Thankfully after blood tests, MRI, NCS and EMG I was given the all clear and it is like a weight has been lifted. Watching videos like yours and hearing your story gives great comfort. Thanks and take care. EDIT: Forgot to mention, Tool is my favourite band too, was lucky to see them live in Melbourne in early 2020 before COVID really kicked off.

@redpillrevolution6066

2 жыл бұрын

So happy for you!! That weight can really drag you down and the anxiety is the worst. Thanks for sharing! Hopefully we wont be waiting ten years for another Tool album...lol...

@spaceoddity54

4 ай бұрын

How are you doing now? I’ve been twitching for about three months now and my calves and feet twitch 24/7. I’ve had no loss of strength though. Been going out of my mind. Are you still twitching?

Thank you :) You've helped me. I had a sleepless night last night over this (usually I sleep like a log). Your message here has made me feel a lot better - especially the stuff about how we can 'give' ourselves symptoms. The weight thing helped too - I've actually put on a little recently, which I usually don't like; now I am very pleased :) Anyway, I'm going to check out Tool now to help me out of the rabbit hole. Thanks again :)

I had the same vibrating sensation started on my feet, then on my legs then my arms. I went thru the same path, went to GP, Neuro and had MRIs, emg and neuro tests. everything came back ok. my neurologist also told me im okay nothing wrong with me. I was give anxiety meds and things started to go back to normal. This also happened during covid. I still have some muscle twitching here and there but nothing that's bothersome. Glad I found your video. Its been 3 years since this happened to me

and I did the same as you searched on google. I find myself in your story in every word. thanks for the video

@redpillrevolution6066

2 жыл бұрын

Im so glad it helped!!

It’s scary being mortal, I’ve got a bump on my arm I’m freaking out over, I have anxiety issues too. Which doesn’t help

Man.. I'm 23yrs old. I started having panic attacks randomly about 5 months ago. I first feared heart problems... Then GI issues started. And the anxiety levels remained constant (never had this problem before). The weight loss started and all kinds of things. Been tested like crazy and everything has come back totally normal. My father passed away at the age of 47. I had just turned 17. He passed of ALS. Something that had never been in our family. Lately now, the weakness feeling set in and muscle twitching all over...mostly in my calves. You're right... Going down the Dr. Google road is always a terrible idea. Health anxiety can set in so easily and it only makes things worse. I have yet to go through tests specifically for ALS or MS but I'm fighting through every day.

@redpillrevolution6066

2 жыл бұрын

Anxiety will reek havoc on your body and i meant what I said in that your body will begin to manifest what you think. You will read symptoms and then start developing them. Its crazy!! I was thoroughly convinced that I had ALS. Muscle twitching for BFS almost always starts off in the calves, but im pretty sure your stuff is anxiety related. Also, of you are not sleeping that can do awful things to your body as well. Anyways, hope all is well. Let me know how things go. Godspeed!!

My husband started with problems in his right hand fingers. We thought he had a Mini stroke. We went through lots of dr appts and testing. First we were told he has early onset ALS now they are saying PLS. With the diagnosis of PLS he does not qualify for any ALS trails. I so wish he didn’t have this. His seems to be bulbar. I have tried over and over to get them to test him for anything else that it could be. I am happy for you and your wife that yours is not. God bless you.

interesting. my twitching started in August/Sept 2019. But mine started in my tricep muscle and then spread everywhere. I really though i was developing ALS. But after two neurologists I was diagnosed with BFS. I still twitch to this day.

I dont want to give out false info but i think one of the key symptomps of ALS is massive weakness like you cant lift 10lbs...so if you can still go to the gym ,work and do your daily tasks..you are fine probably

Thanks dude I really needed this I’m playing basketball right now and I’m fine

Thanks for doing this. I get muscle twitching everywhere and it scares the hell out of me. I spend hours searching ALS. I have a negative MRI and EMG/ Nerve conduction study, but still get scared every time I have a twitch.

@spaceoddity54

4 ай бұрын

How are you getting in now?

This made me cry. I have been twitching for 3 months and I’ve become obsessed with ALS and developing all kinds of new symptoms. I have suffered sever health anxiety for 20 years so I’m hoping that’s all I’m dealing with. Thanks for sharing.

@redpillrevolution6066

Жыл бұрын

You dont have ALS but you can convince yourself you do. The added anxiety will cause so many problems physical and mental. It will dang near drive you insane. Stay strong friend, its gonna bo OK...prayers your way...

@spaceoddity54

4 ай бұрын

How are you doing now one year later? I’m going through the same thing you were about three months.

@DanielleXox-jw1xo

Ай бұрын

I'm the same 9 months of twitching different parts of my body.. sever health anxiety for 11 years and I never ever had these symptoms never mind 9 months. My doctor not a neurologist done a neurological exam 8 months ago and said absolutely fine and he thinks it's Benin but can't say for sure

@spaceoddity54

Ай бұрын

@@DanielleXox-jw1xo chances are if you have had it for 9 months it’s almost certainly benign.

Im going through this right now its so hard to deal with. It all started with twitching in my left calf (maybe my restless leg syndrome had a part to play) then it hops to my right calf then shoulders then chest. Then it goes numb 3 days ago and i cant feel my muscles on my left side and now i feel little pains. Idk what it is but hopefully its just anxiety als is way too scary. I only get 2 hours of sleep a day. Thank you for this video. Ill never look at google again.

@redpillrevolution6066

3 жыл бұрын

You have classic BFS symptoms. ALS is non-sensory, meaning there is no feelings associated with it. Also, i forgot to mention that I get patches of numbness as well. Ive had that in my arms and legs. Numbness is a common symptom of BFS. I would almost guarantee your lack of sleep and anxiety is playing a role in this. And in almost all ALS cases muscle twitching occurs AFTER muscles begin to weaken. Youre good friend. Too much google will mess with your brain big time. I know its hard but try and relax. Crazy what over thinking can actually do...

@JJ-qm8xg

3 жыл бұрын

@@redpillrevolution6066 Thank you.

@jayg-lg2ot

7 ай бұрын

​@@JJ-qm8xgnot with me .I was still working out and strong when my twitching started .then the weakness started in my shoulder first then arm then leg now my left hand .

@jayg-lg2ot

7 ай бұрын

​@@redpillrevolution6066ALS is diff for everyone but for me I got it cuz I have bad ddd and multiple bulging disks

Thank you, how are you feeling today ?

Thanks for the video. I have been suffering of severe anxiety and panic attatcks since i discover that twitching is an ALS symtom and I also lost 2 kg in 2 weeks. I saw a doctor and he said everything looks fine, but still need to do the blood test and the EMG. Hast somebody lost weight as well? I dont know if this is due to anxiety or if i do have soemthing

@redpillrevolution6066

Жыл бұрын

Twitching can explode with anxiety. Crazy, but the more you freak out about ALS, the more you have symptoms of ALS. Doesn't matter your symptoms, if you have no noticeable weakness, you dont have ALS. I literally thought I had ALS but my symptoms were ALL due to anxiety. Youre good man...

I went through this aswell, spent 6 weeks freaking out with symptoms getting worse and throat going bad, I never did have a test or see doctor and too this day over 1 and half years later in still twitching but I managed to calm myself down and understand I'm OK. For anyone with anxiety it will make you worse I used cbd to help me and it was a god send at that point

@jayg-lg2ot

7 ай бұрын

No weakness then it's jack shit .

Thank you

I’ve been like this since 2019 I saw a neurologist and he said it’s not MND/ALS in January 2020, now my anxiety has kicked off again and I’m believing I have MND/ALS all over again it’s scary, my symptoms are swallowing twitches and I keep convincing myself I’m slurring my words but other workers and my fiancée have told me I’m not slurring my words, such a horrible horrible horrible vicious cycle, just hope I can get better ASAP

@redpillrevolution6066

2 жыл бұрын

Your mind is powerful and will manifest what you think. I used to give myself reflex tests, constantly check my tongue. I drove myself half crazy with lack of sleep. If your tests are good, then youre good, and with such a span of time without weakness then you dont have MND. I know what youre feeling but try and relax. Youre good!!

Thank you i am going through this right now!!! Also did emg and ncs and i dont believe that it can be normal. I hate this its ruining my life!!!!

@redpillrevolution6066

2 жыл бұрын

Did you get the results?? If its normal...its normal. Trust the tests. They are clinical. The whole "what if" scenario will send you into a tailspin. Im sorry you are going through this but im telling you anxiety will do crazy things to your body and you will manifest what you dwell on. Please try and relax. I know its hard and I hope my video encouraged you. Please keep me posted!!

Sir thank you for you video. I would like to ask my calfs dont twitch but my other parts randomly like biceps shoulder back of quads etc.... cant it be BFS ? because u saying bfs alwasys start from calves ?

@redpillrevolution6066

Жыл бұрын

Yes, BFS almost always starts in calves and quads. They can happen anywhere. Your twitching sounds like mine. These are classic BFS twitches.

@n3mrut

Жыл бұрын

@@redpillrevolution6066 my twitchs generally one time twitchs and rarely one or two minute like biceps,, it starts 20 seconds and stops for 5 min then starts again.. but this happens very rarely like 2 3 time lifetime ..But almost everday i got one time random.body part twitchs .. specially after i read about als much..

@n3mrut

Жыл бұрын

Does that also normal.sir ?

The thing is I’m only 19 years old And I have got twitches all over my body and it’s unstoppable and it’s been like 5 months now And yesterday I was trying to workout I couldn’t curl 2.5kg and I’ve curled 15kg before And when I try to move any part of my body it vibrates I’m really anxious about having als My question is have you experienced like muscle weakness or it’s just a sign of als

@redpillrevolution6066

2 жыл бұрын

Bro, you dont have ALS...you are 19. You have whats called perceived weakness. Its a mental state you put yourself in when you believe you have something. And your twitches will rev up due to anxiety. For your own peace of mind get an EMG and NCS. If youve been researching ALS you are digging yourself into a worse mental place. ALS is not just the weakness, but lack of balance and coordination, and after five months youd be showing way more than what youre explaining. BFS, which I have, causes everything you described to a T. Youre good young fella....really, get those tests for peace of mind and get that weight off your shoulders!! Let me know how it goes so I can celebrate with you...

@darkest8079

Жыл бұрын

My guy. TRUST ME you don't have ALS. Normally I think the muscle weakness is very obvious. Things like not being able to hold a cup or lit your arm above your head. Anxiety causes you to freak out and overthink everything. It's probably you believing your feeling weaker without proof

@tak5098

4 ай бұрын

same 19 years old 10 months of twitching anxiety of als sky high are you okay?

Do you still twitch RPR? The problem is Im still twitching away after nearly 2 years

@redpillrevolution6066

Жыл бұрын

Still twitching in my calves and other places. I really dont notice but they are visible. Sometimes I get more pronounced twitching on the side ofy upper legs...

@brentpope100

Жыл бұрын

@@redpillrevolution6066 Thanks Sir, that is great actually, because so many people come on and say I had twitches for a week or so, but also people like me and you with constant twitching for a longer time. Mine are mostly constant in calves and some upper leg, then at other times anywhere.

@spaceoddity54

4 ай бұрын

@@redpillrevolution6066do you twitch constantly or just occasionally? My calves and feet and going 24/7.

I have the same symptoms for 7 months

@jayg-lg2ot

7 ай бұрын

Then you should feel great that you don't have it .that's good news

How are you doing now ? I’ve been at this for 8 months and it’s been awful.

@redpillrevolution6066

4 ай бұрын

Good. Mine was an issue of self induced anxiety brought upon by self diagnosing. The mind is powerful. If you think you have something you will manifest symptoms to justify what you believe. Have you gotten any tests??

@_Theone1

4 ай бұрын

@@redpillrevolution6066 I had all my test and scans 5 weeks after symptoms started. Also a emg that was clean. But my symptoms have gotten worse so doing a second opinion in March. Still twitching everyday, log of tongue and throat pain. Can swallow fine. But after talking for a few hours my throat muscles are hurting and my tongue is strained as well. The throat issues have been going on for 5 months. So unfortunately just been trying to improve but haven’t had much luck.

@_Theone1

4 ай бұрын

@@redpillrevolution6066 I got a emg and all the other test and scans 5 weeks into symptoms. Came back clean. But symptoms have gotten worse. Fatigue in my throat. Tongue always gets tired about half way through the day. How long did it take you to recover and do you think it took a neurologist to flat out tell you you are fine before you could move on ?

@_Theone1

4 ай бұрын

@@redpillrevolution6066 how long did it take you to heal ? Did it take a doc to flat out tell you you don’t have to before you could move on ?

@redpillrevolution6066

3 ай бұрын

@_Theone1 basically, after I got the email and nerve conduction study and it came back clean I finally realized how much time I wasted.

My legs and arms twitch all the time but i have neuropathy..

Dude I do have ALS so not sure why I am watching this but I heard you say you like TOOL! Tool is my favorite band I love them and saw them in January in Tacoma and on July 10th i am going to see Puccifer I can't wait

@redpillrevolution6066

Жыл бұрын

Share your story. Id lpve to hear it and probably be an encouragement to others. Hopefully not another decade til a new Tool album!!

@keithhutchins8803

Жыл бұрын

@@redpillrevolution6066 I have a KZread channel under my name.

@redpillrevolution6066

Жыл бұрын

@@keithhutchins8803 awesome shorts. I love the way you demonstrate the various symptoms and effects. Youve got a great attitude and are strong. You got courage bro!!

Bro i will now listen to your vid,i just want to ask can i put some big comment here to describe the strange situation that im in and how it happened,that is connected to Covid 19 and to many neurological symptoms after i trained like 3 gymnastic trainings pretty hard 1 year ago in january while i had covid and what symptoms i have all this time and now,i would be gratefull if you have time to just give me your opinion while i would walk through the periods and simptoms a little bit in detail,But there is pain associated with condition so i hope its nothing progressive of this style which neurologists smiled to me and said,you have nothing just the opstruction of vegetaive neurological sistem,but the story is preety unic and symptoms..cause i dont know nobody who trained infected like 2 ours of adwanced bodyweight stuff..

@skrivenoznanjeumjetnost826

2 жыл бұрын

here it is.... i will try to be short but it wont be so short.I had Covid more than 1 year ago.5 January 2021.Didn't go to doctor at that point at all.Before it i trained very hard for 12,13 years,gymnastics and adwanced body weight stuff. At January 17 ,so 12 days of infection i return to train pretty Hard for 1,5 our or so,cause i didnt felt ill.First training all ok,Second 21 january also,third One 25 january not good.I felt very sharp burning sensation in the middle of the Chest during like push up position but much harder position with straight arms,on the ground,also i trained before that everything that day..I stopped,no headache nothing,but i felt something is not right at all inside.Just to tell that i went to Cardiologist and Neurologists and all kinds of doctors afterwards who said that it is all from Covid which i will now describe to you.And its Immense symptoms to this day.After that Sensation in the chest i came home,few days passes and i saw that whenever i put shoulders down,a lot of burning inside chest like needles.After few days on the right side of the chest up there just near the sternum bone ,Hematoma like it was injury,but Heamatoma inside touching the bone.Ok,i will try to shorten.I stretched to see how that feels and that exploded inside of my chest,painfully.I Just continue Life.I continue to Run for few days cause i cant train upper body.Ok,whenever i come home and im warm i sit near the computer and made some sudden move,i felt 2,3 times some kind of like rupturing feel like when you pull the rope fast,but inside the abdomen and one time in the chest muscle.That period was like exactly 1 year ago 15 february. And than happened something significaly and painfuly.One of these days i warmed my chest on the you know warming aparat,and made sudden move and ...Again right where hematoma exploded Again,Something ruptured inside but not deep insdie just a littble bit insdie of the skin,but its like you pull the rope very fast.And that was very painfully and that place Hurts to this day,and i cand take in my right arm not even 100 grams,All last year.And i hurt that place whenever i made any fast move or try to very unconciously carry something,So this is very big problem still,but it is just a little bit better.So nobody diagnosed what it is ,Is it Nerve injury or Cartillage or What happenedJust next to sternum when rib meets the sternum.Second or third rib.I done Ct scan 2 times,nothing.And then all Hell Started.But i sensed it also small strange weeknesses in the arm and pain....Little Before Martch/Big Burning Pains in the back,Spasms in all muscles that i trained,very strong burning spasms,that lasted almost to september.I swear.I feel it a little bit even Now.Spasms in Lats,Shoulders Upper back,everywhere,Shouting electric pain in chest,but in the muscles Different from the injury i described first.ALl kinds of twiching of muscles through whole body but not in the legs and Head.At all.April.I played guitar and felt tingling and pain in arms,And arm swelled.Right arm again,right side.And weekness and pain burnign in elbow and forarms,very hard pain.Summer i got Neurontin for Pain and go throught that.September Tingling and twitching starts in the legs in the left arm and in the face very slowly. and progressed a little bit,but now is in legs very common and with pain usualy,sometimes no pain,only sensastions,its crazy,but i walk even through stair easily and long...but One injury in Chest in the middle stays,and very little improvement,just a little bit.Neurologist in November said its all from Covid all kinds of symptoms but he didnt fint any like special other desease.For me no anxiety just the truth.Nothing in head.Another symptom i have 2,3 months ago is trembling in extremities,when spasm in shoulders like got lessen just tremebling apearms when i put 3,4 times heands above head,also in knees,wrists,like trembling inside od Tetives or Joints and its weak all of it ,more or less.And in the night of course it happens that whole body is twitching and movements of all kind and pains like anywhere i touch myself ,than like no pain,very strange but again whole body like burning,then suddenly no pain,is it fybromyalgia type of hm, and Last symptoms are Un Wanted movements mostly in hands and sometimes shoulders. or even back and neck,small fast ones..And This is what i Have 1 year and 1 monts from Covid but i Know i Fucked myself training.i can walk ,i have normal energy,no problems breathing or that kinds....just if anybody had opinion,can Covid causes some independent desease or this will slowly recover over time,symptoms are changing and mixesd up and what doctor could hear all of it,very few..but this is my situation now.I coudve done 6 One arm pull ups. Now in right hand i cant grabb 100 grams ,chest will sent electric burning pain very big....Tnx in adwance if anybody would have the time or will to soak this up or any similar experiecne please......Its tough and weird

@redpillrevolution6066

2 жыл бұрын

Absolutely....please do.

@skrivenoznanjeumjetnost826

2 жыл бұрын

@@redpillrevolution6066 tnx mate, i put it up,could it be that its all from covid solely,im suspect that covid can transform to sometning else hmm but the symptoms are changing and mixing up

Sure you don’t mean EDS?

Is twitching the first Symptome of Als

@redpillrevolution6066

Жыл бұрын

Rarely....the first presenting symptom is usually definite weakness. The reason so many twitchers think its ALS is because of Google. Twitching in ALS is due to innervation due to muscle atrophy...

@sabrinam.3576

Жыл бұрын

@@redpillrevolution6066 my twitching begin in November 2017 i am worried

@redpillrevolution6066

Жыл бұрын

@@sabrinam.3576 Dont worry. If it began in 2017 you and it was ALS you would already be there. If you have no weakness it is not ALS. Stress and anxiety can cause even more twitching. Maybe you have a vitamin deficiency. Try magnesium. You do not have ALS...

@sabrinam.3576

Жыл бұрын

@@redpillrevolution6066 yes 2017 my twitching is mostly in my calfs 24/7

@jayg-lg2ot

7 ай бұрын

​@@sabrinam.3576it began in 2017!!!! Omg relax your fine

Covidddd are jabski

Dude it shocks me how your tellijg yourself you have als . Boy oh boy you wouod know it cuz the weakness is something you cant imagine

@redpillrevolution6066

7 ай бұрын

Amazing what looking through Google will cause you to think...