Beyond water and salt the best things that happened to me is 1) understanding that PoTS won't kill me 2) Accepting I'm never going to love being vertical but learning to ignore that 3) As long as my heart rate is being monitored and I increase exercise at a slow steady pace, there really isn't any limit to how far I can go. 4) Stop being afraid. Regardless of what my nervous system is trying to tell me, I'm not really dying.

Also, the issue isn't even getting dizzy when standing up or having the heart race. It's the inability to exercise like regular people, or carry things upstairs, move furniture, and basic physical things normal people can do that are nearly impossible to do without getting dizzy and a heart rate of 180bpm

@neverseenblue11

3 жыл бұрын

I feel your pain. I go to the library and carry books and my heart skyrockets!! I miss my old self :(

@neverseenblue11

3 жыл бұрын

@Tara King My heart rate goes up to 140 beats just walking up the stairs at home,

@neverseenblue11

3 жыл бұрын

@Tara King I developed pots from covid. I've been on two different beta blockers and will start Ivabradine next week,. My heart goes out to anyone who is going through this.

@Dulcimerist

3 жыл бұрын

@@neverseenblue11 I can relate to what you're going through, as I have POTS from my Ehlers Danlos syndrome. Beta blockers made me worse, but I've heard great things about Ivabradine. Hoping it helps you. Mestinon is what worked wonders at eliminating my POTS, and I saw a good video about it from this York Cardiology channel. I also take a small nightly dose of Clonidine, which increases blood volume by preventing blood pooling and also prevents adrenaline surges.

@bookworm8624

3 жыл бұрын

@@neverseenblue11 How do you feel now with Ivabradin? Have you side effects and does it help you? :)

I figured things out on my own before finding these videos. Fluid in the morning is vital. Low carb. Good luck potsies

I spent 10 years asking doctors why I feel like absolute garbage every morning when I wake up. No one could figure it out until my mom told me to ask my cardiologist if it might be POTS. If it wasn’t for her, I probably never would’ve gotten a diagnosis. Nothing’s helped me so far except for getting away from stress and hot weather.

@Dulcimerist

3 жыл бұрын

Have they tried you on Mestinon, Ivabradine, Guanfacine, Clonidine, or beta blockers? Hoping they can find something that helps you feel better.

@jettagliturbo

2 жыл бұрын

I am so sorry for what you've been through I want to connect with you do you have Instagram?

@tanyawieczorek6603

2 жыл бұрын

Kori, how are you doing now?

@ChloeElizaS

Жыл бұрын

I believe I have POTs as I've had suspected M.E/cfs for 15 years and just had a HSD and Fibro Diagnosis too. Just come back from holiday and I could barely sit in the sun, it's just too excruciating and makes me feel too faint!

@jcnation9815

Жыл бұрын

Same

This was extraordinarily helpful. Finally, a doctor who exhibits some compassion for the MANY of us with this syndrome.

@Luminocity_

9 ай бұрын

Yes, I wanted to hug him. When my family gets home, they are going to watch this. Maybe they'll understand better.

Exercise, now that I'm able to do it, has been the BEST thing for my POTS. It seems to be regulating my heart rate. It doesn't spike as much over every little adrenaline surge. And increasing my circulation and blood volume via exercise has helped more blood get up to my brain giving me less pre-syncope symptoms and a lower heart rate overall. As long as I stay hydrated and avoid heat and alcohol, my POTS is very well controlled now. I can even shower standing up again!

@darkbluematter1753

4 жыл бұрын

Ja Ba No, Thankfully I've not needed any medicine to get to this point.

@eddie8489

4 жыл бұрын

My main issue is being able to even exercise. How'd you exercise without getting lighheaded?

@jasperp.5357

3 жыл бұрын

@@eddie8489 Exercise lying down, 90 percent of exercises have a lying down variation. I have POTS too and im just starting Midodrine and im yet to find out if it will benefit me. I weightlift and do cardio lying down because exercising standing up is almost impossible when u have POTS, and dont even risk it cos losing consciousness while ur holding barbells or dumbbells is NOT safe.

@eddie8489

3 жыл бұрын

@@jasperp.5357 great tips!

@luvpieee

3 жыл бұрын

@@jasperp.5357 did the medicine ever help?? And I have no clue on how to workout laying down let alone doing cardio & such. Did you happen to find videos on it ?

I felt more understood and heard watching this video than I have with any of my myriad doctors and specialists. My doctors now are compassionate, but incompetent, they have such a gross undereducation of PoTS and broader dysautonomia. Most resort immediately to pharmaceuticals and send us on our way to slip into disability. This video should be required viewing for the medical community.

@mattparker3349

Жыл бұрын

Thats cause doctors are bandaid specialists not healing specialists

@maplelatte3366

4 ай бұрын

Or, they send you to a psychiatrist, because you must be anxious and/or making it up. And, of course, the first thing they all push is SSRIs/SNRIs, even though I have told them they cause me to have syncope. I have never understood how they think that me living alone and fainting is a good idea. I recently went to yet another doctor looking for a diagnosis so I could get appropriate treatment. I was hoping if I went to a younger, female doctor, I wouldn't be screamed at or dismissed. She referred me to a therapist instead of hearing me. I went home and started self-management techniques (salt/electrolytes) for PoTS, and I was free of palpitations (which they have been telling me are panic attacks, even though they last for up to 12 hours every day) for the first time in decades. I'm looking forward to becoming more active after not being able to walk to the store without knocking over displays and having to lie down on the ground, soaked in sweat, on the way home. I wish I hadn't lost so many years, opportunities, and relationships to this disorder, but I have hope now that my quality of life will improve.

I wish all doctors were like you. The fact that you write letters for your patients, speaks volumes. Thank you for your kindness towards patients. You are the definition of what a medical doctor should be.

Please bring awareness that men get this too!

@sadkfjasdkl4543

3 жыл бұрын

Yes!!! Everyone in my support group is woman. While it’s rare, us men get it also!

@IlIKRATOSIlI

3 жыл бұрын

@@sadkfjasdkl4543 there is a FB group for men. Look up POTs men

@janossario3527

3 жыл бұрын

Yessir!

@Dulcimerist

3 жыл бұрын

I am a male who has battled POTS for most of my life, due to being born with hypermobile type Ehlers Danlos syndrome. Thankfully Mestinon and a small nightly dose of Clonidine has treated my POTS really well, but I had decades of it going untreated which was very debilitating and unpleasant.

@guitarlearningtoplay

3 жыл бұрын

@@IlIKRATOSIlI yeah and it less than 30 guys

I’ve never felt more seen/validated after watching this video and reading everyone’s comments. I’ve had a lot of these symptoms for about a decade but they’ve worsened in the last 2 years and have been absolutely debilitating for the past 6 months. My doctor recommended this video and I see a POTS specialist to confirm in a few weeks. It’s crazy how you eventually convince yourself it’s just you, it’s in your head, it’s because you’re not eating perfect. It was really amazing to hear that not only are my symptoms valid and real, so many others suffer with the same!

I find swimming very helpful. You are horizontal in the water and the water exerts some compression throughout the body. I always feel better when I swim & POTS does not bother me while I do it.

@jdrex5039

3 ай бұрын

That's good!

@president-hx9im

5 күн бұрын

Me too. Just be careful getting out, and also hot showers afterwards can instigate symptoms

Such a relief when you find a Doctor who is highly knowledgable

@ut0p1an

2 жыл бұрын

Indeed. Just wish I could see such a doctor in person.

Thank you so much for addressing this issue. POTS has taken my life as I knew it away from me. One issue that I don't hear very much about is the extreme brain fog that can come from standing up. When I had my tilt table test done, the doc asked me how I felt after the table went upright, and I literally couldn't answer because I was so confused. It's a huge problem for me. Yes, dizziness is unpleasant but not being able to think when you are standing up or even sitting up is a very difficult life situation to navigate. I also get Raynauds in my feet and hands. I take Adderall for brain fog and extreme fatigue even though it increases my heart rate. There are no easy answers.

@melanietimms9585

Жыл бұрын

I feel this in my soul. The brain fog was always just as debilitating for me as the more physical symptoms like dizziness and fatigue. It was so maddening and upsetting to go from really good grades at school to struggling to even read a single page as I just couldn't concentrate.

@loquacious_lisa

Жыл бұрын

Please please look into the medical medium. You’ll find all of the answers you need.

@Mindfuljourneywithme111

9 ай бұрын

I was just about to write the same thing

@KMx108

Ай бұрын

My POTS, Raynaud's and ADHD symptoms were resolved with ultra-high doses of injected methylcobalamin. Those symptoms turned out to all be related to my body not absorbing B12 properly. I suffered for years and saw so many doctors who never suggested B12 to me. I only discovered this solution because I was eventually diagnosed with pernicious anemia and chronic mycotoxin exposure, which can alter the metabolism of B12 in the body.

I got diagnosed for POTS after i took the bloody vaccine. I had palpitations immediately after taking the shot and continued on and off for a month, ekg, echo troponin and what not. Then finally one cardiologist said its POTS. My life has never been the same.

@kd2533

2 жыл бұрын

Same here.

@coffeebean6003

2 жыл бұрын

Wow sorry to hear that. My niece seems to also has POTS symptoms butnis awaiting diagnosis. How are you feeling now? With her we are also suspecting its after the vaccine. Her issues started 3 days after getting the shot. How are you managing now?? All the very best!!

@ut0p1an

2 жыл бұрын

Same here but I don't yet have a diagnosis. Haven't been able to work or live well for nearly 15 months. Doctors think it's in my head. I have nerve pain and fasciculations too. Trying again with GP next week showing them a 10 minute stand test. Wish me luck! 🤞

@TheBushRanger.

2 жыл бұрын

You will recovery Mo eventually. The Prognosis for males and post viral pots is very good.

@mohammedaamir2855

2 жыл бұрын

@@TheBushRanger. i hope so, thanks for your kind words.

What a lovely human being- it's so good to be reminded that there are Doctors out there who truly care, and just want to help/heal their patients. The information in this video is also superb: Hippocrates would have been proud methinks!! Thank you Doctor :)

Hula Hooping has changed my life its my go to Therapy, I was bedridden immobile with terrible deconditioning and following all the necessary lifestyle changes I needed a movement for core strength and short intervals so I learnt at 44 & it's been the best thing and I may never have came across or thought it even possible until I read of someone with pots using it as Therapy and rehabilitation with sucess 🙌🙌

@oliviaestrella2578

2 жыл бұрын

How high does your heart rate get when you hula hoop? How does it make you feel? How did you start doing it, like 5 mins Day then increase?

You are the best pots doctor in the world. I am born and raised in New York City, and no one here has ever treated me the way you speak of the way you treat your patients, and from New York to Florida I have seen countless cardiologists and having gone through a really bad Potts flare post having Covid now after having pots for 11 years and not needing any medication being able to get back to my athletic job, getting Covid sent me back eight years and I found your KZread during that time and you truly are a leader and pots. Thank you for being a doctor to all of us who don’t get the care we deserve and need.

@mommybobo

3 ай бұрын

I love this guy too, he has mentioned another of the world's leading POTS experts who is living in the US, Dr. Blair Grubb (in Toledo OH) My daughter has been under Dr. Grubb's care. Try to get in to see him (although I know wait times get very long)

My downside of POTS- constant thirst, hunger & fatigue (also getting dizzy, sick to my tummy, etc etc). The things that have helped me tremendously- 1. Saline Therapy (IVs) 2. Exercise (when I can do it) 3. Salt tablets 4. Trying to cut out carbs as much as possible 5. Gabapentin 6. Compression socks!

@daniellatrueselfmeditation

9 ай бұрын

Hey girl! So cool to see a fellow spiritual divine feminine on here :) your comment gave me so much relief as I too have the exact same symptoms as you and I do all the same methods as you that have also helped me a lot! Praying for you and hope you’re healing well namaste 🙏🏼✨🤍😌

@lizaolmedo1686

8 ай бұрын

La gabapatina para que sintoma seria

@user-ng1hp5wx5h

5 ай бұрын

Where do you go for saline therapy? What kind of salt tablets? I do take gabapentin at night and wear compression socks too. I always feel so off.

@honey2222100

2 ай бұрын

​@@daniellatrueselfmeditationwhat are you doing please tell me

@Whats-It-To-Ya

22 күн бұрын

Compression socks make my symptoms twice as bad

What a wonderfully empathetic Dr, who clearly has a huge understanding of the syndrome, with useful input for many of us out there struggling with gaslighting, and misinformed ideas. Thank you Dr Gupta

POTs is a nightmare. I’ve had it my entire life and was officially diagnosed in my early teens. I have a relatively severe case and I don’t think being 6’6 with long limbs helps at all. I’m currently in my third major flare up and it’s my first as an adult. Unfortunately, I’ve learned that it can be completely debilitating no matter what you do to take care of yourself. While it’s important to be mindful of the condition and make healthy choices, it can still flare up regardless. It’s equally important to not blame yourself for feeling terrible, given you’ve been responsible with your health and not done anything to aggravate the condition. For some reason,the physical sickness is accompanied by a lot of guilt, shame and stress from not being able to do normal things and having to adapt your lifestyle to those limitations. However, accepting your limitations and sticking to them firmly when recovering is the healthiest thing you can do for yourself. In my personal experience, sometimes it just takes time for the body to adjust itself back to normalcy. I really hope POTs is demystified soon and understood better by the medical field. It’s truly a life altering illness. I’m wishing the absolute best for others who suffer, you’re not alone

Thank you so much for this!! I just got diagnosed with Pots after over 10 years of searching. I appreciate the work that you are doing so much. You are right on as far as how we feel! So validating and encouraging to be believed.

@tanyawilliams8254

Жыл бұрын

I was just diagnosed after 10 years are you getting better?

You're level of compassion makes me want to cry 🥲

Dr.Gupta. You are a true healer, with the education and compassion to back you up.Thank you very much for your loving heart.

@helentalia9923

3 жыл бұрын

I love his heart ♥

Thank you so much for taking time to make this video it has definitely given me hope

Best description yet. Thank you for breaking it down and not making it sound so scary

Thank you so much for your kindness and understanding. If only we could clone you and your knowledge and spread it around the world ! ⭐️

Brilliant and useful info! Such sanity for anyone who's spent decades seeing doctors and specialists and begging for help.

Your so understanding!! 😢 Wish everyone around me thought the way you do. Thank you so much for making videos!

Thank you... I had no idea something like could even happen. I'm now mostly bedridden, unable to be up for very long or look at techie most of the time. I've lost my job and I thought this was it. Finally got a diagnosis by a Physiotherapist dealing with Long Covid. Thank you for sharing this information with us! It's given me something I can work towards. All the best to all of you going through this ❤️

This was probably one of the better videos I have seen on POTS. Thank you.

I'm so grateful for your passion to help us. So many providers dismiss us.

you have empathy and you listen to your patients these are very rare qualitys today so yes thanks for giving your time and advice 🙏💕

Thank you for explaining this, Dr! I hadn’t heard of this until a few years ago.

This is incredibly helpful. I’m going to share with all of my POTS patients!

This is the best explanation and tips on KZread that I have watched so far. Thank you dr.

Thank you so much for talking about this issue with compassion. It makes all the difference in the world

Wow! Who knew anyone actually cared. I wish you were my doctor. I am just so thankful for your video.

Thanking for giving a name to the adrenal surges!! Sums up the off putting experience so well!

The bottle visual is so helpful. Great video, thank you

Awh thankyou Sanjay so much... your caring nature and demeanour always comes across every time. Thankyou . Xx 😘

Hi Dr. Gupta, It just ‘goes to show’ how some doctors really do listen to what their patients are saying to them. And trying to help them understand better and cope with their debilitating conditions, no matter how difficult it maybe, is a bonus. Good on you, all the best.

You're a brilliant doctor, the way you just described things was really perfect, thank you🙏.I wished you were my cardiologist. I've had POTS like symptoms since having 2 stemi heart attacks/2stents at 30 & 32. It's been so debilitating, isolating & a living hell. I've had so many tests, but they can't figure it out. I'm so glad to come across your video, you might have saved me from having an unnecessary AFib ablation.

Love the explanation with the water bottle. Thank you again Dr. Gupta for another excellent video. You taking the time to educate us is unmeasurable.

Wow, best thing I've heard so far!!! Thanks much!

Thank you so much for this! Wonderful that there ARE medical professionals out there who believe in, empathise with and most importantly support their patients! ☺

@no_country_for_real_men

Жыл бұрын

Yeah but good luck finding one for yourself

@donnawilliamson277

Жыл бұрын

@@no_country_for_real_men sad but true... still nice to know they exist 🙂

@no_country_for_real_men

Жыл бұрын

@@donnawilliamson277 they are a needle in a haystack in the u.s. A country where people with medical degrees are a dime a dozen but 95% are not educated, skilled nor true professionals.

Thank you so much doctor for your helpful tips and your sensitivity!

Great information & presentation Dr. Thank you again!

oh my goodness. you just described my life.. writing from an exhausted prone condition from my bed.. just to see the diagnosis and validate my symptoms reduces sooooo much stress. blessings..

Thank you for your compassionately proposed and helpful advice. Did not know I was taking the wrong kind of Magnesium (Oxide). I will change next I buy. Always a relief to see a doctor talk compassionately to us POTS patients. We’ve been through it.

I am so grateful to you for your thoughtful recommendations and I respect the way you acknowledged the psychological and sociological impact of POTS

Good video. I am glad he talked about the adrenaline surges.

Thank you for your help. I’m a big believer in helping ourselves and the only way we can do that is by educating ourselves and self discipline. Have a great day.

thank you so much for every word !! I could help you enough!! for 14 years I struggle with symptoms like this. I even did Tilt test but no adequate therapy. i hope this changes in life stile would help. I wish you all the best!!

@Dulcimerist

3 жыл бұрын

Have they tried you on Mestinon, Ivabradine, Guanfacine, Clonidine, or a beta blocker? Hoping they can find what works best to help you feel better.

FINALLY A DOCTOR WHO GETS IT!!!! 🔥🔥🔥🔥🔥🙏🙏🙏👏👏👏👏👏

Fantastic, educational video presented in a professional and compassionate manner 🙏

Thank you so much for these videos it has been so helpful, I had COVID in Aug 21 and was making a slow recovery but then in Feb 22 I started to feel worse again and then I couldn’t get out of bed without my HR elevating, feeling dizziness , nausea, pins and needles, breathless and extreme need to sit or lay down, my Dr said they are hearing of a lot of POTS symptoms following COVID and so I am learning about it while I wait on a referral to a cardiologist for an official diagnosis and treatment.

@no_country_for_real_men

Жыл бұрын

Have zero expectations out of amERRORican doctors. They are worthless. I have the same issues as you and I have bad news - you are going to have to figure it out on your own because I guarantee you they won't correctly diagnosis you let alone treat it. When it comes to your health in the united states you're on your own.

Thank you, thank you, thank you. I am crying just because you understand! Your explanations are so helpful and your suggestions too. Thank you!!!

@englishgoddess8238

3 жыл бұрын

@FlyHigh Omg watching this video the tears just started only a short time in the video then by the end has me so emotional I feel like finally a doctor finally understand what people with pots have to go threw finally after 5 years I finally found a doctor that gets it 😭😭😭😭 I finally feel like I’m not alone in all this 🥰🙏🙏🙏🙏🙏🙏

Thank you so much for posting this video. It's so helpful!

You seem to be such a kind and empathetic doctor! I wish I could find a doctor like you in Belgium. Thank you for this video to help us dealing with POTS.

@no_country_for_real_men

Жыл бұрын

I know what you mean I can't find one and I live in the u.s.

You are amazing Doctor. I am so grateful for this information. Heart felt thank you 🙏

Great video! Easy to understand, and gave tips that a person can try right away. Thanks very much.

Thank you for sharing your knowledge! This has been very helpful for me.

Thank you so much for these tips and for the explanation!

You're my hero! I think I developed PoTS from Covid. Since then, I can have a low heart rate (40bpm) but as soon as I stand up my heart rate goes up, above 30 bpm, I get dizzy.. And if I walk a lot my heart rate goes way up and struggles to come down. I've never experienced any of this. I've always been healthy and I worked out a lot prior to covid. Since then, I'm experiencing all these weird symptoms.

@alperenylmaz1344

2 жыл бұрын

Hello. I developed pots from covid lie you. Almost 1.5 years past since covid but symptoms remains. Is it same for you?

@alperenylmaz1344

2 жыл бұрын

And did u get vaccaine?

@Thefroggang101

2 жыл бұрын

@@alperenylmaz1344 no vaccine! But it's been almost 4 months since having covid and it seems a lot of my POTS symptoms have cleared up this week for me, by making some changes, however now my heart rate is kind of low at resting (40ish bpm) but this is not frequent. Its at random, so I'm hoping it clears up. Here is what I've done to help with the POTS symptoms I drink a glass of Himalayan salt in the morning (some people need to do it more than one) I take B1 supplement, I started drinking mineral water a couple times a day, I exercise my vagus nerve I walk around the house or do super small workouts to try to help regulate my heartrate, now I'm able to go to the gym I sit in a sauna at my gym for 10 mins or so, my gym also offers Red Light Therapy, so I do that as well, it helps with internal inflammation and building new cells :) if the sauna and light therapy isn't available to you, the other stuff will do wonders, as these are things I added in later on. I take magnesium Glycinate, and zinc. I hope this helps you! Also, a can of coconut water, it's really high in electrolytes and helps keep you hydrated during the day

@alperenylmaz1344

2 жыл бұрын

@@Thefroggang101 Thanks for response really. I felt so hopeless these last days feel like never fell better but u give me hope. THANKS!

@marlenehofmayr430

2 жыл бұрын

Same hope we all get better soon and this is not a permanent condition x❤

have been misdiagnosed for yearsin cluding grrrr.... conversion disorder.. horrible horrible..affected my life with a complete turnaround from who I truly am.. finally found a wonderful neruologist who has sorted through with the correct bloodwork. now have hope but disappointed in the length for recovery.. thanks for talking about this.

Thank you so much doctor for this video. You have shed a beam of light that has answered so many of my concerns and even brought explanations to symptoms I didn't even know were symptoms because I thought everyone experienced it and it was normal. I will be speaking to my doctors to see if they recommend your suggestions for me. God bless you.

Thank you, Doctor. I will apply all of these measures.

Thank you so much, Dr. Gupta!👍👍

What an immensely helpful video. Thank you so much.

This is so amazing. Thank you.

Thank you Doctor for all the videos upload for Healthy life, stay blessed 🙏

Thanks for the reminder.

I felt seen watching this. Why aren’t more doctors educated on this? I’m 31 and started having symptoms in my early 20s. Doctors ran tests and thankfully everything came back negative so their next thing was you have panic disorder. Thankfully the low dose beta blocker they gave me also helps with pots. I wouldn’t wish this on anyone. Thanks Doc for all you do. I cried the first 5 mins of the video when you described how it feels. I also notice my symptoms come in waves. I can go months and be fine. I do agree on the adrenaline rush. I remember a primary doc told me maybe you just produce a lot of adrenaline and dismissed me. It good to have the medication AND the information on this.

@MzDaUgly

Жыл бұрын

What do your adrinline rushes feel like? Like hot or cold feet runs up your legs. A irration feeling. I also get burning in my chest especially laying on my back. It just burns away.

This is great information. Thank You!

Thank you Dr.Sanjay for this extremely useful informations

Thanks to Dr Gupta I had a major improvement in last nights sleep and and am encouraged to continue trying to improve my lifestyle habits 😃

Thank you for another great video. 🙌🏻

Thank you so much! I wish I had a lovely doctor as you are ❤️💗💕

I have been dealing with this for 3 years and this is the best visual explanation I have found so far. Thank you! My mom is 79 and going through this and now I will have an easy way to explain it to her as well. She can’t wear compression socks because of how it squeezes the neuropathy in her feet causing pain, but vitamin B1 is starting to help so far. Thank you again for this! 🙏🏾

By far the best video on this topic thank you so much 🙏❤️

I have POTS and mild sensory neuropathy. It’s hard to get a diagnosis and find competent doctors. Thank you so much for learning about this condition to better serve your patients.

@TheVintageBumbleBee

4 жыл бұрын

Uuugghhhg, I feel you. We went 12 yrs for a diagnosis and finally found an excellent (not good) but excellent cardiologist. How are you?

@EljinRIP

4 жыл бұрын

@@TheVintageBumbleBee It actually only took 6 months to get diagnosed, thankfully a neurologist was aware it existed. Unfortunately no one around here knows how to really treat it well or look for causes. Currently I'm using the levine protocol and some medications and I'm currently improving week by week thankfully.

@jasperp.5357

3 жыл бұрын

Can you give me a link of the instructions of the Levine Protocol? Ive been trying to find one on the internet and couldnt, im looking forward to do it cos I have POTS and im just starting on Midodrine so im yet to find out if this medication will benefit me. Thanks.

@Dulcimerist

3 жыл бұрын

@@jasperp.5357 Did the Midodrine help? I've steered clear of that one, as it can aggravate my Raynaud's. Mestinon and a small nightly dose of Clonidine is what fixed me. Other good POTS medication options are Ivabradine or Guanfacine.

You are amazing! Thank you for understanding wow

Thank you for your knowledge and time it means alot .

Best POTS explanation video I have seen ☆☆☆☆☆

Wow, this is good information. Thank you. The Mayo Clinic said compression stockings aren't as effective as a binder which compresses your core.

I began taking 350 mg b1 in Benfotiamine as well as walking 40 mins per day. 20 mins at a time. Also talking electrolytes. Also raw fruits & veggies. All have helped so much. If I eat any processed food or processed sugars, I go back to feeling bad.

Thank you so much for this. Really helped in explaining the mechanism to my partner. I now can't unsee upright people as shaking squeezing waterbottles though

- body unable to squeeze blood vesels, too much heart rate to make up for it -body do squeeze but over do adrenaline Changes: 1- more blood drink least 3 liters don’t lose fluid increase salt, retain water vitamens tablets 2- squeeze legs, hands 3- heart rate not going way too fast - Avoid adrenaline rushes reduce stimulus, bad news sleep better, melatonin good convo with fave ppl supervised exercises

Doc you are wonderful. I developed POTS after a vertebral artery dissection (I have Vascular EDS). It has made getting back to work very difficult but I am hopeful and following the advice here.

@hazemmahouk

7 ай бұрын

Hi, did u recover from pots? Any advice for improvement, i'd really appreciate.

Sanjay you are inspiring. It’s such a rewarding condition to treat isn’t it! When I’m better I’m going to learn from you. Fellow medic with Long COVID ME and PoTS

@TheBushRanger.

2 жыл бұрын

You good now Asad?

Very informative thanks for sharing!

It is good to see there is good Doctors. not only recommending chemical drugs but natural alternative advise.

You are simply marvelous: I have ME CFS after catching Glandular Fever 28 years ago. 3 years ago I said to my doctor could I have POTS and it was dismissed right out: U have complained several times of heart rate falling drastically when I sit, scary irregular heart rate if I'm standing and feeling pretty good if I lie down. I finally bought a BP monitor and did several NASA Orthostatic Tests and my HR increases when standing by between 32 to 50+ so hopefully the doctor will take my question seriously tomorrow.

I've done well on Ivabradine, Low Carb Real Food food, swimming, cold water dipping. I'm much better. Had to go off ivabradine to have verapamil for SVT but managing okay. Still suffer with palpitations especially if bending over, using arms out from my body. I have improved so much over the years. 2015 viral myocarditis post chest infection. Tried many meds, many years, many cardiologists! Exercise physiology helped alot.

Thank you so much Doctor, God bless you... Informative as always 😊😇🙏🌹💐

Thank you doctor this video is so helpful I've been dealing with all the symptoms you mentioned and I've been to multiple doctors and they told me different but watching your videos❤ really help me figure out what's going on God bless you for all that you do for your patience I will be following you for more advice thank you very much

Thanks for this video. I shared it with my loved ones.

You are so good.

Thank you SO MUCH for your videos!!!❤

Thank you so much for taking the time out to help us POTS patients. It is definitely debilitating and everything you said was so on point. I have an issue with increasing my salt because it tends to raise my BP to numbers like 190’s/118. I do drink Powerade zero daily along with bottled water. No matter how much I drink, I still find that every other month, I have to get IV fluids. I understand the mechanism of POTS better now since you have broken it down. Thank you again

@rorscach1

2 жыл бұрын

I am going to be trying to drink mineral water. Topo Chico. I don't like the fizziness and the flavor is going to take some time to get used to, but I am determined to make changes.

@RotationAxle

2 жыл бұрын

I'm in the same boat as you...in a strange place because on no meds, my BP tends to run higher, systolic in the 130s/140s, diastolic in the 90s, but the beta blocker brings it down to readings like 116/87 and then the doctor suggested fludrocortisone at the lowest dose, which is a salt steroid. That raises blood pressure and mine has gone higher, though not as high as yours...but it's weird because I feel like the extra salt or whatever the med does actually helps. Such a complicated illness POTS can be! But you're right, this video helps make sense of things and has some pretty good ideas for natural things to do as well

@k.mcdonald1960

Жыл бұрын

Hey Dani, I saw your response here and had the thought: I wonder if she knows about a condition called Pheochromocytoma and if she has had that ruled out as a possible cause of seriously high blood pressure spikes and POTS symptoms. I’m not a doctor, but I have POTS. Through my research into our condition, I came across this fact that doctors should first rule a pheochromocytoma out if there are both signs since its a TREATABLE mimic of POTS. Just felt like I needed to share this here for my fellow POTS sufferers. 💗

@inexperiencedladywithagun7851

Жыл бұрын

@@k.mcdonald1960 what is the remedy for that condition?

@k.mcdonald1960

Жыл бұрын

@@inexperiencedladywithagun7851 I gotta reiterate that I’m not a doctor, but a pheochromocytoma is a hormone-secreting tumor on the adrenal glands and can be removed with surgery.