If you've come across this video and are curious what is on my belly, this video explains it! kzread.info/dash/bejne/iYGsubClYby5mbA.html

@tomkarate1

10 ай бұрын

Only answer if you feel comfortable. What happened to you that led to you getting an ostomy so early in your life?

As a colon cancer survivor I wore a bag for six months then thank the Lord it was reversed. I wish I had known you back then. I really struggled with mine with living in the country and no help. God Bless you for helping so many people. No one knows how awful it is to go thru this until you have experienced it. You are wonderful. Thank you.

@jeromegilly

Жыл бұрын

Bless you🤍

@venomx4093

Жыл бұрын

What stage cancer?

@joycecochran4575

Жыл бұрын

@@venomx4093 stage 3.

@chrisballo

Жыл бұрын

My mother died of colon cancer -2004. Had surgery in January of 2004. It came back and killed her . She was 70 in 2004

@chrisballo

Жыл бұрын

I failed my first colon in 2019

My 2 year old son who has Hirschsprung’s loves watching your video when he is getting his bag changed, I think it helps him feel like he isn’t alone or different. Thank you

@RedRoseSeptember22

Жыл бұрын

♥

@quanna4369

6 ай бұрын

My son also has hirschsprungs and loves all her videos

@kaimillie664

5 ай бұрын

Hi My 9 year old was just diagnosed with hirchsprung disease and has a osteomyelitis bag we are so new to this any tips or suggestions? Do you know of a support group for Hirchsprung disease?

You are the cutest, most professional nurse patient and bravest of the brave. I'm just an outsider looking in. I wish you and Zak a continued wonderful happy life.

I’m a colorectal surgeon, so glad you’re doing this!

@RedRoseSeptember22

Жыл бұрын

Thank you for all you do!!!

@chrism.b.5211

Жыл бұрын

I just got an ostomy due to a colonic perforation due to a delayed thermal burn after a flexible sigmoidoscopy with full thickness resection (I was told I needed this procedure after I had a cancerous polyp removed in Feb). I got sepsis and had emergency surgery to remove the perforation and clean out infection. I’ve been devastated by it all. As a surgeon, can you tell me if this is a common outcome? I don’t remember even hearing it was possible. And, Turns out I was cancer free. Why is this procedure being done if a surgeon can’t tell they are injuring someone? Trying to understand why I’m going thru such pain😢

I'm a well seasoned nurse, but from ortho /neuro. I haven't changed a bag since school. I'm now in home care and have my first patient with a colostomy. Thank you for this video 🙏

You never think of nurses and doctors being sick. Thank you for allowing us into your life and on your journey. I can't Imagine going through that everyday. It's my mind that is healing. Thank you again for the education.

I’ve had an ileostomy for 20 years. My colon and rectum are removed and there is no way to be reconnected. It’s old hat these days. I really wish that I could have seen this when I first had surgery. Great job Maggie!

This was so so so helpful. I’m 17 and almost 18 and I just got a temp. Ileostomy for severe colonic inertia. Thank you Maggie!! I’ve been following you for awhile and you are just the best!

I just got my bag 2 weeks ago. and I change it the first time myself today and this video helped me out a lot and I just want to thank you very much for putting this videos out.

@JinnatGaming3224

11 ай бұрын

How many packs do you change in a week?

@josephguerassio-up2gs

10 ай бұрын

Myself,I use ; 1pack everything 2 weeks.

@Briannaloves879

5 ай бұрын

Does it hurt to change it?

@dominicharrison9134

2 ай бұрын

@@Briannaloves879 No, providing you use the spray provided 🙂

I work for a DME company and am training a group of reps in Ostomy supplies and this is by far the BEST video I have seen explaining how everything works together. Thank you for this! You're awesome!!!

Thanks for sharing this, Maggie! I watched this out of curiosity because I have never heard of or seen such a thing. It is interesting to see what it looks like and I am amazed that an intestine can be left protruding through the skin without causing problems. Wow!

@kelcritcarroll

Жыл бұрын

Me too! Very interesting video don by a very cute woman!

My Dear Friend of 51 years had a kidney transplant 17 years ago, she's been in the hospital for 6 weeks and now has an Ostemy Bag. Thank you for helping me to fully understand what she'll be going through. She did home dialysis for 9 years b4 her transplant, so I know she can handle this too. Thank you again!

Thank you so much for doing this video. My dad found out he has stage4 colon cancer on March 24, 2023. Now has a bag. I'm his daughter trying to learn about changing his bag. I found this video. Been a little stress about this. I know it will be easier after a little while doing this for him. Bless you over, above and beyond! Mary

@Darkangel-hy8ev

Жыл бұрын

Mary Myers I am very sorry to hear that first off, just wondered, and hope you don't mind me asking is your mum not around anymore? or can he not change it himself then? It is a hell of a lot for a daughter to take on, especially with a father, seriously feel for you! I am not surprised you are stressed and very concerned about it! On a final note is your Dad going to be OK because he has had the surgery, i'm hoping that is the case for you!

At a hospital I used to work at, we had an ostomy nurse. She did everyone’s, helped them choose the type and size appliance, etc.

Your strength and bravery here is beautiful and you shine inside and out!! What an amazing soul you are. Thank you!!

Thank you so much for this. You are such an intelligent & beautiful woman. My elderly mom had this and I never knew how she managed. She lived 15 years from age 72-87 & died in 2015.

I wish KZread and this type of content existed when I was 16 and newly had an ostomy. There was SO MUCH trial and error and a lot of modifying existing products so they better met my needs. My favorite "hack" was filling a syringe with barrier paste (like stomahesive) and using that to apply a thin, much more precise line of the paste (because applying directly from the tube was basically useless and just a mess) around my stomach before and sometimes after applying the wafer because it helped the very liquid stool to not get under once everything was in place and especially after a day or two. It helped give me a little more wear time.

@lawrencemays410

2 жыл бұрын

Use of a syringe what a great idea. Been 56 years and still learning.

@hockeysteph

2 жыл бұрын

@@lawrencemays410 you have to pull the plunger out and fill it with the paste that way, but it then worked SO MUCH better than trying to squeeze a small or precise bit of paste from the tube.

I don't have an ostomy bag or have any reasons to watch this other than to educate myself on what it is, what the patients have to go through and to remove stigma surrounding them! I love learning about medical procedures and who knows, maybe I will meet someone with a bag who will need some random stranger to understand and not be weirded out and ill be there for them. You just never know. I'm sure many patients appreciate you and your videos and I would just like to thank you for educating all of us with so much empathy, compassion and kindness! I can only hope if (or when lol) I will have a nurse take care of me, they will be as amazing as you are!

I truly admire you with how you explain something that looks so complicated to do! Thank you! 👍☺️

You are a sweetheart for tutoring us newbies about our stomas. What a wonderful nurse. Thank you so much.

thanks - I am celebrating 6 years as a Bag Lady! - It was learn as I go - even though I had a great nurse and Dr after my surgery - One of the things I think is important is making sure the skin barrier is nice and dry and then dry off the stoma with paper towel - before I attach my new flange - thanks for the great video!

I LOVE this nurse! When she takes the bag off, it's no big deal! Totally demystifies it!

Great video! Working in a Hosp for 15 years we had WOCN nurses that did all that for us. I am a Hospice nurse now and I need to change a bag in 2 days so I’m watching videos to get familiar. Looks easy enough. I heard she has a convatec, I believe 1 piece. I liked your video the best!!! Thank you!

I’m a Pharm Tech with a type 1 diabetic 7 year old. I was learning about insulin pumps & I landed here. I stayed because if any one in my family needs one of these I want them to know life isn’t over & if I’m strong & knowledgeable to get them thru those dark days I’m happy. Thank you for the knowledge & your bravery for sharing a private part of your life.

Hi Maggie, i recently became an ostomy patient & after2 months of learning how to deal with my new norm, i guess i'm becoming an expert in cleaning & installing new pouch. I prefer changing by standing in front of a mirror where i can see the whole picture. I am using Hollister brand with 2 kinds. One that has a drainage opening where i can empty without changing the implement & the other is a close type. When at home i use the 1st kind so that i save time & supply. For sure, there's a surprising kind of output & when its too solid, make sure to pour a little amount of water to drain & it will discharge faster & less odor to deal with. Always make sure to add the Adapt deodorant before sealing the end of it. I find it very easy & comfortable doing this method & since iI was discharged from the hospital, I did on my own without the help of relatives or anyone. My nurse from the hospital tells me that i am doing a good job & she is my mentor too. One advise to patients with ostomy pouch, watch everything you eat because there is a big impact on the output & always make sure to chew food properly.. your video Maggie is very helpful. Thanks

Thank you, I was the "ostomy nurse" for my wife who had both an eliostomyu and later a geguostomy before I lost her in 2007 to cancers. Your video was super, it let me fase and remeber the experience. I think your videos are the best thing to educate the new folks who are facing ostomy's.

Hi Maggie, I would like to thank you for being so brave to youtube your personal situation. You were a god send to me and many others. I did not have anyone to talk to about this or to ask questions. I have a surgeon but not a bowel Dr and the Ostomy nurses are overwhelmed so it can take 24 hrs to respond to messages or emails. My ptsd related to bag changes, food and showers was debilitating until your calm, humerous matter of fact imformative videos. I still dont have anyone to talk to about my colostmy but your videos and the carnivore diet have changed my life and attitude. Thank you ❤ Terri P.s Zack is a keeper

My Mum just had surgery to remove her Anus, Rectum and Colon due to cancer and is having a stoma permanently. This video was helpful for incase i need to help her in her old age. thanks hope you are doing well.

Awesome video! Wish I could've seen something like this when I first got mine. I've had both a colostomy and a urostomy since 2010, and I've helped show a lot of the nurses at the hospital (because I'm there kinda often, unfortunately) 🙁 how I've learned to change my appliances. I use unscented baby wipes to clean my skin and keep them handy. I put skin prep all the way around my stoma, and use ostomy paste. I put a bead of it all the way around the opening of the flange, and then stick it on. I'm usually able to make my bags last a week at a time. I use ConvaTec high output colostomy bags. They have a tube opening with a cap, instead of the large Velcro opening. It's made to connect to an overnight bag. If your movements are formed, you can use warm water to soften and irrigate it. I find it much easier to hold onto while emptying, and much easier to clean after emptying.

This young woman has more courage and strength in her little finger than I have in my whole body!!!

My friend just had surgery today. She is 72. She is so scared and concerned about having an ostemy. I will pass this on to her.

@jazminedorsey6189

Жыл бұрын

She'll make it

Hi Maggie 👋 I have an ilealconduit (urinary diversion). Your video is something I stumbled on looking for my surgery demo and it's so much the same. I just wanted to make sure that I was doing it right. You're so encouraging, I'm greatful that I ran across your video tonite.

Your vedio is very helpful and informative. I admire you as a nurse and you are the bravest person I ever met. Thank you sister..May God bless you

Just a curious person here who loves to learn. I should have been a nurse. 🥲 This is very helpful and informative and I'm sure you're changing lives with these videos. ❤️‍🩹 So Thank You.

Thank you Maggie, your video's are very helpful to everyone dealing with Ostomys,I had a urostomy put on me due to bladder cancer, lost the bladder in 2022, I watched your videos back then and they helped me personally quite alot,thank you so Maggie.😊 💕

Thank you for this awesome explanation! I don’t get too many colostomy patients in rehab nursing but it happens and this explanation was great!

Your content is the best! Wish I saw before my surgery as it would have helped with A LOT of my fears. But so happy to follow you now, and your patients have the best to learn from!

Thank you for your courage and helpful information for a population who need it! Because of you, I spell nurse "ANGEL" THANKS!

Very informative and well done. I have learned much about something I knew very little about. Your video has renewed my respect for anyone who has undergone a similar operation. Whomever the hospital is that you are working at is very lucky to have a person such as yourself on its staff. Again, very well done. God bless you and your family.

If you are having problems with leaks I recommend changing to a pouch which has belt attachments. Wearing a belt has reduced my leaks to zero.

This is so helpful as a new nurse myself!!!

I pray my chrons doesn’t get this bad, my heart goes out to those living with a stoma. My mom had one for a short period of time as well her symptoms were caused by lupus though

@mikewilson8513

8 ай бұрын

I had crohns for 6 years starting in 1969. I had my surgery in 1976. my life was so wretched and miserable. I knew surgery was the only way to get my life back. I told my consultant i was ready. The whole of my colon was removed as was my rectum. I will tell you honestly, not for one second i have regretted my decision. I literally had my life back. It was that momentous. I I hope things turn out for you, whatever you decided. An I ileostomy is not the end of the world. It was the restart of mine. (i was 26 when i had it done, I am 74 now, and in excellent health. My Crohns never returned.

Great video for nurses and new ostomates! I can't tell you how many nurses I've taught how to care ostomies, especially my mitrofanoff (it's debatable if that's an ostomy or not who knows). My ostomy bag changes in hospital often have half a dozen nurses in the room; new and experienced. I never mind and my hospital knows I'm happy to do it so they all troop on in 😊😊

Your stoma “talks”! I love it. Marshmallows can help. I usually eat a couple a few minutes before. It can help.

Thanks Maggie for this! Always appreciate how well you explain things 😊

This is so fucking cool. The fact that treatment like this exists is incredible and that the intestine can just poke out like that, and it's fine, is mindblowing.

Instead of using toilet tissue to clean and dry my stoma I use paper kitchen roll which is very absorbent and much stronger. This was recommended by my stoma nurse.

What a sweet helpful young lady, your helping a lot of people God Bless!

Damn, this video is so freaking educational. You're amazing sharing this content for free.

4:57 definitely try on the template really quick before cutting into the bag to see if there are any changes in your stoma especially right after surgery because mine started out pretty big and then kinda shrunk and changed over time

Thank you for these videos. I have had a colostomy for a little over a year now, and I am very happy with it. I too have this "Tupperware" system by Hollister, and it works for me. Granted, it is hardly invisible, but that doesn't bother me. This week I went swimming with it for the first time, and it worked great. With a stoma swim girdle and a male swim suit, worked like a charm. The only thing, with Hollister you have to change the bag afterwards because the carbon gas filter gets saturated when it gets wet.

I use Coloplast Maggie ,one peace,I have know problems with them at all,thank you for the information, you covered everything, good job.

Awesome, Maggie! I'm new with this and all information is helpful. Thanks, again, and God bless!

Thank you maggie..your video is very helpful.. I'm diagnosed as low rectal cancer...will having 3 major procedure in the near future..and im goong to wear stoma bag..your explanation very clear and im positive i can face my new life❤️

i had a temporary stoma for 2 months back in 2003 - i really whish i had such good videos and products back then :)

Don’t have a stoma, never seen a person with a stoma so this was very informative thank you 😊

So you’re telling me they put your intestine leading out your stomach and it’s like a wet organ on the outside of you and then they can put it back in sometimes with other people!? I feel so dumb but I am amazed. Humans are amazing. You are amazing!

Very good care of the skin where the adhesive goes. Normally it gets so irritative red and itchy

I don't know if my comment is surprising but I'm a wife of 25 years to a man that has a colostomy and finally allowed me to help him during a severe crohns flare up because he could no longer do it for himself. He got the colostomy at 14 and was very private about its maintenance all during our marriage but never was a bit hesitant in the sex department. I'm glad he could be free around me to a point. It was never a hindrance to me. I married the man attached to it and not the other way around. Trial and error has been my MO during this awful time in our lives since he continues to be gravely ill and has been hospitalized for most of 2023. Please pray for him. Your videos have helped me a great deal. I wanted to find a way to manage it that suited me. He was so ill that he couldn't explain how HE DID IT. Thanks for helping me find a way and I think your videos are well done and informative.

OMG my last bag change, My stoma became SUPER ACTIVE as I was getting ready to reapply. I use "Squishy gauze" (gauze rolls that I cut to about 12 inches and then fold the ends to the middle and then fold that in half). I soak the gauze with SODIUM CHLORIDE 0.9%. I can use it to clean around the stoma AND to catch output. I was so glad I had it because I needed 6 of them just to catch what decided to come out ... 3 rounds each using 2 gauzes. 99% of the time, I have irritation. I use stoma powder and skin barrier spray to "crust" the areas.

I just saw an add for something about stealth belt to use for an ostomy it claims to help with leaks and irritations also put less weight on the bag maybe you should take a look it goes under clothes looks like your wearing nothing. Thought I bring it up. I don't have one but I love learning about it with you. It helps me know more about it and appreciate people who have it.

Total respect - What a lovely person you are.

Какая же вы умница! Вы пример для подражания. Продолжаете жить и радоваться жизни. Это здорово! Не каждый принимает себя с таким телом!

I really cannot thank you enough for your videos and the information you have provided here. I live on the west coast of Ireland and was rushed to hospital 2 weeks ago with a ruptured bowel due to untreated damage from endometriosis. The healthcare system here on the west coast is an absolute joke. I have been left sitting in my own blood and waste every day by nurses and doctors with a leaking stoma bag that is connected to an overflow bag by my bed. I think my wound down the front is infected as it is oozing yellow green pus but it has been ignored. I feel so dirty and honestly like I have been treated like a wild animal. I have been so upset by the way I have been treated and not being able to help myself has really impacted my mental health. I have just changed my stoma bag for the first time with the help of this video. I don't have access to a mirror and it did not go perfectly BUT I am going to give myself some time to recoup and then give it a second attempt which I feel confident will go better. I know once I go home and can access a mirror it will be easier to see what I am doing. I am so proud of myself right now for getting this done and I know it is a huge step for me in feeling confident enough to leave this horrible place and people behind. It's really really terrible in here and the experience has pushed my usually positive mental attitude to breaking point of on a daily basis. Thank you again, I cannot put into words how much you have helped me.

@gailhambrick4271

Жыл бұрын

I am praying for you.

@niamh5289

Жыл бұрын

@@gailhambrick4271 thank you Gail that means a lot xx

@elenagura4055

Жыл бұрын

@@niamh5289 попробуйте мазь офлокаин,она от гнойных ран и ожогов.translate, please.

Thank you for doing these vids - so helpful and educational. One question I would have is.... I am horribly allergic to all adhesives - I don't know what I would do if I ever had to have this done.

I had to learn to change and care my dads b/c he had a stroke after his intestines burst and he went septic. It also eventually got worse and gave him dementia when the sepsis got to his brain. I really wish YT was then the way it is now b/c a nurse came only once to teach me and went so fast I didnt learn much. I had to figure it out and there were so many accidents. I feel bad I didnt do better for him for so long. Eventually I got the hang of it but still had blow outs once a week. I went to a medical supply store before my wedding and told them I needed help b/c I was worried there would be an accident on my wedding day. The man there took over an hour with me, told me what soaps I should and should not use, how to get the best stick, what wipes never to use…all this stuff I needed to know for so long. My wedding day was accident free for dad. He couldnt get out of his wheelchair but they played a song for us and I held his hand for a while and then my brothers danced with me to finish it out. He lived one more year after that and we avoided so many accidents b/c of what the man at the supply store told me. If I had YT it wouldnt have taken me 3 years to find someone to help.

I recall you used to have problems with you skin wicking and getting irritated. I think you also had trouble with your bag adhering to your skin. How did you resolve that? Your skin looks great now. From one ostomy patient to another, thank you.

@LetsTalkIBD

2 жыл бұрын

I started using Flonase on my skin! It has been so helpful in healing it! While is was still in rough shape, Marathon helped protect the irritated skin

Thank you, this was a very helpful video.

I THINK YOU ARE A BEAUTIFUL GIRL WITH A GREAT ATTITUDE...THIS WOULD PROBABLY BREAK ME, I WAS STABBED 3 TIMES IN THE STOMACH THROUGH THE BOWEL BUT I NEVER HAD A BAG AND I THANK GOD FOR THAT, I THINK YOU'RE A GREAT SPOKESPERSON FOR THIS AND I CAN IMAGINE LOTS OF PEOPLE GAINING KNOWLEDGE THANKS TO YOU! I ALSO THINK YOU'RE SUPER CUTE! MUCH LOVE FROM AUSTRALIA ❤️🙏

Outstanding video! Very thorough and helpful.

I found the Hollister rings fitted my stoma perfectly. No need to cut.

There’s one group of people You left out of this post. That’s Carers. This post is a great educational tool for them as well. This should also give Carers of Ostomy partners, friends and family the confidence to be able to care for the Ostomy Person and help them if needed…… ⚛️☮️🌏

I want to thank you for the video my wife is going to have one at some point. Am so nervous to scared 😳 am feeling helpless for the first time 😢 am a EMT but been in the medical field for many years. As many things and I work in the operating room for long time. But it is different feeling since this is my wife 😭 your video is very helpful 😊😊

thanks for having the courage to show this. interesting. I would never know. so is that part sticking out, part of your intestine? does it hurt to touch? interesting.

@LetsTalkIBD

Жыл бұрын

Yep, it's my intestine! There are no nerve endings so I can't feel the actual intestine!

@sueh1091

Жыл бұрын

@@LetsTalkIBD thx!

It seems easy, until your the one with with the ilostomy bag. It was so hard for me especially when the tape would unstick and an explosion would occur. Sleep was deprived and I would also get panic attacks. God will I will be getting a reverse, until than I'm still a nervous wreck. Thank you for the advice

You did a great job!!!!

thank you you are so brave I'm a CNA and HHA and my neighbor has one. She is very uncomfortable with it.

Go Mags you are an expert

You are very courageous, Maggie.

I'm 33 I had mine since the end of August

I currently have colon cancer. If i need surgery I'll have a permanent ostomy. I told my doctors i want whatever will give me the best quality of life.

Thanks for posting... I'm new to the whole thing, just 5 months...still dealing with the head stuff ie down mood, stigma PLUS accidents while sleeping...👉🇬🇧👈👉💎👈ps SUBSCRIBED UK

@hannahk1306

Жыл бұрын

Have you found Hannah Whitton's channel yet? She has a stoma and lives in the UK, so has talked about things like what's available in the UK in terms of stoma care. I can't remember if her stoma content is on her main channel or her 2nd channel (More Hannah), but I'm pretty sure there's a playlist for it. She also had a baby last year, so there's some stomas in pregnancy videos too.

@alexmarshall4331

Жыл бұрын

@@hannahk1306 Hey thanks for getting back... I'll check that out... 👉💎👈

This is amazing and educational. Thank you!

Yes

thank you.

You are just soo brave

Thank you for the video! In LVN school and this was great! Will share :)

thank you, Maggie for your clear information and great videos.

Girl your literally superwoman 💕because I couldn’t imagine your menstrual cycle 😕

🙋🏼‍♀️ Jag skulle rekommendera att använda kompresser istället för papper som skydd. Kompresser är mjukare och fastnar inte lika lätt på stomin. Annat tips är att ligga ner för att komma åt att pudra under stomin. 👍🏻

Thank you for sharing

I’ve had a lot of surgery in my life this I would never have u do a great job but I couldn’t do it

Thanks for that!

Thank you for sharing this. Very informative. Take care 🙂

Thanks for sharing and educating

Dear Maggie, I suffered with Ulcerative colitis from 20- 22yrs old. I was born with this problem however it stayed in the background til age 19. After 2.5 years of cramps, bloody stools, losing weight and becoming emaciated and weighing 98lbs.,, severely anemic, menstrual cycles stopped

@robertwiley3098

Жыл бұрын

CONTINUED: I collapsed right at the G.I. Dr's. office and was admitted to the hospital on the edge of death. I spent 1 month there...1 or 2 weeks inagonizing pain unwilling to have the total cholectomy. I finally agreed then went through with the surgery. I have had a Koch pouch 1 yr. Later and a Barnett's procedure 20 yrs later. I'm now 72 and I never had a role model like you to gain confidence and self esteem. But I've been blessed with courage to forge ahead. God bless you for your mission and clarity to erase all the embarrassment and feelings of inadequacy that usually goes along with the journey. I've been married for 50 years and adopted 2 kids, 5 grandchildren, and live a wonderful fulfilling life. I feel blessed! P.S. I am beautiful & confident. I am Candy...Roberts wife.

@jazminedorsey6189

Жыл бұрын

IM SO GLAD YOU MADE IT YOU ARE LOVED 💕

Hollister ostomy bag. That got me 😂

are ostomy products expensive in America.. I live in England so I don't pay for my products its covered by the NHS.. so I was curious how much its costs in USA x

Thank you Maggie for sharing this video has given me confidence for sure xoxoxo