my sister died 2 years ago from CF. she has a video on here. Her name is Erin Errickson. :) my mom is a super hero. my sister has and always will be a guardian angle for every one she met. you are beyond perfect and you sir are adorable. keep on making your videos because they help me cope with loosing my sister. much love -Gerri :)

I am a mum to 4 year old daughter wcf. good video for parents that just got there child diagnosis cf. Glad you made the point about google☺

You are farking AWESOME my young man. Keep being that way.

hello I am Kim from texas I have cf I am now 41 I was diagnosed at2 yrs old. my mom and family taught me just be normal. yes I have good days and bad days. I love good days. keep up the great work

Awesome! Thank you for sharing :)

you remind me of my brother,(thank you for the smiles) my brother was an AMAZING young man brutally honest(if you really didn't want to know don`t ask him) he lived his life he wasn't mad at the world and this world will never be the same with out him..... I also have a son with CF it is soooooo hard not to be scared and cringe at some things... my brother was born severe but my son still at 12 has no symptoms..(we all know that can change) I am a google queen and as you said it makes it 10x worst... I have already seen the worst side of CF so why put all that crap in my brain... I relied heavily on my little brother to help when I had questions and just when I needed to talk... now I am on a few of the CF facebook pages its nice to talk to some of the ppl that where like my son growing up... and yes even though I am scared out of my mind(don`t think I can watch my son go through what my brother did the last few days,but we all have way more strength than we think) I let him be "Normal" he plays football he works on the farm with his dad(that one makes me cringe,all the poop and birds and silage junk) but he LOVES the farm he just got his make a wish he got three black Angus calf's to start his own herd...The only down side to letting him be "Normal" is he doesn't feel sick so he just kinda lives like its not there it is such a fight to get him to do his preventative treatments.... he only has to do two his vest and Albuteral inhaler...

@CharlesMichaelDuke

8 жыл бұрын

+Utana Anderson Thanks for sharing all of this Utana, the issue with compliance when it comes to treatments is one i get asked alot, and to be honest i can only ever give the same answer, you'll just need to persevere - one day it will occur to him why he needs to do them, but you need to wait for him to reach the conclusion himself, people telling him why he needs to do them just wont get through unfortrunately. I'm so glad to hear he is able to do what he loves without CF getting in the way, and hope you have many happy memories to remember of you and your brother. always send me a message on my Facebook page if you want any advice, :) - facebook.com/CharlesMichaelDuke

Stumbled across your videos after seeing you on loose woman, love your sense of humour :)

@CharlesMichaelDuke

8 жыл бұрын

Thanks so much! So glad you enjoy it! :D x

OMG I LOVE YOU 😂😂😂😂😂😂😂 you should make more videos your so funny and awesome, we'll get through this fight together bud x3 I got CF too. I was wondering if you've taken orkambi? Its awesome!

@CharlesMichaelDuke

8 жыл бұрын

+hangloose626 hey! thanks so much, im glad you enjoy the video! Unfortunately Orkambi is not available in my country yet (UK) but maybe soon! hope you're well x

@hangloose626

8 жыл бұрын

+Charles Michael Duke i am thank you! Oh that sucks i hope you can get it soon though its amazing! I just dont like the time gaps and that u have to take fat containing food with it xD but its worth it. My lung function went to a 70 within two months of taking it and before my lung function was a 50 and has never been a 70 sense 2011. Hows your CF goin?

@CharlesMichaelDuke

8 жыл бұрын

Its not to bad, currently on the Transplant list waiting for a double lung transplant. been 10 months now. Other than that, not alot to report! Glad its done good things for you! :)

@hangloose626

8 жыл бұрын

+Charles Michael Duke aw thank you. I hope that goes well for you i know it should because us CF fighters are strong and can fight CF and see the bright sky as a new day. We can beat it :3 i know we can xD x3 anyways good luck! Live long live strong