Thanks for sharing your experience with us, it was a pleasure to watch. It’s so interesting how everyone’s experience is different because I was told over time PP should get better. Unfortunately mine is getting worse. I’m nearly 25 years an hemipelvectomy left leg amputee and like you, feel the start of pins and needles in my phantom limb all the time. Thankfully I get episodes of pain maybe once or twice a week, four time in one week once and that was doing to kill me, then sometimes a break of weeks at a time. It’s horrible and I have found that meds when the episode begins is the only thing that helps, so grateful I don’t take them all the time but they make me feel sick too. I would rather be sick than having someone stabbing at my leg I guess The more we share with each other the more we can help each other and I also hear that PP can be reduced by wearing prosthetics which unfortunately I cannot. But happy to see your ability to manage and reduce, just wish I could get some relief after nearly 25 years

@ChristofferLindheTripleAmputee

2 жыл бұрын

Hi and thank you for your great comment. I wish I could help more in taking pain away also for you. But I know that there is rechart with positive results on medication free treatment of phantom limb pain in the university hospital Sahlgrenska in Gothenburg, Sweden. Hopefully that will result in change in treatment with better result soon. Best regards/Christoffer Lindhe

Your prosthetic arm looks really good, and well integrated to your body and movements. Sometimes I forget that you've lost your left arm.

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thank you Michael

I am a bilateral below knee amputee. The right leg 2016 and left leg 2019. I have phantom pain often. I talked to a nurse friend about my frustration in controlling it and she mentioned biofeedback. Listening to you and not feeling quite so alone in this battle has helped. I will most definitely try your suggestion. Thanks

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thank you for your comment and keep fighting the phantom limb pain in this way. It has really helped me

Thank you so much! My boyfriend lost his leg a few months ago and is really struggling with this pain. I’m so glad to know that I can help now because of your video. I just want him to be pain free. I am truly grateful to you!

@ChristofferLindheTripleAmputee

2 жыл бұрын

Thank you and I’m glad that my video was helpful. Pleas let me know if you have other questions/topics that you want me to bring up here on my channel.

You're amazing! Please keep sharing your very useful experiences. Thank you!

hej! Christoffer! Jag heter Yumi. I am an international student now studying in Sweden. I was searching on youtube about phantom pain because my research project is about that, and then i came across to your videos. I went through a lots of your videos. I just want to say that i am impressed by you! You have such an amazing personality! Really really respect! A true hero! You just made my day better! I wish too see more of your videos! You pure heart and smile and altitude really affects me!! Thank you for sharing your life here! ❤️ I wish you a happy 2021!

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thank you very much Yumi and thanks for all your great comments. I really hope my videos could help you in your project

Thank you so much for this... As a recent amputee this really helped a lot.. knowing that there are others also feeling the same as you.. thank you so much for this video.

@ChristofferLindheTripleAmputee

3 жыл бұрын

Hi! I'm so glad for your comment and it's possible so keep up the good work

Thanks for sharing! It helps me understand what I'm going through.

@ChristofferLindheTripleAmputee

4 жыл бұрын

Glad it was helpful!

Hi Christoffer, it is very interesting what you mentioned. Pain is very tricky. I wish I could do the same. I have chronic pain and need to take medication every day. Anyway I admire you and all you have accomplish with your life. I like that you try to help others! 😃

@ChristofferLindheTripleAmputee

4 жыл бұрын

Thank you Mara :)

thank you for the video, theres not much on youtube about it. im not an amputee but i struggle with chronic low back pain and in my opinion science should look at amputee people therapies as the basis for all chronic pain management and cure. the mechanism isnt different. in my case the body part is still present but my brain is creating pain and the cycle of increasing disorders that come. i think that a difficult part for chronic, not amputee pain patients is to accept the central origin of it and this can make the pain cycle stronger and worse over time. your "advantage" is that you are perfectly aware of the trick from the beginning. we have to learn from you guys, the techniques, the psychology of it. thanks.

@ChristofferLindheTripleAmputee

Жыл бұрын

Thank you and I hope you find a solution

@brendabates1746

17 күн бұрын

I have fibromyalgia & went to a physicist? to learn biofeedback techniques. They helped some. I'm also a RBKA since 8/23. Got my prosthetic leg about 6 wks ago & lear ing how to walk with it. I live in upper New England with 4 seasons. Best wishes to you

@brendabates1746

17 күн бұрын

Thank you Christoppher for this video. What was the accident where you lost 3 limbs?

Sorry about your pain!!! I too have missing parts and yes they hurt all of the time! At night it’s worse!

@ChristofferLindheTripleAmputee

2 жыл бұрын

Thank you for your comment. Yes that is true and by time we hopefully can manage them

Visualisation techniques just like you mentioned really do help, similar to mirror therapy. I find if I’m wearing my prosthetic and my eyes can see my prosthetic foot my phantom 👻pains stop Great post 🤗

@ChristofferLindheTripleAmputee

4 жыл бұрын

Thank you very much :)

@emiliecox5357

Ай бұрын

What if the phantom pain comes in clusters for hours on end? My husband has been an amputee for 56 years!! The pain has gotten sharper! I will show him your video.

@bluedeva

Ай бұрын

@@emiliecox5357 bless him that is absolute torture, especially when they come in clusters like that. I have met other amputees that have had their femoral and sciatic nerve numbed via injections to help numb the nerve pain down. The injections are normally done every 6 months (they follow the ultrasound to directly inject into the nerve) to keep the evil zapper phantoms pains dulled down. If you can definitely make sure to talk to his consultant about trying the nerve blocks or nerve injections. If he has a neuroma they can Botox those too 😉🦿🤗

Amazing.. just amazing.. wish you many blessings my brother 🙏🏻

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thank you 🙌

Best video ever...thank you Chris. Yoga's deep breathing exercises will work then, right?

Thanks so much for this information! I am a fresh amputee only a month ago. I pray that Goď must help me to where you are without using meds,and with a prosthetic leg. I know it's a journey but I must just hang in there. God bless you! Althea Reeds in South Africa!

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thank you Althea! It's a struggle (especially in the beginning) but you will definitely handle it. If you have any questions or problems you want me to bring up here on my channel please comment and I will try to make a video regarding my point of view of it. All the best to you/Christoffer

Thank you I'll try what you said about dealing with the pain

@ChristofferLindheTripleAmputee

4 жыл бұрын

Hi! It works but it takes time and you need to keep focusing

2:42 HE SAID IT

@thereisnoname7506

3 жыл бұрын

My arm, my leg, even my fingers

thanks for your video it really hepls i lost my arm and the pain is really killing me… but now i'll do my best to forget about the pain

@ChristofferLindheTripleAmputee

2 жыл бұрын

Hi, Yes keep on fighting with other things, so your brain is occupied with other things than focusing on the pain. it will eventually get better and better

@moali6174

2 жыл бұрын

@@ChristofferLindheTripleAmputee I need your help and guidance on something

Once the meds no longer become effective (as they usually do), it really seems that as part of the rehabilitation process, amputees are taught the fundamentals of meditation and mindfulness. As a recent amputee, I'm definitely going to start "talking to my own brain" and shutting down the signals that it constantly wants to fire off. It's almost reassuring to know that the pain and discomfort we feel are just an illusion for the most part and therefore, something that we have a certain amount of control over.

@ChristofferLindheTripleAmputee

3 жыл бұрын

Yes, that's true. It can be controlled, the brain creates the pain and therefore it needs to fully focus on other things instead of the phantom arm/leg. Keep fighting and you will get there. 😊

Hi sir how much cost in upper limb pls

By the way, I am an incomplete quadriplegic and don't have a lot of sensation. and am getting a right hip disarticulation. I'm assuming quads not feeling a lot is along the same track...the brain can't receive messages past the spinal cord injury point. That would be in my favour, right? Anyone feel free to answer this question.

You are amazing!🌟

@ChristofferLindheTripleAmputee

2 жыл бұрын

Thanks and I hope the video was good inspiration.

Thanks for sharing Bro! I'm a left arm amp from the shoulder. Got off all heavy meds last year and now take LYRICA which helps w the burning. I get so sore in my shoulder muscles... Anyone have any tips for dealing w that? I also do much better drinking tea than coffee which always makes me burn. Much Love and Big Blessings to all!

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thank you for your comment. Good that lyrica and tea helps. When it burns, is it possible to think or do something to distract away some off the pain?

I have my legs amputated. And I don't feel pain I just sense something tighten me up. And it feels really uncomfortable.

@hyenalaughingmatter8103

4 жыл бұрын

im heahlty person but thats all in your head.

@ironbutterfly12

4 жыл бұрын

I have heard that amputees often have a phantom feeling of the amputated parts of their body; like you feel it is still there though it is not? Is this true?

@vinnytheca4204

3 жыл бұрын

@@hyenalaughingmatter8103 phantom pain is very real.

@morgancalvi6675

3 жыл бұрын

@@hyenalaughingmatter8103 that was kind of mean.

@hyenalaughingmatter8103

2 жыл бұрын

@@morgancalvi6675 I mean he has to think not about it.. its like smoking dont think about it be head and mind strong ;)

I’m a left-ak amputee, secondary to a traumatic bk amputation in an auto accident back in 1995. I’m currently suffering through another bout of severe phantom pain which has now severely gotten worse after watching this video, as you said happens. I’ve never heard of this specific concept before, but it’s so severe right now that I’m having to pause after a couple of words to get it to calm down. Please, please, if you have specific techniques on how to get my mind off of the pain, let me know. I’m completely incapacitated whenever these bouts hit and it’s extremely frustrating! I’ve had iffy results with meditation and “mind over matter” in the past, as I’ve got a very insistent and argumentative inner critic that rejects ITS reality.

@ChristofferLindheTripleAmputee

3 жыл бұрын

Hi and thank you for your comment. Severe phantom limb pain is very hard to handle instantly, this concept takes time. But one thing you could try directly when the pain comes is heavy exercise or some thing similar that really requires all you focus. Because it’s the brain that is creating this pain, so the brain needs to be fully focused on something else and eventually (takes time) start forgetting about the phantom limb. I really hoping for quick results.

My son been experiencing phantom limb pain.

Christopher have you tried DMSO for phantom pain? If not PLEASE do.

@ChristofferLindheTripleAmputee

3 жыл бұрын

Hi okay, I will look into that

Wou

I'm a new amputee patient and I'm dealing with a lot of phantom leg pain I lost my left leg due to an accident when a forklift ran through my tent and someone ran over my foot at 12:30 am and I was rushed to the va hospital where I lost my left foot what can I do to stop the pain

@ChristofferLindheTripleAmputee

3 жыл бұрын

I'm sorry to hear that, the only comfort I have to say is that it will be better by time and speak to your doctor if you need help.

Tjena!

@ChristofferLindheTripleAmputee

3 жыл бұрын

Tja :)

HELLO CRISTTOFER ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️

I have heard that amputees often have a phantom feeling of the amputated parts of their body; like you feel it is still there though it is not?

@ChristofferLindheTripleAmputee

4 жыл бұрын

Hi! Yes that's true :)

Ye India me kha milega ye bta

@darshanghadi5890

4 жыл бұрын

Endolite, mahim, mumbai

Hello

@vinnytheca4204

3 жыл бұрын

Hello

Why u r name in the channel is in Arabic?المبتور الثلاثي؟

@ChristofferLindheTripleAmputee

3 жыл бұрын

Hi, I dont know :)

@user-ku6zw6jf5r

3 жыл бұрын

@@ChristofferLindheTripleAmputee omg u did talk to me. I don't believe it. I love you man .i love you..wish you good life.

I need your email

I'm not an amputee but here anyways

@ChristofferLindheTripleAmputee

3 жыл бұрын

Thats Great :)

Feeling limbs is not phantom limb pain...it's phantom limb sensation...two different things.