Welcome to my new viewers! I encourage you to watch some of my other videos, as I explain what this surgery is as well as life BEYOND my bag! ♡ Thanks for watching!

@brahimbarhom2067

4 жыл бұрын

Goad bless you ..from algeria

@lovelybutterfly3047

4 жыл бұрын

Virtual huggs fr you and may Allah swt grant you good health ❤️❤️

@ferrell4real887

4 жыл бұрын

Hi ur so inspiring. I am young and have serious health issues as well. May I ask how old u r. How is your support system ?

@keithparkhill8546

4 жыл бұрын

Have you ever tried to "train" your colostomy in order to avoid using a bag?

@pakistantalks

4 жыл бұрын

I wore that for three months and its a real pain .

I don't know how I ended up here but all I'll say is this; I have mad respect for you. Period.

@JQuaylin

3 жыл бұрын

Exactly what happened to me, i stumbled onto her videos and Boom RESPECT.

@OCL131

3 жыл бұрын

Huuuuuge respect. So interesting and really empowering to speak about it so normally and relaxed. Brilliant video

@LianaSeini

3 жыл бұрын

Same - so brave

@jaylin6274

3 жыл бұрын

You should have respect to everyone

@LianaSeini

3 жыл бұрын

@@jaylin6274 ? Would it have made you feel better if the comment was “ I have mad respect for everyone “ it would have made me feel better if you had a grammatically correct statement....”you should have respect for everyone “.... in any event irrelevant in both cases

I just discovered today my daughter who is 14 years old will have this surgery to remove 90% of her colon :( I have shown her your videos. Thankyou!! You're truly an inspiration and very beautiful inside and out. God bless you xx

@jayroy6729

4 жыл бұрын

I hope she is doing well now!! My prayers and love for her 🤗🤗

@whit6079

4 жыл бұрын

No don’t!! Have her eat according to her blood type. And food journal. Remove all grains and dairy. Please oh please. My moms inside are pretty much gone because her doctors told her it wasn’t food related. She know controls her IBD from supplements and food for her blood type

@isabella-jq4cp

4 жыл бұрын

@@whit6079 what?

@chebelo3750

4 жыл бұрын

@@whit6079 oh maybe your advice is a little bit too late... her comment was a month ago.. they should try another treatment before sorting to an operation.. like i was told that i need an operation because my gallbladder was full of gallstones. but instead, my husband looked in yt for natural remedy for gallstones and we were happy coz i don't need any operation now..

@whit6079

4 жыл бұрын

che belo yes I hope it isn’t!! It would break my heart. That is amazing!! I am so happy you decided to do your research. Most people trust doctors and operations. Seeing what my mom went through having crohns and ulcerative colitis I had to do something different.

As a new nurse who's never done this before, thank you so much! Videos like this help us become better nurses for our patients :)

@Sherry-jx9hs

2 жыл бұрын

They need to train nurses about this so they have an idea. I recently was awarded a stoma and I got a kinda crash course from a nurse who was a specialist in ostamy issues but there is so much you kinda learn by doing it and finding what works best for you since all bodies are different. Watch these videos and they will help you in case you need to help a patient or do an actual change. There are things that can happen during a change like the stoma becoming active and pushing out stuff so keep a tissue ready. Good luck in your career :)

Dear God if I ever complained about anything PLEASE FORGIVE ME, I’m sorry. This lady was smiling the entire video and not one complaint. God bless you.

@people_watcher

3 жыл бұрын

I couldn't agree more as I lay here in depression and haven't functioned in 2 weeks. Time to snap tf out of it.

@Its_Asteria

3 жыл бұрын

@@people_watcher you can't just snap out of depression. Not how it works.

@people_watcher

3 жыл бұрын

@@Its_Asteria , I know. Its killing me :(

@typicallyusual6984

3 жыл бұрын

nicolejurgens2 Hey, just wanted to say that your problems are every bit as valid as anyone else’s, and just because she has a problem that she is used to dealing with that you have no experience with, doesn’t mean the problems you do have experience with are lighter or easier. I have pretty severe and debilitating depression at times, and just because you can’t see it the way you can see a stoma doesn’t mean it’s any less real or painful and difficult. So the least you can do for yourself is to not blame yourself, just like you can’t blame anyone for having a stoma. We have our hands full just taking care of ourselves let’s not put that extra stress on ourselves and compare ourselves to others 😉. I hope things will get better soon for you though. ❤️

@katet4554

3 жыл бұрын

I know, I’m an ungrateful, healthy bitch......... I don’t think I could do what this girl deals with everyday. I’m very squeamish!

My mom had diverticulitis of the colon She refused the surgery, because she did not want to have a bag on her belly that way. She died three days later just like the Doctors told her she would if she didn't have the surgery. Oh!!! how l wish l could have shown her this video So that she would have known it is not as bad as she may have thought and she could still live life and be happy too. THANK YOU FOR SHARING l truly believe that you are saving lives by doing this. Again thank you.

@Isabellalovesyouso

4 жыл бұрын

I'm so sorry for your loss

@GinaMmaduPharm

4 жыл бұрын

Sorry for the lost, I know that accepting such lifestyle is difficult not just because of dealing with it but also dealing with people and their expressions and opinions about you.

@ravenesqueone3033

4 жыл бұрын

Bernadette Martin - I refused to sign the ok for surgery in 1987, to allow me to die. I have not changed my mind to this day. The hospital was able to override it for 2 reasons. I believe that’s why Farrah Fawcet died, not wanting to have an ostomy.

@johncavanaugh2517

4 жыл бұрын

Was she going to have a permanent colostomy? I have diverticulitis as well, my intestine perforated while I was in the hospital. They did an emergency colostomy, but it was temporary, it was removed 5 months later. It was inconvenient but you get used to it. I wish your mother could have seen the Utubers who have colostomies how they deal with them. So sorry for your loss.

@rajveerrajveer4872

3 жыл бұрын

Hello

As a nurse this is a brilliant tutorial. I think it's great that she's sharing this. Keep up with educating the ibs/ibd community!

@Madisontouchette13

3 жыл бұрын

And the SBS coumunity.

@Goldenretriever-k8m

3 жыл бұрын

its not ibs, its crohns. i dont think ibs people need colon removal ever

As a care assistant I change stomas on the daily I’ve never seen this technique before it’s so amazing and I have to say that stoma has to be the cleanest one I have ever seen!

@reneea7811

3 жыл бұрын

So I have to know... will you be changing your technique now? Serious question! I mean, I'm psyched by the idea that this video could be helping not just patients but healthcare professionals!

@DuffMichi

3 жыл бұрын

@@reneea7811 I work as a care assistant as well (during summertime) and I think we learn a lot from patients. The one who thought me how to take care of a stoma was a inpatient. I got training later from a nurse, but the patients have another insight. So yes we can always learn more and get more tips and patient insight. (I’m sry about my writing, English is not my first language)

@reneea7811

3 жыл бұрын

@@DuffMichi Thank you for what you do for others AND how you are willing to learn from others no matter who they are 💜💜💜💜💜

@reneea7811

3 жыл бұрын

@@DuffMichi Thank you for what you do for others AND for being open to new knowledge or experienced wisdom no matter who offers it! And learning a second language isn't easy, so you have my applause for communicating anyway regardless of your proficiency - that's exactly how you WILL master another language 🙂🙂🙂 You Are Awesome!

Your transparency, generosity with your knowledge and experiences, and the joy & confidence you exude despite the challenges you have faced are super inspiring. God bless!

Every time I come around this kind of content I'm glad these KZreadrs exist. We use to watch people with the '' perfect" life, but nothing of what we see is always reality. Thank you for showing us real life, thank you for showing us your condition, thank you for showing us your strength.❤️💪🏻

@judyjudyjudy9593

4 жыл бұрын

Neme Sis...it is so important to know these things. When I was young, we were not even exposed to wheel chairs, when I would see one I would stare...not because I thought it was awful but because I didn't understand or know the existence of one. I think it is so wonderful how all of this is brought out in the open for all of us to know about! Thank people like Maggie that will share the story!!!!!

@buckfutter99

4 жыл бұрын

Nobody has ever had the perfect life, we all start it crying😂

@lesy9407

4 жыл бұрын

I just thought to myself "why am i watching 'celebrity bs' when i can watch people like her that actually matter and talk about truly important things in life?" I agree 100% w you. Thank God for her life and courage to help people.

@RedRoseSeptember22

Жыл бұрын

@@buckfutter99 I like that :D we all start life crying ♥

My husband recently had 12 inches of colon removed due to colon cancer and now has an end colostomy. When we heard this might be a possibility, I began researching and came across your videos. I want to thank you for all of the honest and detailed information you provide in your videos. It really helped both of us be more confident and know a bit of what to expect when it came time to get down to business. He is legally blind as well so I help him with some of the maintenance of his stoma, flange changes mainly. we have found the Sensura Mio Click non drainable bags were a lifesaver for him being able to change the bag himself after his recovery from surgery. We went through several types of bags and found they were the best ones for his independence and comfort. Thank you again for your videos, you really helped a scared wife and newbie ostomate out during a scary time!

@RedRoseSeptember22

Жыл бұрын

♥

My wonderful mom had a bag and I changed it for her. I cleaned her area and the bag and put it on her. At first, it was a little emotional for both of us, but, like anything else we got used to it and we had a great routine. God bless you for showing people that we can overcome some of the hardest changes in life. Thank you!

THIS IS WHAT ITS CALLED TO SMACK LIFE BACK! YOU'RE SO STRONG . THANKYOU FOR INSPIRING ME TODAY

@bernadettehynes-cafferkey3917

3 жыл бұрын

Like that expression, smack life back 😂😂😂

This is an Great Example of Body positivity, She has the confidence and the bravery to not only show what she does for herself but also giving advice for people experiencing Crohn's Disease, showing that Your are truly Beautiful no matter what you look like and what you feel like, She Gives so much hope those who feel unconfident, or people who are struggling with disorders and that truly is the greatest gift this world has gotten.

A friend was due to have the surgery to save his life. He refused because he was scared of life afterwards. He died last year. Miss him so much. Wish I had discovered your channel earlier so he could see how life can be afterwards. Thank you so much for this. Seriously trying not to cry now.

@TheRubinator13

3 жыл бұрын

Im very sorry for your loss, but I doubt showing him the videos would have made any difference. Honestly, the more videos I watch of these I would agree that I too would rather die than go through this as a treatment Everyone is different, and everyone should have the right to choose what option is best for them

@maryfletcher3906

3 жыл бұрын

@@TheRubinator13 I knew him. It would have made a difference. He never got a chance to see what life after the surgery was like. Hear someone who went through it talk about what life was like. He simply believed his life would be over. A month before his death, he told me he wished he would have gotten the surgery but it was too late. I still wish, I had pushed further at the time.

@TheRubinator13

3 жыл бұрын

@@maryfletcher3906 that makes sense, and again im sorry for your loss. Its never easy to lose a friend 💛🧡❤

@PixelatedFaerie

3 жыл бұрын

I lost a friend to Crohn's. I wonder if this could have saved his life. 😔

@Goldenretriever-k8m

3 жыл бұрын

@@TheRubinator13 I'm sorry... you would rather die? Come on. It's hard but you would rather just not exist? It's not like it causes chronic pain. You can live a good quality life still. That's just pathetic I'm sorry and frankly insulting as hell to people who have this. It's like you are saying you'd rather be dead than be them, when they are living just fine, differently and inconvenienced and it's a challenge, but still just fine.

My dad is coming home here in a few days with his ostomy bag. He’s battling cancer so I wanted to figure out the easiest way to help him change his without making it a long and annoying process for him. This definitely helped me and gives me a lot of hope with helping him. Thank you so much. ❤️

I often come back to this video 📹 I had colon rectal cancer in 2018 and now have a permanent colonostmy and I got the Barbie butt all at once. It was alot to swallow but watching your video has help make life easier SO I APPRECIATE YOU. 💯

When I first watched your video I had tears in my eyes, because as a mother, I felt so sad that you've had to go through this. But then I really watched you, & I saw a beautiful girl with a fantastic personality who was'nt feeling sorry for herself, & would'nt want other people pitying you either. You've certainly taught me a lesson, thank you. You're fantastic in every way. God bless xx

I remember when my colon first ruptured last year 2019 and I had to get a ostomy I was so scared and went through so much because as that was happening I was also battling lung and stage 4 lymphoma cancer all at the same time. It has been a journey and it's nice to see others that have an ostomy too it reassures me that I'm not alone. Thanks

@KarlaLopez-di7ks

4 жыл бұрын

How did you know you had it or what did it feel like?

@adamlee6392

4 жыл бұрын

I'll pray for you!

@Kanhje1

4 жыл бұрын

@@KarlaLopez-di7ks the cancer or the ruptured Colon? Because the ruptured colon was the worst feeling in the world it felt like something exploded inside me. As I got rushed to the hospital I barley remember anything and when I woke up I had a stoma and just had to right away learn all I could about it. And both cancers came at the same time I was dealing with my colon and stoma it all just happened out of nowhere

@Kanhje1

4 жыл бұрын

@@adamlee6392 thank you I really appreciate it. I fought so hard last year but I'm doing much better now

@Kanhje1

3 жыл бұрын

@@ViralVibes_01 thank you I really appreciate you ❤❤

I'm impressed about how you look positive, though I'm pretty sure you had some moments of despair because of it. For real, you're strong, wayyy stronger than a lot of people.

@mariog7763

3 жыл бұрын

Chantou we have to be strong it’s not easy living day to day not knowing what’s around the corner with having an ostomy bag . Having a heart man reversal is even harder to recover from

What I love most about you Maggie is your cheerfulness and high spirit about your condition and how you live with it. Most people who don't have any severe medical conditions are always unhappy and complaining about what's wrong in their lives and what's missing, 🙋‍♀️ myself included or if they get something that isn't so severe they'll complain and feel like it's the end of the world; but your positivity and acceptance of your situation and normalizing it in your videos is a true inspiring lesson for everyone really. I wish more people had your beautiful spirit and heart, I wish I have that positivity. Please keep doing what your doing because I'm sure you're helping more people than you think. Many viewers may be experiencing ibd and crohn's disease and your videos is their guide, and others need to know how one should embrace whatever they have or whatever God has brought on to them and learn to turn their life around in a positive way, like you're doing. God bless you and your husband ❤ stay safe 🙏🙏🙏🙏

@speakrighttogod

Жыл бұрын

Yes, what Chica said!!! 🤗 Bless you dear one for sharing your victory and inspiration. You've helped and inspired MANY!

Your upbeat attitude and calm approach to a life-changing situation are so wonderful! Thank you for boldly demonstrating how to deal with the mechanics of dealing with ostomy bag. Not something anyone wants, but it is a way to choose life, just like using a feeding tube, or a catheter...anyway, thank you so much for sharing, and may God bless you!

Hi Maggie, I just want to say how amazing and resilient you are. I'm a RN on a GI surgical floor and I have learned so much from you. Thank you for your wisdom and encouragement. I will def point patients in your direction that are ready to learn and appreciate online support. Thank you!

Maggie - you are providing a wonderful service to so many. Kudos to you and thanks to your sponsors who recognize your value. Please know how grateful people are for the information you provide. You’re truly inspiring.

I really admire how open and brave you are to show us and talk about your stoma. A truly bubbly and beautiful person too.

Such a strong wonderful woman.

@kirbyluver

4 жыл бұрын

@@mrpanda2655 leave the girl alone

@almamacleod2778

4 жыл бұрын

You are amazing girl better than people out there without a bag just like me with an urostomy love you girl xxx

@nogoglobal

4 жыл бұрын

Girl if u read this I admire u..so young to be going thru such a challenge..wishing u a happy long life and thanks for the informational video. Hope these fker on here putting u down get their bag someday.And yes those assholes will cry like babies cause they are fkking stupid. Sorry stupid ppl make me mad!

@LetsTalkIBD

4 жыл бұрын

Dont worry guys, I'm a big believer in karma and have seen it work its wonders! Removed their comments:)

@almamacleod2778

4 жыл бұрын

@@LetsTalkIBD hope she gets my ex husband for leaving me alone six months after my operation I'm now ten months after my operation it's hard but I get by with my three dogs they make me live and survive with my stoma love you girls my little furbabies xxx

This makes my heart ache a little and make me appreciate what I have. Thank you for being so strong and positive

@Lauranessa1

3 жыл бұрын

Same here. I never heard of this. KZread really helps with educational part for sure!! Wow!

@carolynemuendo3864

3 жыл бұрын

God is for you 🙏 He will strengthen you and wipe all your tears,God loves you He has good plans for you don't loose hope God won't let you suffer be happy better days are coming God will change you and your life 🙏🙏

I just mentioned to a friend today that my grandma is using ostomy bags. And now this video popped up. I was surprised to see that a person of such young age has the same problem. And by reading the comments, I understand that there are even younger people going trough this. It's admirable that you are handling it as best as you can. I wish you the best and I hope you remain in the best health possible.

Wow. Idk why this was in my recommendations, but God bless you because you go through so much yet you’re still able to smile and that right there just warms my heart. ❤️

@LetsTalkIBD

4 жыл бұрын

We each have battles and this just happens to be mine. I believe everyone has something to teach!

@violin4771

4 жыл бұрын

❤ love you girl

@mauricefuqua2414

4 жыл бұрын

@@LetsTalkIBD I'm new to your channel great content 💜💛

@nicolefrancois2263

4 жыл бұрын

She's so strong

I had a crash course on colostomy bag changes when my mom had colon cancer. At first, I experienced some anxiety but soon after I had no problem. My mom was relieved and that was all I needed to know. It became so normal to change the bag. I applaud you for having a methodical system that makes it look very easy. Your attitude is wonderful, positive and very brave.

I hate that people really had the audacity to dislike this video. Its informative and insightful, like why??????

@Audiiadro

3 жыл бұрын

@SmagelWOW dude you cared enough to comment? Also the fact that this woman has a chronic illness that a lot of people don't understand and mostly likely disliked it because they think its "gross" is beyond childish. Just like your absolutely unnecessary comment. I hope you don't ever end up wasting your time and energy doing something that pointless again. Take care.

@livjunqueira1131

3 жыл бұрын

Adriana Schilling Human beings, sometimes, can really be strange . Don't waste your breath on the dislikes. This channel is very informative and it is helping so many people! Having gastrointestinal diseases of any kind can make anybody miserable and going through what she had and making these videos for so long shows her strength and commitment. Thanks for the medical advances, we have all those possibilities of living longer and with quality. Hoping for her to keep updating us and success on their business endeavors.

@Audiiadro

3 жыл бұрын

@SmagelWOW what you meant and what you said are the same thing. Reguardless still a waste of time and unnecessary, when you could've not commented at all.

@Audiiadro

3 жыл бұрын

@SmagelWOW Again, you are responding for what? To poorly get a rise out of me? To cure your bordem for a brief instance. Fuck off, and be unnecessary in silence.

@badxmemezz1242

3 жыл бұрын

@@Audiiadro PRYAT😍

These videos are very helpful. It’s the first time I ever see a video on the subject. My husband RIP, wore an ileostomy bag from 1969 up until he passed in 2015, and this became very helpful because in 1974 he became a quadriplegic in a car accident and I learned to take care of it. Thank God he never had any problems with it. His ileostomy was caused by ulcerative colitis. Thank you for sharing your experience with a lot of people who do not understand this. God Bless you.

I’m a new student nurse and I’m so glad you posted this. I’m finding awareness to all the different conditions and seeing such brave and confident people like you just moving on with life so inspiring. ❤️❤️

I salute the way she is living full of life 🙌 even after that much happened in her life ....a true inspiration to live the life fully

@mikaelcyr3942

3 жыл бұрын

I would like but.... Nice

I can't thank you enough for posting this video! I've had colon cancer twice and have a foot left of my large intestine. On a good day I spend 3-4 hours in the bathroom in pain. On a bad day, between 9-12 hours. I've given myself nerve damage in my legs from sitting for so long. My kids are really pushing for me to have an ostomy done because they "miss me and want their Mom back." I promised them I would even though I'm terrified. The idea of a bag of poop hanging off my belly was the worst thing I could think of. Thank you for showing me that it isn't that way, that it's not gross and life can successfully go on, even with an ostomy!

This woman is an inspiration for people god bless you

@vittoriaadel7949

3 жыл бұрын

Yeah, God bless you

@ummusaudah7502

3 жыл бұрын

@@vittoriaadel7949 ini aja kita bisa

@vittoriaadel7949

3 жыл бұрын

@@ummusaudah7502 wath?

You help so many people understand and hopefully take the fear out of it.... my mum died of bowel cancer 23 years ago, and she had bag, it’s a pain , but it saves life! Had a horrid year with my best friend getting cancer of bowel, but hadn’t spread and just had the reversal... so very happy got my best friend since 4years old.... your confidence and upbeat nature will help a lot if people, I have chrons and test each regular for cancer as mum got it early 50s and died 56.... so any changes to vowel habit guys get checked out!! Thankyou again.... your a star 🌟🥰

@leanney3763

4 жыл бұрын

Thankyou sweetheart... my faith is strong John 5:28 🙏rev 21:3,4

@bartronflatearth6912

4 жыл бұрын

@@leanney3763 You should look into German New Medicine

I admire your courage about sharing your medical issue with we the viewers. My brother has one that I had to learn how to change before he was able to. He had an emergency surgery for a ruptured colon. He is 83 and it was difficult to learn how to do take care of his bag. He has a longer one but does the same as yours. Thank you so much for sharing with us as it does help.

I love love love how much information she gives in her videos! She talk about everything and makes it feel less embarrassing. She just amazing!

@GiftSparks

3 жыл бұрын

I am endlessly impressed by her. I learn so much by watching this channel.

Ive just started working as a HCA and stomas still make me nervous when i am asked to change them. Thank you for this video, seeing you so calm and how easy you changed it makes me feel a bit calmer about changing them for work. Thank you for sharing. x

My mum had a bag for years after a cancer. She always did it by herself, often crying discreetly. She's gone now... But thanks to you and this video, I'm ready to help anyone who needs help changing a bag. Thank you.

@baeksangel1039

4 жыл бұрын

Petite Jarre d'Eau sigh, i’m very sorry

@alexialmao1104

4 жыл бұрын

Im so sorry for that..im sure your mother was an amazing and brave woman.

@annacamila_

4 жыл бұрын

Thank you for sharing your mother story. 🌼

@bachumiya5001

4 жыл бұрын

@@alexialmao1104 kkk

@alexialmao1104

4 жыл бұрын

@@bachumiya5001 what?

Maggie, “thank you” is not big enough. Thank you for walking us through the pain and uncertainty. Thank you for being a few steps ahead of so many people in this stage of IBD. Mt God...your resilience, honesty, and humor. Thank you for your joy. Zach, “thank you” just doesn’t cut it. I have been a caregiver as a mom for my child with Crohn’s. He has responded to treatments. But this has been my worry. You have stepped up bravely to walk with Mandy through these major adjustments. I love you, man. You are showing partners and caregivers how to adapt. Your videos are LOVELY. You both give me hope and peace. “Thank you” is not enough!

@LaurieButts

4 жыл бұрын

“My God” “Maggie”. and no, I don’t play the piano any better than I type.lol

When I was a child I had a ostomy. I was so so so so so convinced I'd never be able to live my life or ever have a normal life. So at 14 I chose to get it reversed. It took 8 major surgeries. 19 Months in and out of the hospital with the longest stay being 4 months without going home or getting out of bed. The pain was horrible and I'm sure I lost all ability to have children of my own. I can't imagine having it still. And there will always be a possibility of me needing one again. This gives me hope! Thank you for sharing. Because it shows me that I could have lived normally if I never gotten it removed and if (God forbid) I ever need one again

@yoongs3878

3 жыл бұрын

More power to you. I can't imagine it

@poppadoc.

3 жыл бұрын

If it needs to be done then so be it. Who knows I might need one someday and if I have to have it to see my kids grow up, I won't hesitate after exploring all avenues of course.

I had diverticulitis the worst my surgeon has ever seen. They removed over half my lower intestine. They didn’t know if they could put me back together. I was feeling hopeless and came to terms with it. I stumbled across your videos. It was so nice to see what and understand what i was going through. Fortunately there was enough left to put me together again six months later. I want to thank you so much! Your upbeat attitude and understanding was so helpful! You gave me hope when i thought i couldnt be what i once was. Im not now, but from a former ostomate to another, and all ostomates, thank you! You all went through it with me and was there for me! I love all of you for never allowing me to give up hope. I mean that!! ❤️❤️❤️❤️

Maggie: I hope you realize how useful and informative your videos are and you keep making them. After a diagnosis of colorectal cancer, I am having a total colectomy and proctectomy with an end ileostomy in three weeks and I have watched most of your videos and made notes of your recommendations. I get a lot of comfort from watching how naturally you deal with your stoma and, although is definitely not an ideal situation, it is a life saving one and I choose life. Seems like a small price to pay to continue enjoying this beautiful existence. Thank you and keep them coming!

@chrissyk3783

5 жыл бұрын

Hi sergio....how did your surgery go? Im pretty sure im going to need a proctectomy myself...quite worried about it but life saving yes! If you dont mind let me know how it went for you....im hoping your doing much better! Hugs

@snivly2066

4 жыл бұрын

Sergio Seplovich hope your surgery goes well or went well. It will be rough in the beginning but it will end up being your new normal And will be fine! I was devastated when I had

@LetsTalkIBD

4 жыл бұрын

@@chrissyk3783 it went fabulous! Recovery has been easier than I expected (knock on wood it continues)

@chrissyk3783

4 жыл бұрын

@@LetsTalkIBD awesome! So happy for you that it went well!

Sometimes we complain for no reason but after watching her life story, I feel so guilty. I really appreciate your courage. Gid loves you.

@lily-hazy8823

3 жыл бұрын

hey just coming from a chronically ill person, most of us chronically ill people don't like it when others put down their own problems just because we have health problems. we do complain about our health. maybe not on public forums when we try to educate others. But to us, reading comments like this makes us think "wow they really think our lives are so fucking awful that their own problems are some how invalid and not worth venting about." It's not the big compliment you think it is. Treat yourself kind and give yourself some grace to complain when you need to complain - cause we do the same damn thing. Just with different bodies. we too complain for no reason about daily life annoyances.

I worked on a GI floor and I’ve emptied many colostomy and ileostomy bags! That bag looks so much nicer then the ones we used in the hospital. My dad is a GI doctor and actually does the surgery for them! He will also reverse them after 3 months or so. Doesn’t happen often but it does happen! That you for educating people about your normal and being so open about it! 🥰

@cockeyedoptimista

2 жыл бұрын

Reverse? Reverse? It can happen? I'm in a rehab recovering from heart surgery that had a complication of perforated colon. Having LOTS of trouble with stoma and ostomy bag (care here lousy, too). Hard to be positive - this young woman is super inspiring - but it's hard to imagine feeling alive again with this stoma here. I feel so bad that this woman lost her stomach, though. MY stoma is super swollen right now; they think I'm constipated, may even be another blockage. It's hard to get exercise with my heart recovery as the sternum is still healing and there are movement restrictions. Anyhow, I've lost MANY things from all this, and I'd love to get the surgery reversed. They Said it would likely be temporary, but things I've been reading say people got used to it and don't Want another surgery: the risks, etc, etc. Is it possible you can render an opinion about this? I've been so sliced and diced up. I'm older than this vibrant young woman and my long stay in hospital plus two week delay in getting help -- anyhow. (No insurance! Long story. Had to replace mitral valve: it broke: 70% of blood was flowing wrong way in heart.)

@SarahDeLaurier

2 жыл бұрын

@@cockeyedoptimista they can be reversed but only if there’s enough colon left. So sorry you’re going through a lot!

@cockeyedoptimista

2 жыл бұрын

@@SarahDeLaurier Thank you so much for your kind reply! Amazing to have a parent who does such work. I had a follow-up app't with my surgeon yesterday morning and he said they had always planned for my stoma to be temporary! I was happy to hear that. (They'd said so in beginning, but I wasn't sure they meant it.) (Not sure I Want more surgery; but - we'll see.) The "team" was very positive, said incision was healed (took out staples)... I got a hernia, hence the "trouble": protruding a lot: but they said not to worry too much. That was too much info, sorry. But thank you again, it was kind of you to reply and be empathetic to a stranger. I have more empathy now, too: going through physical difficulties is quite hard indeed, and there is always someone much worse off. (Further, in my case I have only my own poor self-care and poor decisions to blame. Tough lessons - but I'm still alive.) - Wondering if you're in medical profession too?

@SarahDeLaurier

2 жыл бұрын

@@cockeyedoptimista you’re welcome! That’s so good to hear! I hope they can reverse it! Sometimes they just need everything to heal first before the do a reverse. I’m a certified nursing assistant (CNA)!

@cockeyedoptimista

2 жыл бұрын

@@SarahDeLaurier Thanks for your insight and friendly reply! Thanks for saying you're a CNA; the ones I met were So caring and hard-working. It's a heroic profession, I was so grateful bc it's hard to do that during the pandemic and all those people literally saved my life. Bless you all. Cheers, too!

You are incredible. I know this is a highly personal activity - it is so awesome of you to be willing to educate people about how ostomy bags work. It makes Crohn’s and its effects a tiny bit less terrifying. 💗

@garystein7883

3 жыл бұрын

Yes she is.

@garystein7883

3 жыл бұрын

Good day Kristita and how is the weather over treating you?

I have Crohn's and I can't compose myself to write anything more than "thank you."

@mandeepkumarkhosla5109

3 жыл бұрын

Nic busy

@garystein7883

3 жыл бұрын

Good day Rachel and how is the weather over treating you?

I'm a 58 year old man that's had Crohn's disease since my early 20's and I admire your courage to make videos about these things. I have had 1 small intestine resection and fortunately haven't needed a colostomy and I appreciate your ability to normalize the conversation around Crohn's, Colitis and IBD.

@moncrnn5858

4 жыл бұрын

I'm 10 and I have depression and bruises all over my body

@moncrnn5858

4 жыл бұрын

I'm 10 and I have depression and bruises all over my body

I don’t have this but my dad does and my mom had a temporary one so that’s why I’m here. I know through seeing what my dad goes through and what my mom went through that it’s not easy. There’s times that my dad can’t go anywhere for days because his skin breaks out and he can’t wear his bag. He is also super embarrassed by it. I wish he had internet because he would probably feel much better if he could watch your videos. You’re such an amazing soul💕

@walkinglibrarian

3 жыл бұрын

That is amazing that you are doing some research to understand your loved ones

@paigemcmillin3411

3 жыл бұрын

Thankyou for your reply💕

Thank you; I am an RN and have referred your videos to my patients - you are truly a leader and an inspiration. THANK YOU

Lord today I want to thank you 🙏 for everything that is normally working in my body I don't take it for granted..ooh Lord heal the sick Amen

@reycelpascua5712

3 жыл бұрын

🙏🙏🙏❤❤❤

I wish I had found you when my grandmother was still alive. She always had "accidents" at the worst times and was sooooo embarrassed. God bless you and I'll pray for you

@LetsTalkIBD

4 жыл бұрын

♡ I'm sorry for your loss but it sounds like you were a wonderful support to her!! Thank you!

Being young makes a big difference on dealing with the difficulties of life specially with a hurdle like this one. I will pray that some day they will have a cure for this. God bless you beautiful young lady.

It’s hard to deal with. My cousin has this too. Everyone with a stoma is a trooper ♥️🙏🏽

@mandeepkumarkhosla5109

3 жыл бұрын

Nic

@Michelle-qd9gm

2 жыл бұрын

Thankyou

@namratajoshua5436

Жыл бұрын

Does your cousin has any side effect???what are the side effects?? please tell

I had a temporary colostomy from an intestinal peritonitis incident in 1995. It was the most frightening medical incident in my entire life. It lasted 80 days and I still can remember all this stuff. God bless you and good luck to you.

I’m an advisor at a Disabled Peoples Organisation and I regularly talk to people about stomas, but I’ve no experience as my disabilities are respiratory and upper body nerve damage. This has been really useful for me thank you. My nephew has Crohn's, he’s 23 but isn’t using a stoma yet, though I do have several younger clients who do.

I had an ostomy bag for a year and had all kinds of problems. The nurses that visited were so kind and tried their best to be helpful, BUT still major problems. I found your videos, thank goodness, and YOU helped me sooooo much Thank you for sharing these awesome helpful videos. I've had a takedown, but never forgot you. Thanks again!!!

I had my operation three yrs ago. It took me at least two of those years to find a suitable bag. I have a large hernia beneath my stoma and, unable to use a two piece fitting. I now use a one piece concave bag from Coloplast. I don’t need adhesive and, the bag is secure and almost 100 percent leakproof. The company in the U.K. have been so useful and supportive. I also have a herniated fistula on the opposite side to my stoma. Like yourself, I would be happy to share my experiences to those needing help. Well done for your page.

Thank you for having the courage and strength to provide information to the general public. I and many others who have commented are struck by your poise and knowledge in passing along the most relevant bits of information.

Great video...people have ostomy bags for lots of reason. Congrats for being mentally fantastic...I know it's not all roses and ice-cream but you are a great role-model for those who are struggling. Keep the faith sister

I don't have any experience of your condition. However I can only imagine how useful your videos are for people with a stoma. I just find your personality, quirky, funny, strong and whole longer list of positive adjectives. So, I keep watching. You're a bright beacon shining bright. Being a 51 year old female I feel humbled. Your whole attitude is inspirational.

Thanks for sharing your story! I don't have this condition but people are scared of what they don't understand. You are truely an inspiration.

My grandmother has an ostomy bag too and I had no idea this was the way it actually looked without it! Thank you for your educational video!

My mom had one for 20years. We used to help her changed it. My blessing goes with you sweety.

As a nurse, that's the best stoma I've ever seen.

@reneebrady8389

3 жыл бұрын

Right?! I had to comment about how healthy her skin looks! My grandfather had a colonoscopy and his poor skin was always raw and irritated from the adhesive. Granted that was some 30 odd years ago and things have come a long way, but still!

@Marika50

3 жыл бұрын

Maybe it's just the way she takes care of it. With anything like this everyday care is so important.

@denisefelty3290

3 жыл бұрын

@@reneebrady8389 My husband shaves every time he changed his bag other wise the hair follicles get irritated and raw.

@reneebrady8389

3 жыл бұрын

@@denisefelty3290 Yeah, my grandfather didn't really have hair around the stoma, it was more irritation from the adhesive peeling off..but again, this was over 30 years ago and I'm sure the products now are so much better. I can totally understand how awful it would be to have hair to contend with..it's like your poor husband was getting a wax hair removal treatment with every change! UGH!!

@reneebrady8389

3 жыл бұрын

@skylar croft Oh, he passed away a long time ago, back in '91

Can I just say that this whole process is incredible? The fact that we can do this in medicine AT ALL is absolutely insane to me. I have severe IBS so I’m not really where you are, but I can totally relate to being in such a sour spot that you’re willing to have your lower colon removed 😂 you’re a really awesome person. God bless ❤

Yay, more ibd awareness !!! Well done Maggie. It’s gonna sound weird but what a cute little stoma ! My husband has one and I appreciate the life it gives us together every day, without it he would be unable to function. It’s a tough thing to go through but better than the alternative life of total misery and pain. Keep up the good work 💋

@judyjudyjudy9593

4 жыл бұрын

Helen Yorke...my "guy friend" has one too & I, like you, appreciate the life it gives us together!

@garystein7883

3 жыл бұрын

Hi

I'm a surgical trainee in Egypt , since i'm the most junior i take two rounds a day cleaning surgical wounds and changing ostomy bags .. it's never as easy as you made it look 😂 Great job !

@lovelybutterfly3047

4 жыл бұрын

I think her position while changing the ostomy bag is the best,while laying down it scatter sometime.

Just realized how we took life for granted. This young woman is courageous and inspiring although I felt a bit emotional. Appreciate this God bless you and be strong, kind regards from Fiji.

I worry my 14 year old nephew may be facing this in the next few years. Doctors think he might have crohns or UC and are still investigating. Your videos are helping a lot of people.

You are a courageous person and I just admire you ! I’ve been diagnosed with CRPS and I stumbled upon your video. Everyone is dealing with something we don’t know about. I’ve subscribed to your channel and I thank you for being so positive 🌹

Thank you so much for sharing this with us, I am a nursing student currently studying about stomas and changing stoma bags, this was very educational for me, keep up the good work

A friend of mine from high school committed suicide, leaving behind his wife and newborn daughter, because he didn’t have the strength to deal with his Crohn’s Disease. I could never grasp how it was bad enough for him to take his life. Watching your videos helps me understand the disease and it’s monumental impact on a persons life. I also think if he had a shred of the strength you have, maybe it would have turned out differently for him. Maybe if he found your videos he could have seen that there was still a life for him to live. Keep making your videos, you never know whose life you are saving. You are a beautiful soul with unimaginable strength and I can’t imagine how inspiring you are to others with the disease.

What a beautiful dignified young lady. To have the generosity of soul to putt yourself out there! I'm sure your videos can help all of us to not be sooo afraid of life and howit can change. You are doing such a wonderful deed that will help thousands I'm sure. Especially young ones that will need it. You show that your appearance doesn't change and that it is in fact controllable. Thank you from down under. Maureen.

I had life-threatening peritonitis and I have a scar very similar to yours. From the beginning I was going to have an ostomy bag but it was not necessary. You are very pretty and strong, I hope you are very happy❤️

@thatstragic.1915

4 жыл бұрын

prayers to you both ❣💞

I used to have a traqueostomy and it required lots of care. Kinda difficult to deal with, but not impossible. Everybody stay strong , and keep being positive at the things life gives you as a challenge 💪.

I found you like 2 months ago, totally randomly... and then had a bowel perforation last month and ended up with a temporary ileostomy! Now I'm SO grateful I can get tips from you instead of feeling sorry for myself. Lol, bless you darling!

I just came across your channel as a junior doctor starting on a colorectal ward and find your videos very informative yet uplifting. Thanks for sharing!

So much respect for you! I admire your courage and the good intentions, sharing this information. You belong to my Steel Magnolia, clan! GB

❤ Thank you! My wife had leg amputated also, the barrier shield would break got severe gastric burns, very few resources! Ppl like you are a blessing!

@Galaxy-sw8rl

4 жыл бұрын

God bless her and your family! ❤

@selliangel6078

4 жыл бұрын

Ao

@resianemaculate.

4 жыл бұрын

Take heart @ Agony N Gethsemane

Thank you SO MUCH...I am having surgery in a month as the final step in getting rid of that monster CANCER, and I will have at least a temporary stoma, so this was very very useful! It was so kind of you to be so open,,,,please know it helped me a great deal!

Much respect to all people who got this situation , and I wish you a good health and best luck 🌹

You are so strong and positive and only human to feel the opposite with your condition! Truly a inspiration!♥️👍♥️

I've started to change my Nan's colostomy bag when i was 12. Bless you beautiful girl!

As a certified ostomy nurse this is a good video. She is well adept at her changes. We usually recommend only using a very thin caulking of stoma paste. Too much paste can actually cause cause more issues and can become mess to clean even with adhesive removers. We also teach to cleanse the skins with warm water only on your paper towel and pat completely dry. I loved the trick with placing the bag over the pants to remove pouching directly to avoid any spill or leakage. I will share that tip with my brand new ostomates.

@LetsTalkIBD

Жыл бұрын

Thank you ❤️

@jenny_rice

Жыл бұрын

As a new ostomate - 3 weeks out and having changed my bag 3x now, a warm washcloth does not get the sticky residue off. I use a barrier ring and had to use 8 adhesive remover wipes (granted they are like a 1" square) and I still didn't get it all off, so this last time I ended up using like 8-10 and finally got it all off. Hopefully next time will be easier for me and there won't be as much stickiness left behind. Most videos I see doing bag changes only use one or two adhesive remover wipes.

My mother had the same surgery and she was not as brave as you! Bravo young lady, salute! And thank you for sharing! God bless you!

I’m in remission with my UC Colitis in witch I had it really bad for 6 years, thank god I didn’t need to do this..but I give you so much, your a strong person and this disease is horrible and pain and messes with you mind set but your not alone💜.. may the lord me with you 💜🙏🏽🌱

I bet you were smug when we all panicked for toilet paper.

@farkroy

3 жыл бұрын

Lol

@Natalie-lx4pr

3 жыл бұрын

@@ccxcxz4377 urine doesnt come out of a vagina!!! Ew! XD

@charlottesmom

3 жыл бұрын

@@Natalie-lx4pr yeah but other stuff does and you need TP for that....

@fouralot

3 жыл бұрын

@@Natalie-lx4pr no, urine does not come out of the vagina, but there is something called a urethra - which is where the urine flows out of :)

@Natalie-lx4pr

3 жыл бұрын

@@fouralot i know... It doesnt matter i think i read the comment wrong, sorry

I had a small bowel resection a few years ago, I missed having a ostomy bag, literally by a couple of centimetres. You are amazing. Much love Georgie Kind regards from the west of Ireland.

I swea the first thing I did after seeing this was sit down and pray thanking God for everything I have so far... And most importantly my healthy... This is so difficult and I feel stupid for ever complaining about any of my pity problems... U are so strong mentally and physically..

you know what I'm a doctor nd I still finde that informative in a simple nice way god bless u love

@LetsTalkIBD

4 жыл бұрын

I appreciate you watching!

@lovelybutterfly3047

4 жыл бұрын

Additional information:if your skin is irratited apply cornflour to the site and it will calm the skin

You, young lady, are a remarkably brave and beautiful, just lovely person. Thank you for doing this for people. The world would be a complete failure if not for people like you and I truly wish you the very best of everything.

@LetsTalkIBD

4 жыл бұрын

♡

The fact that I want to die every time I have deal with my period just means I have mad respect for you for not only having to deal with the cleaning and changing of your bags, but also having to deal with the changes its caused your lady parts! You're a much stronger person than I ever could dream of being! 🥰

This made me indescribably happy for some reason. You're so brave. Thank you for sharing with us the steps you take to care for your stoma. This is a rare glimpse for us all. :)

You have one of those amazing smiles that light up a room ☺️

God Bless you young lady. You are a true angel.

Respect for this girl to be so open about this!

I'm glad to see someone is out there sharing the experience, More definitely has to be done to help and educate people with ostomies