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@marcellussalerni1281

17 күн бұрын

No, walking quickly became severely impaired. Ocrelizumab (Ocrevus) has done wonders for me although my left knee has developed a compensation pain. I do however consider myself to be very fortunate all things considered. Thank you for your compassionate posts on the web! I love having you talk about MS in my home!

@EvenSoItIsWell

17 күн бұрын

@@marcellussalerni1281 thanks for watching and sharing. I am so glad you are doing better. And thank you for the nice compliment! I am happy to talk with you! 😉

Male diagnosed at 55 here. I had a really painful vacation trip that set off the red flags. After a short 2 hr flight my back hurt so much I could barely walk. That lasted all week. When I returned howe and saw my Dr, he sent me out for an MRI which reflected a high-density of lesions in brain and spinal cord. I always attributed my back pains to a car accident from +/- 10 yrs ago. That was all 2 yrs ago. Now I am diagnosed with PPMS. Everything gets worse Little-by-little but observable to those who know me and see me every day. Cog-Fog, stability, clumsiness, completing thoughts and full sentences, pain in feet and hands, hermits etc etc. Also the Cold. I am good with heat but not the cold. Seems opposite of most. I have lots of other little things. Every time I drop something, it makes me think, just clumsy or MS? The journey continues.

Hi, Thank you for your advice and videos. Best wishes to you and Happy the week. ❤

@EvenSoItIsWell

18 күн бұрын

Thanks for watching!

“You always have something”. That’s what I heard from my parents and my husband. Years and years I’ve had subtle symptoms and the GP didn’t find any explanation. So, finally I didn’t go to a doctor anymore, it all must be stress, I thought. Well, it happened to be MS. Thank you for sharing your story, mine is quite the same.

@EvenSoItIsWell

16 күн бұрын

I am so glad you finally received your diagnosis. I hope things are going better now!

Walking into door frames was my first symptom.

@EvenSoItIsWell

18 күн бұрын

Oh interesting! Slight balance issues? Sending you off course?

@Hometowngirl321

10 күн бұрын

Oh yes, same as I did, for years before I was diagnosed 👍

First symptom was going blind in my left eye over the course of 2 days, 3 weeks after a covid infection and diagnosed over the course of 3 months. Everything went black in one eye. Sadly never recovered and legally blind in that eye to this day. Hoping my future relapses won't be as severe... On medication now, am a vegetarian, exercise more often and try to take care of my stress levels. Only time will tell I suppose if this will help!*

@EvenSoItIsWell

4 күн бұрын

@@__Wanderer thanks for watching. Sorry about the eye. Good on you for working on diet and lifestyle changes to support your health!

@__Wanderer

4 күн бұрын

@@EvenSoItIsWell I suppose we can only try to slow things down and hope that the medication and lifestyle changes work their magic :) Thanks for your content it's always incredibly informative!

@EvenSoItIsWell

4 күн бұрын

@@__Wanderer thanks so much!

Thanks for your video...our early experiences were similar. It really seems to come down to the medical professionals we consult early on. Some are quick to diagnose and treat; others would rather wait and monitor. I had the latter kind, and it's motivated me to become my own advocate. In a way, maybe that's a good thing?

@EvenSoItIsWell

5 күн бұрын

Thanks for watching Pam! Definitely a good thing!

My neurologist told me that it was very unusual to get MS at age 60. He thinks that I might have had it for years, and just didn't know it. Looking back, I see things that may have been a symptom. I now use a cane or walker when outside of the house.

@EvenSoItIsWell

18 күн бұрын

Hi Kathy, thanks for watching. Hindsight is very interesting isn't it? I am glad you found answers, even though it may have been later than most of us.

Ditched seed oils, processed foods, sugar, and increased animal based fats, and fatty protein, feel tremendous.

@EvenSoItIsWell

14 күн бұрын

@@mjones1122 thanks for watching. So glad you are feeling better after ditching the oils, processed foods, and sugars. I would caution you about the animal fats as long term they have been shown to lead to worse outcomes and other health problems.

@teresamoore4126

14 күн бұрын

Rebecca from the KZread channel @cabanachronicles is doing carnivore for her ms.

I had asthma as a child. I wasn’t diagnosed till I was 12. I outgrew it. My son has it now. I also had bad headaches and still do. My MS symptoms get better no leg or hand pain, and better mobility when I’m on my period. Less leg heaviness. But I still use a walker and a wheelchair.

@EvenSoItIsWell

17 күн бұрын

Thanks for watching. How interesting how your symptoms fluctuate with your hormones.

My diagnosis was quick, within 2 weeks. It started on my 34th birthday(21 years ago), I couldn't turn a magazing page, my fingers on the left hand wouldn't grasp a piece of paper. Thought maybe I slept on it funny, but everyday after was worse. My Dr. was on holiday so I went to walkins and got same answer, maybe a pinched nerve. Then I had a lightning bolt up my left arm and it went numb, I went to a dr. in my clinic and she told me to pack a bag and go to hospital where I would be seen by a neurologist. I had an MRI, lumbar puncture, tons of blood work and by this time I had lost use of my whole left side, totally paralyzed. The started agressive steroid treatment and physio, I had MS. Was told if I got out of a wheelchair the best I could hope for was walking with a walking aide...I told my neurologist to watch, I would walk on my own again. Six months later I was walking(without an aide)and working out the gym. I've been off meds for almost 20 years as the side effects where terrible. At that time there were only 3 drugs to choose from. Now I'm a fitness trainer and nutritionist specializing in living a Blessed with MS life. If I hadn't been diagnosed with MS I know I wouldn't be as healthy as I am now.

@EvenSoItIsWell

13 күн бұрын

@@angelaarnold4560 I love this so much!! I am so happy to see you are doing so well!

I have all of these problems but I feel like my doctor will think Im crazy. Everytime I go with a symptom to my dr i feel like they brush it off and just want to focus on one problem per visit. I have an array of problems but im tired of complaining with no one is listening.

@EvenSoItIsWell

17 күн бұрын

Hi Rebecca. I am sorry that is happening. Keep advocating for yourself. Perhaps bring a written list and ask them to go through each one with you?

ah, yes. . . foot drop. . . for me too the demanding call to figure out was going on. . . . . . . .neurologist. . . mri. . . brain and spine lesoins. . . . . . . . . . . . . . MS! 4years ago at this point. . . .

@EvenSoItIsWell

18 күн бұрын

Ah, we share a similar story!

Yes, it took me 8 years to figure out about the pain in my legs and arms. ...and yes I was in my late 50's and they said, age? neuropathy? slow blood flow? ugh!!!!!

@EvenSoItIsWell

17 күн бұрын

Oh eight years! I am sorry it took so long. How are you doing now?

@cindyt.t.2933

15 күн бұрын

@@EvenSoItIsWell I now know what to expect now with my systems, to ask for what I need, and how to care for myself better. It is a bit of a shock when you hear those words of "I hate to tell you this but you have MS". Like most of us diagnosed later in life the thought is that I have had it for a long time. It has taken me almost 5 years now to know if something happens, I'm ok, and that it doesn't have to stop me from living. My friends hate when I say this is my new normal to get used to. They want me healed, as do I, but I know my truth for now! Thank yo for your post and podcast.

Mine, I knew what to look for as I’m the third female in my family to have MS. So as soon as my 90 pound dog was standing on my feet and I could not feel the pressure or the pain of him standing on my feet. I knew something was wrong. I immediately contacted my sister’s MS specialist got in and he had me diagnosed within a week.

@EvenSoItIsWell

18 күн бұрын

Oh wow! Glad you were able to diagnosed quickly!

I still waiting on diagnosis, it started 2 years ago, I woke up shaking at 330 , 5 episodes, drop foot, right side weakness, hot showers I thought I was having a stroke, slurs words numb face. Dr wahls level 1 as a vegan has helped me alot

@EvenSoItIsWell

18 күн бұрын

Thanks for watching. Keep advocating for yourself and seeking answers! Glad the dietary changes are helping!

You forgot to mention the secret sauce/holy grail of your healing journey Your fur baby!

@EvenSoItIsWell

18 күн бұрын

You are so right!! I need to do another video featuring the benefits of Bunji the Blue Heeler!

Numbness in left arm (from hand to elbow).

@EvenSoItIsWell

17 күн бұрын

Thanks for watching.

Can do you know if MS has anything to do with bladder issues? My daughter has had been diagnosed with a weak bladder. She does have left sided weakness and has leg pain in one leg only. She does has a neurologist for migraines and we are seeing a neurosurgeon to rule out spinabifida.

@EvenSoItIsWell

18 күн бұрын

Yes, MS can definitely affect our bladder and bowels. mymsaa.org/publications/motivator/summer-fall13/cover-story/bladder-bowel

I am age 74. I have been walking into doorframes since my 40s.

@EvenSoItIsWell

14 күн бұрын

Thanks for watching. It is such a common thing for us! We should add that to the questions when getting diagnosed!

I have scoliosis never wore brace or anything

@EvenSoItIsWell

17 күн бұрын

@@pamreynolds6812 thanks for watching.

MS, I dunno? But I'll tell You MY Fun First Episode (Exacerbation) IF IT IS, MS. (THIS IS RATED ® for a restricted audience). But Feel free to have a Laugh at my expense and its ALL TRÜE. Well there I was in a Hot Tub with a Ummmm... A Professional Lassie (Scottish for Girl) and My Eyes became Blurry + Pins & Needles in my Hands & my Tongue went numb & tingly & an Awful Gnarly Hot Headache began & Word tripping happened ~ thats IF I could find the Words to Putin' my mouth (Embedded Russian Joke) the poor Girl was very worried for me. (So was 👁️) Then I tried to extricate myself from the Hot Bath. (Hmmm). Which was difficult as my Legs were wobbly and weak. When I finally leveraged myself out, my Legs Buckled beneath me. Not exactly my fantasy girlfriend experience. But I Think I may have obliquely & spontaneously Diagnosed myself with Hot Bath method with "Perrplexxia" (Not her real name). After I sat on a Child's Swing in a Playground and cooled Down. And everything came good. So I tried this at home in a Hot Bath again DELIBERATELY (alone this time) & the same thing happened. That was in 2007. Still no formal diagnosis. I Can't & Am Too Scared to have an MRI (THAT'S ANOTHER STORY that could have been Penned by S. King). Sobthats ehy Ivsay I have SSSMS ~ Secret Sexually Specific Multiple Sclerosis + Self prescribed Humour® Hope you like my Anecdote from Australia. But Ice Pick Headaches and Myoclonic Seizures ain't Funny. And Neither is Having All my Teeth Out under the assumption they were Infected

@MichaelBone-hj7sr

5 күн бұрын

💥🦷 🧠⛏️

@EvenSoItIsWell

5 күн бұрын

@@MichaelBone-hj7sr you have a fantastic ability write your story! I do have a few videos on MRIs that you might find helpful and they can also give sedation if a doctor orders it. I encourage you to try and find a diagnosis. If it is SSSMS there are treatments and therapies that can help. In the meantime take exquisite care of yourself! And stay out of hot water. 😉

@MichaelBone-hj7sr

5 күн бұрын

@@EvenSoItIsWell Thanks! I Will. In Summertime my idea of a 'Day at the Beach' is to Hang Out at the Ice Hockey Rink. I'm in Awe of Hockey players. I fall over just by Lööking at the Ice. They're my Heroes. My Nana SABINA was a WW1 Widow & Pioneering Field Hockey player and played State in the 1920's. Also played Cricket for State.