What is your most frustrating symptoms besides pain? Whilst there is no cure, people do have partial and full recoveries from the illness - have you listened to any recovery stories? You can find them here: kzread.info/head/PLYGv2houTixlgFeJ5WHMIMA-BGpDfE8vv

@iamYvetteMarie2u

Жыл бұрын

The most frustrating thing for me is the variety of symptoms I experience in one day-waking up, having a plan and not knowing how my day start or if I’ll get anything done, or even out of bed. 😢 Lately, nausea, vertigo, and fibro fog have presented a lot of challenges. Why am I nauseous…oh, it’s just my fibro. (Like you said to be cautious of) I enjoyed your video. Thank you!

@mat13174

Жыл бұрын

This is tough since I have many that are on the list. The Chronic IBS affects my daily life, as well as the difficulty sleeping and difficulty concentrating . It was difficult having doctors dismiss me for years, passing me along to others as they couldn’t figure out what was wrong with me. It just contributed to any anxiety that already existed . The countless MRIs, spinal injections and physical therapy have been both exhausting and expensive, as in some cases they weren’t covered by insurance.

@christineboocock3257

Жыл бұрын

I hate when I bend over and I get shooting pains in my back and getting to the loo by the time I get there I'm so out of breath I feel dizzy

@CandyGirl44

Жыл бұрын

Insomnia. And fatigue. They strike badly unexpectedly. Last night, I had no tea, coffee or other stimulants during the day. I took 2 trepilene, 2 L theanine, a Gabapentim and a Phenergan, hoping to catch up some sleep. At 2 am, I took 2 Valium and 2 Allergex and eventually fell asleep about 3am. I was awake at 6, but too tired to get up. I then unfortunately had to have coffee to get through the day. The other day, because I could not be groggy the next day, I only took a melatonin and a trepilene. I barely slept, then was so fatigued the next day I couldn't function anyway. But if you look at me, I look very healthy for 60, my hubby is the same age and most people think he is much older than me. It is very frustrating, a phantom condition. I used to love swimming and the sea, now I have to force myself to bath or shower. My temperature control is ridiculous, I can have sweat streaming down a side of me facing the sun, and goosepimples on the side facing away. Everything about this condition annoys my husband, from not being able to tolerate the sun (i travel in the car with a reflective shield over me) to not having the energy for things when I'm feeling like I've slammed into a brick wall. He thinks I'm depressed when I can't get up or lie down during the day. The pain and inflammation I've got fairly well controlled, and have been able to mostly drop the Tramadol and Arcoxia with a mainly whole food plant based diet. I've developed a strange new symptom lately - occasionally, I will feel as though I've taken methamphetamine, or 10 double espressos, its as if my blood is racing and I talk and move fast, can get through my chores quickly, but can't sit calmly or focus, I'm wondering if its perhaps panic attacks? I keep on forgetting to see what my heart rate is doing. Tonight I'm trying 2 Brazapam and an Ativan, I had a decaf coffee today, wish me luck!

@j6453

Жыл бұрын

One question I have is about gait. I always had a very graceful gait (I'd done dance training when I was younger and was also a runner), but in recent years I have observed myself on home security footage and now my gait is more of a waddle/lumbering gait even though I am a normal weight and quite active. Does this indicate fibromyalgia? Do you know anything that could help improve my gait? Could I also have these gait problems from CFS (rather than fibro)? My most frustrating symptoms are malaise, bloating, brain fog, and poor aerobic conditioning. I am also frustrated because I live an extremely healthy lifestyle but am still less healthy than I would like to be. I have always put effort into eating a lot of fruits and vegetables, exercise, sauna, etc. ANYTHING for good health I have put the effort in. So it's frustrating to not feel anything close to 100%.

And don't you all just hate this statement: "You don't look sick!"??? 10 minutes in the body of a fibro sufferer would devastate them.

@sharonmccann2902

3 жыл бұрын

Oh yes...

@lynneliberts7606

3 жыл бұрын

Yes, yes yes, especially from my horrible mother in law.

@VP-tg8kd

3 жыл бұрын

Another favourite ‘well, you were ok yesterday’

@lorannamoody7011

3 жыл бұрын

How about “maybe you’re just lazy”

@kimbassett8486

3 жыл бұрын

@@lorannamoody7011 nobody has ever said this to me except myself. I feel like I'm lazy and my husband has to reassure me that I'm not.

The worst thing about Fibro is NOT the pain. Its having to constantly explain why I am too exhausted to want to do ANYTHING at all. To me, a successful day includes getting dressed, cooking, watering my plants and getting the mail.

@SRBOMBONICA86

3 ай бұрын

Me too ,just taking a shower is sometimes a chore 😢

@maelysgenoud503

2 ай бұрын

It really depends, for exemple for me it’s the pain cause it’s so bad that I often collapse even in the middle of the street due to the pain, no one experience the same symptoms and with the same intensity

@rebeccalecomte3770

2 ай бұрын

That IS a successful day!!! I hear you!!

@stephanieearle3595

2 ай бұрын

I was the same way till I started taking lyrica and it changed my life. I feel amazing n myself again of course with limitations n such still but I have less pain, mind blowing improvement in fatigue and fibro fog.

@user-zz8zv5fm7p

2 ай бұрын

same here! i am using hemp oil which seems to help..

I was diagnosed with fibromyalgia from head to toe in 1988. I was 37 then .. I have learned to live with this and I am now 72. The secret is to do exercises keep mobile no matter how you feel. This can be very hard but remember you do not die of fibromyalgia you die with it. Keep smiling you have a life to live. Make it enjoyable. Carole

@danutat9915

9 ай бұрын

Thank you i really enjoy your energy and enthusiasm. Some people however have different complicated issues like arthritis in your spine and feet. Its horrific. But i do understand your message and it does give hope. ✌🙏💗

@bonniebyrne8308

8 ай бұрын

I totally agree. You figure out a way to live with it. Moving is the secret weapon we all can use. I have dealt with this for over twenty years and had to figure this out myself because sadly there is no magic pill for this

@celiadasilva2983

7 ай бұрын

@danuta very easy how some people say get up get going. Maybe her symptoms isn't as bad as yours. I was the most energetic person u could think of. The very people who told me that...asked where I got all that energy. Are the people that can't understand. Would I fake my pain and acne...really. after being one of the strongest woman known. I could pic any one up in one arm. At the age of 48 it just changed. I got pre-menopause but I think it's mixed with fibromyolgia. I get so much pain it has been since I was 48....I am now 55. Gotten worse. Everyone calling me an addict trying every pain killer I can find. Every week I got a new symptom. Just wen I am getting over one thing. Something else happens. This kinda makes sense wat I have. My friend suffers terribly with shingles her bones have twisted. Her shoulders gone forward. She must weigh 42kg. The pain this woman goes through. She drinks Hrt. Because if she leaves it.. she can't even move.

@donnag7288

5 ай бұрын

Have been living w fibromyalgia for about 30 years. I have pain , fatigue, stiffness and tingling all over my back arms legs. I combat this by swimming and taking strength and balance training classes. You have to keep moving. Fibromyalgia is worst when you don’t move. Be brave. Fight it.

@carlabrotherton7197

5 ай бұрын

Thank you for your lifting up... Hugs ☺️

I’m so sick of being tired. The guilt of not being able to function is weighing heavy on me. My back, hip and leg hurt so much from standing and walking-grocery store is terrible. I’m used to being physically fit but that’s off the table right now. The depression isn’t fun either. I pray for everyone touched by this disease 🙏🏻🌷🙏🏻

@loveroffreedomp.5426

4 ай бұрын

Exactly! The chronic fatigue alone is so disheartening, then layer on the pain, and life has lost it’s joy!

@user-tu7vc5zj2q

4 ай бұрын

Thank you sweetie 😊and prayers for some relief to you .🙏

@jcpenny2438

3 ай бұрын

I understand ❤ the only thing that gets me through each day is Jesus. If it weren’t for Him, idk what I’d do. Life is very bitter, but He makes it sweet, too. Prayers 🙏 ❤

@monalisajwalker8092

3 ай бұрын

Totally agree. I work and come home exhausted. Sometimes, it is all I can do. I get so tired of it.

@lorraineophoff4984

2 ай бұрын

Thank you, Fibromyalgia sufferer.

The profound fatigue is no joke. I used to be a very active person and a night shift nurse. This latest flare has been so bad I’m exhausted and in pain from just holding my head up. Prayers for all of us.

@1purplerose

5 жыл бұрын

I'm a night shift nurse as well, with FMS about 25 yrs. Been a nurse nearly 30 yrs now and it's getting harder and harder to function. Fibro ain't for sissies!! This is no joke, like u said.

@aliceviktoriakent6900

5 жыл бұрын

I know how you feel! So hard and painful 😖 I was a very active Gymnast and made it almost to the top when I got so much pain in my legs that I could (sadly still) barley walk (2017). I was diagnosed with fibromyalgia 14 (2018). I just have gotten worse... but I believe that there is light in the end of the tunnel!! Next week I am going to the hospital to help my pain go less! God bless you all!! Love from Iceland 🇮🇸

@kiwi007

5 жыл бұрын

Try vitamin B12 injections. They worked somewhat for me but after 2nd dose I reacted and can't have them anymore. There has been some longterm relief. B12 is now common usage for Fibromyalgia.

@calgal7828

5 жыл бұрын

Crazy Kansan I hear you and feel the same 🙏

@nunyanunyalso7755

5 жыл бұрын

So you being a nurse, have you tried nerve meds for your fibro symptoms? It is a central nervous system disorder.🤷

My family's response when I told them that I had been diagnosed with fibromyalgia was,. "stop feeling sorry for yourself, there's people out there who are really sick and they don't complain about how they feel every day.." When your family says this kind of thing, when you are letting them know that you're struggling to do some of the physical things that you used to do easily before, it really makes me wonder where I can turn to for emotional support, after all that's what family is supposed to give you isn't it.? 😢

@anne-no2ic

Жыл бұрын

my answer always is a smile and "fine thankyou"... no one really cares and doesn't want to hear. You have to smile and bear it. I have had it for 35 years from lymne disease. But divert the mind with music and beauty around you. Cold pool at the Y keeps me going. Helps pain and brain fog.

@PeaceJourney...

Жыл бұрын

You need a new family

@angelawierda760

Жыл бұрын

Hugs Hugs. This is my family as well. My husband thought it would be a good idea to get 3 more German Shepherds. Now I find myself apologizing to the dogs because I cannot care and play with them as they need😶. Can't even care for myself properly. Have to take a break and lay down after a shower.

@artanddebearickson9729

Жыл бұрын

They are supposed to, but most people are so self-absorbed that they can't find real compassion for anyone else. Most people dont have tv families, when it comes to their own family they are awful.

@catcolb11

Жыл бұрын

Other people's pain doesn't negate your pain or mine.

I'm 75 and have had severe fibromyalsia since I was in my teens. I was a super achiever until I was about 20 but it's been a steady spiral downward since then.I'm immensely strong willed to have survived continual physical he'll. The pain is unbelievable. The fatigue is crushing...and must I go on with the other symptoms? YET I have joy each moment my heart beats. WHY? I belong to Christ.

@CynthiaFischer-wl2nn

Ай бұрын

amen Amen AMEN

The level of dismissal, disbelief and lack of compassion by my people is enlightening and also, to be honest, just crushing to me inside. Never felt so alone in my whole life ... and I've been homeless before.

@CFSUnravelled1

6 ай бұрын

It's ignorance more then malice - but tough to deal with for sure - I think most of us feel like you do at some point during our journey - you hear people talk about that all the time in the recovery interviews: cfsunravelled.com/cfs-fibro-recovery-stories/

@magdagood16

5 ай бұрын

Same here, my own sister doesn't believe me, ...I quite frankly became tired of explaining my simptomes, nobody hears my crying for help 😒

@crazyfunnyusavideos88

3 ай бұрын

Your not alone.

@amandayouksee1724

Ай бұрын

I in the same boat im worried i loose my job

I"ve had this for over 30 yrs and it does get worse. I sleep very little, and it's a major job just to take a shower. You go through a lot of stages. It's very hard to lose the person you used to be. My pain is through the roof. Good video, Thank You!

@chacha3209

Жыл бұрын

I would love to analyze your blood work and diet!

@ursamagickmt672

Жыл бұрын

@@chacha3209 You must not be a physician.

@mandywathen7847

Жыл бұрын

You are me.. I've been diagnosed for 15 years.. the shower thing, on the nose.. my depression is so out of control because my fatigue is so awful, I'm not living, I'm barely existing ya know... it's awful.

@susieq965

Жыл бұрын

Same here 😢

@dianewright5876

Жыл бұрын

​@Mandy Wathen you are not alone. I also experience these symptoms among others. It's devastating at times. God bless you💛

Fibromyalgia has completely taken my life away from me . I have lost my identity my marriage my friends my business even family . It’s a lonely existence and chronically debilitating. I’ve had it all my life and now SLE Lupus. It’s by the grace of god I’m still alive but boy is it a struggle . . It’s a lonely lonely life

@taraschmidheini4674

4 жыл бұрын

I feel you, boy do I feel you

@golshanabas6194

3 жыл бұрын

The same . But meditation pray retreat helpe Me alot . Doing sipirtuell jeurny Hopono prayer . Stress relief musik . Join som healer Thierry Manny ön KZread. Dont gives upp mat be it is a messege to us to finns happenes in a differens way. I realy Chang event if take time . I Hoppe you pease and love

@intigniadickey2224

3 жыл бұрын

Very lonely : (

@debralindsay3507

3 жыл бұрын

I’m sorry to hear that. I know how you feel. I think I’ve had fibromyalgia for years, and I know it has changed me, I just never put all the separate symptoms together and I’m a Nurse Practitioner! It’s been really hard because all the symptoms are so different on spectrums. I feel that the fatigue is the worst. Nobody understands in my family and friends and they think it’s all mental.

@shelhope9748

3 жыл бұрын

Yes I can completely understand. I'm not yet diagnosed, 30 years now, cervical spondylitis, spinal stenosis, and every Fibromyalgia indicator, skin sensitivity pain, all forms of. Bowel, bladder, co- ordination, loss of strength, extreme exhaustion, poor and disturbed sleep the list is endless. However, try to push for help, and have faith. X

I was diagnosed with fibromyalgia about 15 years ago. I thought it was only a muscle syndrome until i saw this list of things that you went over in the video. I am in awe..... you have TRULY answered SO MANY questions that i have had for a very long time. 😭 . I have so many of the symptoms that i wouldve never thought would be linked to my fibromyalgia. But i have overly fatigued and brain fogged every single day. I dont sleep well. I have restless leg syndrome, migraines, sweats, hair loss, IBS, sciatic nerve pain, but i also have disc degenerative disease so that could be part of that. Im only 49 and my vision is blurring. And yes, ALOT of places on my body, if you touch, are EXTREMELY painful. Sounds, loud TV, children, etc. Im more sensitive than I used to be. I wouldnt wish this misery on anyone . 😭😭

@amarshmuseconcepta6197

Жыл бұрын

♥️&🙏 I know :)

@cds8249

Жыл бұрын

I didn't know sweating could be a symptom of fibro! I sweat profusely and am years from menopause and noone can explain my sweating. I have poor sleep, joint pain, and sciatica. I am wondering if I have it or something similar?

@laVIEchef

Жыл бұрын

EXACTLY SAME- situation…severity.. symptoms.. sciatica & sadness of ALL of this. May you, all of us find much healing and more comfort in each other’s knowledge and empathy. ❤️‍🩹☮️✨

@cdesjardins1988

Жыл бұрын

Same here and I'm only 34 years old. I feel like I'm 90. It's ridiculous. I just want energy and to be able to do fun things.

@Kulaybalbahr

Жыл бұрын

My mother also has degenerative disc disease and fibro. She struggled all our lives to give us the best life she could manage, and now that I'm also developing symptoms on top of being autistic, I see now how hard the struggle to maintain some semblance of a normal life really is. You should be proud of yourself for making it this far despite it all.

I've had ME/Fibromyalgia for 30yrs and 1month now. I am constantly in chronic pain, have severe tinnitus, unable to sleep etc etc. Absolutely sick of it! 😢

@ledzepgirl299

4 ай бұрын

Same

@jenniferg7713

4 ай бұрын

Also I don't know about others but it got sooo much worse after having covid in 2020.

@200_IM

3 ай бұрын

​@@jenniferg7713 It might have also gotten worse without covid. People's health tends to get worse, especially with stress.

@leaevans2347

2 ай бұрын

I have developed Tinnitus (Ringing in the ears) do you think Fibro has caused this??? Been looking for answers and I'm glad I saw this comment. I blamed side effects of medication for Tinnitus and blame myself for feeling tired, exhausted, irritable all the time. It's hard to accept my health issues and I blame myself and say it must have been something I did... But I have been praying to God for wisdom and understanding and God knows all and he is my great physician. 🙏 Prayers for all who suffer

@denised.264

Ай бұрын

Same here

My chronic fatigue is also awful for years now. Can”t make plans because I don’t know how will feel from day to day. My house has never been so unattended.

@Nan-59

5 жыл бұрын

Jutta Hollar I am so with you, dear! My house!! My bedroom ....is just unbelievable!! I cannot put clothes away. .... everything is everywhere and I barely have a path to get to my bed!! I know that sounds just terrible! It IS TERRIBLE! Makes you not really even care to get up in the morning I can tell you that much. I sleep a lot!

@pinkrose5796

5 жыл бұрын

Nan Branham Me too!! I used to put everything away but for the past 2 years just throw my clothes on my ottoman. Dig thru it for clothes that have now fallen to the floor where they're staying. Don't even care anymore.

@rebeccagreen9240

5 жыл бұрын

I'm with you but I push myself to keep going

@fuckedworlds4326

4 жыл бұрын

I'm the same it's no joke

@ggraci39

4 жыл бұрын

I agree with you. When I tell people that I can't make plan for tomorrow I don't think they understand. It's stressful when you make plan and on the day you have to call to cancel because you can't make it. You become isolated because you are not able to social. You go to bed so exhausted and feeling sleepy but when you get in the bed you stay a wake until 5am with headache and when fall asleep you it's hard to wake up or have light sleeper where little noise wakes you up and you don't go back to sleep

The fatigue is truly the worst symptom for me, along with the brain fog😔

@carolnolan9439

4 жыл бұрын

Can't think under stress. My mind is confused and I don't remember things. I was forgetting to put soap in washing machine for months when I first got diagnosed. Funny I was remembering fabric softener. Couldn't figure out why clothes weren't getting clean then one day I caught myself

@delgado49hatch55

4 жыл бұрын

I feel the same. Fatigue, brain fog, unable to relax, feel tired, joint pain, swelling of my body, hands and feet. If I sit too long I can hardly get on my feet from the pain in my legs and lower back. My neck is sore and shoulders as well. I react to foods. Sometimes I feel that I'm being pricked with needles in my feet and other parts. Or stabbed on my back. The inside organs are affected as well. I can never stay still because I feel itchy, tickled everywhere. Sensitive even to fabric rubbing my body. Loud noises bother me and more. However, I say to the Lord "all for your glory, for you my Jesus" because He suffered more than I could ever in this life. My friend I feel for you. May the Lord strengthen you and give you great faith to withstand any sufferings. Life is short compared to eternity.🙏

@whatta1501

3 жыл бұрын

That and having to pee all the damn time😶

@ritabrandow1318

3 жыл бұрын

Minister pain and not sleeping

@michellebrown4056

3 жыл бұрын

Trying to explain this to people is so difficult

My cousin has fibromyalgia and tried going gluten-free, which actually helped with some of the pain and fibro fog. Going gluten-free, for whatever reason, does seem to help many fibro sufferers, so that's something to consider trying. Also, having a weighted blanket seems to help with her sleep problems. The struggle is real, I know. Hugs and purple butterflies to all who suffer.

@Pea_Green

Жыл бұрын

Funny how we all seem to suffer differently. I cannot have weight on me so I use the electric blanket instead. Love to your sister from a fellow sufferer and thank you for being there for her.

@torrielindeblad9534

Жыл бұрын

I'm glad that worked for them. Gluten free didn't help and a weighted blanket would cause me more pain.

@user-rt4qb1ud6v

Жыл бұрын

I've most of the symtoms that's horrible.the most that bothers me is my skin feels like it's on fire n in the shower the water feels like shattered glass hitting me.I pray some day they find a cure or something to relieve the deliberate pain.thank you for this video

@thistree9028

Жыл бұрын

That’s sweet, thank you! ❤

@carolstaton6809

11 ай бұрын

Unless a person has fibromyalgia they have no idea what we go through. 😢

I have been diagnosed with Fibromalgia about 5 years ago. It took decades for someone to actually give this condition a name. We don't look ill. We are tired and hurting... every day. Lord I wish I could have one night of good painless sleep. Memories of a painless day are fading. It is horrible to be tired because of pain, every day.

Fibromyalgia + C-PTSD= hell unless you can hide from the world. Thank you for this video I often feel very alone because people don’t understand what it’s like to try and function with these conditions .

@connieturvey3952

3 жыл бұрын

Me too Tracy😞

@Solitude11-11

Жыл бұрын

You aren’t alone ❤

@sophiaashby8553

Жыл бұрын

@@connieturvey3952 me 3 Connie 😞

@chaleereid165

Жыл бұрын

Unfortunately, you aren't!

@miapdx503

Жыл бұрын

Oh yes...they say agoraphobia, I say I'm hibernating. 😏 but seriously, it's a vicious combination. 🌹

I have had this for decades. Some days I pray to finally "come home". I am so freaking tired and the pain never goes away. The brain fog is so embarrassing sometimes.

@ellenharvey5371

4 жыл бұрын

I'm with you also we suffer so much

@ceciliafenner3984

4 жыл бұрын

@@ellenharvey5371 Yes!!! We really do suffer, i've had this over 25yrs. I used to be an "on the go" person, Fibromyalgia has made me feel lazy and worthless. I have wanted to go to "sleep" and "not wake up" too many times.

@veronicasuestarlite4080

4 жыл бұрын

I want to die too. Every day that's all I think about. This year I missed my Mother-In-Laws 93 birthday, our family vacation (I stayed home alone), Thanksgiving, my husband's birthday dinner and Christmas. I can hardly fully shower anymore, it's too painful and exhausting. I only leave my home for doctor appointments. None of my friends ask me to do things anymore because I've canceled plans so many times or I'm late or they're afraid I'll have a seizure (I'm also Epileptic). Yep, I'm done with this shit. Absolutely finished w/ no shame. I'm 56.

@melonadams604

4 жыл бұрын

Nice information

@sophiacastellanos7241

4 жыл бұрын

I am so with you! I’ll meet you at home one day!

Having Fibromyalgia isn't bad enough. I had Covid in 2021 and I am still suffering from long Covid. It is miserable. I am a little better now. I know that God will get me through it.

I've learned so much more in this 10 minute video than I have the past 15years going to Dr's and dealing with fibromyalgia. Thank you so much!

@wendyhannan2454

7 ай бұрын

I agree it’s a lonely disease as no one gets it.

@susandowns9383

7 ай бұрын

Me too.

@benjaminlutz1088

7 ай бұрын

This has to be one of the saddest comments I've ever seen on KZread. I'm so sorry its been so hard for you. I juat found out I have fibromyalgia recently coupled with MTHFR gene. Still learning about everything, thought the way I felt was just normal for who knows how long. I thought it was just a part of getting older and im 31 haha

On better days when I have some energy. I try to catch up on my chores pushing myself, then for the next couple of days, I am so tired for exerting myself, I can't get out of bed. It's horrible.

@deedeegreen8338

3 жыл бұрын

I know exactly how that is. But try explaining that to people. It is very real, and it has changed my life forever. 🤗 Sending you a hug.

@pennylane5404

3 жыл бұрын

How did you get a diagnosis. I have symptoms but whenever I mention it to my dr the Pooh Pooh it. My legs won’t work like they used to sometimes I feel like they won’t lift up as I stumble. I get stabbing and burning pain in mostly my right leg but do suffer flare ups of sciatica. Sleep is crap. Wake up exhausted. Brain fog and loose track of conversations. I suffer high anxiety and depression and take meds for those. But they don’t feel enough.

@victoriamayo5774

3 жыл бұрын

Me too

@dennisepeart5002

3 жыл бұрын

@@pennylane5404 I was eventually referred to a rheumatologist. It took many appointments with several specialists to get a diagnosis. It was amazing that finally I was able to get the right meds to take the edge off. Like many people who have fms I struggle with many daily activities, just vacuuming 1 room can wipe me out. On days when I can't do housework I remind myself of a saying my mum used to tell me "the housework will still be there tomorrow, you may not". I know it sounds a bit defeatist but it's more about me giving myself permission to leave things alone and not feeling like I'm "giving in" to the fms. I've invested in a tens machine as an addition to my meds, feels like it's helping a bit but it may just be psychological, only time will tell. I'm not sure where you live but if your doctor won't refer you then I'd ask to meet with the practice manager or change doctors. I'm eternally grateful that I have an excellent doctor who can pick up on changes either in person or in a phone consult. I wish you all the luck with your medical journey and I hope that you can reach a diagnosis and get treatment soon x

@DarkCrystal1960

3 жыл бұрын

@@pennylane5404 Get blood work ran for Epstein-Barr Virus, cytomegalovirus, echovirus, go on a yeast free diet (helps with fatigue, pain & fibro fog)✌❤🌏

I wish I could find a doctor that is educated in fibromyalgia.

@zeldagliches96

5 жыл бұрын

moondancer2go yeah me to

@elvinad4422

5 жыл бұрын

Doctors are dummer than we are!My old doctor has retired but the new one doesn't seem to know what fibromyalgia is!He gives me medecine and shows me the door and I don't feel that he understands.So I make sure the prescriptions are for a twelve month period and I go see him once a year!

@rhondawey236

5 жыл бұрын

@@zeldagliches96 Me too!

@amberlilly4101

5 жыл бұрын

Good luck. It is very difficult.

@aldastroud9671

5 жыл бұрын

Me too...I feel alone...😑 I can see that my doctor doesn't know what to do... He just wants me to take the my tablets...as he thinks most of the pain is on my head....

I hate feeling guilty all the time because of the fatigue and pain. I feel like I'm not living..I'm just existing 😪

@shayshay9764

2 ай бұрын

exactly

Another MAIN symptom my mom & I have is the feeling of your skin being one big bruise. It used to only happen w/my menstrual cycle where my thighs & the outside of my arms felt this way but after having Covid & developing Long Covid, it started happening all over & not just w/my period.

@marleneholloway7775

Жыл бұрын

I can relate to the bruising. My whole body, it is one symptom, some people are having serious adverse reactions from the vax for covid..dr peter McCullough has good treatment for that..

@geeeeeeeezzzzzzzzzz

10 ай бұрын

For a while now I feel like I've been beaten up or run over so your bruised all over description I think is a good way of describing it.

@elainesimons9079

5 ай бұрын

You have same complaint my daughter has. She had covid several times, ,,,the first lasted 4 months. Shes 43, and I havent hugged her because touching her is too painful.

I have been living with this for 46 years .Not easy.Prayers to everyone suffering from this.🙏💕

@rebecadiaz7005

3 жыл бұрын

Prayers you mention, for 2 years I pray for my pains from fibromyalgia that kept me moving or not the pain was there. One night praying por healing a Bright light in my head sparkle, all my body move like in a shake for I was in bed. Immediately all the pain was gone 🙌 . This was 10 years ago and since then no pain!! In my understanding is the nervous system. Because it was like a clear rest brain was again functioning.🙌

@Rhonnie18

2 жыл бұрын

🙏

@schoolgirlsp5142

2 жыл бұрын

Bless you I know what you are going through I was a child when I first knew something was up

I also forgot to mention how many times people have said to me, "You sure don't look sick."

@marilynmarilyn2755

3 жыл бұрын

I’ve heard that too ...have to bite my tongue not to say , you don’t look like an insensitive idiot

@beckymedvetz228

3 жыл бұрын

So true!! And people not believing that hugs hurt!

@lorrained7003

3 жыл бұрын

I know right?

@ReleaseTheQuackers

3 жыл бұрын

I always respond with "and you don't look stupid... aren't looks deceiving?"

@darastiner9812

3 жыл бұрын

Or "You can’t hurt THAT bad!" Or the pharmacy looks at you like a drug addict and make you feel "guilty" for being on opiates!!

I was diagnosed in 2000. I have horrible insomnia, wake up at 3:00 every night. Fatigue is so bad some times I feel like I’m gonna fall asleep driving. Some times the pain and fatigue and fybro fog gets so bad I just go to bed. I get up to eat and than sleep 3 hours. Get up go to the bathroom and sleep 3 hours. Some times the fatigue would last for days. I’ve thought about un a-living myself many times.

When people ask me how fibro feels, I tell them that it's like being hit by a car on a very hot day and dragged a couple of blocks down the stress. Then the pain is so awful that you can't get up or move away from the hot pavement so you just have to endure it. This isn't something that I'd wish on people.

So, so tired of being tired. This never ending circle of aches, pains, fog and sleeplessness. I’m 50 in two days, I’ve been tired since I was 15. The fun is always tainted.

@fayethepa

2 жыл бұрын

Yup. If you dare have fun it’s bed for you for a week or more.

@evanconley3919

2 жыл бұрын

I'm in pain as I type this to you. We're all in this together. Stay strong and healthy hun!

@r.a.c.h6172

2 жыл бұрын

Fun times ahead for me then 😖

@Moonsovermissouri

Жыл бұрын

I totally understand. My brain fog is really bad and frustrating, I have to speak really slowly to get the sentence out. The really bad part is that there are several times I have blank spots, meaning that I lose the word and image I am trying to say, and then boom it pops up. I have to say other words to get to the point. It makes me so angry and frustrated.

There is also the reverse: doctors nearly always write off my symptoms as fibromyalgia. In fact, my cancer diagnosis was delayed by at least a year because my symptoms--which I did seek medical care for from more than one doctor--were never assessed, but were simply labeled as new-to-me fibromyalgia symptoms. It's the medical community that needs to be educated about this, not fibro patients.

@shealittlemeyer11

3 жыл бұрын

If you don't mind me asking, what kind of cancer did you have and what were your symptoms? I think I'm going to be pushed into the fibro corner soon but don't think that's whats happening.

@sharonmccann2902

3 жыл бұрын

YES!!!

@themysticmuse1111

3 жыл бұрын

I'm so sorry you went through that. :( You are absolutely correct.

@marieannsparling4837

3 жыл бұрын

I agree with you on that comment. For years, I had 99% of the Neurologists play both sides of the fence re my severe Epilepsy growing up. I started taking seizures as young as 3 months old & instead of taking responsibility for what they did, they always blamed my parents. They said it was genetic in my family & that I inherited it from my Dad & thats when Id snap back at someone & say yes. Its so genetic in my family, thats why my younger brother, Dads older sister or nephew doesnt have it. My Dad neither. But, they never minded making you have to go from Timmins area all the way down south to as far as London Ont. just to talk to you for 2 mintues say & then change or add more to your meds list & then say. Ok. Come back next week, etc... Wow. They would try & brush me off & say I didnt ahve that, yet, they sure as hell didnt mind drugging the shit out of me though growing up. 750mg daily of Depekane, 300mg daily of Dilantin & 1 or 2 other drugs. Yet, I was 11 years old & drugged like that. They knew their drugs werent working work shit, yet, theyd still dope me up daily. Instead of treating my severe hypothyroidism & pituitary tumor, etc... they ignored those & continued to try this drug & try that drug to no avail. Then came my grace period, finally. I went to University Hospital in London Ont & saw Dr Warren Thomas Blume (the Head Neurologist there) & his work partner, Dr John P. Girvin (the Head NeuroSurgeon there) & Dr Blume ordered an EEG of his own & the ordered an MRI of his own for me too. After his tests, it showed that my right temporal lobe was crushed at birth & that nearly 3 quarters of my brain had severe scar tissue. He said, its a good thing that you got here when you did, cause any later than today wouldve been too late for you. He said, that the scar tissue was all throughout the right side & covering almost half of the left areas & that the left side is more problematic than the right is. He then told me that the reason I had Epilepsy all my life wasnt a genetic issue at all. He said, you were a forcep delivered child, werent you. I said, yes. He said, I hope you realize that that is what caused your Epilepsy, period. No genetic issue here, he said. Only a drs malpractice, he said. He told me that part of my healing process was to let anyone who ever insulted me, degraded me, etc... throoghout life, to let them have it he said. You need that & deserve that too, he said. So I have done just that ever since that moment. I defend myself ever more than I already did throughtout life & dont give a shit what anyone thinks of it either. Because, I dont think its right to have a dr say that oh, because you have an older half sister with special needs it must be something in the water, in other words. Bad genes. No, just a stroke of bad luck & there is no explanatin for it, either. It is what it is & thats that. You have to live with it like it or not. There are lots of special needs people out there & just because they arent up to another ones so-called lever of satisfaction doesnt mean that that person needs to change or needs any adjustments. If anything its the ones who judge that need a serious change & to have some serious adjustments done. To their attitudes, ways, etc.... We are who we are & I was so glad to have their brain surgery with no hesitation for a second & thats because, I always knew what the truth was & knew that God would deliver that truth to everyone else in ways that they cant ever explain & I was lucky to be chosen to be a part of him showing what he can & will do for those that believe & never bend. I didnt & I got to know what life was without 20+ years worth of having my whole weekend be a blur due to having too many seizures to even remember my weekends, etc... Its nice. We patients are the teachers of what this is or that. I usually knew what was wrong with me even before anyone else did & thats why my favorite saying became, now I know why I was born with the dream of wanting to be a Neurologist when I grew up. Maybe I never got to, but, I knew that I couldve easily been a dr knowing that Ive had many different issues, etc... For eg. Eventhough I never had Liver Problems before. I knew in my 20s that I was starting to have signs of Fatty Liver Disease eventhough I was never a drinker, smoker or any kind, etc... I was quiet with my actions always. Yet, my liver was starting to fail. I got checked & was right & was right about many other health issues too throughout life. My favorite saying when it comes to drs is, Theyre not Jesus Christ you know. They dont know shit & only know what they know because they have us patients (their guinea pigs) to practice on. Dont be fooled by the white coat any. Theyre only allowed to wear that white coat because they luckily passed the test & got enough practice on us guinea pigs to earn the right to treat us. They are people just like us so dont go looking at them as Jesus Christ because they are not. Thats why we have to be our own drs too you know. We need to educate ourselves about ever topic imagineable & to pay attention to our bodies, etc... & then. Only then, will sparks fly of the right kind & in the right order & in the right direction too. Just like my 2+ decades worth of my battles with them re my Epilepsy, etc... I knew in my heart what the right answer was & God always lets us know too.

@belikethesquirrel6714

3 жыл бұрын

first, I am so sorry for your experience and my own has shown that is likely not uncommon in the least, though terrifying. My thoughts to you and you recovery. But...Yes, Yes, Yes! I have been gaslit and dismissed more by medical"care" staff (from specialists on down the line) than any "layman" has ever displayed to the chronic conditions I suffer from. It is has been horrifying the way my symptoms are disregarded and untreated and my symptoms ignored. For instance I have had night sweats for over a year with swollen lymph nodes, I ask, "is this the autoimmune conditions? Is this the fibro?". They order a blood test, it's normal, so I get no answer, no follow up and complete dismissal of these symptoms which I keep bringing up. I am going so far as to move in hopes of seeking better care, this is killing me. I feel completely alone and really uneducated, my husband and I are trying to learn as much as we can on our own, it's been a crash course of "omg, that's why that has been happening!, thanks doc".

Hello everyone, it breaks my heart to read all of these comments because it’s terrible to feel so helpless to do anything about our fibromyalgia. I’m pretty sure every single one of us has experienced every single thing that has been discussed here. I do, however, want to SPECIFICALLY address what was said in this video about not assuming that everything you are feeling is just fibro. I learned this the hard way. I’m an RN X 45 years so I assumed I would be “ on top of this”. In fact, one day I said to my husband, “ wouldn’t it be a bummer to feel so crappy, assume it’s the fibro, but then find out it’s something more serious that could have been fixed had it been addressed sooner?” Long story short… I did just that & ended up in the hospital with a systemic staph infection ( septicemia) many months in hospital, surgery to repair & replace bone “ eaten” by the staph, & 15 months on crutches recovering. It was touch & go & I'm lucky to be alive. Please don't ever NOT seek medical attention for something that just doesn’t feel right. Don’t worry about what anyone thinks or says. Listen to your body & your intuition. It could quite possibly SAVE YOUR LIFE!! Really truly. And I’m sending out so much love & so many hugs to all of you who are dealing with this really awful condition. Keep your body moving as much as you can, eat as well as you can afford, and try to remember , EVERY SINGLE DAY, how very very strong and AMAZING you ALL truly are! PS supplements really CAN help! ( but you must take every day) Especially B complex, B12, vit D, fish oil, vit C, zinc, MAGNESIUM glycinate ( NOT magnesium oxide, ever!) ( in fact, look up diff forms of magnesium … you’ll be amazed. But do not waste money on the cheap form, mag oxide.) Absolutely ask your health care provider before starting any new supplements. And good luck! We are all in this together! 🫶😘😊🌸🌼🌺

@katsiduzynski488

17 күн бұрын

Be aware too magnesium stearate is a poor performing version of magnesium put in many supplements by manufacturers who want to cheapen their products. 😉

I am 83 years old and was diagnosed with Fibromyalgia in 1988. I have never had any relief from all the symptoms I experience. This past weekend we have had cold, rainy, weather and I have spent the entire weekend in and out of bed with a flare up. I have suffered from the entire list of the above symptoms. Depression has been severe.

@mgpm17

Жыл бұрын

God bless you.

@timh5168

11 ай бұрын

How did you do it? Please if you can let me know. I'm turning 59 and can't comprehend how I am going to be able to live with this until I am 83. I don't know if I can cope. Any advise from you would be helpful.

@Rita_g678

10 ай бұрын

Praying for you 🙏

@martasarber7133

9 ай бұрын

​@@timh5168just moment by moment. Day by day. Sometimes you hurt so much, cry, try to sleep. Feel like your dieing any minute. Then other days it seems to lesson just enough that you can hear the birds sing and feel the warm morning sun on your skin. They are short lived but just a little moment like that, gives you just enough hope that you will experience that one more time.

@cherylsapcote7327

8 ай бұрын

Has your doctor prescribed steroids yet. They are a miracle for the relief of the worst symptoms.

It took me 2 hours from waking up,to showering,to get down the staircase and get to the kitchen. Im nearly 60 and cried for my mother. People say,oh bring the dog for a walk,get some fresh air into you,you'll be fine. What am i to do when i cant hold her lead or she pulls on it and my arm screams in agony. Its bloody awful,so dont take our "good days" for granted.

@madambutterfly4352

4 жыл бұрын

I feel for you it's such a overwhelming condition to live with..CBD oil is so good for the pain. I was prescriped many pain killers..which I won't take I replaced them with cannabis oil..my pain levels and symptoms have changed remarkably.. I have abit of a life now... blessing from me to you.. keep strong...

@hollyconger9037

4 жыл бұрын

@@madambutterfly4352 do u experience nausea ingesting cbd oil?

@ShaniTheBurningTree

4 жыл бұрын

It's a chore to stand and shower! I'm so depressed...I hate being unproductive. I don't know what to do. My daughter is only 5

@loriholman6125

4 жыл бұрын

Me too, I am so sorry 💜 I want my MOM ❣

@loriholman6125

4 жыл бұрын

@@ShaniTheBurningTree I'm so sorry😔

I don't suffer from fibromyalgia but I wanted to know what it was. My heart feels for everyone of you. This made me feel so sad reading the comments. Am a believer. 💗

@taraschmidheini4674

4 жыл бұрын

Thank you Dear

@soulpowerful

3 жыл бұрын

♥️🙏😩 thank you

@shelhope9748

3 жыл бұрын

Thanks it means a lot.

@michellel.woodman7303

3 жыл бұрын

Thank you!

@paulaheath803

3 жыл бұрын

Thank you for your compassion

I was diagnosed with FM in 1996 when I was 27. I’ve got steadily worse over the years and I have more days where I’m totally exhausted and can’t function, which impacts on other areas of my life. I’ve always been a bit of a night owl, but these days I go to bed early and can still lie awake for most of the night ! The thing that happens the most is I’m always losing my balance and I’ve even fallen over due to this, which can be highly embarrassing.

@angelapierpaoli4771

5 ай бұрын

I've started losing my balance more frequently and am so scared of falling in public I try not to go out if I I'm feeling bad. Some days I can barely walk when a flare is full on.

Finally someone the understand how a person feels!

I am 76, and I have struggled with fibromyalgia since I was 50. At first it was manageable to a certain extent. Twenty years ago I lost my brother to cancer. The shock of his loss just did it to my body. I understand all that you have said. My day begins at noon and ends by five or six. It’s not that I was sleeping late. It’s that I was trying to get up! Well, you guys know the drill. My internist has been very supportive. I can’t say the same for my friends. The thing is, if I had been in a wheelchair all of these years, I would have weekly visitors who would sing my praises for being so strong in the face of adversity!!

@troy3238

3 жыл бұрын

I’m 71 and I’ve had fibromyalgia for six years. The last three years every week I probably stay in bed at least 1 to 3 days. I was told by one doctor that it could be the trauma that I experienced in my childhood. And that did make sense, but I don’t know what to do to not have these symptoms. I eat completely organic, I’m very careful about anything that goes to my body, but I don’t know what to do about it and I don’t know where to go and I just now ran into this website which I think I’ll do a lot more reading.

@TheLightbright01

2 жыл бұрын

When I was still working. My late husband would have to come to the car and help me get into the house and get into bed. But, the person I am married to now probably wouldn't know if I died.

@leanitasowell-nedostup8909

2 жыл бұрын

we, fibro suffers, are really a 'tuff' group of spirits, cause we do function and we do go on in spite of the suffereing that we can't describe and others do not understand, and we do look well....and we do spend effort helping others...today, i have just now heard about the vegas nerve in the crainial area and how fibromyalgia and whole body areas are affected by this...i have been needed to massage my scalp daily with essential oils, warming types: cinnamon, pepperment, etc. for a soothing effect....

@Alipotamus

2 жыл бұрын

@@TheLightbright01 so very sorry that you’re suffering alone. My fibromyalgia has lasted 50 years now and so many things make it unbearable. First, I don’t look sick; people don’t believe you can be in such pain without visable signs or a common disease such as cancer. Second; I now have sleep apnea which my doctors can use for excuse in refusing sleep and pain help. Third: my disease is definitely progressive with no HOPE of death any time soon. Therefore, I, like increasing thousands of chronic pain sufferers are agonizing over the prospect of suicide. I can’t bear the constant all body pain, the frightening nights of painful awakefullness and the “nervous wreck “ feelings without sleep. Each new day is a repeat of inhumane suffering with Kaiser here in California just saying “sorry, there’s nothing we can do.” It seems that only those with Covid receive attention and all else are kicked to the curb. If I take my life it will hurt my family and future generations. Breaks my heart. I don’t expect life to be without challenges and suffering but I have held on longer than I can bear. Death is on my mind daily. I a jealous when I hear of a death by accident or illness. Sad. No help. And I will not try therapy over a phone or with those things that cover our faces but do not stop something as small as a virus.

@carolynarnott5002

2 жыл бұрын

I do also believe fibromyalgia can be triggered by trauma of some sort I feel for any one with this condition it messes with your mental health big time

I had to go 10 hours from home to be properly diagnosed. I cried when the doctors told me because I FINALLY FELT HEARD!😭

@corinna5110

Жыл бұрын

Same!

@needles1975

Жыл бұрын

You could've diagnosed yourself if you were your own Doctor like I've been promoting for 40 years and guess what 50 years ago Janet Travell left humanity precise 34 part recipe daily behaviors restorative therapies you must do yourself when obeyed guarantee to eradicate all the hundred and 22 signs and symptoms of PTSD cured with megadoses of TLCs works perfectly miraculously precisely helping mother nature do her best while you get good nights of sleep wake up refreshed pain free mental clarity battle ready.

@nikkirenstrom3823

Жыл бұрын

Same here

@AlwaysLisaLisa

Жыл бұрын

Yes, same.

@tonihansen1194

Жыл бұрын

I went to a rheumatologist and he told me I had fibromyalgia after he did a few things. He’s a well known doctor too in Washington state

I'm a 56yr old woman. After suddenly experiencing some of the symptoms described by you and so many here...originally thought that it was because I was going through menopause. My PC doc just made the connection and made the diagnosis of fibromalga just last week. The reason that I started researching. This video is the best so far... I've watched several of your videos on other topics. This video has put the pieces of the puzzle together for. I've had most of the symptoms you described for the past 2yrs. I had just brushed them off.... but couldn't anymore...as they became worse. The joint, body aches and fatigue is debilitating. I've just started this journey. It's good to have someone like you who understands and can put out such helpful information. Thanks to everyone here who shared there stories and suggestions.

I have had most of the problems associated with fibromyalgia over the last 35 years. I have also had cancer, brittle bones , lower back surgery , ruptured colon , tinnitus, plus a few more challenges. The worst of the worst is fibromyalgia.

One symptom not mentioned in this video is itching. I itch from head to toe with very little relief. This itching is in addition to fatigue, joint pain, and poor sleep. This has been going on since about 2014 and as I approach my 80th birthday in about a month, I wonder if I will ever feel normal.

@elizabethreincheld3368

Жыл бұрын

I know that I don't know you. But I can feel your pain I have fibromyalgia too. I wish I could be normal like everyone else too. I have to get off my pain medication before

@elizabethreincheld3368

Жыл бұрын

I know that I don't know you. But I can feel your pain I have fibromyalgia too. I wish I could be normal like everyone else too. I have to get off my pain medication before

@elizabethtovar3603

Жыл бұрын

Me, too! The itching is unbearable. 18 years.

@adalovelace7806

Жыл бұрын

I had no idea I was not the only person with this itching that seems to be more noticeable as I crawl into bed at night. I just thought it was the soap I was using or from dry skin. As a sufferer of fibromyalgia for many years, it impacted my ability to work effectively as a Medical Lab Technologist. The noise, stress of working, the body pain, and as I've come to realize, the lighting in the Lab became unbearable, and I had leave my job and go on disability. I always hesitate to disclose my fibro diagnosis to medical staff, as I am always unsure of what their beliefs are when it comes to Fibro. But, we soldier on.

@janehyden1652

Жыл бұрын

@@adalovelace7806 i have a lot of itching too but it could be my liver.......i would love to have 8 hours straight sleep!

I wish I could change bodies with my doctor for five minutes. If they had to go through what we do they wouldn't make it.

@bodinewaterfire5744

4 жыл бұрын

and maybe take it more seriously and school themselves about it.

@LordTimCahill

4 жыл бұрын

I'm a doctor with fibromyalgia. None of my colleagues take it seriously.

@taraschmidheini4674

4 жыл бұрын

Amen!

@smackpointgsps1476

4 жыл бұрын

I wish that every time I see my Dr. I'd like to see how much he believes "it's all in his head" if he had to live it for an hour.

@suzysrvgirl4ever164

4 жыл бұрын

Ima quigmire I always say I wish who ever says that to me could live in my body for a day on a good day, then let them try it out for a day on a bad day.

I still deal with fatigue, but getting an intolerance test helped me learn which foods my body is intolerant to. This has helped tremendously!

@ElizabethKey-mi7qz

10 ай бұрын

Nightshade vegetables are bad for me. For pain Epson salt baths help with whole body pain at least for a bit of time. Online MOOD sleepy time gummies help my muscles relax enough to sleep. It’s been 30 years ,thank god my husband made enough money so I didn’t have to work. I don’t know how people with fibro do

@emilythompson8070

6 ай бұрын

How do you do this??

@lindadavis5668

5 ай бұрын

Very long hot baths after Tylenol. It helps a lot ! Like 45 minutes, keep adding warm water to the tub. Listen to music, or a candle, or I use podcasts that r timed for about 45 minutes. Try it.

Been diagnosed 3 years ago, but my doctor told me its all in my head....so living in hell with so many symptoms that I barely get out of bad most days, but still work full time and take care of the family...since its all in my head...we need better doctors.

@CFSUnravelled1

2 ай бұрын

This is a bad choice of words for a neurological condition. Here is an article that addresses this cfsunravelled.com/is-fibromyalgia-real/

I've gotten to the point where I dont want people to touch me because it hurts. Clothing hurts. The cold & extremely hot kills me. So tired 24/7 and the sugar cravings you get from having fibromyalgia are nuts. I'm so tired of doctors not being educated in fibromyalgia. Being treated like an idiot by doctors. I educate myself on fibromyalgia it's sad when you know more about it then doctors do. Join fibromyalgia support groups this helps you and adds to education for yourself. I've been denied my pain meds because a doctor told me at a pain management appointment I went to that pain pills dont help. I advised him yes they do and you have absolutely no clue what your talking about. I've learned to watch what I eat and try to stay away from stress, meditation, and honor myself on bad days and good days. Praying for everyone out there fighting this fibromyalgia battle 🙏

@abbzeh137

5 жыл бұрын

Vicki C by watching what you eat do you mean you are on a certain diet? I have heard good things about paleo and about fosmaps- I think both of them are elimination diets that you reintroduce foods, find what’s bad for you and tailor the diet to your body.

@vickicsurbs444

5 жыл бұрын

@@abbzeh137 yes cutout all sugars carbs only eat 2 to 8 ounces of meat. High veggie diet. It really helps

@janetscofield7740

5 жыл бұрын

Can you recommend any support groups?

@rebeccagreen9240

5 жыл бұрын

Ty n I'm right there with you

@vickicsurbs444

5 жыл бұрын

@@janetscofield7740 of you are on FB at all I suggest typing it in and start joining groups. You'll find what groups work for you or not. If your looking for a group in your city. I suggest looking at fibromyalgia groups in your city that your from. I'm not on FB anymore otherwise I could give you a list of names of groups

And always always being tired. And being looked at and treated as a "drug seeker" it was horrible...

@ruzaikaarshad

5 жыл бұрын

rita Daniel I can relate to you Rita. I got very hurt when my GP called me “crazy” I felt depressed at that point not before but he has already put me on ante depression meds which I felt was not needed at all. Mine is a big story, no time to go on about it. But please know you are not alone in this horrible journey.

@Nan-59

5 жыл бұрын

Tamil Ruzaika I am on Cymbalta, which is an depressant, but also prescribed for fibromyalgia pain.

@Nan-59

5 жыл бұрын

I live in Northern Illinois. I had a hip replacement back in 2007 and it went bad, would go out on me while I was walking, etc.! after 11 months. I went in to my doctor. He took x-rays. He said the hip was “perfect” and that I was there “looking for drugs“. A doctor at the University of Iowa did my revision surgery on that hip. The ball joint had been loose, which does not show up on x-rays!! It was a 2 1/2 hour drive for us, but so well worth it! They treat you there like you’re human!!!

@mecfstraveler

5 жыл бұрын

I was accused of displaying "attention - seeking behaviors", and my GP screamed at me that he "believed I was sick.. SICK IN THE HEAD!!!" And I gave him an earful before storming out of his office. Now, I'm truly afraid to go to the doctor.

@fayfelter8921

5 жыл бұрын

It so sad 😞 that people treat us this way and I truly understand how you feel 🤦‍♀️😢I’m so sorry

I was diagnosed at 17 after years of going back and forth trying to find an answer for the severe pains i was getting. What was thought to be just growing pains turned out to be fibro flares. Ive developed other symptoms of it as ive gotten older but its good to know there are people who acknowledge that it is a real illness and not just psychological

@rebeccamurray8047

Жыл бұрын

I've had this for yes and would like to know if there are any new pain medications out there or are they treating this disease differently now with out the pain meds?

@celiadasilva2983

7 ай бұрын

I found that menopause does aggravate it. I used to feel like that like growing pains at the back of My legs. My wrists u can't touch them like b4. It first started in my fingers. And escalated.

Fibromyalgia just sucks! I’ve had it most of my adult life. I went more than a decade without diagnosis. I’ve missed so much work and family activities. I have a wonderful family that, though they might not fully understand what I’m going through, they are flexible and not judgmental. It is still extremely discouraging that there is no cure and that as far as things stand now, I will suffer every day for the rest of my life. Sometimes I just cry. My wife is so amazing! Without her I couldn’t get through this. I love you so much Tammy!

Sciatica is my most aggravating symptom besides the pain I have all over. I have had Fibro for 18 years now, and I believe mine worsened even though they say that's not true. I have many things you mentioned, like the sensitivity to touch. The brain fog, pain all over, not enough sleep even though you sleep it's not deep sleep. It's truly horrible to live with, and I don't think anyone would lie and say they have such syndrome or disease. Nobody will ever want this disease. No way. 😔

@ronyafeldman4853

Жыл бұрын

Yes you right I have had fibro,and CFS,and sciatica for 65,years its hell!!

@tranquility9325

Жыл бұрын

It does get worse or can as we get older. Anyone who says differently has no clue what they are talking about.

@EC-yd9yv

Жыл бұрын

​@@MomeGnome how about gluten free oats?? Any issues ?? Thxx

@needles1975

Жыл бұрын

4000 years ago Hippocrates left humanity females precise 34 part recipe to treatments behaviors therapies mitigate eradicate cure #fibromyalgiasciatica bone-on-bone chronic pain immune deficiencies mental health spiritual health psychological health chronic fatigue PTSD deadliest to females 10 to 1 male lickety-split no failures as long as you follow the recipe!

@normantuil1952

Жыл бұрын

@@MomeGnome I’m

I become so fatigued that even strolling through no more than 3 stores with my husband wipes me out. He does everything for me and can spot a flare immediately. My heart aches for women who have a husband that doesn't care or won't take the time to understand. How I wish that I could sleep all night. Very often I wake myself up grunting in pain. It encompasses my entire body. 💔💜

@marieannsparling4837

3 жыл бұрын

I totally agree with you & am glad that you have someone who is the same with you, like my Grandpa was with my Grandma. I remember that old biblical saying, when they say that the moment you people get married, they go from being 2 separate bodies to being 1 body. They are a whole. And my Grandparents were that. While her physical health slowly deteriroated due to having diabetes type 1.5 (which means that she had equal symptoms of both types 1 & 2), arthritis, hypothyroidism, a heart pacer, & on & on. And he had Angina, Alzheimers, etc... & even with his mental helath deteriorating alongside her physical health. My Grandpa would push my Grandma around in her wheel chair for miles & miles a day. Up & down hills, around the sharpest of corners, etc... He was too stubborn to give up & wanted to bring his wife sightseeing anyways. Thats when you say, Aint Love Grand. In the nice way that is. Not the sarcastic way it gets used for most times. :) I am glad for you & wish you both all the best. Take care. :)

@pjmjdmurdach4792

3 жыл бұрын

You have a very sensitive husband with your illness. Mine not so. Doesn't believe I have that problem. Calls me names and requires me to do more when so tired. I now have diabetes also with heart problem High blood pressure thyroid and more. Oh well. I'm sure many of us have problems and illness.

@Warrior4Him

3 жыл бұрын

@@pjmjdmurdach4792 I’m hypothyroid, I have fibromyalgia and IBS, but my symptoms have diminished over time. Stay away from white bread and sugar they are your worst enemy…alcohol doesn’t help either. I’ve been diagnosed with IC also…I think it’s worse than fibro. So now I can’t have any caffeine, or sodas or citrus drinks. I believe it’s all environmental…God did not intend for us to have so many man made chemicals in our water, food, and all around us really…I’m sorry you don’t have someone to lean on…I will pray for you!!

@lll9409

3 жыл бұрын

It is terrible that doctors do not care to treat the pain away from you when it is possible with modern medicines to take it all away and reset the system.

@lll9409

3 жыл бұрын

@@Warrior4Him I came across some info about CRPS or RSD or Causalgia/allodynia and how the pain spreads in the body. The pain mechanism seems to be the same in the spine and in the spreading way and it is not in the head but in the spine. The nerve irritation can be for example a trapped nerve, nerve damage or a chemical or continuous electrical irritation, which makes the body oversensitive especially the skin. It helps for some people to get away from big cities and the sources of certain molds, which usually starts it all. Then chemicals, wood, glued new furnitures with holes, ink paper and even electric fields (some people get shocks from TENS (pain treatment device) after several days of its usage without having a break) can be too much. It has gotten better for some, who avoid all the sources of stress to the body whether that is the lack of sleep, scents, certain chemicals in the air and skin - natural or manmade. ONLY the medicine, which works for central nervous system seems to work like fast opiates and brain medicines except antipsychotics, from which I heard make the nerve pain worse. Acupuncture, tricyclines and gabapentine has helped many.

I’m so tired of being exhausted

I was diagnosed in my mid-fifties and it was so difficult for my family and co-workers to understand fibromyalgia and what was wrong with me.

Having watched my wife go through this I can confirm how bad it can be. If particular the fatigue and brain fog. Memory retention is shocking. We were told it was brought on my the sudden death of our son. It’s been ter,rib,e watching her go from a fit and healthy lady to what she is now. Shadow of the woman I fell in love with. Heartbreaking.

@RachelSmith-vm2jt

3 жыл бұрын

So thankful for her that you love her still. My x hated that it stunted his life.

@diamondringirl

3 жыл бұрын

sorry MG about your wife. trama can make fibro worse, infact it can trigger it if you have it but not too severe. i was diagnosed in the 80's, my doctor then said to stay as active as possible and as fit as possible..as i did till about 14 years ago someone fell into me and broke 2 of my ribs. and then the fibro flared and has been a constant pain and other symptoms in my body since. they say it can go in remission, but so far no luck. i do find taking B vitamins helps to a degree, and staying away from sweets and artificial sweeteners, and ingredients i no longer use margarine, or eat a lot of packaged snacks due to the whatever they put in them. all it takes for me is to have that candy bar or slice of pie. much hugs to your wife. i wish her some comfort.

@j.haulum2444

3 жыл бұрын

At least you care. Many men just get mean.

@vickiefinney6073

3 жыл бұрын

Thank you for being an understanding and sympathetic husband. My husband just doesn't get what I'm going through

@flouncymom

3 жыл бұрын

My sincere condolences on the loss of your son. I have 2 and I just can't imagine the heartbreak. But, the most important thing for those of us with FM, is a good support system and just someone who loves us enough to really understand. You're a good husband. Bless you both.

This condition destroy people's lives 😭💔💔💔 it's so hard to keep going 🤷🤦🤦🤦🤦

@miriamcuevas8946

5 жыл бұрын

LIFE 🤦🤦🤦

@jaxwells1

5 жыл бұрын

I totally agree with you Miriam. It does destroy lives. It is very hard to keep going when all you see is more pain etc. Gentle hugs, xx

@drina4706

5 жыл бұрын

It really is.

@salliefabulous1923

5 жыл бұрын

Exactly!

@stacylein2448

5 жыл бұрын

I hear ya I wish I new one person who has this so we could talk

I had to go to the emergency room a few years ago and I had a male nurse who attended me. He was almost hostile to me and he kept asking me questions about the pain medication I take which are prescribed for me by a pain management doctor for another condition and he was talking to me as if I was an addict because I take a oxycodone rather than something less strong and when I explained to him that I have fibromyalgia and it's caused me to develop sensitivities to many things drugs included and oxycodone is the only opioid I can tolerate. His response was that fibromyalgia is not a real disease but just something that doctors call it when they don't know what's wrong with you. As a retired RN myself I couldn't believe that a healthcare professional would be that uninformed in this day and age. I just looked at him and told him that he needed to go back to school if he didn't know any better than that. I also asked for another nurse since I had no confidence in his ability to take care of me since he was so obviously uneducated about something that is now well known to be a very real disease.

Thank you so much for these video’s.I have spent 55years + suffering life changing symptoms & now isolated & house/hospital bound with complications 9years plus other serious problems.1%of people believe you, so you become introvert & isolated. I do help/ counciling .over the phone 20 years now, too.keep sane.It is far from a life style.God Bless all you who suffer & those who do not understand.👱‍♀️💐❤️XXX

I had heard that having fibro is like having the flu every day of your life. Sometimes it's like that, but other times I'm so wiped out that I couldn't possibly identify anyone illness. What I most appreciated about this video was the reassurance that regardless of how people - - my friends and my own family - - - regard me and my symptoms, they are real (the symptoms, that is). Thank you for providing this.

@jessicamurry323

Жыл бұрын

That's how it feels for me. I spent 20 years taking cold medicines almost year round and thinking I was just sick all of the time!

@curtiste3235

Жыл бұрын

Carla, I see you! I believe you! You are not alone. It is very difficult for people who don't have the condition to really "get it". It doesn't go over very well when someone asks you "How are you today?" And we want to say, "Well, my mitochondria isnt processing very well today". That would produce a strange look of disbelief and confusion. But it's true! Every cell in your body is messed up and not producing energy effectively, but it's not easily observable by the other person. We really need a test that they can see... and a famous person to champion the disease to give it visibility. The problem is that people with moderate to severe ME/CFS don't usually become famous because there stuck at home, exhausted and bedridden. There's a long way to go. My best to you, friend.

@sixteezchild

Жыл бұрын

YES!!!

@moniquegillet5125

Жыл бұрын

😢😢😊❤

@debrakildau9288

Жыл бұрын

That's what I tell everyone it is like having the flu all the time.

I have had this invisible disease for almost 30 years and do get tired of being looked at sideways when I feel ok one minute and terrible the next. Thank you

@sharonmccann2902

3 жыл бұрын

I understand. I've dealt with fibromyalgia for over 50 years. I wasn't diagnosed until I was in my sixties. I'm 75 now and my Dr understands why I need mild pain meds. It's true about trying to make plans and then your body says, "not today!" I don't look sick, but few people in my life understand how tough some days are for me. I do the best I can every day. 😊

@MariaBarbosa-pt2cc

3 жыл бұрын

I have had fibromyalgia for 25 years. I have been taking amitriptyline for about 20 years and It has been a life changer. I don’t get as many flare up as I used to, and obviously stress adds to it. I hope this helps.

@donnahattonconner4123

3 жыл бұрын

Its invisible so nobody understands

@annelliott6653

3 жыл бұрын

I have 6 auto ammune deseses.30years ago I only had cronic skin problem.got put on syclasporin then I got crone's deseas.got part of my bowl removed.steroids and morphen.then two bone deseases ousteperosis.then framalga.. when lockdown happened I got a really bad flu.. I've had pluracy before,but doctor said to stop my meds as I had pain in my lung's..that was one half year's ago and not been on meds since.i have no illness no crone's no pain nothing..I Will never take Meds again..and I will never take a virus test or the shot.i lost 30 year's of my Life in cronic pain and suffering like broken bones.noe I feel free from poison..and take holy communion and pray for the whole world..amen,🙏❤️🙏

@granmabern5283

3 жыл бұрын

Ann Elliott Thankyou so much for sharing! Glory be to God! This helps me to remember that God is in charge. In Christ by Mary, from Bernadette.xxx

I was diagnosed 5 years ago.. The consultant told me, it's not in your head, it is an actual condition, you have to learn to pace yourself, gentle exercise when I feel up too it.. Such a relief to hear those words.. I have all these symptoms, I cabt concentrate, forgetful exhausted, pain all over, hate loud noises & bright lights. My life changed so much I just don't feel me any more..

This is so true! Severe muscles aches wide spread. Tender or trigger points like ahock waves. Just the touch of my husband putting his arm around me to sleep hurts so bad. Muscles spasms which sometimes feel like flu in my lower back. So much fatigue. I used to be able to go go go but i can't anymore and it feels like im just lazy. Pain in the bottom of my feet like im stepping on nerves. Brain fog and memory lose aling with depression and anxiety. Its getting worse im 60 years old now and i didn't even list everything. I feel like i let my family down all rhe time. Thanks for the info. Cheryl

@-xyz-012

7 ай бұрын

Please read my comment above, there’s treatment for it

Living with FM is like playing medical “Wack-A-Mole.”

@marykrupsky8795

3 жыл бұрын

Good analogy....Wack-A-Mole just about sums it up

@shelhope9748

3 жыл бұрын

Hhh that's it.

@hiheeledsneakers

2 жыл бұрын

That's true!

@karenmoore9958

2 жыл бұрын

Best explanation I have ever read!!

@fallensway855

2 жыл бұрын

I actually giggled at your analogy. I appreciate the smile you gave me during a major flare up ☺️

I am in the the “I’ve given up” I feel very, very let down by the medical field. Am resigned to living in pain!

@cicin9313

2 жыл бұрын

Same 😖

@kathycrabtree9294

2 жыл бұрын

I'm 66 I've been dealing with this for years. It's been years of this. Three years ago I lost my insurance and doctors. Almost a year ago and 3yr.in bed I left my husband and got my own place and insurance I thought maybe I could get back on track. But I can't find a doctor that gives a shit or I get remarks like fibromyalgia is a thing. I'm lazy and lay around like a Buda. 😨😨😨😨 I'm about ready to give up. I'm can't call this living day after day.

@jenniferlloyd9574

Жыл бұрын

I've been in the "given up" category since 2015. Diagnosed in 2004.

I was diagnosed with Fibro when I was in my mid 20s. It never really bothered me, unless someone poked me in the arm and I’d want to punch them because it hurt badly. My main thing was fatigue. So tired all the time. I worked out and had always played sports growing up, but I never got that second wind they all talk about and I would go to sleep afterwards. In 2008, I was T-boned by a speeding pickup truck (walked away with no broken bones or cuts) and then 2 months later, sideswiped by a dump truck. I’ve been dealing with major pain ever since then. Thankfully, I have a great pain management team.

I have had extreme symptoms for years of fibromyalgia. I gave up long ago! I don’t have time to be sick so I just siesta out a smile on my face and cry in silence. I do NOT want to be “that person” that complains, but the symptoms alone are physically and emotionally exhausting, that has worsened greatly as I get older My heart goes out to those suffering, I keep praying for a miraculous cure for this horrible condition

I’m 30years in with Fibromyalgia and now ME. It’s true what you say, I get into many arguments with my husband and family because I won’t go to the doctors just to be told “it’s Fibromyalgia “. The guilt I have is horrendous because I can’t get out often. Family parties etc just fly by me. It gets to the stage where invitations are far and few between. The thing is different people have different symptoms, what helps one person doesn’t help another. Sometimes I just want to put a big sign on me I may look ok but my body is screaming! I pray that as time goes on someone somewhere will find a cure, till then I’m plodding on. God Bless all of you out there who are suffering and God Bless the family who are watching your decline because they are suffering too. Xx

@CFSUnravelled1

Жыл бұрын

Hi Patricia, sorry to hear you have been unwell so long. Look, given the nature of the condition , I don't' think we will see some magic panacea cure (there aren't a whole lot of cures out there for anything). However, people recover their health anyway, both partially and fully. I have been sharing how they do this in the recovery interviews for a decade now - check out some of the interviews! Also, check out some of the other resources on the cfsunravelled.com site, like the book - to learn how these recoveries happen so that you can personalise your own action plan.

@mordeys

Жыл бұрын

Im that way now as well. I dont go anywhere but doctors visit. And after a trip into town i will sleep the next 2 days. I will have anxiety attacks the day before because i know how bad its going to hurt and how utterly useless i will be for days after. I still have teens at home. My doctor says the anxiety before leaving the house is akin to ptsd from the pain and situation. I have days i sleep 4 hours while the pain meds work...up 4 or 5 hours till the pain meds wear off then back to sleep for 4 or 5 hours. Its so bad my dr got me a home health nurse so that my b injections and blood work could be done at home. I have several other disorders as well. I have several drug allergies and the drugs for anxiety work the opposite on me. They cause extreme anxiety, intrusive thought, hallucinations and fear response. So i stay away from them. I have been to pain management after pain management clinc...always end up back on opiates. They are the only thing that settles the pain and anxiety..doesn't get rid of it just settles it for me to continue with life. Showers are impossible. Same temp water coming out of shower on place it feels like ice water another it feels scalding. And it hurts having it hit me...like stones hitting me. Then theres the chill afterwards that lasts hours..no getting warm. Which hurts and flares the pain to 9. I live at a 5 even on meds. The hope is to keep me out of the rafters. Many times i have went to rafters and have had iv meds to back it off. I also get infections...like feeling great and 5 hours later in an ambulance being wisked to the er. I once had a blood draw that was clean, 12 hours later i am in icu on 2 different antibiotics and my husband getting the "its up to her and God" speech. 5 times in 5 years and 8 in the last 12 years my family has heard the speech from "flash infections " except once with a reaction to the antibiotics....and once to my hemoglobin dropping to 3.3( yes you read that right). It was during the height of the lockdowns and they had to give me A- blood when im A+ they were calling the state dept or someplace like that to get blood from Canada for me. But luckily the found 2 matches in my area that donated and my body kicked back in. I have always been anemic and had b vitamin issues. I use lidocaine gel, lidocaine/prilocaine cream, diclofenac and pressure points to deal with the odd sharp pains. I say its like someone has a voodoo doll of me just sticking pins, nails or railroad spikes in me. The arthritises are no help either. 3 months ago i ended up in the hospital because my kidney was so full of pus and the dr who drained it said it was thick as toothpaste. Had to have a stint put in an at home iv antibiotics after a week in hospital with massive antibiotics. I never hurt in my stomach. I hurt in my shoulder for days before. I thought i had mucked up my shoulder again...nope referred pain. I had even been to the doctor for it. But no blood test...now every time i go in for anything they will run a screen on me. Since where i hurt isnt going to tell me whats going on. Its so bad that when the urologist and my infectious disease doctor cam in i called her by her first name and she mine...the urologist said its not good or normal to be on a first name basis. She asks about my kids and me about her dogs. I used to be an outgoing balls to the wall person. Never sick. Worked full time and went to high school and college while being married my senior year. Plus did debate and forensic and the school plays. I never slept more than 5 hours..couldn't. After my divorce work 60+ hours a week and did things with my kids. Then remarried had more kids did the whole from scratch cooking, canning , gardening and homeschooling. Never slowed down. Not even after my month in the hospital with the flesh eating bacteria. Came home with skin grafts healing and took one hydrocodone. I could deal with pain no problem. Then the fibro hit. I am totally a different person.

@choppinbroccoli7037

Жыл бұрын

​@@mordeys I finally put two and two together when I had a horrible case of sciatica last year. I realized that the lidocaine cream and gel was actually making my pain worse. I hope this is not happening to you. I enjoyed reading your experiences. This health condition is definitely a puzzle.

@darlayoung9356

Жыл бұрын

​@mordeys, where do you live? What works for me I can't get cause everyone is trying to rid the world of opioid perceptions. That's why I was wondering where you live. Prescriptions.

@LadyBlanche.888

Жыл бұрын

I do understand everything you are saying. I have M.E.on top of that and pernicious anaemia. I have a wheelchair which I never used as I was determined to not use it. I had so many falls due to my spine I have arthritis there so falling seems to happen but I nearly died from last years fall when I split my skull open after a fall went unconscious then into shock I had 8 stitches but lost a lot of blood. I'm in the uk and I'm crying out for help but the pain of my spine is getting worse so I can't get outside without some help and my family just let me rot. I still try to do things for myself but there's only so much we can do. I ran a bath last week but I had no energy to get in and I had to pull the plug out! It's things like that. I watch summer pass into season after season dying to get out- dying to live but no one is there to help. There are many like us I still think we could be helped more. Please know that I know you are somewhere out there and I will pray for you and all our amazing Fibro Fighters! 🙏 ❤ 💐

Was diagnosed eventually with fibromyalgia I am in so much pain and tiredness I just want to lie in bed all day it doesn’t help having anxiety and depression also crushed and slipped discs and arthritis in my spine but I do try to get ready but most days I end up in my nightclothes all day it’s a terrible illness and I say prayers for all of us who suffers God bless

@plannerfunandinspirationwithme

2 жыл бұрын

I have the same. Arthritis on my spine, knees and serious bursitis and degenerative disk disease and degenerative joint disease. That with fibromyalgia is almost to much to bare some days.

@jjjones1960

2 жыл бұрын

My wife is the same. She has all of what you just described!

@mytwocents27

2 жыл бұрын

All of what you said and more. Feels like a neverending punishment.

@GG-PAT

2 жыл бұрын

BE WELL GODBLESS YOU TOO✝️✝️✝️✝️✝️

@kathycrabtree9294

2 жыл бұрын

I totally understand, I also get tired of hearing go out and get some exercise you'll sleep better and feel ,😖😖😖😖

I've been living with this since I was 27. I am now 58. This is definitely real. I posted it on Facebook News feed. Thank you for validating this.

@CFSUnravelled1

Жыл бұрын

I can't get over this bizarre idea that it may not be real - crazy right. Check out this article I wrote to try to put that notion to bed: cfsunravelled.com/is-fibromyalgia-real/

Thank you for such a clear and informative video. I certainly learned things I did not know and have a greater appreciation for those who suffer from fibromyalgia and the impacts it has on them. Prayers to all who are suffering 🙏

My fibromyalgia was caused by a trauma. I found myself finishing your sentences before you did. Very well explained. But there needs to be more acceptance of causes too, and that trauma can play a big part.

@miapdx503

Жыл бұрын

Yes, after decades I've learned that complex trauma, complex ptsd and fibro are no coincidence. The pain, physical, mental, emotional and spiritual...I call it a pain soak.

@mh.1568

Жыл бұрын

I feel my health issues fibromyalgia being one of them was triggered by coming home from work and finding my husband deceased. He had beginnings of dementia, and other health issues for a year and getting weaker. From that day I have seen my health decline. I have anxiety, sensitivity to light and noise. Migraines, Hashimoto Thyroiditis, pernicious anemia, and fibromyalgia. I am in pain everyday. Fibromyalgia is real.

@Coalminer69er

Жыл бұрын

I feel for you because my father had fibromyalgia .

@mamabear71234

Жыл бұрын

Emotional pain eventually manifests into physical pain

@mamabear71234

Жыл бұрын

​@@mh.1568I'm sorry that happened to you. That has to be so painful.

Thank you so much, I’m a 53 year old male. I’ve been suffering for many years. I think I’m crazy and so alone with this awful thing. I was diagnosed along time ago never heard of it before that. I don’t want to live most the time, feeling like a week person. I pray a lot. Hearing this brings me to tears, I’m not crazy or alone. Thank you.

@4everu984

3 жыл бұрын

You’re not crazy or alone. Super validating. Hang in there, you really matter! I do yoga and take Kratom for my pain, helps quite a bit....can be addictive. 🙏🏻🥰

@CFSUnravelled1

3 жыл бұрын

As a man it's often a case of having insult added to injury - wrote about fibromyalgia in men some time ago: cfsunravelled.com/fibromyalgia-in-men-effects-beyond-the-symptoms/

@tinaegeness4170

3 жыл бұрын

So many mentioned support... I have some now but it's almost like too little too late.?? The support I have comes and goes along with apparently my believability! I have depressive bi-polar and the one person I have in my life will occasionally shoot me down saying that I don't have it! He claims all including fibro never existed before so in his all-knowing wisdom it is 'made-up' now. I have lost so much of my life and now my body is totally worn out, my knees, hips, back and neck are so bad I can't walk straight and my strength is failing. I used to be strong and able to do so much I am 55 and feel 105.

@troy3238

3 жыл бұрын

I’m 71 and I’ve had fibromyalgia for six years that I know of, I was on medication for two of them, something called Neurontin, which worked a little bit. But you are not crazy and you aren’t alone, but it is hard to get support from people when from the outside we look fine. If you ever need to talk to someone, I live in Denver Colorado and If any of you want to talk to someone that understands you can reach me at 310-405-5021.

@lindacleveland1289

3 жыл бұрын

Hello , I have a great niece she is 16 years old and has been diagnosed as having fibromyalgia. The NHS say as she is no longer a child then they will not treat her. She has been told that she cannot receive treatment for 2 years as she is not considered to be an adult either !!! How is this possible that they will leave a young girl in pain untreated because they say that she falls between being a child and an adult . Her mother is gobsmacked by this and so am I . I would welcome your opinion on this , have you come across such a situation in your experience. Do you have any advice please

I was diagnosed over 20 years ago and this is my first video of YOURS. I AM subscribing to your channel now, because this one video was informative for me. I didn’t realize that a lot of the things I have experienced over the past 20 years were all fibro related. I am amazed and excited to learn more from you! Thank you!

Thank you for this video, I had a neck injury and back injury and this is when my symptoms began. I have 14 out of 18 trigger points and the worst symptoms for me is chronic fatigue, low energy and pain. The rest of my symptoms I can manage or deal with. Thank you again for this video, as it will help thousands to understand this syndrome.

I'm 66 years old. I can recall having many of these symptoms since my early 20s. No one else in my family had them. And because I was active my symptoms were considered 'no big deal'. I first began to wonder about my problems when I saw an article in a newspaper about a doctor in Sweden, I think, who discovered and named the disorder Fibromyalgia because his wife went from being 'vibrant' to being bed ridden. But I 'soldiered on' because I was young. Eventually, I was told I was lazy. Then when I started having panic attacks, I was told I was depressed. I actually asked the doctors, 'Depressed about what? I don't have anything to be depressed about.' And I was told I was born with it because of a chemical imbalance. So, I took antidepressants for many years. (Then I had to deal with those side effects.) The Fibro symptoms, very slowly, continued to get worse. Then, in 1991 I was rear ended by a vehicle at a stop light. My neck was broken. Believe it or not, I eventually recovered from that. BUT, by 1994, my fibromyalgia symptoms hit me like a freight train. The doctors told me my symptoms were due to my job requirements. Then I began being told, 'you're not getting any younger!' When I started researching my symptoms, I read an article that stated 'a trauma can activate autoimmune disorders.' I've never been actually diagnosed with anything. I believe I have Fibro, CFS, and Sjogren's Symdrome. I haven't been able to find a doctor who would conduct the correct tests. The only test performed was a rheumatoid blood work. And both times, I was told there is nothing wrong with me. My family doesn't understand why I hate going to doctors. And no one that I know understands the brain fog. I believe they all think I've just become stupid. 25 years ago, I stopped eating all sugar, that means all sweets not just the white stuff! Then I stopped eating all meats. It's made a huge difference in my life. It hasn't cured me, and I continue to develop more symptoms as time goes by, but no sweets nor meats has made a difference. And, yes, it was difficult to stop! But trust me when I tell you, it makes a difference. And, yes, we're all different. My best advice to everyone... research, research, research. When I started researching, there were no household computers. 😊 Do all that you can do for yourself. Don't just lay down and die, even though you may feel like it some days!! In the midst of all of this, I've had a heart attack, a TIA, and I've lost all of my teeth. I'm only 66 years old. I take no medicine any longer. I do everything natural and organic that I can possibly do. That's not to say that you shouldn't take meds, but remember, all meds have side effects. Good luck everyone. Continue to fight the good fight! Some day there may be a cure!

@salvation9868

5 жыл бұрын

I can so relate. Seems as though I was the only one of my friends who had to endure so much pain all the time.

@paulanull8731

5 жыл бұрын

Research CBD oil made from hemp. It has helped me. I buy Colorado made oil because that state has the most experience in making it. Best wishes.

@cazespino290

5 жыл бұрын

paula null I’m from England suffer like many could I get this delivered I tried every medicine bought cream and capsules of Internet had an awful 4 years lost my husband and grandson which has made me worse trying to be strong for my daughter but any help would be good I’m 68 I know loosing my grandson made it worse drs don’t help 🙏

@peggyschram917

5 жыл бұрын

I totally understand. I, too am 66. When I was in my 30’s I started having issues. Spring forward to 60 years old and I was diagnosed with fibromyalgia by a Rhumatologist. I also have a very rare form of leukemia.

@Karyn3112

5 жыл бұрын

Caz Espino you can find very good CBD oil in Holland & Barrett, unfortunately it sells fast, it’s also available on Amazon. Hope this helps.

Yes. My name is Tina. My whole family thought I was a hypochondriac until I was diagnosed in 2010 just 6 months after my mom died of accidental overdose from the pain caused by fibromyalgia. I have often said the pain is like having the "flu on crack" x 365 days per year. It's absolutely horrible. And I never get to sleep until my body just gives out. It's terrible. God bless you all. Thansk for this video.

@donotemail7201

Жыл бұрын

Flu on crack was a perfect discrimination ever.❤❤ Heads on over drive in a body that is stuck in netural. 😊

@donotemail7201

Жыл бұрын

LOL rolling on the floor and everything else that comes when you do not spell check I did not mean discrimination I meant description this is why you don't reply on Ambien oh my goodness.

@janeguarnera7700

11 ай бұрын

When I was diagnosed it was a relief, was thought to be a hypochondriac for a very long time as well.

@lovepugs0534

10 ай бұрын

Same here, I feel achy all the time. On top of having Fibromyalgia, I also have RSD Reflex Sympathetic Dystrophy it is painful and having both is awful.

@karenharvey2549

9 ай бұрын

So sorry for your loss.

Great video, I’ve had this for nearly 40 years and it does hurt when people say you’re making it up, you don’t feel that bad

FINALLY! SOMEONE UNDERSTANDS. Thank you so much for this detailed explanation. I wish this could be sent to every gp surgery around the UK, and futher afield, so we can finally get some support. I was very lucky getting my diagnosis, it only took 6 months. Others spend decades waiting for answers and are still told they're making it all up. I am beyond grateful for this video. ❤

I’ve noticed that most illnesses that I get are instantly blamed on my fibromyalgia. It’s very annoying how some people don’t believe it’s a thing. Thanks again for your video

@CFSUnravelled1

Жыл бұрын

It's ridiculous - I have been thinking about making a video about this, so look out for that.

@cheryl1909

Жыл бұрын

Fibromyalgia is real alright!!!!! I manage mine by staying clear of all white shaded food group--- no white spuds-- pasta--- sugar---flour---salt--- it suppresses yr immune system and also can flare up yr fibromyalgie---- eat fisg-- nuts--- fruit and vegetables and eggs---- I went gluten free and that helps also--- I make my own gluten free cakes--- stay clear of citrus -- 🍋 lemons can be a culprit also--- what we eat is who we are--- GOOD LUCK GIVE IT AGO AND FEEL THE BENIFITS---

@cheryl1909

Жыл бұрын

Dybeates--- ibs---- fibromyalgia---- weak auto immune system --- I was told they all stem frm each other --- I have all of them---

@quinnitaj4653

Жыл бұрын

​@CFS Unravelled they blame everything on us having fibro. My Doctor said that amongst my other illnesses, there is something else wrong but well don't know what....

@barbaraallen8140

Жыл бұрын

@@quinnitaj4653 oh yeah, It’s a thing, but I don’t want to respond to “What hurts?” anymore. Everything hurts! The best way to explain it is that it feels like my blood is on fire. That’s all I can think of. Who can relate to that?

Thank you for this! Fibromyalgia is demoralizing. I especially like you you mentioned the fact that we chase down symptoms with no answers until we just give up and go crawl under a rock somewhere. What makes me mad are acquaintances who say "I get it" when they absolutely do NOT get it. They have not so much as listened to a video or read an article. They don't understand why some days I feel that I have the bandwidth to function well, and other days I fight to get out of bed. Some days I start out thinking I can do things and then crash hard. When they see me, I seem "fine" so they demand commitments of me when I can't make them. It's so frustrating you just want to scream sometimes. No wonder depression and anxiety often accompany fibro!

@vickierichter7850

Жыл бұрын

I’m right there with you.

@moreporkowl1218

Жыл бұрын

I'm right there with you, Vickie Richter and many many others also...

Thank you 🙏 you hit the nail right on the head. I appreciate you putting it into the simplest explanation I heard yet. Was diagnosed over 30 years ago. I was happy to finally have a name on what was going with my body. 🙏🐟

I wish every doctor was familiarized with Fibromyalgia. It's more wide spread than anyone knows!

@rebeccagreen9240

5 жыл бұрын

Very true. I wished ppl would get educated on it

@ThatsWhy-

5 жыл бұрын

Cus of toxic GMO in food and pills and vaccine and water ....ect

@Linda-hs1lk

4 жыл бұрын

They are, they just ignore it because they don't understand. Then it's easier to ignore or say 'it's between your ears'. Imagine a doctor has to say 'I don't understand but you're sick'. Many doctors (luckily not mine) won't do that, they're too arrogant for that.

@stefaniamirri1112

4 жыл бұрын

It's linked to Narcissism pathology and CPTSD, but medecines as science devides things into compartments and so miss to make the right connections to understand how to treat it!!!

@jaguarsky55

3 жыл бұрын

I just wish more Drs believed it is real. I think most of them still think it is just a catch all for hypochondriacs. I have had this for decades, from soon after a complicated pregnancy and delivery. Within a couple of years there were days I was unable to get out of bed the pain was so bad. When the pain got somewhat better I stiI ll had to deal with the chronic fatigue and bowel symptoms; very hard to hold down a job with those. I am now 65 and still have most of the symptoms but less often and less severe, only now have severe arthritis thrown into the mix. Damn.

I've had it for about 15 years and got a confirmed diagnoses after 100's of suppositions! The fatigue- I liken it to a hoover being put to the bottom of your feet and sucking the energy out of your body. It's affected my spine now as well and I can't walk very well and I live alone. My family show little interest and even less care. So it's hard to have a conversation about how I feel when it's clear it's a taboo subject for them. I wouldn't wish this illness on my worst enemy * if I had any which I don't * however I'm still positive and take each day as it comes. I find my spiritual beliefs helps. Sending love to all fibro fighters out there! ❤

@westwinds6034

Жыл бұрын

Thanks LadyAnna. I'm pretty much in same position , I fight every month for pain medications with no family support. Medicare and Medicaid both have free to you in NV State , maybe your State also that will pay a caregiver to come help and visit in home several times a week. Some will do lite house work, like cleaning , cooking on their own while visiting , others will so some grocery shopping, cooking, help getting up, dressing. And they just get paid to come sit and visit but have been know to do other extra things around house and take you to doctor appointments . States pay into these programs from Federal funds. They will also pay family member that comes or lives with you on regular bases. Human Resources Dept.. Try talk to them for help. May be worth a try as in younger age and older people these symptoms are extremely debilitating at times where its hard just to get out of bed and walk. They also pay for walkers, elec chair ,,etc when doctor prescribe them but you have to ask doctor to order it. Best Luck..Vonnie in Vegas

@DVD927

Жыл бұрын

Look into Psoriatic Arthritis. I have Fibro too. The back pain is very much a Psoriatic Arthritis issue.

@donnalowe5791

Жыл бұрын

Wonderful analogy about the Hoover! The fatigue is undescribable and so is the depression. I can't walk very well anymore, my feet & legs are like wet noodles. At 60 years of age I'm giving a wheelchair a lot of thought. I certainly can relate to your exhaustion its horrible n my family believes I'm lazy or "put on" these symptoms.,😖. It's all very frustrating!

@LadyBlanche.888

Жыл бұрын

@@donnalowe5791 I know it's the most cruel misunderstood illness. If anyone ever asks how you are say " From the neck up I'm fine!" That excludes the rest of you which is not fine. I was given a wheelchair years ago when I was still able to walk they said " you'll need it" I don't use it as I have no one to push me and if they did it would be downhill!! I'm thinking of getting one of those smart mobility scooters. I live here in the uk where care is abysmal. Because you look ok people think you are ok- well from the neck up most of us are fine! I hope and wish for you all the best. I will remember all you fibro warriors here in my prayers. Stay strong! ❤ 🏴󠁧󠁢󠁥󠁮󠁧󠁿 ❤

@LadyBlanche.888

Жыл бұрын

@@westwinds6034 Thank you for your lovely reply. I live here in the uk where care is abysmal. Its a lonely cruel misunderstood illness and we are real warriors if you ask me. My family don't understand either or care to understand. There's nothing we can do except carry on as best we can. Take one day at a time, tiny steps we cannot do more than that. I'm thinking of getting one of those smart mobility scooters as I never get out. I don't like the thought of them but I'm a prisoner in my own home! Just stay as positive as you can I know it difficult, not easy at all. I will remember you in my prayers as well. ❤

I am so glad that I have discovered you, I AM DISGUSTED WITH MY GP SURGERY FOR NOT PICKING THIS UP IN 8 YRS IF ME GIVING THESE SYMPTONS REPEATEDLY.

waking up exhausted after sleeping 14 hours has got to be even more frustrating than being in pain all the time. i just want to feel awake.

@KaleidoscopeMagic

3 жыл бұрын

Eliminate white flour/white sugar from your diet and take a body toxin remover.

@teresaspensley5640

3 жыл бұрын

I was like you sleeping all that time and still shattered. I avoided sugar, all wheat flour products, pasta, rice and potatoes. Made Keto bread if i wanted any bread.Bought Benfotiamine ( vitamin B1 ) feel loads better. I hope this will help you 🙏🙋🏻‍♀️

@michellecollins290

3 жыл бұрын

@@teresaspensley5640 good advice I hope it’s tried.

@aminaahmed3160

3 жыл бұрын

I'd rather be sleeping then in pain

@aliciamorrison1061

2 жыл бұрын

I was reading all the comments I also have fibromyalgia and lupus they usually go together I take Adderall for both so at least I can stay awake especially when driving I also take methadone and have for 22 years I am 60 now just saying it works for me

I only clicked on this because lady gaga has this and I wanted to learn more about it. But seeing how many people suffer with fibromyalgia is very eye opening. I hope everyone can get better.

@florence1395

5 жыл бұрын

yes no Thank you so much, but for us severe sufferers like myself, it was upsetting! It’s taken Lady Gaga to get ill for it to become more known & in the news............Unfortunately this doesn’t help us fibromyalgia warriors, what helps is kind people like you taking a interest, thank you & gentle hugs 🤗 x

@smackpointgsps1476

4 жыл бұрын

I've heard that Morgan Freeman is also a sufferer.

@pjaypender1009

4 жыл бұрын

The thing about celebrities having it is that they can afford to see doctor after doctor and get the help they need. The rest of us can't.

@susanalicebarry

4 жыл бұрын

@@pjaypender1009 There is no help or relief for people who suffer with Fibro😢

@Saartje05

3 жыл бұрын

@@pjaypender1009 I can, we have healthcare here, but it's no use. They don't know what causes it. Healthcare or not, there's no answer. Yet.

This is the best video I've seen on this condition. I have stopped trying to explain to anyone about what I feel on a daily basis I find it's just easier to carry on. Some people don't even think I'm sick! I find that their perception is just another symptom. So I don't think about it. I don't talk about it and I don't entertain it. I just do whatever I can!

I admit I have so much resentment for a particular Doctor about 8 years ago he said that all the pain was something I would have to learn how to live with and gave me a "diet" pamphlet. I was like 20 pounds overweight... Also he ignored my depression symptoms too. I basically gave up that day. I suffered so much even self medicating for a while and then trying to end my life. I was saved by one Doctor that finally listened, this was 4 years ago now and I'm being treated for Fibro/Sjögren's syndrome and depression. It took meds, therapy, physical therapy and yes of course a better diet to finally be able to have some type of future after 45. I wish I could make my current doctor see everyone else that's suffering.

@jennv.8278

5 ай бұрын

Nice to hear your okay now.. Fibro is differ from sjogren's?

Thank you for this informative video. I have had fibromyalgia for 32 years. Having this debilitating disease is hard enough. Dealing with people's ignorance, judgement, and denial of this very real condition makes things so much more difficult.

"Don't be ridiculous, it's all in your head." "Faker - just looking for attention." "Lazy" "Never any help from you hmmm - should've known better." "Tests are negative." . . My whole bloody life - I was never lazy, or anything else people said to me. I moved furniture - even to 3rd floor apartments. I learned to keep on trucking with EVERY "non-symptom" - I had no choice, no help and was so unbelieved. I'm 60 now and some days I feel 120 but people still don't get it, not even family !! Sad but hey 50 years later I'm ready so ... . . Good luck all !!

@michaelhorn9114

4 жыл бұрын

Hope you are doing good!👍

@LTC_70

3 жыл бұрын

Yes so familiar....Could you tell me symptoms please if you don't mind.

@goofygranny1020

3 жыл бұрын

I ferl the same.

@Sandra61ize

3 жыл бұрын

Heard all of these from different doctors

@ellenosborn467

3 жыл бұрын

Bless you. There are many enduring what you describe. Yes,even family think you're lazy,or some say u don't have enough faith,or it's hubris. It's a disease or syndrome that may not kill you but makes u sometimes wish it would. I worked two jobs,had kids,was active and then nearly bedridden. Once I tried support groups but still am too exhausted to even plan to go. U are in my thoughts. Stay strong

Why is it that in over 20 years no doctor has ever been able to explain to me the Fibromyalgia symptoms the way you just did. Thank you this is so helpful.

@CFSUnravelled1

11 ай бұрын

Physician education is sorely lacking for this group of illness. The worst is the ideas that it's not real, it's hypochondria, you will be sick for ever or that there is nothing you can do to recover.

Excellent description - not even our gp's acknowledge the link between FM, CFS and ME. What impressed me about this information is the reference to the severe pain that can be caused by the slightest touch of the skin. Great video to validate all of us experiencing this bizarre condition

I am a nurse and I absolutely believe that fibromyalgia is real and I have seen first hand, just how debilitating it is to patients lives.

@shelleyg1836

3 жыл бұрын

thank god hopefully u can help educate. I am a former RPN myself and have fibro as well as my son 29 who is also an RN and was diagnosed with it at 17. his late father had it also. thank god neither of us gets the brain fog or memory issues but the constant throbbing aching pain sugar cravings for me skin sensitivity to touch the bad sleep and other symptoms are so draining. then the fight for pain meds that actually work in doses that work for me with a high drug tolerance is ridiculous. i can't take any of the fibro drugs bad side effects. my son can't take pain meds at all due to being a working nurse so he suffers with just stuff like robaxacet to help him. he is 6 ft 6 in and been in pain since age 2.5 yrs. i wish more doctors would realize just how bad life can be with this disorder esp when combined with other things like spinal damage, disc disease, arthritis etc. and stop telling us we have nothing wrong with us.

Thanks for presenting the symptoms. I was diagnosed with Lupus in 2008 and then Fibromyalgia in 2010. I don't sleep well, skin feels bruised all the time and am totally fatigued all the time. People need to know that we are not seeking attention. It's real.

@bels4116

Жыл бұрын

wow yes, "my skin feels bruised" that's exactly the expression, totally!

Trying to get ppl to understand this when you don’t have like a visible injury/disability is heartbreaking. Im 34 and my friends just go and go and Im like I have to rest. Just learning my triggers

@CFSUnravelled1

3 ай бұрын

Education is key to recovery, so good to see you working on that. This video may be helpful on dealing with others kzread.info/dash/bejne/nYx_ptmBfdSeiNY.html

I realized recently that I most likely have undiagnosed Fibro as I have had most of the symptoms chronically for decades. My issues started fairly young and was never taken seriously. I tried seeking help on & off for a couple of decades and then gave up. I always just figured out ways to manage them or power through them. Now, I'm in my 50s it's become so much harder because the pain & fatigue has kicked up to such a constant high level but I moved to a small some years ago and there's an extreme shortage of doctors here so I have no family doctor, the walk-in clinics hardly ever run anymore so have resigned myself to having to continue to figure out ways to cope.

My symptoms are ALL you mentioned. Diagnosed in 2014. I always feel like my life energy has drained out of me. Pain from touch, muscle pain, brain that feels like chemo brain, hair loss, inability to sleep more than 2 hours at a time, extreme fatigue etc. When I finally got a diagnosis, I was relieved that I really wasn't crazy because docs kept saying it was all in my head.

@annetteallen6521

2 жыл бұрын

I found a doctor who actually treated me for fibro. He has retired, so I am screwed. I took Ultram, Soma for pain and Doxepin and Ambien 5mg for sleep. It helped. If I can sleep 6-7 hrs I feel like I can face the day better. I am being shipped off to a pain control doctor. New rules for controlled substances. I know I am going to be treated like a criminal. Not looking forward to it.

@mariaellis2882

Жыл бұрын

I have a very great doctor who understands. I have to take OxyContin for my pain. If used correctly, this pain medication really, really works well.

@csc8697

Жыл бұрын

Alot of Drs still think it's not real. I found marijuana helps the most.

@sixteezchild

Жыл бұрын

I went to the ER with a panic attack one time...thought I was having a heart attack! The female attending doctor took my symptoms and my vitals and got really close to my face when she told me...ITS ALL IN YOUR HEAD. I looked at her as closely as I could lying downn on the bed and said, NO, ITS NOT ALL IN MY HEAD, ITS IN MY WHOLE BODY!!! That was like 2000...I wonder if there is anymore positive info out there for those of us that suffer with it???

@Kristen-ek9rz

Жыл бұрын

@@csc8697 Some wine for me, at night of course.....

Excellent video on symptoms. I do also have to add many of us suffer from low vitamin D, and in some cases folic acid. I have great days and days where I can't get out of pain due to low back pain, and bursitis. More needs to come out about this horrible horrible thing and Drs really need to be educated. I got lucky, my Dr tested me right away to rule out other things before saying I had fibro. And for those who don't understand, it's not a pity party for us, we would rather not have this and have our lives back. Prayers to all of us who suffer.

@mshipman33ify

5 жыл бұрын

I find Magnesium helps me with the "bone" pain in my legs

@fuckedworlds4326

4 жыл бұрын

It's becoming more and more main stream but takes ages to get a diagnosis

@blewpetal4514

4 жыл бұрын

How do they test for fibromyalgia?

@jcmoye1

3 жыл бұрын

Make sure you not B12 deficient, being B12 deficient can cause a lot of these symptoms. I know, I was, since taking mega doses of B12 a lot of these symptoms have subsided. Especially fatigue

@shellbellhealing

3 жыл бұрын

Bursitis low back pain can be symptoms of Ankylosing Spondylitis. Many many many patients are undiagnosed. My friend is 45 needs a Walker to get around with a chair to rest, her eyes are damaged, she needs steroids to function and is still being told she has fibro even though AS runs in her family and they all have the genetic marker, her inflammatory markers are high and her spine shows a lot of degeneration and her stubborn rheumatologist refuses to admit his original diagnosis may be wrong. Her primary doc now needs to send her 4hours to a different specialist so she can get the treatment she deserves and desperately needs so she can have some quality of life. I think fibro is diagnosed too often and they often dont eliminate other causes first like they are supposed to. I was very lucky my rheumatologist is an expert on AS and knew straight away what was wrong with me. Otherwise I'd still have no treatment and be pushed into the fibro pile

Thank you for this information. Relatively new to the diagnosis but has been experiencing symptoms way back in college, 17-18 yrs old, fainting spells that has unknown etiology, sensitivity to bright light, eventually , in my 40s, the fatique was as you described it,profound, cramping all over the place also occurs (bloodworks always come back norma), postural tachycardia, fainting spells worsened, and then the classic signs of severe muscle pain and tenderness finally let the Rheum diagnosed it as Fibromyalgia. And not to mention memory problem, such as plucking words from your brain becomes difficult. It’s frustrating! Yes, it’s a syndrome. Thanks for casting some light on this.🌷 9:42 9:42

I have R.S.D. that has been lumped in with fibromyalgia. I've had this nastiness for almost 30 years. I'm glad that these are FINALLY being studied and taken seriously!

The FM pain I have is like having a toothache in the bones of my forearms. It could last 20 seconds or 20 hrs, it depends. It's horrible... 😢

@allie3283

3 жыл бұрын

That’s exactly how I explain the pain

@christinerkleman136

2 жыл бұрын

That's the kind of pain I get from my top of my to the bottom and my arms and legs. Some days worse than others but everyday I have pain somewhere in my body.

@christinerkleman136

2 жыл бұрын

Spine

@darleneadams6844

2 жыл бұрын

I know how that feels. I feel like my bones want to break in my arms

@suzykeene9298

2 жыл бұрын

Yes that's exactly how i feel it - a toothache in my body that never goes away.