did you know SSA and SSB are estimated to be inaccurate 20 to 60% of the time . those test can be negative. while still having positive lip biopsy .

I watch a lot of videos about inflammation, I am learning about the multiple autoimmune diseases I have. The doctor had lots of good information but the young lady constantly interrupting was REALLY annoying. The webinars that keep the questions for the end are better, the fluidity of information is maintained so it’s easier to concentrate. Great information, thank you.

@bjchealthAU

Жыл бұрын

Thanks for the feedback. The video posted is a recording from a live event. We have been doing these for 2 years consistently and the idea is to have interaction during the event which actually has been received really well. The questions are from the audience. It obviously does not carry over into a recording well. Good luck with it all.

@nicky740

Жыл бұрын

@@bjchealthAU I have attended and also hosted many webinars that were recorded for our company of 2000+ people so I understand the normal issues that can arise with webinars but there is a way to make a presentation interactive without being disruptive. I agree with the person who commented above that the way it was handled was not conducive for the webinar. It is OK to bring up items from the chat audience but it is the job of the moderator to parse out only the questions that seem relevant or seem worse the disruption of interrupting the entire presentation. Giving a tidbit of information from a person in the chat that honestly does not add to the conversation at all could just be left in the chat and not mentioned. There were times that would be better suited for stopping for discussion it also threw off the presenter as well. I really hope that any future webinars take this into consideration because it truly is unnecessary. Also the comments from the host were just filler a lot of the time and did not add or guide the conversation very well at all.

I am grateful for Planet Ayurveda's expertise in treating Sjogren’s Syndrome. Their approach is unmatched.

Hey there, I really enjoyed the video! I would love to get these as audio only, are you on audea?

@bjchealthAU

Жыл бұрын

Thanks for the feedback but we are not on Audea

I have Rheumatoid Arthritis I have dry eyes and dry mouth for years I also have glaucoma

Hi I have been dianosed with Sjogren syndrome, I have gritty eyes and was perscribed (Hylo Forte eye drops) which helped I also had lip biopsy which confirmed Sjogrens and was also prescribed Hydroxchloroquine, I had a blood test which showed ANA RO Positive antibodies in January 23 my mouth is always dry even I take sips of water and tongue is always dry and cracked feels like sand paper I have dificulty in swallowing and my speech is affected when I talk my dentist examined my mouth and she saw dry it was no salivia being produced and perscribed high constraited fluoride Toothpaste 5000 ppm

@bjchealthAU

10 ай бұрын

Thank you for sharing so that others can appreciate what it is like. I hope things do get a little better.

I have had a dry mouth for several weeks and I realized it was not a lack of saliva but the inside of my cheeks and my tongue are rough. Does that happen with Sjogren's or is that due to something else?

@bjchealthAU

8 ай бұрын

It is difficult to answer this as it is quite specific to you. However, dryness can manifest with different symptoms. This is not one usually seen but it could happen. It is advisable that you seek the advice of your treating doctor/physician.

I use a cpap machine

Does sjogren's affect the brain ?

@bjchealthAU

Жыл бұрын

Not sure what you mean by this but rheumatic diseases such a rheumatoid arthritis can cause some to have "brain fog" - episodes of an inability to think clearly. It's common when you are not feeling yourself and weighed down by chronic symptoms that one may lack the clarity which they would have normally.

@fifafootballclubtekkerz

Жыл бұрын

@bjchealthAU I have read that sjogrens syndrome affects the brain. So I was asking if brain fog is one? I also have problem with thinking clearly as I suffer from sjogrens syndrome