DL Intro
Just last week, I hit my 3-year anniversary from being diagnosed with cardiac #amyloidosis. I was sick for two years prior to diagnosis, so to be feeling good in April of 2020 with my numbers in check, is incredible.
Over the course of this journey, I was committed to finding answers to allow me to heal and live. I implemented specific strategies in the areas of
1. Mindset
2. Diet
3. Exercise
4. Supplements
During my journey to find the solution, I learned a lot about myself and about what works and what doesn't... or I should say what did work and what didn't.
Now that I hit the 3-year mark and feeling healthy, I'm excited to share with those who have Amyloidosis what worked for me. I know those of you who have been diagnosed are scared. There is so much uncertainty and discomfort, it's easy to just quick. I know I had that feeling a couple of times. I'll be doing live webinars with Q&A for my amyloidosis community. Make sure you're follow me on my amyloidosis youtube channel for more info.
Пікірлер: 26
Thank you Dan.
We celebrate with you! Keep moving forward! Dad and son with ATTR
@DanLier
4 жыл бұрын
Sam Head thank you both 👊🏻
Congratulations on 3 years! I'm hitting 6th year on May 13. I appreciate you for putting yourself and your story out there for all of us. It takes courage to share so much of yourself. Thank you!
@DanLier
4 жыл бұрын
Thank you Julie.
Glad you are doing great. Please stay safe and God bless you!
Successful, Strong man, Believer..
@DanLier
4 жыл бұрын
Houssam Haidar thank you Houssam 👊🏻
What an encouraging message you share. Your videos bring hope to my husband and I. Our prayers are with you. Thank you! Thank you! Thank you.
@amyloidosismyjourneytosucc4995
4 жыл бұрын
You are so welcome 🙏🏼
God bless you brother
So glad for your success in this journey
@DanLier
4 жыл бұрын
Ronnie Shand thank you Ronnie
3 years, great journey been following you since my diagnosis nearly two years ago. Dan you have helped my get through some dark times. I thank you for your honest posts good and bad times you keep on going. Good luck with the pacemaker hope everything goes well for you. Thoughts and prayers with you always. Your a light in a very dark tunnel thank you.
@Mega-ys9jj
4 жыл бұрын
What organ do you have affected? What is your current treatment. They are doing a lot of research and soon a medicine will come out to clean the protein from damaged organs and our lives will change. Dr Gertz spoke of NEOD 001 that works in 50% of cases and in 2 or 4 months the organ improves. Good luck
@qaqaization
4 жыл бұрын
@@Mega-ys9jj this medicine all ready stopped.. Its a trailer medicine.
@DanLier
4 жыл бұрын
@@Mega-ys9jj Yes, per @hamed2013, the NEOD trial was stopped abruptly. I was actually on it when the cancelled it. I had been on it for approx 8 months when the trial was pulled.
Great idea, Dan. Diagnosed myself one month ago at 75 years after a lifetime of sport and fitness, it has come as quite a shock. Like you, it took 2 years to come up with the diagnosis. I look forward to your new series and good luck in the future.
@Mega-ys9jj
4 жыл бұрын
Alan, have you diagnosed yourself? You are a doctor?. I was 3 years old the same as Dan at 58 years old and after 3 wrong diagnoses. I think that it is not so rare what happens is that the doctors do not think about it
@alanearl3259
4 жыл бұрын
Mega should read ‘ I was diagnosed myself ‘. Sorry for confusing you.
@Mega-ys9jj
4 жыл бұрын
@@alanearl3259 My level of English is not good. I Apologize
@amyloidosismyjourneytosucc4995
4 жыл бұрын
Thank you. Sending you healing vibes from Vegas
Thanks Dan for sharing all your experience. Are you not taking medicine for your heart failure? in my case I do not take amyloidosis medicine only for the heart.
@DanLier
4 жыл бұрын
Well, no direct medicine for the heart. I do take a blood thinner, yet that's all regarding my heart and/circulation.
Hello dan what the reason for peacemaker?
@DanLier
4 жыл бұрын
Stroke volume at 29. Normal is 32 to 58... and I am 6'8", so I have a big body to push the blood around. My resting heart rate has dropped about 20 bpm over the past 3 years. My rhr is 54 ish right now. I have congestive heart failure and Stroke volume failure.