Thank you, Dan! Following you as I search out my own diagnosis.

@amyloidosismyjourneytosucc4995

4 жыл бұрын

You're welcome. Please keep me posted.

Keep going dan, 👍

@dragonflypurecbd3656

4 жыл бұрын

thank you Hamed

Hi there Dan, how are you? Hope you are feeling well! I live in Australia so it is nice to be able to connect! I can't believe how the health insurance and American system operates! I am getting free treatment here. I find this an outrage that you have to pay so much money for a pacemaker! Thank you for giving us all hope with your optimism! This is a rare disease and it makes so much of a difference to hear you talk about it and informing us of what to expect and how to deal with it! May God bless you and keep you healthy! I will pray for you too! All my very best, Daphne.

Watching from Manchester England Dan. We take our health service so much for granted here. I have had a lot of scans and investigations on my Amyloid journey with no fees. Will definetly be using your ideas to help me. Hope your pacemaker operation gets sorted soon. Take care, thoughts and prayers with you as always. Stay safe.

@amyloidosismyjourneytosucc4995

4 жыл бұрын

thank you Dorothy!

@gemagomez8162

4 жыл бұрын

Good News for us www.globenewswire.com/news-release/2020/05/28/2040461/0/en/Genmab-Announces-Positive-Topline-Results-in-Phase-III-ANDROMEDA-Study-of-Daratumumab-in-Light-chain-AL-Amyloidosis.html#.XtIeNuqZu4c.email

I hop u doing batar can u tell me what kind off tast do i have to do to find out if I have this

Hi Dan, What’s your current health like? I was just diagnosed with AL-Amyloidosis about eight weeks ago and have had three rounds of chemo so far. I’m finding that mentally this is just as tough if not more so than the physical part of this. Ugh!

@DanLier

2 жыл бұрын

Hi Steve... I"m doing well, thanks. Health is fantastic! I'm making a video update this week, as I was recently at Mayo for a visit. Yes, the psychology is paramount. Things can get overwhelming at times....