A compilation of our biennial conference, this year in Orlando, FL. Experience what it's like to be there.
Жүктеу.....
Пікірлер: 40
@martinemikita9281 Жыл бұрын
The first little boy with the glasses... HE IS SO SO SO ADORABLE!!!
@Person0fColor
3 ай бұрын
He has a life limiting deformation but yea super cute. 😂 Mad cope
@Jesusjunkie402 Жыл бұрын
The baby with the glasses is the cutest baby I have ever seen😍
@olivedog18807 жыл бұрын
the little guy with glasses 😍
@SharonzaPenson7 жыл бұрын
I can't thank The CdLS Foundation enough for this conference. It was such a blessing...gosh, beyond a blessing! I left loving my son, Elijah even more! It's a journey, but knowing you're here and all the other families I'm connected with makes a big difference, and I don't feel alone. I can't wait until Minneapolis in 2018. Thank you for all that you do! God bless you! 💜😀
@monikamichaelis-iw3to
3 ай бұрын
Did they ever find out what causes this?
@sarahquinn2224 Жыл бұрын
Daniel is so cute! Oh my goodness! What a blessing!❤
@user-jl1fv2rn5o7 жыл бұрын
Im from Saudi Arabia and my first son Abdulrahman has Cdls , me and his mother so scared about his future but actually this video gave us hope about him, thank you so much and We hope visit you soon.
@komi5217
5 жыл бұрын
خالد الشهري i hope your son is better now.
@condensationcuredltd8313
5 жыл бұрын
Are you still scared ? I was scared but now not so scared
@joseHernandez-xc4ix11 ай бұрын
😢I wish this was around in the 60's through the 80's while my sister was still here
@cookiemonster93fly4 жыл бұрын
Daniel is sooo cute. What a doll
@jewelhaines88427 жыл бұрын
My beautiful daughter Nicole was born with Cornelia De Lange syndrome. She is 30 years old, and has surpassed many obstacles. She is living in a residential home for adults with disabilities. She has a 1 on 1 and is doing well. She does have issues with frustration and anger...but all in all, she is doing well.
@olivedog1880
7 жыл бұрын
Jewel Haines that's awesome to hear! I don't know a whole lot about this, as I just looked it up. but I bet ur daughter is beautiful and you're very proud of her ❤
@hurryupnow1
6 жыл бұрын
why have you put her in there?
@gwendolyn0515
5 жыл бұрын
@@hurryupnow1 Probably cause she is violent towards people, I'm not a doctor, but I've done some research on this syndrome and people with CDLS have similar behavior to those with autism, and sometimes violence is one of them.
@janetpitts7302 Жыл бұрын
Cdls kids have so much hair and crazy eyebrows, wonderful!!!
@andersonomo5972 жыл бұрын
God bless all CDLS children and their families. It always boggles my mind that a fertilized egg is SOOOOO tiny and within that TEENY TINY start of life are even TINIER bits of DNA that can have such huge consequences.
@joanbaczek2575 Жыл бұрын
The music makes it so you can’t hear what the people are saying
@luvtoyscollector3373 Жыл бұрын
Aww he is just a tiny cutie 🥰
@sarahquinn2224 Жыл бұрын
❤
@gerdyproffitt4916 Жыл бұрын
Beautiful children
@GeorgiaHakes6 жыл бұрын
i actually have mild CDLS! if i ever have kids they will 100% have CDLS! I am 14 years old!
@victorchavez6833
5 жыл бұрын
Good
@condensationcuredltd8313
5 жыл бұрын
Hey & that would not be so bad, but it’s not genetic, or contagious. My son is 4 and adorable . Not what we planned but if doing the journey again we would defo take a detour to pick him up.
@fo7234
5 жыл бұрын
Los amo con todo el corazón cdls me marco la vida con mi pequeño facundo 💜
@Me-il8vk
2 жыл бұрын
Don't have kids
@secretsquirrel7374
Жыл бұрын
Don't have any kids then
@irenedavo3768 Жыл бұрын
Do you watch Freya?
@xandanamiq15094 жыл бұрын
I’m from Iraq my boy kako has clds
@cookiemonster93fly4 жыл бұрын
They all have same eyebrows
@user-zy1fl4tg4b3 жыл бұрын
Как жалко детей!
@victorchavez68335 жыл бұрын
What's wrong with their hands tf
@-SUM1-
5 жыл бұрын
It's called acheiria, the lack of development of the hands. Don't know why you had to say 'tf' to that.
@victorchavez6833
5 жыл бұрын
@@-SUM1- tell that nigga gimme a high five 😂
@Roy-ol3qx
5 жыл бұрын
Why would you say something like that? Don't be rude.
Пікірлер: 40
The first little boy with the glasses... HE IS SO SO SO ADORABLE!!!
@Person0fColor
3 ай бұрын
He has a life limiting deformation but yea super cute. 😂 Mad cope
The baby with the glasses is the cutest baby I have ever seen😍
the little guy with glasses 😍
I can't thank The CdLS Foundation enough for this conference. It was such a blessing...gosh, beyond a blessing! I left loving my son, Elijah even more! It's a journey, but knowing you're here and all the other families I'm connected with makes a big difference, and I don't feel alone. I can't wait until Minneapolis in 2018. Thank you for all that you do! God bless you! 💜😀
@monikamichaelis-iw3to
3 ай бұрын
Did they ever find out what causes this?
Daniel is so cute! Oh my goodness! What a blessing!❤
Im from Saudi Arabia and my first son Abdulrahman has Cdls , me and his mother so scared about his future but actually this video gave us hope about him, thank you so much and We hope visit you soon.
@komi5217
5 жыл бұрын
خالد الشهري i hope your son is better now.
@condensationcuredltd8313
5 жыл бұрын
Are you still scared ? I was scared but now not so scared
😢I wish this was around in the 60's through the 80's while my sister was still here
Daniel is sooo cute. What a doll
My beautiful daughter Nicole was born with Cornelia De Lange syndrome. She is 30 years old, and has surpassed many obstacles. She is living in a residential home for adults with disabilities. She has a 1 on 1 and is doing well. She does have issues with frustration and anger...but all in all, she is doing well.
@olivedog1880
7 жыл бұрын
Jewel Haines that's awesome to hear! I don't know a whole lot about this, as I just looked it up. but I bet ur daughter is beautiful and you're very proud of her ❤
@hurryupnow1
6 жыл бұрын
why have you put her in there?
@gwendolyn0515
5 жыл бұрын
@@hurryupnow1 Probably cause she is violent towards people, I'm not a doctor, but I've done some research on this syndrome and people with CDLS have similar behavior to those with autism, and sometimes violence is one of them.
Cdls kids have so much hair and crazy eyebrows, wonderful!!!
God bless all CDLS children and their families. It always boggles my mind that a fertilized egg is SOOOOO tiny and within that TEENY TINY start of life are even TINIER bits of DNA that can have such huge consequences.
The music makes it so you can’t hear what the people are saying
Aww he is just a tiny cutie 🥰
❤
Beautiful children
i actually have mild CDLS! if i ever have kids they will 100% have CDLS! I am 14 years old!
@victorchavez6833
5 жыл бұрын
Good
@condensationcuredltd8313
5 жыл бұрын
Hey & that would not be so bad, but it’s not genetic, or contagious. My son is 4 and adorable . Not what we planned but if doing the journey again we would defo take a detour to pick him up.
@fo7234
5 жыл бұрын
Los amo con todo el corazón cdls me marco la vida con mi pequeño facundo 💜
@Me-il8vk
2 жыл бұрын
Don't have kids
@secretsquirrel7374
Жыл бұрын
Don't have any kids then
Do you watch Freya?
I’m from Iraq my boy kako has clds
They all have same eyebrows
Как жалко детей!
What's wrong with their hands tf
@-SUM1-
5 жыл бұрын
It's called acheiria, the lack of development of the hands. Don't know why you had to say 'tf' to that.
@victorchavez6833
5 жыл бұрын
@@-SUM1- tell that nigga gimme a high five 😂
@Roy-ol3qx
5 жыл бұрын
Why would you say something like that? Don't be rude.
@victorchavez6833
5 жыл бұрын
@@Roy-ol3qx lmao
@Roy-ol3qx
5 жыл бұрын
No.