California babies born with rare genetic disease
Fraternal twins Yael and Yoel Ilinetsky in Concord are battling an extremely rare genetic disease called Canavan Disease. abc7ne.ws/2F3mEol
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Пікірлер: 22
Experimental treatments should be free
@douglasroussey852
3 жыл бұрын
Sorry . Instigating foreign wars are more important to the US Gov .
Any updates? My son was recently diagnosed with this.
@truecrimepodcasting
3 жыл бұрын
You’d prob want to contact the family directly, I’m sure they’d want to talk with you.
@chanabayla1823
2 жыл бұрын
This is eventually fatal
@margaretelford8309
2 жыл бұрын
@@chanabayla1823 gene replacement therapy means that doesn’t have to be true. genetics research can save so many lives.
I can't help but think of Natalie Merchant's song "Wonder", which was inspired by a pair of twins with a genetic disorder.
Poor babies!
It's hard to imagine how hard this would be. Pray for miracles, everybody.
Be strong guys-parents !
Beautiful boys.
🙏🙏🙏🙏🙏🙏
Its not fair for them
Ashkenazi... that explains it all. The gene therapy treatment costs about 5 million dollars.
She knew jscreen existed. Almost all of us jews know since 90%of the common uncommon disorders if u will happen to us predominantly and even if she didn't the minute her genetic counselor if she even bothered to go to one, found out she was Jewish the test would have been immediately. Btw I know someone who was 16 w/this
Ok
Transparent world+ demon slayer mark
this is creepy
Lol
Mobile phone right next to baby, most parents refuse to protect their children's health until something goes wrong.