Very angry that the kids don’t get any type of funding to help with care simply because doctors can’t/won’t diagnosis them. That’s a cruel paradox. I can see the pain in both parents’ faces. I hope one day they will hear ‘I love you’ from their kids.

These parents are doing their best, I just wish they felt like parents. Their kids obviously love them and seem happy in my opinion at least.

This woman is more of a ‘mother’ than anyone I’ve ever seen

They are incredible parents. And yes, they are most definitely parents. I hope the Mom can see that.

I absolutley understand how pissednit it makes you when ppl say "you were given this special child cuz you can handle it." Its a b.s. cop out response. I just want ppl to say how can I help, help me understand the best I can. This must be so hard for you. And for them to say see the child not the disability.

If I had a 25% chance of having another child like the first, I wouldn’t have anymore kids... that chance is high

I'm sorry but 25% chance is quite high.

Sometimes parents think that their disabilities hinder them from being happy. The fact is you don’t need to be like others to be happy. Disabled kids are happy as long as they have loving people around them . And those kids do. They are happy. They feel loved and content because they have such loving parents around them.

It was sweet to watch Colbie's classmates interact with her. Pausing with the penguin and helping her clap, like they couldn't bare to see her excluded in even a small way, at an age when kids can be ruthless to each other. They're blessed to have her, likely to grow up with more empathy than most. Those with special needs are here to teach us, not the other way around.

The medical community needs a "undiagnosed" diagnosis. They need to acknowledge there's a medical problem and provide the correct support regardless whether there's a name. Doctors do not know everything and need to be able to allow people access to the proper care and support! Amazing family, I hope they get some answers.

This is EXACTLY what our family lived for 7 years!!! I knew the moment I laid eyes on my youngest that something wasn't right, but NOBODY knew what it was. He has a bicuspid aortic valve, hypotonia, dysphagia, positional club foot, motor delay, intellectual delay, feeding problems, a stricture in the esphagus, leg braces, gait trainers, TheraTogs, serial casting, amblyopia, sleep apnea, throat surgery, didn't walk until he was 4 and still doesn't talk at 8. Lots of symptoms, but no diagnosis until April 11, 2019.

You can tell in their eyes they are happy.

These parents have to be the most top notch quality I have ever seen. I hope they know how awesome they are

It takes a superior level of love to care for a child with a serious disorder. My nephew is 20 and has the mental capacity of a 3 year old, his mother is a saint in my oppinion.

As the mother of a daughter who was born with Opitz Syndrome, I now know that I can only do my best. I take good care of her and she is very unique, with a great sense of humor and a sense of self. God bless all special needs children and the parents who take care of them. It took me forever, but I am doing what I know best: loving my daughter the way she is!!

Your story made me cry. I have 3 sons. I dont always realize how blessed I am. I tend to see the glass half empty. Your children are blessed to have such loving parents. I wish you the best and will pray for your family. 💚💚💜💜

I pray for the parents to always be so in love with each other and never separate.

I can't even imagine what that family goes through on a daily basis, just being exhausted and stressed out not having a diagnosis for their children, but they are such beautiful children. They work so hard for their kids and ofr each other. Amazing parents.

Myka Stauffer should really see this

I once worked with a little girl who had the exact same presentation as Colbie. The exact same right down to her comfort object being music. Her doctor had diagnosed her as autistic which I always found kinda odd. Also when the dad said “I’d like to believe anyone would do what we’re doing” sadly that is not the case. Her father left and her mother sort of gave up and it was her older brother who became her primary caregiver.