My husband just got diagnosed with ALS on 5/4/20. I will try my very, very best to take care of my awesome husband. The difficulty that I may have to encounter is that I do not drive, because my right eye is congenitally blind and my left side is very nearsighted. I am a school teacher. We need to lobby our government to fund more for research and development and clinical studies. May God bless all of us for a cure of this devastating disease soon. Please send my love to all ALS patients and their families. Remember life is not about waiting for the storm to pass; it's about learning to dance in the rain. So Stay strong everyone!!!

@moepee85

5 ай бұрын

Hello Miss Nina how are things going? I hope all is well.

its a hurt life with als. believe me but, don't let it get you down. I find when I let it get me down I get worst. walk as long as you can, speak as long as you can, when I speak people think I'm high or something but, I don't let it stop me. keep on keeping on, believe me I'm 6 years into it and can still walk. not to far but can still do it.

@applejellypucci

6 жыл бұрын

How are you, Douglas? hope you're still here.

@herbertfisher1656

4 жыл бұрын

Douglas Palo is working hard to get just to survive everyday. God Bless this family. Those kids are just amazing.

My beautiful aunt was diagnosed with this nightmare (ALS) in 2000. She’s been in a nursing home for around 16 years. It’s horrible, awful ..heartbreaking. She was only 40 years old. I’m not sure which is worse, the passing away quickly, or lingering on a prisoner in your body. So unfair.

@eddiew2325

5 жыл бұрын

You’re kinda hot

@karnemelk66

2 жыл бұрын

Iam not sure either which is worse. But its big tragedy when u STILL wanna be ALIVE even though u become a prisoner in yr own body ㅠㅠ

I’ve lost my love a year ago. Als took him away from me. I wish to all women and men to find hope for cure from this horrible fact of ALS. Love all of you guys:)

Pastor Bill seems to be such a positive happy guy. I looked and it seems he is still still with us. 🙂

A horrific disease. I hope a cure will come to light soon.

@DONALD1951

6 жыл бұрын

Ekaterinya Vladinakova I agree but they don’t even know what causes it and diagnosis is very difficult. Like Parkinson’s . At least come up with a quick definitive diagnosis. Imo

when you think your life is tough and it sucks and its not worth living ,just these remember these people ,thats what this doc has taught me .

@margaretcabral535

8 жыл бұрын

+xplode assisted suicide

Lost my precious Momma at 71-years-young on April 1, 2014 from this devastating disease. Hopeful for a cause and, more importantly, a cure one day soon.

I watched ALS take my father and I was devastated every day. Rest In Paradise Harold Hurks 12/18/2019 ♥️♥️♥️

@elijahkomenda5227

Жыл бұрын

Happy Father’s Day to ur dad in heaven also lost mine grandfather to it sending prayers

That kid Tanner is an awesome human being. I am NOT a religious person at all, but I fell in love with that pastor and his beautiful wife.

I have a chronic illness that limits what I can do, so I've spent the last 2 years watching all variety of documentaries on KZread. This is by far the most heart-warming & inspiring one I've seen yet. Yes, the subject matter is horribly sad-- but seeing how these special people & their wonderful families deal with varying stages of ALS was just so encouraging to me. None of us know when our last day will be, but these folks know they'll face it sooner rather than later. Yet they choose to truly live as much as they can in the time they've got left. I don't know how any of them are doing, or if any have already passed on, but my thoughts & prayers are with them & their families, no matter what. 💙🙏

These people are inspirational .. The pastor made my heart hopeful... I have a good friend served the Lord most his life and helped people and then he got diagnosed with A.L.S. and I am helping care for him .. He is suffering huge losses and going thru anger and isolation. So I'm on utube trying to find a way to help more and this upload was very inspirational.. God bless all the families that share their experiences here

@yevodee4024

4 жыл бұрын

+ Margie Gibson It looks like every god of every religion is an evil arsehole, after all.

In May of 2021 i was diagnosed with Parkinson’s disease. Before my diagnosis i actually thought i had MS, or MD and even ALS. I was so scared because i didn’t know what was going on with me. It’s not been easy excepting and dealing with the progressing symptoms. I can’t even imagine having ALS. God bless these people… what a great documentary.

Wow! Some of the most awesome people on earth. The preacher is amazing, Tanner is probably the best kid ever! All the support from the loving husbands, wives, parents. Very moving story. I pray we get a cure. God Bless all !

I give credit to the family especially the spouses that stick around when something like this comes. it shows true love. a real man would take care of his wife, when she is sick.

Heart breaking stories. Especially Craig and his children make me cry. There's so much love between them and the dad not being able to hug his kids breaks my heart. I Hope they got help with the physical and mentally challenges, they were facing. I lost a friends at 56 to this horrible disease. It's one of the scariest and sadest experience of my life. I hope one day, they'll find a cure.

How heartbreaking is this for all involved! I'm watching this in 2020 and I can only guess that they have all left us for a better place. God bless 🙏

wow what a beatiful human beings,, I teared throughout the show!

Pastor Bill had some amazing insight. I loved the Foxes, such beautiful kiddos with such hope despite all if it. Thank you all for sharing your journey with us, God bless.

God bless these families and give them the strength and courage to face each day. There are more amazing, kind, and generous people in our world than we know.

@fufurabumbacka

7 ай бұрын

God alrady gave them ALS, so there is no a point to give them thing you wrote.

Thank you for this.

nice ! hope the best for everyone on this documentary and everyone else with diseases

Thank you for making this beautiful video.❤️

I'm waiting on my diagnosis now. Thanks for uploading, education is key when faced with the possibility of this disease.

@jinxterpinxter

5 жыл бұрын

Stassi Taylor What did you find out?

Wow! What an uplifting and emotional ride that was. By far...this is the best film I have seen about this dreadful disease.

The cost of living is too high I can't imagine me in that situation. When I see this stories of bravery we need to do more to people let know this disease. Support them moral and not only physical because this is a huge impact for all family.

Great documentary thanks. That Grandpa who put the race together reminds me of the actor Hal Holbrook.

Prayers to the 🦊 family. I cried for sadness, then I cried for happiness for this man and his sweet, beautiful family. I don't know you but, I know you as one human being to another. I empathize. Enjoy each other while you still can. This is so good for your soul. This disease is especially cruel and I watch a lot of videos about ALS and I feel for us all. I find comfort in knowing that we will all be together again soon. Life goes away in the blinking of an eye and we all have only a VERY short amount of time in our mortal form but we have eternity in the hereafter. Prayers again to dad, the kids and the whole family

@eddiew2325

5 жыл бұрын

I wanna kiss you so bad

This is truly the disease from Hell. I can't put into words the respect I have for those living with and fighting this horror. They are beyond courageous.

Craig’s darling son breaks my heart

@eddiew2325

5 жыл бұрын

Yep he’s fat

@karenmiller9381

5 жыл бұрын

Kerrie M. Me too. God bless him, he is a lovely young lad. He is a true blessing to his family. ❤

@eddiew2325

5 жыл бұрын

Karen Miller I know he’s fat

@karenmiller9381

5 жыл бұрын

@@eddiew2325 You need to educate yourself in humility and empathy for others and stop being so shallow, ignorant and immature.

@karenmiller9381

5 жыл бұрын

@@eddiew2325 you're an embarrassment to yourself and your family. Poorly educated and poorly raised.

Such a cruel disease, my heart goes out to all those affected by it 💙❤️😢 xx

You're all amazing 👏 ❤ love from Scotland

What a fucked up question to ask that man, "What would you do if you could use your arms again?" Well, he will never be able to, so why make him feel horrible about an unattainable fantasy.

My thoughts and prayers are with all of these folks thank y’all for sharing your stories with us God bless

@Lobos222

5 жыл бұрын

+Renee. This is what I dont get with you religious folks. Your God makes EVERYTHING happen, yet you say "God bless" when he has given someone cancer or in this case ALS.

@reneehorner489

5 жыл бұрын

I am sorry if I offended you thank you for your feedback

@reneehorner489

5 жыл бұрын

I would like to add I am more in relationship with God as opposed to being a religious person I have experience with tragic events in my own life I have 5 children and I was widowed 7 years ago because of suicide now I questioned how God allowed that to happen to us but the answer is simple God did not allow it what he did was get us through it. I certainly don’t want to push my beliefs on you but you opened this dialogue. My belief in God does not harm any other person in this world. I wish you well 😉

@Lobos222

5 жыл бұрын

+Renee. "but the answer is simple God did not allow it what he did was get us through it." So you think a God that wiped out humanity at least once. Had the powers to stop anything because hes God, but he allowed negatives to happen to your family. But that is fine because he also supported you to get past it. While God is make believe for adults like Santa is for kids. I would call such reasoning Stockholm syndrome. "My belief in God does not harm any other person in this world." Yeah, religious people tend to say that until you see what type of people they vote for... I wish theists would actually wake up. I wish religions would pay taxes instead of having their "priest" get a new "jet".

@reneehorner489

5 жыл бұрын

Lobos222 I happen to believe preachers ministers reverend paster televangelist churches should all pay taxes. I work everyday I have to pay taxes sometimes I believe clergy whatever the sect sometimes become ordained so they can take our money and get rich on all of our dime. As far as voting I have done that on both sides of the road I have to study the candidate and do my best to make an informed choice. The first response you gave me was “you religious people”. What does that look like to you? As I said I have a relationship not realign. Do you know I have not belonged to a church since I was a child. I had to go to church every time the doors were open. I personally feel “religious people”. Are for the most part judge-mental and arrogant. I am not interested in being a part of that machine. I also don’t force my belief on my children as I have taught them all (5) that their spirituality is for them to have and choose. What I do teach is respect for themselves, integrity, honesty, and my unconditional love. I am interested to know if you have any experience with religion or have you always leaned toward your current views. By the way I am not offended by your comments or your feedback. Perhaps there will always be something to learn from an opposing perspective. What do you think 🤔 Thank you 😊

My dads friend has als and he already can barely talk and one of his legs are starting to go its sad ill miss him

God has a special heaven waiting for all these people-the als victims and their families.

Who did the music for this? It’s magical, and beautiful

Beautiful informational documentary on ALS

@drewsymedia

9 жыл бұрын

Thank you! We hope it helps people understand what it's really like to live with ALS

This was such an uplifting video and I am just praising the Lord for the strength He is giving to His people. Praying for all involved. Glory to God!

Rest in peace, Carolyn Shimek. I just read that she passed away on April 12th

This made me so sad 😞

@eddiew2325

5 жыл бұрын

Mary Contreras can I kiss you for good luck

Two years ago my daughter had symptoms that were possibly ALS. I could not talk to her about it. She was tested for MS and was so happy it was negative. I was devastated because I was terrified it was ALS.She went for the needles in the muscles test and was cleared. Turns out it was severe vitamin B deficiency. I cried with relief

@anneoconnor8741

2 жыл бұрын

She has had regular shots, now much less frequent, and has recovered some feeling in her feet and hands. No way to tell how much nerve regeneration there will be. But I thank God every day that it was not ALS!. If it had been I would have been there all the way, but she is only in her kid forties with teenage children. I so admire these sufferers and their families, a hard road to travel.

@michaelurban2969

8 ай бұрын

What symptoms did she have?

If you have ALS you are in the process of going from being a moving person to a still person. It may not be what you woudl have chosen, but if you can't be a moving person, be a still person with mental and vocational gusto, with all that you have. Still people can make great contributions - look at Stephen Hawking and Jason Becker. Still people are...still people :)

@ddubfan

6 жыл бұрын

catherinespark I'm SO happy to see Jason's name listed! I think a lot of people have "forgotten" about him.

@GUITARTIME2024

6 жыл бұрын

catherinespark those are rare cases. Most ALS people die in 3-5 yrs. Its horrible. U have no idea.

What a sad beautiful video 😢. God be with us all. Praying that the medications that have proven effective in one or more ways are released to the public very very soon. It's not fair some medicines are being held back because of someone's standards that don't have the disease. It should be up to the patient if they want to take it. God bless all affected

My sister n laws life was taken by ALS. I miss her so much. She was so strong. A beautiful person

@judyguhlke3940

Жыл бұрын

Arla Sunram Minnesota

@standup2982

Жыл бұрын

I'm so sorry for your loss.

I think things just happen, sometimes for a reason and sometimes not

Is there any updates on these ppl

I had to look up FAS or flail arm syndrome after he was describing it at 6:04.

These people are marvellous their out look being positive their families how they come together ❤️ their communities their kids they way they pitch in being humble there love for god commitment love of life to push to keep going lord please 🙏 help find a cure

I love this pastor. I'm not having this pity party. Having a purpose is inportant.

Researchers in China recently evaluated the changes in ferritin levels in the brain’s cerebrospinal fluid of patients with amyotrophic lateral sclerosis (ALS). They found that ALS patients exhibited significantly increased levels of ferritin, an iron-based protein, a result that indicates ferritin has value as a biomarker and could be used for diagnostic and monitoring purposes in ALS. The study, ‘’Elevated levels of ferritin in the cerebrospinal fluid of amyotrophic lateral sclerosis patients,’’ was published in Acta Neurologica Scandinavica.

ALS is a terrible disease for the entire family.. The heath care system totally lets down these people who are slowly losing their ability to function and still lead a productive life while their brains continue to work, but there is nothing to improve the quality of their lives and I can't imagine being shut inside a non-working body. They still want to do those things we take for granted - hugging your kids, feeding yourself, just holding your baby, even getting dressed. It is totally unacceptable that these brave people have to do their own fundraising, and trying to manage the costs for the medications so they can live. They shouldn't have o go bankrupt to live. My heart goes out to this young man. Everyone pushes him for good grades, but no one offers him a respite to be a kid. What's the point in good grades when your life revolves around being your parents' caretaker? No kid should have to be in that situation because there is no other help available. This is all wrong when actors and sports figures get paid a disgusting amount of money , a wage that could keep a family for their entire lives for pretending to be someone else. It's obscene.

I have been diagnosed with ALS as well. Thanks to my mother beating me when I was a child. I dislike her very much. She's now deceased but I still don't love her. I'd like to reverse this horrible disease. But I'm not sure how. Suggestions?

@anneoconnor8741

2 жыл бұрын

I am very sorry for your emotional pain and your diagnosis. It is very unlikely that your ALS has anything to do with your upbringing. I hope you have found support and peace.

we are all simply walking each other HOME aren't we?

This is why we support Dignitas and Voluntary Aided Death, both of which are legal in Australia and Sweden.

I’m sorry u have to go threw this!! I pray for and your family!! Jesus is always with us and always on our side!! Remember that!! God bless u all

أنا مصاب بهاد المرض عمري 35 سنة الله يشفينا كلنا كل مريض بهاد المرض

@reemaltabtabaei7018

3 жыл бұрын

اللهم آمين

How is it that people with als have a few years at best but the man who created the ice bucket challenge has been able to live with it for such a long time? Is it a financial issue? I am thankful that he has made it so far but what is the difference? And that family with the 2 children really need to become aware of all of their health, as far as their weight. Being morbidly obese can be just as deadly as the subject of this documentary.

@eddiew2325

5 жыл бұрын

Just shut up and kiss me

@davidbowman4259

6 ай бұрын

Agree.

What would I do if I had 2-5 years? Don't have an official diagnosis yet but my neurologist is pretty sure. I've been thinking about that question a lot lately.

@eddiew2325

5 жыл бұрын

Can I kiss you

Neurons are a strange thing. But they are my perspectives. Everything that is a part of me even that I take in is a perspective. When I started not being able to move, I thought drugs might solve it, but most things can only touch the surface of what has happened because they are not dealing with a physical thing but they should think of it as if they are dealing with a subjective experience. As if they were trapped themselves. Not the fear of it but the actual experience. All of my walls were closing in, I felt like I was about to be deathly ill, and all of a sudden, through all my various efforts of drugs and physical activity when nothing work, I found a new perspective. When I look through these eyes I do not see things from the same point of view, and I don't just mean in a philosophical way I mean in a literal way, It felt like I was hunched down, or being crushed, as if a part of me was missing literally. I could not touch physical parts of me or reach them in the same way. I had to take long paths to move my arms and legs and it made me very fatigued and sickly. I noticed I no longer sneezed or got a runny nose anymore. I just thought I had a great immune system, but it was like I lost the ability to move something in my body, I felt stuck. I kept trying to push these feelings away with all the strength in my body, think and feel where am I how is it that I can't do this WHY can't I do this or grab this in this way! What was happening to me and why. I kept getting a sense of something though, that where was an escape. That somehow I was trapping myself, but I didn't understand with what how and why when all I willfully wanted to do was relax. But there is something else just under what people are aware of, that they can no longer reach. They can no longer get that feeling or relaxation, that ahhh. That let me stretch feeling because I feel so good. I lost that, and I hated it. I no longer got got good sleep. I no longer got chills down my spine, the chills down my spine became quick movements of my back that made me flex in a way that I was unsure why and usually accompanied by an extreme fear or dread and doom. As if my body understood what was happening to me, but I could not. And that I had to listen to it because it was trying to tell me something. It is hard to tell or describe what has been changed or what is different. But it is as if even though something was damaged, it was because it was locked or restricted by something, in and of itself though nothing was different other than literally my perspective of things. It is different because it is exactly like this. As this person leans in their chair. Even as their head feels parched down, what you can't see that is actually happening.. is that to that person, THAT LITERAL position in their chair IS STRAIGHT. They are facing straight, that is how it feels to them. But what gave me that feeling was my head. Think about it. If your head is stuck in a position, or more appropriately since things are relative backwards and sometimes subjective perspectives are difficult to communicate, If your lower body was stuck in a position because you were holding it with your head (sounds strange but keep listening) and you lost your ability to sense that gap of I can just fall behind me right now, I can just relax and let me feet go, then the view, the information of where the person is seeing from (those parts of the body, neurons related to parts of your face eyes head etc.) is forgotten. And you continue to move in this other direction because it is how you have been making yourself straight. By twisting yourself at your core, but backwards, by using your head. If you can get the person to "remember" their head, it will remember their feet. For some reason it was below me as if it was behind me, which is what made me feel like my head was being crushed and as if I was going to be retarded and have my jaw clenching and constantly moving and tongue spasming and damage in my hands and feet. I guarantee if I didnt have this "realization" I would have never escaped. I trapped myself. I forgot how to gain energy. It sounds like pseudo science because it is. Nobody knows how the mind reacts to what when why. But when I thought about myself in this strange way, I was able to let my head and neck relax. Thank god. If we can find a way to communicate these subjective feelings to other people. Maybe they can escape too. I'm sure this happens to many people but they do not realize. In fact it happens all the time as people get tired, their jaw drops and things no longer have the energy to support proper function. Why I got stuck like this is a mystery of consciousness though. It seemed like partly fear but something deeper than that. I had forgotten how to see something, and it was because... it was behind me. I only even lost or had one part of me stuck, because I never made another call to it that part of my body again until today. I forgot that my head and my face did not move me through space. My neck kept trying to move and rotate and squeezing my hands as if my body was twisting in on itself, making me feel stuck and extremely uncomfortable. Everything in my body told me "death". When I thought of my arm, the only feeling I got when I touched it or tried to reach things in the ways that I couldn't was "death, you can't do that". As if my arms had fallen into a deep sleep, and no more blood was running to them. Something is no longer flowing, but you are dealing with a closed system. The person cannot actually be trapped. They are trapping themselves. Some part of the mind that fixes this requires something in the persons aware mind, and a bad signal is being sent as far as how the person "wants" to move. If you can get rid of the confliction of how that person wants to move and stop that signal from being sent. The person will immediately reconnect with the feeling of starting to send the signals that he does not need this other part of his brain to help direct his movement, and he will be freed and undo himself.

@NickanM

6 жыл бұрын

Mikael Thomas *You can't send signals mentally through nerves that has disappeared and died, sweetheart. I wish it was so simple.*

@maryappu3880

4 жыл бұрын

No

You are beautiful human beings. Sticking together and providing support for each other is what life is all about. It’s so sad what the United States is going through where exactly the opposite logic prevails. Everyone for himself.

what happens to ALS single patients who have no family do they get decent nursing homes or are they very bad.

@redbutterflynine

6 жыл бұрын

Margaret Cabral probably the same as anywhere else. Sometimes you get a good one, sometimes a bad one. Prayer helps. 🌹

@christianheart1

6 жыл бұрын

Usually groups like care first will walk them through.

@stassitaylor7799

6 жыл бұрын

Margaret Cabral I'm a nurse and I have never known if a "good" nursing home. They are under staffed so bad its impossible to give everyone the care they need. If you love your family member, dont ever put them in any nursing home.

@tracyd693

5 жыл бұрын

@@stassitaylor7799 I do agree with you to a point. Not everyone has a choice to care for their loved one at home. My grandma had Alzheimer's and she was in a nursing home. And actually, it was as nice as it could be, not dirty and depressing. Lots of loving staff, and believe me, my mom would not tolerate her mother in any other typical nursing home. It was impressive.

Stephen Hawking is still alive. I guess his survival is a rare case... ALS is cruel, grandfather had it.

@omarkhauldunn7537

7 жыл бұрын

It is widely believed that Hawking was misdiagnosed. There is also a theory that because Hawking was diagnosed at a young age, his ALS is different than the norm. Regardless, if Hawking was doing something unique to prolong his life, the world would know about it. As such, I am inclined to believe Hawking does not have ALS, but a related disease.

@redbutterflynine

6 жыл бұрын

SuperMichelleDJ many people are praying for him too, can't hurt. 🌹

@waynester71

6 жыл бұрын

Unfortunately it’s now.. RIP Professor Hawking

@catherinespark

6 жыл бұрын

Does Jason Becker have a rare form of not-ALS too? Stephen Hawking's breathing and swallowing muscles never deteriorated. But since Becker has survived for such a long time too and is feeding tube and ventilator dependent, there are some things I think have contributed more than than lack of wastage in swallowing and breathing muscles, to his and to Becker's survivals: . 1. A raison d'etre, self-identity and vocation that don't depend on moving, allowing for undiminished love of life for its own sake - makes all the rest bearable and worth it. 2. Real foods diet, not a commercial enteral formula that's basically just syrup, oil, milk protein and vitamin/mineral powder day after day. 3. Regular repositioning and lots of active movement, physiotherapy, vestibular and sensory input, and postural care - helps prevent bed sores and infections, as well as scoliosis, cramps, spasms and contractures. 4. Good dental, ear, nose and throat hygeine - helps prevent upper respiratory infections 5. Rigorous hygeine protocols 6. Therapeutic, not hospice, attitude to respiratory management, including the transition from unassisted breathing to bipap to trach. Also rigorous breathing treatments and CPT to help clear secretions and prevent chest infections/pneumonia. 7. A therapeutic, not hospice, attitude to the disease and approach to its care 8. Tailored, long term nonverbal communication system that does what they want it to do and allows them to work on what they want to work on 9. Rigorous management of eliminations - urination and defecation - to prevent constipation and urinary tract infections 10. Clean and hygeinic home environment - use disinfectant all purpose cleaner and a steam cleaner to keep equipment and seating clean 11. Protection from infections such as colds and flu - keep away from infected people and people who have been in contact with those showing symptoms of these. Use lots of hand sanitiser and a disfinectant shower gel/laundry powder/shampoo.

This makes me so angry. It's been around too long for them to be so completely clueless about it. Damned funny no one dies from AIDS anymore.

@eddiew2325

5 жыл бұрын

Shut it already. Just shut up and kiss me

Craig keep trying to move those arms, don't give up brother.

@baileyfox5648

6 жыл бұрын

Thank you Douglas but my father died in August of 2011.

@monicajean37

6 жыл бұрын

My condolences Bailey , ALS is such a horrible disease My aunt died from it also. Hated seeing her waste away, but she was a tough cookie. I hope you and your brother are doing well, God bless you and your family sand especially your father who is now in heaven.

@katepearson2730

5 жыл бұрын

Bailey Fox sending u and ur brother so much love from across the pond here in the uk, u had one amazing dad, he’s with ur mum now, n I know how u guys feel I lost my parents in 2014 6 months apart love, n then my step mum I lost her in 2016 so it’s just me my hubby and our kids, I wish i could do something or say something that would be able to help u guys, but sadly I can’t all I can do is send my love to u both and let u know I’m thinking of u xxxx

@fiestyone

4 жыл бұрын

Bailey Fox I’m so sorry!! I know he’s resting in Paradise!!

@susanberg5817

4 жыл бұрын

@@baileyfox5648 My condolences to you and your brother ❤️, Baily. One could tell, there was so much love between you and your dad. I hope, you're doing allright. All my best wishes to you ❤️.

People expecting reality to play out like a movie or fairy tale is NOT reality! Sh!t happens! Bad things happen! IF you're living in reality you will know that and hopefully be somewhat prepared for it.

There is no cure unfortunately it's 2022 still no cure in sight it's a terrible terrible disease

Spouses are amazing. "Sickness and in health till death do us part"

All my fears were put into physical spots in my body, because it was what was actually happening that I could still feel that other people couldn't see. Parts of my body were saying im damaged what are you doing to me. Somehow or another I confused that fear with my movements, and thought if I move this then they will be damaged so unconsciously I never called for them again. That fear or my fear of being restricted was what restricted me. put your arms behind you again. People never realized because of the fact that their eyes are closer to the outside of their body than their arms. But you bring your arms from behind you basically in order to touch things in front of you. That is why you are always balanced ^ ^. You just do not see or think of it in this way because through your eyes the way you always look at and use your arms has been from a certain "point". Let how you see it go, and any fear of being restricted. And throw yourself back down. You are very strong though, all this time you have managed to hold yourself up. Time to go back down. Fear not, the ground is your friend, flat is your way. Back to the ground is your style. Head to your feet is how you walked miles. Throwing feet up behind you all the while. You've done this many times. So do not fear the weight. You do not create balance, and it is out of your control. Only pressure creates balance. This is your center. And you are always there. Much love and peace.

all these people who have this disease will be with the lord where there is no such thing as diseases and violence but love and peace MAY GOD BLESS ALL THE SICK AND MAY GOD TAKE YOU THROUGH THE GATES OF HEAVEN.

Bless every single person in this poignant film.

Divorce him, dont let someone else medical challenges bring stress into your life. I'd put him in a home.

@luvdashooz

6 ай бұрын

You sound very evil and heartless with that comment! Karma dear Karma!

The body is fragile.

Anyone who watches this please report the comments that giving out misinformation. There is no cure for ALS at this time.

The state will

@ann-mariebaker118

4 жыл бұрын

The state will what?

FIND OUT EARTH...FIND OUT...

Did anyone notice the LSD bus at 45:08? Who thought that was a good idea? Really for a school? Someone didn't think that one through.

@pennsylvaniapatti1835

4 жыл бұрын

Its I.S.D.

Chelation, Andy Cutler protocol.

I do believe it is a prion disease in some cases. Creutzfelt-jacobs disease. and other prion or mercury poisening disease. I just feel cross referencing these brain dis. would be helpful.

@hannahbailey6424

5 жыл бұрын

TheFoxandTheRabbit a prion disease warps the brain and their mental abilities deteriorate. an ALS patients brain remains in tact until they die.

57:02 "Lateral Cirrhosis"???

This disease has a secret underlying cause is not being discussed enough. If dealing with ALS or any other autoimmune disease, you are suffering from an underlying condition known as 'Leaky Gut Syndrome' that is allowing Lipopolysaccharide (LPS) from dead bacteria in the gut to get through the tight junctions and into the bloodstream, which causes a low-grade systemic sepsis that presents itself differently in everyone (ALS, MS, RA, IBD, IBS, Crohn's, Myositis, Lupus, Parkinson's, etc.). They are all the same disease - leaky gut and LPS endotoxin getting into the serum. Microbiologist Kiran Krishnan speaks of this LPS endotoxin causing these diseases and how to cure the gut.

@NickanM

6 жыл бұрын

badcarma69 *It is proven to be genetic. Either inherited or a spontaneous mutation. Stop spreading your shit please.*

@badcarma69

6 жыл бұрын

Read the study, dipshit :) www.ncbi.nlm.nih.gov/pmc/articles/PMC2995297/

@catherinespark

6 жыл бұрын

And can these lipopolysaccharides or chemical markers of them cross the blood-brain barrier to where the motor neurons are?

@badcarma69

6 жыл бұрын

Yes, the LPS can and does cross the blood brain barrier (read study in comment above).

@tracyd693

5 жыл бұрын

A lot of our problems are contributed to the gut.

I'm voting to end this and all diseases.

What's the obsession with marriage with these people? Is that a barometer for doing well in this life? Look how many marriages fail. Anyway, what a horrible disease to go through. I hope they get through it the best they can.

@christianheart1

6 жыл бұрын

no hassle I thought the same thing. Trying to promote the narrative that you need someone to be married to to bring joy. Sometimes being married to someone when you are going through this is worse. Knowing that you can't do everything you once did. If they were never loving combined with the emotional rollercoaster they can hurt the one with als more.

Instruct the person to do this pleasee.. Tell them to imagine themselves moving in their mind, standing up and walking around. Then tell them to move their head in as many directions as possible while they are standing. Then tell them to stop moving their head, and that its ok, to let go of the feeling that they have as they are doing that specifically in that order please. It may also help to put your hand on the persons forehead with your palm over it and to apply a weak but consistent pressure. Please do these things ok. If they feel as if they are losing their balance or getting somewhat sickly or have to move strangely while doing this then you have succeeded. And they may rest in peace then, feel tired again, breathe!!!!!!!!

I wish he wouldnt have shamed his daughter for wanting to run the 5k.... and couldnt the dad maybe arrange with the kids friends parents drop offs and pick ups?

have they tried stem cells?

“If by some unexpected miracle, you were able to regain the use of your arms, what is the first thing you’d do?” (You know damn well “masturbate” crossed that man’s mind more than once!)

@ebrooks24711

4 жыл бұрын

What an idiotic thing to say.

@davidbowman4259

6 ай бұрын

What a sick comment,

All the comments on here about God having a "strange sense of humor" are offensive to me. This has nothing to do with humor; God presents us with challenges (some much worse than others) but as the Bible tells us in Ecclesiastes 3 "There is a time for everything, and a season for every activity under the heavens: ..."

@tylerjohn7497

6 жыл бұрын

Omg go away. Not the time for your Bible thumping.

@tylerjohn7497

6 жыл бұрын

Major fool

@redbutterflynine

6 жыл бұрын

🌹🌹✝✝🌹🌹

@christianheart1

6 жыл бұрын

So awesome strange that the same verse came to me when I read that. And on that day when my strength is failing singing ten thousand years and then forevermore. I'm sad for those who are diagnosed but God loves all and Job endured so much but kept his faith in God.

@chasstacey

5 жыл бұрын

Wow..you know what the book says...do you know what it means??? -REALLY??😀😀

Why Craig is like always sweating?

"If god would like us to run 3.2 miles he wouldn't have invented cars"??? Which god was she talking about? I am not familiar with any god inventing cars. It was US, HUMANS, who did that!

Something needs to go through the hands in a weird way and the person is trying to reach as if reaching from a very strange distance, somehow or another everything is fine but the persons face and neck is at a slight angle and has forgotten it and the weight of it as the body moves is slowly destroying things. Also there is no pain because your body increases your adrenaline to compensate and also releases lots of endorphins as if you are working out to combat the fatigue and mental stress. I noticed no pain, only loss of balance. But I knew something was wrong. I kept holding my face up. Thats why those chairs look the way they do. It is the way the person feels relaxed. They just forgot they could because it is something else in their mind that reaches the particular part of their body. As if the person is stuck thinking in a specific way.

@mikaelthomas6377

9 жыл бұрын

The person is in a certain sense stuck in the literal way that if they can still walk they are not actually straight. Inside their body something is being squeezed and they are trying to compensate for it. Nothing actually wrong physically but it is literally as if while the person appears to be standing, they are more leaning at a severe angle with their hip, only using half of their body to hold themselves up. Has nothing to do with the persons aware minds, but they can still reach that part of their body if they are realize their perspective. Tell the person that as they try to move they are going back and forth between the same perspectives, they are trying to move the same parts of their body over and over and over. And not new ones. Thats it. Needs new energy, new thoughts

god has a strange sence of humor

@christianheart1

6 жыл бұрын

Anthony C there is a purpose, ALS made me stronger. I took care of my mother. It made us stronger as a family, we loved each other more. The realization life us short and to enjoy what we can. My mother did a good job raising us. Yes, losing my mother was hard we mourned together, when her heart broke, when she wasn't able to do something and became sad I could make her smile, or cry with her either way helped her know we cared.

@christianheart1

6 жыл бұрын

God was our strength. The church provided a comfort and friends the pastor came to our house. We still go to the church. The disease killed her but saved us in more ways than we can count.

@catherinespark

6 жыл бұрын

That's the Enemy you're thinking of.

@davidbowman4259

6 ай бұрын

Strange thing is, there is no god.

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People are not aware that a “disease” could be a negative entity extracting the life from there soul. Rev. Dr. I. Johnson have been a metaphysician. Metaphysics is an aspect of spirituality that concerns the study of the nature of being, existence, time, space, and causality. It bridges the gap between science and faith. Healing through the three primary divisions of Metaphysics: physical, mental and especially spiritual. Metaphysical Healing is based on the belief that negative thinking and or energy can eventually result in physical disease or illness. But, if reversed and generated into positive energy can in fact heal. Imagine that a person receives the news they have a terminal disease. This person may be riddled with fear and anxiety related to death, symptoms and treatment. If the person has faith that a higher power was going to help, no matter what the outcome would be, this faith would generate positive emotions of peace and maybe even joy. 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During times of illness, disease or a life challenge, nothing is more important than to offer prayer and too join with other in assurance of these prayers. Rev. Dr. I. Johnson preforms a powerful Spiritual Regiment. The spiritual treatment is voluntary, results may vary. We reserve the rights to be selective. Rev. Dr. I. Johnson Phone: 203-434-1722 Email: rev.drijohnson@yahoo.com Mail: P.O Box #7911 Greenwich, CT 06830 When all hope is gone and prayer seem to be unanswered, Rev. Dr. I. Johnson can help! Miracles happen every day you just have to have faith. Rev. Dr. I. Johnson strongly believes; everyone should utilize any opportunity to preserve yourself or your love one's life even if it seems hard to believe. Never limit yourself exhaust all options and opportunities. By ignoring an opportunity you'll never know if it worked. And death is forever! Written by Representative A. Mitchell

@bridget5180

4 жыл бұрын

XAH Miracle Healer scam

the paster is living life happily and i like that, but the dude whose arms dont work is just mopeing around all day watching tv

@redbutterflynine

6 жыл бұрын

Jordyn Selby Pray for them

@speakupforourfuturepamelas3431

5 жыл бұрын

Some people handle this differently. Cannot blame the father of his kids.... This is not an easy thing to deal with.. some are lucky to have 2 to 5 years....

@GrandmaLM

5 жыл бұрын

Please don’t call him dude and don’t criticize. My best friend Al, died of ALS just five weeks ago.

Money money and money.

Those are some ungrateful spoil brats .

If there's a god, he has a sick sense of humor.

@brendology

8 жыл бұрын

Why does everybody want to blame God for everything? God never promised us that we would not have struggles. We all have some kind of struggle. Some are obvious and some are not but we all have them. This is not supposed to be paradise, Heaven will be but not here.

@internetpolice1166

8 жыл бұрын

Brenda LouHoo It's a saying...take your religious rhetoric elsewhere.

@internetpolice1166

8 жыл бұрын

Brenda LouHoo Doubtful...but okay.

@tmarie1318

6 жыл бұрын

Brenda LouHoo Thank you! It's not His fault. He said our lives will be filled with trials and tribulations, testing us and our faith. Once you learn about God, you really understand life. Of course you don't want to go through tough times, we all don't but it's a lot easier knowing that it won't last forever and that there will be a place someday.

@redbutterflynine

6 жыл бұрын

T Marie 🌹🌹✝✝