Borderline Personality Disorder | A Sibling's Story

Paula Tusiani-Eng’s sister was diagnosed with Borderline Personality Disorder (BPD) after multiple hospitalizations and months of self-harm symptoms and suicidal thoughts. Although her treatment plan helped to stabilize her behaviors, one of the medications caused her to suffer a rare stroke and she died in 2001. Paula has since dedicated her life to supporting, educating and advocating for people impacted by borderline personality disorder through her organization, Emotions Matter.
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Learn more about Emotions Matter and follow them on social media emotionsmatterbpd.org/ / emotionsmatter / emotionsmatterbpd / embpd / @emotionsmatterinc.9263
Read her book Remnants of a Life on Paper: A Mother and Daughter's Struggle with Borderline Personality Disorder www.amazon.com/Remnants-Paper... New York-Presbyterian Hospital Borderline Personality Disorder Resource Center: www.nyp.org/bpdresourcecenter
00:00 Intro
01:28 This week's guest
03:13 living with BPD symptoms & diagnosis
05:49 Finding treatment for Pamela's BPD
07:52 Pamela's death & grieving her loss
12:20 Writing a memoir about her sister's struggle with BPD
19:24 Launching the BPD Resource Center at NY-Presbyterian
20:39 Starting Emotions Matter
30:01 Emotions Matter Support Group for BPD
34:13 Expanding their impact in the future
40:42 An encouragement for those impacted by BPD
47:20 Jackie's recap
#mentalhealth #mentalhealthawareness #livedexperience #stories #borderlinepersonalitydisorder #bpd #grief #psychology #podcast

Пікірлер: 72

  • @MedCircle
    @MedCircle Жыл бұрын

    Get stories of mental health lived experience sent to you each week: www.medcircle.com/podcast

  • @jimsmind3894
    @jimsmind3894 Жыл бұрын

    Thanks for continuing to educate and enlighten everyone about BPD, excellent discussion. 👍

  • @MedCircle

    @MedCircle

    Жыл бұрын

    Glad you enjoyed! we have another episode launching next week kzread.info/dash/bejne/n5iMk7pveMzHdZs.html

  • @karisanahodil3406
    @karisanahodil3406 Жыл бұрын

    Please keep uploading more BPD videos! These are so helpful. Love the MedCircle team and all you do! Your all so helpful!

  • @MedCircle

    @MedCircle

    Жыл бұрын

    The "It's All In Your Head" podcast will be launching another episode on BPD this upcoming Monday! kzread.info/dash/bejne/n5iMk7pveMzHdZs.html

  • @karisanahodil3406

    @karisanahodil3406

    Жыл бұрын

    @MedCircle I'd love to see as many videos on KZread as there is on the MedCircle website! I wish I had the funds to become a member and be able to watch all of them. Please add them all to KZread! ♡♡

  • @MissOceanBlue
    @MissOceanBlue Жыл бұрын

    I was Diagnosed with BPD and My Sister who committed suicide was Bipolar as well as BPD ... I am so glad this channel exists today cuz like you said, back in the early 2000's there wasn't a lot of information regarding these disorders... I wish I would've had the knowledge and compassion I do now... She may be Alive now...😫😭😭😭🤷🏽‍♀️

  • @na.di2023
    @na.di2023 Жыл бұрын

    I am so grateful to see and to listen to this talk 🙏🙏🙏🙏🙏🙏🙏

  • @Dee-Dee4959
    @Dee-Dee49598 ай бұрын

    It's very disruptive to the family system. Everyone is affected in some way. To this day I feel like I had to grieve the sister earlier on that I thought I had even though she's still alive.😢

  • @hnlong8531
    @hnlong8531 Жыл бұрын

    My roommate in the Navy had BPD, he would make me fail room inspections after I cleaned the room. His little brother committed suicide while he was at my unit and he didn't change much, he wouldn't go to work and would stay in the room playing video games until someone was sent to fetch him. He would also gaslight the people sent go get him telling them he was off and didn't have to work if he wanted. He made my time at my unit terrible because he was always doing something and my psychopathic petty officer 2nd class would use me as a scapegoat for him. I ended up getting autoimmune encephalitis and almost died. He saw me have a seizure right in front of him and didn't call 911. I helped him numerous times when he would spend all his money on things he would never be able to use. Me almost dying got me out of a bad situation that was getting worse.

  • @aquariussun7352
    @aquariussun7352 Жыл бұрын

    What I want to see is a video describing what it's like growing up with a bpd sibling. The constant abuse, manipulation, endlessly walking on eggshells and never knowing when the next explosion is coming or what will trigger it. The parents not knowing what to do and just screaming at both of you when all you did was protect yourself from another relentless attack. The damage it does to your self esteem and the social cost of that damage in school and relationships outside the family. The resentment towards your parents for failing to protect you. The resentment towards other siblings who never were targeted to nearly the same extent. Then growing up hoping that person becomes normal and nicer with age, but they remain violent and cruel. Having to process all that trauma, memory refreshed, and set down firm boundaries with family to make sure that the bpd person will never have contact with you or learn your address in another city, or legally changed name. I didn't watch this whole video, but I watched enough to know her sister didn't make her life hell. She cares too much. After too much abuse you stop caring all together and self preservation becomes the only goal.

  • @justiceantruth8862

    @justiceantruth8862

    Жыл бұрын

    Yes. It is truly hell to be on the RECEIVING end of. Self-preservation is essential.

  • @kaitlynnvanderslice2339

    @kaitlynnvanderslice2339

    4 ай бұрын

    I am sorry for what you went through, but that isn't every sibling with BPD though. Not EVERYONE with BPD is violent and cruel. Not everyone lived your experience, so don't assume that other ppl with BPD acted the same way your sibling did. That's only further adding to the stigma surrounding borderline personality disorder.

  • @sophieserendipity4164

    @sophieserendipity4164

    Ай бұрын

    Tell us you have bpd/helpers syndrome without telling us you have bpd/helpers syndrome. You don't get to tell people what and what not to communicate about their lived experience. I've gone through about 90% of what the original comment described. Given enough space and time away, Siblings of bpd people get a really good sensor for people trying to gaslight them. We sat in the masterclass for years, even decades. We see right through that. And when we've managed to let go and centered our own lives, who is gonna try to talk us out of that? Oh yeah. People with bpd and the people who are still subconsciously enabling their behaviours. Right. Thanks for the reminder.

  • @kirstymclaren3869

    @kirstymclaren3869

    Ай бұрын

    I have lived through the same hell as you describe. Desperately hoping they might mellow with age, but no. Mine became more abusive, more vicious, more devious and ultimately made me and my siblings life hell. And after years of getting therapy to try to help understand "her problem", her insecurities and her outbursts, and not take her abuse personally, she ultimately stole our mothers house during lockdown, and disinherited the rest of us. Now we are steeped in a Supreme Ct legal case. And she appears to be getting off on all the attention she is getting. Exhausting at best and devastating effect on a family's life. There is indeed a very ugly side to having BPD sibling. Not saying everyone is the same, but don't expect any semblance of peace or harmony if you are unfortunate enough to have one in your family

  • @kirstymclaren3869

    @kirstymclaren3869

    Ай бұрын

    ​@@kaitlynnvanderslice2339 sadly BPD in your family can be hell on everyone. It impacts upon everyone.

  • @garyjenkins3027
    @garyjenkins3027 Жыл бұрын

    Valued information necessary.. grateful for listening this.. thank you so much..

  • @thisisbig11228
    @thisisbig11228 Жыл бұрын

    Thank you Paula. ❤

  • @melanzane3611
    @melanzane3611 Жыл бұрын

    A tip for the channel: define the elements of the disorder. Halfway into this video it’s just glossed over, instead focusing on the family struggle. Also, suicidal thoughts are just one of many possible (and not necessary) elements of BPD. This podcast focuses mostly on suicide, addiction, and malpractice, and really is a discussion of that. If one is looking for a good discussion of BPD, this is not it, no offense to the channel itself.

  • @freespiral

    @freespiral

    Жыл бұрын

    I came here to say something similar but you summed it up really well.

  • @viviananunez-rupnick3499

    @viviananunez-rupnick3499

    Жыл бұрын

    Agreed but the other frustration I have, as a clinician and a person with mental health concerns, is that this video makes it sound like BPD, mental health conditions and/or personality disorders occur on mostly an island, without much outside influence. It's incredibly false and damaging to send this message. She specifically says at one point "I'm fine and my brother is fine but my sister had BPD." Looking fine on the surface is not actually fine. I could go on and on about this but ALL personality disorders are MAJORLY influenced by development in the family. Maybe parents don't want to hear this or fawning siblings don't want to hear this but it's true. It's wonderful that they made such a big effort to des-stigmatize but its a system that creates mental health struggles, genetics play a pretty small role if at all depending on the condition.

  • @freespiral
    @freespiral Жыл бұрын

    I have a dysfunctional sister-in-law who suffers from BPD in conjunction with Bipolar disorder. It is very hard to understand and accept that she thinks so differently from the rest of the world. It is often like she is from another planet and I don't know which plane she fell from most days. I wanted to listen to this video because I've been trying to support her and understand for the last 20 years. After watching this, I am none the wiser. I think the video should've taken a different format or should've been called something else. It was mostly an awareness campaign for Emotions Matter. Great, invaluable work that they're doing but the information was not helpful to someone close to a person with BPD trying to support them.

  • @rbelle8
    @rbelle8 Жыл бұрын

    So glad you posted this for all of the overly controlling and invasively intrusive people that work in your field…

  • @Willow_Mary
    @Willow_Mary Жыл бұрын

    I've looked for that book and can't seem to find it being sold anywhere for less than $50, which to me seems steep for a book. Does anyone here know where to find it for less?

  • @thecontagiouscajun4795
    @thecontagiouscajun4795 Жыл бұрын

    So many Christian friends that I dearly loved abandoned me when I most needed them. Some stayed and did their best, but damn, the others I was so close with, and so loved just up and decided to leave our friendship in some stupid effort to push me toward God. I ended up in the hospital worse than I’d ever been. I almost didn’t make it. And now for the past 5 years I’ve spent isolating and don’t have it in me to truly change that. For some reason deep down inside I have a hope, and if that goes out it’s not out for long. It keeps me going. But sweet God, whoever you are, I need you. Help me. Save me.

  • @naveennandigum8630

    @naveennandigum8630

    Жыл бұрын

    Hang in there brother. You matter and it's just one day at a time.❤

  • @usedscar
    @usedscar Жыл бұрын

    Writing if you can do it is a cure for many ills. Write no matter what.

  • @lilytea3
    @lilytea38 ай бұрын

    0:07: 💔 The speaker's sister struggled with mental health issues, was diagnosed with borderline personality disorder, and passed away due to a medication error. 4:44: 🎯 The lack of accessible information and treatment options for bipolar disorder in the early 2000s prompted the creation of MedCircle. 9:52: 😢 The speaker reflects on the guilt and trauma experienced by family members caring for someone with BPD. 13:59: 📚 The video discusses the idea of creating a memoir with Pamela's voice to shed light on borderline personality disorder (BPD) from a personal and family perspective. 18:09: 📚 The family made a conscious decision to be brutally honest and share their sister's diaries, which led to people wanting to get involved and do more for people with BPD. 22:47: 😢 Living with a mental disorder is extremely painful, but finding support and helping others can be a beautiful thing. 27:12: ❗ The speaker discusses the four recovery principles for individuals with BPD, which include finding support in the community, pursuing a purpose, trusting oneself, and advocating for one's needs. 31:41: 📚 The speaker discusses the importance of providing resources and support for individuals with BPD and their insurance struggles. 36:30: 💡 Emotions Matter aims to help people change their narratives and gain a sense of agency in their recovery from mental health disorders. 40:47: 💡 Trust your instincts if you suspect you have BPD and seek a diagnosis as it is often a last resort when other treatments have failed. 45:00: ❤ Supporting loved ones with BPD is crucial for their recovery, even when their emotions are dysregulated and they struggle to express themselves. Recap by Tammy AI

  • @Dee-Dee4959
    @Dee-Dee49598 ай бұрын

    In the early 90s there really was insufficient knowledge and appropriate treatment. My older sister was treated for major depression and anxiety, but I always felt like there was something else going on, but I didn't know. I started studying psychology to understand what was going on with her so that I can help her.

  • @KoolT
    @KoolT Жыл бұрын

    My niece had this but passed away. But was drinking and using heavily at the time.

  • @ezfamtv7838
    @ezfamtv7838 Жыл бұрын

    Thank you I need this it feels so draining

  • @nathanreid4212

    @nathanreid4212

    Жыл бұрын

    How's is this draing too you

  • @ezfamtv7838

    @ezfamtv7838

    Жыл бұрын

    @@nathanreid4212 having a loved one with bpd

  • @jessicablum4096
    @jessicablum4096 Жыл бұрын

    I think my mom had this as one of her many issues

  • @ericablaschke3497
    @ericablaschke3497 Жыл бұрын

    Is attachment trauma and complex ptsd and insecure attachment the same as bpd, Some of the symptoms are similar fear of abandonment rejection self sabotaging, emotional dysregulation, but not self harm, having job stability Knowing who I am and being who I am but having such difficulty connecting, feelings of safety with others trusting people. Is this bpd it is similar but different

  • @ericablaschke3497

    @ericablaschke3497

    Жыл бұрын

    I also have nonverbal learning disability (NLVD)

  • @THEREDBARON777

    @THEREDBARON777

    Жыл бұрын

    It’s very difficult to identify and rule out other diagnosis. It’s best to go to a therapist that specializes with bpd

  • @TheBiggestMoronYouKnow
    @TheBiggestMoronYouKnow Жыл бұрын

    I’m sorry you lost her

  • @ericablaschke3497
    @ericablaschke3497 Жыл бұрын

    I have attachment trauma with insecure attachment my family doesn’t understand and get upset with me. I hurt with issues of rejection mostly with family. I get frustrated because help is expensive with a 2,000 deductible with insurance and insurance wants to pay less. With not many providers who treat it also don’t take insurance (dbt groups and therapists). That leads hospitalizations which only treats with meds and treats depression and anxiety. Care/help is scarce and unaffordable. My symptoms are an attachment trauma and early childhood and chronic trauma and pain. I struggle with wanting to die because of the suffering with no friends/ relationships/,friends.,There is no help accessible and no one understands. Hospitalizations just leads. My mother has her own trauma which she never dealt with which affected her ability to parent a child with some minor difficulties/health problems. Her own mental illness and trauma. Not connecting to your primary caregiver . Our mental health system sucks we only treat the systems with drugs bandaids. I work in mental health as well and see the internal problems

  • @lab4389

    @lab4389

    Жыл бұрын

    Yes, you make many good points. I’m sorry what you go through. My son has mental illness, and even with help I’ve found for him, he feels suicidal on and off. As a mom, I hurt so much for my son.

  • @markmountain7981
    @markmountain7981 Жыл бұрын

    There's a lot of static interference/intervention? What's the noise? Who is that? What's that about? ????????

  • @lafragolastrana
    @lafragolastrana Жыл бұрын

    so happy to hear about supporting people with bpd instead of just dismissing and stigmatizing, thank you for posting!

  • @vanessapeek7935
    @vanessapeek793510 ай бұрын

    There will never be change Bless you for trying it’s just talk The help is it there .. in uk or America or else where for extensive treatment That’s needed That’s the reality… sad to say …. Pity only goes so far You need lots of money to have the real long term help

  • @vanessapeek7935
    @vanessapeek793510 ай бұрын

    I am so sorry for your loss If she got the help Before meds …. This would have helped her earlier Way bk After her diagnosis…. There’s knowledge Not treatment What good is that Lots of people making money where can dipping into dbt Not extensively diving into long term care plan and skills needed for long term …

  • @nathanreid4212
    @nathanreid4212 Жыл бұрын

    From someone who lived with almost mental disability under the sun for the first 24 years of my life since there are different levels bpd its tough cause of the way they go from one personality to another my mom has bpd living with persons with bpd but it's a whole different story when it comes to family members who have bpd its a whole other story

  • @CherylBerryl

    @CherylBerryl

    Жыл бұрын

    You are not kidding! My sister has BPD & she is just so Out Of Control with her behavior! She is So ABUSIVE! And she wonders WHY No-one wants to be around her! And with her Long list of disabilities, it's impossible to be "no contact" with her. She is driving everyone in the family Crazy! She just sucks the life out of EVERYONE!!! 🤦🏼‍♀️😔

  • @nathanreid4212

    @nathanreid4212

    Жыл бұрын

    @@CherylBerryl just don't give up hope there is help out there and no its not hospitals and or wards there's people that have been dealing with bpd for over an x amount year some people have been helping people for their entire career

  • @jenm473
    @jenm473 Жыл бұрын

    I watch videos like this because I am trying to understand my stepson a little better, but it didn't sound anything like him so i am confused. He does make up stories to fit the moment, and never means them (and I came into the picture expected to not believe anything he says, when he doesn't mean it, but always supposed to believe he is improving when he said something good he was gonna do- this was before any diagnosis). He has deeply narcissistic tendencies and that is what I seem to bring out of him and we were unable to live together (He was an adult already when I met my husband). He finally moved out because he could not understand having rules. He couldn't live with any of his friends because he had to pay rent and follow rules (basic adult rules) and that didn't work for him so he moved in with his grandparents (on our same property) and they take care of him like a baby and he talks abusively to them like he did to us and they take it and baby him. He will always be enabled, its even established in everyone's wills. I just don't understand it all and try so hard. I see a little depth to him sometimes, and really believe its real, ad then he's different and makes me think of my ex's the next day. He even agrees he is a narcissist, but also thinks he is an empath (He has never given a thought to how anyone feels as far as I could tell. He was not even raised to. At this point, I know he lies about things the therapist told him a lot and wonder if he was actually diagnosed wth BPD because he is not in any kind of special care or meds, but does see a psych and therapist. I adore my husband but am struggling to stay in my marriage due to this because I am constantly triggered. I want to understand and help, but it seems impossible. (I only call him stepson to make it clear on subject matter like this, I hate seperating him from my other son otherwise. I try to think of him as my son, but struggle because he does so much I never would have allowed if I'd raised him)

  • @ravingcuriosity6345

    @ravingcuriosity6345

    Жыл бұрын

    It doesn't sound to me like he is BPD... I think the best thing to do, to help him but also yourself and your relationship, is for you (and also your husband) to do psychotherapy. The more you know about yourself, the better you can handle behaviors that sometimes can get extreme.

  • @wmdkitty
    @wmdkitty Жыл бұрын

    How about we stop pathologizing a normal response to untreated trauma (BPD)?

  • @80islandia

    @80islandia

    Жыл бұрын

    Agreed. Thank you.

  • @ravingcuriosity6345

    @ravingcuriosity6345

    Жыл бұрын

    Ive recently stumbled upon the concept of C-PTSD, and it makes a lot more sense to me than just saying "BPD"...

  • @vanessapeek7935
    @vanessapeek793510 ай бұрын

    This takes time … time people won’t give without money That’s if they ( professionals) want to commit too Aside if patient committing

  • @KoolT
    @KoolT Жыл бұрын

    Oh dear God, I lost my niece to this, it has DESTROYED my sister and her other daughter diagnosed with severe mental illness.

  • @patrickflores4731
    @patrickflores4731 Жыл бұрын

    Jesus Loves All of You 🙏!! Psalms 147:3 He Healeth the Broken in Heart and Bindeth up their Wounds 🙏.

  • @mrblackblack2802
    @mrblackblack2802 Жыл бұрын

    RIP the man who cut someone with a razor blade its BPD

  • @vanessapeek7935
    @vanessapeek793510 ай бұрын

    Was it really rare …. The side effect … People aren’t valued to save with bdp It’s not a pretty illness

  • @vanessapeek7935
    @vanessapeek793510 ай бұрын

    Sounds like an obituary …. It don’t amount to enough sorry it’s true

  • @dibasewsbadly
    @dibasewsbadly Жыл бұрын

    I was hoping this was helpful advice to caretakers of someone with BPD, the violence, the screaming, the lying, paranoia, psychosis. It’s not.

  • @freespiral

    @freespiral

    Жыл бұрын

    Exactly what I came to say

  • @1964_AMU
    @1964_AMU Жыл бұрын

    Can you imagine that in Europe most of borderlines are in jail....

  • @1964_AMU

    @1964_AMU

    Жыл бұрын

    @@AnamariaTo My country is Belgium. BDP is translated by "Personalité limite", which does not mean anything for the average citizen. A few books are available for universitarians. I have provided accomodations to ex-cons. 2 of them can be BDP. In France, according to a MD in my family in law, 60% of the prisons population should not be there and should be treated for various psychiatric conditions. In Germany, Netherlands and Nordic countries, jails are providing psychiatric treatments but only on the Court demand. Families, victims and visitors have no voice.

  • @naveennandigum8630

    @naveennandigum8630

    Жыл бұрын

    Wow I didn't know europe is also like this. I thought the US was the outlier. Here homelessness is the common outcome for people with mental health issues.

  • @markmountain7981
    @markmountain7981 Жыл бұрын

    Seriously, WTF is that? Is that your tech at your end or is it just me? It sounds like someone trying to talk over you, but really distorted. Is it you guys? Is your tech crap?

  • @cheezy_tater

    @cheezy_tater

    Жыл бұрын

    The audio sounded fine to me. It may have been a glitch on your end. It can happen for a variety of reasons. I see you posted this 18 hours ago. Might be worth trying to watch again. 🙂

  • @hoosfoosfull
    @hoosfoosfull Жыл бұрын

    A borderline has ruined my emotional life. I was fine before crossing paths with her. Avoid these people like the plague. And don't make the mistakes I made by accepting multiple hoovers. 100% no contact is the only way to be safe from them.

  • @DelphineTheWorstBladeEver

    @DelphineTheWorstBladeEver

    Жыл бұрын

    Bro 2 of my friends are diagnosed and I know some horrible ones, too. They're just normal people. They might have the manipulation of above average people, but normal toxic people can mess you up just as bad. Your mindset about them being anything horrible is toxic, and not helpful. Your comments are dear mongering, and it hinders the support some people need. Go to therapy instead of leaving comments like this, and maybe bring up your feelings.

  • @glimmerofhope3074

    @glimmerofhope3074

    Жыл бұрын

    My best friend has BPD, and if we took your advice to go no contact... I cannot even imagine the consequences of such poor advice. She is one of the kindest, most caring persons I've ever met and she has a mental illness that causes her to act in a way that is antithetical to her values. Her BPD was directly caused by trauma in her life and she has no control over it, so she's just supposed to be abandoned? Just because of YOUR horrible experience? Mental illnesses affect everybody differently. Please take the time to review your education and thought processes on this matter, because what you said is both hurtful and discriminatory. I have no doubt that what you said was true, a PERSON (mind the distinction and please don't refer to people as "a borderline," it's disrespectful and lends to stereotypes,) may have ruined you, but it wasn't my friend. Avoiding people with BPD may be a good idea FOR YOU, but why should they ALL be avoided by people because of YOUR experience? Makes no sense. Since we're all out here giving unasked for advice, may I suggest, the safest thing for most folks would be to seek therapy. Good luck and I hope you are able to take back control of your emotional well being.

  • @janethomas78
    @janethomas786 ай бұрын

    NARCISSISTS CREATE BORDERLINE PERSONALITY DISORDER---