Before Mastectomy - What I Wish I'd Known

In this video I'm sharing the six really helpful things that I wish I knew going into my first mastectomy--things like what the cost of lumpectomy is, how to tell when it's time to go to mastectomy surgery and how to find the right surgeon. This list is different for each of us, I'm sure, but some of mine will probably resonate with you.
- Related Videos:
The video I mentioned about comedo necrosis is here: • DCIS - What I Wish I'd...
The playlist of my entire Mastectomy Story: • Mastectomy Story
- Links:
Here's that interview that I mentioned wherein Dr. Lemanne says to get a second opinion: • DAWN LEMANNE, MD, MPH
My professional KZread channel is at / @seekingdeeperhealth
The land where this video was shot is Kalapooia Tribal land. Join me by contributing to and learning from your own local indigenous farms here: www.soulfirefarm.org/get-invo...
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Пікірлер: 41

  • @maevebelleaqua918
    @maevebelleaqua9185 ай бұрын

    Don't worry about what your peers think or if they are judging you. It's not their life or their health on the line. I'm going through cancer treatment now, and I've learned it's far less stressful to ignore the naysayers and make my own decisions and choices about my own health care. Thank you so much for taking the time to help people who are dealing with similar circumstances to yours ❤

  • @janealcoseba1453
    @janealcoseba14535 ай бұрын

    I had mastectomy and axilla lymphenode success my surgery on January 22 2024 🙏🏻🙏🏻🙏🏻

  • @charleedell92
    @charleedell924 ай бұрын

    Great discussion, I really believe the surgical community are too focused on women's appearance rather than their quality of life in pushing lumpectomy. I am a previvor, double risk reducing mastectomies age 29, and had to fight tooth and nail to get the surgery but I can't begin to imagine the trauma of being pressured to keep an already cancerous breast.

  • @jennyeidson4916
    @jennyeidson49167 ай бұрын

    You are my hero..I’m just at the beginning and I am so happy I found you on KZread. Thank you for your knowledge and your kindness and caring. You are certainly an angel.

  • @estrogendiaries

    @estrogendiaries

    6 ай бұрын

    You are so welcome

  • @theresadaniel4771

    @theresadaniel4771

    2 ай бұрын

    You have given me new perspectives and greater confidence. I'm just about to start my journey. Glad l found you.

  • @rebeccastevenson1461
    @rebeccastevenson14619 ай бұрын

    I had a mastectomy 10 years ago. DCIS stage 2, no issues no regret. I had implants no issues. I joined a great support group. A blessing. The worst and only issue was the way I found out. I was driving when my new office Dr blurted it out. I couldn't breathe and had to pull over, A police officer was behind me and I was shaking trying not to make too sharp of a turn. So I could pull over. All she said over and over was. OMG OMG OMG OMG, I said what is it. As she blurted it out she said, let me call you back. I need to get you a Surgeon, a Plastic surgeon, and an Oncologist. I kept thinking. Do I need chemo? I'd this bad, will I die? I wish she would have said, you will be ok.

  • @estrogendiaries

    @estrogendiaries

    7 ай бұрын

    Yes!!!

  • @LoriQuinn-qd9kz
    @LoriQuinn-qd9kz4 ай бұрын

    Thank you! You’re a dear. Blessings to you💙

  • @carolborden2008
    @carolborden20085 ай бұрын

    Thanks for all the information about dcis. My biopsy shows comonecrosis. I haven’t seen surgeon yet, but I’m glad to have this information so I know what to ask. I will definitely keep you in my thoughts and hope your surgery goes well 💕

  • @estrogendiaries

    @estrogendiaries

    4 ай бұрын

    Thanks so much Carol!

  • @debmehr7013
    @debmehr70135 ай бұрын

    I had a lumpectomy from excellent surgeon. I had some soreness no pain. I’m an athlete and like wearing a compression suit for swimming, running and biking and being flat would not be something I’m comfortable with. My breasts are more uniform now than before since my right side was larger. I had clean margins and went for Breast MRI.

  • @estrogendiaries

    @estrogendiaries

    5 ай бұрын

    Congrats on your clean margins! So cool that you ended up with added uniformity!

  • @amazingautumn12
    @amazingautumn12Ай бұрын

    Thank you for sharing these important tips ❤ I absolutely agree about not trusting the doctors/surgeons.... how disappointing and unfortunate that they can be condescending and cold.... Good luck with everything ❤

  • @estrogendiaries

    @estrogendiaries

    Ай бұрын

    There are some who are wonderful, but they have been few and far between for me!

  • @dianeneault6251
    @dianeneault62518 ай бұрын

    Thank you so much. You are a great help. Because I am 72 yrs old with breast cancer with HER-2 and had lumpectomy I really want a mastectomy on one side and later on the other side later. Just because I think it would be easier one at at time. Getting a second surgery on Monday to find clear margins. I will try to convince my doctor to have it done at my local hospital before going in a private clinic in Montreal.

  • @estrogendiaries

    @estrogendiaries

    7 ай бұрын

    I am similar in my thinking. If I knew how much I'd still love my body I would never have hesitated!

  • @iriafriconnet4763
    @iriafriconnet47632 ай бұрын

    Thank you

  • @estrogendiaries

    @estrogendiaries

    2 ай бұрын

    You're so welcome.

  • @raziabibi142
    @raziabibi1428 ай бұрын

    Ur so brave god bless you I have been diagnosed DCSI early stage cancer im waiting for my first appointment with the oncologist to decide wt type of surgery l need l have high grade DCIS and im worried wt type of surgery im going to have ur video has helped a great deal thank you so much

  • @estrogendiaries

    @estrogendiaries

    7 ай бұрын

    You’re so welcome!

  • @juliepruett6356

    @juliepruett6356

    4 ай бұрын

    Dcsi means? I'm sorry...

  • @LoriQuinn-qd9kz
    @LoriQuinn-qd9kz5 ай бұрын

    Thank you, thank you for sharing all of your helpful information. Considering a preventative double mastectomy in the Seattle area. Can you tell me the hospital and names of your surgeons? Thank you

  • @estrogendiaries

    @estrogendiaries

    4 ай бұрын

    Yes, I highly recommend Dr Angelina Crown and Grace Um. They work together doing beautiful nerve preservation and Goldilocks mastectomies. They left me with a work of art after my first mastectomy was poorly done here in Oregon. Swedish First Hill Campus.

  • @allysonmccormack5529
    @allysonmccormack55299 ай бұрын

    Is City of Hope ( formerly Cancer Treatment Center s of America)a research place or Corp place you say to be Leary of ?

  • @estrogendiaries

    @estrogendiaries

    7 ай бұрын

    I’ve heard great things about that center, and never anything bad. I’m not the expert tho!

  • @jayme11475
    @jayme114755 ай бұрын

    Thank you for this video. I have chosen double mastectomy with sentinel node biopsy for DCIS and my surgery is at the end of the month. So far my providers have been great and I feel confident in my decision. I chose reconstruction so hopefully there are no problems.

  • @estrogendiaries

    @estrogendiaries

    5 ай бұрын

    Sounds great! I’m sure you’ll do well!

  • @krivoli86

    @krivoli86

    3 ай бұрын

    How are you feeling? I hope the pain is bearable, I hope all went well.

  • @popaholiccoco166
    @popaholiccoco1666 ай бұрын

    Can I ask who you have healthcare through?? Also, how did you discover that you could travel out of state and still have it covered by your insurance? I am in NV but have heard that surgeons are much better in CA and I don’t want to end up being mutilated just because I am hampered, or THINK I am hampered by my insurance.

  • @estrogendiaries

    @estrogendiaries

    6 ай бұрын

    My plan is Providence Health Plans, I think they are just in the NW here.

  • @LauretteMiscadin
    @LauretteMiscadin4 ай бұрын

    Good morning, im 32 just diagnosed DCIS with no stage cancer on my left breast. I am very shocked. I don't know what to do . What do you suggest to me? Lumpectomy or masectomy? I have to see my surgeon tomorrow

  • @estrogendiaries

    @estrogendiaries

    3 ай бұрын

    So sorry I don't always get to see comments right away. KZread sometimes sends them to this place for me to approve them... Anyway, I hope my videos have been helpful in the way that talking to a friend might be. Your surgeon is a great resource too but having a friend who's been there is a powerful thing, and I'm glad to play that role a bit here. Hope you found my videos on why I decided on mastectomy?

  • @ms313city

    @ms313city

    3 ай бұрын

    Hi. Recently diagnosed with DCIS 0 stage and because it doesn't run in my family I opted for genetic testing before surgery and I'm glad I did! I am positive for BRCA 2 which makes me high risk. Just a lumpectumy would have had me nervous wondering if every appt I go to are they gonna say it's back. I hated thinking of living with that fear. So I opted for Bilateral so I can forgo the radiation and pills for hormones and limit my risk SIGNIFICANTLY for it returning!

  • @debbiehibben4781
    @debbiehibben4781Ай бұрын

    Would you have had both mascectomies at once if you had it to do over?

  • @estrogendiaries

    @estrogendiaries

    27 күн бұрын

    For sure, but hindsight is always clearer!

  • @richelgar2309
    @richelgar23096 ай бұрын

    Who is your doctor in UCSF? I was diagnosed last month DCIS grade2-3 stage 0 (5mm)

  • @estrogendiaries

    @estrogendiaries

    6 ай бұрын

    Dr. Rita Mukhtar. She's a lobular cancer specialist.

  • @r5ndom551
    @r5ndom5515 ай бұрын

    I swear you sound like me😢