Arachnoiditis-Taming the Most Painful Pain

Almost every pain practice has now encountered a case of this once-considered rare condition. The underlying cause is neuroinflammation of the nerve roots of the cauda equina. Dr. Tennant outlines what practitioners should know about causes, symptoms, MRI findings, and the clinical protocol for treatment.
View more: pain.sh/ytpainweek

Пікірлер: 199

  • @mariepark4250
    @mariepark42504 жыл бұрын

    Dr T is a kind caring dr who is retired now. We need more drs and scientists who care for pain patients the way he did.

  • @ajae4214

    @ajae4214

    3 жыл бұрын

    He’s contactable via his website

  • @annm.perrone6089

    @annm.perrone6089

    3 жыл бұрын

    @@ajae4214 If I. Zoom called Dr T Could he prescribe me pain medicine he’s in California and I’m in New Jersey does anyone know please help me,

  • @shelleyrice1
    @shelleyrice16 ай бұрын

    Having adhesive arachnoiditis is horrific. I pray for all of us who have this condition and that one day, a cure is found.

  • @SacredOwl

    @SacredOwl

    13 күн бұрын

    I found it and can mitigate the pain in 30 seconds to 5 minutes. Space weather is the trigger for the pain flare-ups, I discovered this ten years ago and subsequently built a shielding room. The inflammation is the space weather acting on the damage and everything else is downstream. Once you cut off the trigger mechanism, all downstream symptoms disappear. I am giving you my experience and what others experienced that I have shared this with. Right now there I am in contact with researchers at Harvard T.H. Chan School of Public Health who are currently researching space weather triggering medical episodes. I am NOT a doctor and I am sharing what worked for me for ten year now. My AA was severe and like many with this condition, I developed early onset dementia and nearly all the downstream conditions. All downstream conditions (except losing my good eyesight) I no longer have. (Less than 6 weeks once I started sleeping in a shielded room) My injury is permanent, so I still experience pain flare-ups, but like I said, it takes less than 5 minutes and I am at 0 pain.

  • @monisolaelliott9346
    @monisolaelliott93462 жыл бұрын

    I have finally been diagnosed with this. I’ve been in pain for many years but I have essentially been bed ridden for the past 4 months. I can’t work and my savings is essentially gone. Im so depressed and trying to stay strong and figure it out for my daughters.

  • @Seekingtruth-mx3ur

    @Seekingtruth-mx3ur

    2 жыл бұрын

    Sorry your going through that. How are you now?

  • @srkzn5304

    @srkzn5304

    Жыл бұрын

    How are you now? Sorry for what you are going through..

  • @dm3144

    @dm3144

    Жыл бұрын

    I hope you’re feeling a little better, I can feel your pain, oh my! How can we live with the quality of life of being bedridden? This is an awful illness and I’m sorry you have it at such a young age. Stay strong with your daughters. Mine abandoned me like I was faking it!😱🤷🏻‍♀️😪 Worse than being in pain is…. being in pain alone! With no one to help you with anything!

  • @thriftypuggin

    @thriftypuggin

    Жыл бұрын

    I'm so sorry pain is terrible

  • @thriftypuggin

    @thriftypuggin

    Жыл бұрын

    I love this doctor I wish he was still practicing I need a doctor like him because I have this

  • @shellyrae777
    @shellyrae7776 жыл бұрын

    I have this Evil condition. Toroidal ( wonder drug) is only given for 3 days by my Doctor, if at all( mainly given as injections in hospital only) Same with the Steroid dose packs( only given for a week) Opioids are helpful, yet this “War on Opioids” is attacking pain Patients, not just drug addicts. I’m happy to hear new ideas are on the table to treat this horrible condition, Thank you for this video.

  • @teresacashman7297

    @teresacashman7297

    4 жыл бұрын

    Evil is right ! I wouldn't wish adhesive arachnoiditis on anyone. Why the majority of Drs don't know what it is or how to treat is beyond me. They have no clue how devastatingly painful it is.

  • @gaga3740

    @gaga3740

    3 жыл бұрын

    Is this constant? I keep worrying if I have it bc sometimes I feel poking pain in my leg...only sometimes though...do u think I have it??

  • @brianbyrne4443

    @brianbyrne4443

    3 жыл бұрын

    I got this too ....

  • @liamgardner527

    @liamgardner527

    3 жыл бұрын

    I have this as well. Toroidal does nothing and I’m allergic to steroids.

  • @sandyryers2089

    @sandyryers2089

    3 жыл бұрын

    @@liamgardner527 I have it too stage 4 lumbar and sacral in addition to other severe nerve damage conditions of brain and spine. I am allergic to oral and IV nsaids but can take toradol 30-60 mg intramuscular. Did you try it intramuscular and at that dosage? It crosses the blood brain barrier that way. I'm allergic to steroids as well as opiates because of my mast cell activation syndrome. I also use medical cannabis but it doesn't really help my pain just tries to help me get a little sleep sometimes and keeps me calmer about level 10 pain. Ativan helps but I have to avoid taking it daily. I've used ketamine IV, troche, IM, nasal spray and it helps but only temporarily and for me flairs pain after sometime and can increase my headaches sometimes because of my Chiari. But worth trying if you haven't.

  • @rittzidadda4601
    @rittzidadda46014 жыл бұрын

    So is he pretty much saying that nerve pain is basically the worst kind of pain? Cuz damn i know it's the most debilitating, of anything I've ever been through. Physically, emotionally, and mentally.

  • @qcjess2724
    @qcjess27244 жыл бұрын

    Had the pleasure of meeting this gentleman and also finding out his book describes my life to a "T" He is such a wonderful man.

  • @adara6707
    @adara67072 жыл бұрын

    This Dr is a man of hope & has helped me immensely in understanding this condition. I live in the uk & mine started after a botched epidural therefore I was blatantly disregarded until DR Tennant’s report was submitted they then listened. Thank you Dr T you’re the most amazing person. Thank you so much for your time & help 🙏🏼❤️

  • @lauriemontee579
    @lauriemontee5792 жыл бұрын

    Wish Dr T was still practicing. Wish more doctors understood this horrible disease I’ve just been given. WE NEED MORE RESEARCH specifically about other symptoms that can come from AA. I’ve just been diagnosed and in less than 4 months it’s already adhesive arachnoiditis. I’ve been floored by headaches for weeks and now they are so bad but no one understands this disease 😢

  • @lindasplaylist100
    @lindasplaylist1002 жыл бұрын

    A real Dr here! He treats with his whole being. Educational, emotional, spiritual. Plus is an excellent example of the "ARTIST" of medicine. My most favorite Drs worked like this. Also being a nurse sometimes you just know what you know. I love Dr. Tennant

  • @dm3144

    @dm3144

    Жыл бұрын

    I have a question for you vintage… Being a nurse, do you see much of this condition? I’ve been in the emergency room more than 2 dozen times in the last three years. I cannot get any pain medication anymore. I was admitted during Covid, by one, only one Dr. who wanted to help!! To find the next day a Doctor Who came on duty told me I had to leave because he didn’t want to waste time on me! I couldn’t even believe it! Since then every visit to the hospital I’ve been told I’m a drug addict, going down a dark road, try to be put in rehab! I am a 66-year-old woman on a cane, why the heck would I want to be a drug addict at my age! I haven’t even been on medicine for very long at all! Even then, it’s like pulling teeth to get help with pain meds! I hate to say this to you but the nurses are even worse! The looks they give me, the way they speak to me with no respect is absolutely appalling and extremely humiliating !! I never have been a drug addict and I never will! All the young doctors seem to think the same thing! No more opiates! No more pain medication just live with it! Well I’d like to say to them… You live with it! And I bet you wouldn’t last three hours with this pain! It just pisses me off. Oh my, I am so sorry for ranting… I guess I got off the track of my question, do you see much of this as a nurse?😲🤒🤕

  • @dm3144
    @dm3144 Жыл бұрын

    I’m in pain constantly… I suffered with scoliosis and degenerative disc disease at an early age but continue to work really hard and did not know it would progressed into such horrific pain! I’ve had every test in the book, except an MRI, which you cannot get freely anymore! I was hospitalized coming in in a wheelchair during Covid and was turned away! So I lived with the pain for a year and it made me the worst person in the world! I lost tons of weight couldn’t sleep couldn’t eat from the excruciating pain! I went to the hospital to get some help for the pain several times, at each time I was turned away and called a drug addict and told I was going down a dark road. Do you really think a 65-year-old on a cane would want to come to the hospital just for drugs? What insidious behavior by our doctors! I have researched arachnoiditis over and over again and I write my symptoms down and then the same thing, especially thoracic pain, trouble with my bowels trouble with urination trouble with my stomach, a whole slew, including muscle cramps that are so bad I can’t sleep! I have been since finally, after I had to go to hours away from where I live to find another doctor, it was sent to a neurosurgeon. Of course I don’t want surgery, but I’m not sure I can mention arachnoiditis to this guy… I’m very nervous I won’t get the help I need and deserve! I refuse to use my walker… It doesn’t make me feel steady, nor do I have the strength to lug that around, so I use a cane. I have flareups so bad that I’m nauseated and sweating… I usually lay in bed and cry all day! Until I can go to sleep for one hour and then wake up and the excruciating , King of pain wakes me up! And it all starts over again until I take a sleeping pill! It’s so sad… I’m pretty sure my liver is gone by now how much Tylenol I take! But it seems that the doctors don’t want to listen to that, they just looked at the xrays and said you’re a bulging discs, which I have many, but I knew something worse was wrong… 😖😱💔🤯

  • @GetYourShitTogetherWithGrandma

    @GetYourShitTogetherWithGrandma

    Жыл бұрын

    Yes. Show the doctor that you have non dermatonal pain. That helps.

  • @dm3144

    @dm3144

    Жыл бұрын

    @@GetYourShitTogetherWithGrandma what??? What is that kind of pain? I don’t think you spelled it right, because I can’t pronounce it and I’m a spelling major….😱

  • @GetYourShitTogetherWithGrandma

    @GetYourShitTogetherWithGrandma

    Жыл бұрын

    @@dm3144 usually in arachnoiditis, your pain does not follow the usual patterns. That is why dermatonal patterns matter when you have AA

  • @zyxw-oe8hg

    @zyxw-oe8hg

    Жыл бұрын

    I feel where you are coming from and am so sorry to hear what you are going threw amd can say with certainty that i really do feel your pain. As in i am also an arachnoiditis patient that has adherence (dr wont give me the diagnosis of AA) in my cauda equina. I am 26 yrs old and this cannot be my life for the next 40+ years. I hope you are having better results going to the dr for help with pain and i understand the opiate thing as i was an abuser of them but low and behold it was because i am in severe pain 24/7. Since my arachnoiditis diagnosis i have taken oxycodone 20mg tabs as a trial and so far was the most helpful reliever and was not offered it as an option for long-term pain because there is an "opiate crisis". The real crisis is those whom live awaiting they're grave because of neuroinflammation and severe chronic pain having to live that way because some privileged folks who chose to live their life on the streets on heroine. (Sorry for a bit of a rant) I am trying to live hopeful but it is so hard to do especially when my 75 yr old grandmother is more mobile and pain free than i am, and then looking at how much longer i have until a natural death is very disheartening. I hope you are doing better now and i am so sorry you are having to deal with this as well. If you ever need anyone to talk to feel free to respond to this comment, it may help the both of us to talk with another whom bears the burden of this disease.

  • @dm3144

    @dm3144

    Жыл бұрын

    @@zyxw-oe8hg Thank you so very much for your nice comment. I couldn’t get back to you because my episodes were so bad. I finally got some pain medication, very low-dose and only curbs the pain. The hardest thing for me is it’s getting worse and worse as you say. I am not as young as you, so I am so so so very sorry you have to go through this at such a young age! I did get referred to a neurosurgeon to get an MRI to complete my diagnosis for AA. The suffering is unbearable and I can’t imagine living like this for the rest of my natural 20 years of life. It feels like I’m having a heart attack in my chest my thoracic area hurts so so so very bad. Now my arms are being affected!🤯😱 I was very very active all my life, how much longer I can take this until my death is as well disheartening… You can rant any time, again thank you for being so kind and understanding. I hope I get some real help soon, and you too 😊 Do you get nauseous from the pain and sweaty? That is so bad! Thanks again and I hope you’re feeling better as well with your new meds.

  • @SuperGretschman
    @SuperGretschman5 жыл бұрын

    I`ll Second the motion on that . You are our Angel ! ! Many of the doctors I`ve seen do not care and are ready to get rid of their Patients after 2 years and move you on to someone else ... Always find a reason to get Rid of the Patient ! !

  • @tjl8884

    @tjl8884

    3 жыл бұрын

    Ya its happening to me. They keep sending me to different doctors, pain management, psychologist etc, all the while seeing MRI and xrays showing 4 different problems with my spine.. and they keep trying to pawn off ssri drugs or benzo's.. for chronic back pain that never heals.. And what really burns my ass is these older guys I worked with have bad knee's, shoulders, backs etc and the doctors are throwing all kinds of pain killers at them, one guy can pick and choose exactly what he wants and they try to sell them for top dollar.

  • @EmpressKristine

    @EmpressKristine

    3 жыл бұрын

    My primary doctor has been awful to me on purpose. He is trying to make me leave so he doesn;t have to prescribe, He agreed to do it when my WC neurosurgeon threw me away, after cutting my spinal cord during a 7 1/2 hour 3 level fusion. He did not have to accept prescribing, but he did. Now he blames EVERYTHING on "pain medication" and I'm down to 10mgs a day total. They treat us the worst and we need the most compassion and understanding. Do they believe we like this?

  • @1truthse3ker
    @1truthse3ker2 жыл бұрын

    😪 God bless him🙏💖 I wish that I could have met this wonderful amazing doctor after having suffered trauma to my spine in 2015, these have been my symptoms since day one and they've only gotten worse I can never sit stand or do much of anything for very long the pain is killing me literally

  • @ajae4214
    @ajae42143 жыл бұрын

    Lovely caring gentleman with great out of the box diagnostics for complex resistant pain conditions. Was great pleasure to have met you #DrForresrTennant

  • @billyprendergast6631
    @billyprendergast66316 жыл бұрын

    Help us please.

  • @markbass354
    @markbass3546 жыл бұрын

    you are an amazing doctor

  • @arnoldorbach9977
    @arnoldorbach99775 жыл бұрын

    Awesome doctor!

  • @acerodriguez6884
    @acerodriguez6884 Жыл бұрын

    Awesome information

  • @terischall8998
    @terischall89985 жыл бұрын

    You're our Angel Dr Tennant...Thank you🧡

  • @wickedbroke6197

    @wickedbroke6197

    4 жыл бұрын

    CVK.... Why did they do that and why would he let the DEA talk him into it?!?! He’s probably one of only handful of doctors who actually care about their patients and they’re quality of life and listens to what the patient is saying and telling him. He needs to be Xeroxed !! No, Seriously

  • @melloyellow5598

    @melloyellow5598

    4 жыл бұрын

    .

  • @lovetocruise67
    @lovetocruise675 жыл бұрын

    Dr. Tennant is the best doctor I’ve ever seen and unfortunately I’ve been to hundreds. He diagnosed me with this dreadful disease.

  • @suleiman07

    @suleiman07

    5 жыл бұрын

    Where is he located?

  • @lovetocruise67

    @lovetocruise67

    5 жыл бұрын

    suleiman ali He is in CA. His website is www.arachnoiditishope.com

  • @totalnoobfishing1753
    @totalnoobfishing1753 Жыл бұрын

    Well looks like I am joining the family .... I had the most common spine surgery ( Laminectomy ) with THEE most high profile hospital in North America HSS and selected a very decorated surgeon and of course he caused a major dural tear. I had a long road to recovery for 3 months and started to turn the corner and suddenly I woke up with AA. I went admitted back to the hospital and they ran every imaging report and clearly call out 2 nerves adhered to the dural wall, however the report says "No evidence of arachnoiditis" and my highly decorated surgeon said he had never witnessed my symptoms before from a dural tear. Deny...deny...deny. Thus begins the journey of getting bounced around from dr to dr to dr, someone refusing to treat me, others not understanding. Finally I found a Neurosurgeon who diagnosed it in 5 seconds after reading my MRI and quite clearly told me HSS was lying. Sadly, you will be hard pressed to find a Neurosurgeon to operate due to the risk and likelihood of scarring to occur for the very reasons Dr. T mentions in his videos about how the cells within the spinal cord.

  • @mariannebradley6905
    @mariannebradley69056 жыл бұрын

    My son was shot in the stomach two and a half years ago and he is worse than he was before the second surgery to have the Colostomy reversed. After going too every Dr. for help, he is ready to kill himself from the intractible pain. He is never out of severe pain, breaks out in sweats, breaks out in sores on his arms and legs that burn and won't heal. He can barely use his left leg and the pain in his left testicle he describes as the worse pain he's ever had and the burning pain goes half way down his left thigh...and no Dr. Will consider trying to take the bullet out of his pelvis. I know he won't want to live like this...

  • @francestillman6970

    @francestillman6970

    6 жыл бұрын

    I live with this pain and I'll pray for your son because I know what he is going through and it's horrible.

  • @Dentalofficeforsale

    @Dentalofficeforsale

    5 жыл бұрын

    I am so sorry for you and your son. I hope you find answers and peace and someday you get those questions answer and he will get some pain relief.

  • @dm3144
    @dm3144 Жыл бұрын

    What really gets me, is how easy this is to find! Yet none of my doctors have explored this condition yet! Ruled out every other condition, and the pain is getting extremely worse and worse! I have had every test in the book, from bloodwork to upper G.I.’s, two EKGs, because my pain is so bad around my spine. And then, is now radiating really bad in my arms and legs and entire body! I’ve had several doctors tell me it’s just arthritis! Just arthritis? No test? Doctors are so lazy now I can’t even believe it!😮 Wish Dr. T was practicing as well, I’d probably go to the ends of the earth to see him!😊

  • @CristinaF210
    @CristinaF2102 жыл бұрын

    Thank God for scientists ,doctors, the bit, now let's make that accessible to EVERYONE

  • @arnoldorbach9977
    @arnoldorbach99775 жыл бұрын

    I am pro opiod! I saw my mother die in pain from rectal cancer brain cancer and colon cancer. I have pancreatic cancer now and WILL Not allow doctors to demonize my treatment of pain control. I'll be damned.!

  • @SuperGretschman

    @SuperGretschman

    5 жыл бұрын

    You are so Right ! !

  • @wickedbroke6197

    @wickedbroke6197

    4 жыл бұрын

    Yeah I agree! And its bullshit how they’re punishing the people who REALLY need the pain meds bcuz of the idiots who have turned to Heroine to get they’re fix bcuz they screwed up they’re Pain pill prescription by doing shit they weren’t supposed to be doing!! Dirty drug tests,selling their pain pills and getting caught when called in for a pill count!! I say leave the rest of em alone! If they’re really in that much pain they’re going to take their meds the way they’re prescribed and if they don’t and they piss dirty or get caught selling them thats THEIR fault and THEIR PROBLEM not everybody who is under pain management! It’s NOT RIGHT FOR THE GOVERNMENT TO DO WHAT THEY’VE DONE AND ARE DOING TO THE CHRONIC PAIN SUFFERERS AND THE PEOPLE TRYING TO LIVE A PRODUCTIVE LIFE WHO CANT WITHOUT PAIN MANAGEMENT THE GOVERNMENT NEEDS TO KEEP THEIR NOSE OUT OF THE PEOPLES HEALTH ISSUES, They’ve caused enough problems with money and taxes.

  • @dawnaustin4556

    @dawnaustin4556

    4 жыл бұрын

    Wicked Broke so much for the “land of the free”... rules everywhere. I agree with you one thousand %

  • @matovicmmilan

    @matovicmmilan

    3 жыл бұрын

    @@wickedbroke6197 Don't blame the people who take opioids to treat their psychological problems!

  • @speaklifegardenhomesteadpe8783

    @speaklifegardenhomesteadpe8783

    3 жыл бұрын

    Exactly, none deserve to live in torture like a prisoner of war with none to rescue you, SUFFERING alone in TORTURE While the world claps celebrating their ignorance, they're so relieved your not an addict, while they go about their TV driven lives, your still alone in your silent room, struggling, suffering, praying. STOP THE WAR ON DOCTORS AND GENOCIDE ON SUFFERING PATIENTS!!!

  • @jimmac1256
    @jimmac12564 ай бұрын

    I have arachnoiditis since 1990.Its so debilitating.

  • @jasonwood1926
    @jasonwood19264 жыл бұрын

    The greatest!

  • @ajae4214

    @ajae4214

    3 жыл бұрын

    Simply 🤗

  • @loriholman1459
    @loriholman1459 Жыл бұрын

    We need this guy and he's up and running.. PLEASE ck.him out...THANK YOU! Red Lawhern too.

  • @EmpressKristine
    @EmpressKristine3 жыл бұрын

    Cerebrospinal dural tear led to mine, (spinal fusion) and it's the worst. Pennsaid patches and Gabapentin weren't that helpful. Theraplants Hybridol cannabis oil (rice grain dose) in a vegetable capsule, ended up being the fix, to end the bee-sting agony I had been enduring. Connecticut has a medical mj program, and the pharmacist met with me, and recommended it. It does not just fade out the stinging, it makes it go away 100% when taken twice a day. It's like Gabapentin and Oxycodone combined, without the addiction or constipation. I ended up with "foot drop" as well, from them "accidentlly" cutting my spinal cord. Then my appointments were all canceled.

  • @annm.perrone6089
    @annm.perrone60893 жыл бұрын

    I wish I could Find a doctor that knows about Arachnoditis

  • @neelsackerman1202
    @neelsackerman1202 Жыл бұрын

    I was diagnosed with Spinal Stenosis in 2010 which is exactly the same symptoms listening to Dr T. about Arachnoiditis. I am on chronic prescribed meds 2 tablets twice a day. I take Tramacet which is a very strong pain killer but it does not eat your stomach .

  • @christopherbellore3511
    @christopherbellore35114 жыл бұрын

    I wish Forest Tennant was my Doctor.

  • @annm.perrone6089

    @annm.perrone6089

    3 жыл бұрын

    So do I

  • @heathershapan2490

    @heathershapan2490

    3 жыл бұрын

    @@annm.perrone6089 and @Christopher Bellore, he takes appointments in San Diego, CA. My dad sees him.

  • @annm.perrone6089

    @annm.perrone6089

    3 жыл бұрын

    @@heathershapan2490 Thank you. But. I. Live in New Jersey

  • @ajae4214

    @ajae4214

    3 жыл бұрын

    Email 😏… zoom or Telehealth 😏

  • @ajae4214

    @ajae4214

    3 жыл бұрын

    I flew out from AUSTRALIA 🇦🇺 TO LA CALIFORNIA USA 🇺🇸 to see him…🤗

  • @therebelpatient9822
    @therebelpatient98226 жыл бұрын

    The tordol didn't do the full job. It was just a 3 hr sleep and still Life Threatening BP after the hospital release. Those used to work before being left this way so long! Things will get better!

  • Жыл бұрын

    the patch helped your pain?

  • @sherrybrown1521
    @sherrybrown1521 Жыл бұрын

    I need help to help alleviate the pain and maintain the ability to walk and be active.

  • @annm.perrone6089
    @annm.perrone60893 жыл бұрын

    Does anyone know of a good pain dr in the south Jersey area??

  • @natethegreat6321
    @natethegreat6321 Жыл бұрын

    I wonder if I have this. After back surgery I always have back pain, hip pain, legs that are hurting all the time. At night I can't hardly sleep due to legs cramping and tingling. If I didn't have a loving wife and a kid I don't think I would still be here today. It sucks to say that but being in pain all the time is not fun.

  • @juliettedesecillon1379
    @juliettedesecillon1379 Жыл бұрын

    No the worst is cluster headache

  • @tammymurphy1268
    @tammymurphy12686 жыл бұрын

    i have shocks now in my back..after back surgery..like bend and feels like i stuck my finger in a light socket.....so sucks!

  • @monisolaelliott9346

    @monisolaelliott9346

    2 жыл бұрын

    I’m scared to get any kind of surgery because I just feel like this very thing will happen and other things will get worse

  • @MrsMRRoss
    @MrsMRRoss2 жыл бұрын

    This makes me so sad. I have been declining for years. I have described these very symptoms to more that just my primary care doctors but specialist as well and I am 100% positive this is what I have been dealing with for a very long time. I have pushed my way through each and every day just dealing with the pain life has dealt me. For t he love of God PCP’s research on behalf of you patients. Quit dismissing common symptoms to, “well another everyday neuropathy… patient should really watch their diet…. ‘’ Seriously I would like to call my pcp right now and scream at him for being complacent..

  • @DollyChrist-km8lz
    @DollyChrist-km8lz15 күн бұрын

    Whats the best polypeptide to buy?

  • @zyxw-oe8hg
    @zyxw-oe8hg Жыл бұрын

    I need help. I am a 26 yr old female diagnosed with arachnoiditis of the L spine with adherence to the cauda equina as well as a lumar cyst likely an arachnoid cyst. My neurologist has not ever treated this condition and i am respectively being sent back and forth from 1 doctor to another and the same goes for neuroradiologist, saying the cyst is arachnoid then another saying its inconclusive. I am in severe pain, am having urinary incontinence and fecal incontinence, numbing and weakness of the lower extremities, random fevers, night sweats, tremors and spasms, clumsiness, and now having severe sharp head pains/cramps, blurred vision, confusion, memory issues. I was in an intense quad accident at 11yrs of age and had postponed bleeding out my left ear without intracranial pressure that led to an unspecified diagnosis of post concussion syndrome, and since that accident i have had the explained conditions above along with being diagnosed with reflux sympathetic dystrophy at age 15. My life is falling apart and i need help. If any doctor or neurologist or someone in school for the health care profession sees this and has any insight on how my situation can be improved please please please respond to this comment. I am at a loss due to my doctors being clueless on what to do or how to treat the symptoms. Best help offered has been Gabapentin and cyclobenzaprine which is not helping at all anymore and have been told surgery is not an option because that typically makes the symptoms worse.

  • @SuLokify
    @SuLokify4 жыл бұрын

    I've had this condition since 2012. Doctors in the US have stopped treating pain, I'm ready to die

  • @ashlieleavelle

    @ashlieleavelle

    4 жыл бұрын

    I am so sorry. I really feel for you. I just said a prayer for you.

  • @humility1st

    @humility1st

    3 жыл бұрын

    Hugs and love to you. I too am ready to die.

  • @EC-yd9yv

    @EC-yd9yv

    3 жыл бұрын

    .wish you the best!! It's been 15 years for me. Very cruel life robbing journey.. Medical disaster..God Bless and strengthen us mighty warriors🙏❤🙏

  • @annm.perrone6089

    @annm.perrone6089

    3 жыл бұрын

    I have this disease arachnoiditis I’ve had it since 2016 which is now five years it has robbed me of everything including my life spending time with my family going on vacations I can’t do any of those things anymore we need some good strong pain medicine- we are not attics we are in constant excruciating pain 24 hours a day seven days a week!! I used to be and good pain medicine for 3 1/2 years until she no longer wanted to treatment due to these new regulations!! It is inhumane to have people like us suffer in horrible pain every day all day the CDC must read and investigate what this disease really does to all of us there’s always an exception to the rule but so far I haven’t found it - I hope the CDC recognizes this disease and people that have cancer anyone that has a disease that causes excruciating pain all the time recognizes this and changes the rules🙏🙏💊💊💊💊💊💊💊💊💊💊💊💊💊💊💊💊

  • @ajae4214

    @ajae4214

    3 жыл бұрын

    Always someone else worse off than yourself … I’m in AUSTRALIA 🇦🇺… NO TREATMENT HERE. NO RECOGNITION EITHER! 25+ YEARS of this BS…😞

  • @rodsloan3810
    @rodsloan38103 жыл бұрын

    This Adhesive Arachnoiditis killed my father. Took 37 years after a myleogram with myodil

  • @charmy2882
    @charmy2882 Жыл бұрын

    I have severe neuropathic pain, I can sit , stand DDD, hydrocephalus, 2 TBI and now Arachnoid cyst bulging into my transverse sinus. It’s not small fibre neuropathy. I’m emailing new scans to Doctor Tennant for diagnosis. I’m living in hell Australia 🇦🇺

  • @leebasco9217
    @leebasco92177 ай бұрын

    I’m a type 1 diabetic and I have spinal epidural lypomatosis t1-coccyx along with adhesive arachnoiditis. Due to my diabetes and lypomatosis I can’t take steroids. Any suggestions? I’m currently struggling with walking and am using a wheelchair.

  • @carriestrickland4876
    @carriestrickland48762 жыл бұрын

    I love you💕💕💕💕

  • @ShangDi_became_Jesus
    @ShangDi_became_Jesus2 жыл бұрын

    Never heard or knew what this was just heard 2M people in the states has it. Hope a cure is found

  • @sarahhull158
    @sarahhull1586 жыл бұрын

    This is me

  • @h2odivemaster
    @h2odivemaster6 жыл бұрын

    Where can we find a list of Dr's who know and will try Dr Tennants protocol ?

  • @dennis954rr01

    @dennis954rr01

    5 жыл бұрын

    I would love to know this as well, suffering from Arachnoiditis. Where can we find doctors to help?

  • @SuperGretschman

    @SuperGretschman

    5 жыл бұрын

    Yes , Is there a List in our States & cities ?

  • @dawnaustin4556

    @dawnaustin4556

    4 жыл бұрын

    h2odivemaster go to the Tennant Foundation or ForrestTennant.com and the treatment protocols are there along with a handbook. The updated version was just made available

  • @speaklifegardenhomesteadpe8783

    @speaklifegardenhomesteadpe8783

    3 жыл бұрын

    @@dawnaustin4556 the website isn't working FYI

  • @heathershapan2490

    @heathershapan2490

    3 жыл бұрын

    You can make appointments with him in San Diego, CA. My dad sees him currently.

  • @justsheley
    @justsheley2 жыл бұрын

    I've found no help. I can't work. If only I could afford to visit your clinic

  • @stephaniepowell3501
    @stephaniepowell35012 жыл бұрын

    I have this it’s ruining my life!

  • @joab757
    @joab757 Жыл бұрын

    There’s a vid on KZread and it’s almost as if the guy has endless cramps in his legs. Looks very painful.

  • @juliewisconsin3840

    @juliewisconsin3840

    Жыл бұрын

    I think I saw that too

  • @thriftypuggin
    @thriftypuggin Жыл бұрын

    I'm pretty sure I have this ... I had 4 back surgeries on L5 S1 total three of my back surgeries were discectomys, the last one was a fusion but now I have scar tissue that's so bad it's engulfing the nerves, and now I also have a fracture in the right side never fused, I have chronic pain I do see a pain doctor, but all they want to do is keep giving me epidural injections... I really need help and I need to find a doctor they can either fix me or treat the pain better

  • @SacredOwl

    @SacredOwl

    13 күн бұрын

    Do you have sudden pain flare-ups that come out of nowhere and are a 10 level pain? Do you have pain episodes at the same times (besides the random pain episodes), like just as the sun is coming up. Do you have random 20 to 30 minute pain flare-ups? Most commonly these are AA and nothing else. It does t mean you don't have it if you don't have these things I listed. In my experience adheasive aracanoiditis is triggered my muon and HZE sub atomic particles acting onnthe damage and triggering inflammation and pain. I have been sleeping and using a shielding room for about ten years. For the first time in 20 years, I went to 0 pain shortly after using a shielding room. All my downstream symptoms shortly disappeared and so I am just left owth pain episodes only, which take 30 seconds to 5 minutes max to mitigate. I have regualr chronic pain also, shielding stops both for me and others I have shared this with. It may or may not work for you, but you can confirm that it will work by looking at space weather live , navigate to the Euro stack plot magnetometer, pain flare ups should match when this goes down. Navigate to solar flare and a 20 to 30 minute flare up occurs at the start of a solar flare. Navigate to KP index, my experience and people who track their episodes, tell me that continued pain occurs below 2 KP. When it hits close to 0 kp, the pain is off the charts. Going on ten years, I can tell you what these graphs say in real time without looking because each one is slightly differnt in terms of timing and intensity. If you want to know the science behind what I am saying, go to NIH or Harvard T.H. Chan School of Public Health who have already done 12 papers on space weather as a trigger mechanism for medical episodes. You can also see the paper titles solar flares activate endothelial and inflammation, that one is really good. (The 2nd author has many papers look her up)

  • @annm.perrone6089
    @annm.perrone60893 жыл бұрын

    Where is this Dr located?

  • @heathershapan2490

    @heathershapan2490

    3 жыл бұрын

    San Diego, CA, my dad sees him currently

  • @Thevwmethod
    @Thevwmethod Жыл бұрын

    I had a L5S1 injury? My lumbar is num and hot to touch.. daily bp is 165-200 tablets will not touch it and I have like I'm AD boosting headaches, hot bad eyes etc ...I'm getting electric! Shocking access my back and have tingling and num feet and hands ...

  • @Thevwmethod

    @Thevwmethod

    Жыл бұрын

    I did take Dox as its like my soft tissue is being attack by Adrenalin

  • @icu8itall273
    @icu8itall2736 жыл бұрын

    ketamine infusion worked...worked for my AA.....xpensive, yes.

  • @TS-yu2mp

    @TS-yu2mp

    6 жыл бұрын

    God bless you doctor

  • @teeduck

    @teeduck

    6 жыл бұрын

    ICU 8ITALL is this a long term treatment? do you need additional treatment periodically or can this provide regeneration / dissolve scarring?

  • @JohnnyFive

    @JohnnyFive

    3 жыл бұрын

    @@teeduck It's absolutely not long term. It lasts a few months. Once you fall again, your old pain will reignite.

  • @tristanmason7405
    @tristanmason74055 жыл бұрын

    For me Tramadol is useless. However, it worked well for my four legged girl. Vets give tram to pets

  • @tjl8884

    @tjl8884

    4 жыл бұрын

    That stuff is nasty if you take it for a month then come off it.. Worse 3 days of my life..

  • @AS-rp5qd

    @AS-rp5qd

    3 жыл бұрын

    He said "toradol" not Tramadol. Toradol is basically a super strong NSAID that apparently crosses the blood brain barrier pretty well and can help with neuro-inflammation.

  • @tristanmason7405

    @tristanmason7405

    3 жыл бұрын

    I’m familiar with Tiraspol, took it before. He sounds like he has cotton in his cheek when talking.

  • @hairyclamakabushsenior2870
    @hairyclamakabushsenior28704 жыл бұрын

    I’m the one to figure out...................

  • @davidparr3773
    @davidparr37732 жыл бұрын

    is this the same thing as the mylon sheath and it being degenerated and would baking soda maybe help to regenerate the the nerve cells

  • @lovesupreme1
    @lovesupreme1 Жыл бұрын

    Please help me I don’t know how much more I can take of this. Anything from anyone

  • @SacredOwl

    @SacredOwl

    13 күн бұрын

    How are you doing?

  • @annperrone8864
    @annperrone88643 жыл бұрын

    I have this horrific deseae I. Have thought about Suicide I can’t handle this pain

  • @ananorris2371

    @ananorris2371

    Жыл бұрын

    have you found any relief?

  • @annperrone8864

    @annperrone8864

    Жыл бұрын

    @@ananorris2371 No I haven’t found any relief I do get some pain medicine but it’s such a low-dose that it doesn’t help, I’m so sorry it took me so long to reply to you, but the truth is I just now saw this thank you for asking,

  • @49walker44
    @49walker44 Жыл бұрын

    Had /have AA since 99 and I call bs , I haven't found a doctor yet that isn't full shit with hope but in the end all you can hope for is the end . Certainly doesn't mean you give up however you do that. It's as good as it can get, get used to it.

  • @Clubs2473

    @Clubs2473

    Жыл бұрын

    My experience, ur pretty much right on...most DGAF

  • @SacredOwl

    @SacredOwl

    13 күн бұрын

    How are you doing now? Check out space weather live... there you will see your pain Flare-ups. But how could this be, the stack plots match my pain 100%. It must be space weather hitting the damage. Block the space weather there by building a shielding room. If space weather is triggering the pain flare ups, then blocking them tales 30 seconds. I go to 0 pain in less than 5 minutes and as little as 30 seconds. Going on ten years, still works for me and everyone I have shared this with. On top of that, all downstream issues from AA have since disappeared. (Except my bad eyes) I had ealry onset demintia and almost didn't finish the shielding room I built. Inwould loose three days and often couldn't even talk. All that is gone, dementia started immediately getting better and within weeks was completely gone. Hope this helps. I can freely share how tk build. It's eqst and fairly cheap for materials you can get at low and depot (yt deletes if I say thr names fully)

  • @bmpipesandmore9080
    @bmpipesandmore90806 жыл бұрын

    I fear I may have this

  • @justina2333

    @justina2333

    5 жыл бұрын

    I think I do too. Have you found out anything about yourself?

  • @dcyoungfly187

    @dcyoungfly187

    5 жыл бұрын

    I'm scared bcuz I believe I do to.😥

  • @JuanRamirez-dn5nz

    @JuanRamirez-dn5nz

    5 жыл бұрын

    What do you think caused the symptoms you're experiencing?

  • @Bettinasisrg
    @Bettinasisrg2 жыл бұрын

    Well so glad my government is now my doctor because we all know how much our government cares about us! Give back our pain medication!

  • @annm.perrone6089
    @annm.perrone60893 жыл бұрын

    HeLp. Us

  • @ajae4214

    @ajae4214

    3 жыл бұрын

    Write him, email for zoom appt, or at CA

  • @woodslisa4529
    @woodslisa45292 жыл бұрын

    weed is helpful