I have AS about the same age as Ray. Im an ex coal miner and in pain most of the day I feel for you Ray im existing with this horrible disease but function better in a warm country like Spain. good luck mate keep smiling. I thought rigor mortis happened after we die not before

I get backpain. Sacroiliac pain. Bowel inflammation (constant loose stools diarrhoea) itching all over body especially after water or even sweat and some heart pain at times and finally some migraine and eye problems when a full flare. I find hot showers and lifting weights helps.

@kayenacur

6 күн бұрын

Sound s like you may have the HLA B27 gene. You might want to get tested for it.

My grandfather and his sister had an extreme case i believe. It just looked painful. I have been diagnosed with two auto immune disease and have always been scolded by my mom to stand up straight. I was. I also have pectus carinatum, my son as well but he has had the corrective surgery. My lower back has damage . I’ve tried to tell my rheumatologist. I believe I’m going through what my grandfather and his sister went through as well. Does anyone know how to get help or get someone to really listen? It’s so painful. My poor grandfather complained about his back quite a bit. 😢 I hope medicine can progress and doctors really listen to their patients.

this is me for 30 yrs now. I am 49 yrs now. so much pain thorax and neck and hunched over. Nothing seems to help.

I have every single symptom at 20 :’)

@bos2697

Жыл бұрын

Me too, covid makes it happens too early. No mobility = joint fusion haha

@larzmenda1283

9 ай бұрын

Lol

@ImPinkKat

7 ай бұрын

Me too since I was 16 going to get this examination tomorrow

@ferf7446

7 ай бұрын

I`ve had symptoms all my life. My dad has AS and I was diagnosed at 18. You should def go to a doctor

@cannibalismisfuckingkewl

20 күн бұрын

Same, i just turned 15 :,) my mom has it and it’s genetic. At least I won’t be left in the dark as to why I’ll be in pain

thanks beautiful

I had spinal fusion 15 yrs ago at L 5 S 1, it failed, ive been dealing with "Failed back surgery syndrome" nightmare !

I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip and hand they came back as nothing showing, my neck and shoulders came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip and right down my left leg, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet, if i have over done my upper body is tight and i have difficuilty breathing. After work i feel as though i have been hit by a bus, my heels are so so sore. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. Does anyone ever expierence pain i there achilles and calfs. Im am so depressed every night i say to myself maybe tomorrow i will feel better, i have been living like this for years now wondering if the next day will be better and it never is. I try to explain to people how sore and fatigued i am but its like they just dont believe me or understand how i am feeling. Often feel like giving up, if it wasnt for my family i would just give up.ARE ALL THESE SYMPTOMS SIMILAR TO HOW OTHER PEOPLE FEEL????

@bos2697

Жыл бұрын

At night it kills me, since i consume etoricoxib i feel better at night and daily life. I think it get worse if the joint fused already, the pain would be there at night. If SI joint get fused/inflamation, pain will be on the hips, lower abs, and upper leg like me

As I spent my life in construction industry I just wrote off all the pain and injuries over the years to damage due to this work. At about 45 or 50 I then noticed a quicker reduction in my ability to flex in different directions and loss of agility( something that was never very good really) . I was checked for the common genetic markers which did not exist , apparently this is more common now and the lack of them does not mean you do not have AS. The tests covered here and the results mimic my own restrictions.

@bryanjones14

3 ай бұрын

Ive just turned 50, welder/pipe fitter ,since I was 19 .... I'm struggling right now , it has gotten so bad this last year .I feel like a lazy bum .but I can barely move some mornings , I always wrote it off ( just she and how much I do ) but just had a CT scan done and they said I have A.S . My arms have been numb for a week now .... And trout season opens in 2 weeks. I don't have time this shit

#Can Spinal fusion, SI joint fusion and knee fusion decrease our body height if it does how would we know what is our actual height without Ankylosing Spondylitis is there any way available please reply.

Can AS cause tingling in the feet? Ive had AS since around 2009. The tingly feet has been going on a year now.

@VersusArthritis

3 жыл бұрын

Hi, thanks for sharing with us. While AS can cause pain, swelling and soreness in feet, tingling/pins and needles aren’t so common. So it may be worth mentioning this to your doctor or even a podiatrist if you’re working with one. You can ask you GP to make a referral to one if need be. You can read more here: bit.ly/2TvkyWJ. Best wishes, Sharmin - Helpline Advisor 😊

@tejaskothavade6992

2 жыл бұрын

Yes I do have tingling in my leg why does it happens did you find reason

How does one obtain an evaluation for AS?

@dc.pentrumesteri4893

2 жыл бұрын

hla b27 blood test sir

@ryanlebear

7 ай бұрын

I was diagnosed after an MRI scan, I have HLAB27 gene too.

Hi